NO REFERRAL TO SHEFFIELD NEUROLOGY  – WHY NOT? – A WALL OF SILENCE FROM THE NHS WHAT LENGTHS DO YOU HAVE TO GO TO?  HOW CAN YOU HAVE FAITH AND TRUST IN THE MEDICAL PROFESSION.

Today i have spent quite some time trying to get through to Sheffield Hallamshire Hospital where my daughter who is held a virtual prisoner under Castle Ward can have the extensive tests she needs on her physical health which the MH would appear to be obstructing. Elizabeth is having seizures that are frequent. Her Responsible Clinician says I am partly to blame for such seizures and there are heavy restrictions in place on just me right now visiting my daughter with 2-1 supervision and not allowed any time with my daughter to take her even in the hospital grounds. This is bullying to the extreme by Lincolnshire Partnership Trust. It is also huge neglect as all they have done is cancel referrals already made by a previous area that the new GP said I should take her to. Everything was put in the way of that at Ash Villa, the previous hospital. Now the RC has put massive restrictions in place contrary to the health and wellbeing of my daughter.

Elizabeth is going downhill. Her face was a mass of red blotches and forehead looked as though she had hit her head on the wall or door – a hard surface. Her knuckles were encrusted with scars that had obviously healed from bleeding. She said she had been injected again recently. She started having the seizures at Ash Villa and there was a cancer scare – they say tests for came out normal. I had private scans done. I sent them to various experts on disk and all said the same thing that certain images need to be closely investigated by Neurology. You can imagine how happy I was when finally she was referred to a Neurologist under United Lincolnshire Partnership Trust. On the 3 January was supposed to be her appointment. She was not taken there by the MH team. I turned up instead with the private scans I had done in a small window of opportunity because for the most part LPFT have stood in the way of all leave and visits highly restricted. It is almost as if they are trying to protect themselves or know more than they let on. There is clearly something physical wrong for my daughter to have such frequent fits. She is not being monitored for her blood oxygen levels and following each fit they give lorazepam which is extremely wrong so I have been told. If she has temporol lobe epilepsy the treatment would be different but Elizabeth is treated as though she is a MH patient and nothing else. LPFT have ignored all the screenings and all the past assessments done by Huntercombe who claimed she had high functioning Aspergers. That was back in 2017 under Enfield. It would appear that ALL the doctors seem to be protecting each other because today I have had to go to enormous lengths to write and enquire about these scans. Because of my grave concerns about my daughter’s wellbeing and safety on the MH ward (Castle Ward) Lincolnshire – no way should it be left to a team of MH professionals to film my daughter against her wishes having seizures. This is against GMC guidelines. Secondly her capacity is highly disputed. There are three flawed capacity assessments done purely for the purpose of getting rid of me as nearest relative which they succeeded in. All are heavily flawed and not in line with Principle 4 and Masterman-Lister case and they do not take into account the causative nexus. The causative nexus is highly important to see determine impairment. This has not been done, making all three capacity assessments not fit for purpose.

I finally got through to Sheffield who told me that absolutely nothing had been arranged.   The person concerned when to some lengths to check and refer to a supervisor.

It is hard to trust anything the NHS does as when things go wrong there is nothing but a wall of silence and it is very hard to age any kind of justice even when someone dies as a result of negligence.   There appears to be a wall of silence right now.  Certain doctors (even those assigned to look at physical health) appear to be standing in the way of my daughter’s much needed physical health referrals which has been the case since we moved to this dreadful area of Lincolnshire. The word normal most certainly does not mean normal and they are depriving my daughter of the necessary physical health referral to a Neurological ward where she could have extensive tests done to determine the real reason for the fits and not rely on just observations and comments that state “it is the mother’s fault”. The reasons for my appalling treatment is because of “concerns” by her Responsible Clinician on my part and an entire MDT all acting ultra vires against their own code of conduct and treating Elizabeth as someone who has no capacity. LPFT HAVE COMPLETELY ABUSED THE MCA AND NOT GONE ACCORDING TO NATIONAL GUIDELINES. I am now a BI assessor myself and am frankly disgusted at such enormous dishonesty and in addition after all this time she has not had proper pathological tests or any psychological input. The law is failing to protect vulnerable people such as my daughter.

I have written to Pals today, the Neurological department of ULHT, care concerns (LPFT) and my MP and here are my emails below. You should not have to go to these lengths. Elizabeth agreed to go to Sheffield. There seemed to be more concern about her breaking expensive headgear which she promised not to break than her physical health and wellbeing and the necessity to have these extensive tests. This is highly negligent on the part of the NHS. ABSOLUTELY NOTHING ARRANGED FOR THE SECOND TIME as today I checked with Sheffield.

From: susan bevis
Sent: 22 April 2024 10:48
To: NEUROLOGYSECRETARIESLINCOLN (UNITED LINCOLNSHIRE HOSPITALS NHS TRUST) ulh.tr-neurologysecs.lincoln@nhs.net
Cc: PALS (ULHT) pals@ULH.nhs.uk; MARISCORECEPTION (NHS LINCOLNSHIRE EAST CCG) LECCG.MariscoReception@nhs.net; Christopher Reid Chris.Reid@parliament.uk; voiceability.org;
Subject: Elizabeth Bevis For the Attention of Dr CS
 
FOR THE ATTENTION OF DR S
I would like an appointment to discuss my daughter’s care with you.
I have today checked with Sheffield Hallamshire Hospital only to find out that NOTHING has been arranged.  E is having life-threatening seizures and I visited her yesterday.  I have grave concerns for her wellbeing. 
My daughter no longer wants to live.   She was covered in red marks, she is having constant fits which ARE NOT mental health conditions.  You are responsible for referring her to have extensive tests which Lynsey has agreed to have done.  Why has this not been done?    
This matter is subject to a high court case right now.  I would like to know your reasons for not referring my daughter to Sheffield or has she been referred elsewhere?
I would like your reasons why a MH team should film my daughter against her wishes and that you should wish to take their word when they are not qualified to comment.  I was assured by your department when I called last Wednesday that an appointment had been made and it has not as I have checked today.   How can you possibly monitor my daughter when you are not there 24/7.  
I was also told by Sheffield to contact the GP which I have done.
I would like to know the details of what exactly has been arranged.

Since moving all E’s Neurology appointments have been cancelled which is highly neglectful.  She has had several accidents and her face was absolutely covered with red marks.   I want my daughter to have the physical health checks she needs and under Martha’s Rule she is entitled to have this.  Nothing has been arranged so I need to know all the details of the appointment to pass onto the court.
Her condition in past files points to neurological not mental health.  I look forward to hearing this information from yourselves and the GP.  I have not had response to my emails from your department and I need that response today.  Thank you.   I am beginning to feel like no-one wishes for my daughter to have extensive tests done and are ignoring her physical health completely.
It is also against GMC guidelines to film a patient who has said she does not wish to be filmed.   Not having these tests done is preventing my daughter for being evaluated on her capacity ie the causative nexus which is subject to high court action right now.
Yours sincerely

Susan A Bevis  T

From: susan bevis
Sent: 22 April 2024 11:19
To: PALS (ULHT) pals@ULH.nhs.uk
Cc: NEUROLOGYSECRETARIESLINCOLN (UNITED LINCOLNSHIRE HOSPITALS NHS TRUST) ulh.tr-neurologysecs.lincoln@nhs.net; MARISCORECEPTION (NHS LINCOLNSHIRE EAST CCG) LECCG.MariscoReception@nhs.net;
Subject: Elizabeth Bevis For the Attention of Dr S (Case Ref: VA18567)
 
TO WHOM IT MAY CONCERN

I need to know the full details of the referral that was meant to be done on two occasions now to Sheffield for E to have an MRI scan done under a Tesla 3 scanner.  On two occasions now I have phoned sheffield because no-one is responding to my emails.  No appointment has been made on two occasions now despite assurances.  I therefore need a copy of the referral details as obviously I cannot go by their word.  I have spent a long time trying to get through only to be assured that absolutely nothing had been arranged.

Please therefore let me know the details of the referral and if this referral has gone to another area such as Nottingham by any chance?

I look forward to hearing from you regarding this urgent matter.

Yours sincerely

Susan A Bevis   

From: susan bevis
Sent: 22 April 2024 10:57
To: Christopher Reid Chris.Reid@parliament.uk
NEUROLOGYSECRETARIESLINCOLN (UNITED LINCOLNSHIRE HOSPITALS NHS TRUST) ulh.tr-neurologysecs.lincoln@nhs.net;

Elizabeth Bevis For the Attention of Dr CS
 
Dear Mr Reid

When I came to Dr S clinic last Wednesday I did not have an appointment arranged and did not expect to barge in front of others.  I explained that no appointment had been made for Sheffield.  Two ladies (managers) came out to see me witnessed by *******   All they could do was pass messages on to Dr S.    I was then assured that the necessary appointment for E to go under a Tesla 3 scanner had been made.  i had explained that nothing had been arranged previously and that this was being looked into and that a referral had been made when it had not been made according to Sheffield.   I am absolutely in despair to hear yet again Sheffield have no record of any appointment or referral even being made.

Please can you look into this matter and provide me with details of the appointment.   It is almost as if noone wishes my daughter to go and have the extensive tests needed and are trying to play down the necessity of it all.

The seizures are life threatening, the MH team are not monitoring her blood oxygen levels properly.  She is being treated in the most appalling manner.   I am scared for my daughter’s life.  The referral to Sheffield  was meant to extensively look into my daughter’s physical health and wellbeing and yet again for the second time nothing has been arranged.  I totally despair.

I need to know the full details of the appointment as under Martha’s Rule my daughter is entitled to a second opinion and this can only be achieved through extensive tests done through Sheffield.

This is now urgent.  I need full details of the appointment they claim had been arranged yet no-one is responding to my emails under the Neurological department of Dr S.

Yours sincerely

Susan A Bevis

2.5 years of appalling imprisonment under the barbaric NHS where not one person takes responsibility.

Everyone working together to cover their backs in the form of MDT that goes way beyond nursing and doctors codes of conduct.

Total conflict of interest at Board level with no-one taking responsibility.

In the middle of this mess is a vulnerable person now covered in marks, scratches where she is obviously totally distressed and injected frequently, missing meals and that in itself is dangerous and to make up for missing meals is taken to the shop where she may buy crisps and snacks to compensate. At least at home she would be looked after nicely and now she no longer wishes to live so she has told myself and others who have visited her.

She is treated as though she has no capacity and is being denied her physical health assessments which have not been referred as advised on two occasions.

Absolutely dreadful situation. No accountability and these doctors try to play down their responsibilities and try to put all the blame on you as a parent/carer instead of take an interest and investigate what could possibly be the cause of these life threatening seizures. To think they are more worried about her breaking equipment she is supposed to wear on her head to monitor properly than the wellbeing of my daughter.

Then I get an email from a Ms Lowe of Marisco Medical who has said she has been told not to answer my emails because I am writing to her via her own personal email address that states NHS/ICB but I just wrote back and said that can simply copy in by cc to her personal NHS email address the correct email address as what had been given to me had emails bounce back. I do not expect to hear anything but it is good communication to point out that this is the wrong email address and copy in the correct email address surely? She is supposed to be a lead safeguarding person under the GP surgery. This is a safeguarding matter they need to be aware of as two referrals have not been done. At least instead of dismissing such concerns the person should write more clearly and then why use a personal email address in the first instance to correspond with me then now say this is wrong?

So now I have to wait several days if not weeks before I get any kind of response I have asked for ie date of referral and details of what has been arranged. Why is that so difficult when Elizabeth has given consent and it seems like NOONE wants me to know anything.

In the meantime a Ms Emily Scott who is supposed to be the Clinical Lead for Castle Ward has told Elizabeth she is moving elsewhere or words to that effect that she is being taken to see a place but noone in the family is being advised of this and so the information is via Elizabeth.

When I visited Elizabeth she clearly said she wanted to come home, she misses her cat and misses her home and family. Elizabeth has spoken more than one of staff shortages on the ward and I have this in writing.

I am the only person who comes to visit each week without fail. My visits are heavily restricted 2-1. Even a prisoner is treated with more respect.

As regards capacity I had bought Elizabeth something where it indicated there was 9 pieces in a box. I had not eaten myself and after doing all her shopping for her had no chance because the visit was 2.30 and I had two pieces from that box myself. This shows tremendous capacity for Elizabeth to question where the other two pieces were. In addition to this I had bought all the nice things she wanted me to. Food is the only comfort for a patient treated like a caged animal you would see in a zoo. In a prison warders may be present and walk up and down but do not sit there taking notes of everything being said in a small cramped room, Ms Munro describes as “spacious”. So why are they doing this – it is on order. An Executive decision or that of the Responsible Clinician who is clearly not taking into account the fact that this is not conducive to recovery. It has not been taken into account that she would like some leave after all this time and only has 45 minutes so the only other enjoyment is going to the hospital shop and even that was used as punishment for appearing hostile, the subject at the time of an interlocutory injunction. This could not go forward due to county court not having the jurisdiction.

When a responsible clinician goes down the legal route first before medical concerns this is highly negligent. Why are they filming her on the ward having seizures and trying to make out this is caused by her mother. Why dont they do the responsible thing by refer her to sheffield and for the endocrinology tests as already proven in private tests there is dysfunction.

It would seem there are no standards and those at the top also work for the care quality commission and the ICB.

All I have ever wanted is for my daughter to be treated fairly.

Sadly I have chosen to live in a beautiful area that would benefit Elizabeth but she is not allowed any meaningful contact – there is complete abuse of human rights under this area. There is no accountability.