VISIT TO TRUST HEADQUARTERS AND DISASTROUS WARD ROUND

After being cut out of two ward rounds via Microsoft Teams recently I asked if I could come in person to ward round today on Castle Ward, Peter Hodgkinson Centre, Lincoln County Hospital. I was hoping to tie this in with a visit to see Elizabeth afterwards who was being allowed out for two hours off hospital grounds unescorted for the first time in a long while since Ash Villa, Sleaford. Most of these doctors below have denied any S17 leave. We were both looking forward to going back to the Carlton Shopping Centre in Lincoln like we did last week as the visit was a great success but everything has suddenly changed. I am no longer able to take her out. I am no longer able to see my daughter as it stands and all this under a Trust rated “Good” by the CQC.

Dr Waqqas KHOKHAR is Responsible Clinician to Elizabeth. There were two others that came into the visitor’s room (Nurse PT) , Carer’s Champion was present – the other doctor was Dr Lake. Four people and just me. Dr Khokhar told Elizabeth she would have to be seen separately for ward round and I asked why she could not be included in this meeting because after all Elizabeth feels very uncomfortable attending meetings where so many people are included and some on a screen. I am not sure she is being represented by any advocate at such meetings and wishes not to attend. The meeting had started without Elizabeth present. I was told behind her back by Dr Khokhar that I could no longer take Elizabeth out. I was told the reason for this was because he felt I was a “bad influence” on Elizabeth but would not emphasise further. Elizabeth came to join us and Dr Khokhar was pressurising her to answer his questions. Elizabeth would say things like “I’m not answering you“. She clearly felt uncomfortable and he persistently asked “why” and she clearly did not like being put on the spot and it was awful to watch. Elizabeth claims to be autistic but they just will not listen however on the care plan it now says autism instead of personality disorder.

I proceeded to ask a few questions. I was cut short of everything I wanted to ask. When I asked about the recent Tribunal that no-one from family was invited to I was told what I already knew. There does not seem to be any plan in place to ever release Elizabeth and to deprive S17 seems to be LPFT’s protocol. I know I am not alone in this kind of treatment throughout the UK this is going on to others. A team of strangers who have stated I am not suitable as a mother in not so many words but behind your back they go to town and write such nasty things about you and present this to courts in evidence against you. Anyway I have no idea whether Dr Khokhar is demanding this ban to be permanent and once again we are back to square 1 like at Ash Villa. All we wanted was to go back to the Carlton Centre and have a coffee. I could see Elizabeth was very upset. Our lives have been turned upside down since coming to Lincolnshire. We did not expect treatment like this and I purposely did not want to challenge anything to begin with and get on the wrong side of people in a new area where we wanted to make a fresh start. However now I feel I have lost everything and my life has been ruined by people who are supposed to be in a caring profession who have to obey orders from Trust Office Headquarters. I told Elizabeth “do not react please” because I am forced now to look into the legal route as this seems the only way because surely this is in breach of HR law.

I went to the Trust Office accompanied by a friend. Noone wanted to see me at their offices below:

Trust Headquarters. St George’s Hospital, Long Leys Road, Lincoln, Lincolnshire, LN1 1FS. 01522 309 202 ·

I just wrote a letter and asked for specific reasons as to why I could no longer visit/take my daughter out and spend two hours of quality time with her in the fresh air.

I feel I am being punished for speaking out for revealing the truth because I know something that happened at Ash Villa. There was an accident no-one was informed about in the seclusion room and I know all about it. I feel that is why I am being bullied because I had asked for Neurologist appointments to resume and for other pathological tests to be carried out.

Elizabeth is being frequently rapidly injected and one of the questions Dr Khokhar threw in her face was how she wanted to be treated when she had an ‘episode’. We, her family know the answer to that and that is just to be left alone. Her Advance Declaration explains. Not that this would make any different to LPFT. The Advance Declaration clearly sets out how she wants to be treated and says “no invasive psychiatric treatment” but what they are doing is pushing her up against a wall and injecting her and at times there has been no reason for doing this and another nurse from Ash Villa confirmed this goes on all the time because it is “for the convenience of nursing staff”.

Since Elizabeth was rushed to A&E she has just been referred to a “Neurologist” but no-one would give his name. So a “Neurologist” has been onto Castle Ward called a Dr Solinas. Today everyone present at the meeting would not give the name of the Neurologist or contact details. I asked where he is based so I was told Lincolnshire United Hospital Trust – the main hospital. I was keen for Elizabeth to see a Consultant Neurologist because it has come to light that there was a really bad accident at Ash Villa in the Seclusion Room that no-one has told us anything about and we knew she was attacked and hit around the head in a hospital in the previous area.

Elizabeth advised clearly and her story does not change. She told us that she felt dizzy because no doubt she had been injected and that she fell hitting her head on the hard floor in the seclusion room. Well this might well explain all the “episodes”. This is probably why Ash Villa did not want her to have a Neurologist appointment or have an MRI scan done.

Here are the Doctors who have refused proper pathological tests and leave apart from 1 regarding leave only and no wonder why because the images on the scan reveal lesions, cavernoma and inflammation and they are treating with the following and ignoring her physical health:

500mg Clopixol fortnightly plus Procyclydine which is being injected regularly 5mg breakfast, 10mg lunch and 10mg tea. I would not be at all surprised if covert medication is given. What I was worried about was all the frequent rapid tranquilisations and so I asked for their CP11 protocol and rapid tranquilisation log. Of course no-one wants me to see this. I asked again for this at the Trust Offices but being a caring parent I feel that it is not the right approach and Elizabeth said she wants to be left alone.

Dr Ismail from Charlesworth Ward

Dr Shahpasandy who refused his own research into Limbic System

Dr Ismail yet again

Dr Kumar

Dr Islam

Dr Suleman

Dr Greenall

Dr Memons (actually I liked Dr Memons from Cygnet because he did not talk down to me in a patronising manner).

Dr Mohammed

Dr Khokhar

I felt today’s ward round was a complete disaster and the result was like going back to square 1. I was made to feel like absolutely nothing and how do patients feel when communicated like I experienced today.

Worse was to come I had arranged to visit Elizabeth in the evening as because of the ward round and not being allowed out I hardly had any time with her. Also it was totally degrading to be told first of all my visits must be supervised once again and then refused visits. This is a violation of human rights and bullying. Then on return to the ward two nurses came to the door. They said they had been instructed by Trust office not to allow me on the ward and so I have been banned from visiting my daughter on Castle Ward Peter Hodgkinson Centre, Lincoln County Hospital.

I also have only this email address where I can write: lpft.careconcerns@nhs.net. I was told not to expect any replies. I was accompanied by a friend – there were a group of three visiting someone else on the ward who were allowed on. Elizabeth came to the door. All I could see was her face smiling through the glass, witnessed by my friend. Leading up to the visit she had been texting me. looking forward to seeing me and meeting my friend for the first time. I brought her dinner I would have provided if she was allowed out because all they get is a sandwich in the evening but nurses would not accept this on the ward. I was then told to stay away from the glass door where Elizabeth was peering through and told me that I was upsetting her and we were told to leave the premises.

There are Carer’s Representatives working for all different wards who are supposed to give you the impression that you are being looked after in your caring role. It is very clear who they are working for in my opinion. I spent half an hour waiting to be let into the last ward round. I clearly was not welcome and it was totally deliberate I was cut out and no phone call or any kind of apology.

The feeling of losing your relative, being denied contact is dreadful and the greatest punishment. I cant describe that feeling and to think this is how the NHS treat people and I feel this is done in defense when something has gone wrong such as the accident and denial of proper pathological tests for physical health for so very long as opposed to the huge dosage of psychiatric drugs with Procyclydine forced upon her by injections. Not one has taken a bit of notice of the P450 liver enzyme tests and Elizabeth mentioned this today.

All I wanted was to share images with the Neurologist Dr Solinas but was refused contact details.

I know I am not alone in this situation as I am in touch with several others who are deprived of contact with their relatives.

My only hope is that new legislation will be passed soon as to deprive contact with family and treat a vulnerable person in the most restrictive manner is a violation of human rights.

https://www.gov.uk/government/news/government-to-legally-make-visiting-a-part-of-care