MY IDEA BY ELIZABETH BEVIS (this is copied with the consent of my daughter who wishes for the latest news also to be conveyed.

Tonight I received a call from Elizabeth. The call was as usual supervised by a healthcare assistant. Elizabeth told me that today a lady came to see her claiming to be a Paralegal together with her Advocate from Voiceability. Elizabeth recognised her from Ash Villa. What was discussed was supported living yet they know full well that Elizabeth wants to come home.

Nothing surprises me but this is so very underhand. None of us in the family have been notified and only get to hear things from Elizabeth herself who is sharing information which is most probably the reason why they put staff there instructed to write notes. This has all been done behind our backs. No regard whatsoever has been given to Elizabeth who clearly has capacity or her family and I am sure you will all agree from reading her messages below she has capacity. She told me that she was not happy about the idea of supported living which has been tried before and was a disaster. The whole reason I moved was to provide a nice living environment away from a stressful city where people are rushing around. Here below I describe some of the disastrous places where Elizabeth has been sent by the former area of Enfield, none provided the right support in the community.

s.117(6) Mental Health Act 1983 as amended by s.75 Care Act 2014.

Accommodation can only be provided where it meets a need related to the person’s mental ill health, and reduces the risk of the person’s condition deteriorating.

The person has the right to express a preference for particular accommodation. 

Social services must meet this preference provided it is: 

·       of the same type that social services has decided to arrange

·       suitable for the adult’s needs

·       available

·       affordable, using a ‘top-up’ if necessary

MotiVilla – dreadfully abused therein – all possessions of value missing.  14 year old drug dealer on site.

Phoenix House Northampton no food at the weekend yet rated good by CQC

Premier Inn Enfield Island Village –  moved from room to room – had to keep paying

Mays Cottage – Priory Craegmoor group –  broken lock to door of room- told to sleep on settee all night.  Resident drug dealer, resident bringing prostitutes in.  No supervision or care overnight.  Faced eviction because of another resident staying over from a related scheme.

Reservoir House  –  total breach of H&S –  five fumigations failed to stop bed bug problem which spread to all other residents.  Had to sleep on floor with damp sheets because of constant washing of clothes to try to stop the problem which persisted.

Solway Road–  temporary scheme without even a proper kitchen or lounge or garden to sit out in

Purcell House – the very best accommodation and independent council flat on 3rd floor that Elizabeth was assessed for and was assessed as being able to manage however Enfield provided not a scrap of care in the community and left to go downhill.

Since moving to Lincolnshire nothing but acute wards for nearly 3 years now. Family have provided a nice bungalow but a team of around 30 strangers are against her coming home.

“SHE IS ON A DIFFERENT KIND OF SECTION”

The above was the response received when I questioned why Elizabeth was being treated so very differently to others at Ash Villa. The other response I received was in relation to her missing meals “If she chooses to miss meals it is up to her” however this is neglect on the part of LPFT especially when at the time, she was deemed to have no capacity. Elizabeth was held a virtual prisoner for so long without leave, phone taken away and 2-1 supervised visits for just half an hour sometimes at Ash Villa, just as she has been held at Castle Ward under Dr Waqqas Khokhar, who is the Responsible Clinician. There have been times when Elizabeth has said she feels like giving up and no longer wishes to live. All calls have been supervised, all visits supervised and this is the current position. My daughter’s treatment has been appalling. Now suddenly for reasons I cannot say they are keen to move Elizabeth and all this is going on behind our backs right now. Elizabeth wants everyone to know she does not wish to go into supported living and wants to come home. She has capacity to decide and I am now a BI assessor myself. No doubt they would want to put on DoLs or CTO in order to detain her in all for profit scheme owned by business people where it is unlikely they will have the expertise to cope with her seizures and provide the necessary care. Elizabeth has made it clear she does not wish to be sent away from her family and where we live overlooking beach and sea is the right environment, not a city or out of area placement. The way these “professionals” have gone about things is both under-hand in their dealings to think they can get away with saying “no capacity” this will backfire on all of them. Totally dishonesty to set about trying to take away a vulnerable person’s autonomy for their own convenience.

Each and every member of staff there has a Code of Conduct and so do the doctors but noone is acting accordingly and reliant on each other to back each other in the case where there may be challenges or things go wrong. The Bolam Principle thankfully is no longer accepted in law from what I can understand. Each and every one of these professionals are individually responsible for their actions. The doctor had apparently asked a nurse to film Elizabeth having a seizure for the purpose of passing this on to the Neurologist. Elizabeth did not agree to this and then I got a call from the Clinical Lead asking me if they can pass this on to the Neurologist so I said No. I could not believe the way I was asked this question as though Elizabeth was a vegetable when she has capacity and clearly said no. What is needed is for Elizabeth to go to Sheffield as they do not even have the correct scanners in Lincolnshire. A brain scan should be under under a Tesla 3. Elizabeth has agreed to go to Sheffield and have extensive tests done but the Neurologist is afraid that equipment may be broken which Elizabeth promised not to do. I am waiting to book my hotel for Sheffield and the only information I am getting is from my own daughter. There is a wall of silence from everyone else. She needs to go there for a few days to have extensive tests done properly with the correct equipment and not filmed by the MH team as how can this provide any accurate picture as to the reason for the seizures which incidentally I have been partially blamed for. Again Elizabeth who is said to have “no capacity” relayed to me the date of this appointment is on 30 July 2024 and I have asked her for the time of this appointment.

The seizures started whilst at Ash Villa. There was an accident where according to Elizabeth she lost her balance in the seclusion room and hit her head hard on the floor. I was concerned for my daughter’s wellbeing so I booked a private MRI scan in a small window of opportunity. The results were not normal and because of this dispute finally a scan and referral to a Neurologist has been allowed and I have checked that the MRI scan under Tesla 3 has been booked through Sheffield but what is needed and what Lincolnshire Partnership Trust is not wanting to do is refer her for a few days stay on the Neurological ward for proper observations instead taking it upon themselves to do the filming which is gross breach of medical ethics.

THESE ARE MY DAUGHTER’S WISHES NONE OF THEM WISH TO LISTEN TO:

FRIDAY 10th NOVEMBER 2023

“I want to eventually come home to live with my Mum in the Annex through the Court of Protection.

I miss my Mum greatly and want to go home to her.”

Rachel – HCA Castle Ward PHU, Lincoln County Hospital “Wish not allowed“.

28.09.2021                     19.21              –        I should not have been sectioned as I am a vulnerable person.  I have got the paperwork to appeal”

08.10.2021                     20.45                          –           “Can’t wait to come home”

22.10.2021                     21.34                          –           “I’m very unwell physically”

23.10.2021                                                         –           “I won’t get better”  

23.10.2021                     11.46              –                       “The consultant was very subtle when talking but vicious   –  He decided to put me on depot injections. 

                                                                                       I am hurting in my arms”.

27.10.2021                     23.51              –                       “I am suffering from an unknown illness which is making me tired”

30.10.2021                     09.28              –                       Shared S3 Detention papers under Dr Ismail on 30.10.2021 at 09.28”

27.11.2021                     16.21              –                       “I’m in trouble with this autism.  Try not to worr at this stage”

28.11.2021                     12.46                          –           “I’m now left mentally scarred by dreadful treatment.  I’m  not able to cope any more”

28.11.2021                     14.29              –                       “I can hardly walk coz i’m frightened of the floor.  Can you send me my walking sticks” 

28.11.2021                     18.18                          –           “I want to die”

30.11.2021                     18.53              –                       “I’m in the wars with this autism”

04.12.2021                     17.43              –                       “I don’t care any more these staff are abusive to me”.

05.12.2021                     12.26              –                       “They have been very unfair to me and do not understand where I’m coming from”

06.12.2021                     19.15              –                       “Caged van is not suitable for a patient like me.”

06.12.2021                     20.56                          –           “It’s really unnecessary to have held me for such a long time.”

06.12.2021                      22.54                         –           “so they believe I’m German”

07.12.2021                     15.51                          –           “I’m only able to talk to a female doctor”

07.12.2021                                                         –           “Look Mum they shd not be suggesting things me wait until I’ve had a diagnosis for autism.”

15.12.2021                                                         –           “Hi Mum I’m allowed home in few days”.

21.12.2021                     20.40              –                       “My medication is causing bad side effects shaking in hands.”

22.12.2021                                                         –           “they really think the drugs work”  “its weird I swear I have seen Dr Shapasandy before once on a video call.

22.12.2021                     12.25              –                       “Last night I was very ill with the drugs, they are toxic.  I need a toxicology test.

27.12.2021                     21.43                          –           refers to pain in her back with the injection.

28.12.2021                                                         –           “You’ve got to get me outta here.  One nurse that I know said don’t struggle on your own like I need any help from these people.”

28.12.2021                     15.08                          –           “Look this is no joke I’ve got to decide tomorrow what to do whether I want to go to a specialist autism home”

28.12.2021                                                         –           “Georgi was saying that they are here to help but look what a state I’m in for trusting these sick people.   Can you phone me pl.”

04.01.2022                     11.47                          –           “Hello the plan is for me to be discharged 1^st week Feb to be discharged to my place of choice.”

06.01.22                          10.24              –                       “Hi Mum isn’t there a way I could stay in the chalet while your busy building”

07.01.22                                                              –           “hello I’m in a lot of trouble these are very nasty people”

07.01.22                                                              –           “Because they are not letting me go at the moment.  There is a problem.  I should not have been detained.”

07.01.22                                                                          “Mum you need to listen and listen well my health is declining.  I am becoming a vegetable because of the drugs.  The doctor was   trying to say they are doing this in my best interests but they are forgetting one thing I do not wish to be well.”

14.01.2022          14.01          –                                                     “I spoke with CQC” and attached a letter from Ringrose Law where it was tribunal on 30 December application had been withdrawn.  That was the day of my return to Ash Villa after a successful Xmas break.

15.01.2022                     20.46              –                       “I’m starving hungry and staff just left me”.

16.01.2022                     18.04                          –           “Im currently stuck in Ash Villa.  I don’t belong here.”

16.01.2022                                                         –           “Look my body has given up in here”

16.01.2022                                                         –           “I feel trapped here”

17.01.2022                     10.15              –                       “Hi Mum I’m shaking in agony my bones hurt”.

19.01.2022         02.36          –                                                             “ I have been trapped in my head for many  days now locked up in a mental asylum notice I use the word asylum because it best describes this place Ash Villa which I was told was a nice place yet to be desired!

20.01.2022                   17.38              –                       “I am also developmental autistic”

25.01.2022                   15.45              –                       “Hi you can come up tomorrow but be aware of covid bring the things.”

15.53               –           “There is only one case of covid”

02.02.2022                                        –                       “They are not treating patients well in this hospital”

06.02.2022   19.30                          –                       “Hi Mum I’m in some trouble down here with the section but we have got a tribunal coming up so hopefully that will                                                                                                  shed some light on this whole mess that’s been created by the mental health.”

07.02.2022                                        –                       “Its a long old stretch till the end of February but I hope ur ready to pick me up and we’ll go for a nice McDonalds meal e

                                                                                     But I’ll give you my coke so I don’t spill it”.

09.02.2022                                        –                       “Some idiot said to me I need to get a bit better before I come home.  Dont know what they are talking about.”

11.02.2022     01.04                          –                       (Day before my Birthday)  “I cant wait for the choc cake sounds del”

22.02.22                                                         –           “Mum the Drs have been asking to do an ecg on me trace of the heart and I had to go with the physical nurse to do one.”

27.02.2022    17.41                          –                       “Make sure you send that Ombudsman paper off to the right place”   (in relation to complaint on former area who refused to pass over                                                                                                the “care to be transferred)

28.02.2022                                        –                       “They are being nasty – I dare you to come to the hospital and demand my release”

02.03.2022    16.35                          –                       “Im not happy in here.”

07.03.2022                                                    –           “I refused the lying down MRI scan.

 10.03.2022                                        –                       “I would like to come to church”

15.03.2022        03.55                           –                 “The situation re MH gets weirder as the day goes past – they’re  ob lying and trying to hold me against my will here.  It’s

so very terrible”

22.03.2022  15.55                          –           “My hearing has been adjourned”  I did get changed to go in.   “Did they not let you in to your tribunal?”  “Yes”     The hearing has bn adjourned                                                                                               

            24.03.2022    19.52              –                       “There is a conflict of interest with the staff here at Ash Villa they seem to think they are doing the right thing.  I’ve never seen something so absurd”                                                                                  

28.03.2022                                        –           “Listen to me I am at breaking point.”

11.04.2022     10.19              –                       “The doctor has checked me.  I have muscle weakness in whole body”

21.04.2022    19.39                          –           “I have spoken to the doctor from tribunal.”

22.04.2022    11.18                          –           “I’m not going in the tribunal”  

27.04.2022    16.29              –                       “Im on haloperidol, lorazepam, Clopixol. The Dr says I’m subject to a manager’s hearing I bet they are in the wrong.”

08.05.2022                21.31              –           “I’m not doing too well.  Why do the MH keep trying to make me well.  They are stupid.”

            08.05.22                     21.39                          – I think things should go to the High Ct.

09.05.2022    01.15                          –           “I want ***** to help re the high court but how long is that gon take.

24.05.2022                09.54              –           “The Manager’s Hearing will take place at quarter to eleven.

24.05.2022                22.07              –           They have put me on 400mg

24.05.2022                10.25              –           “I’ve asked them to send you a link but when I asked they said you were not invited but I have told them I want you to attend”

            24.05.2022                10.48              –           I was not aware that G had done a capacity ass.

            24.05.2022                11.05              –          I’ve just bn in to the hearing looks OK so far but I’m waiting for the final decision at the end.

24.05.2022    17.49              –                       “They have increased my medication.”   “They have put me on 400mg weekly +10mg  “Nothing else discussed.

            25.05.2022    18.04                          –           “The Dr is being unreasonable”

            26.05.2022    00.22              –                       “I had a crow come to the window to eat birdseed this morning at 7.00.  Unfortunately I think the feeder was too high.

            14.06.2022                22.36              –           “Hi mum thanks for the gifts yes I wd love to see you on Wednesday.

17.10.2022                18.43              –           “Jand Jput me in seclusion last night and injected me twice”  (Text)

                                                                               “What did you do to be put in seclusion?”  (T (SB)   17.10

                                                                                      Nothing”  17.10.

28.07.2022                21.41              –           “Can you come with me to Yorkshire wildlife park”.      

            21.10.2022                20.30              –           “There is a meeting with everyone coming up next week.  I believe they will discuss whether or not I come bk home for Xmas.”

 20.59              – “without warning I was pushed against the wall to be given an injection one lower one higher.

14.10.2022         09.59          –                                                            “It would be nice to get a response from my text about getting groceries for Ash villa a delivery.”                      

24.10.2022         20.49                                                                     S kept coming to my room to administer medication in depot form on three occasions

21.02 25            21.01                                                                                                      

                               

            26.10.                         13.30              –                       Hi  I’ve just witnessed a patient refusing the depot and being set upon by staff”

28.10.22                     13.36              –                       “Hi my medication is current at 300mg then going up to 600mg.   Sophie told me.  She works in the medication room.”   

28.10.22                                                                                 –           Sophie advised hat there were concerns about the lumps on my body following the weekly depot injections.

28.10.22                     22.44              –                       “the lumps are from the depot I had last week”.   

                                                            22.45                          (referring to my meeting arranged for next Tuesday) “I hope that meeting is to discuss Xmas leave”

02.11.2022                 15.38        –                 “Hi mum just got bk from trip to Ruskington garden centre.  I had a lovely time. 

 I looked at some Christmas decorations.  Had a coffee and food in the coffee shop.  I bought you a little gift in the shop for Xmas.”

                                                            20.38                          –           “No donkeys at Ruskington I thoroughly enjoyed the coffee I really enjoyed the Indian meal and I shared it.                                                                   With three friends”

03.11.2022                 16.36              –                       “Hi so I have bn granted leave to go out with you in the grounds by ourselves”.

03.11.2022                 22.46              –                       “it looks like I will hear something about Xmas leave tomorrow as I have ward round.  Thanks for responding quickly I 

                                                                                     will look forward to hearing your new response to my newest message ie “it looks like i will hear”.

            04.11.2022                14.02              –                       “I have had ward round.  An advocate was present via videolink”

05.11.2022                 02.29             –                       “They said I can come home but I don’t know when.  Enough is enough so ask next time because u wanna do a Xmas shop”

18.29          –                                        “cant wait to come home.  Do you wanna go to Lidle or somewhere to do some Xmas shopping.  Make sure you ask for this coz I might be all out earlier.    Can I see you on Tuesday?

06.11.2022                                                                                         –                       L “I am going to Macdonalds tomorrow.  Please could you bring me some money for my hair as we are gonna book a hair app.”

            11.11.2022                 09.54              –                       “When are you com take me for xmas”

                                                            09.55              –           “I’m still stuck here in the ward.”

           

                                                                                             

15.11.2022  –          21.20                                                 “Ive not been very well at all.”

16.11.2022  –          22.15                                                 “I have no water”

Does the above messages sound to you that Elizabeth has no capacity or rather that she has been written off by so many “professionals” and medication raised to sky high levels whilst at Ash Villa no doubt to achieve their goal of “no capacity” for the purpose of producing assessments to get rid of me as Nearest Relative in County Court but these did not tie in with the CoP assessments as during this time I was put under investigation by the Public Guardian Office whilst the team tried to take away the POA for Health & Welfare.

So we have had almost three years of absolute hell since moving to Lincolnshire and I would describe out experience as “hell on earth” – these are the words that Elizabeth has chosen to describe the facilities she has been sent to by Lincolnshire Partnership Trust (5 of them) and 10 doctors. All that was ever needed was a continuation of care but no-one will take any kind of responsibility. There was no need to section her. They have deprived her of all her physical health appointments and only backed down on Neurologist because of the seizures that started at Ash Villa never experienced before. I have also noticed that Elizabeth’s right hand was constantly shaking.

What they are doing is so very wrong giving constant Lorazepam injections after each seizure. They have also allowed her to go without eating in two hospitals under their care both of which resulted in complaints.

When I came to this area I did not wish to complain or fight but it soon became clear that it was never their intention to want to work together with me as a mother or the family. The main goal was to take the POA for health and welfare which they did not succeed in doing and then to take away the role of NR only for me to become NR again to someone else. This makes a mockery of the law doesnt it.

What would make things right now would be a few days booked on a neurological ward to allow her to have full pathological tests but this is not being granted.