VISIT TO ELIZABETH 23.02.2024 AND MY REPLY TO THE UNTRUTHFUL COMMENTS OF ANN MUNRO (PATIENT SAFETY LEAD)

https://wordpress.com/post/revelationsuk.com/176053654

My blog on this subject is attached above, featured recently.

As regards the CQC’s SOAD that Ms Munro refers – as she cannot answer that question I will answer it myself. Never has a CQC SOAD looked into matters properly and even at times agreed with the Trust and Care Home when concerns are raised. They allowed the prescribing of Risperidone, prescribed at Reservoir House Supported Living despite allergy to this drug clearly pointed out to them. They allowed inaccurate prescribing ie 1.75 mg Risperidone which no-one, not even me could cut properly. They have allowed drugging of Elizabeth to enormous quantities whilst at Elysium which clearly did not work. They have ignored the fact she is “treatment resistant” which means poor/non metaboliser and not one of them recommended MRI scans or pathological tests to check for underlying causes when it was obvious none of the drugs worked. I do not feel they even bother to properly look at past file records. Most recently they have ignored the fact that LPFT do not use PANSS recommended by RCPSYCH. Most recently they have ignored or were uninformed that Elizabeth had private scans done which were NOT normal and need further verification OR, if they saw the recent scans done under Lincolnshire United Hospitals Trust they do not have a Tesler 3 which makes my private scans highly accurate. This puts everything in question because of the frequent episodes, stated to be partly blamed on myself.

No, I repeated that Elizabeth feels she is being abused and said this many times during supervised visits. These are Elizabeth’s words, not mine, but how can I disagree when she is being treated differently from everyone else and more like a restricted prisoner.

As for ward round meetings, I am supposedly allocated a 10 minute slot, whereas I should be invited to the whole of the ward round. Quite often I have sat there in front of the computer to no avail and no-one has let me into the Teams meeting or advised that this has been cancelled. I have been studying on a course for some weeks and so have not been able to attend lately but it is clear nothing has changed re the restrictions despite the comments of Ms Munro in her letter.

Yes I did state that the taking away of the mobile phone the family pay a contract on is a breach of Elizabeth’s human rights and ours – the family. The phone contract with Vodafone is only £13.61 pm but it is only right that LPFT should refund every penny whilst they continue to place the mobile into Elizabeth’s locker making it impossible at times for family to get through or for Elizabeth to enjoy listening to music or seeing the comforting pictures of her cat. This whole thing was done before under Dr Shahpasandy under Ash Villa run by LPFT. This carried on for weeks on end and no-one could get through on the phone. It most certainly is an infringement of everyone’s human rights and restrictions are very clearly still in place re supervision, no leave granted and only restricted visitors which does not allow for any quality time after all this length of time. At Ash Villa Elizabeth kept calling the Police in desperation. Don’t know if she has tried to do that here on Castle Ward but this punishment is all aimed at me. It is definitely punishment as I see it because the rest of the family/friends are not subject to any restrictions on visits but are still affected re the phone locked away. Because no impact assessment has ever been carried out as per NHS Guidelines this does not only have an impact on me but others in the family that LPFT have not even considered and Elizabeth herself. What has taking away the phone got to do with engagement with staff? From what I understand Elizabeth is asleep most of the day and up at night so it would not be affecting her ability to participate in any ward round meetings or activities on the ward. What treatment plan! They do not use the recommended PANSS. Elizabeth should be given a copy of her care plan. There is clearly no discharge plan of any kind and acute ward detention on a never ending section continues now for over 2.5 years with no end in sight. Now Ms Munro goes on to state the following:

“ELIZABETH’S PHONE ACCESS WAS LIMITED FOR A FIXED PERIOD OF TIME AS PART OF A COMPREHENSIVE CARE PLAN THAT CONSIDERED HER HUMAN RIGHTS. THIS WAS TO ENSURE THE RESPONSE TO HER PHONE USE DID NOT ADVERSELY IMPACT HER ENGAGEMENT PLAN WITH, OR THE EFFICACY OF THE TREATMENT PLAN. THIS WAS CEASED ON MONDAY 5 FEBRUARY 2024 FOLLOWING REVIEW OF ALL THE RELEVANT FACTORS.”

So, first of Elizabeth why is she still without her phone as it is held in her locker so that she cannot access at all times as she does not have the key. The ban (not limitation) has been ongoing for months now and it has been extremely difficult for all of us to contact her even the family members and friends were not put through immediately as a member of staff had to be available to go and unlock her locker and hand the phone to her or else in my case only for two members of staff to sit there listening in to all phone calls which is in breach of Art 8 HRA and the Equality Act 2010. I honestly truly do not know what on earth Ms Munro means by stating “care plan that considered her human rights”. This is absolute rubbish and I believe that not only do LPFT need to implement the Oliver McGowan Training Programme but it is no wonder there is no sign of that if they do not understand what basic human rights are and what is meant by acting ultra vires, relying on Bolam Law when it should be Montgomery – all hiding behind each other as regards decision making. Of course this is a breach of human rights as not having the phone or being readily able to access it whilst held under MHA 1983 and is an abuse of power and process as well as the law. What right do a public authority have to do this and this is NHS care. For a short while Elizabeth was sent to Cygnet Durham. At first she did not have her phone but then this was given back to her as at least Cygnet realised this was in breach of the law unlike the NHS. Under the MHA detention should be the least restrictive care. The most untruthful comment Ms Munro makes is that restrictions ended on 5 February. So what I did was take with me the letter to show Elizabeth. I was told by the two HCAs that I could not just give the letter so I said “why not”? They said they had to show the manager first (I then said Oh I see the Management are involved in all this?) The Manager to Castle Ward is Kashmir Moons. So they took the letter from me. I read the contents of the letter before I gave it to them. I asked that they hand the letter back to Elizabeth and will check she has it when I next have contact. Contact is only if Elizabeth asks for the phone but I get the impression she is asleep a lot during the day and up late at night. This would explain why meals continue to be missed.

Ms Munro then goes on to mention an “incident” on Xmas Day for which internal investigations and review of all relevant evidence was undertaken and following that re-establishing of prior arrangements.

This is NOT GOOD ENOUGH MS MUNRO. For a start there was no incident whatsoever but Elizabeth got upset with the second lady – a HCA told to sit in the small visitor’s room on Xmas Day of all days and write notes. It was the writing of notes that got Elizabeth upset and she reacted. I had also found out that the Clopixol depot had been reduced by 50mg and I was told to leave the ward when a crowd of about 5 staff gathered outside the visitor’s room including men which was very intimidating. When I left the visitor’s room all Elizabeth did was to shout and they grabbed her throwing her into seclusion and injecting her afterwards. Why inject when all someone needs to do is to calm down but they tend to do this after every ‘episode’ that looks like a fit. Why rapidly tranquilise when she has calmed down. Xmas Day was ruined and spoiled and I did not know they called the Police on me. When I found out I opted to complete a S9 statement but I doubt anyone from the Trust did that and they should have been asked to do after all to call Police out for no reason is very bad. All this is being done to intimidate and threaten using Police as a weapon when in fact Elizabeth trusts the Police more than MH professionals and regarded them as “friends”.

So this has justified the banned visits whilst internal investigations took place. Not one apology given in her letter.

Ms Munro goes on to explain about the Neurologist Appointment being unattended but what Ms Munro does not know is that I in fact attended with a copy of the private scans done on a Tesler 3 scanner. I knew about the appointment because Elizabeth told me and shared her letter with me. Again the MH were keen she did not attend by the looks of it. They have done everything to stand in the way of her Neurologist appointments but I met the Consultant Neurologist myself. I knew that scans were done in addition by the Trust in November 2023, Mine were done end of May 2023. What I did not know at the time was that they did not have a Tesler 3 but a 1.5 scanner so it is no wonder their scans are not accurate as opposed to mine. What I am concerned at was their response. The Clinical Lead Emily Scott said they had no knowledge of the Neurologist appointment and this was at 11.00 am so I bet Elizabeth was asleep and no-one got her up for it. Now they propose a further scan in Sheffield because they do not have the latest scanner when I have produced scans done privately under a Tesler 3. “This aspect of Elizabeth’s healthcare is ongoing”. Good – glad to hear it since all this should have been done upon arrival but the team were too busy trying to take away my role as POA and NR to consider physical health needs.

Regarding the telephone call where a new staff member had limited English, I only went by what Elizabeth said when I asked to speak to the new member of staff over the telephone. This might have been just an excuse on the other hand.

Concerns on Missing Meals – yes Adults safeguarding were supposed to look into this and the ward is supposed to keep daily food and fluid chart to document intake. At Ash Villa this was a frequent occurrence but I still think missing meals goes on as if Elizabeth is frequently rapidly injected then she is asleep during the day or cannot get up for meals and misses them and in the evening there is just a sandwich. I am not saying this is happening now on a daily basis like before however it still does occur and again laundry – this is what she was doing herself in her flat without support. This is the level of decline that now Elizabeth needs someone to help shower her, do her washing etc etc whereas before she was doing this herself and even using a bank card, going shopping, using buses whilst in her independent flat. Substantial decline because of her treatment worse than a restricted prisoner. These comments again came from Elizabeth who said she had run out of clothes but staff do not seem to understand autism. There is no sign of the Oliver McGowan Training and the other day when we visited she told me that Dr Khokhar said “you have not got autism” – I pointed out to the two staff supervising that autism was what Elizabeth had researched as her condition and should be respected – after all there is no end of evidence and every screening came out positive by other institutions and other doctors. I, on the other hand think there is brain injury which may have been present before under Enfield and covered up as it says on the discharge note “abnormal findings on scan pointing to cns”. Since then there have been 10 doctors (psychiatrists) keen to treat as a MH patient and ignore the discharge note and private scans up until the frequent life threatening episodes which resulted in A&E to the point this could no longer be ignored.

“We aim to provide high quality care and treatment to all those we support and are sorry you have had to escalate your concerns. We value opinions of those who use our service as it gives us vital insight into any care we provide and informs us when improvements are necessary. We thank you for raising these concerns.”

Taking the above into consideration here are the improvements:

Stop taking the phone away and using this and restricted visits and cutting of leave as an excuse unless someone fits the criteria of s11:15 MHA Code of Conduct. Elizabeth is an Adult and should not be treated this way and also you are in breach of Art 8, Art 5, Equality Act 2010 plus Art 3.

You should settle up with the phone bill and thinking about it the private scans that were accurate unlike those done under a 1.5 scanner.

You should allow leave/visiting rights to resume unrestricted and give the phone back to Elizabeth to keep in her handbag like everyone else.

You have discriminated against us as a family, not just Elizabeth that has impacted against even those not being punished ie other members of family.

Elizabeth misses her cat and wishes to come home to visit and to live. You have been looking at care homes in W Sussex and Yorkshire without any thought to rest of family.

I have had serious verbal threats of indefinite banning of visits at a Ward Round in December because of flawed allegations of some kind of incident when nothing happened except for police time to be wasted.

I have presented you with an invoice and would appreciate prompt settlement. I shall do either an additional or amended invoice to include the private highly accurate scans seeing as they were needed in the first place. It is therefore only fair that the Trust pays.

There is no sign of the Oliver McGowan Training? Where is this training?

There is no sign of proper diagnostic tool PANSS and why not when recommended by RcPsych?

The way you have handled everything has been a disgrace. To try to take away the POA. You failed at this.

To try to displace me you used County Court and did so in secret. Secret courts should be banned. This is of public interest as it is public money. The law needs to be tightened so that there is more accountability which could save vast amounts of public money at County Courts where Judges do not have the remit to properly look into matters.

To present papers and to keep getting HCAs to report negatively against me is bullying and I am entitled to see everything written against me.

It is wrong to treat me differently to rest of family and I should say this is clearly discrimination.

The ward is very noisy and this affects Elizabeth along with the very highly bright lighting.

The CQC should look into the legality of the Section 3. It is more like a Section 37/41. What right do you have to hold Elizabeth like this and treat her like a vegetable when each and every one of the capacity assessments are flawed. I should know as I have done the course. She was not even on a section in the former area so how do you explain this?

As for the MHA this needs urgent amended because Trusts and Councils like Lincolnshire and Enfield/Barnet Enfield and Haringey MH Trust have found a way to twist the law to their own ends and use social services against you and they abuse the MCA which I have studied thoroughly in order to take away a vulnerable patient’s autonomy when they have got capacity.

I now want all the files from both records and everything written about me so that I can correct everything which might take me years and years to do. How can you give decent care if your records are untruthful and inaccurate.

I have now highlighted the need for a new scanner in two areas – Lincolnshire and Weston. This is essential to ensure proper diagaosis.

The last thing I am going to point out is about Capita doing the assessments for PIP. I explained that Elizabeth was still in hospital, not in receipt of PIP and declining. If a vulnerable person got a call like this it would be extremely upsetting. I now have an appointment for an assessment coming up shortly.