“GOD IS STRONGER THAN THEM” Elizabeth’s words just now – EMAIL SENT TO THE RT HON VICTORIA ATKINS ABOUT LINCOLNSHIRE PARTNERSHIP TRUST AND COUNCIL
I am going to send you my entire email just written to the Rt Hon Victoria Atkins (Health Secretary) MP about Lincolnshire Partnership Trust and Council – her own area. The Rt Hon Victoria Atkins has tried to help us by sending emails to and from the Trust to the likes of Sarah Connery CEO but unfortunately the only positive thing I have had so far is a meeting with the Director of Nursing of LPFT – newly appointed Sharon Harvey and Director of Nursing Martin Fahy ICB. Here is what has been promised:
A FRESH CAPACITY ASSESSMENT TOTALLY INDEPENDENT OF THE TRUST – AS WITNESSED – BY SHARON HARVEY
A CTR (COMMUNITY TREATMENT REVIEW) with independent Chair by Martin Fahy Director of Nursing ICB
I saw the above-named Directors of Nursing on the 2nd October in a private meeting witnessed by a friend. At the same time, Elizabeth was being rushed to A&E suffering from an ‘episode’ lasting hours and hours on end from 2.00 pm to 7.30 pm as an emergency case. That is a long time to be in such a state with massively high BP levels and low oxygen levels – a very dangerous condition that prompted LPFT to refer her to A&E. Her body felt cold and clammy. I was allowed onto the ward despite Covid by the team as I had hoped to visit Elizabeth before this important meeting. I witnessed everything that I had seen months ago, well known to Ash Villa where she had countless episodes prior to Castle Ward and Ash Villa is where she had the accident that appears to have been covered up. Noone informed the family like they should have done under Sch 20 HSCA Reg 14. I have only just found out about this accident as Elizabeth has told me. Elizabeth not only shares information with me but other family members so it is pointless banning me from contact isn’t it but this is what Castle Ward tried to do altogether but now impose highly restricted supervised visits in breach of human rights.
Anyway, here is that email which exposes the area where Health Secretary Victoria Atkins is responsible for her constituents, me being one of them. To be fair, she has only just been appointed as Health Secretary but naturally I as a mother am not going to stay silent about the abuse my daughter is suffering and her family. The fact is she is said to have ‘no capacity’ yet was capable of making numerous phone calls today so she told me to solicitors on human rights, solicitors who previously represented her in her failed tribunal where she was too unwell to attend and also to capacity assessors to endeavour to appoint privately in order to overturn several flawed capacity assessments by Dr Adaeze Bradshaw, Dr Tahir Suleman and AMHP Kirsty Findlay, evidence supported by a best interest qualified and legal representative (Cilex qualified), KB. Elizabeth has herself contacted a firm of capacity assessors but Ms Sharon Harvey of LPFT offered to arrange for a completely independent assessment and therefore she needs to take Elizbeth’s instructions or else and ensure that the assessors of Elizabeth’s choice are allowed on the ward especially in light of visiting restrictions against me. I am very proud that Elizabeth has tried to help herself by making such phone calls, inspired by the influence of other patients who have said she must speak up for herself. Too right! I can do nothing for her right now except come and see her once a week for 2 hours of restricted contact.
I am glad to read the RC cannot pinpoint anything against Elizabeth in terms of risk to self/others from certain papers. In other words there is no risk to self or others but a hospital is far more risky than home when the flooring is hard and there has already been an accident where she hit her head following RT.
This is of public interest as it is public funds that are providing this so called care and treatment involving frequent and practically daily injections over and above what is “treatment” recommended under MHA for a condition now in grave doubt. Elizabeth and I both wish to go completely public for the sake of so many others and would welcome press attention:
Here is my email to the Rt Hon Victoria Atkins who Elizabeth advised she contacted today:
Dear Rt Hon Victoria Atkins
As you know we have suffered a catalogue of abuse since moving to Lincolnshire on 15 September 2021 when all we tried to do was provide the right environment and living accommodation and bring Elizabeth closer to her family.
We have been accused of psychological abuse and taking away of power of Attorney but this went in our favour.
I was stripped of my title of NR in County Court for not being suitable.
I wish to congratulate you on your appointment as Health Secretary and want you to know how bad things are in your own area for vulnerable people with disabilities such as LD, autism and those yet to be properly diagnosed who are being denied pathological tests stuck under MH acute wards, who have something entirely different wrong with them such as my daughter as proven by scans below. I sincerely hope you can help us stop Elizabeth being sent far away. I am taking out a full human rights case right now as my daughter’s human rights are being abused. Elizabeth had all her neurology appointments cancelled as being ‘unnecessary’ the moment we arrived in this area. She was refused the research of Dr Shahpasandy into the Limbic system and scans going back to 2015 “normal” were being relied upon by various doctors. Elizabeth has been treated just like a restricted prisoner practically all along and I am currently subject to 2-1 visiting restrictions – total breach of human rights. I have also been denied visits. Today I have had countless calls from my daughter keen to see me tomorrow. She has told me on her own accord thanks to advice from another patient about speaking up she has phoned human rights solicitors, she has contacted your office and more than one firm of solicitors and even tried to get a fresh capacity assessment done herself. I am not allowed to see my daughter apart from 2-1 visiting rights and besides Elizabeth will not do as I say so how on earth can I be portrayed as a bad influence?
She is on a never-ending section and wishes to come home but various other doctors under LPFT namely Dr Adaeze Bradshaw, Dr Tahir Suleman, AMHP Kirsty Findlay all did reports pointing to “no capacity” that are completely flawed that are being relied upon in order that a team of so many can decide what THEY think is best interest.
So Elizabeth has had the following doctors:
Dr Ismail – Charlesworth Ward who was talking about Lynsey needing nursing care in the first instance.
Dr Shahpasandy – refused his own research into the Limbic System – treated Lynsey as a restricted prisoner
Dr Ismail again
Dr Kumar
Dr Islam
Dr Suleyman – carried out flawed capacity assessment and left shortly afterwards
Dr Greenall – gave a bit of leave then stopped leave following an ‘episode’
Dr Memon Cygnet – a doctor who I truly respected because of his brilliant communication skills and caring attitude when Elizabeth had another episode on his ward at Cygnet and was taken to A&E.
Dr Mohammed – Ward 12 – again another episode where she was rapidly tranquilised
Dr Khokhar – Castle Ward who has had to allow fresh scan and neurologist referral but who has imposed enormous restrictions Elizabeth calls “punishment”.
5 Institutions since moving to LPFT:
Charlesworth Ward PHU – a dormitory ward which could not be worse re sensory issues
Ash Villa Sleaford – held a virtual prisoner for months on end under Dr Shahpasandy and where the “fits” began and accident occurred
Cygnet Durham
Ward 12 – another dormitory ward
Castle Ward – the only ward where they have better facilities however it is incredibly noisy with alarms going off all the time.
Proposed care home Ashton House – looks like in West Sussex hundreds of miles away from home and family but it has been mentioned about East Yorkshire with regard to her moving to. So the question is why not Lincolnshire or if the plan is to keep her away from me why not Norfolk where other family members live?
All this is going on behind our backs right now yet Elizabeth who is said not to have any capacity has given me all this information, shared the most recent correspondence and also shared her Neurologist appointment letter with me and her appointment is on 3 January 2024. I reckon they are trying to send her away before the Neurologist appointment far away from home and family because of what this could reveal especially now there are two sets of scans and “normal” means nothing because these words do not incorporate what has been identified by certain other experts who have the scans. All these years l suspect there has been historic injury in fact this is not a figment of my imagination because it actually says so on one of the images. Elizabeth does not want to go away to a care home so far away from home and family. She apparently said to the assessor yesterday from Ashton House “go away please”.
I have just spoken to Elizabeth who says she has tried to ring yourself just now and she has also tried to ring several solicitors.
The only treatment she is getting is constant injections right now, a Parkinsons drug is forcibly given yet not really part of her treatment as well as RT on nearly a daily basis – she said the injections hurt her and have been given by male nurses. This is absolute abuse- no psychological input whatsoever. It is apalling since Elizabeth is an abuse victim herself. Having said that she has engaged with the OTs who she likes. It is therefore very disturbing that Dr Khokhar has mistakenly said that Elizabeth is not engaging with activities when she is, as she has told the family she likes cooking and art. On a Saturday this is the only day Elizabeth can order a takeaway but some of the time she misses meals because she claims to feel constantly cold and stays in bed trying to keep warm and away from the never ending noise which is disturbing to her.
Elizabeth apparently had a bad accident whilst at Ash Villa which we have only just found out about. Her account of this was she was coming out of the bathroom in the seclusion room when she felt dizzy and fell hitting her head on the floor. No doubt she had been rapidly tranquilised, a frequent occurrence under Ash Villa that other patients felt necessary to report and they said they were doing the safeguarding. Even before moving to Lincolnshire her discharge note clearly stated “abnormal findings on a scan” yet a wall of silence when I have tried to find out what this implied. Various doctors including Dr Greenall, Dr Afolabi and the vast majority except for Dr Memons have said a fresh scan and Neurologist appointment was not necessary but only now after so many episodes it has been deemed necessary. Totally negligent of any professional to be dismissive of underlying conditions or try to ignore possibilities of such especially when it clearly states on the discharge note “abnormal findings”. Back in Enfield she was transferred from Chase Farm Hospital to Edgware because she was constantly hit around the head by another patient so a member of staff told me. I doubt she was sent for an MRI scan as a result. There would appear to be injury on the private scans I paid for which are with another team of professionals right now who happen to be researching inflammation of the brain, lesions and also Alzheimers. The scans have also been forwarded to various neurological experts. Elizabeth has advised that a further set of scans were done on 10 November whilst under Castle Ward, again said to be normal but cannot possibly be normal when they would show exactly the same as the private scans also done recent that reveal a possible cavernoma, lesions and inflammation of the brain. Anyway, since there are so many episodes upon moving to Lincolnshire something is clearly wrong and all this time up until now nothing has been done about it. Elizabeth has an appointment to see Dr C Solinas Consultant Neurologist on 3 January 2024 and it is very disturbing that right now they are trying to move her far away from home and family which should not be before this very important appointment. There are wider implications here of my daughter being deprived of pathological tests, she has countless ‘episodes’ where her life is put at risk lasting for hours and hours and ending up in A&E so the pathological tests are of great importance.
I am also concerned that reading certain papers attached it states “low blood oxygen levels” and this can be fatal and the cause of it could be the overdrugging and frequent rapid tranquilisations without proper monitoring throughout the night. During one ‘episode’ never experienced before we moved here BP soared enormously high. This combined with low blood oxygen levels can be fatal. The episode on 2nd October lasted for hours and hours from 2.00 pm until 7.30 pm. THERE IS SOMETHING ELSE WRONG WITH MY DAUGHTER AND THIS IS MENTIONED WAY BACK IN THE FILES and none of the psychiatrists involved know what it is as this is what is recorded. Therefore it is an MDT decision for the current referral to Dr Solinas. I should not be desperately trying to fight for proper tests all this length of time and neither should my daughter on her own accord be trying to ring numbers to get representation as she does not wish to be sent far away from home and family.
You are Health Secretary and I am just a mother but I can assure you that I will do everything I can to publicise and bring to the attention of everyone worldwide the abuse going on – abuse of power and process by public authorities such as Lincolnshire Partnership Trust and Lincolnshire County Council – not forgetting Enfield – former area BEHMHT and Enfield Council and their legal dept. Unfortunately, I am in touch with so many other heart breaking cases nationwide. I hope that you can do something about this. Martha’s Rule brings a great deal of hope.
Elizabeth today said something remarkable “God is stronger than them”. It should not be a case of them and us should it, as all we wanted to do was work together with the professionals. All over this country thousands of disabled vulnerable people are being held for years and years on end in acute ward setting and taken far away from their families and placed into care home settings where many lose their lives and are abused. I can most certainly provide you with many other cases I am in touch with. Imagine being a 90 year old lady fighting for her disabled son in desperation and feeling suicidal. I am disgusted with this Country that this can go on but to be fair to you you are newly appointed and have tried to help us. Now you have more power and more authority to help many others similarly suffering right now nationwide.
I am copying in another mother/carer who together with me (as we are supporting one another right now) would very much like to meet with you personally whether it be in the local area that applies to both of us or in London. Please supply me with a date when we can visit you personally preferably in the New Year.
I am worried Elizabeth’s appointment to see a Dr C Solinas Consultant Neurologist at Lincolnshire United Hospitals Partnership Trust (separate trust from Lincolnshire Partnership Trust which is MH) will be cancelled. This is on 3 January 2024. Now they are talking about moving her. I am worried that she will miss out on her appointments when there is clearly underlying causes for the constant fits she is suffering that is of a neurological nature not psychiatric yet she is lumped together with others. I am curious at how many others likewise are affected and never getting better because they are not being pathologically assessed in terms of underlying physical health problems which may present with symptoms mistaken as being mental illness.
I am also trying to get hold of the Rapid Tranquilisation log as every time Elizabeth has an “episode” which looks like a fit this treatment and this can affect blood oxygen levels.
Whilst I have only 2-1 supervised visits we see this as punishment. My daughter’s life is at risk as per the attached which mentions blood oxygen levels to be low. There is a big meeting planned about moving Elizabeth into care coming up soon but I am not sure whether this is a proper CTR or whether family will be included as they were previously in Enfield. Elizabeth is not being properly supported for this ‘CTR’ and has been given a piece of paper to write on her comments. She has written, witnessed by a friend “I want to eventually come home to live with my mum in the annex through court of protection. I miss my mum greatly and want to go home to her. My blog below goes right back to Enfield and features all of the institutions involved. Enfield are responsible for paying for S117 aftercare.
No way should anything be covered up that is under public expense and disgusting abuse of a vulnerable person’s rights and this needs exposing. All courts should be open and transparent. Elizabeth wishes to waive anonymity because all along she has capacity to decide on important matters such as where she wants to live. I am training to be a BI assessor so I also know what I am talking about here.
This is your local area so I do sincerely hope you can do something about this abuse. I intend to go to any lengths to change such a rotten abusive system and am happy to feature the many other cases on my website who are affected until there is a law in place to prevent such abuse from happening. Martha’s law is a good start and also Helen Whately and Will Quince are working on a paper to ensure parents and carers are allowed to visit care homes and hospitals in a dignified manner. There are many people still restricted/ banned from visiting their relatives in care homes and hospitals.
I trust you will give this your due consideration as I am far from daunted in taking on what appears to be a completely corrupt system the UK currently has in place and will go to any lengths necessary as all I want is for my daughter to be treated in an honest and fair manner.
Kind regards
Susan Bevis POA
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