XMAS DAY WITHOUT ELIZABETH AND ORGANISATIONAL ABUSE BY LINCOLNSHIRE PARTNERSHIP TRUST

First of all Iike to wish all my readers a very Happy Xmas and New Year.

Elizabeth’s cat who she misses so much and adores. If only she could have come home. It was requested I bring the cat to see Elizabeth but it would not have been fair as he was suffering last time so much when we travelled from London to Lincolnshire to what we thought would be a wonderful area that would aid Elizabeth’s recovery. I was totally wrong about this as even in Enfield before at least we did not have the restrictions and appalling treatment as we have encountered under this Trust below.

“We are taking your complaint seriously”

I travelled from where I live to Lincoln to visit Elizabeth. It is about an hour’s journey. I did not know what to expect as the rest of the family said she was “not good”. I brought with me presents, chocolate and crisps. It was lunch time and Elizabeth had just eaten Xmas dinner. There did not seem to be that many patients on the ward and the atmosphere was more peaceful as usually alarms are going off every second.

I was led to a visitor’s room and came with a friend. They usually put HCA’s to sit there and take notes as I am clearly being targeted supposedly by an entire team of people ie the MDT or that is what they would like us to believe. The rest of the family visited yesterday (Xmas Eve). Their visit was not supervised. I did not know what to expect as the rest of the family had said she was “not good”. 

A female member of staff was in the small visitor’s room watching our every move in order to report back to Responsible Clinician Dr Waqqas Khokhar. Whilst God knows what could be written behind my back I make my own notes and records. Elizabeth was pleased to see me. She had been asleep earlier close to lunch time and I suggested someone woke her up as I was just half an hour away and she would miss out on her Xmas Dinner.

Anyway I proceeded to pass Elizabeth the presents, not all from me but friends. I bought nice sets of pyjamas, I left money so she has plenty of money to have her hair done but have no idea whether the ban on even going out in the grounds had been lifted. Elizabeth’s hair is now really long and needs cutting. I would always ensure that she was taken to the hairdressers and it was quite relaxing for her. I hope that additional ban has now been lifted so Elizabeth can have her hair done.

I then said to the HCA that as Elizabeth missed her cat perhaps LPFT could arrange for her to be brought back home to see her cat like Cambian did when she was sent from London to Wales some time ago.

Elizabeth was pleased with the presents. We only had one hour to visit. Another lady came to take over to watch our every move. I noticed that Elizabeth’s mood was changing. She seemed to resent the fact that staff were taking notes and supervising and who could blame her. She started to react as she thought this lady was looking at her and smiling and she started to say about her autism which I pointed out was something that Elizabeth considered she had and that these were not my words.  She started to get upset with this other lady supervising and there was a changeover – someone else sat there supervising and then Elizabeth became upset again and spotted a man outside – one of the team who she shouted to get away from the door. By this time there was about 5 members of staff outside the door and it was all too much for Elizabeth she got up and I followed and started to react to everyone around her. About 5 members of staff grabbed her and told me to leave the ward. 

I left the ward but said that I wanted to know exactly what change there had been in Elizabeth’s medication. I made a point of waiting until I got a list of the medication she was on as Elizabeth had told me about the change. I then made a point of saying that I hoped that I once again would not be blamed as being a “bad impact” and when you think anything could be written behind your backs. I am well aware that any changes in medication could cause instability and also I felt that if Elizabeth was left to see her visitors alone, none of this reaction would have occurred. Whilst I was with Elizabeth I wanted her to know that I was not going to sit back and do nothing this but I also tried to say not to react to the staff but unfortunately on Xmas Day, supposed to be a time for families to get together this is not respected by Lincolnshire Partnership Trust.  Elizabeth read the letter that I wrote earlier and approved it. I then openly showed Elizabeth two more letters which were only short letters. She was quite calm at this point and of course had a right to know as what they are doing is treating Elizabeth as though she has no capacity. That is totally wrong.

I sat downstairs waiting for the list of medication. I did not argue about leaving the ward but was heartbroken. This is no place to get better with such restrictions worse that you see in a prison. The treatment my daughter is getting is inhumane, undignified and I feel that this is bullying aimed at me with all the allegations of my “behaviour” being threatening, hostile you name it I have just been turned down for my request to see the files.  It is really important that records are correct and not full of inaccuracies and staff need to be aware that their comments could end up in the public arena. It is not nice to say things that are not true and then someone else looks at what is being written and forms an opinion. I am putting a stop to all this bullying now.

If Elizabeth was home today she would have been calm and happy to be with her cat. Even at times where she was previously unstable she would come home and the cat would be better than any amount of drugs given.

I have decided here and now that I am not prepared to stand for any bullying and any comments in the files that are defamatory will need to be altered. There was nothing to indicate me being “hostile, threatening” at Trust HQ when all I did was sit to one side and write a letter. That was confirmed by the CCTV footage i viewed last week.

Who is making these comments???

Who is really behind the banning and acting ultra vires???

The drugs have been reduced by 50mg but what they should have done was not inject her but leave her alone to settle down in her room. Luckily Elizabeth has her very own home which is much more suitable that a noisy ward where to this day not a scrap of therapy has been given.

I was upset at leaving Elizabeth with 5 members of staff who had grabbed hold of her on Xmas Day of all days. It most certainly was not my doing that she reacted.

The unsigned letter from the MHA and Legal Office state that a review of my month’s ban would take place on 28 December. I wonder what the outcome of this will be but hopefully my letter will have been submitted by then. I will keep you all informed of everything.

Having seen the reduction that has taken place without warning I am going to seek the advice of experts because I personally think that the reduction was too steep.  I do not intend to be blamed for my visit on Xmas Day and that I am responsible when I know about the reduction. It is really bad that the ‘episodes’ Elizabeth has had has also been blamed on me even partially in that I am said to be a contributory factor. 

I hope that the Neurologist will look into the private scans and explain exactly what has been noticed on the private scans which could be the cause of everything ie brain injury that was evident in the files going back to 2009. How can “anterior region medial temporal compromise just disappear into thin air.