FILE NOTES FULL OF ERRORS AND MY GDPR REQUEST FOR CORRECTIONS ETC TO BOTH AREAS
If it comes to anyone’s attention that medical file notes/records are incorrect and full of errors like I have come across it should most definitely be challenged and today I phoned the ICO in this respect but they said certain comments could not be deleted and only a reference put against them that you do not agree. I do not think this is very good since some of the comments are defamatory but now I want to see what they have written because I can only visit Elizabeth with 2-1 supervision just like in prison though I suspect in prison people are treated better.
Anyway, I have written the email below and as you can see I have had to include two areas but I thought it would save time by doing one email as you can see below. As for the errors there are so many I do not know where to begin. It is disgraceful to put comments that you have acted in an aggressive manner, threatening, hostile, intimidating and swearing and yet where is the CCTV and recordings. I have had to chase them up again as I wish to feature this but the fact is as you can well understand there is no evidence so why write like this and because of what I have read by chance I want to see ALL the records now especially since I have found out I am not under safeguarding.
From: susan bevis
Sent: Monday, November 13, 2023 1:08 PM
To: CARECONCERNS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) lpft.careconcerns@nhs.net Cc: lpft.lpftrecords@nhs.net ; beh-tr.records@nhs.net; Enfield.Data.Protection.Officer@enfield.gov.uk
Dear Sir/Madam
I wish to exercise my rights under the GDPR 2018 to obtain from LPFT and BEHMHTNHS as well as Enfield and Lincolnshire County council all records of what they have been saying about me over the last few years in the form of notes, memos and any recordings and in Enfield’s case back to 2019. I have a right to see all records and a right to correct errors in any of them.
I am hereby making a formal Data Subject Access Request to LPFT, LCC, BEHMHTNHS and Enfield Council who I believe have records where I am the subject.
Since I am currently on 2 on 1 supervision there will certainly be extensive records of this from discussions between medical and social services teams that will extend to former area Enfield.
Other material will undoubtedly be making very adverse observations about me and I am entitled to set the record straight under GDPR and therefore require sight of this and necessary corrections to be made.
There should not any legitimate reason why I cannot have such material in which I am discussed as it is my legal right.
In your letter attached you have suggested going to the ICO’s office which I will do.
I have checked there is no safeguarding mentioned against me despite this being mentioned verbally during a ward round.
You have one month to provide this information from today’s date plus I have already requested alongside CM the CCTV footage from the Trust HQ and all the notes regarding the 2-1 supervision currently in place also.
I have just phoned the ICO and confirmed this fact and they are waiting to hear from me and said to give one month for receipt of all data.
Look forward to receiving this in due course.
Yours sincerely
Susan Bevis
Here is another email I wrote to my designated email address as I am most concerned about all the rapid tranquilisation and high dosage of drugs.
“Lack of oxygen in the blood results in cold intolerance because it regulates vasodilation. Hypothyroidism and disorders in the hypothalamus cause an intolerance to perceived cold, even if the room temperature is warm.
Lack of blood oxygen cause confusion, disorientation and even psychosis. If it drops below 90% the patients life is at risk. It is time this received more urgent attention. “
“If a patient has low blood oxygen levels that too will interfere with metabolism and receptor uptake. Apart from the rather obvious fact that low blood oxygen can damage the very organs employed in drug metabolisation and excretion.
I very much doubt that these people can be trusted to carry out proper monitoring of Elizabeth’s blood oxygen levels especially through the night. “
I wish to clarify the term “treatment resistant schizophrenia”
“There is no such thing as treatment resistant schizophrenia. If a patient is not responding to medication it is because they cannot metabolise it properly, not because they are ‘resistant’.”
“2nd opinions would be very valuable because they will undoubtedly come from those trained in neurology.”
“The drug treatment for ‘schizophrenia’ involves dopamine and serotonin receptors (D2 & 5-HT) In order for an antagonist to work on those receptors it must be metabolised by P450s.”
I understand it is alleged Elizabeth does not join in but I would totally contradict this as she loves cooking and art group. Having said this all of this is available in the community.
Elizabeth has at last had a referral to a Consultant Neurologist but she told me she just had a further scan done through referral from Castle Ward. I thought this was strange as the team knew I had paid for a private MRI scan. It has taken two years for such a referral to be made and this is not until the New Year that she goes to the Neurology clinic and by the way I would definitely say to anyone that has an MRI scan not to trust the results of “normal” if they happen to be under the MH as normal might be quite the opposite as I have discovered if the scans are shown to the right people. This is unbelievable when even I could see things wrong and it is clearly marked “trauma” on one of the images.
Thank God for that after two years when at last former area of Enfield were taking her physical health seriously now LPFT have had to do the Neurology referral they refused a while back. Now I have joined the Cavernoma Alliance that give fantastic advice and it is good to take part in their zoom meetings.
I have heard it said Elizabeth could not be managed safely in the community and that it is not in her best interest to come home. This is totally contradictory to what I have read in important recent papers. So in that case whose best interest is it really? It strikes me that it is the best interest of Castle Ward/LPFT and as for best interest I am now training to be a best interest assessor myself and cannot think of a good word to say about their flawed capacity assessments. Elizabeth herself has telephoned a company who do capacity assessments and has requested a fresh one. Now that shows capacity doesn’t it. Back in Enfield Elizabeth was not even on a section and this is the fault of two areas as to how difficult was it to get the treatment up and running instead of neglecting the necessity to continue the highly unsatisfactory treatment of a depot but without it being titrated down slowly and gradually this meant withdrawal syndrome and most certainly not relapse of a so called mental illness especially when Elizabeth keeps having to repeat she has autism whereas I have actual proof of other underlying conditions of a physical nature.
The current drug combination of Clopixol and Procylidine needs very close supervision because it can affect blood oxygen levels and on top rapid tranquilisations are given frequently. Practically every day Elizabeth is injected and she sees this as a punishment.
Back in Enfield Elizabeth was previously on 300mg per fortnight in the community and compliant.
I have been accused of demanding a bespoke package from Enfield. Chance would be a fine thing as absolutely nothing was ever provided under Enfield. I had moved to become her full time carer and provide a nice safe living accommodation in the form of a little bungalow.
There was never behavioural problems or what resembles a fit prior to moving, the drugs were being reduced and she was on 300mg per fortnight. My complaints have been about the level of the drugs prescribed which are affecting her eyesight, making her very tired and unsteady on her feet If Elizabeth wasn’t on such a massive amount of Clopixol she would not need to take the procyclidine.
I am waiting to hear when the CTR will go ahead.
It is much safer for Elizabeth to be home because at least there are carpets rather than hard floors. I am not phased about the fits in any case having witnessed this twice. It is much safer at home in the annex.
It is very wrong that so many flawed capacity assessments have been done but I feel this never did have anything to do with displacement but more on where Elizabeth should live and to choose because they regarded her as not having capacity and want to distance her from her family who she clearly misses greatly and has been able to express this in writing.
It is not true that 2 hours leave is granted and that was only granted once. Elizabeth is being treated in a disgusting manner against the Code Practice, against Policy of LPFT, against John’s Campaign and most of all against both Equality Act and Human Rights Act.
As for holistic care. You can hardly call anything holistic under LPFT who have denied physical health pathological tests which even Enfield were giving after so very long and only because it has suddenly been deemed necessary because I have scan results.
I wrote I look forward to the next ward round where hopefully I will be let into the meeting but if not I may have to come in person but should this not have been held in the main room with everyone else present on the screens?
Anyway, one session of two hours unsupervised leave was the only leave Elizabeth was given in a long while which was a huge success but perhaps next time it can be considered that staff are needed on the ward and not having to listen to every word of conversation – it is clearly not necessary at all and an infringement of Elizabeth’s human rights.
Side effects of the drugs:
Incontinence
blurred vision – affecting her eyesight and pain to her eyes
Dizziness – which led to accident at Ash Villa
Fits that last for many hours they do not know the cause of.
Extreme tiredness
Headaches
Feeling extremely cold
The above is what Elizabeth has told us are side effects on this huge dosage currently being prescribed.
Regards
Susan Bevis
Glad it has been acknowledged in this highly inaccurate report that Elizabeth was not “hostile or agitated”. Not surprising she would present as “detached“. She clearly DOES NOT LACK CAPACITY otherwise she would not be writing in such a clear concise manner to everyone. She keeps asking to come home as she misses her cat and I would say that is most certainly BEST INTEREST.
I am pleased to read our local MP Victoria Atkins is now Health Secretary and I hope she can improve things in this area and ensure provision in the community.
Psychiatric Abuse UK 