“YOU ARE NOT COMING HOME BY THE DEPUTY WARD MANAGER”
I will begin writing what a wonderful time we have had together today in a fantastic place – a therapy centre situated quite some distance from the Ash Villa, Sleaford. I had five hours granted of S17 leave, much of which was spent travelling. I collected Elizabeth at 12.00 pm but was conscious that she would not have eaten anything. She was not even up and dressed when I called and was nervous about going initially. I did not pay much attention to the exact time I picked Elizabeth up to be honest but it is so regimented and strict with discipline that the attitude is you have to be back on the dot. This is what is called Section 17 leave and no flexibility but it depends on the member of staff, one in particular is a male nurse with good communication skills who took into account that Elizabeth wanted once to go to a garden centre some distance away but I was told 1 hour only by other staff members. It takes me 1.5 hours to drive there and another 1.5 hours to drive back. Elizabeth really enjoyed herself today and when we left she said she was hungry. There was nowhere in the area apart from 1 pub that had stopped serving food so I took her to a lovely place even further afield called Woodhall Spa and I showed Elizabeth the “Kinema” in the woods and we walked from there to the high street where they have wonderful shops many of which were closing being Sunday but fortunately I managed to find a place that was open. This is called the Inn at Woodall Spa. Realising that time was getting on I asked if they could provide a takeaway but decided to contact the ward to advise we might be a bit late as we were going to have just starters. The response was “I am going to have to escalate this”. This was a nurse who said this. I then said I felt really threatened by such words and asked was she going to call the police again for the third time? The Inn at Woodall Spa went out of their way to help and I would highly recommend not just the food but service.
We had no time to eat in there and felt obliged to make our way back to the car but at least Elizabeth had nice food to look forward to as all they get in the evenings in a sandwich.
Elizabeth wishes to share her views. I am going to make sure that she is heard loud and clear. “What shall I do about the noisy drawers in the medication room” “I’ve got an ?? idea I could go there and tell them that the drawers make a lot of noise but then again they are the only ones.”. I have promised Elizabeth I will feature such comments as this is not good to make a noise slamming drawers in the medication room.
“I really liked the day out today”. “I cant stand up any more for the injection so they are gonna have to do it lying down!!” “Not that I have an injection tod” I have just sent her photos of our wonderful day out.
“it is totally unacceptable” – her response to my comments that it would appear our battles are far from over yet.
On the way back home Elizabeth came out with random but interesting comments.
Elizabeth is on guard at the moment and it is no wonder way. There is a lot going on behind our backs right now. What is going on is a Care Act Assessment. From what I have heard is the former local area are involved but it has been sprung on Elizabeth very recently and she did not want to participate. That shows mistrust because after all the very many recent flawed capacity assessments on something I cannot talk about as I would end up in prison otherwise, it is no wonder Elizabeth does not trust anyone. It is a good job that she tells me what is going on and I immediately contacted Voiceability. They were advised by me that a care coordinator from Enfield who is well known to us wishes to carry out such tick boxing assessment. Looking back to 2014 “Deprival of Medication Community Care” case – Irwin Mitchell. This same person who wrote nastily for court purposes now is the care coordinator and the same person which according to my files recommended this assessment under MHA leading to 19 months imprisonment.
The other thing Elizabeth told me is that she has been told by the Deputy Ward Manager “You are Not Going Home”. So decided to put this title on my blog to inform the world especially as this is a very topical subject right now as Elizabeth is one of thousands incarcerated under the MHA in the most unsuitable environment of a locked ward which is far from therapeutic.
Elizabeth has also informed that the “Clopixol Depot” has recently been reduced by 100mg. That is an incredibly high drop. I am not a doctor but I am going to copy in Dr Moncrieff and others to check on this and I am not having it said that there is a relapse of so called “illness” when I have read up on the subject that any decrease or increase in medication can affect behaviour. We are still waiting for the MRI scan appointment and the Endocrinologist appointment and dentist after 19 months.
I feel in the mood for writing right now as I want to get the truth out there to as many people as possible. I know the team are reading my blog and feel honoured by this. I wish to advise the Government ministers what changes need to be made to the MHA – the system is not fit for purpose and as said at the CTR in Enfield “the whole thing stinks!” I am now looking at the response from CEO, SC of LPFT who has commented on concerns re Panorama and Dispatches “we are an open and transparent organisation and following these programmes we did contact families and carers of those on our wards to acknowledge how upsetting the documentaries were and provide an opportunity for them to speak to a service manager. Well I am speechless! Why haven’t I been contacted in this connection in that case? Then it is mentioned about “positive progress”. In 19 months of incarceration you would expect to see such positive progress – we have seen none except resilience from Elizabeth despite the mountain of drugs given at one time which led to several patients approaching in the grounds outside voicing their concerns and telling me they were doing the safeguarding. I still cant believe the enormous increase from 300mg fortnightly to 400mg every single week plus 10mg on top and all the frequent rapid tranquilisations. That sounds more like torture to me. Now with a new doctor appointed he had started to give leave unlike any of the following doctors:
Dr Shahpasandy
Dr Ismail
Dr Kumar
Dr Islam
Dr Suleman
I will not name the new doctor because he is being fairer but that does not mean I am at all happy. I am also on the receiving end of heart-breaking messages from Elizabeth which, in accordance with her wishes, I will be openly sharing.
I am glad that Ms Connery mentions “we understand and appreciate that Elizabeth would like to be at home and we are working hard on making preparations for this to happen. This is very contradictory to what the Deputy Ward Manager has just said to Elizabeth and I will not have it said that Elizabeth has got this wrong.
As for “escalation” for being 22 minutes late do you think I am over-reacting?
I would love to hear the comments of my readers after all how comes Police were called twice on me by Ash Villa staff whilst I stood alone under CCTV and then I was accused of assaulting a member of staff. What a lie! Quite rightly I have asked for all the footage so I can share this with my readers. For this I have had to contact the Police themselves and of course there is nothing to show or even the recordings of my alleged threatening behaviour. I find it quite amusing as this reminds me of Cygnet accusing me of “impersonating another mother” via their solicitors. Then I got a threatening letter from the Police. The letter was dated a year prior to when it was posted lol! I never heard anything back from these solicitors about the recordings and this is something I am also awaiting from Lincolnshire Partnership Trust. “Thank you for sharing your constituent’s concerns. I would like to assure you that the Trust is working closely with our NHS colleagues and are continually reviewing Elizabeth’s care to provide her with the most appropriate support and treatment. Like now? Where is the psychologist??? Why is there such staff shortages? Why do you use caged vehicles? Why has my daughter been treated like a restricted prisoner and me like a criminal. Now as someone who is involved in reviewing services myself I can say that I have seen high quality in care but what has clearly been going on here is abuse of power and breach of human rights.
It is not just down to the psychiatrist but a team of 29 and the only positive thing is that they are supporting the former area.
I will keep you informed.
