Elizabeth has been on various wards as you know for just over six weeks.  An acute ward is not a good place to withdraw from psychiatric drugs but neither is the family home. There needs to be facilities for this provided.  It is not peaceful on an acute ward.  However having said that, when someone is a trauma victim, there needs to be ongoing therapy and when I checked out what was on offer in a couple of future possible placements I was not too happy.  These specialist facilities are not in the local area.  Anyway, I telephoned the recovery house to tell them that Elizabeth is withdrawing from Abilify.  I was astonished that the Responsible Clinician thought that she should be recovered after a short space of time so I had to point out to him that it took much longer to recover and can take a year or so.  When someone is coming off drugs such as this they should automatically have the counselling/psychotherapy.

Yesterday I got the news that Elizabeth was being discharged but I did not agree with the decision as much as I wanted her off the acute ward, I felt that first of all Elizabeth should be sent somewhere where they specialise in PTSD (not Cygnet!) but somewhere where they offer proper care like I provided for four months in Scotland and in Australia.

As a former colleague of Dr R D Laing told me, he never used drugs on patients and it is lazy to use that approach in my opinion.  If psychotherapy was used together with other therapies then as I have seen through the wonderful care provided by http://www.working-to-recovery, it is possible to get well again –  I must emphasise the term “well” – Elizabeth feels unwell physically because she is withdrawing from a powerful drug and not because she has any psychiatric labels.

Getting back to the discharge of Elizabeth from Trent Ward, I had already contacted the recovery house – at such recovery houses people are all on prescribed drugs and there are as many as 12 others there short term.   I got that feeling Elizabeth was feeling anxious about such a move and had identified a smaller ward for neurological rehab on the site of Edgware Hospital but when I mentioned about this we were told a referral was necessary and the consultant psychiatrist brushed Elizabeth’s wishes aside.   Anyway for six weeks Elizabeth has refused every drug on offer locally and at Edgware which was not the correct environment either when going through drug withdrawal.  No-one warns you of how difficult it is to withdraw off these drugs or the fact there are no facilities for psychiatric drug withdrawal.   I am proud of the fact Elizabeth has said no.  Coming off these drugs has enabled her to speak up for herself much better.  Anyway, the recovery house was situated not so far away from where I live and much easier to travel to than Edgware.  I had a call from Elizabeth when she arrived there to  bring her some things but I had not noticed she had tried to contact me as I was busy driving and finding where to park.   She was in a foul mood on arrival.    I had previously warned the recovery house that Elizabeth suffered from PTSD.  I therefore did not stay long but today arranged for a friend to visit instead, bringing her mobile phone and other possessions.   When this friend got there it was obvious that Elizabeth was still distressed.    Then I got a call  from the recovery house to say they were not letting her back in.  I was a long distance away from home at the time and it was awful to get this news as I could not help in any way.  I made several phone calls to the team but you can never get through as they are always out at meetings and then they do not ring you back or write.  Elizabeth is now back again in the local area and on a local ward (Suffolk).  The kind of place I would like to see her recover from these drugs is somewhere peaceful as at times I get calls from Elizabeth who is distressed and I think that environment is extremely important and especially as I have proven this works – going away to a peaceful natural environment most people could get well.  The kind of environment I am talking about is Scotland and then Australia through “Working-to-Recovery”.   This costs a fraction of what some private sector wards are charging.   Elizabeth stayed at recovery houses in Australia and all the time she was getting better that is until she returned to my local area which is not what I would have wished.   We don’t seem to have any recovery houses of this nature in the UK.

I think going away from the local area to somewhere quiet and peaceful was the answer and receiving the correct therapy.  Staying at recovery houses, working with international MH professionals and peer supporters was the best solution in an environment where no one pushed psychiatric drugs.  We need more of this type of recovery house as there is nothing like this in the UK.  The care provided worked and the UK needs to take an very different approach to that currently adopted under mainstream care as this approach has worked for Elizabeth who came back well from Australia but such care needs to be continued for at least a year in the cases of abuse victims.

I have identified several specialist centres that deal with trauma/PTSD and who offer therapy but why are there not more?  these are not local but it is crucial that counselling/psychotherapy is provided and not just accommodation in the community.  I have emailed everyone about this today as something needs to be done urgently especially as a locked ward is costing a lot of money.  I would prefer Elizabeth to stay in a nice hotel or health spa where there is a gym and swimming pool and nice facilities quite frankly.

I do not want Elizabeth to remain on that acute ward much longer but I want her 100% well before being discharged into the community and I am going to discuss all this with the Consultant Psychiatrist  RC – Dr K Choudhury on Thursday this week.

Members of the All Party Parliamentary Group for Prescribed Drug Dependence (APPG for PDD) met at Westminster on 15 March in order to lobby Public Health England for a national 24 hour helpline to help patients withdraw from opioid painkillers, tranquilisers and antidepressants. Parliamentarians who attended included Paul Flynn MP (chair), Sir Oliver Letwin MP,…

via MPs and peers present case for national prescribed drug helpline to Public Health England — APPG for Prescribed Drug Dependence

So far in a short space of time Elizabeth has been on Hooper Ward at Cygnet Beckton, transferred to Suffolk Ward, Chase Farm but has had to be transferred to Edgware Community Hospital (Trent Ward) as she was hurt by another patient on the local ward. Being on an acute ward is hardly a good place especially when you are withdrawing from a powerful anti-psychotic.  Many times staff have tried to offer the drugs but Elizabeth cannot metabolise them and has said no.  The most she has had is the occasional Lorazepam but Cygnet Beckton put her back on a drug (Abilify) that caused serious problems and then introduced Chlorpromazine at a low dosage but why put her back on the same drug that is known to cause agitation and increased anxiety.  Since coming home from Australia and experiencing wonderful care Elizabeth came back on 2.5mg of Abilify as international MH professionals needed to work with her properly.   What a difference when she came home –  however Elizabeth was revealing a lot of things that had been bottled up for many years and there needed to be ongoing therapy but nothing was on offer.  The local area would not hold particularly good memories for Elizabeth and I was most concerned about her return.  One of the main reasons for her distress was being forced to take drugs for life but even on 2.5mg I knew this was a powerful drug and did not wish to reduce this whilst living at home.  Instead I had put her name down for Dr Joanna Moncrieff’s drug withdrawal programme RADAR which was due to commence in my area in the summer.

My daughter Elizabeth spent her 30th Birthday ot the flagship Cygnet Beckton Hospital which I have been told costs around £12500 per week but offers very restrictive care.  Even on her Birthday Elizabeth was not allowed to have time with us alone.  There was a member of staff listening to every word, restrictive contact -we were not allowed on the ward at all.   Cygnet Beckton is the flagship of all Cygnets and was visited by HRH Princess Anne (one of my favourites of the Royal Family).  Princess Anne probably came away with a wonderful impression on the surface of Cygnet Hospital Beckton, however, I had come across Cygnet before at their Stevenage Branch.  I recently took part in a conference workshop “Least Restrictive Care” at a conference held at the Royal College of GPs.  However I would call this prison.  Prison because it is restrictive care in the highest degree.  It costs a lot of money to send someone to Cygnet Hospital – people will be shocked to hear that in the current crisis of underfunding to the NHS I have been advised it costs £12500 per week.   That is a lot of money.   A friend of mine has someone there on a Section 37/41.  They must be raking in the profits as you can well imagine.  The young person is suspected of having a learning disability and with the right care could be thriving in the community but is being drugged hugely.  This needs looking into without any doubt.

As for Elizabeth the minute I posted on Twitter how much Cygnet costs £12500 per week or thereabouts, she was immediately released within one afternoon.  It would seem like this is something that certain people would like to be kept quiet – after all this is public funding and going into private sector care, whilst services and the NHS wards locally are suffering.    Now what exactly has Cygnet done for Elizabeth?:  nothing apart from drug.  For this money they should have looked at the other diagnoses.

At Cygnet Stevenage, I can honestly say nothing, other than the staff were very nice but they are being paid huge sums of money to be nice.   Cygnet Stevenage made my daughter unstable – in the absence of the RC (Responsible Clinician) someone was prescribing drugs.  She was looking so good having come off the powerful drug Clozapine and then they went and introduced Abilify which produced some of the worst symptons we had ever seen. They started her on 10mg and she was talking in a weird manner and her looks declined.  They then increased the Abilify to 20mg just before her release.  I took Elizabeth off this chemical of Clozapine that contains talc and aspartame because her tongue was going to the back of her throat.  A condition called Neuroleptic  Malilgnant Syndrome was brought to my attention.,    We had no help or support with my local area of ENFIELD who had taken us to court in 2014 to sever contact and deprive liberty.  How ruthless can you get that a drug is deprived such as Clozapine to force return a vulnerable patient back to a care home Stepping Stones (Phoenix House) where it is documented in files she had no food at the weekend.  She needs to manage her money better – £30 a week given to Elizabeth.  She could not manage as she had been on a lot of drugs and a patient at the shocking private Sector Hospital Cambion where they gave her allocated times when she could have supervised phone calls.   All documented in the files.  All this care was being paid for I suspect by ENFIELD who have a system of “integrated care” in Enfield Council.  I do not think much of the system at all.   What they need to adopt instead is a system of Open Dialogue and we tried so hard to join this as it is supposed to be open to everyone but no one bothered to refer us despite repeated requests.  Why on earth should it matter if you have a team involved locally.  At the time we met the criteria as Elizabeth did not wish to have anything to do with the MH and told her GP what she thought of the system.  The good thing about sending Elizabeth away was that she came back more able to speak up for herself.

CURRENTLY RIGHT NOW:

Elizabeth who has returned from paradise –  “I want to be free Mum” – well I set her free and provided care that cost me money – substantial money to make up for her wasted life of being drugged to the hilt under the local area of ENFIELD.  This money that I spent was nothing compared with what is being wasted on care that does not work under the system.   One of the main areas of upset for Elizabeth revealed when I took her off  Clozapine was the wasted years of her life.   Elizabeth was never a lazy person – she wanted to be a chef.  She had ambitions in her life.  Then along came a GP who prescribed Prozac.  I have since proven she cannot metabolise the drugs – psychiatric drugs and these have in the past been given in huge doses.  Prozac changed her beyond recognition and led to hospitalisation and a downward spiral.

I can understand why drugs have been given in huge doses and this is it is convenient – because someone cannot talk freely when drugged up.  They cannot reveal what has really happened to them under the shocking care of the UK and that would put any diagnosis in question.  Everyone is trying to protect themselves.  No-one wishes to lose their jobs.      Even though I am not a Catholic by faith and respect all religions, I have to take note of what Father John has to say in his church services which are really touching on every day life.  He says something to the effect that you have to stand above and not worship the celebrity culture or look up to politicians and by standing above that means coming out of your comfort zone and in my case that means being outspoken about the injustice going on to mental health patients in the UK.    Lets face it there are very few politicians who could care less about patients under the mental health.   There is pure evil and greed going on right now in the UK and I am pleased to be in a position to expose this because I am an honest person at the end of the day but I feel this is the right thing to do.  Some many people are taken in but I have done a lot of research into all of this.  If everyone was to expose and be outspoken there would not be this mess but understandably many are patients are too ill to stand up for their rights and many carers are too worn down and afraid to, their sons and daughters having been made disabled due to their rotten treatment.  How many are locked away right now in hospitals and care homes, not allowed contact with their families.  Only allowed supervised visits.  It is control not care and abuse of human rights.   There are people making vast amounts of money – (see the blog by Finola Moss).  This is a ruthless Government who turns a blind eye on the suffering of the disabled and mental health patients, concentrating instead on their pathetic stigma campaigns that involve major charities but this distorts the fact that there is a silent holocaust going on and that there are no decent facilities and it is expected for patients take powerful mind altering drugs for the rest of their lives and where are the facilities to allow them to safely withdraw from these drugs? – the answer is there are none and this is what is needed most of all.   Mr Burstow could not deny when I pointed out that many people under the MH system have talents – they are highly intelligent or artistic – he agreed with me and given the right opportunity and care these people could be an asset to society.   I believe STIGMA is caused by none other than a GOVERNMENT approved SYSTEM of “care” that needs complete review as it is not working or protecting the weak and vulnerable.

It is not for me to judge but God will do so one day and that goes for any professional who chooses to just go along with things for the sake of their jobs but I have to say there is a lot of bullying going on and focus should be given to those at the top who do nothing.

It would be convenient for Police to close a case on Elizabeth simply because she was so drugged up at the time.   I was so annoyed with them I said I would be sending the files to the very top.  No way should Elizabeth be ignored and because of this they are now taking note as I refuse to have matters dismissed.

TODAY:

Elizabeth is on Trent Ward Edgware Community Hospital – a fair distance from home.  She is a voluntary patient.  Elizabeth never wanted to take drugs and that is the case of many MH patients.  She is on an acute ward full of other disturbed patients who are drugged.  Elizabeth has been without antipsychotic drugs for 27 days now.  She is suffering from withdrawal symptoms but my local area of Barnet Enfield and Haringey  MH Trust have allowed section 2 to expire  but she really needs to be somewhere quieter.  After visiting some of the most fabulous parts of the world including Cannes, Carcasonne, Marseille, Paris, Lyon, Australia, Dubai, Scotland all in four months, Elizabeth needs to be given the right kind of care which I have proven has worked. Some of the staff keep trying to make out she has Schizophrenia – this is not the correct diagnosis in Elizabeth’s case.     RUBBISH! because serious things have happened to her under care and I will do ANYTHING to get that correct care in place for her right now.

I would like Elizabeth off that acute ward into somewhere quieter and more therapeutic.  She is a voluntary patient.  I have written to all the CCQ commissioners.  I have written to the Chief Executive Officer Maria Kane, I have written to the Deputy Leader of Quality Margaret Southcote Want but all I want is for my daughter to get a decent placement with ongoing psychotherapy in an area who are spending a fortune of public money  on Cygnet and it is costing £900 per NIGHT a least on a locked acute ward which is un-therapeutic for Elizabeth.    Everyone should look to whom is funding this “care” and how better this could be spent so that people like Elizabeth can actually get better.  I have proven it is absolutely possible and that cost me a fraction of the price of an acute ward or Cygnet but Elizabeth felt so well she no longer wanted to take any drugs for a condition she clearly has not got.   I know this as being on a small portion of drugs revealed that something happened to her under local care and for many years had been concealed on drugs as high as Quetiapine 800mg and on top of this Chlorpromazine, Haloperidal and Lorazepam.  I am not impressed with this past “treatment” designed to make someone ill on a local ward in ENFIELD.

Before anyone wrongly tries to make out Elizabeth has no capacity apparently she has currently requested a dental appointment, a Chiropodist appointment and said that her liver hurts but then she is going through “hell” in terms of withdrawal pains coming off a powerful drug called Abilify at 2.5 mg.  ELILZABETH HAS BEEN DRUG FREE FOR 27 DAYS NOW but I would like to see her placed somewhere more peaceful as she is starting to feel  distressed and I want the focus on those at the top of my local area who do not respond properly to letters, who have no excuses and who are earning a huge chunk of public money – these are the people above the law who should be scrutinised.

The specialist care I think Elizabeth should have is not situated in this area.  It is a year long programme for abuse victims.  I have seen such programmes in York. What care is there in the community?  It seems nationwide there is a problem and there would not be if money was being spent in the right direction and instead of say Cygnet on the NHS and services then everyone would be happy.

Everything is a shambles but I will not stop here. The public must question why – exactly why isnt this not being reported in the press right now?   This is not the kind of news that certain people wish the public to know about and the public should quite rightly question what is going on under the mental health system as this is where the money is being wasted most of all so I believe and the bulk of it appears to have been privatised and as documented the private care is no improvement but costs vast sums of money.

Sadly Elizabeth who has returned from a trip of a lifetime to Scotland, Europe and Australia is back on a local ward (Suffolk Ward) within Chase Farm Hospital.

I did not want my daughter to come back to this area (where I have lived all my life) because we have received the most dreadful treatment and bullying by members of staff who think they are truly above the law and above God.

I wanted better for her and when an opportunity of a lifetime came up through http://www.working to recovery I seized this opportunity to provide some happy and memorable experiences for Elizabeth.   Thanks to a team of MH professionals who take a very different approach she has travelled extensively and seen the most beautiful parts of the world – a far cry from the horrific institutions of the UK where she has sadly ended up.    For once, she received humane, decent care costing a fraction of the price of say Cygnet for instance at £12500 pw.

After what I have seen today on the ward slightly after visiting hours I would compare these sights to Winterbourne and I believe that any inspectors should come unannounced to wards such as where Elizabeth currently is  – Suffolk Ward Chase Farm Hospital, The Ridgeway, ENFIELD.    Elizabeth was transferred to this ward without hardly any notice from Cygnet Beckton – supposedly the “flagship” of Cygnet’s hospitals.  Security is tight under Cygnet Hospitals. Patients are restricted with regards to possessions they are allowed and visitors are not left alone.   Everything is watched and recorded just like prison.   In contrast wards at Enfield whilst they lack facilities compared to Cygnet who have a gym etc, possessions can go missing as patients come into each others rooms. Elizabeth has been very generous giving away her possessions and she shows her kindness towards everyone especially the weaker patients  Under section I doubt whether patients get much exercise and fresh air and Elizabeth has said it is stressful being on the ward cooped up it is certainly very noisy with people being locked in the seclusion room, banging on doors to let them out and shouting in distress.  A section is for assessment but pretty much used as an excuse for forced drugging.    Elizabeth has been forcibly injected today and looked very traumatised as if she has not already had  enough trauma caused by abuse suffered under care itself.

Going away and travelling with wonderful kind MH professionals showed Elizabeth there was kindness within this evil world where the disabled and so called “mentally ill” get treated like dirt by Government controlled “mainstream” so called care if you can call it this.  The disabled are treated like objects rather than people and there is much abuse going on within the system of mental health care –  I would call it abuse not care.  THERE IS MORE THAN ONE WINTERBOURNE.  Tonight as I had not heard from Elizabeth so I telephoned her – she has been drug free for four days and was doing OK but “professionals” nurses/doctors whoever couldn’t leave it this way as their policy is drugging – forced drugging and ECT is mentioned on the section papers.

On Suffolk Ward Chase Farm Hospital some time today Elizabeth was forcibly injected. 

I especially went up to the ward tonight as soon as I heard.   I work and do not get home until late I had previously been allowed to bring things up for Elizabeth slightly after visiting hours by some nice members of staff however what I saw tonight was absolute chaos with patients looking traumatised whilst staff – temporary bank staff  –  with rubber gloves were trying to deal with one traumatised patient who would not leave her position by the door.   I was really distressed to listen to what other patients had to say about their treatment and to see how upset everyone was.   I was not the only visitor slightly after hours on the ward to witness the shocking sights seen tonight where someone had to be dragged off and I could imagine what Elizabeth went through to be forcibly drugged, pinned down no doubt by members of “nursing” staff.      What degrading treatment. There were only about three members of staff on duty and another patient crying out for attention.  The other day I heard someone very distressed in the seclusion room.  Staff did not want me or the other visitors to witness what was going on tonight and we were ordered off the ward but first of all I wanted them to take a copy of the ADVANCED DECLARATION Elizabeth had signed some time ago.  No forced drugging – no experimentation.   A section is for an assessment but when Police are involved in an investigation right now I have specifically told them on Suffolk Ward Chase Farm that Elizabeth should NOT be drugged up.

When I got to the ward Elizabeth was standing there watching what was going in the corridor along with several other patients  –  I could not leave anyway because this other patient was right in front of the door.   Elizabeth like many other people that come under the shocking mental health care system of the UK have suffered extensive abuse or trauma and are simply not given the right kind of care.  I would describe the mental health care system in general as cruel and abusive.      Elizabeth looked so traumatised tonight by the degrading treatment she had been given today.   I was very upset to hear about this when I got home.   So this is what goes on in mental health institutions not just Suffolk Ward Chase Farm but all over the UK whether private or NHS but this is being kept quiet and not spoken about.

Elizabeth’s Responsible Clinician is Dr Kumal Choudhury who has not bothered to return my calls.

Perhaps by drugging Elizabeth they are trying to cover up things with the current Police investigation in order that she cannot talk to the Police.    Some very serious things happened to Elizabeth under the MOTI VILLA SCHEME based in one of the best parts of Enfield along the Ridgeway and I have the files to prove it.  It is only now after ten years and having received humane care that Elizabeth has started to talk about it.  HOW CONVENIENT TO DRUG HER UP RIGHT NOW.  Be sure though that there are enough witnesses who know about what happened there.    I am still waiting for you – the Police to come round to my house and show you the records I have kept.  You did not investigate properly did you?  Perhaps the view is why bother when this is only a MH patient – who is going to find out – lets cover it up or perhaps that person was so drugged up at the time and did not have the ability to talk effectively.  Perhaps this is the reason why Elizabeth is being forcibly drugged right now so as to cover up what happened to her under ENFIELD MENTAL HEALTH’S CARE.  

There was a ward meeting yesterday at Chase Farm SUFFOLK WARD,  including RC Dr K Choudhury and others including the same care coordinator who came into my home back in 2014 when Enfield deprived the Clozapine to Elizabeth.   This is the one who placed Elizabeth at a scheme at Mays Cottage where she was constantly locked out of her room due to a faulty lock and offered drugs.    Even care provider Craegmoor recognised she needed more care and support.  In other words Elizabeth was forever given the “cheapest option” when it came to care and that meant no therapy no appropriate care and there is nothing good like OPEN DIALOGUE under Enfield.  It is an area where there is no accountability and where plenty of money is spent in the wrong direction.  It should be going to improve the NHS care rather than in the hands of private sector.  It should be spent on care in the community to help people live independently but not under the CONTROL like Elizabeth was under being marched to constant safeguarding meetings where she was prompted to tick boxes stating that myself and others abused her by total strangers to the family.

I would describe the scenes I saw tonight as “hell on earth” and very upsetting.    I think it is extremely cruel that up and down the country behind the closed doors of institutions and care homes this cruelty is still going still since Winterbourne.

Yesterday’s hospital meeting was about placements for Elizabeth as none of us want her in this hospital for a long time – she had been doing OK drug free on the ward.   Elizabeth cried when she saw her father attend the meeting. She just looked numb tonight.  We all know now what happened under MOTI VILLA and now we cannot accept the diagnosis of Schizophrenia.    We believe the correct diagnosis to be PTSD and also there are other mentions of learning disability.  It is recommended for Elizabeth to have intensive trauma therapy but nothing like this has EVER been provided by this DREADFUL area of ENFIELD where I unfortunately live.

Politicians MUST know what is going on within these institutions – patients were locked up, not allowed out to exercise – nothing much to do all day – the environment itself is totally in-therapeutic.   Judging by the comments I heard tonight there needs to be inspectors visiting after hours and interviewing the patients on the wards regularly.  I am sure judging by what I heard tonight inspectors would hear a lot from some very distressed patients.

Elizabeth has gone from paradise to hell.  However hell was never that far away as she regained her memory 0f extensive abuse that she suffered back on 2010, after being drugged excessively under Enfield mh for so many years. Instead of receiving counselling, she has received drugs and excessive amounts of drugs on the shocking wards under ENFIELD MENTAL HEALTH.

May God judge this evil treatment of the weak and vulnerable throughout the UK that is being kept quiet.

I cant be bothered to pick up a newspaper these days.  You are more likely to hear the truth on a blog like this on the true reality of how disabled people are treated.    I bet when I post this to the leading politicians I get no response – just a wall of silence.

There are people earning a lot of money out of the likes of my daughter right now and instead of helping them they are making them ill and disabled.

Today i have written today to Maria Kane, Chief Executive Officer who in the past has responded that the care in Enfield is  “EXCELLENT” however she seems to have gone silent right now.  I have written to her copying in the DEPUTY DIRECTOR OF QUALITY MARGARETE SOUTH-COTE WANT who has done nothing to satisfy us with her response to our complaint.   When we read the shocking files full of defamatory comments against myself and others in the family and close friends we asked for an amendment in the files as this was very misleading but this could not be done so she wrote back offering these comments  “I do not agree that I am aggressive”.   I would have preferred an apology from the staff members themselves particularly those who tried to label me up as being mentally ill and in need of a MHA assessment.   In my local area of Enfield anything goes so it would seem.   They answer their own complaints.  They try to cover their backs in every way they can there is no accountability under ENFIELD MH.

We have a complaint going right the way back currently being dealt with by the PHSO LG Ombudsman.  The complaint is not just from myself but others in the family feel the same way particularly now we can see that the diagnosis for Elizabeth is INCORRECT –  a trauma victim who has suffered severe abuse under MOTI VILLA going back to 2010.

At yesterday’s meeting the rest of the family were told that the only way a placement would be given to Elizabeth would be if I was displaced as Next of Kin.  Here we go again – I am happy for Mr Bevis to be next of kin but I thought that under a Section it was NEAREST RELATIVE –  which happens to be me.    I just want Elizabeth out of Suffolk Ward where tonight I saw and heard the most terrible things.

Where I would like Elizabeth to go is somewhere where she gets the intensive trauma therapy and not just drugs.  It does say in a report she has PTSD and she is an abuse victim – abused by others under MOTI VILLA and now they want to drug her to cover up the evidence.   Don’t worry I have plenty of evidence to produce to the Police myself.

If huge sums of money were not being wasted then there would be more funds to help people in the community and I have no regrets at all on taking her away from an area where abuse is rife.  I am fed up with hearing that there is no money – need to raise council tax etc. etc. especially when in ENFIELD some of those at the top earn more than the Prime Minister so I have read.

There is only one who has more power –  that is God.    No politicians seem interested in mental health issues and it is near impossible to get justice for those who are being abused.

I am very pleased that I set up this blog to highlight the abusive treatment of MH patients and those with learning disability for all to see.    Judging by the responses I receive I am so happy.  I am sad that this abuse is so widespread and to hear how others have been affected.

I will visit Elizabeth tomorrow and I will inform you all whether she has been forcibly drugged again and I would like as many people as possible to know that my daughter is currently on SUFFOLK WARD CHASE FARM HOSPITAL THE RIDGEWAY ENFIELD MIDDX EN2.

Under mental health care, physical health is so often overlooked.  If there are any doubts or conflict of opinion as to diagnoses everyone sticks together.  Suddenly the team have dropped the term “chronic treatment resistant” for Elizabeth but they like to stick with Schizophrenia and the family now know for sure this is incorrect.  When someone comes off a drug you find out as you get to hear all that has happened and if things have happened under “care” then I can why people like my daughter are drugged to the hilt.  I do not accept and never will that Elizabeth is mentally ill.

If it is proven that someone cannot metabolise the drugs or else that they have suffered injury as I have seen documented in the files, then this too is ignored.

Care plans can conveniently omit reports done by professionals for court and commissioned by the Local Mental Health Trust which dispute the diagnosis of Schizophrenia.

I am often asked what diagnoses does Elizabeth have like yesterday, whilst at the dentist and I give them all of the diagnoses mentioned as I do not dismiss what other professionals state, unlike the team.

Yesterday was not a relaxing day at all as Elizabeth had complained of bad toothache and  after two weeks of this, told me she had broken a tooth but had decided to keep this quiet for some reason.  Communication has never been easy for Elizabeth since she was a child.   Elizabeth would tend to avoid rather than deal with situations.  I had hoped this would just be a phase looking back to school days where there were occasions when she would play truant to avoid certain subjects.  Elizabeth has not told us everything but she was openly discussing painful issues whilst living at home.  At college looking back she struggled to attend exams/appointments and complete coursework but this was around the time when, unknown to me, her GP had prescribed Prozac which is a highly dangerous drug and now I understand her behaviour at the time now that I have accurate results from the worlds leading experts in Holland.

One of the diagnoses is Aspergers and there is nowhere in my local area at present  that gives diagnosis in this specialist area.   The very fact that there is any possibility after all this time since the report dated 2009 that a diagnosis is wrong I doubt anything will be fairly dealt with as no one will wish to admit any errors.

On hearing that Elizabeth was in pain with toothache, I telephoned 111 to try and get emergency help for her.  This was quite frustrating as they would not deal with me and insisted on speaking to Elizabeth who was not with me.  Elizabeth’s carer had taken her the other day to a dentist  who identified some problems that needed to be addressed but nothing could be dealt with yesterday apart from Xray.   It was a  nightmare yesterday as they wanted to speak not to me but to Elizabeth.  Eventually we got this appointment which meant travelling a fair distance.  I was not looking forward to this as Elizabeth can suffer from bouts of anxiety and agitation, all caused by the drug Abilify. She was never like this before and  Dr Moncrieff told me that this can cause agitation and anxiety.  It certainly does not work that is for sure.   I have to say for a pharmaceutical company, Otsuka have taken an interest in my complaint and have not been dismissive of the side effects/adverse reactions I reported unlike the FDA when I complained to them.  Otsuka even wrote to me again taking interest.  It is good that they are interested and they stated that this drug should only be given for a short term and is licensed for Bi Polar and Schizophrenia.  The question is why is the consultant psychiatrist not taking this on board when I have pointed out these facts.   Well Elizabeth has Aspergers and PTSD mentioned in the files which I cannot ignore but the only thing that has been changed is the tablet is now white, since I complained about the toxic red dye that causes tumours in mice and rats –  Elizabeth told us she wished this chemical to be reduced down to 5mg and this may reduce the anxiety as we never saw this when she was on nothing at home.

Anyway the journey to Central London was OK until we arrived and Elizabeth was clinging to me all the time stating she felt dizzy and had headaches.   She flatly refused to walk down the road leading to the Imperial Hospital due to a large crane situated along this road. I then had to get a cab who had to drive a long way round and when we arrived thanks to Westminster Council who had failed to update information, the post code we had been given was completely wrong.  By this time Elizabeth had had enough and wanted to go back home.  We had to walk around to try and find someone to give us directions. Eventually we arrived but still Elizabeth was still not happy and we had to wait for a while –  I was worried she would not go in.

There was a time when going out was easy and pleasant but now you do not know what to expect regarding Elizabeth and also sometimes she flatly refuses to go anywhere because it is just too much for her.

On these drugs Elizabeth has suffered severe side effects especially on Clozapine which psychiatrists see as some kind of wonder drug.  This drug is made from talc and aspartame and when I told the previous consultant psychiatrist  about this and “would he like his relative to be on this chemical” I received no answer.

Anyway, it now looks like Elizabeth will have to go into a dental hospital regarding her wisdom teeth eventually.

Dental care is just one area of physical health that is overlooked under mental health, the main concern being prescribing mind altering drugs.  If patients were offered endocrinology appointments this could avoid many falling under mental health care and that goes too for these P450 metabolising tests that only cost me £50.  If proper tests were given for Aspergers for instance then this could avoid shortage of beds under mental health as once identified those concerned could have proper treatment and that treatment may well not be huge quantities of mind altering drugs.  How can anyone get better with this treatment and it is no wonder the beds are overflowing.   Much can also be improved if more support was given to families in the community.   We had no support in two years and this was saving a lot of money rather than admission to care home or hospital.

Once on these mind altering drugs no one is willing to help take someone off them and there are no facilities to go in apart from illicit drugs.   In the file reports I can see certain psychiatrists recommend drugging for life yet this is clearly against drug manufacturer’s recommendations and detrimental to physical health.   What kind of doctors who are supposed to do no harm are they to recommend the long term drugging of patients at the expense of their physical health.

Elizabeth is now in a community scheme. The residents are very nice but my concerns are for Elizabeth because she is being forced to attend meeting after meeting – Safeguarding meetings which is against her wishes. She has not had one advocate present so far which is appalling. Nothing has been provided at all for her to do in all […]

via MESSAGE FROM ELIZABETH — Psychiatric Abuse UK

Elizabeth is now in a community scheme.   The residents are very nice but my concerns are for Elizabeth because she is being forced to attend meeting after meeting – Safeguarding meetings which is against her wishes.   She has not had one advocate present so far which is appalling.   Nothing has been provided at all for her to do in all this time just like at home.    I drew to the attention of the scheme manager today the fact that Elizabeth needs help with cooking and storage of food.  Just like in the other scheme I have had to throw lots of food away and I think that this is a health hazard and I bet no mention of this is being made at the safeguarding meetings.

In her own words this is what Elizabeth has to say about it:

“I’m getting lots of meetings.  I wish I didn’t have all those meetings.  I don’t want to go to meetings every week. I definitely don’t want meetings pushed at me.  I just want a night out and I was planning to go to the shops.”

Today I got a call from Elizabeth to ask me to come round as she wanted to go out shopping.  Today is Saturday not Sunday – that says it all.

“The social worker was not very nice considering I wasn’t feeling well.  She was asking me about things.”

“I was not very happy with this meeting.  I need my Mum – she is helping me.  I am not wishing to take part in any more meetings”

The above message was typed by someone else –  Elizabeth does not type.   I don’t know who has typed this but these are not Elizabeth’s words.

“Dear Mum

I will be grateful if you can visit me once a week only on Sundays so that we go to church together and give me my allowance as well.  I will prefer you call before coming to visit me at ………………………..”

Yours faithfully”

The above words are not Elizabeth’s words – she would never use the word “allowance” for a start or say “I will prefer you call before coming to visit me”.

My carer who is now banned from the scheme because he made mention about the microwave oven not being healthy – he  also got a message from Elizabeth that she wanted him to visit in order that they could go out this evening.   This carer is like part of the family – someone we all trust 100% and has provided help in the absence of any assistance or care provided by ENFIELD mental health over a period of more than 2 years whilst Elizabeth was home and I would add it was her choice to come home as she was unhappy at the care home in Northampton.  It was only when I went to the Council’s Scrutiny Meeting that suddenly the Consultant Psychiatrist got in touch.  I accused the Councillors of not doing anything when I was trying to get the chemical Clozapine and I had to go to Harley Street in the end on the fourth day having been told that I would not get the drug anywhere not from any hospital in the local area and to get her back to the care home as they were paying for it.  I of course refused as I knew she would be sectioned as a matter of convenience and they were trying to arrange the funding for this – extra money for the taxpayer to pay out.  This was exactly what they were all planning and all the time I offered to drive all that way to pick up the chemicals.   So I presented the meeting with my story called “Get Her Back We Are Paying For That” to the Scrutiny meeting.

I have spoken to the wonderful organisation Liberty that I have joined as I would like all my carers to be applauded and highly recognised for their wonderful support in the absence of any care at all over the past years.   There are others too I would like to mention and say thanks to and hope I will be chosen.   It was good to see such a turnout at Liberty’s AGM and I was really impressed by their last award ceremony.   I would welcome the chance to talk openly about the state of mental health care in the UK and I am in touch with the most shocking cases of abuse in the UK.   How on earth can all this be allowed to go on in a so called civilised country and none of it appears in the press.

I remember previously at a hospital, (they made out it was Elizabeth’s decision for me not to be allowed on the ward or to phone at an allocated time)  I was allocated a slot to have a supervised phone call once a week but this happened to be at a time I could not ring.  All this time Elizabeth was in touch with me by text message and the letter was written by a manager there who once looked on the floor in shame when I asked what she had against me and so did one of the doctors when I asked why she had been prescribed Metformine and Clozapine which are contra indicated.   There have been so many instances like this where Elizabeth has been treated not like a person but like an object – a possession and her wishes disregarded altogether whilst a team will do everything they can to discredit you – the family – or family member as in my case and go behind your back making you out to be a terrible person, someone who is abusive, cruel, hostile, aggressive, suffering from mental illness you name it!  They even try to put words in the head of a vulnerable person putting pressure on that person and worse of all try to carry out a mental health assessment on you using your GP and accuse you of being mentally ill.    I suppose that would enhance their argument that you are not a fit mother and therefore should be banned.

I want to tell you all that I do not visit the scheme during the week daytime as I work.  I am not there every second of the day.   I am not there to “interfere” as they like to say.  It is the team who are putting words in Elizabeth’s head right now, excluding the family once again and having constant secret meetings behind everyone’s back.  They play on confidentiality and use a vulnerable person like a tool to get back at you when they dislike you and from what I see from the files they certainly dislike me a lot  but it is all wrong.  These professionals are publicly funded and there is absolutely NO accountability as no-one likes to admit if something is wrong or apologise to you about the treatment of the family and person cared for especially when very serious things have happened under their care.  They are truly above the law, protected and untouchable especially some doctors – mainly psychiatrists who are a law unto themselves.

I want to tell you that Elizabeth is very upset about all of this and does not like all their constant questioning as to whether she is being abused by me or worse.   Then they make up their sorry notes and even the past history is wrong in the files.    It is not just myself but others in the family who have complained and I have so many witnesses as many people helped me when the Clozapine had to be retitrated from scratch involving team members coming into my home twice a day reporting back to the Community Rehab Team.    Elizabeth has since told me she was “persuaded” or rather pushed to continue these distressing meetings and that there are  further meetings planned next week and she has felt forced to go along with this and is not at all happy understandably so.   Why is there no advocate present?  This is so very wrong and in itself abusive of a team of professionals as Elizabeth is finding all of this very upsetting.

Safeguarding seems to be  a once- sided exercise where a team question and question and question –  they put pressure on Elizabeth to say things against people in the family especially me who they don’t like and afterwards she feels very sorry that she may have said one or two things and all of this is being recorded in their files behind our backs.  At least I am saying things openly and honestly here.   We have most of the files to see for ourselves what goes on. This is not care this is abuse by professionals to force a vulnerable person against her family and if a whole gang of professionals say things against you as a mother for instance then it is all very biased and unfair. Who is going to believe someone who is just a mother.   So Elizabeth has attended a Safeguarding Meeting  where at least   I bet there are many professionals are in attendance and not one single advocate.    Not a fair situation at all.  At the Bethlem there were 9 at a meeting and Elizabeth often did not feel well enough to attend.  One of Elizabeth’s diagnoses is Aspergers and no one in Enfield wishes to let her have an assessment and the other diagnosis is PTSD.  I’ve got reports and other professionals are being ignored here.   Surely under the Equality Act 2010 Elizabeth has a right to be treated fairly and have an Advocate present.

I wish so much there was Open Dialogue in the local area as none of this would go on and openness and transparency which would mean I could trust the people are involved in the “care”  – but unfortunately there is nothing like this in ENFIELD.

I wish to express my thanks to the Court of Protection for acting fairly in the past not just for my daughter but for my father who had Alzheimers.  I kept him out of a home for many years and provided carers to look after him too.    Elizabeth was so terrified of going to Court.  They wanted to sever contact and deprive liberty and force her back to a care home hundreds of miles away where she had no food at the weekend.  All is written in the files.   £30 to manage on and if the money ran out they she had to go without.  Elizabeth was in bed at 6.00 pm –  what kind of care is this?

Tomorrow I am taking Elizabeth to church and I am going to tell every single church about all of this abuse.  Let God be the judge of them all as it is not my place to as they like to judge me.  I know that members of a team just go along with things as they have bills to pay and families to support –  I personally could not work in such a profession that likes to tear families apart and treats vulnerable people in the most despicable way.  They make out they know the family but they do not know anything about the family at all and there are so many mistakes in the files you would not believe it.

Gaslighting is an attempt of one person to overwrite another person’s reality. Yes I’m afraid this does go on – I would also use the word “brainwashing”.

I am sad to say they are at it again – the team of ENFIELD Mental Health are holding lots of “safeguarding” meetings.   A vulnerable person like Elizabeth should never be put under pressure to attend meeting after meeting with no advocate present. There should always be an advocate present.  All this is happening to my daughter Elizabeth right now as, unfortunately, she is in the “care” of a scheme run by Craegmoor part of the Priory Group.  She wanted to be independent but there are more restrictions than ever before and when you pay for a tenancy within reason you should not be under excessive control – it is more like RESTRICTIVE SUPPORTIVE HOUSING THAN SUPPORTIVE HOUSING.  The scheme is a small scheme situated  just down the road from where I live and consists of six people.     Sadly, when Elizabeth came out from Cygnet on 20mg (one of the most highly dangerous drugs Elizabeth has been on so far) this left her unstable.  Abilify, is manufactured by Otsuka and they sent me an email when I contacted them saying this drug is licensed for Schizophrenia and Bipolar only and should only be given for 12 weeks. Well what about the other diagnoses.  What about if Elizabeth has been misdiagnosed which we all think she has been.  Elizabeth has suffered an adverse reaction on this drug which I have had to report.     It is all down to drug metabolism and the problem is that  Elizabeth cannot metabolise the drugs – that is the problem.  She is multiply diagnosed.

Anyway, I am so concerned as to what is going on right now that I am going to post this to everyone and I want everyone to know which area I live and that is ENFIELD – an area where we have encountered bullying by a team “professionals”.  I am proud to stand up alone against this.  I told my daughter tonight nothing will ever turn me against her.  Not even the nastiest comments that appear in the files.  Other parents should be aware of this tactic by so called “professionals” who do not like you, who act in such a way so as to try to distance/sever contact between you and the person cared for  instead of work together with the family under Open Dialogue.

Sadly we as a family would have benefitted from joining the Open Dialogue UK that has just been put into effect from 4th May through NEL MH Trust but I feel that we have been discriminated against by NHS using “red tape” by saying that we already had a team in place  – well what team?    For the past two years I have had to employ my own team as we have had no care whatsoever.  Care should not be about pushing drug after drug at maximum levels without review.    All I wanted as a mother was to have my daughter on the minimal of drugs but now I can see why they put it up to maximum levels in the hope that this blots out someone’s memory –  no one in the local area would wish to hear that something serious happened under a scheme in the community to my daughter because of lack of supervision and weakened by enormous levels of drugs more than one serious incident has occurred under “care”

Elizabeth is now living in a smaller scheme in the community run by Craegmoor (part of the Priory Group).   In this current scheme it is really designed for someone who is able to stand on their own two feet.  The only thing that makes me happy about this scheme is the residents.  There is a woman there who acts like a mother figure thank God.  I never see staff downstairs but their duties are to take my daughter to the constant safeguarding meetings.  It is a pity that after all this time since her admission on 17 May that not one thing has been provided for her to do and neither was anything provided for over 2 years at home .  I had to provide things for her to do out of my own pocket.

Just to let you know the family currently have had an enormous complaint out against Social Services ENFIELD and this has been “dealt with” by the NHS’s Deputy Leader of Quality.   We are looking forward to another meeting as our complaint has not been properly answered.,

We have Power of Attorney not just myself but other family members not because we wish to control Elizabeth’s life but because we wish to provide for her one day.  She has come out of the system disabled.  Even walking up the road to get shopping is an ordeal for her.  It is a pity this team under ENFIELD have not signed up to  Open Dialogue. Naturally I have no trust in professionals in this Borough because of reading the shocking contents of the files which label me as being “mentally ill” whatever that is?  You can also see how the team tried to set up a MHA assessment for me  through my GP –  I was too busy to attend.  I work, I have a busy life and combine this with caring for my daughter.  I am not with my daughter 24/7 but this is a team who do not seem to care for my daughter and who know nothing about the family.   They just want to control.   They have got past history wrong.  All Elizabeth wishes for is that everyone works together and gets along but this is a team who play on confidentiality to save their own backs.  I am satisfied that I am correct in saying this,  having read so many nasty comments in the files.  There is no accountability.  Most people would not be allowed to get way with this kind of behaviour.

I am so concerned of the recent developments that I feel I should make it public.

At the latest safeguarding meeting Elizabeth told me this evening when I called round with a new chip for her phone she told me she was put under such pressure at the SAFEGUARDING meeting where she is constantly taken that she does not want to go to any other meetings and she was put under pressure by the care coordinator to say the following in a typed letter that Elizabeth would not have done herself as she does not type and these are not her words in any case:

DEAR MUM

I WILL BE GRATEFUL IF YOU CAN VISIT ME ONCE A WEEK ONLY ON SUNDAYS SO THAT WE GO TO CHURCH TOGETHER AND GIVE ME MY ALLOWANCE AS WELL.  I WILL PREFER YOU CALL BEFORE COMING TO VISIT ME AT ………………………………

THANK YOU

YOURS FAITHFULLY

E………..

Elizabeth told me tonight she was “put on the spot”

I have said to her that what if I cannot come on a Sunday.  She then told me that she was put under pressure by the care coordinator accompanied by a member of staff from Craegmoor.

Elizabeth had hand written  a letter to the staff member of CRAEGMOOR reading as follows:

Dear F…………. (not sure how to spell)

“I WAS NOT HAPPY WITH THIS MEETING .  I NEED MY MUM  – SHE’S HELPING ME. I AM NOT WISHING TO TAKE PART IN ANY MORE MEETINGS.

THANK YOU.”

Elizabeth’s own words.  Take note team and especially care coordinator.

I think they may be trying to ban me and I will keep you all informed.  THIS IS NOT WHAT ELIZABETH WANTS AND NEITHER IS IT HELPFUL TO HER.

We have had all of this in the past from Cambian and now this is going on at Safeguarding Meetings and witnessed by a member from Craegmoor – how nasty can you get!   Elizabeth did not type this letter herself.  The wording is not coming from her.  If she did say once a week she was put under pressure and it is DISGUSTING THAT ENFIELD MENTAL HEALTH ALLOW THIS KIND OF THING TO GO ON.

So our complaint (not just mine by the way) is about the care coordinator who has failed to provide any “care” and neither have social services.  They prefer instead to work against the family trying to destroy us all like they have done in the past.   What kind of people are these who work in what should be a  “caring” profession?

I have had to complain recently about the lack of communication leading to Elizabeth being given wrong dosage of drugs at 20mg and not 10. Apparently the care coordinator based at Silver Street ENFIELD does not like to use emails and neither does the Consultant Psychiatrist but instead of sending a letter to Elizabeth they should have copied in the tam at the scheme.

Anyway back to the meeting today, Elizabeth was very upset as she had been put on the spot.  She is multiply diagnosed but I am currently challenging ENFIELD who just do not wish to pay for proper assessments, choosing to ignore the fact that Elizabeth is multiply diagnosed and I have been asking about this for some time now.  There is more than one diagnosis I can see in the files and Aspergers is one of them.   It is absolutely disgusting that ENFIELD do not wish to provide such assessments so I have contacted the National Autistic Society regarding this and I also feel that she suffers from PTSD.

When I visited tonight I asked Elizabeth what she had eaten.    “just a few chips”.   She is likely to go downhill and that is my one complaint.   The mistake in the dosage of medication I would put down to lack of communication from the team at Silver Street as they write letters and do not inform anyone.   If they had properly informed staff at the scheme then this would not have happened.

We as a family are cut out completely and I can see this is AGAINST NICE GUIDELINES.

I think that NICE Guidelines should be enforceable to some extent as it would appear that no notice is taken of them.

The manufacturers of Abilify state clearly no more than 12 weeks on the drug.  Elizabeth has been on this for much longer. and all they have done is change the toxic red dye drug of 10mg that causes tumours in mice and rats to a white tablet again of 10mg.

I feel that Elizabeth would be kept on this drug for life if she is left under that scheme.  At home the team did not wish to revise the drug Clozapine that caused her tongue to go to the back of her throat.

Anyway, it is a good job that I as a mother look into the ingredients of these chemicals thoroughly and am also constantly looking into where there is better care and guess what I HAVE FOUND IT!   I shall keep you all informed as I’m trying to get funding for this..   If it is a manufacturer’s guideline that you should only be on a chemical for 12 weeks as Inspector Brown would say “WHAT THE HELL IS GOING ON” – Sorry for pinching your title Inspector Brown but it is so appropriate for my honest blog.

At the weekend I enjoyed attending Liberty’s AGM.  I really hope I get chosen for my Award nominations  as this will give me a chance to discuss the most shocking abuse going on in the UK to MH and vulnerable people.   Yes, I am in touch with even worse cases.   Good to meet you all at LIBERTY and I support all of your campaigns.  I will be more than happy to help if I can.   I would also be prepared to be filmed and hopefully people will really take notice – there is more than one Winterbourne and I want to bring all this to the public’s attention.

When I called to see Elizabeth tonight she was feeling a bit low.  She can easily get agitated but Dr Joanna Moncrieff has explained to me to say that the drug Abilify is noted for causing Anxiety and Agitation and I remind myself that this is the drug and what it is doing,  not Elizabeth’s character and I said to her today that nothing would ever destroy things between us even if the team have prompted her to say nasty things.  I KNOW WHAT IS GOING ON TEAM –  PLEASE ALSO DO NOT TRY TO ARRANGE ANY MORE MHA ASSESSMENTS VIA MY GP.  I am seeing my GP tomorrow and I will tell him now that never will I attend such an assessment in a million years.  Someone who is a professional said to me that perhaps they should do an assessment on themselves and I could not agree more.

Other people in my family and my carers would like an apology for being called “aggressive” “hostile” –  I have been called a prolific complainant – they failed to name me as “vexatious” .      It is cowardly to label someone behind your back and I would welcome an open discussion with team members on TWITTER in front of everyone.

When I left tonight after seeing Elizabeth she was smiling and happy.   Elizabeth needs help at the moment but hopefully she will be able to get on with things herself one day.   –  there is nothing more controlling than a group of professionals who instead of providing help and support are holding SAFEGUARDING meetings no doubt for the purpose of cutting contact no doubt but now Elizabeth has written in her own words.  This is not a typed letter written by someone else – this is coming from her in handwriting and no way on earth could I have ever forced her to write it:

Dear F…………. (not sure how to spell)

“I WAS NOT HAPPY WITH THIS MEETING .  I NEED MY MUM  – SHE’S HELPING ME. I AM NOT WISHING TO TAKE PART IN ANY MORE MEETINGS.

THANK YOU.”

If all that has been done was  meant to destroy the family I am afraid they have brought the family together –  this is because of all the nasty things that have been said for all to see in the files.

Tomorrow I am going to vote and hopefully take Elizabeth.  According to the letter it says every Sunday!   Just like at Cambian –  phone calls – restricted to once a week – not that I used to phone every night but at a time that I could not call anyway.     How very sad that a team of “Professionals” resort to this kind of behaviour and I understand that my emails have been called “annoying” by the care coordinator.  It could be because I know how to communicate effectively and the best way is to copy everyone in so that everyone knows what is going on.

Today I attended this meeting and took with me file papers – not all as I have huge quantities.

The whole treatment of my daughter Elizabeth and what brought her under services in the first place I hope will be a warning to others.  Those who do not know anything about mental health services and “care”.

It is incredibly easy to come under mental health services and be labelled yourself by a team of professionals who may not happen to like it if you dare to stand up to them and disagree like I have done.

As not one single complaint has been dealt with fairly and I have seen how such complaints are dealt with – internally by those same people who the complaint is about would you believe.  They investigate themselves.  Whereas other people in private sector firms are more likely to own up to anything that is wrong that is not the case under public sector mental health care whose professionals are above the law but not above God thankfully.  I definitely believe there is a God who gives me the strength to stand up against what I would call bullies.

I have read some disturbing things in the files about me that I am considered to be mentally ill and I have been told today that no way can these comments be retracted once they appear in the files however an amendment can be made.   This is one of my complaints that has not been dealt with by the Chief Executive.  I have just noticed that they wanted to do a MHA Assessment on me –  what on earth is going on!   Despite everything I keep going in my life such as it is and I am not on any drugs and because of my bad experience I would not wish to see any doctor other than my local GP.    So they were trying to arrange a MH Assessment on me through my former GP but I never heard anything about an appointment.

I showed the investigator loads of pages of comments and conversations between members of staff trying to call me a vexatious complainant but they could not and had to make do with prolific instead.  This is all so disturbing when like I say no complaints have been properly investigated.

I will tell you all now what my main complaint has been and that is the over-drugging of my daughter that has led to tachycardia and tardive dyskinesia.  She has had a very bad reaction to a drug recently and is now living in the community.  She is nearby to home but today I have had to write my concerns that medication has not been given correctly and was subsequently reduced – it was the higher dosage that caused terrible problems.  I feel justified in complaining that Elizabeth’s physical health has deteriorated due to enormous amounts of concomitantly prescribed drugs.  Imagine being on 800mg of Quetiapine living in the community and expected to engage with staff – on this level of drugs how on earth can anyone function.

So the investigator told me that she could not discuss much with me as she did not have the consent –  this is something the team like to play on however I am more than happy to prove this is not the case at all legally and we as a family are all together despite the way professionals have tried to tear us apart and I can provide documentary proof legally.   My area is a prime example of where the system is completely wrong.  There is no transparency, there is no accountability or openness or honesty.   If my area adopted Open Dialogue then I would take a different view and there would be hope of better communication and fairness to all.   It is very harmful for someone like Elizabeth to be pulled in two directions by professionals who wish that person to choose between Mum and Dad or else have nothing to do with Mum because she is someone whom the team do not like.   When I took Elizabeth to see a leading Hypnotherapist in Harley Street she said it was “outrageous” what these professionals were doing.

The investigator said she would do the response in just two weeks but I did not have time to go through everything with her thoroughly and feel she needs to hear from the many witnesses who stepped in to help me in the absence of any care whatsoever over a period of more than two years.   However I made a point of saying that I would provide any proof she needed that I along with other family members do in fact have consent legally and in the meantime, I have told her to put her response on hold as otherwise such response is likely once again not to be satisfactory in covering the very serious point we discussed today that have NEVER EVER been addressed other than by the words “satisfactory” or “excellent care”.  I would say “far from it”    I showed the investigator the legal papers “Deprival of Medication – Community Care”  .   When I wanted to include some of my loyal carers this was not acceptable but there were many who wished to come along in support.    A meeting only last week was abruptly cancelled without any of us knowing and some people had come a long distance to support Elizabeth and were disappointed they could not attend.

With Bank Holiday coming up I just want to get right away from here.  I hope the weather will be nice as I want to get out of London.

I am seriously thinking of moving now to an area where open dialogue is up and running then perhaps we can be included rather than excluded and we could all be happy then.   Open dialogue done properly like in Finland is the way forward and Elizabeth was talking freely to the professionals from other areas, some of whom were in tears.  It is good to have openness and transparency.   I know there are some decent professionals out there who do care but there are also plenty who are extremely ruthless and uncaring who write very nasty things behind your back thinking you will never be able to get hold of those files but now all is revealed.

Other family members have moved away from my local area and I hope and pray that Elizabeth will get the opportunity to move to an area where she can be near to other family members and where professionals do not seek to sever contact, deprive liberty etc but behave in a decent and kind manner.