“YOU ARE ON AN ONGOING SECTION” Featuring Lincolnshire Partnership Trust and Lincolnshire County Council

Moving to Lincolnshire, hoping to provide a nice home for Elizabeth of her very own in the right environment has been a huge mistake. She was not sectioned previously.

We moved on 15 September 2021 and Elizabeth is still held a prisoner forever on a locked acute ward where rules are strict and rigid and even the prison opposite offer more choice in visiting hours and all the time over many months on end we did not know of Enfield’s involvement in this. I believe the provision of care through LPFT was being funded all the time by Enfield and no wonder why there was no incentive to do anything about the situation other than keep Elizabeth on a never ending section and treat her like a restricted prisoner on DoLs whilst at Ash Villa.

In order to achieve a never-ending section all you need is Trust and Council to work together and be totally dishonest. They do this by abuse of power and process and through the legal system in hearings that go on behind your back at public expense and with threat of huge costs amounting to SLAPPS, using their unregulated legal services department to aid their intentions. They then gang up against you and what chance do you have against a multidisciplinary team backed by a team of dishonest AMHPs who will stop at nothing to present as many untruthful statements as possible. They well and truly have their own agenda.

The council has been dishonest and achieved their ends by a multitude of means playing on of completely flawed capacity assessments not done in line with Masterman- Lister and not fit for purpose. The MCA2005 is used to take control from patients and their families. In most cases this really is in the best interest of the patient but is open to abuse as is everything else. The best interest of the institution are often “factored in” even though that is entirely contradictory to the spirit of the legislation and code of practice. The system is rife with abuse played on by capacity and what they think is best interest. There have been about 5 capacity assessments done and two by the CoP that did not go their way. To achieve their aims doctors raised the drugs around this time to enormous levels:

From 300mg a fortnight to 400mg weekly with 10mg clopixol tablet on top and on top of all this countless rapid tranquilisations occurring every few days which prompted other patients to complain out of concern. Where then was the social services who did nothing?

Capacity is played upon by the team with numerous capacity assessments geared to fail – Shame on you – especially two doctors and 1 SW. Once they have this as ammunition they can make sure that any applications in Elizabeth’s own right will fail on the basis of capacity and what they see as BI. Elizabeth will never be able to challenge – it is designed to shut down any chances of appealing a decision. How corrupt is that! How many more councils and trusts act in this dishonest manner and get away with things?

Elizabeth’s comments “I dont know why this is happening but I reckon it’s social and the services. I do not want the official solicitor to represent me at any time.” Elizabeth had sent this email to me with her views.

Social services then set about destroying the family putting one relative up against the other and cutting others out of everything including Elizabeth herself. It is one thing doing that to me but to my vulnerable daughter it is an absolute disgrace on the part of LINCOLNSHIRE COUNTY COUNCIL AND LINCOLNSHIRE PARTNERSHIP TRUST.

Held like a restricted prisoner for so many months on end whilst at Ash Villa and continuing at various other institutions thereafter, not allowed any leave for months on end, and flanked by staff listening to every word of conversation sometimes only half an hour was given in the grounds outside made me enquire as to whether there was DoLs in place. I always thought it should be the least restrictive care but that is not how Lincolnshire Partnership Trust work.

The care and treatment of my daughter amounted to torture at one particular hospital and this continued at others. Frequent rapid tranquilisations and seclusion with the excuse that this is done to ensure her safety when she is of high risk of mortality and choking. This is not treatment at all when you think about it. It is torture.

There was such frequency in the rapid tranquilisations and seclusion that patients told me they slept with their door open/complained and said they were doing the safeguarding. Patients would approach me in the grounds outside to tell me what was going on and about their concerns that she was being over-drugged. She is a poor/non metaboliser, proven by scientific tests. So the excuse is that it is necessary for seclusion and rapid tranquilisation every few days to ensure safety in line with Trust Policy being adhered to but other patients told me that she was being picked on and the injections were very frequent and for the slightest reason and therefore this “treatment” could even be life-threatening because Elizabeth is a poor/non metaboliser as proven by scientific P450 liver enzyme tests but the CQC’s response is featured in my previous blog and it is quite a threatening letter from someone called David from the Inspection Team.

So you get cut out of everything and excluded, then a string of different doctors are appointed, none of whom have stayed long in their position or offered any leave. These ‘episodes’ were frequent at the time, triggered by fear and the thought of dying in hospital. It is so wicked/cruel and it is no wonder why anyone would have moments of extreme distress as there is no end in sight and all they could do was pin her down and inject her on every occasion. On one occasion Elizabeth was taken to a room to be rapidly injected at Charlesworth Ward, the walls splattered with blood that had not been cleaned off. She described it all to me. This is not treatment at all. Priority on the part of the Council and their Employees was to get rid of the nearest relative and this has been the same case in the previous area and they achieved this simply by ripping you to pieces with their words and criticisms, undermining you in character and person. They will try and say you are of risk to the vulnerable person. They will try and say you act against the best interest of that person and absolutely hate the fact I have this blog which is highlighting the awful treatment my daughter is getting and at least this blog is open and honest and open to criticism from anyone and all the time Elizabeth knew about it and has written on it herself. The words and comments they use amount to defamation of character. When they say a patient has no capacity their capacity assessments have been no fit for purpose and how many more affected. It suits themselves to conclude this but they are protected and seem to be above the law and there is plenty of taxpayer’s money to do what they like with and there is no accountability. That is why my blog is so important in highlighting exactly what is going on under the MH and every blog I write goes to Elizabeth for her approval. I now want a full enquiry into everything as we have not been treated fairly and others can also be affected which is why it is important this is challenged and made public.

Elizabeth had a small room with no wardrobe just a locker. Conditions were described as squalid and she was described as unkempt. She used to spend much of her time in bed in her room missing meal times. I never got to see the room but from the description it sounds almost like a cubicle. She contracted covid twice at Ash Villa. She loves animals and especially birds but was desprived of fresh air and exercise and being able to enjoy the sight of birds in the sky. She was treated very differently to other patients and I was told “she is on “a different kind of section” by a staff member.

Elizabeth was described as “isolating and uncommunicative” “the most complex case ever seen” when in fact she could not in fact stand the noise and kept saying “I am autistic” only to be gaslighted by various staff putting words into her head that she had schizophrenia. She had hurt her back once in a moment of extreme distress rolling on and off the bed. Again the excuse was rapid tranquilisation was necessary for health and safety. The episode, one I saw at home the day before we had to see the crisis team, looked like someone having an epileptic fit and she appeared to be delirious. She was not lashing out at people. All that was needed was just a few adaptions to the annex but nothing has ever been done to help us since we moved and yet they knew. The difference is that staff do not inject people if they are having an epileptic fit. It would be much safer for her to be at home as at least there are carpets.

The episodes were said to be early evening. Elizabeth was abused at a scheme in the former area at night but this was never acknowledged and simply covered up. An ‘episode’ was not lashing out at staff but just contained in one room, rolling about on the floor, screaming and talking in a delirious manner yet is referred to as “challenging behaviour”. In two years not once has Elizabeth ever seen a psychologist. All physical health appointments Enfield were suddenly taking seriously were cancelled as unnecessary by Lincolnshire Partnership Trust.

Castle Ward where Elizabeth is right now is a brand new ward that has ensuite shower rooms and I think because of the better environment Elizabeth has become settled more but what ever possessed the new doctor to raise medication from I think it was 300mg to 500mg a fortnight to the point she can barely walk. I think this is being done once again to tamper with Elizabeth’s capacity and I am very concerned for her life right now.

They want to put her back on a drug she nearly died on ie Clozapine. They want to send her back to London, a place I was glad to move away from. It could be because the Clozapine clinic are not happy with blood tests in which case this is really alarming. I have heard all this information from Elizabeth.

I know they ultimately want to destroy my family completely and put her into care and on DoLs so she can never come home in accordance with her wishes and play on best interests so they get what they want. How vile – I could never work in a profession that is intent on destroying families and that goes about matters in the most underhand dishonest way.

I am her only visitor and I bet they have not even read she is gluten intolerant yet in the evening just a sandwich is given.

Elizabeth said “I am sorry for putting you through all of this“. However it is Lincolnshire Partnership Trust and Lincolnshire County Council with the involvement of Enfield behind everything.

There are many similar cases that come before the Court of Protection who I cannot praise highly enough. Back in 2014 following release from Cambian after 18 months Elizabeth was sent to an awful care home rated good by the CQC. I have got all the CQC inspector’s comments and they are clearly not on your side but that of the institution. One day Elizabeth came home and did not want to return. When I heard why she was unhappy I said “you are not on a CTO – you can come home if you want”. There followed enormous abuse because the care home called Phoenix House Stepping Stones refused to release the treatment and local social services refused to help get it in place leaving me to have to go to Harley Street and for us to appoint Irwin Mitchell in a case called “deprivation of medication – community care”. Suddenly social services in Enfield were taking me to court for DoLs, severance of contact and return of Elizabeth to Phoenix House in Northampton. I had no representation in court myself. I think it is wrong that there is no representation for families in cases where Council’s/ Trusts seek by way of stealth to take control of a vulnerable person’s life when all along they have capacity. Even those who cannot speak have capacity and specialist speech and language experts should be involved in determining the wishes of those people who may want to come home instead of go into a care home.

Our experience of council provisions of care has been so atrocious that I decided to move to provide a nice living accommodation and there is enough room for carers to live in.

MESSAGE TO LINCOLNSHIRE PARTNERSHIP TRUST AND COUNCIL

You have subjected us to months and months of absolute hell. You have been dishonest in doing what you have done and set out to achieve at the expense of the wellbeing of my vulnerable daughter. You have neglected her needs all along and failed to work with the family who would not have stood in the way of visitors for Elizabeth on home premises. You never intended for her to come home because of lack of provision in the community of East Lindsay district. However the environment alone would have been great and this is a caring community. You have achieved your ends by bullying and threatening and tried to destabilise Elizabeth by sending her to so many acute facilities that are completely wrong after so very long with current threats of going back to London cutting us all out like we are nothing and do not exist. You are public organisations that need to be made accountable and should not seek to hide behind confidentiality when Elizabeth asked me to take matters to the High Court meaning her real name would be mentioned.

You know very well Elizabeth has capacity and nothing you have done in terms of this is worth the paper it is written on.

I truly respect the Court of Protection as it is transparent and no way do I want you to hide behind confidentiality and neither does Elizabeth who has requested I take matters to the High Court.

My last words are see you in court and every word I say in an open and transparent manner reflects the hell that other families are going through right now and that is why such a case should be of public interest. I would suggest both Council and Trust think very carefully about allowing Elizabeth to come home in accordance with her wishes.