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This is displayed by LPFT – what is a just culture exactly? This is completely ridiculous and biased. Just mention a “just culture” to all the parents and carers affected right now and particularly all the patients stuck on wards for years on end whilst Trusts such as this act dishonestly. When you dare to challenge you can expect a response as follows from the likes of Ms Munro who is as unfit to write complaint responses as the doctors who carried out the flawed capacity assessments.

Here is what Elizabeth has described her experience as: “hell on earth”. This is also how parents and carers view matters, those who are affected and those who are ignored. How can there be any accountability whilst those at the top have connections with the Care Qualilty Commission? How can any members of the public have faith in the Care Quality Commission who have produced some very dismissive responses even calling themselves a “business”. I have featured this on a former blog.

CQC Ref MHA-01217-X6F7TO

Date 4th April 2024

Patient Experience Team

Unit 9

The Point

Lion’s Way

Sleaford

Lincolnshire

NG34 8GG

Tel 01529 222265

Email:  LPFT.PALS@nhs.net

Dear Mrs Bevis

The Care Quality Commission (CQC) have asked us to respond to requests you have raised with them and clarify the Trust’s position on a number of points:

You have requested an apology for the verbal threats made by Dr Khokhar where she said “I am banning you indefinitely for inciting your daughter to attack members of staff on Xmas Day”.

Following the incident on Christmas Day 2023, the Trust followed the usual incident reporting and investigation processes, as well as complying with instructions and communication from the Police.  During this period of investigation, your visits to the ward to see Elizabeth were suspended in line with the Mental Health Act Code of Practice 2015 and to ensure the effective delivery of Elizabeth’s care and treatment could be prioritised.  Dr Khokhar accepts that he used the word “indefinitely” and that this could be seen as inflammatory.  It was used to reflect that at the point, an end date to the restrictions could not be confirmed.  However, the letter sent dated 29th December 2023 confirmed that the situation would be reviewed on 25th January 2024.  After subsequent review of the relevant documentation, the visiting restrictions were lifted from the 5th February 2024.

You asked about your invoice for £50 for Elizabeth’s ‘wasted’ phone contract.

As previously explained in an email on 29th Februay 2024, Elizabeth’s phone access was limited for a fixed period of time as part of a comprehensive care plan that considered Elizabeth’s human rights.  This was to ensure the response to her phone use did not adversely impact her engagement with, or the efficacy of, her treatment plan.  This ceased on the 5th February 2024 following a review of all of the relevant factors.  Elizabeth’s phone continues to be kept securely by ward staff and Elizabeth is able to request to use her phone at any time.  In addition, ward staff regularly encourage Elizabeth  to use her phone to maintain contact with family.

We monitor and document Elizabeth’s phone use to ensure that she has fair and reasonable access to her phone.  This details the occasions when she has been supported to use her phone and make calls and evidences that Elizabeth continues to be able to use her phone on request .  On the basis that Elizabeth does continue to use her phone, we would not provide any reimbursement for her phone contract.

You said that Elizabeth’s birthday cake was thrown away.

To ensure that the limited storage space for fresh food brought onto the ward by visitors is fairly available to all patients on the ward, a new process has been put in place.  This is clearly communicated to patients and their friends and relatives when they visit to manage expectations.  The ward also adheres to Trust wide infection prevention and control (IPC) policies relating to food storage and consumption to ensure patient safety.  Elizabeth’s birthday cake did have to be disposed of on 15th February 2024 as the expiry date had been exceeded.

You raise concerns about the size of the visitor’s room and that it was cramped which upset Elizabeth

The family room on the ward is used for visits as it affords privacy and has CCTV available which can be used to review the area, if necessary.  This room is the largest room on Castle Ward used for visitors.

Subject Access Requests

In relation to the Subject Access Requests (SARs) received both for personal data relating to yourself and requesting a copy of Elizabeth’s rapid tranquilisation healthcare records, the Trust’s position remains the same as detailed in the email sent on 11th December 2023.  This is because we are of the view that your request is “manifestly unfounded or excessive” as detailed in Article 12 (5) of the GDPR.

Our Records Management team did note that you subsequently attached a consent form from Elizabeth.  However, this was not the correct consent form to support your Subject Access Request.  Further, we continue to have concerns regarding Elizabeth’s capacity to consent, which has historically remained interchangeable with regards to information sharing.  We also have continued concerns that any information shared may, in turn end up within a public forum which is outside the scope of any consent that we may gain.

We ;have provided a copy of this letter to the CQC.

Yours sincerely

Ann Munro

Patient Experience Lead

Cc  Care Quality Commission (Central)  Citygate, Gallowgate, Newcastle Upon Tyne

NE1 4PA

EXTRACTS FROM MY RESPONSE EMAIL TO MS MUNRO’S LETTER.

Yr Ref   MHA-011217-X6F7T0

Dear Ms Munro

CEO (Sarah Connery) on the Trust’s Executive Board also works/worked as a Specialist Advisor for CQC or The Director of Operations (Chris Higgins) who works/has worked as an Executive Reviewer for CQC

Thank you for your letter of 4 April.   

When you mention “The Care Quality Commission”  asked you to respond.  Who might that be?   Could that be either of two LPFT Board Executives mentioned above by any chance?  To think, all this time so it would appear LPFT have been answering on behalf of the Care Quality Commission in a defensive, almost threatening manner.    What a conflict of interest!   No wonder why none of my complaints have been dealt with satisfactorily and with Mr Higgins as Executive Reviewer for CQC it is also no wonder why you are rated “good”.

How can you have a CEO (Sarah Connery) on the Trust’s Executive Board who also works/worked as a Specialist Advisor for CQC or The Director of Operations (Chris Higgins) who works/has worked as an Executive Reviewer for CQC however I am talking about LINCOLNSHIRE PARTNERSHIP TRUST WHO APPEAR TO HAVE THEIR OWN LAW TO SUIT THEMSELVES.  

I would like your opinion on this conflict of interest, Ms Munro.

Regarding your third paragraph I would point out this was the third time Police were called unnecessarily, all done for the purpose of threatening and intimidation however Section 9 statements were done to back the truthfulness of events on Xmas Day to cover our backs.  What a waste of Police time.  It is obvious that the restrictions are still ongoing with HCA’s/nurses writing notes during visits (no doubt of an adverse nature).  This is bullying to the extreme to stop visits and threaten to do so indefinitely but still continue with restrictions.  You might like to write a statement t explaining exactly what you mean by “suspension in line with the MHA Code of Practice”:   Please also explain why I am being treated differently to everyone else which is discrimination.

Here is the MHA Code of Practice relevant points which were not even quoted in full as a reason to ban my visits.

MHA CODE OF PRACTICE

Restrictions or Exclusion on Clinical Grounds

11.14

From time to time, a patient’s Responsible Clinician may decide, after assessment and discussion with the MDT, that some visits could be detrimental to the safety or wellbeing of the patient, the visitor, other patients or staff on the ward.

In these circumstances, the Responsible Clinician may make special arrangements for the visit, impose reasonable conditions or, if necessary, exclude the visitor.   In any of these cases, the reasons for the restriction should be recorded and explained to the patient and the visitor, both orally and in writing  (subject to the normal considerations of patient confidentiality). Wherever possible 24 hour notice should be given of this decision.

Restriction Or Exclusion on Security Grounds

11.15

The behaviour of a particular visitor may be disruptive in the past, to the degree that exclusion from the hospital is necessary as a last resort.  Examples of such behaviour include:

  • Incitement to abscond
  • Smuggling of illicit drugs or alcohol into the hospital or unit
  • Transfer of potential weapons
  • Unacceptable aggression
  • Attempts by members of the media to gain unauthorised access

11.16

A decision to exclude a visitor on the grounds of their behaviour should be fully documented and explained to the patient orally and in writing. 

Where possible and appropriate the reason for the decision should be communicated to the person being excluded (subject to the normal considerations of patient confidentiality and any overriding security concerns.

LPFT ARE IN BREACH OF THE MHA CODE OF CONDUCT RE: THE FOLLOWING POINTS:        

may make special arrangements for the visit” :    No special arrangements were ever made and contact severely restricted by taking the phone away that affected the entire family and was detrimental to Elizabeth – depriving her of her phone deprived her of contact with everyone else in the family and was done primarily to punish me and deprived Elizabeth of listening to her music.  This is in breach of human rights and totally degrading and undignified to Elizabeth.. 

“the reasons for the restriction should be recorded and explained to the patient and the visitor, both orally and in writing”.:  None of this was done properly explaining the grounds mentioned below for banning visitors.  No Impact assessment carried out as should have been.

“subject to the normal considerations of patient confidentiality). Wherever possible 24 hour notice should be given of this decision”  This was not done.  The pre-arranged visit was cancelled on the spot whilst Elizabeth stood the other side of the door –  absolutely degrading and totally cruelty to do this without any notice.   Nursing staff acting ultra vires upon orders at Executive level and against their own code of conduct.

None of the above was done properly and also LPFT failed to carry out an Impact Assessment which LPFT is supposed to do under NHS Guidelines and this should have been done on myself, on Elizabeth and a copy sent to the Nearest Relative.  LPFT are therefore in breach of NHS Guidelines.  Here below in bold are the justified reasons to completely ban visitors according to MHA Code of Conduct.

  • Incitement to abscond
  • smuggling of illicit dugs or alcohol into the hospital or unit
  • Transfer of potential weapons
  • Unacceptable aggression
  • Attempts by members of the media to gain unauthorised access

None of the above apply in my case.

Dr K cannot very well deny threatening me with an indefinite ban as this was witnessed.   Having such a ban has had a detrimental affect on my health.  Elizabeth’s face is covered in marks where she is distressed and has been self harming and has said on more than one occasion she no longer wishes to live which in turn affects my health. The missing of meals has continued beyond the last safeguarding and had happened constantly at Ash Villa in the past yet nothing was done.   It is bullying to the extreme to ban visitors and that is the tactic that LPFT adopted.    My visits were suspended on none of the grounds above.  Elizabeth’s care and treatment has been atrocious.    She has been missing meals, isolating in her room because she cannot stand the noise.  She has been deprived of proper pathological tests and nothing has been arranged as regards Sheffield as I have checked.    There is no way a MH team can do proper pathological observations and have been filming my daughter when she is having fits against her wishes.  This is an absolute disgrace.   The way the MCA has been abused is another disgrace on the part of LPFT who enlisted the assistance of the council in this respect at County Court that lasted months and months on end.   Human rights are non existent under LPFT and have never taken into account of. My daughter’s human rights are being dreadfully abused.    It is not true when you state visiting restrictions were lifted from 5 February 2024.   Restrictions are very much ongoing and visits are not of quality time but intrusive and degrading due to constant supervision.  I am being discriminated against because other family members do not have 2-1 restrictive visiting with members of staff writing notes. The restrictions still very much in place clearly have a detrimental affect on my daughter who is treated like a prisoner.  She reacted on Xmas Day to staff taking notes constantly.  Even on Xmas Day, human rights were ignored by LPFT.  How would any of you like this kind of treatment?  It is breach of Art 8,  Art 5 and Art 3 HRA.   Police time was wasted on Xmas Day and Elizabeth was thrown into seclusion and rapidly tranquilised when she became upset by a crowd of “professionals” waiting outside the visitor’s room who grabbed hold of her because she had shouted at the lady writing notes because it was totally distressing to her.    

There have been two accidents apparently according to Elizabeth, one at Ash Villa and another on Castle Ward where she lost balance or hit her head badly.   Why wasn’t anyone in the family notified?  

Because we pay a phone bill each month and Elizabeth hardly gets any use of the phone it is only fair that LPFT compensates for this.  The bill now stands at £60 for your information and I request settlement of this amount to Elizabeth as already advised.    Every month she is restricted with her phone I am adding on to that bill.  Also under Ash Villa the phone was taken away for weeks on end making it difficult for the entire family to get through and for Elizabeth to be able to speak to family members.    The reason for this was because Elizabeth kept calling the Police in distress.  It says so in file papers.

Elizabeth’s phone continues to be kept securely by ward staff and Elizabeth is able to request use of her phone at any time.”  That is in breach of human rights.   Totally degrading treatment –  shame on you LPFT!    Is this care?   or rather is it abuse of a vulnerable person and their rights –  it should be the least restrictive care under the MH  LPFT are abusing patient’s rights and if this is just my daughter then this would also come under the Equality Act 2010.   No other patient is being treated in such a degrading manner as my daughter.  It is not the point that she is encouraged to use her phone.  She is not at risk from anyone in her family and therefore the restrictions are excessive and the kind of thing that would apply to a restricted prisoner not a patient under the MHA.

LPFT haven’t got a clue when it comes to human rights and this is why I am copying in the British Institute of Human Rights.   To keep the phone locked away constantly is a disgrace and still ongoing to date.   Elizabeth does not like the phone being monitored and she expressly said she did not want to be filmed so why has this just gone ahead?

You clearly do not know the meaning of “fair and reasonable” .  Elizabeth is a grown adult of 37 years of age and does not need support to use her phone.   

The Birthday cake was not given to Elizabeth on her Birthday and should have been given to her immediately as I specially came back to the ward.     It was her Birthday and no respect was given to this special occasion.   Elizabeth did not even know I had brought her the Birthday cake so once again there was no communication.   At Ash Villa all her presents were just dumped in a storage room.  She did not know they existed.   I brought another cake to make up for this and again Elizabeth was not given it.   The second time it was not fresh cream and I assume thrown away.

Yes, the visitors room is cramped when 2 people are listening to every word and crammed into the room.  It is undignified and unpleasant to say the least.   How can you possibly say the visitor’s room affords privacy in the circumstances.  You just have no insight into the situation.   The rooms are all small in nature – not much difference in size but because of the restricted visiting and note taking going on (no doubt adversely against me), it is an unpleasant degrading experience that even a prisoner does not have to endure.   In a prison, warders walk up and down but give respect to prisoners at visiting times to have privacy to see their families.   The ward is worse than prison and the treatment is degrading, abusive and aimed no doubt as punishment towards me, but inflicting upon my vulnerable daughter.

Subject Access Requests.

I know LPFT do not want me to see any records especially not the copy of the CP11 rapid tranquilisation log.  All the files and notes being taken will be requested through ICO.  You have no right to refuse such request from both of us.

Your capacity assessments are totally flawed.    I want full safeguarding done externally because in the past safeguarding under LPFT resulted in “I am satisfied” response.  The safeguarding should be especially looking into the flawed capacity assessments.   I am now a BI assessor – everything LPFT has done is wrong.  Your capacity assessments are not fit for purpose.   LPFT have abused the MCA.   It is most certainly of public interest that everything is addressed openly and transparently.

Finally, please ensure that my daughter gets all the pathological tests she needs under Sheffield as soon as possible as this is another area of safeguarding that needs to be thoroughly looked into.    I believe safeguarding should be done on the deprival of medical referrals to my daughter for her physical health and referrals need to be made to spend a full week under Sheffield for everything she needs, including Endocrinology

I have to say, I have never encountered such bullying in all my life and such dishonesty.   You have been rating yourselves as good yet there are tremendous conflicts of interest I have witnessed at Executive level.

The capacity assessments are useless without referral to Sheffield and according to Professor Keith Brown everyone should be included (including myself) with the capacity assessments undertaken.  My daughter most certainly has capacity and she is being abused and no-one cares otherwise this situation would not have been left to continue for so very long.

Here are the guidelines to filming patients against their wishes:

https://www.gmc-uk.org/professional-standards/professional-standards-for-doctors/making-and-using-visual-and-audio-recordings-of-patients/principles

Here below is the book you read on Mental Capacity that LPFT have chosen to ignore. 

Demystifying Mental Capacity: A guide for health and …

Amazon UKhttps://www.amazon.co.uk › Demystifying-Mental-Cap…

Keith Brown. Editor. Demystifying Mental Capacity: A guide for health and social care professionals (Post-Qualifying Social Work Practice Series). First …

Mental Capacity Act 2005 :

(Section 4):  Requires that patient to be regarded as having capacity until evidence ascertained as to how that capacity is impaired.

(Section 4) (1) (a) and (b): “The Prohibited Step” Decision maker should not draw conclusion on capacity from patient’s age, appearance or on a condition of his/hers or an aspect of behaviour which might lead others to make unjustified assumptions on what might be in his/her best interests.

(Section 4) (2): Decision maker should try to identify all issues most relevant to the individual relating to particular decision (para 3, Main Code of Practice).

(Section D): inconsistencies of witness statements on capacity.  Capacity assessments not conducted as required by S1 MCA 2005

Masterman-Lister v Brutton & Co [2003] 1WLR 151 

“a party to legal proceedings is capable of understanding, with the assistance of such proper explanation (in broad terms and simple language) from legal advisers and other experts as the case may require, the matters on which their consent or decision was likely to be necessary in the course of those proceedings.”

Dont bother providing a copy to the CQC as LPFT are the CQC defending yourselves and rating yourselves as good when in actual fact you should be rated as “Requires improvement” or “inadequate” and you can’t even offer an apology for the shocking abuse of my daughter and her family in terms of human rights which you clearly have no insight of.

My final question to you is have LPFT applied for DoLs and in the meantime waiting to hear from the court because your intention is to dump her into a care home out of area in say Yorkshire and restrict contact forever?    Why is she still held without leave under the MHA for over 2.5 years deprived of family contact and proper physical healthcare?   I would like to hear from any of you in this respect as this is absolute abuse and breach of the law and the question needs to be asked about the validity of the entire section that is ongoing and the dishonesty in arriving at such decisions to hold her a prisoner indefinitely.    My daughter is one of thousands trapped under the MHA by appalling Trusts such as LPFT and dishonesty too on the part of Councils who do not wish to provide any support whatsoever in the community.  In fact I was not asking for anything of this area which brings me to the question of residency status and whether that responsibility still remains the responsibility of Enfield?

Yours sincerely

Susan A Bevis

Making and using
visual and audio
recordings of patients

https://www.gmc-uk.org/professional-standards/professional-standards-for-doctors/making-and-using-visual-and-audio-recordings-of-patients/principles

The above link may be of interest to those who like myself am not happy at hearing from Elizabeth that her thoughts and wishes have been ignored as regards being filmed. LPFT have assessed Elizabeth as having no capacity in capacity assessments that are highly contested, just like the MRI scans they did (United Lincolnshire Hospital Trust that came out normal) under their 1.5 Tesla Scanner that failed to pick up on details shown in the private scans I had done by S G Radiology. The Neurology department suggested the filming by the MH team but after all these years and neglect for the past 2.5 years under Lincolnshire I now want proper assessments on a properly equipped Neurological Ward carried out, particularly since Elizabeth is suffering from life threatening fits that end with her being rapidly tranquilised on every occasion. I have also questioned why it is necessary to inject her every time following a fit. Is this what is done for everyone that has epilepsy? What I would like to see is that she is sent to Sheffield not just for the Tesla 3 MRI scans but under THEIR observation for at least a week to undergo extensive tests. I am going to suggest this to my MP as I have not yet had a reply by the Neurology department I have just written to. I am far from happy at the filming as the MH do not have correct monitoring equipment, unlike a specialist neurological ward would in Sheffield. I also would like the cancer scans re-done, having seen an article where a woman died because nothing was picked up under a Tesla 1.5 scanner. I have been asking over and over again for Elizabeth to be referred to an Endocrinologist as again, I have proven by way of private tests there is Endocrine dysfunction. I have suggested patch tests which I explain later in this blog.

On the subject of filming patients there is disturbing technology to do this which is very controversial and I am not in favour of this as it infringes on a patient’s privacy. Elizabeth clearly said no to filming by the MH team and this was not respected by LPFT. She has capacity to decide. The disturbing technology to film patients is provided by https://www.oxehealth.com/ – It should be up to the patient to decide surely on whether this is OK with them. Not everyone will be in favour of such technology being used but once again unfortunately if someone like Elizabeth is deemed not to have capacity and everything decided upon as Best Interest once again a vulnerable person’s human rights are being abused. I believe only as a last resort should the new technology be used.

Turning to Mental Capacity and the flawed assessments – I totally dispute the these three capacity assessments done for Elizabeth to try to coerce her into my displacement as the nearest relative but Elizabeth did not wish to engage and said things like “no comment” – “it is nice weather today” and “my mother is the nearest relative”. For anyone also questioning their son’s/daughter’s capacity, a very good book to read is none other than what the Trusts’ currently use as their Guidance, especially when it would appear that Trusts and councils are abusing their powers in a dishonest manner. That Guidance comes in the form of “Demystifying Mental Capaity Guide for Health and Social Care Professionals which I have just ordered a copy of. What is so very wrong is that some Trusts, when carrying out capacity assessments deliberately to exclude everyone, especially mothers who happen to be the nearest relative who should have been invited to the capacity assessment and not excluded. I am now a BI assessor myself so I know that things have been done wrongly. Elizabeth’s Neurologist should also have been included. Details of these facts are contained in this guide which I intend to read indepth.

Demystifying Mental Capacity: A guide for health and …

Amazon UKhttps://www.amazon.co.uk › Demystifying-Mental-Cap…

Keith Brown. Editor. Demystifying Mental Capacity: A guide for health and social care professionals (Post-Qualifying Social Work Practice Series). First …

 Rating: 4.1 · ‎ 7 reviews · ‎ £26.99 · ‎ In stock  

I am Professor Keith Brown, the Founding Director of The National Centre for Post-Qualifying Social Work and Professional Practice at Bournemouth University (NCPQSW). Currently I am an Emeritus Professor at Bournemouth University 

The National Centre for Post Qualifying Social Work was awarded the Chartered Institute for Personnel and Development prize for the Best Example of a Continuous Professional Development programme in the UK. In 2010, the Centre was winner of the National Training Award for the Best Provider of Education/Training in the UK. In 2017, we received the first ever Chartered Trading Standards Institute (CTSI) ‘Institutional Hero Award’ for service and research into preventing financial scams. In 2020 the social work department at Bournemouth University was the Number 1 department in the Guardian League Table for the UK. 

I have been a recipient of the Linda Ammon Memorial Prize, which was awarded to the individual making the greatest contribution to Learning and Education in the UK, by the former department of education and science.

Currently I am the Chair of the NHS Safeguarding Adults National Network and a member of the National Mental Capacity Leadership Forum. I am also the chair of the Worcestershire and West of Berkshire Safeguarding Adults Boards 

I am the series editor for the Sage post qualifying social work series and have published over 35 texts in the social work field 

I continue to work with the National Trading Standards Scams Team in the area of fraud research and development and I am a member of the Financial Vulnerability Taskforce 

I am the series editor for the Sage/Learning Matters ‘Post-Qualifying Social Work’ series of text books, which has sales of over 75,000 copies in the past 5 years. I have written over 35 text books and published numerous research reports in the field of Social Work. I regularly speak at national and international conferences and am currently leading the national research into financial scamming on behalf of The National Scams team and CTSI. We are working together to not only reduce the risk of financial scamming but to raise awareness to organisations and the public so that they too can join the fight against scamming.

Perhaps he can be invited to LPFT to speak in light of their flawed capacity assessments. I have today tried to contact Professor Keith Brown as I am keen to discuss further the 3 flawed capacity assessments with such a renowned leading expert. Just like human rights being ignored, I am astonished at the lack of knowledge under Lincolnshire Partnership Trust and feel that wrong capacity assessments could also affect all the patients, not just Elizabeth. The book above is the Guidance that the Professionals concerned with assessing capacity should be using in any case and I will advice Lincolnshire County Council too of this fact. Anyway as a BI assessor myself I cannot possibly accept Elizabeth’s capacity assessments for two reasons:

  1. In the context of mental capacity, causative nexus looks at whether an individual’s mental incapacity was a direct and significant cause for a particular action or decision. The aim is to determine whether the mental incapacity had a material influence on the outcome in question. Once you have identified an impairment or disturbance in the functioning of the mind or brain, it is important to decide whether the inability to make the decision is because of this impairment. This is known as the “causative nexus” (PC and NC v City of York Council [2013] EWCA Civ 478).

2.Mental Capacity Act 2005 :

(Section 4):  Requires that patient to be regarded as having capacity until evidence ascertained as to how that capacity is impaired.

(Section 4) (1) (a) and (b): “The Prohibited Step Decision maker should not draw conclusion on capacity from patient’s age, appearance or on a condition of his/hers or an aspect of behaviour which might lead others to make unjustified assumptions on what might be in his/her best interests.

(Section 4) (2): Decision maker should try to identify all issues most relevant to the individual relating to particular decision (para 3, Main Code of Practice).

(Section D): inconsistencies of witness statements on capacity.  Capacity assessments not conducted as required by S1 MCA 2005

Masterman-Lister v Brutton & Co [2003] 1WLR 151 

“a party to legal proceedings is capable of understanding, with the assistance of such proper explanation (in broad terms and simple language) from legal advisers and other experts as the case may require, the matters on which their consent or decision was likely to be necessary in the course of those proceedings.”

The flawed capacity assessments all three of them (2 done by doctors, another by a social worker) were simply done to get rid of me as Nearest Relative but not just that, but to take complete control of everything, taking away Elizabeth’s autonomy and I do not like that one bit. I am having no other choice but to challenge all this right now and everyone should be aware of this which is why I am sharing all this information as it is important that vulnerable people and their families are treated with the utmost integrity and fairly which is surely what the MCA and MHA was intended for but unfortunately, some professionals are abusing this. Therefore everyone should look into matters thoroughly as regards capacity as I have done and get a copy of the wonderful guidance by Professor Keith Brown to show to their Trusts and Councils who will not be able to argue with their own guidance they are supposed to follow.

EASTER WITHOUT ELIZABETH:

Easter was once a joyous occasion, just like Xmas in the past but not any more thanks to Lincolnshire Partnership Trust who have stolen Elizabeth holding her a virtual prisoner without leave. I therefore cannot celebrate any of these occasions any more and even feel guilty going out places. I constantly think of Elizabeth held a virtual prisoner on a never ending section and deprived of a life of her own in what is supposed to be “appropriate care”. It is NOT appropriate as she is going downhill through lack of exercise and fresh air and contact with her family especially with the uncertainty of what will happen to her and threat of being sent a very long distance away from home and family to for example W Sussex and Yorkshire. I have written to Mr John Turner of the ICB about this.

I did not visit Elizabeth over Easter. I had hoped that others in the family would as I knew they were being treated differently to myself. Elizabeth’s Sister had asked to take her out to the Carlton Centre where Elizabeth thoroughly enjoyed herself during the only bit of leave ever given under Dr Waqqas Khokhar before be banned all leave and visits and imposed restrictions on phone calls which are still ongoing because you cannot just get through and this is affecting the entire family and a contract is paid on the mobile phone by the family. Elizabeth’s request to take her sister out was refused.

Elizabeth’s sister was disappointed she could not take her to the Carlton Centre which is just around the corner from the hospital. Elizabeth sister was staying with me over Easter but it was not a family occasion without Elizabeth. It is the ultimate punishment to take her away and imprison her, when it is entirely unnecessary. Plus she has a home of her own now which I provided.

LPFT should have carried out an impact assessment on myself, Elizabeth and copy given to the Nearest Relative, her sister who was found to be more suitable under NHS Guidelines but nothing was ever done about this.

Elizabeth was not well when her sister visited and it was described to me her appearance which was not good and the fact that she could barely keep her eyes open. She has started to miss meals again and will not leave her room just like at Ash Villa. They do not seem to understand she hates noise, she cant stand bright lights and does not like crowds either. The alarms are constantly going off on the ward and this is supposed to be “appropriate” care. It is most certainly not the appropriate environment to get well but I think they are deliberately letting her go downhill physically and mentally so she becomes a ‘vegetable’ because they want to put her into a care home out of area under DoLs for the rest of her life, restricting contact forever to her family for convenience purposes because the ICB is doing nothing about providing anything at all in the local community – not that they would have to provide much. She has a lovely home – a bungalow and where it would be much cheaper and she could make a recovery in the correct environment. It is not my local area (voted one of the best nationwide to live in) that is the problem it is LINCOLNSHIRE PARTNERSHIP TRUST AND THE ICB AND LINCOLNSHIRE COUNTY COUNCIL. It was never my intention to not want to work with professionals but it is the professionals who have behaved in such a way that they have abused the law and human rights. There is no accountability as the Executives on the Board have conflicts of interest that extend to the CQC.

I later found out that the reason Elizabeth was so tired was because she had been injected following an episode on the ward yet again. I dont know why staff feel the need to inject her after ‘an episode’ as I see this as being totally unnecessary and Elizabeth has said this is not what she wants.

My visit to see Elizabeth took place Wednesday. Elizabeth said she had missed my visit over the past week and that it was a long time since she saw me but I told her that I thought it would be nice for her to see her sister alone and had hoped that she could take her out as the punishment is not extended to other family members, just me.

I usually get a list of things that Elizabeth wants me to bring her. I had a dentist appointment that day so fitted in shopping in the Sleaford area before driving to Lincoln.

Elizabeth has started to scratch and rub her face like once before. This she was not doing before we moved to this area. I assume she does this out of sheer stress and she told me that Dr Khokhar was trying to encourage her to come out of her room but she did not want to and explained her reasons. I then turned to the young HCA making notes. I mentioned that it was very bad that Elizabeth had no breakfast, no lunch and that this problem was reoccurring. All I heard was that she had tried to encourage her to get up for meals. It would appear frequent injections are being given which I feel is the reason she cannot get up for any meals and just stays isolating in her room just like at Ash Villa to avoid people, noise, bright lights. I notified Adults Safeguarding again out of concern. It is after all risky for her to miss meals which makes her susceptible to infection, strain on her heart and liver when she restarts eating. Monocytes responsible for fighting off infectious pathogens retreat back into bone marrow if too many meals are missed. Just like the lack of oxygen during sleep this will combine to make her ill. Monocytes protect against cancer and heart disease by stopping pathogens getting access to the heart. When I asked if they put aside meals that she missed to re-heat I was told this was not done.

I have just written the following emails about this and included the CEO of the Integrated Care Board, John Turner.

It is a bad the way Lincolnshire Partnership Trust cancelled all physical health tests upon moving as being unnecessary, despite the discharge note pointing to “abnormal findings on scans”. It is even worse that they have also refused Endocrinology referrals as the skin irritation and sebaceous cyst reveal there could be Endocrine problems and besides I already proved this in private tests years ago.

 Dermatologic manifestations of endocrine disorders – PMC

National Institutes of Health (NIH) (.gov)
https://www.ncbi.nlm.nih.gov › articles › PMC5682371
by M Lause · 2017 · Cited by 160 — The first diagnostic step includes measurement of serum thyroid-stimulating hormone (TSH) and free thyroxine (FT4). If laboratory

I am going to write to my MP Victoria Atkins about this and also no sign of the Sheffield appointment – I feel this should be at least a week on a Neurological ward and also to carry out Endocrinology tests – all could be done at Sheffield who have the up to date scanners and equipment, unlike Lincolnshire. I have heard of some patch tests that can be done as I am concerned regarding the state of Elizabeth’s face which in parts is red raw due to scratching. There is obviously either allergy or related to the Endocrine system just as the sebaceous cyst and I am keen now for her to see an Endocrinologist – how many times do I have to request for this referral. I cannot even trust the cancer tests done last year as they do not have the right scanners.

Anyway I am now going to see what is going on by contacting Sheffield.

Royal Hallamshire Hospital

Endocrinology and Metabolic Medicine

0114 226 8680

I wrote to my MP only yesterday but definitely more than just the scans are required here in light of the neglect of essential appointments over the past 2.5 years.

I will let you all know how I get on with this.

FIRST, THE POST OFFICE SCANDAL, THEN WASPI BUT THE GREATEST SCANDAL STILL TO BE EXPOSED ARE THE THOUSANDS OF VULNERABLE PEOPLE TRAPPED MH FOR MANY YEARS ON END IN UNSUITABLE SETTINGS, DEPRIVED OF MEANINGFUL CONTACT WITH THEIR FAMILIES , DENIAL OF PHYSICAL HEALTHCARE REFERRALS, HELD WITHOUT LEAVE ON NEVER-ENDING SECTIONS.  

There is also the matter of conflict of interest at Board level with those at the top working for CQC which is conflict of interest.

Christopher Reid

<Chris.Reid@parliament.uk>;

victoria@victoriaatkins.org.uk victoria@victoriaatkins.org.uk

Dear Mr Reid

It is a disgrace that senior people within the ICB and LPFT and even ULHT are working for Care Quality Commission. It is no wonder why no complaints are dealt with properly.

I am most concerned about this and something should be done about it.

Yours sincerely

Susan A Bevis   POA and Litigation Friend.

It is now 2.5 years since the imprisonment of my 37 year old daughter under Lincolnshire Partnership Trust.  When I first moved in 2021, I cared about what they thought and was keen to get on with professionals, working together and to have a fresh start in the right environment – this is what I hoped for but that was never Lincolnshire Partnership’s Trust intention or that of Lincolnshire County Council.   The area where I live has just been voted one of the best areas in the Country to reside. There is a blue flag beach status with nature reserves surrounding my home.  Such natural environment had proved beneficial to Elizabeth before when she had wonderful care privately provided on the Isle of Lewis.  Elizabeth adores animals particularly birds (pigeons). She has a home of her own which was my first priority to provide. I moved because Elizabeth was just left to go downhill under Barnet Enfield and Haringey MH Trust, another dreadful area whose CEO is Jinjer Kandola.   

However moving was disastrous. I could not get her treatment continued in the community then came the bullying from certain professionals under “safeguarding”, whose priority was to get rid of me as the Nearest Relative. I was falsely accused of buying too many takeaways, when Elizabeth had turned to others; I was accused of being neglectful towards her physical health and being incapable of caring for her when in fact I had been her only carer in the community for six months prior to moving to the new area without any support in place.

The Team that had failed to provide anything in the community was (Enfield Community Rehab Team). We had a meeting with them prior to moving but could not give a definite decision as Elizabeth had not seen the new area. She was not on a section prior to moving but when we did move and confirmed she wanted to stay, they were advised she was not coming back and was immediately registered with a new GP.

It was someone called Hannah (former area)  from Enfield Community Rehab Team who spoke with the new area and recommended a MHA assessment. The followed all the files full of nasty comments and inaccuracy from Enfield who unfortunately remained responsible for s117 aftercare when they never provided any care within an independent council flat despite promises.   I had tried unsuccessfully to get adaptions done in that flat because Elizabeth could utilise her bath but this proved impossible.   All that was supplied was the fortnightly depot but they were reducing it every six weeks.

It was upon trying to get treatment continued then followed interaction with a new new social services team and we found ourselves in an even worse position. All sorts of allegations were levied mainly regarding the medication, then towards taking the POA putting me under investigation for months on end and then worse was to following with assumptions on “no capacity”, Elizabeth assessed for one section after another, then court papers produced. With no services up and running and boxes everywhere having just moved, the last thing we wanted was yet more challenges but having acquired former files, where all sorts of nasty things had been written, these file papers were simply taken on board and we had two areas to deal with. Despite registering with a new GP they failed to refer her correctly to MH services within the new area. Again little did we know that most of the services were the other side of the County. Despite being given details of everything the treatment was not continued despite all efforts and I was advised to take Elizabeth to urgent care where I thought she would see a doctor and could come home with the treatment arranged but it was not that simple. There followed months leading to years of the most restrictive incarceration ever experienced.  

I was accused of avoiding social services who apparently wanted to extend the section and assumed I would object. I had commented previously that the stress of going through court yet again, having suffered a stroke but this was mocked by more than one of these social workers.   Our treatment previously was ruthless and we are not alone in experiencing what amounts to bullying and blame culture that can effectively destroy families. That is out experience of social services apart from two who worked with the family when I was a carer for my father with Alzheimers. I have come across dishonesty in file papers and that presented to court even. There was mentioned that an attempt on her Elizabeth’s life was made whilst Elizabeth was in my company upon moving. In fact we were staying in a guest house whilst I had to sort out problems left by former tenants as the house was once two flats.  Elizabeth commented more about her distress on a dormitory ward where she could not stand the noise and tried to gouge her eyes out.  She had to be moved into a side room so she explained.

There was safeguarding instigated by various nursing staff against me followed by an investigation from Public Guardian Office for psychological abuse so I was blamed but the Public Guardian office found in our favour, an investigation which took months on end to conclude.

At the same time there was ongoing litigation for displacement of NR ongoing for months on end and all it took was disagreement regarding treatment to be found “unsuitable” but for months on end noone was safeguarding the wellbeing of Elizabeth on a ward where other patients had reported she was being picked on and constantly injected during the night. She would isolate in her room during the day and be awake all night, there came all sorts of allegations against me when heavy restrictions were put in place and threats to displace me as the NR and such allegations were put in letters following two occasions when I have turned up to visit and the visit was refused. The hospital had no end of CCTV yet no evidence could be produced to back up all sorts of nasty comments and when one member of staff yelled out “you have just assaulted a member of staff” whilst standing outside alone under CCTV I had asked for the footage which showed nothing.    Elizabeth had no leave granted for months on end, with visiting supervised 2-1 and phone taken away because she kept calling Police and Emergency Services.    The only people safeguarding Elizabeth were the patients themselves, one of whom said she slept with her door open. Collectively a group of patients reported their concerns to a HCA. that  “night staff were picking on her”.  When asked who I was told “the vast majority”   I was also told “what they are doing is institutionalising her”.   “She is being overdrugged and goes into the seclusion room with a tray full of needles”    “they are picking on  her for the slightest thing such as when she threw some clothes out of her room in the corridor.”   During this time all physical health appointments (to see a Neurologist previously arranged before moving) were cancelled by Dr Shahpasandy and Dr Afolabi as unnecessary.  The new GP recommended I took her back to London for the Neurologist appointments as the waiting list would be very long but I was not allowed to. Three capacity assessments were carried out by two doctors and one social worker that were seriously flawed and failed to take into account Principle 4.   Elizabeth contracted covid twice and family not immediately advised.  Elizabeth was not at all well when put under pressure by management, nursing staff and Mr M to participate in such assessments and the line of questioning was quite shocking all geared to succeed in their goal of displacement and trying to get a vulnerable patient to say negative comments but this tactic backfired in the end.   Eventually another family member was appointed Shame on the doctors who carried out these assessments and noone was ensuring that appropriate care was being provided when conditions were described as squalid.   The doctors under this hospital were reliant on so called “normal scans” going back to 2015 but when it came to my attention her doctor did some brilliant research into the Limbic system I had asked if Elizabeth could have the tests done due to what was written on the discharge note from Enfield but nothing was done about this. Elizabeth was treated like a virtual prisoner and I was in receipt of intimidating letters from the Ward Manager accusing me of being aggressive, intimidating but there is nothing more threatening than calling Police which occurred more than once.   Elizabeth’s treatment was dreadful under this hospital. Denied exercise and meaningful family contact and not treated the same as other patients.   The drugs were raised to double I assume this was whilst the capacity assessments were taking place.    There seemed to be huge conflict of interest at Board Level in regard to their association with CQC.

There followed a succession of other doctors, last of all being Dr TG who did allow some leave which went very well. Elizabeth was then transferred to Cygnet, Durham, then onto Ward 12, which time she was having regular seizures which originated from Ash Villa. There was also a cancer scare and appointment made, the outcome of which was “normal”  –  It is disturbing that people’s lives are put at risk when 1.5 Tesla scanner do not detect everything clearly and Tesla 3 scanners are only within teaching hospitals.

Because Elizabeth could not stand the noise on wards she spent much of her time isolating in her room and lying in bed during the day.  Apparently her room was next to the seclusion room which must have been incredibly noisy and she was clearly being treated very differently to other patients who were allowed more freedom. Other patients described H/C assistants snatching water away when drinking, food away when eating, constant injections and screaming in the seclusion room.

Elizabeth reported she had muscle weakness to entire body due to lack of exercise.  

During a very short period of time unrestricted leave was granted within local area surrounding the hospital then extended to 6 hours which was lovely.   Wherever Elizabeth has been in these dreadful institutions, the surrounding areas have been beautiful and what is so sad is nothing is right about the treatment of my daughter and so many others held as virtual prisoners, deprived of leave and isolated from their families.   During 6 hours I was able to take Elizabeth out to show her the local area and there was never any trouble.    Dr G began to give a bit of leave to come home but the awful thing was it was restricting by having to see the Crisis Team and whenever this was arranged Elizabeth would get worked up and anxious, her fears stemming from previous experience of former area. It was wonderful to be able to spend time with Elizabeth and to have her home.  We would go shopping, she would cook meals at home, we would go out to some nice places and on one occasion I had taken Elizabeth to have a private MRI scan because I was concerned that all her appointments had been cancelled as “unnecessary”. The private scans revealed what looked like a cavernoma and lesions and it was only then that LPFT felt obliged to have more scans done, Finally a referral was apparently been made to see a Neurologist.

Now a prisoner for months on end under Dr W K ,  Elizabeth appears to be really going downhill.  Her face is full of marks where she is self-harming once again, she is denied leave,  she is denied meaningful family contact, she has had her phone taken away, put in the locker and when she does phone she is only allowed supervised calls with 2-1 supervision and the carer’s champion is often called upon to supervise the visits.   She is denied exercise, fresh air on a daily basis. There is not always staff available to take her to the shop or allow her to have the phone in order to supervise. She is missing home, she is missing her cat, she has seen nothing of the beautiful City of Lincoln. It has been like going backwards the way she has been treated.

Elizabeth is of no risk to others and although her face is red raw with marks and what follows seizures is always rapid tranquilisation.

At Ash Villa, she was constantly missing meals going without all day isolating in her room.  Here on Castle Ward same, with at one time virtually daily injections and a new drug introduced namely Procyclidine (for Parkinsons) and then they tried to give Aripiprazole orally to counteract the high prolactin levels but I have found out that Aripiprazole does not counteract high prolactin levels. This is also a drug I previously reported for adverse reaction.

The only hope now is that my daughter will go to Sheffield where they have all the up to date machinery such as Tesla 3 scanner.  I have told the Mental Capacity Lead that until the underlying causes are investigated they could not possibly go down the route of capacity without finding out about the underlying causes that impair capacity because impaired capacity is not the same as having zero capacity and the reasons for the impaired capacity need to be thoroughly documented.    Not once under this hospital or any others provided by Lincolnshire has there been any psychological input.

Going to Sheffield is also my only hope as it has been dreadful watching my daughter going downhill.  . For many years now since 2007 and a report by UCL stating “Anterior Region Medial Temporal Compromise” I have been looking for answers as I have always felt her condition was neurological rather than MH.

Out of sight out of Mind:   

The intentional isolation, degrading treatment like you would expect for a restricted prison has led to Elizabeth going downhill both physically and mentally which has been done deliberately so as to take ultimate control over that person.  Going back to our initial move –  the intention seemed to be to place Elizabeth into care against her wishes and that of her family.

LPFT have left her to go downhill to such an extent she needs assistance in showering, in going out places – unlike other patients not even allowed to the hospital shop.  They are not protecting my daughter by taking the phone away.  Staff are no doubt writing negatively and it is very intrusive to listen to every word of conversation. 

In care plans I have seen no mention of discharge only that she is too unwell to be discharged into the community but the home area is rated as one of the best in the country where she could make recovery but there appear to be other plans for out of area placements restricting contact with family.   There have been assessments taking place for a care home in West Sussex and another hospital. I feel this detention is all about convenience due to non provision of care in the community.

I would like to see a replica of the successful Linden Farm in Surrey  (Simon Trust) in Lincolnshire to allow disabled people to remain within the area close to their families and inclusion rather than exclusion.

More choice is needed such as care farms, more places like Camphill Community Trusts and involving parents/carers like the Simon Trust (Linden Farm).   

Featuring LPFT, ICB, ULHT

COMMUNICATIONS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) <lpft.communications@nhs.net>

Wed 13/03/2024 02:19

Good morning,

Thank you for your email. We apologise that this information was not showing on the website, there appeared to be a technical issue that we have now resolved. You can now find the register of interests for our Board of Directors using the following link –

How can you have the CEO on the Board plus work as a specialist advisor for CQC or  The Director of Operations (Chris Higgins) for LPFT also work as an Executive Reviewer for CQC???

BOARD OF DIRECTORS’ REGISTER OF INTERESTS AS AT 29 FEBRUARY 2024 NO. DATE OF ENTRY NAME NATURE OF DECLARATION DISCLOSED DATE OF DECLARATION 1 04/02/19 21/09/22

Sarah Connery 1) Specialist Advisor for the Care Quality Commission (CQC) 2) Partner member of the Lincolnshire Integrated Care Board (ICB) for mental health (wef 01/07/22) 31/01/19 21/09/22 2 21/09/22 04/12/23

Chris Higgins 1) Member of the Lincolnshire Integrated Care Board Finance Committee 2) Executive Reviewer for the Care Quality Commission (CQC) 20/09/22 29/11/23

Dear Ms Ellis

Of course they are conflicts.

Please see attached regarding the CQC 

If the NHS purchase from Nemaura is a conflict.

From: ELLIS-FENWICK, Julie (NHS LINCOLNSHIRE ICB – 71E) <julieellis1@nhs.net>

Sent: 12 March 2024 08:54

To: susan bevis <susanb255@outlook.com>

Cc: BATES, Sarah (NHS LINCOLNSHIRE ICB – 71E) <s.bates@nhs.net>

Subject: RE: Conflict of Interest – ICB Board

 Good morning

 Thank you for your recent email.

 As required by section 14Z30 of the NHS Act 2006 (as amended by the Health and Social Care Act 2022), the ICB has made arrangements to manage any actual and potential conflicts of interest to ensure that decisions made by the ICB will be taken and seen to be taken without being unduly influenced by external or private interest and do not (and do not risk appearing to) affect the integrity of the ICB’s decision-making processes.

The ICB has established a Standards of Business Conduct and Conflicts of Interest Policy, which was approved by the ICB Board at its first meeting held on the 1st July 2022. This policy sets out clear procedures to deal with situations where an officer/member has a conflict of interest and is included in the ICB Governance Handbook available here: http://www.lincolnshire.icb.nhs.uk

In accordance with section 14Z30(2) of the NHS Act 2006 registers of interest are recorded in the ICB Registers of Interests which is published on the ICB website. The Registers are regularly reviewed by the ICB’s Audit and Risk Committee for assurance purposes. They are also subject to a thorough review by the ICB appointed external auditors as part of the year-end audit process.

Further to the above, in accordance with section 14Z25(5) of, and paragraph 1 of Schedule 1B to, the 2006 Act the ICB must have a Constitution, which must comply with the requirements set out in that Schedule. The ICB is required to publish its Constitution (section 14Z29). The ICB Board adopted its Constitution at its first meeting held on the 1st July 2022 and this is published on the ICB website. This includes information on the Eligibility Criteria for Board Membership and the Disqualification Criteria. Neither of the interests declared by Dr Gerry McSorley and Mrs Julie Pomeroy preclude them from being an ICB Board Member.

I trust this responds to your queries but if you have any further concerns to raise, please do contact me.

Jules Ellis-Fenwick

NHS Lincolnshire ICB Board Secretary and

Head of Corporate Governance

Email: julieellis1@nhs.net

Please see below:

Current CQC advisors on trust boards may create conflicts of interest, making it difficult for the CQC to conduct fair and unbiased inspections and reviews. This raises questions about regulatory accuracy and fairness. Dual roles in healthcare regulatory bodies and provider organizations may also raise ethical concerns. People may lose trust in the healthcare system if conflicts of interest arise. It is important to determine if there are rules or guidelines to prevent conflicts of interest in different healthcare organizations.

 Sources

 According to NHS Providers (2023, 1), the Health and Care Act 2022 has introduced a new NHS landscape, allowing directors of NHS Foundation Trusts (FT) and Trusts (Trust) to have multiple roles. For instance, a director of an FT or Trust may also be a partner member of an Integrated Care Board (ICB). In most cases, the director’s duties to the FT or Trust align with those owed to the ICB, but in theory, these duties may conflict.

 The CQC’s Declaration of Interest and Resolution of Conflicts policy, ratified in April 2015, requires all staff members to recognise and disclose activities that may lead to conflicts of interest or perceptions of conflicts and ensure proper management or avoidance to protect the credibility of the CQC’s work and its individuals. The policy applies to all levels of CQC staff, including employees, specialist advisors, contractors, temporary workers, experts by experience, second-opinion appointed doctors, and Mental Health Act reviewers. A parallel policy applies to CQC commissioners and independent members of CQC committees (CQC Board, 2015, 1).

 Reference list

 1.      CQC Board (2015). Declaration of Interest and Resolution of Conflicts policy. [online] Available at: https://www.cqc.org.uk/sites/default/files/20180305_spa_declaration_of_interest.pdf %5BAccessed 8 Mar. 2024].

2.      NHS Providers (2023). Commentary for NHS providers:conflicts of Interests for Foundation Trust and Nhs Trust Directors on Integrated Care Boards. [online] Available at: https://nhsproviders.org/media/695915/conflicts-of-interest-nhsp-advice-from-mwe-jun23.pdf %5BAccessed 8 Mar. 2024].

https://lincolnshire.icb.nhs.uk/documents/declaration-of-interests-register/nhs-lincolnshire-icb-declaration-of-interests-register/?layout=default

 McSorley, Gerry (Board Member)     Non-Executive Member and Deputy ICB Chair     CQC                                          

Julie Pomeroy also has connections to Nemaura Pharma Ltd.

Trust Board Members :: Lincolnshire Community Health Services NHS Trust 

Sam Wilde – director of finance and business intelligence

Astra Zeneca.

Jim Connolly

Jim has a had a varied career in the NHS as a nurse, working in a range of clinical, managerial and executive roles. He worked as a Director of Nursing and was the National Director for Continuing Healthcare with NHS England. In addition he works with the Care Quality Commission as a specialist advisor on governance. Prior to joining LCHS he was a Non Executive Director at Lincolnshire Clinical Commissioning Group and is supporting the vaccination programme as a vaccinator at the Meres Clinic in Grantham.

I visited Elizabeth on Wednesday 6 March. There was a capacity lead (Tony Mansfield) there together with Dr Khokhar who was questioning Elizabeth’s capacity. There is no doubt she has capacity but does not want to go in a van to Sheffield where they have the Tesla 3 scanner but said she did not want to be filmed on the ward. I said that it would be best for everything necessary to be done under the Neurology Department. I had written to my MP (Victoria Atkin) questioning why ULHT did not have a Tesla 3 scanner but anyway it is most promising she can go to Sheffield and this was promised would definitely be happening hopefully soon. Once and for all finally after all this time Elizabeth will get proper pathological tests but no way should this have been made so difficult. Elizabeth’s visit was late, following this meeting and again she showed massive capacity by knowing what the date was and checking what the time was. She presented me with some sweets for Mothers Day and as usual asked questions about her cat. She had telephoned me prior to my visit saying how much she missed the sunshine and her cat.

Elizabeth has capacity, there is no doubt of that but when faced with meetings that have over 9 people it is no wonder she is put under pressure. Here is something useful to remember if anyone is put under duress to sign documents for instance:

“agreements signed under duress are voidable and not enforceable. Forcing a relative to sign an agreement on the consequences of not being able to visit loved ones is not only being obtained under duress but is simultaneously the exercise of undue influence:

Williams v Bailey (1866) LR 1 hl 200, Dent v Bennett (1839 4 My & CR 269 (Doctor patient undue influence).

This goes to anyone put under pressure to sign schedules: NO SCHEDULE SHOULD BE SIGNED WITHOUT INDEPENDENT LEGAL ADVICE EVER.

It is wrong when certain professionals do this in order to get decisions and this can amount to bullying. I attach an interesting article on research into brain injury below:

A New Biomarker of Brain Injury?

Pauline Anderson

March 05, 2024

Posttraumatic headache (PTH) is associated with an increase in iron accumulation in certain brain regions , notably those involved in the pain network, early research shows.

Investigators found positive correlations between iron accumulation and headache frequency, number of lifetime mild traumatic brain injuries (mTBIs), and time since last mTBI.

The findings come on the heels of previous research showing patients with iron accumulation in certain brain regions don’t respond as well to treatment, study investigator, Simona Nikolova, PhD, assistant professor of neurology, Mayo Clinic, Phoenix, Arizona, told Medscape Medical News.

“This is really important, and doctors need to be aware of it. If you have a patient who is not responding to treatment, then you know what to look at,” she said. 

The findings (Abstract #3379) will be presented on April 15 at the American Academy of Neurology (AAN) 2024 Annual Meeting. 

Dose Effect
The study included 60 people with acute PTH due to mTBI. Most were White, and almost half had sustained a concussion due to a fall, with about 30% injured in a vehicle accident and a smaller number injured during a fight.

The mean number of lifetime mTBIs was 2.4, although participants had sustained as many as five or six and as few as one. The mean time from the most recent mTBI was 25 days, and the mean score on the Sport Concussion Assessment Tool (SCAT), which measures postconcussion symptom severity, was 29.

Most in the mTBI group (43) had migraine or probable migraine, and 14 had tension-type headaches. Mean headache frequency was 81%.

Researchers matched these patients with 60 controls without concussion or headache. Because iron accumulation is age-related, they tried to eliminate this covariant by pairing each participant with mTBI with an age- and sex-matched control.

All participants underwent a type of brain MRI known as T2* weighted sequence that can identify brain iron accumulation, a marker of neural injury. 

Investigators found that the PTH group had significantly higher levels of iron accumulation in several areas of the brain, most of which are part of a “pain network” that includes about 63 areas of the brain, Nikolova said.

The study wasn’t designed to determine how much more iron accumulation mTBI patients had vs controls. 

“We can’t say it was twice as much or three times as much; we can only say it was significant. Measuring concentrations in PTH patients and comparing that with controls is something we haven’t don’t yet,” said Nikolova

Areas of the brain with increased iron accumulation, included the periaqueductal gray (PAG), anterior cingulated cortex, and supramarginal gyrus. 

Research suggests patients with migraine who have elevated levels of iron in the PAG have a poorer response to botulinum toxin treatment. An earlier study by the same team showed a poorer response to the calcitonin gene-related peptide inhibitor erenumab in migraine patients with elevated iron in the PAG.

Researchers discovered that those with more lifetime TBIs had higher iron accumulation in the right gyrus rectus and right putamen vs those with fewer injuries and that headache frequency was associated with iron accumulation in the posterior corona radiata, bilateral temporal, right frontal, bilateral supplemental motor area, left fusiform, right hippocampus, sagittal striatum, and left cerebellum.

Surprising Result
The investigators also found a link between time since the most recent mTBI and iron accumulation in the bilateral temporal, right hippocampus, posterior and superior corona radiata, bilateral thalamus, right precuneus and cuneus, right lingual, and right cerebellum. 

“The more time that passed since the concussion occurred, the more likely that people had higher iron levels,” said Nikolova.

It’s perhaps to be expected that the length of time since injury is linked to iron accumulation in the brain as iron accumulates over time. But even those whose injury was relatively recent had higher amounts of iron, which Nikolova said was “surprising.”

“We thought iron accumulates over time so we were thinking maybe we should be doing a longitudinal study to see what happens, but we see definite iron accumulation due to injury shortly after the injury,” she said.

There was no association between iron accumulation and symptom severity as measured by SCAT scores.

Questions Remain
It’s unclear why iron accumulates after an injury or what the ramifications are of this accumulation, Nikolova noted. 

The imaging used in the study doesn’t distinguish between “bound” iron found after a hemorrhage and “free” iron in the brain. The free iron type has been shown to be increased after TBI and is “the stuff you should be afraid of,” Nikolova said.

Iron’s role in the metabolic process is important, but must be closely regulated, she said. Even a small accumulation can lead to oxidative stress.

Researchers are investigating whether the findings would be similar in mTBI but no headache and want to increase the number of study participants. A larger, more diverse sample would allow them to probe other questions, including whether iron accumulation is different in men and women. More data could also eventually lead to iron accumulation becoming a biomarker for concussion and PTH, Nikolova said.

“If you know a certain person has that biomarker, you might be able to administer a drug or some therapeutic procedure to prevent that iron from continuing to accumulate in the brain.”

Chelation drugs and other therapies may clear iron from the body but not necessarily from the brain. 

Commenting on the study for Medscape Medical News, Frank Conidi, MD, director, Florida Center for Headache and Sports Neurology, Port St. Lucie , said that the study supports the hypothesis that concussion “is not a benign process for the brain, and the cumulative effect of repetitive head injury can result in permanent brain injury.”

He said that he found the accumulation of iron in cortical structures particularly interesting. This, he said, differs from most current research that suggests head trauma mainly results in damage to white matter tracts.

He prefers the term “concussion” over “mild traumatic brain injury” which was used in the study. “Recent guidelines, including some that I’ve been involved with, have defined mild traumatic brain injury as a more permanent process,” he said.

The study was supported by the US Department of Defence and National Institutes of Health. No relevant conflicts of interest were disclosed. 

Talking of conflicts of interest, this is something else I am looking into with the Trust Board of Executives as I have discovered with UHLT that there are two conflicts on interest on their Board. I then turned to the Board of Executives for the ICB and found the same. I am yet to thoroughly go through the Board of LPFT and have instead written to Care Concerns to speed matters up. I will let you know when I get a response.

Meanwhile I am waiting for the date for Sheffield for the once in a lifetime tests I have been trying to get for years and years.

It is very bad there is such a battle to get such tests that are needed in order to determine anything.

I told the capacity lead that nothing had been done properly and now I was a BI assessor myself and I pointed out that the cause of the “impairment” needs to be ascertained before any assumptions are made and also Principle 4 of the MCA 2005 had not been applied correctly – therefore the three capacity assessments were completely flawed so until Sheffield looks at everything properly under their Tesla 3 scanner no further assumptions could be made. I pointed out that it was quite shocking the way the MCA had been manipulated by LPFT in order to get a decision they wanted ie to get rid of me as the nearest relative. Everything they have done has been done incorrectly and needs to be rectified. I will keep you informed how everything goes.

Overview

It has long been recognised that the Deprivation of Liberty Safeguards (DoLS) are not ‘fit for purpose’ and, despite the law introducing the Liberty Protection Safeguards (LPS) being passed in 2019 (The Mental Capacity Amendment Act 2019), after a number of ‘false starts’, it was announced in April 2023 that LPS would not be progressed during the current Parliament. So where does that leave us?

In this briefing, we highlight the implications of the delay and what health and social care providers can do next.

Where are we now?

Unfortunately, it appears that we have become accustomed to unlawful deprivations of liberty, which in some circumstances seem to have become almost routine. Key gaps with the current process were highlighted by the CQC’s 2022/23 State of Care report.

Current issues include:

Only 19% of DoLS authorisations are obtained within the 21 day period (average national time for completing authorisations is 156 days)
Major delays for processing of ‘community DoLS’ authorisations by the Court of Protection
Ongoing issues where 16/17 year olds require deprivations which can only be authorised by the Court of Protection
It is important to remember the impact of unauthorised deprivations of liberty, as highlighted in the CQC report, including:

People being unnecessarily deprived of their liberty or with excessively restrictive care plans

Challenges for care providers in keeping people safe without authorisations in place
Limited ability to challenge any care plan without an authorisation being in place (so a funded s.21A challenge can be brought)

Increased delays in emergency departments leading to more unauthorised deprivations of liberty
Of course, the challenges in authorising deprivations of liberty are no defence to any claim for unlawful deprivation nor an answer to complaints and challenges from the regulators or the Ombudsman.

Next steps

Ultimately, fundamental resource/legislative changes are required. However, there are still steps that providers can now take to minimise the impact:

  1. Knowledge and application of MCA back-to-basics

The CQC report highlights a number of basic failings in the understanding/application of the Mental Capacity Act, which could be addressed now, putting organisations in a much stronger position pending any future changes.

  1. MCA/MHA interface

Whilst the interface between the Mental Capacity Act and the Mental Health Act can be very complex, the majority of the time the legal position is (or should be) clear. There should again be a focus on improving staff knowledge and confidence in dealing with the ‘basics’.

In hospital settings, there needs to be a reconsideration of how to choose between the Mental Health Act and DoLS, when in reality DoLS is simply not available.

3. Deprivation of Liberty Safeguards basics

Where a DoLS authorisation is in place, organisations need to ensure that staff understand the legal effect of this. In particular, it is important to understand that a DoLS authorisation does not provide legal authority for any care/treatment and staff need to ensure that any conditions are met, reviews are triggered when required and further authorisations are requested as necessary.

  1. Discussions with the supervisory bodies

Pending legal change, organisations should consider discussions with the relevant supervisory body/bodies in order to formulate a plan to address any backlog or other particular organisational issues.

  1. Community deprivation of liberty issues

Care needs to be taken not to be pressured into ‘misusing’ community Mental Health Act provisions.

D A C Beachcroft

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Use of conditions in deprivation of liberty safeguard authorisations

06 April 2023

Richard Griffith

The deprivation of liberty safeguards were introduced into the Mental Capacity Act 2005 schedule A1 following the decision of the European Court of Human Rights in HL v United Kingdom (45508/99) (2005). The safeguards can be used to authorise the deprivation of liberty of an adult in a care home or hospital where this is necessary to protect the person from harm and is proportionate to the risk and seriousness of that harm, as set out in the Mental Capacity Act 2005, schedule A1 paragraph 16.

Protecting dignity and autonomy

To protect the dignity of patients by ensuring that restrictions imposed to protect that person and not overly intrusive, best interests assessors are commissioned to review the restrictions and satisfy themselves that the protective measures in place are necessary and proportionate. Restrictions that disproportionately interfere with the autonomy of the person will be unlawful. In Re MK[2014] the Court of Protection held that the removal of a woman with severe learning disabilities from her family was a deprivation of liberty that was disproportionate and unnecessary. The woman was not at risk, her wishes and feeling were to be at home with her family and the standard of her day-to-day care had been good. The woman had been unlawfully deprived of her liberty and unlawfully denied contact with her family. Both were unjustifiable interferences with her human rights under article 5 and 8 of the European Convention on Human Rights (ECHR) (Council of Europe, 1950).

Using conditions to ensure necessary and proportionate restrictions

Local authorities and health boards, in their role as supervisory bodies, are tasked with sanctioning a deprivation of liberty standard authorisation under the safeguards (Mental Capacity Act 2005, schedule A1 paragraph 50). To ensure that hospitals only impose proportionate restriction that are necessary to protect the person from harm, the supervisory body can make the authorisation subject to conditions that are legally binding on the hospital. The supervisory body will consider the recommendations of the best interests assessor when deciding if an authorisation should be subject to conditions (Mental Capacity Act 2005, schedule A1 paragraph 53).

In Re G [2016] the court considered the case of a woman, aged 92, who had dementia and lacked capacity. Her care plan involved the administration of medication covertly. No conditions had been placed on the authorisation of her deprivation of liberty. The court found that the use of covert medication had not been subject to proper safeguards; the decision to administer medication covertly did not appear to have been communicated to the supervisory body. The court issued guidance that best interests assessors and supervisory bodies should place conditions on the authorisation to ensure that covert administration was regularly kept under review and that it continued to be a necessary and proportionate response to the needs of the person.

Recommending conditions

The code of practice for the deprivation of liberty safeguards (Ministry of Justice, 2008) highlights that attaching conditions to a deprivation of liberty standard authorisation should relate to the restrictions and should not be used as a substitute for a properly constructed care plan. As the conditions in a deprivation of liberty authorisation are binding on the hospital it is good practice for the best interests assessor to discuss proposals for conditions with the staff caring for the protected person (Ministry of Justice, 2008: paragraph 4.75).

To ensure that conditions are appropriate to the protected person they must (Welsh Assembly Government, 2009):

  • Be relevant to the role of the managing authority
  • Relate directly and specifically to the deprivation of liberty, and
  • Should not be general in nature, or
  • Be a lever to improve the overall care plan.

To ensure that those requirements are met best interests assessors and supervisory bodies are required to subject any proposed conditions to a ‘but for’ test. That is, would the conditions be needed ‘but for’ the protected person being deprived of their liberty. A valid condition would be one that meets that test, it is needed only because the person is being deprived of their liberty.

Purpose of conditions

The code of practice to the deprivation of liberty safeguards (Ministry of Justice, 2008) suggest that conditions might be used to:

  • Ensure the deprivation of liberty is secured
  • Limit the restrictions that amount to a deprivation of liberty
  • Work towards ending the deprivation of liberty.

Ensuring the deprivation of liberty is secured

The code of practice (Ministry of Justice, 2008) suggests that conditions could be imposed on a deprivation of liberty authorisation to ensure that the deprivation of liberty is secured. This might arise where it is necessary to ensure that the person will not leave the hospital. In A local authority v D [2013] a woman with Huntington’s disease was prevented from returning home to her husband following a period of respite care. The husband was also denied access to his wife to secure the deprivation of liberty by preventing him from taking his wife home.

Although conditions can be used to immediately secure a deprivation of liberty, the use of conditions for such purposes must only be for a short period. A deprivation of liberty safeguard authorisation cannot generally be used to authorise limited or no contact with the protected person. ‘No contact’ issues can only be authorised by the Court of Protection. The code of practice to the deprivation of liberty safeguards stresses that it must be for the Court of Protection to make decisions when contact between family members or close friends is being restricted. The deprivation of liberty safeguards cannot be relied on to manage no-contact cases.

In A local authority v D [2013] the Court of Protection held that the delay of some 3 months between the initial authorisation of the deprivation of liberty and bringing the case before the court was a breach of the couple’s right to respect for a family life under article 8 of the ECHR (Council of Europe, 1950) and an unlawful deprivation of liberty contrary to article 5 of the ECHR. Damages were awarded to both the husband and wife for these breaches.

Limiting the deprivation as much as possible

This purpose allows best interests assessors and supervisory bodies to impose conditions where they are satisfied that the restrictions being imposed are disproportionate to the risk of harm. The conditions can be used to ensure that the protected person continues to enjoy access to fresh air or meaningful activities, or to maintain social contacts.

Working towards or bringing about an end to the deprivation

Supervisory bodies can use conditions for this purpose to ensure the person’s timely and appropriate discharge from hospital. The conditions might require assessment to facilitate discharge to be completed within a given time frame. This might include obtaining a occupational therapy home visit assessment report or a physiotherapy report.

Conditions are binding on managing authorities

The Mental Capacity Act 2005, schedule A1 paragraph 53(3) states that:

‘The managing authority of the relevant hospital must ensure that any conditions are complied with.’

The Mental Capacity Act 2005 schedule A1 paragraph 4(3) also states that:

‘In a case where an authorisation is in force, a person is not authorised to do anything which does not comply with the conditions (if any) included in the authorisation.’

The Local Government and Social Care Ombudsman found that Barchester Healthcare had failed to fulfil the conditions attached to a man’s deprivation of liberty authorisation that related to the provision of meaningful activities and his interaction with a fellow resident. The man’s wife felt compelled to find her husband a different care provider due to these failures. Barchester Healthcare offered a £5000 payment in recognition of their shortcomings relating to the authorisation conditions, which the ombudsman found to be appropriate in the circumstances (Peart, 2020).

Changing or removing conditions

The only lawful way for a hospital to vary a condition attached to a deprivation of liberty authorisation is to seek a review of the best interests requirement under part 8 of schedule A1 of the Mental Capacity Act 2005. Varying in this context includes amending, adding to or omitting conditions. Where a request for a review is received then the supervisory body will commission a best interests assessor to reassess the protected person’s best interests and make recommendations as to whether the supervisory body should vary the conditions.

Enforcement of conditions

In Re W [2016] the Court of Protection held that it was for the supervisory authority that had granted a standard authorisation, under the Mental Capacity Act 2005, to deprive a person of their liberty that was responsible for monitoring compliance with the conditions it had imposed. The frequency of such monitoring depended upon the circumstances of the case rather than there being any need to fix a period that would be applicable to all authorisation cases.

Conclusion

Under the deprivation of liberty safeguards, local authorities and health boards, in their role as supervisory bodies, can attach conditions to a deprivation of liberty authorisation to ensure that the restrictions imposed on the protected person are necessary and proportionate to the risk of harm the person faces. Conditions are binding on the hospital where the person is being deprived of their liberty and it would be unlawful not to implement the conditions attached to an authorisation of a deprivation of liberty. It is the duty of supervisory bodies to ensure the conditions they attach to authorisation are implemented by the hospital through regular review and monitoring.

Key points

  • A supervisory body can make the authorisation of a deprivation of liberty subject to conditions that are legally binding on the hospital
  • Conditions attached to a deprivation of liberty standard authorisation must relate to the restrictions and should not be used as a substitute for a properly constructed care plan
  • Conditions must meet the ‘but for’ test to be valid
  • Conditions are binding on the hospital where the person is deprived of their liberty

Elizabeth has been held for 2.5 years now in the most restrictive manner by two hospitals namely Ash Villa and Castle Ward run by Lincolnshire Partnership Trust. She is held under the MHA just like a restricted prisoner. Phone held in the locker – only supervised calls and restricted visiting.

I do not think it is at all lawful what Lincolnshire Partnership Trust are doing.

Also they cancelled all her physical health appointments when I moved as being “unnecessary” when the former area had started to take her health seriously.

Apparently Elizabeth has been told “you wont be here much longer as you will be going into supported housing”.

Nobody in the family has been told anything about this but i have heard directly from Elizabeth so the fact she was able to relay this conversation to me and an assessment carried out a while back she did not wish to join in for a care home in West Sussex is most disturbing.

Elizabeth was told to pick on a map where she wanted to live. Well my question to LPFT is how on earth do you expect my daughter to choose where she wants to live according to your disgraceful plans when she has been held a prisoner for so long and has not even seen anything of this area.

The area itself is very nice however I cannot say that for the NHS or the way we have been treated in a new area by the Council.

This below is my latest email I have received via Care Concerns inviting me to a meeting by LPFT to discuss capacity which is something LPFT have totally abused when 3 flawed in-house capacity assessments were done a year ago to achieve their ends. I am featuring my response how the MCA has been abused. I am now a BI assessor myself and I am quite appalled by this abuse. People have a right to know what is going on.

MY RESPONSE TO “CAPACITY” MEETING ON 6.03.2024 WITH DR WAQQAS KHOKHAR AND MENTAL CAPACITY LEAD TONY MANSFIELD

From: susan bevis
To: CARECONCERNS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) <lpft.careconcerns@nhs.net>
Subject: Fw: Wednesday 6th March 2024

Dear Ms Munro

Thank you for your email below.

I spoke to my daughter today and she told me about another accident that happened on the ward.  Under Reg 14 HSCA The family should be informed of any accidents, especially ones where she hit her head in light of the fits she is suffering.

I am now a Best Interest assessor myself so I would know that the assessments done on my daughter are completely flawed and that goes for the Tesla 1.5.   I am waiting to  hear as regards Sharon Harvey’s promise to get done a completely independent capacity assessment as promised in our meeting on 2 October 2023. (HOWEVER HOW ANYTHING BE INDEPENDENT WHEN LPFT ARRANGE IT)

There is no doubt my daughter has capacity as she is able to relay to me exactly what is happening including the assessments/suggestions of her going into supported living against her wishes and that of the family out of area.  Perhaps you can inform the family and nearest relative who I am copying in herewith.

Elizabeth does not agree to being filmed by the MH team on the ward re her fits.   

Elizabeth did not have an advocate present at ward round today but was able to relay everything and the only reason she mentioned she did not wish to go to Sheffield was because of the transport.   Elizabeth did not want to go in a van and she still remembers and is traumatised by the previous caged vehicle used to transport her from Lincoln Hospital to Ash Villa to this day.   Elizabeth said she will be happy if family were present at Sheffield and I have written to Dame Pamela Shaw at Sheffield.  

As regards Elizabeth’s Capacity she told me personally she did not wish to engage and that was because AM (AMHP) and certain shameful doctors were deliberately trying to coerce her into displacing myself as Nearest Relative.   That has been the main objective focussed on and not the wellbeing and care of my vulnerable daughter.   

LPFT’s abuse on capacity:

Case study: The diagnostic step and the causative nexus · 12 June 2023 Case Study, Mental Capacity in Practice

The diagnostic step is a simple but often misunderstood part of the Mental Capacity Assessment. One of the most common errors is to simply list a medical diagnosis without any explanation of how the diagnosis impacts upon decision-making. However, this link – also known as the causative nexus – is the vital point on which the rest of the assessment is based. It is therefore important to understand exactly why the diagnostic step is important and how to document it properly.

LPFT have ‘determined’ via faulty processes that Elizabeth lacks capacity.  She frequently missed meals at Ash Villa and spent much of the day isolating in her room situated right next to the Seclusion Room knowing full well she had sensory issues.  Her treatment was befitting of Panorama and Dispatches and several patients approached me in the grounds outside asking if I was Elizabeth’s Mum and stating they were doing the safeguarding and sleeping with their doors open at night.  This is where the fits started and where the cancer scare originated but the tests for cancer will need re-doing as you do not have a decent scanner in Lincolnshire and this is about to be headline news hopefully and totally inadequate response below.  The 1.5 scanner did not pick up what the Tesla 3 did that I paid for privately and a cancer patient has died in this area.  I now want all the scans done properly under a Tesla 3 in Sheffield.

Julie Frake-Harris, Chief Operating Officer at United Lincolnshire Hospitals NHS Trust, said:

“Our hospitals offer the correct and appropriate equipment for medical imaging, including 1.5 Tesla MRI scanners, which allow our experienced clinical teams to scan all our patients to a high diagnostic quality. 3 Tesla MRI scanners would usually only be in place at specialist tertiary centres, where they have a specific need for neurosurgery or research. ULHT does not provide this type of specialist service. 
“We are commissioning four new state-of-the-art 1.5 Tesla MRI scanners in Lincolnshire this year, which is more appropriate for the wide variety of patients we care for, is safer for their clinical needs and offers a more comfortable experience during a scan. The new software allows comparative image quality and speed to a 3T without the additional risk.

“If any patients or carers have any questions about their care, we would encourage them to discuss them with us so we can address any concerns they may have.”

That is totally wrong!

The acuity and resolution of the scanner is determined by the strength of the magnets measured in Teslas not by imaging software.  

No amount of software can resolve an image that has not been picked up in the first place.

The analogy is the James Webb telescope.  Its acuity and resolution come from it mirrors.  They ‘find’ the image the software only cleans it up.

If you use sophisticated software with a low resolution image it will not allow you to see something the ‘lens, mirror or magnet did not see in the first place. 

This is why Elizabeth was being referred by Dr S to Sheffield because my private scans showed much more detail and as my daughter’s “episodes” have ended up in A&E on more than one occasion with low blood oxygen levels and enormously high blood pressure – this could be life threatening ad someone has died as a result which makes this whole matter public interest.

Getting back to Capacity ………...  

Why has a vulnerable patient such as Elizabeth, who by LPFT’s assessment lacks capacity being left unfed for large parts of the day?  It was certainly negligent to leave anyone who lacked capacity to be not properly nourished.

Why was Elizabeth only fed when I called, in emergency to ensure that she was properly nourished?

Why was/is a patient  judged as lacking capacity not properly monitored in respect of her sleep, especially as it is clear she suffers from sleep apnoea, most likely as a result of the overuse of neuroleptic medications administered via depot and prn?

Why was Elizabeth, who by LPFT’s evaluation (faulty) lacking capacity not given appropriate tests to determine what might be causing this lack of capacity?

If Elizabeth lacks capacity, as LPFT suggests, LPFT’s duty of care/standard of care in medical negligence is at a higher level.  Why has/had she been neglected on the ward and prior to this Ash Villa to the extent that no one checked that she was being properly nourished?

The LPFT and LCC have abused the capacity assessment process to restrict/deny Elizabeth’s fundamental rights to patient autonomy to facilitate their own interests or convenience. This includes/ has included denying her rights to privacy and a family life by subjecting her to oppressive supervised visits.

The LPFT have/are abusing their powers under the Mental Health Act 1983 to deny Elizabeth and her family fundamental human rights, not in order to prevent or control risk but simply to benefit themselves and to obtain control to abrogate their actual responsibilities.

These are matters that will be referred to judicial review as ultra vires.  The MHA 1983 was designed to protect the interest of the mentally ill, not provide a convenient set of excuses for clinicians, nurses and social workers.   

Elizabeth was judged to lack capacity but the common law test as determined in Masterman-Lister v Brutton & Co [2003] 1WLR 1511 was not applied.

“whether the party to legal proceedings is capable of understanding, with the assistance of proper explanation from legal advisers and experts in other disciplines as the case may require, the issues on which his consent or decision is likely to be necessary in the course of those proceedings… the threshold for capacity to provide instructions is not high, and people severely affected by a mental disorder may still be able to provide instructions if you explain matters simply and clearly.”

I contacted Dr Bob Johnson (former Expert Witness) regarding the capacity assessment and he said:

I tend to agree with you about issues of capacity centring on the doc!”

Bob informed me that the ‘no comment’ interview makes no sense in terms of determining capacity.

“Either you don’t understand the question, in which case you say so, and your “micro-expressions” confirm it, or you do, and you’re dodging. The latter is rather too clever for no capacity”.

Bob of course has had enormous experience dealing with this kind of interview. 

The decision that Elizabeth lacks capacity is contrived in the face of obviously conflicting evidence. In criminal law a ‘no comment’ interview can be put to the jury as an inference of guilt, i.e. that the suspect is evading the question while knowing the answer.

Elizabeth is using it as a defence mechanism against people she considers hostile. She is carefully calculating when it is in her interest to ‘cooperate with them and when it is not. That is not indicative of those who lack capacity.

What does happen with those who lack capacity is that they either confabulate or talk nonsense or that they are ‘interview suggestible’*, meaning that they say what they perceive the interviewer to want them to. That is why in police station interviews that need a responsible adult present.

Elizabeth was/is being evasive and dodging questions she is uncomfortable with. A classic evasion strategy that is quite the opposite of what would be expected from someone who really lacked capacity.

A proper examination applying the proper methods and following the Code of Practice correctly, instead of manipulating it would show that Elizabeth has capacity, albeit impaired. That is why they want to get me as far away from the treatment regimen as possible.

Research indicates that attitudes assuming guilt (or lack of capacity) actually reduces the effectiveness of interviews1

Interrogative Suggestibility. Gudjonnson (1984)

1. Baldwin (1993); Moston (1995), Pearse and Gudjonsson (1996), Shepherd (1993)

If it was/has been really concluded that Elizabeth lacks capacity then LPFT must have radically altered her care plan and her detention must now be under the deprivation of liberty criteria from the MCA 2005 rather than the MHA 1983.  My suspicions are that no such variation has been made.   This was possibly designed to do an end run around the section 3 review system just as much as it was to displace me as  the NR.  

Elizabeth used evasive answers that are logically selected and timed. She even used distraction techniques to what she perceived as her advantage. Refusal to engage and interrogation evasion techniques indicate complex insight, even if the patient is in other ways cognitively impaired. Elizabeth perceived the interrogator as a threat or even as an oppressor. No comment and noncommittal answers are exactly what one would expect in that situation. I would not expect a patient who truly lacked capacity to use ‘no comment’ answers. 

She was being defensive and that is not a sign of lacking capacity.

The doctors describe choosing an interrogation technique that assumes in advance that Elizabeth lacks capacity in spite of that being contrary to section 4(1) MCA 2005 and the Code of Practice. Elizabeth is assumed to be educationally sub-normal and of low IQ (another discredited system of evaluating capacity) but Huntercombe – an entire team assessed her properly as being “High Spectrum Aspergers”.

The doctors talked of asking short simple questions but her answers indicate she is fully cognisant of what they are saying. They even interpreted her desire to go home as being delusional instead of a perfectly understandable aspiration.

This process was totally flawed and designed with a ‘no capacity’ outcome built in. It even assumed, again contrary to section 4 that she was not capable of regaining capacity. That, combined with the retractions was designed as an obstacle to any form of appeal or genuine objective second opinion.

The MCA2005 is used to take control from patients and their families. In most cases this really is in the best interest of the patient but is open to abuse as is everything else. The best interest of the institution are often ‘factored in’ even though that is entirely contradictory to the spirit of the legislation and code of practice.

Inadmissibility of Capacity Assessments

The capacity assessments carried out at Ash Villa are inadmissible as evidence.

Applicable Principles and Requirements

The capacity assessments are all seriously flawed in terms of the requirements and principles of the Mental Capacity Act 2005, the Code of Practice, and indeed in the very philosophy underpinning the legislation.

The concept of best interests is founded on the most fundamental principles of human rights. Those principles are centred entirely around the welfare of the patient and never in the interests or expediency of ward management or those carrying out assessments.

The Mental Capacity Act 2005 at Section 4 requires that the patient is to be regarded as having capacity until evidence is ascertained as to how that capacity is impaired.  

No Proper Capacity Evidence

It is evident from the statements regarding Elizabeth’s capacity that:

(a)  No proper, full, objective and admissible evaluation of capacity has been made at Ash Villa; and/or

(b)  there was an over-emphasis of the goal of displacing myself as NR, which created a bias in  assessment so materially affecting validity that none of the evidence on capacity is admissible.  

Capacity Evidence Has No Relevance

There is in any event no relevance of any evidence, on capacity of the Elizabeth, to any aspect of the Claim, which is that her mother is unsuitable to continue to act as Nearest Relative.

It was not asserted why capacity evidence has been produced, nor shown – anywhere –  any relevance of such evidence.

The very slight admissible evidence in the capacity assessments is not on capacity itself, but is only that which reinforces the evidence of the her mother that the position of the Elizabeth is very simple: she wishes to go home to live next to her mother, and that her mother is her Nearest Relative.

The Context for Elizabeth’s Responses

What is startling is that no account is taken of Elizabeth’s reaction to being, as she sees it, in an oppressive institutionalised situation in which she has virtually no right to privacy, family life or psychological and spiritual enrichment.  

It is hardly surprising that any person so deprived of the most fundamental of human aspirations is not so much lacking capacity but is self evidently being deprived of it.   

All of this is in breach of the letter and spirit of section 4, MCA 2005.  

The Prohibited Step

It is never allowed that the decision maker on best interest draws conclusions on capacity from a patient’s age or appearance on a condition of his/hers or an aspect of his behaviour which might lead others to make unjustified assumptions about what might be in his/her best interests by section 4(1)(a) & (b).  This is known generically as The Prohibited Step.     

Failures: Identification of Issues

Section 4(2) MCA 2005 requires that the decision maker should try to identify all the issues that would be most relevant to the individual who is asserted to lack capacity relating to the particular decision (para 3, Main Code of Practice)

Failures: Framing of questions/suggestions

The framing of questions/suggestions in closed form gave Elizabeth no opportunity to explain or include detail in her answers.  

It is a disturbing oversight on the part of those carrying out those interviews that the nature and framing of questions and suggestions, and their leading nature, made it impossible for her to express herself.  

Failures: Elizabeth’s Clear Responses

There is no evidence from the interviews that there was any attempt to determine the actual meaning of Elizabeth’s clear responses to questions/suggestions made by the interviewer.  

Failures to comply with Requirements

The content of the Section D witness statements on capacity is riddled with inconsistencies. The capacity assessments were not conducted as required by section 1 of the Mental Capacity Act 2005.  

It is submitted that the capacity evidence is inadmissible as evidence of lack of capacity not only because of logical and factual inaccuracies in the statements, but also for failure to apply the meaning of the statute, and the failures to follow the required steps:

Submissions on the Required s.4 Steps

The required steps, in summary, in s.4 of the Mental Capacity Act 2005, and appropriate related submissions, are:

To consider the likelihood of the person gaining capacity. There is no evidence that this was even considered by either first or 2nd opinion assessor or in the ‘off record’ intervention by KS, and thus never taken into account at all.

To promote and encourage the participation of the patient so far as possible.  There is no evidence that Elizabeth’s participation via appropriate dialogue was encouraged or ever taken into account at all. Indeed the first and second assessor treated her as someone with a severe learning disability rather than an educated woman with a chronic mental health condition.  They make reference to talking to her in “little chunks of three sentences”.  Nothing in Elizabeth’s diagnosis suggests that she is mentally retarded or incompetent and this approach is in clear violation of  The ‘Prohibited Step’ described in section 4(1) of the Act. 

To consider the persons wishes, beliefs and other factors the person would be likely to consider were they able to do so.  Once again this is not taken into account at all by either of the first and second opinion assessors.  None of Elizabeth’s wishes were considered in those interviews or were simply disregarded with scant attention.  This is evident in the perfunctory treatment of her observations regarding the litigation.  No attempt was made to understand why she may have taken those positions, including of course that the oppressive nature of the interview with no independent observer present may have seriously deprived of any ability to explain in detail.  All contrary to section 4(2) and the main Code.

To take account of the views of named others.  This is perhaps the most obvious complete failing of all the assessment interviews and is a cause for serious concern.  The views of neither Susan Bevis, Elizabeth’s mother, or her sister, or her father were taken into consideration or even sought.  

Conclusion:

The individual and accumulative effects of all of these failings make the statements by the assessors incapable of being relied upon at all.  

Comments on the Section D Assessments of the 1st assessor and second opinion assessor in red. 

Question 1. UNDERSTANDING: Does the person understand the information relevant to the decision?

Answer: No

She was happy to see me, and we (along with S/N GJ) used family rooms in order to promote her privacy. I explained that I would like to talk with her so that I can complete an assessment on her mental capacity to make decision in order to displace her mother as her NR. She asked me what that meant. I explained in simple language the rights and duties of the NR as summarised above in the salient information section, using slow and steady speech. I ensured I gave her the information in little chunks of three sentences and would go over it, if it seemed that she was not following. I explained that her mum is her NR and that there are steps to identifying a NR. I explained that her mum (NR) will be expected to fulfil those roles as above and also to act in her best interests – such as supporting her in staying well and making services aware should she start relapsing or stop taking her medications. I explained that there are times either the patient can ask to displace their NR or professionals can apply to do so. I added that usually it is when professionals do not believe that the NR is acting in the patient’s interest. In this case, that her mum is not acting in her best interest. Elizabeth frowned and stared at me. I added that according to her records,

Her mum does not believe that she suffers from the diagnoses listed. I explained that she believed that she had ‘autism’. She asked me what was going to happen about that diagnosis and I explained that she has been (or is going to be soon as we have agreed in last ward round) to be referred for a diagnostic interview but unfortunately, there was a long waiting time and when her turn comes up she would be assessed for it.  I mentioned the pros and cons of not having her mum as her NR. I recapped my explanation above regarding the issue at hand of her capacity to displace the NR. I am of the reasonable belief that Elizabeth did not demonstrate understanding of the functions of the NR, pros and cons of the decision and the implications of displacing her mum as her NR.

She did not seem interested in NR displacement issue. Although, she said that she understood, she was not able to relay it back to me as if she did not want to discuss this issue anymore.

‘as if’ is entirely speculative and inconclusive of Elizabeth’s lack of capacity.  It is also contradicted by Elizabeth’s response to the suggestion that her mother is displaced.  “Elizabeth frowned and stared at me”.  Such a response is self-evidently disapproval and indicates the capacity to make decision on this.  If indeed Elizabeth was expressing a refusal to discuss the matter further that cannot be ‘reasonably’ regarded as a lack of understanding of the issues and would just as likely show an objection to the suggestion her mother was displaced as NR.

The erroneous beliefs of Elizabeth’s mother regarding the diagnosis is irrelevant to a capacity assessment.  Elizabeth’s mother’s beliefs are not evidence of Elizabeth’s capacity or lack of it.  

“I am of the reasonable belief that Elizabeth did not demonstrate understanding of the functions of the NR, pros and cons of the decision and the implications of displacing her mum as her NR”.  This is indeed not a reasonable belief in the light of Elizabeth’s obvious disapproval of her mother being displaced.  

“I mentioned the pros and cons of not having her mum as her NR. I recapped my explanation above regarding the issue at hand of her capacity to displace the NR”.  This is a logical fallacy. It is effectively asking Elizabeth to acknowledge her lack of capacity.  Logic clearly dictates that if she does not understand the information ‘given in little chunks’ she is not going to be able to determine her own lack of capacity. 

Question 2. RETENTION: Can the person retain the relevant information long enough for the decision to be made?

Answer: No

I asked her if she had any questions to ask and she said “no questions”. It is my reasonable belief that Elizabeth was not able to recall the salient points given to her to enable her to make a decision on whether to displace her mum as her NR or not. It seems like she was able to retain the information for some time but she was not able to relay it back to me as if she did not want to discuss this issue anymore.

“I asked her if she had any questions to ask and she said “no questions”.”

“she was not able to relay it back to me as if she did not want to discuss this issue anymore”.

It is not a reasonable basis of belief that this indicates a lack of capacity and could just as easily represent defiance or resistance to a suggestion that Elizabeth found threatening or disagreeable.   It is also logically inconsistent.  If Elizabeth says “no questions” there is no reason at all why she would wish to relay back the discussion.   

2nd Opinion Comments

1. UNDERSTANDING: Does the person understand the information relevant to the decision?

Answer: No

When I asked Elizabeth if she was aware that there was an ongoing court case she said “yes” but when I asked her if she knew what it was about, she said “not sure”. I explained to Elizabeth the purpose of court proceedings, stating that this was because LPFT were asking a judge to decide if her mum should be her nearest relative or whether someone else should act in this role. Elizabeth stated that she could not be involved in court proceedings because my back is broken and I have got autism”. I did challenge Elizabeth on this stating that just because a person has autism (noting this is not a formal diagnosis for Elizabeth) does not mean that they do not have opinions or views about what they want to happen, and this includes who they want to be nearest relative or represent them in court. Elizabeth was still adamant that she could not be involved. I asked Elizabeth if she knew who her litigation friend is currently and she said no. When I told her it is her sister, she said “she can’t help me” but was unable to expand on why she felt this was the case, when I asked her why she thinks that, she said “not sure”. I have checked with the care team and have been informed that although there is a likelihood that Elizabeth had injured her back when in periods of high distress and volatility, this has not been to a significant degree beyond strain or sprain and she is not known to have ever broken her back or sustained a similar level of injury.

On the balance of probabilities, I consider that Elizabeth does not understand all the salient information needed to be able to make this decision. When I tried to explain to Elizabeth that she could instruct a solicitor or tell the judge what she wants, she was fixed in her view that she could not do this because of having autism. This evidences that Elizabeth does not understand all the options available to allow her to participate in the legal process regarding displacement of her nearest relative.

Elizabeth stated that she could not be involved in court proceedings because “my back is broken and I have got autism”.  However Elizabeth asked to attend court but this was denied through a phone call from Solicitors to the Ward.

That is not conclusive or even persuasive evidence of a lack of capacity.  Elizabeth’s erroneous belief in her condition is not indicative of an inability to choose her mother as NR or a failure to understand the questions put to her.  As for the injury to her back, she has been subjected to numerous physical restraints including pinning her face down on the floor according to witnesses .  It is entirely understandable that she may use hyperbole to describe her pain from injuries sustained by this restraint. That is not evidence of a lack of capacity.

2. RETENTION: Can the person retain the relevant information long enough for the decision to be made?

Answer: No

Elizabeth has demonstrated that she does retain some information relating to the court proceedings to displace her nearest relative. Having reviewed her notes, I can see there have been occasions when she has been emotionally distressed that she has expressed anger about the application to displace her mother as nearest relative without prompting and has stated that LFPT does not have a right to stop her mother being her nearest relative. She was also able to recall today that her mother is her nearest relative.

Although there is clearly a level of retention regarding this decision, I do not consider that Elizabeth is able to retain all the pertinent information required to be able to litigate in these proceedings. For example, after explaining to Elizabeth that her sister is her litigation friend and that she is representing her in the current proceedings, when I revisited this later in the conversation and asked Elizabeth if she could remember who I said was acting as her litigation friend, she was unable to recall that it is her sister.

After I finished my discussion with Elizabeth, deputy ward manager KS went to speak to her independently in her bedspace to see if she was willing to discuss this decision in more detail without me being present. Elizabeth asked K if I was going to be going to court. Elizabeth had asked me the same question approx. 10 mins earlier when I was talking to her and I explained to her that I was not a solicitor and was not going to be in the court hearing, but that I would be writing about our discussion today and the court would see it. As Elizabeth had asked K the same question 10 minutes after I had given her this information, this evidences difficulties with retaining all relevant information relating to the court proceedings.

“I can see there have been occasions when she has been emotionally distressed that she has expressed anger about the application to displace her mother as nearest relative without prompting and has stated that LFPT does not have a right to stop her mother being her nearest relative. She was also able to recall today that her mother is her nearest relative”.

All of that is indicative of a functioning capacity to understand the issues, not only at that point but on reflection of earlier events.  This is fully supportive of her ability not only to recall but to maintain a position on the NR.  In the light of this is cannot be stated that “on the balance of probabilities” Elizabeth lacks capacity.  The MCA 2005 principles found at are at section 1  quite explicit that the capacity assessor should work on the basis that a patient has capacity ‘on the balance of probabilities”  Those principles are as follows:

·         Principle 1: A presumption of capacity. … 

·         Principle 2: Individuals being supported to make their own decisions. … 

·         Principle 3: Unwise decisions. … 

·         Principle 4: Best interests. … 

·         Principle 5: Less restrictive option.

Violations of principle 1: Elizabeth is presumed in the negative contrary to the principle of presumed capacity.  Clear evidence in Elizabeth’s answers and  attitude to the capacity assessment indicates a presumption of capacity and not the contrary.

Violation of Principle 2: Elizabeth has received no support to make her own decisions and was not supported at this capacity interview by an independent advocate.  The clinical staff are seen by Elizabeth as intimidatory.  Her responses to these capacity interviews show clear evidence of resistance to the questions and objections to the purposes of it.

Violations of Principle 3:  Section 1 of the MCA 2005 and the Code of Practice are quite explicit that unwise decisions cannot be used as evidence of lack of capacity.  Emphasis is placed in the interviews on irrelevant interpretations of Elizabeth’s mistaken beliefs in her diagnosis.  It is very often that case, probably more often than not that a psychiatric patient will deny their illness.  This is not evidence in itself of either delusion or lack of capacity.  Elizabeth’s complaints about the back injury are quite explainable since she has been subjected to maximum physical restraint on several occasions.  The use of restraint has been described as a method of dealing with “distressed” patients at Ash Villa and that is quite disturbing.

Violation of Principle 4:  It was in Elizabeth’s best interest that this interview was conducted in the presence of an independent advocate or her NR.  Neither was present and Elizabeth had no support.  Elizabeth is used to being physically restrained and in the light of that far better safeguarding of her best interest should have been applied at these interviews.    

Violation of Principle 5. Elizabeth is currently being held under a regime of restraint and it is difficult to see how she could be subjected to a more restrictive option.  The two on one surveillance that has been employed at Ash Villa and the intrusive surveillance of family visits is more severe than many s.37/41 patients would encounter.  There is every reason to believe that should Elizabeth be given a less institutionalised and restraint based treatment regime that she would display a much better degree of capacity than the current regime allows.   

“I do not consider that Elizabeth is able to retain all the pertinent information required to be able to litigate in these proceedings”

Elizabeth is not required to litigate these proceedings she is represented by a litigation friend and has a right to a solicitor.

“As Elizabeth had asked K the same question 10 minutes after I had given her this information, this evidences difficulties with retaining all relevant information relating to the court proceedings”.

That presumption is fallacious.  Elizabeth could just as likely have been seeking verification from someone she was more familiar with and it does not necessarily indicate she did not understand or retain the information.  It is also indicative of a lack of trust, especially in the light of the stated reason for K S wanting to speak to Elizabeth independently.    The suggestion that the capacity assessor was being mistaken for a solicitor is not made out.  Elizabeth’s question regarding whether the capacity assessor was going to be in court is perfectly sensible since this person was discussing the litigation with her.  

“Elizabeth demonstrates an ability to communicate her views to the extent that she chooses and is able to do so. She did offer a view regarding her involvement in the current legal application, stating “I don’t want any part in it”. Further to this, she has at times of distress spontaneously expressed her unhappiness that LPFT have instigated these court proceedings. Additionally, when deputy ward manager K S went to speak to Elizabeth alone 10 minutes after my assessment with her, she was able to express to K that she did not want me (meaning K F) to have anything to do with the court case”.

Although Elizabeth is guarded and refused to discuss her capacity to litigate in any great detail with me, I do not consider that a refusal to communicate a decision equates to an inability to do so and therefore on the balance of probabilities, I consider that L does have the ability to communicate in relation to this aspect of the capacity assessment”.

This element of the statement is riddled with contradictions when considered against the principles defined in section 1 of the MCA 2005. Elizabeth appears to have a full appreciation of the nature and purpose of the litigation and expresses strong and clear views on it and the NR process as currently conducted by LCC Adult Social Care.  As stated a refusal to communicate is hardly any evidence of an ability to do so and is in realty much more likely to indicate a good range of capacity.  Once again concluding otherwise falls foul of principle one of the Mental Capacity Act 2005.  The entire process seems faulty and as such should not be admissible as evidence in these proceedings.   

 Subject: End runs and abuses of process

“The capacity red herring is being used solely to facilitate the LCC (acting as proxy) for the health trust being effectively unopposed in their application and represents a violation of article 6. ECHR.

The county court is unlikely to be able to deal with an argument on this level due to their perfunctory approach to this case to date. They have so far accepted evidence of questionable provenance and accuracy and failed to see the procedural errors and self-evident abuses of process.

So far no human rights issues have been put before the court for consideration and they are operating on process alone.  This is giving them the advantage.  The human rights matters will put a spanner in that works.

Unless a truly independent capacity report is presented Ash Villa is being allowed to act as a judge in their own cause and that is contrary to natural justice.  The capacity report is obstructing everything here and while the county court is accepting it as justification for displacement in the most absurd and contradictory manner possible no progress will be made there.

It is utterly preposterous to suggest on the one hand that Elizabeth wants her mother to be displaced and on the other that she cannot decide where she might want to live.  It is nonsense to suggest that capacity could be that selective.  If Elizabeth wants to go to home that is an entirely separate issue to the NR case.  

It strikes me the council are deliberately conflating these two separate issues to achieve a single aim.  It is obviously not based on any fear of Susan applying for discharge.  That is no threat in any case.  This procedure is being used to ensure that discharge is to sheltered accommodation (out of area).  What is ridiculous about this is that once discharged Elizabeth can leave any such accommodation unless a separate injunction is applied preventing it.  There has been a case where the mother was injuncted from taking her son home for more than two days a week.  Note that even in those extreme circumstances the son was still allowed to stay with his mother for part of the week.

The LCC and LPFT are trying to do an end run around the MHA 1983, the MCA 2005 and the very recent common law cases is order to have it all their own way. They should not be allowed to do an end run around the ECHR and Human Rights Act provisions on privacy and the family, the right to a fair hearing and the right to freedom expression.  This is a blatant and quite startling disregard for human rights and the law right down to the most fundamental maxims of English law. Everyone knows that final decisions of any court cannot be made in secret or ex-parte and at the very best only interim orders can be made. 

Once again these abuses of process are trying to do an end run even around that principle. 

Two court of protection assessors visited Elizabeth at Ash Villa.  According to the court papers she had fluctuating capacity.  Her medication was increased from 400mg fortnightly to 400mg weekly plus 10 mg table form.    This huge increase in “medication” was the cause of fluctuating capacity but still she was not deemed to have NO CAPACITY which was the result LPFT and Council were looking for.

All the time Elizabeth had to listen to “professionals” running down her mother (myself) using gaslighting and coercion to achieve their ends.  At first it was working because she was approached so she told me during a time she had Covid and was very unwell.  Then she changed her mind.

She has been treated appallingly and left to go downhill – how would anyone like to be treated this way?   We did not ask for anything other than the depot to be provided and my former area are responsible for providing the care in any case.  The former area (Enfield) have neglected my daughter in the community previously which was subjected to Judicial Review and solicitors were successfully appointed but then they sectioned her unlawfully in haste to avoid Judicial Review.

From the minute we moved was the time bullying commenced first with the POA which Public Guardian saw in our favour and then followed months and months on end.

There is no way I would wish to challenge the NR through the court for the role of NR back that is my younger daughter. However to do what they did is most certainly not out of kindness or care in any way. It is pure abuse of power.

All physical health appointments cancelled as unnecessary where former area were taking health very seriously.   

abnormal findings on scan” mentioned twice was why I had the private scans done under a Tesla 3.

As regards capacity you involved the Court of Protection to take away the POA which there followed months and months of investigation into us as parents for malicious allegations on “psychological abuse” and the Public Guardian Office found in our favour.

If LPFT wanted a decision on forcing my daughter into supported living and housing out of area LPFT chose not to go down the correct route ie Court of Protection –  could this have been because the last Court of Protection case went in my daughter’s favour?

LPFT have cut me out consistently as a mother, treated me like a criminal, threatened me via the doctor in charge stating “I am banning you indefinitely for inciting your daughter to attack members of staff”  –  you have now concluded your investigation but we (myself and witness completed a section 9 statement even though we did not have to because of these serious threats which once again involved Police.  This is bullying tactics.

Now LPFT wish to talk about capacity and my daughter’s capacity which she has had all along.   LPFT had no advocate at this ward meeting and Elizabeth was able to relay everything in front of the supervising member of staff during my supervised phone call which is an infringement of human rights for a start.   

The issue is:   Does Elizabeth allow for staff on castle ward to film her and I understand she said “no” to that.

However, in the absence of an advocate:   Does Elizabeth want to go to Sheffield?   This question was unfairly sprung on her in the absence of any advocate present to support her.   When Elizabeth told me she did not wish to go it was because she was concerned at the transport.  She still is traumatised by being taken in a van – a caged van from Lincoln County Hospital to Ash Villa.      That was her explanation.  Secondly Elizabeth has made it clear that she wishes a member of her family to be present.  Section 17 leave will therefore need to be facilitated.    I see you are involving a MCA lead namely Tony Mansfield  It is a conflict of interest to carry out a capacity assessment by staff employed by LPFT as has been done at County Court. 

Why hasn’t any fresh capacity assessment been done as promised by Sharon Harvey?   (Then again if arranged by LPFT how can you trust anything they do. Elizabeth herself phoned to try to arrange this before LPFT took away her phone and locked it away in her locker making it impossible for her to make calls, receive text messages, listen to her music, see pictures of her cat.  Anyway hopefully matters will eventually be resolved as this is all about human rights which LPFT have discounted all along.

The last thing I wanted was to challenge and be in this position of having to defend myself and my daughter.  In the former area she was compliant with medication in the community and the former area were taking her physical health extremely seriously unlike here.

Clearly any capacity assessment needs to be done completely independently and Elizabeth called Mental Capacity Consult  to arrange this herself privately and has tried to appoint solicitors before the phone was taken from her by staff acting against human rights and this is still going on currently when it is stated in Ms Munro’s letter that restrictions had ended which is NOT TRUE.  That shows tremendous capacity for her to phone and try to arrange things herself that was before her phone was taken away.

I was supposed to visit on Tuesday but rather than go two days running I shall have to look to changing this to fit in with them because it is a long distance for me to travel there and back  Instead it is suggested 3.30 pm on Wednesday.

Elizabeth has said she would go to Sheffield as long as she does not have to go in a van and she has asked if I can be present to support her or even her sister although she is working right now.

Yours sincerely

Susan A Bevis   Mother and POA

Going to Sheffield is to be under specialist observation and we are keen for this to go ahead because of the frequent fits Elizabeth now suffers but our concerns are what Elizabeth has relayed a few days ago “I will not be here much longer”. So this meeting is to discuss what exactly??? as the correct procedure would have been for LPFT to seek a capacity assessment completely independently through the CoP or let her family arrange it. The issue at stake now is discharge to supported living once again when Elizabeth wants to be near to her family and come home. They want her to have no capacity so they can control and restrict contact for a lifetime no doubt placing her far away from home and family. There is no way anything can be classed as independent, true and honest if LPFT arrange or carry this out themselves as you can see from the above example of sheer dishonesty. This time, the decision will not be about getting rid of me but where THEY want to send her and so far a care home has visited situated far from home and family in W Sussex and even if it is Yorkshire or another area it will not make family relationships easy to maintain and under Art 8 Elizabeth is entitled to a family life. It is an absolute disgrace what LPFT and Lincolnshire County Council have done/are doing to the Elizabeth and this is affecting the family who have provided a nice independent home for her. There are other cases where sons/daughters have been sent far out of area which makes it difficult for them to see one another. I am in touch with such cases in this area and can see what damage this does to everyone. A total disgrace on the part of LPFT and the Council. It would be my former area of Enfield who would be paying for s117 aftercare and they have always wanted Elizabeth to be institutionalised for the rest of her life. We tried to provide a fresh start only to find even worse here in Lincolnshire. Supported living and housing has been tried and failed before and – this is just lining the pockets of wealthy business people who set up homes that are like an extension of hospital and their rigid prison style rules and restrictions just for the convenience of Lincolnshire Partnership Trust and Council combined so they can wash their hands of all responsibility.

This is going on all over the country and as a family. It is total abuse to send a vulnerable patient away from home and family in this way. This is all done to take control of everything and wash their hands. It has nothing to do with the wellbeing of the vulnerable patient.

From: CARECONCERNS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) <lpft.careconcerns@nhs.net>
Sent: 01 March 2024 14:51
To: susanb255
Subject: Wednesday 6th March 2024

Dear Mrs Bevis,

A meeting has been organised for you to meet with the Trust Mental Capacity Lead, Tony Mansfield, and Dr Khokhar on Wednesday 6th March at 3:30pm to discuss Elizabeth’s ongoing care and treatment, and Elizabeth’s capacity for decision making in relation to this.

This meeting will take place face-to-face at Peter Hodgkinson Centre and will last for a duration of 45 minutes.

Kind regards,

The Mental Health Act Team.

HERE ARE ELIZABETH’S WISHES:

FRIDAY 10TH NOVEMBER 2023 IN FRONT OF A HCA SUPERVISING:

“I WANT TO EVENTUALLY COME HOME TO LIVE WITH MY MUM IN THE ANNEX THROUGH COURT OF PROTECTION” “I MISS MY MUM GREATLY AND WANT TO GO HOME TO HER.”

MESSAGE TO LPFT: I WILL NEVER GIVE UP THROUGH THE LEGAL SYSTEM IN FIGHTING FOR MY DAUGHTER TO COME HOME. SHE HAS HAD NOTHING BUT ABUSE SINCE COMING TO THIS AREA AND WE HAVE ENCOUNTERED BULLYING FROM SOCIAL WORKERS. WHILST THE SYSTEM IS ROTTEN TO THE CORE AND YOU BOTH SHOW THIS BY EXAMPLE, THIS DOES NOT GIVE EXCUSE FOR DISHONESTY AND BULLYING. HERE IS WHAT I THINK:

“YOU ARE A DISGRACE AND NEED EDUCATING IN HUMAN RIGHTS”. YOU TREAT VULNERABLE PEOPLE LIKE DIRT AND YOU DO NOT RESPECT CARERS WHO QUITE RIGHTLY HAVE GOOD CAUSE TO CHALLENGE. THAT GOES TO MY FORMER AREA OF ENFIELD TOO BECAUSE WE WOULD NOT HAVE MOVED IF THERE WAS A GLIMMER OF THE BASIC NECESSITY OF CONTINUATION OF THE SO CALLED MEDICATION IN THE COMMUNITY. WE DID NOT EXPECT ANYTHING MORE THAN THAT.

YOU ARE IN BREACH OF THE LAW AND THIS NEEDS TO BE CHALLENGED BECAUSE IT IS OF PUBLIC INTEREST AS IT IS PUBLIC MONEY THAT HAS BEEN WASTED BY TRUST AND COUNCILS IN BOTH AREAS. I AM HAPPY TO FEATURE ALL OF THIS PLUS OTHER AREAS TOO.

MORE THAN THAT THE ISSUE OF THE TESLA SCANNERS NEEDS TO BE ADDRESSED IN EVERY TRUST NATIONWIDE BEFORE MORE LIVES ARE LOST.

REGISTER OF GOVERNORS’ DECLARATION OF INTERESTS 2023-2024 08.01.2024
Date of Disclosure
Constituency/Stakeholder
Organisation Name Political Party
Interests Other Interests
01.10.2023 Staff: Adult Inpatient Services (1) Debbie Judge TBC TBC
01.10.2020 Staff: Adult Inpatient Services (2) Helen Smith Nil Nil
01.10.2023 Staff: Adult Community Services (1) Dan Fleshbourne Nil • Nicola Fleshbourne works as a Peer Support Worker for the LPFT in the Community

Rehabilitation team.

  • Currently working with @RAMOSGOMEZ,Carmen around Carers Rights Day ‘23
  • Bank HCA (LPFT)
  • Member of UNISON
  • Co-opted at Unison Lincolnshire BEC as Joint EDI Officer, no affiliation to the funding of any
    specific party.
  • 01.09.2022 Staff: Adult Community Services (2) Andrew Leaston Member of the
    Labour party
    Nil
    01.10.2020 Staff: Corporate Services Laura Suffield Nil Nil
  • Staff: Specialist Services (1) VACANT – AWAITING NOMINATION
    15.09.2017 Staff: Specialist Services (2) Lisa Norris Nil
    Updated:
    05.06.2020
    Nil
    Updated: 05.06.2020
    1.3
    2
    Staff: Older Adult Services (1) VACANT – AWAITING
    NOMINATION
    10.10.2016 Staff: Older Adult Services (2) Jacky Tyson Nil Nil
    Updated: 19.01.2022
    01.10.2021 Public: Borough of Boston Marlene Fullwood Nil Nil
    01.10.2023 Public: City of Lincoln Alexandra Chambers Nil • I work for Development and Community
    Development charity and I am founder of project neurotopia. A new neurodivergent support hub.
    01.10.2021 Public: East Lindsey Emma Slack Nil • Ongoing complaint against another NHS
    Trust (outside of Lincolnshire) in relation to the care of a close relative and involving the Health Service Ombudsman.
    Updated: 17.11.2021
  • Current complaint with local GP regarding waiting times for medication, advanced through Healthwatch and referred to CCG.
    Updated: 23.05.2022
  • Current volunteer at RAF Association
    Connections for Life
    Updated: 19.07.2022
    07.10.2021 Public: North Kesteven Carole Hagan Nil Nil
    01.10.2023 Public: South Holland Reverend Jonathan Sibley
    Nil Nil
  • 01.10.2021 Public: South Kesteven Debbie Abrams Nil • Trustee Restless Legs Syndrome UK
    (charity)
    Updated: 15.10.2021
  • Husband is a volunteer with Healthwatch
    Steering Group 3
    Updated: 21.09.2022
  • Virtual ULHT patient improvement panel
  • Member of local surgery patient
    participation group and as a representative
    of this group attends Lincolnshire Patient
    Participation group 4 times a year.
    Updated: 24.10.2023
    Public: Rest of England VACANT AWAITING –
    NOMINATION
    01.10.2021 Public: West Lindsey David Docherty Nil • Currently employed with East Midlands
    Ambulance Service to provide NHS Estates advice and assurance. Attends ICS property
    boards for Nottinghamshire, Derbyshire, Leicestershire and Northamptonshire.
    Updated: 01.12.2022
    06.08.2020 Service User (1) Rebecca Mezzo Nil • Suicide Intervention trained by Asist
  • Sleaford Dementia Support Trustee
  • CEOP Ambassador
  • Girlguiding leader- age group 10-14 years
  • Dementia Friends Champion
  • Sister works Peterborough City Hospital.
    01.02.2020 Service User (2) Michael Regan Nil • Service veterans’ clubs in Sleaford and Lincoln
    Service User (3) VACANT AWAITING –
    NOMINATION
    Service User (4) Alice Barton Nil Nil
    Service User (5) VACANT AWAITING –
    NOMINATION
    4
    Service User (6) VACANT AWAITING –
    NOMINATION
    Service User (7) VACANT AWAITING –
    NOMINATION
    28.09.2022 Carer: General (1) Amanda Whitehead Nil • Owner/ Health and Nutrition Coach –
    Purposefully Nourished
  • Health & Wellbeing Director – The Wellness
    Network CIC
    Updated: 07.12.2022
    01.10.2022 Carer: General (2) Sally Spencer Nil • Works in the Business Support department
    at Lincolnshire County Council
  • Member of the LPFT Carers Council
  • Member of the Carers Education Group
    Updated: 21.12.2022
    28.09.2022 Carer: General (3) Diane Fox Nil • Bank Midwife at Northern Lincolnshire and
    Goole NHS Foundation Trust
  • Trainee Neuordevelopment Practitioner for Healios as of 17.10.2022
  • Vice Chair of Maternity Autism Research
    Group (MARG) – bringing researchers and health professionals together to improve care for autistic people in Maternity Care
    Carer: Younger People VACANT – AWAITING NOMINATION
    31.05.2023 Stakeholder: Lincolnshire
    Integrated Care Board
    Pete Burnett Nil • Wife is Director of Midwifery and Deputy Chief
    Nurse at University Hospitals Leicester
  • Mother-in-law is a Primary Care Commissioning
    Manager in Nottinghamshire ICB
  • Sister-in-law employed in a Project Management role for the East Midlands Academic Health Science Network 5
  • Sister-in-law’s partner is a Finance Manager for NEMS Nottingham
  • Brother-in-law’s partner is a technician in the Nottingham division of East Midlands Ambulance Services (EMAS)
    Stakeholder: Healthwatch VACANT – AWAITING
    NOMINATION
    15.02.2021 Stakeholder: Lincolnshire County Council (LCC) (1)
    Cllr Colin Matthews Member of the Conservative Party
    (Conservative Party Councillor)
  • Poplar Farm Caravan site, shop, craft room
    and tea room, Owner and operator.
  • Executive Support Councillor for NHS Liaison, Community Engagement,
    Registration and Coroners
  • Member of Children and Young People Scrutiny Group
  • Member of Corporate Parenting Panel
    Member of Definitive Map and Statement
    of Public Rights of Way sub-committee
  • Member of Gibraltar Point National Reserve Joint Advisory Committee.
  • Member of Local Government Association – Coastal Special Interest Group.
  • Member of Snipe Dales Joint Advisory Committee
    Updated 26.05.2022
    22.07.2022 Stakeholder: Lincolnshire County Council (LCC) (2)
    Cllr Robert Kendrick Member of the Conservative Party
    (Conservative Party Councillor)
  • Former employee of LPFT – Voluntary
    Services Manager
    Updated 22.07.2022
    6
    Stakeholder: Lincolnshire
    Partnership NHS Foundation Trust
    Volunteers
    VACANT –
    AWAITING
    NOMINATION
    10.03.2022 Stakeholder: Shine Lincolnshire Rachel Wright Nil • CEO of Shine Lincolnshire who hold a
    contract with LPFT.
    01.10.2023 Stakeholder: University of Lincoln Lesley Gratrix Nil Nil
    31.05.2023 Stakeholder: Lincolnshire Police Chris Davison Nil • Assistant Chief Constable at Lincolnshire Police
    19.07.2022 Director of Corporate Governance Jenna Davies Nil Ni

Trust Board Members

Julie Frake-Harris, Chief Operating Officer at United Lincolnshire Hospitals NHS Trust, said:

 “Our hospitals offer the correct and appropriate equipment for medical imaging, including 1.5 Tesla MRI scanners, which allow our experienced clinical teams to scan all our patients to a high diagnostic quality. 3 Tesla MRI scanners would usually only be in place at specialist tertiary centres, where they have a specific need for neurosurgery or research. ULHT does not provide this type of specialist service. 

“We are commissioning four new state-of-the-art 1.5 Tesla MRI scanners in Lincolnshire this year, which is more appropriate for the wide variety of patients we care for, is safer for their clinical needs and offers a more comfortable experience during a scan. The new software allows comparative image quality and speed to a 3T without the additional risk.

“If any patients or carers have any questions about their care, we would encourage them to discuss them with us so we can address any concerns they may have.”

Our Trust Board

The overall purpose of the Trust Board is to take responsibility for leading, governing and managing the organisation and all of its services.

Led by an independent chair and composed of a mixture of both executive and independent non-executive directors, the Trust Board shapes the strategic direction, vision and purpose of the trust and ensures it delivers value for money services. The Trust Board is also responsible for assuring that risks to the organisation and the public are managed and mitigated effectively.

Questions from the public at board meetings

Questions are welcomed from members of the public and these can be submitted to the Trust Board by emailing lhnt.lchsecomms@nhs.net or by completing the form below.

Trust Board meetings, whilst held in public, are not public meetings. This means that the public are very welcome to view the broadcast and our Chair will conduct a short item before the start of each public Trust Board meeting to acknowledge and where possible respond to questions from the public which have been submitted in writing in advance of the meeting. Questions can be accepted until the Sunday before each Trust Board meeting.

Subject matter for questions

The Chair reserves the right to refuse any written question that:

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  • is defamatory or offensive, or related to individual members of staff;
  • would require the disclosure of confidential or exempt information;
  • Is deemed to be overtly political;
  • is substantially the same as a question that has been answered before.

The next Trust Board meeting will be held at 10am on:

Tuesday, 12 March

The meeting will be held in person. If you wish to attend, please contact: lhnt.lchsecomms@nhs.net or call the Chief Executive’s Office on 01522 308686.


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Meeting dateVenue
Tuesday, 9 JanuaryClick here to watch a recording of the meeting
Tuesday, 12 MarchVirtual (link to be added soon)

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 Risk Appetite StatementBack to About Us Date Last Modified 19/02/2024

Subject matter for questions

The Chair reserves the right to refuse any written question that:

  • is not within the powers and duties of the Trust to answer;
  • is defamatory or offensive, or related to individual members of staff;
  • would require the disclosure of confidential or exempt information;
  • Is deemed to be overtly political;
  • is substantially the same as a question that has been answered before.
Meeting dateVenue
Tuesday, 9 JanuaryClick here to watch a recording of the meeting
Tuesday, 12 MarchVirtual (link to be added soon)

Please submit a question for our Trust Board

Name RequiredEmail Address RequiredTelephone Number RequiredPlease submit your question RequiredPlease type the letters and numbers shown in the image. Click the image to see another captcha.

“If any patients or carers have any questions about their care, we would encourage them to discuss them with us so we can address any concerns they may have.”       YES I DO AND I WANT TO DISCUSS THIS IN AN OPEN TRANSPARENT MANNER. I HAVE ENORMOUS CONCERNS REGARDING ELIZABETH AND SCANS AS YOU DO NOT HAVE AN ACCURATE SCANNER. I HAVE HAD A LETTER FOR SCREENING AND WISH FOR BOTH HER AND MYSELF TO BE REFERRED TO SHEFFIELD FOR THE ACCURATE TESLA 3. WHEN YOU TALK ABOUT NEW SOFTWARE – IT IS NOTHING TO DO WITH THE SOFTWARE. WHERE DID YOU GET THIS INFORMATION FROM AS IT IS TOTALLY WRONG AND INACCURATE. WHAT IS YOUR TECHNICAL KNOWLEDGE OF TESLA SCANNERS AND SOFTWARE TO WHICH YOU SPEAK? WHAT IS THE SOURCE OF YOUR INFOMATION AND WHO TOLD YOU?

The new software allows comparative image quality and speed to a 3T without the additional risk.

That is totally wrong!

The acuity and resolution of the scanner is determined by the strength of the magnets measured in Teslas not by imaging software.  

No amount of software can resolve an image that has not been picked up in the first place.

The analogy is the James Webb telescope.  Its acuity and resolution come from it mirrors.  They ‘find’ the image the software only cleans it up.

If you use sophisticated software with a low resolution image it will not allow you to see something the ‘lens, mirror or magnet did not see in the first place. 

MY QUESTION ABOVE GOES TO JULIE FRAKE-HARRISON:

Julie Frake-Harris – chief operating officer

Julie Frake-Harris

Julie joined LCHS as Interim Chief Operating Officer (COO) in July 2023, and recently became Interim Chief Operating Officer at ULHT alongside this role. Julie has worked in the NHS for over 25 years, during this time she has had the privilege to delivery services across London, Cambridge, Peterborough, and Kent. She has a passion for integrated community and mental health services and held COO roles in community and mental health settings and in an acute trust during the COVID-19 pandemic.

She held her first director role championing forensic and integrated prison services before moving to Cambridge and Peterborough to be the architect of the Neighbourhood Team model for Cambridge and Peterborough NHS Foundation Trust (CPFT). She has held system leadership roles and worked to develop with partners services closest to home across Kent and CPFT. She is committed to operational delivery for the communities we serve.

She lives in Cambridgeshire with her family and 4 dogs.

Malcolm Burch – trust board chair

Malcolm Burch

Malcolm has had a career that spans universities, local government, policing and the NHS. Throughout his career, he has been focused on involving the public in service provision and supporting better performance and improved outcomes.

In the NHS, he was a non-executive director in Lincolnshire’s mental health trust for six years and before that spent four years as a commissioner as part of a Primary Care Trust in Peterborough and Cambridgeshire.

He has three degrees, including an MBA from the University of Birmingham, and works as the chief executive to the Lincolnshire Police and Crime Commissioner. He has lived and raised his family in the county for 15 years.

Andrew Morgan – group chief executive for LCHS and ULHT

Andrew Morgan August 2022.jpg

Andrew has worked for the NHS since 1982. From August 2023 Andrew became the Group Chief Executive for LCHS and ULHT. He joined United Lincolnshire Hospitals NHS Trust as their Chief Executive in June 2019. Prior to this, Andrew was the Chief Executive of Lincolnshire Community Health Services NHS Trust from June 2014 to June 2019.

He has been a Chief Executive since 2004 and has held Chief Executive posts at East of England Ambulance Service NHS Trust, NHS Norfolk and Waveney, NHS Bedfordshire and NHS Harrow. His earlier NHS career included a range of director posts at NHS organisations around the country, including in commissioning, performance management, strategy and service improvement. Andrew is married and has a grown up daughter.

Executive directors

Professor Karen Dunderdale – executive chief nurse

Professor Karen Dunderdal

Karen has held board level roles as a Chief Nurse, Chief Operating Officer, Deputy CEO and acting CEO. In addition, she held the role of vice chair of her local hospice for a number of years. Her more recent role as director of nursing was at Walsall Healthcare Trust where her leadership supported the Trust achieve Outstanding for Caring. Karen qualified as a registered nurse in 1991 and her clinical experience has been in cardiology. She became a cardiac nurse specialist developing cardiac rehabilitation and heart failure services. She has a PhD in Health Related Quality of Life in Chronic Heart Failure from York University, has contributed substantially to the development of cardiac nursing, and raised expectations nationally within the nursing profession. In 2017 Karen joined the National nursing team at NHS Improvement working for Dr Ruth May, Chief Nursing Officer for England contributing to the wider nursing and patient experience agenda. Karen is passionate about delivering high quality fundamental nursing care.

Claire Low - Director of people and innovation

Claire Low – director of people

Claire joined the Trust in October 2023 in an interim role alongside her role at United Lincolnshire Hospitals NHS Trust where she has worked as deputy director of people and organisational development since December 2021 before starting work in the director position in October 2022. She has a long career spanning over 20 years of working in people services within the NHS and acute trusts and has worked in operational HR, recruitment, transformational projects and deputy director roles, and more recently acted as Director of People at Northern Lincolnshire and Goole Hospitals NHS Trust for a period of two years. Claire is passionate about the people agenda and investment in training and development of staff, she graduated from her part-time MBA, which she completed under the apprenticeship scheme at her previous Trust. Claire is also a Chartered Fellow of the CIPD and is embedding a ‘just and learning’ as part of the transformation agenda for the People Directorate.

Sam Wilde – director of finance and business intelligence

Sam Wilde

Sam joined LCHS as interim director of finance and strategy on June 1, 2018, having worked as associate director of finance for Norfolk Community Health and Care NHS Trust.

Sam graduated in 1996 having studied finance and accountancy before going on to complete an MBA at Durham University. He has worked in the NHS for six years interspersed with experience of working in the private sector for Rolls Royce PLC and Astra Zeneca.

 

Dr Anne-Louise Schokker – medical director

Dr Anne-Louise Schokker

Dr Anne-Louise Schokker is the Medical Director and a Consultant Geriatrician. After completing her medical degree and post graduate training in London, she moved to the East Midlands as a consultant in 2007 where she gained extensive clinical experience in general medicine and geriatrics across secondary care and community settings. Her leadership journey began as a junior doctor and she has been passionate about compassionate, clinical leadership since. She has held divisional clinical director and deputy medical director roles where she delivered turn around improvements in nonelective care, successfully transformed integrated services across providers and advanced the quality agenda. She is also a regional clinical associate for the NHSE ECIST team. She lives locally in Lincolnshire with her husband, daughter and extended family.

Julie Frake-Harris – chief operating officer

Julie Frake-Harris

Julie joined LCHS as Interim Chief Operating Officer (COO) in July 2023, and recently became Interim Chief Operating Officer at ULHT alongside this role. Julie has worked in the NHS for over 25 years, during this time she has had the privilege to delivery services across London, Cambridge, Peterborough, and Kent. She has a passion for integrated community and mental health services and held COO roles in community and mental health settings and in an acute trust during the COVID-19 pandemic.

She held her first director role championing forensic and integrated prison services before moving to Cambridge and Peterborough to be the architect of the Neighbourhood Team model for Cambridge and Peterborough NHS Foundation Trust (CPFT). She has held system leadership roles and worked to develop with partners services closest to home across Kent and CPFT. She is committed to operational delivery for the communities we serve.

She lives in Cambridgeshire with her family and 4 dogs.

Non-executive directors

Ian Orrell

Ian Orrelll

Ian joined LCHS in February 2023, on an interim basis. Ian has a wealth of experience in the public sector, particularly with large and complex councils. He has experience of working within senior corporate leadership teams to help reshape and deliver quality frontline adult and children social care services, as well as delivering professional support services.

Ian also has over 30 years as a qualified accountant and previous experience in non-executive roles where partnership approaches were taken to improve service provision.

Gail Shadlock

Image of Gail Shadlock

Gail is a highly experienced director with a professional background in human resources and organisational development and extensive general and project management experience working in the UK and abroad. Gail has worked both as an executive director and as a non-executive director and has led and contributed to significant transformational change across the following sectors; private sector – FTSE 100 and FTSE 350 (major projects include mergers, acquisitions and flotation of a company on the London Stock Exchange); public sector – NHS, police, local government; third/not for profit sector – charity supporting people with learning disabilities and a housing association with a national footprint.

Murray Macdonald

Murray Macdonald

Murray Macdonald has had a varied career across a number of sectors. He started in the commercial leisure sector managing a number of venues, before moving into regeneration and project management with local authorities.

Currently, Murray is Chief Executive of Boston Mayflower Housing Association, where he is responsible for all operational aspects of the company including housing management, asset management, regeneration, older peoples’ services and development.

Murray is an experienced Non-Executive Director, with posts currently also held with Lincolnshire Community Voluntary Service and Speedwell Homes.

Jim Connolly

Jim Connelly

Jim has a had a varied career in the NHS as a nurse, working in a range of clinical, managerial and executive roles. He worked as a Director of Nursing and was the National Director for Continuing Healthcare with NHS England. In addition he works with the Care Quality Commission as a specialist advisor on governance. Prior to joining LCHS he was a Non Executive Director at Lincolnshire Clinical Commissioning Group and is supporting the vaccination programme as a vaccinator at the Meres Clinic in Grantham. HOW EXACTLY ARE YOU INDEPENDENT??? IS IT NOT A CONFLICT OF INTEREST WORKING FOR THE CQC?

Rebecca Brown MBE

Rebecca Brown portrait.jpg

Rebecca Brown began her career in the NHS as a nurse in 1989.

From 2012 to 2016 Rebecca was Deputy Chief Operating Officer at Northampton General Hospital.  In 2016 Rebecca took on the role of Chief Operating Officer and Deputy Chief Executive at Kettering General Hospital. In 2018 She joined Leicester’s Hospitals as Chief Operating Officer and Deputy Chief Executive. She took on the role of Chief Executive in early 2020. Rebecca successfully lead the Trust during the pandemic, with Leicester Hospitals leading nationally on research and treatment of Covid.

Rebecca has played an integral role in the development of wider system and partnership working within the NHS and latterly with social care, local government and the independent sector.

In 2000, Rebecca was awarded the MBE by Her Majesty the Queen for Services to Nursing.

Rebecca also holds a Non Executive role for ULHT. Date Last Modified 29/02/2024

I managed to get to speak to my daughter who was passed her mobile phone kept locked away in the office right now which according to LINCOLNSHIRE PARTNERSHIP TRUST IS IN LINE WITH HUMAN RIGHTS.

I was worried for her safety the other day having heard she was having an episode.

I am going to write all about the injury my daughter is suffering and the frequent episodes and constant rapid tranquilisations Castle Ward are giving on virtually a daily basis. I now want all the scans re-looked at as nothing can be relied upon under Lincolnshire who only have a 1.5 scanner. In my previous blogs I have included some interesting research papers on 1.5 MRI as opposed to Tesla 3. A Tesla 3 is why the private scans I had done revealed details not visible on a 1.5 scanner and I am warning everyone to check on which scanner their Trust has.

The restrictions are supposed to have ended on 5 February but continue with phone locked away and visits heavily restricted 2-1 supervised. Elizabeth said she misses not being able to listen to music on her phone. I am going to invoice LPFT for the contract as it is not being used. It was during my conversation with Elizabeth that she mentioned Castle Ward want to film her on the advice of the Neurologist when she has an episode. How can this be accurate and I want things accurate and to be 100% sure and the only way for this is for Elizabeth to be referred under S17 leave to Sheffield where they have a Tesla 3 scanner and a proper ward for neurology. This would need to be granted by Dr Waqqas khokhar as currently she has no leave entitlement whatsoever. Elizabeth said she did not want to be filmed by the MH team but did not mind being monitored by the Neurologist team in Sheffield provided she was given a takeaway. I said I am sure this could be arranged. Elizabeth would need to be closely monitored but this is essential. She said she would be happy to be monitored by experts in Sheffield . I am now extremely concerned that the MH team will try and send her to a supported living to avoid any pathological tests that need to be done because of the frequent fits. This must be determined first and foremost in a specialist hospital. Elizabeth has said on numerous occasions she does not wish to go into supported living which has been tried and totally failed before especially when she has an independent bungalow and even a two bed static caravan in the back garden. I am appalled and disgusted at what LPFT are doing when all along they should have taken a strong interest in her physical health and I am disclosing some interesting information below and the disturbing facts.

Subject: Neuroplasticity and Rapid Tranquillisation!

Neuroplasticity & Concomitant Drug ADRs:     

Here are some potential explanations for the psychomotor ‘episodes’ Elizabeth has been experiencing.   

The reason the episodes are getting more frequent is explained below.  The frequency of the PRN is so short that the previous dose has not fully metabolised before they give her another one. 

There is also a possibility that the depot anti-psychotic medication concomitantly administered with rapid tranquillisation is causing psychomotor dysfunction. 

Chronic treatment with antipsychotic medications like Clopixol has been associated with alterations in brain structure and neuroplasticity, including changes in grey matter volume, dendritic spine density, and synaptic connectivity.

Benzodiazepines have also been shown to influence synaptic plasticity, albeit through different mechanisms. 

The concomitant use of Clopixol and benzodiazepines may potentially interact to modulate neuroplasticity.

Chronic benzodiazepine use, such as repeated PRN rapid tranquillisation may be associated with alterations in brain structure and function. These changes may include reductions in grey matter volume, alterations in neurotransmitter systems, and neuroplastic changes.  Neuroplastic changes will show up on a 3 Tesla MRI scanner.  Presumably that is why certain people might not want such a scan done.  

Neuroplastic changes can be detected using a 3 Tesla magnetic resonance imaging (MRI) scanner. A 3 Tesla MRI scanner is a powerful imaging tool that provides high-resolution images of the brain and has become the standard in clinical and research settings for studying brain structure and function.

Neuroplasticity refers to the brain’s ability to reorganize and adapt in response to experiences, learning, and environmental stimuli. These changes can occur at various levels, including alterations in synaptic connectivity, changes in neuronal morphology, and modifications in functional connectivity between brain regions.

With advanced imaging techniques such as functional MRI (fMRI), diffusion tensor imaging (DTI), and structural MRI, researchers and clinicians can visualize and quantify neuroplastic changes in the brain.

Here are a few examples of how neuroplasticity can be observed using a 3 Tesla MRI scanner:

1.     Functional MRI (fMRI): fMRI measures changes in blood flow and oxygenation levels in the brain, which reflect neuronal activity. By analysing fMRI data, researchers can identify changes in brain activation patterns associated with learning, memory, and other cognitive processes, providing insights into neuroplasticity.

2.     Structural MRI: Structural MRI techniques can detect changes in brain structure, including alterations in grey matter volume, cortical thickness, and white matter integrity. These changes may result from neuroplastic processes such as dendritic growth, synaptogenesis, and myelination, which can be visualized and quantified using high-resolution structural MRI scans.

3.     Diffusion MRI (DTI): DTI measures the diffusion of water molecules in brain tissue and provides information about the microstructural organization of white matter pathways. By analysing DTI data, researchers can map changes in white matter integrity, such as alterations in fibre density, orientation, and connectivity, which are indicative of neuroplastic changes in the brain.

Overall, a 3 Tesla MRI scanner is capable of detecting and characterising neuroplastic changes in the brain, providing valuable insights into the mechanisms underlying learning, memory, recovery from injury, and adaptation to environmental stimuli. These imaging techniques play a crucial role in advancing our understanding of neuroplasticity and its implications for brain health and function.

Repeated rapid tranquilization with benzodiazepines can potentially lead to psychomotor dysfunction, although the likelihood and severity of this side effect may vary depending on factors such as the specific benzodiazepine used, the dosage, frequency of administration, individual susceptibility, and concurrent use of other medications.

Psychomotor dysfunction refers to impairments in motor coordination, reaction time, and cognitive function, which can manifest as symptoms such as drowsiness, dizziness, confusion, ataxia (loss of coordination), and impaired judgment.  (this is what they mean by episodes) Benzodiazepines exert their effects on the central nervous system by enhancing the activity of the neurotransmitter gamma-aminobutyric acid (GABA), which can lead to sedation and relaxation.

During rapid tranquilisation, benzodiazepines are often administered to quickly alleviate acute agitation, aggression, or psychosis in emergency situations. While benzodiazepines can effectively reduce agitation and aggression, they can also cause sedation and other central nervous system depressant effects, particularly at higher doses or with rapid administration.

Repeated administration of benzodiazepines for rapid tranquilization may increase the risk of cumulative sedation and psychomotor dysfunction, especially if doses are given close together or if there is insufficient time for the drug to be metabolized and eliminated from the body between administrations. Additionally, certain factors such as age, medical conditions, and concurrent use of other medications may increase the susceptibility to benzodiazepine-induced psychomotor dysfunction.

Metabolism of benzodiazepines primarily occurs in the liver, where they undergo hepatic biotransformation mediated by various cytochrome P450 (CYP) enzymes, particularly CYP3A4, CYP2C19, and CYP2D6. Endocrine dysfunctions can affect the activity of these metabolic enzymes through various mechanisms, potentially leading to alterations in benzodiazepine metabolism.

It is essential for healthcare providers to carefully monitor patients who receive repeated rapid tranquilization with benzodiazepines for signs of psychomotor dysfunction and to adjust treatment accordingly to minimize the risk of adverse effects. Alternative strategies for managing agitation and aggression should also be considered, and the use of benzodiazepines should be limited to situations where the benefits outweigh the potential risks.

There is evidence to suggest that chronic benzodiazepine use may be associated with alterations in synaptic plasticity, which refers to the ability of synapses to strengthen or weaken over time in response to activity. Chronic benzodiazepine use has been shown to lead to changes in neurotransmitter systems, including alterations in GABA receptor expression and function, as well as changes in the density and morphology of dendritic spines, the small protrusions on neurons where synapses form.

These changes in synaptic plasticity may have implications for neuronal connectivity and brain function, although the extent to which benzodiazepines directly disrupt synaptic connectivity is not fully understood. Additionally, the clinical significance of these changes in synaptic plasticity in relation to the therapeutic effects and potential side effects of benzodiazepine use requires further investigation.

The increase in the frequency of the episodes you describe could indicate a condition known as dopamine supersensitivity psychosis.  This is seen both with typical and atypical antipsychotics.  The prolonged use of anti-psychotics that are not working due to her inability to metabolise anti-psychotics gives rise for concern.  Has it not crossed anyone’s mind in that ‘treatment team’ that in spite of being on Clopixol for years she has not shown any sign of it being efficacious.    

Since Elizabeth has never fully responded to the anti-psychotic medication they give her and they use PRN benzodiazepines for rapid tranquillisation far too frequently it is not surprising that she is having psychomotor problems.  In effect this is another form of TD.  If she is supersensitive then any dopamine antagonist could very well be causing this ADR.  

A high resolution scan will indicate inflammation in the meso-limbic pathway affecting the dopamine receptors.  The 1.5 Tesla scanner does not have sufficient resolution to do this. Inflammation can cause psychomotor problems as well as psychotic symptoms.  Perhaps if they took the time to look for this specific adverse reaction they might not conclude the rather odd idea that the scan is normal.    

By the way, the information I have on this is from The British Journal of Psychopharmacology just in case LPFT decide to dismiss this also.  

Why 3T is necessary for detecting lesions

· ■ In more than 500 follow-up images, only four of 1996 new or enlarged multiple sclerosis lesions would have been missed with 3.0-T MRI without the administration of contrast material.

· ■ With 3.0-T MRI, the assessment of interval progression did not differ between contrast-enhanced and nonenhanced images.

Introduction

Inflammatory lesions in multiple sclerosis (MS) are detected as focal areas of high signal intensity on T2-weighted MR images. By depicting newly occurring lesions, MRI reveals subclinical disease activity. Therefore, regular follow-up MRI is considered a mainstay of clinical care for patients with MS or clinically isolated syndromes.

Earlier studies have reported that the administration of contrast material is necessary to maximize sensitivity for detecting new lesions. However, these results date back more than 2 decades and were based on two-dimensional images obtained with 4–5-mm-thick sections at magnetic field strengths of 1.5 T and lower.

MRI units with higher field strengths have become widely available, especially for brain imaging. In addition, three-dimensional isotropic MRI sequences were introduced and were shown to outperform conventional two-dimensional sequences in lesion depiction; they are therefore part of recommended MRI standards in MS . Furthermore, the double inversion-recovery (DIR) sequence was introduced. Although this sequence is best known for its ability to depict cortical lesions, it is also useful for depicting white matter lesions Recently, longitudinal subtraction techniques have been developed that show new or enlarged lesions as bright spots while pre-existing lesions and normal-appearing brain parenchyma are canceled out.* Such techniques substantially improve the sensitivity in the detection of new or enlarged lesions in MS at follow-up imaging.

We hypothesized that the use of contrast material does not improve sensitivity in the detection of new or enlarged lesions at follow-up MRI when modern three-dimensional sequences performed at a field strength of 3.0 T are used together with longitudinal subtraction maps. We therefore performed this study to investigate whether the use of contrast material has an effect on the detection of new or enlarged MS lesions and, consequently, the assessment of interval progression.

*The private 3T scans are much more able to see the lesions that the inappropriate 1.5T scanner cannot see.

The higher resolution scans cancel out the distortions and signal noise that hide the lesion and make the scan look normal.

1.5T MRI scanners are not fit for purpose in discovering brain lesions and inflammation.

Brain lesions and inflammation, especially in the temporal lobe are responsible for poor drug response and in some cases for diagnosis.

1.5T scans are responsible for false negative (normal) brain images.

EXAMPLE OF MISDIAGNOSIS

A woman who was told she had anxiety was later diagnosed with Autoimmune Basal Ganglia Encephalitis, a rare brain condition.

When Evie Meg, 23, was a teenager, she began to suffer bouts of panic and psychosis, and was diagnosed with anxiety disorder by doctors.

Meg began experiencing seizures when she was 17, along with temporary limb paralysis that left her unable to walk for a month, but was still told that it was due to anxiety.

Frustrated with the diagnosis, the then-teenager began sharing her symptoms and experiences on TikTok, where she was reached out to by a concerned follower.

“I posted a video of me walking across my kitchen without crutches, just taking a few steps,” Meg explains. “That video went viral and the support from it was amazing. People were saying how proud they were that I’d learnt to walk again. It just went from there, really.

“In 2021, I started getting loads of messages from this girl who had been commenting on all of my TikTok videos, saying I should look into this condition. She had it and she was so convinced that I had it.”

Because of this interaction, Meg booked in to see a specialist who diagnosed her with the brain inflammation disorder.

“When I got the diagnosis, we’d had to go private to find a specialist,” Meg says. “The NHS just don’t know what to do with me, because it’s such a complex and unusual condition.

“I have daily seizure activity. I have really severe pain above my right eye, and I haven’t been able to walk properly since May 2023. I get a lot of tiredness. It affects my mood quite a lot as well, I can get really upset or angry for no reason.”

Meg says she was put on antibiotics and steroids upon diagnosis, which stopped her seizures.

“It was crazy how quickly things turned around. I couldn’t believe it,” she adds. “We stayed with the doctors in London for a while, but I started becoming resistant to the antibiotics.

“Because my condition was not diagnosed for such a long time, it was allowed to progress and get a lot worse. It means it’s much more difficult to treat now, so we had to look for more intense options.”

Meg adds that her mum began researching the infusions that she needed and found a clinic in Poland that offered them – but at at £20,000 price tag.

“Last year, when I went to Poland for tests, they found loads of other infections in my blood, which could be causing the brain inflammation,” she adds.

“The SOT I had in January was to treat one of the infections, but we’re very early days – we’ve got to treat each one individually. Because they found so many, they have to do it multiple times to treat each infection. The next year or so for me is looking like a lot more SOT infusions – but I’m taking it one day at a time.”

Meg and her family have begun a fundraising campaign to help her have the treatment she needs, and have raised over £16,000 so far.

“The support has been pretty insane,” she says. “We had a local fundraiser in a church hall, and we raised over £4,000 just doing tombolas and raffles in that one afternoon.

“It’s been incredible – very overwhelming but in the best way. I became a lot more passionate about raising awareness when I got my correct diagnosis, because it just showed how it can be missed so easily. I really want people to know that and see that so that other people don’t go through what I did.”

Autoimmune Basal Ganglia Encephalitis is estimated to affect just 1.5 in every 100,000 people in England, and is characterised by the rapid development of akinesia, rigidity, and tremors.

It is a form of Encephalitis, which the NHS says is “an uncommon but serious condition in which the brain becomes inflamed”. The very young and the very old are the age groups most at risk.

Some symptoms of Encephalitis include seizures and fits, confusion, disorientation, changes in personality or behaviour, difficulty speaking, and weakness or loss of movement in parts of the body.
It adds that causes are not always clear but, rarely, it can be caused by common viruses such as herpes simplex (cold sores), or chickenpox spreading to the brain; a problem with the immune system; or bacterial or fungal infections. And in Elizabeth’s case she contracted Covid twice at Ash Villa.

It is possible for some people to make a full recovery from Encephalitis, but the NHS says this can be a ‘long and frustrating’ process.

Additional reporting by SWNS.

Antipsychotics and the brain
Neuro-imaging research (MRI scans) of the brains of people under psychosis reveal changes in brain activity. Some of these changes may be linked to the psychosis vulnerability itself (or to environmental risk factors that increase psychosis vulnerability, such as trauma), but many of these changes are clearly also related to several non-specific, external, factors, such as antipsychotics, smoking, obesity and drug use.

Animal tests have confirmed that antipsychotics indeed contribute to changes in the brain. The question remains, however, whether the changes in the brain caused by antipsychotics can also be linked to the specific risks. Also unknown is in how far these effects are permanent.

Antipsychotics and negative symptoms
Antipsychotics work by making people somewhat indifferent. This lowers the ‘importance’ or ‘significance’ of their psychosis, sometimes to the point where the symptoms fade away completely. The problem is, however, that this medicine-induced indifference does not only affect the psychosis, but every personal emotion or experience. The suppressing of emotions makes the user of antipsychotics more numb and less active. The extent to which this happens is different from person to person, but some are seriously impaired by it.

This indifference is also called ‘secondary negative symptoms’. That term is confusing however, because it is impossible to make a distinction between the primary symptoms (caused by psychosis) and the secondary symptoms (caused by the antipsychotics).

In practice, the rule should be: negative symptoms (indifference, inaction) must be attributed to the antipsychotics unless proven otherwise.
In other words: these symptoms require treatment, and should not be regarded as a consequence of psychosis when the real cause is the medication.

Can antipsychotics make psychosis worse? Dopamine supersensitivity syndrome (DPS)
When taking antipsychotics over a long time, the body will try to compensate the effects of the medication. Because antipsychotics work by blocking the dopamine receptor D2 in the brain, the body responds by trying to remove this blockade some way or another. As early as in the 1960’s, the scientist Chouinard described how this can cause “supersensitivity” in the dopamine D2 receptor. As such, the eventual effect can be an increase of psychosis sensitivity instead of the expected decrease.

Symptoms of dopamine supersensitivity syndrome:
Abnormal movements – also called tardive dyskinesia
Increased psychosis vulnerability
Increase of the dosage required to suppress psychosis
More psychotic symptoms after stressful events.

Although the existence of DPS is not yet proven beyond doubt, it has become an issue of growing importance in practice. Some studies suggest that people who reduce medication, or quit altogether, have a higher risk of relapsing into psychosis in the first years (possibly due to the now ‘supersensitive’ D2 receptor). Yet on the longer term (when the ‘supersensitive’ receptor has returned to normal), they are better off than people who remain on their regular high dose.

Many psychiatrists are still unfamiliar with DPS
It is important to recognise DPS in an early stage. Otherwise people can end up with huge doses of antipsychotics, while still only highly increasing the risk of psychosis. T.

Conclusion: antipsychotics and dopamine
The perspectives on antipsychotics are rapidly changing. Anyone using antipsychotics, should in any case take the risk of DPS into account. Doctors prescribing antipsychotics should do the same. From the very first start of using antipsychotics, an accompanying strategy is required for reducing the dosage to its minimum, out of concern for the physical health and the effects on the brain. Sound alternatives are dopamine receptor partial agonists.

It is so disturbing the way the MH try to avoid essential scans and dismiss cancer and other neurological conditions without looking into it. Another shocking area is Enfield and also I am in touch with shocking cases in Weston – both areas only have a 1.5 Tesla by the way.

From: susan bevis
Sent: 29 February 2024 12:38
To: CARECONCERNS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) <lpft.careconcerns@nhs.net>
Cc: NEUROLOGYSECRETARIESLINCOLN (UNITED LINCOLNSHIRE HOSPITALS NHS TRUST) <ulh.tr-neurologysecs.lincoln@nhs.net>; Christopher Reid <Chris.Reid@parliament.uk>; Enquiries <Enquiries@cqc.org.uk>; CONNERY, Sarah (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) <sarah.connery@nhs.net>

Subject: Re: EB – Update

I wish to address the serious threats made verbally by Dr WK.

“I am banning you indefinitely for inciting your daughter to attack members of staff on Xmas Day“.   I want an apology for that for a start.

You have no right to take away the phone we as a family pay a contract.  The matter of human rights will be address before the High Court.  You are in breach of Art 8, 5, 3, Equality Act and the Code of Conduct for the MHA / MCA.   Staff are acting ultra vires and you are treating my daughter like a restricted prisoner under the MHA 1983.  What you are doing is entirely unlawful.

The restrictions you claim to have ended are very much continuing.  You have no right to treat my daughter the way you are doing in the most degrading manner against all codes of conduct and the files will be requested by the court including all the notes being written behind my back by healthcare assistants who have been instructed to.

You are not using proper diagnostic scale PANSS and there is no proper scanner only a 1.5 Tesla and I am going to all the newspapers and TV stations to advise as this has cost someone their life before more lives are lost and Elizabeth will need to go to Sheffield to be re-tested under ultrasound for the cancer scare she had at Ash Villa since a Tesla 1.5 will not detect everything.

You had no right to ban the visits and now I want those comments made by Dr K and threats said to me verbally addressed and an apology.  I will continue to issue invoices because you are depriving my daughter of her phone so that she cannot play her music and readily have contact therefore LPFT are guilty of discrimination.   I will need all your reports Into your investigation of the alleged incident where Police were called on Xmas Day and to know that staff themselves who reported “concerns” have completed a Section 9 statement as we did.   I have contacted the NMC who are taking my complaint very seriously as nursing staff are in breach of their own code of conduct but acting on instructions from a combination of Management, Clinical Lead and of course the person with ultimate control Responsible Clinician Dr Waqqas Khokhar who is acting ultra vires.  Please do not assume Fridays as I am unable to visit on set days of the week.

You are acting totally unlawfully.

Yours faithfully

Susan A Bevis

Mother POA and Litigation Friend.   


From: CARECONCERNS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) <lpft.careconcerns@nhs.net>
Sent: 29 February 2024 12:17
To: susanb
Subject: LB – Update

Dear Mrs Bevis,

We would like to communicate the following –

  1. Ward round for E is at 12pm tomorrow, 1st March 2024. The clinical staff involved in E’s care would like for you to attend, specifically to discuss the filming of E’s episodes of distress to allow for further investigation of this with ULHT staff.
  2. To address your recent concerns around E’s access to her mobile phone, E’s phone access was limited for a fixed period of time as part of a comprehensive care plan that considered E’s human rights. This was to ensure the response to her phone use did not adversely impact her engagement with, or the efficacy of, her treatment plan. This was ceased on Monday 5th February 2024 following a review of all of the relevant factors. To clarify this further, E’s phone is kept securely by ward staff, but E is able to request to use her phone at any time. In addition, ward staff regularly encourage E to use her phone to maintain contact with family.
  3. Please be advised following your recent visit to Castle Ward that supervised visits to Castle Ward will be facilitated once a week, for one hour at a time. To request a time slot for visitation, please email the care concerns inbox. The inbox will confirm the date and time for the following week’s visit each Friday. All visits must be pre-arranged.

Kind regards,

The Mental Health Act Team.

Damning reports on patient care attached.  One states that “patient neglect is a breach of the most fundamental medical ethics of all ‘first do no harm’.

LPFT have denied Elizabeth the medical ethic of autonomy and benificence by not getting her fully examined and monitored.

Their obsession with what she might be telling me at the expense of her care is a gross breach of the most fundamental of all the Principalist ethics of Beauchamp & Childress.

Here are examples of abuse from both Enfield and Lincolnshire:

My daughter was abused in the former area under both hospitals and supported living which is why I moved as I wanted her to be in the right environment like I provided briefly under and to give her a fresh start in what I thought was the right environment. I had challenged care in the community in a supported living scheme where things went wrong. There was no honesty and no rectification of anything in the circumstances. Everything stemmed from there onwards. Elizabeth had been subject to institutional care on and off where not once when things went wrong did anyone raise their hands.

The Discharge Note stated “Abnormal Findings on Scan pointing to CNS twice. I have not been unable to get an explanation?

Upon moving we have been subject to extreme bullying because I have continually asked what the scans meant done by former area. When I discovered Dr Shahpasandy of Ash Villa did some fantastic research on the Limbic System I asked if Elizabeth could be included. I was then faced with no end of excuses. It was as though none of these doctors (Psychiatrists) wanted her to have the research that discovered that a former patient did not in fact have schizophrenia but inflammation of the brain and needed a different form of treatment and as a result of that became better. That is all I have ever wanted for my daughter to be properly pathologically tests since according to past file copies, it clearly says “Anterior Region Medial Temporal Compromise and so I checked what this meant and I was told “well done” by Headways that MH professionals training did not go nearly far enough to be able to conclude on neurological conditions, she was a former MH nurse. This puts into question the training for a start and that why isn’t training under MH more comprehensive and that it should in fact go much further in order that patients are not dismissed for underlying physical health conditions that may need a different kind of medical treatment.

Because I have dared to question I have been subject to bullying – extreme bullying. I was told “I am displacing you as NR” I thought not again as I have had a lifetime of this kind of treatment. It would appear all you have to do is to challenge in order to be the subject of bullying and various people including carers and former patients have tried to advise me that I should go along with everything but how can I when people are dying from being misdiagnosed and not having the right kind of treatment because the NHS is failing to look properly into neurological and underlying physical health conditions which could be autoimmune, could be endocrine dysfunction, thyroid, infection. It is very wrong to give someone a label for life and not be open to consider that there may be underlying physical health factors that need proper investigation.

Just now I have been on the phone to Ron Coleman. Both he and Karen Taylor through “Working-to-recovery provided wonderful care at their home on the Isle of Lewis. This care took my daughter to Spain and all over France and then to Australia, the account of this is on the Rightful Lives Website. She was in a terrible state before going away but came home unrecognisable. I will be forever grateful to Working-to-Recovery and thanked Ron Coleman for his wonderful care today and how the entire family took my daughter to the most wonderful locations and tried to work properly with her for the first time ever UNLIKE THE NHS. Unfortunately the NHS is rife with bullying and what I am finding right now is that staff are acting ultra vires. When my daughter returned home from Australia she wanted a job, she was totally unrecognisable as she had psychotherapy but because my shocking area of Enfield provided nothing she went downhill again. How I wish she had stayed forever in Australia. If I never saw my daughter again I would be happy in the knowledge she was in the right company and environment.

Via the NHS I have been described as someone who is controlling, abusive, aggressive – a vile person. I am not going to defend myself. I will leave it to my readers to decide.

Via the NHS upon moving I have been subject to severe bullying as follows:

First of all they declined to get the treatment up and running which was the clopixol depot leading to her going downhill – even I as just a mother knows that you cannot just stop these powerful drugs in one go.

Secondly they wanted the POA so they tried to make me look abusive – psychological abuse was mentioned. The Public Guardian Office had to investigate and found in my favour.

Thirdly they wanted the role of NR to be given to the social services, a conflict of interest. There followed months and months of litigation where I desperately tried to defend myself but there was no hope under this court because judges do not have the remit to challenge whether someone is really suitable or not. I was threatened constantly with costs as a result. That is known as SLAPPS.

“Suitability” should surely be a parent and carer who visits regularly and who cares. I have no say in anything in terms of treatment as this comes under doctors however I have gone by past file records. I have reports from other doctors who thoroughly dispute the diagnosis and I have noticed how Elizabeth has not been listened to so have done what any parent would do and stick up for her – defend her which has not made me popular. However no-one can dispute the fact that I have tried to help giving everything I have got to my disabled daughter and not expecting anything in return apart from the continuation of the former area’s medication whether I agreed with it or not. It is not that I am saying no-one else cares in the family but I happen to live the closest plus visit weekly. Anyway, the County Court Displaced me and all I will say is noone has effectively acted as NR and social services in any case are “a conflict of interest” and have done nothing to safeguard my daughter during the time at Ash Villa.

Anyway because I dared to challenge I was treated in the same way as present previously at Ash Villa:

phone restricted and visiting 2-1. No leave for months and months on end. Several flawed capacity assessments done not taking into account Principle 4, accident leading to possible injury and the start of the “epileptic fits” which noone knows really what is the cause. Today I have been asked whether Elizabeth agrees to be filmed during an episode. She disagreed. So what now? I personally think she needs to be assessed properly in Sheffield as an inpatient on a neurological ward and where they have the correct scanner ie a Tesla 3.

I am making everyone aware that there is a need for a Tesla 3 scanner at Lincs because a 1.5 does not pick everything up and has been known to miss tumours. All I want is an explanation of what is show on the MRI scans in certain images.

The treatment has been awful for my daughter. She is already held a prisoner but imagine how this would feel when denied basic human rights and proper pathological tests.

She has been treated in a degrading manner for far too long with phone taken away, visits restricted and medical pathological tests flatly refused.

I will add to this blog later to describe what treatment is given to patients under LPFT

https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-13-156/figures/1

BMC HEALTH SERVICES RESEARCH

Reader and Gillespie BMC Health Services Research 2013, 13:156

R E S EAR CH A R TIC L E

Patient neglect in healthcare institutions: a systematic review and conceptual model

Tom W Reader* and Alex Gillespie
Abstract Background: Patient neglect is an issue of increasing public concern in Europe and North America, yet remains poorly understood. This is the first systematic review on the nature, frequency and causes of patient neglect as distinct from patient safety topics such as medical error.
Method: The Pubmed, Science Direct, and Medline databases were searched in order to identify research studies investigating patient neglect. Ten articles and four government reports met the inclusion criteria of reporting primary data on the occurrence or causes of patient neglect. Qualitative and quantitative data extraction investigated:

(1) the definition of patient neglect,

(2) the forms of behaviour associated with neglect,

(3) the reported frequency of neglect, and

(4) the causes of neglect.
Results: Patient neglect is found to have two aspects. First, procedure neglect, which refers to failures of healthcare staff to achieve objective standards of care. Second, caring neglect, which refers to behaviours that lead patients and observers to believe that staff have uncaring attitudes. The perceived frequency of neglectful behaviour varies by observer. Patients and their family members are more likely to report neglect than healthcare staff, and nurses are more likely to report on the neglectful behaviours of other nurses than on their own behaviour. The causes of patient neglect frequently relate to organisational factors (e.g. high workloads that constrain the behaviours of healthcare staff, burnout), and the relationship between carers and patients.
Conclusion: A social psychology-based conceptual model is developed to explain the occurrence and nature of patient neglect. This model will facilitate investigations of

i) differences between patients and healthcare staff in how they perceive neglect,

ii) the association with patient neglect and health outcomes,

iii) the relative importance
of system and organisational factors in causing neglect, and

iv) the design of interventions and health policy to
reduce patient neglect.
Keywords: Neglect, Patient safety, Caring, Organisational culture, Systematic review
Background
Patient neglect, defined as “the failure of a designated care giver to meet the needs of a dependent”

1, has become an issue of concern in both North America and Europe

[2,3]. In the UK, this has been driven by media outlets

[4,5], charities

[6], and health regulators
[7]. Headlines such as “Want to know the NHS’s real problem? Ask a nurse for a bowl of cornflakes”

[8], “Shamed hospital accused of leaving dying patients to starve”

[9], and “Can patient neglect be a violation of
human rights?”

[10] capture concerns relating to patient neglect. They reflect public anxiety, with patients and
families making 22,845 complaints to the NHS in 2011on issues relating to staff attitudes, communication, and patient dignity

[11]. Senior politicians acknowledge the issue, and argue that neglect has been “hidden away”
[12] and that healthcare institutions must ensure “every
patient is cared for with compassion and dignity”

[13].Solutions include “reducing stifling bureaucracy” [14],
ensuring nursing staff talk to patients at least “once an
hour” [13], utilising legislation and regulation to ensure staff consider patient’ “wellbeing and dignity”

[15], and making staff sign-up to a “code of conduct” on dignity
and respect

[16]. The solutions reflect a belief that healthcare staff are responsible for instances of patient * Correspondence: t.w.reader@lse.ac.uk
Institute of Social Psychology, London School of Economics, Houghton
Street, London WC2A 2AE, UK
© 2013 Reader and Gillespie; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the
Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use,
distribution, and reproduction in any medium, provided the original work is properly cited.
Reader and Gillespie BMC Health Services Research 2013, 13:156
http://www.biomedcentral.com/1472-6963/13/156
neglect, but they are also contradictory (e.g. reducing
bureaucracy to free staff from form-filling whilst simultaneously increasing bureaucracy to ensure staff care for patients properly), or involve regulating aspects of behaviour that are difficult to measure and assumed to be lacking (e.g. compassion). These contradictions reveal the lack of a clear understanding of the nature and causes of patient neglect.
High-profile scandals have made patient neglect a key issue for policy makers. Scandals have included patients being regularly physically (e.g. left malnourished, dehydrated, in pain, and unwashed) or emotionally (e.g. being ignored whilst in need, not shown compassion, loss of dignity) neglected by healthcare staff [17-20]. Linking patient neglect to specific metrics of patient harm or clinical outcomes is difficult due to the often complex conditions of patients and their treatment [21]. Furthermore, conducting research is challenging due to the toxicity of the subject (e.g. questioning the abilities, motivation and ethics of staff ) and a media narrative which seeks to blame rather than understand why poor care occurs [22,23]. However, cases such as the Mid-Staffordshire NHS Foundation Trust scandal, where routine and basic failings in care resulted in up to 1,200 patients deaths between 2005 and 2008, show the catastrophic implications for patient care when neglect becomes systemic across an organisation [21,24].
Researchers in medicine, health sciences, and psychology have for some time investigated how institutional processes, clinical environments, and the behaviour of healthcare staff influence patient safety [25]. These investigations have resulted in interventions (e.g. team-training, care bundles, skill validation) to reduce medical error and improve clinical outcomes [26]. Although they might be expected to reduce patient neglect, it appears necessary for practical (e.g. to meet public and political concerns)
and conceptual reasons (e.g. to develop suitable interventions) to distinguish patient neglect from unintentional error, or intentional abuse. This is because reports on neglect such as those cited above often refer to: i) staff behaviours that may not directly lead to patient harm (e.g. not aiding patients to go to the toilet), but are crucial for care and probably do not reflect a competency gap; ii) staff attitudes and behaviours towards patients that cannot be regulated or easily measured (e.g. compassion); iii) a mixture
of causal factors leading to patient neglect, some of which indicate neglect to be unintentional (e.g. due to a lack of resources) or alternatively not related to error (e.g. rudeness) [27]; iv) differing beliefs between patients, families, and staff as to whether neglect has occurred (e.g. for loss of patient dignity) and the causes of neglect; and v) breakdowns in institutional structures (e.g. communication between staff and management) that are a prerequisite to introducing interventions to improve care [26]. This article reviews the research literature on patient neglect, and interprets this work within the framework of organisational and social psychology. This structure is utilised in order to reflect the observation that patient
neglect emerges from a complex mixture of organisational (e.g. resources, management) and social factors (e.g. relationships between patients and healthcare staff ). In particular, the interactions and perspectives of staff and patients appear especially important for understanding when and why neglect occurs. The overall aim of the review is to contribute to the public dialogue and academic understanding of neglect. Its specific objectives are to:
1) Review what is meant by patient neglect, and
consider how it differs from other constructs
relating to poor patient care.
2) Describe the staff behaviours reported in studies of
patient neglect.
3) Examine how healthcare staff and patients perceive
neglect (and whether there are differences).
4) Identify the causal factors commonly cited as
leading to instances of patient neglect.
Method
This is the first literature review on the nature and causes of patient neglect. Accordingly no protocol exists to guide the review, so standard protocols for literature review were applied [28]. The eligibility criteria were articles or reports published in English reporting primary data, since 1990, on the occurrence or causes of patient neglect anywhere in the world. In the first instance, the search for articles on patient neglect was framed using Lachs and Pillemer’s [1] (p.437), widely used definition (in reference to neglect of
elderly patients) of “the failure of a designated care giver to meet the needs of a dependent”. From this perspective, patient neglect is behavioural (intentionally or unintentionally failing to meet the needs of a caregiver). The information sources, search terms used, and study selection procedure are outlined in Figure 1.
To evaluate the methodological quality of the research studies, we applied the SIGN system [29]. This provides ratings through which to assess the quality of data collected in quantitative and qualitative studies. The assessments for each study are reported in Table 1, with the quality ratings being the following:
1++: High quality meta-analyses, systematic reviews of
RCTs, or RCTs with a very low risk of bias.
1+: Well-conducted meta-analyses, systematic reviews,
or RCTs with a low risk of bias.
1-: Meta-analyses, systematic reviews, or RCTs with a
high risk of bias.
2++: High quality systematic reviews of case control or
cohort or studies. High quality case control or cohort
Reader and Gillespie BMC Health Services Research 2013, 13:156 Page 2 of 15
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studies with a very low risk of confounding or bias and
a high probability that the relationship is causal.
2+: Well-conducted case control or cohort studies with
a low risk of confounding or bias and a moderate
probability that the relationship is causal.
2-: Case control or cohort studies with a high risk of
confounding or bias and a significant risk that the
relationship is not causal.
3: Non-analytic studies, e.g. case reports, case series.
4: Expert opinion.
The following data extraction exercise was performed.
First, the meaning of neglect was reviewed in each paper. Second, behaviours identified in studies of patient neglect were identified. Third, frequencies of neglectful behaviours reported by healthcare staff, patients, and families were captured. Fourth, causal factors identified
by articles and reports as contributing to instances of patient neglect were extracted. This included the capture of both qualitative data (TR) and quantitative data (AG).
The extracted data were not amenable to meta-analysis due to a mixture of qualitative and quantitative studies being identified. Consistent with similar reviews of literature with mixed forms of data, a narrative analysis was used to synthesise the findings of the review [30,31].
Results
Figure 1 reports the results of the literature review. Ten
research articles were included, with data largely collected in Scandinavia, South Africa, and the US. The
majority of articles used survey methods to measure
staff, family, or patient observations of neglectful behaviours [32-39]. Two qualitative papers investigated staff
perceptions of patient neglect [40,41], and patient perceptions of neglectful behaviours were also of interest
[39,42]. Several studies were conducted in elderly care.
The hand search identified four qualitative UK government reports investigating patient neglect at both individual and unit/hospital level [24,43-45]. Many discussion articles (e.g. on legal issues) and studies of related topics (e.g. patient dignity, ethics) were also identified, and were informative in understanding what is meant by patient neglect. However, they were not included in the review due a lack of relevant primary data focussing explicitly on patient neglect. The number of studies and reports seems to be increasing rapidly, with 8/14 (57%) being published between 2009–2012.
In comparison to the other literatures linking behaviours and outcomes in healthcare (e.g. medical error) [46], the number of studies investigating neglect is limited, and data was mostly descriptive. Quantitati

Doing No Harm: Enabling, Enacting, and Elaborating a Culture of Safety in Health Care
Author(s): Timothy J. Vogus, Kathleen M. Sutcliffe and Karl E. Weick
Source: Academy of Management Perspectives , November 2010, Vol. 24, No. 4
(November 2010), pp. 60-77
Published by: Academy of Management
Stable URL: https://www.jstor.org/stable/29764991

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ARTICLES
Doing No Harm:
Enabling, Enacting, and Elaborating a Culture of Safety in Health Care
by Timothy J. Vogus, Kathleen M. Sutcliffe, and Karl E. Weick

Academy of Management is collaborating with JSTOR to digitize, preserve and extend access to
Academy of Management Perspectives This content downloaded from https://www.jstor.org/stable/29764991

Published by: Academy of Management
Stable URL: https://www.jstor.org/stable/29764991
Executive Overview
Medical error has reached epidemic proportions, and researchers have developed insufficiently sophisticated models of safety culture to match the complexity of the challenge of safety in health care. This has left providers and researchers with an inadequate conceptual toolkit for improving safety. To rectify the resulting crisis we consolidate fragments of management research into a comprehensive and integrative framework of how patient safety is produced and sustained through safety culture. Safety culture involves actions that single out and focus safety-relevant premises and cultural practices that reduce harm. This entails (a) enabling, which consolidates the premises for a safety culture; (b) enacting, which translates consolidated premises into concrete practices that prioritize safety; and (c) elaborating, which enlarges and refines the consolidation and translation. We close by discussing the implications of our framework for future research on key issues such as efficiency-safety trade-offs, interactions among components of the framework, and feedback loops. In the face of competing priorities (e.g., efficiency), organizations often inadequately prioritize safety relative to other goals (Perrow, 1984)* Although safety challenges plague many industries, the problem is especially acute in health care. Health care presents a challenging paradox by pairing the mandate to “do no harm” with mounting evidence that much harm is done in the course of delivering care. In 1999 the Institute of Medicine (IOM) released a report titled
To Err Is Human, in which medical error was citedas the eighth leading cause of death in the United
States (more than motor vehicle accidents, breast cancer, or AIDS), responsible for as many as
98,000 deaths annually (IOM, 1999). A 2002 report by the Centers for Disease Control (CDC)
stated that almost 2 million Americans acquire infections in the hospital, contributing to those
98,000 deaths each year. More specifically, 48,600 central-line bloodstream infections occur annu?
ally, with one third of those patients dying (Buerhaus, 2007). Additionally, an estimated 2% to 4%
of patients (between 670,000 and 1.3 million) fall during their hospitalization in the United States
annually, with 2% to 6% of those falls (13,000 to 78,000) resulting in injury. In sum, as many as 88
people out of every 1,000 will suffer injury or Timothy J. Vogus (timothy.vogus@owen.vanderbilt.edu) is Assistant Professor of Management at the Owen Graduate School of Management, Vanderbilt University.
Kathleen M. Sutcliffe (ksutclif@umich.edu) is the Gilbert and Ruth Whitaker Professor of Management and Organizations at the Stephen M. Ross School of Business, University of Michigan.
Karl E. Weick (karlw@umich.edu) is the Rensis Likert Distinguished University Professor of Organizational Behavior and Psychology at the Stephen M. Ross School of Business, University of Michigan.
Copyright by the Academy of Management; all rights reserved. Contents may not be copied, e-mailed, posted to a listserv, or otherwise transmitted without the copyright holder’s express written
permission. Users may print, download, or e-mail articles for individual use only.
We would like to thank AMP Editor Garry Bruton, Peter Cappelli, Ranga Ramanujam, Jen Vogus, and two anonymous reviewers for thoughtful and constructive comments that substantially improved the quality and contribution of this manuscript. We also thank Aidan Vogus for helping us see the importance of this work.