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I am going to send you my entire email just written to the Rt Hon Victoria Atkins (Health Secretary) MP about Lincolnshire Partnership Trust and Council – her own area. The Rt Hon Victoria Atkins has tried to help us by sending emails to and from the Trust to the likes of Sarah Connery CEO but unfortunately the only positive thing I have had so far is a meeting with the Director of Nursing of LPFT – newly appointed Sharon Harvey and Director of Nursing Martin Fahy ICB. Here is what has been promised:

A FRESH CAPACITY ASSESSMENT TOTALLY INDEPENDENT OF THE TRUST – AS WITNESSED – BY SHARON HARVEY

A CTR (COMMUNITY TREATMENT REVIEW) with independent Chair by Martin Fahy Director of Nursing ICB

I saw the above-named Directors of Nursing on the 2nd October in a private meeting witnessed by a friend. At the same time, Elizabeth was being rushed to A&E suffering from an ‘episode’ lasting hours and hours on end from 2.00 pm to 7.30 pm as an emergency case. That is a long time to be in such a state with massively high BP levels and low oxygen levels – a very dangerous condition that prompted LPFT to refer her to A&E. Her body felt cold and clammy. I was allowed onto the ward despite Covid by the team as I had hoped to visit Elizabeth before this important meeting. I witnessed everything that I had seen months ago, well known to Ash Villa where she had countless episodes prior to Castle Ward and Ash Villa is where she had the accident that appears to have been covered up. Noone informed the family like they should have done under Sch 20 HSCA Reg 14. I have only just found out about this accident as Elizabeth has told me. Elizabeth not only shares information with me but other family members so it is pointless banning me from contact isn’t it but this is what Castle Ward tried to do altogether but now impose highly restricted supervised visits in breach of human rights.

Anyway, here is that email which exposes the area where Health Secretary Victoria Atkins is responsible for her constituents, me being one of them. To be fair, she has only just been appointed as Health Secretary but naturally I as a mother am not going to stay silent about the abuse my daughter is suffering and her family. The fact is she is said to have ‘no capacity’ yet was capable of making numerous phone calls today so she told me to solicitors on human rights, solicitors who previously represented her in her failed tribunal where she was too unwell to attend and also to capacity assessors to endeavour to appoint privately in order to overturn several flawed capacity assessments by Dr Adaeze Bradshaw, Dr Tahir Suleman and AMHP Kirsty Findlay, evidence supported by a best interest qualified and legal representative (Cilex qualified), KB. Elizabeth has herself contacted a firm of capacity assessors but Ms Sharon Harvey of LPFT offered to arrange for a completely independent assessment and therefore she needs to take Elizbeth’s instructions or else and ensure that the assessors of Elizabeth’s choice are allowed on the ward especially in light of visiting restrictions against me. I am very proud that Elizabeth has tried to help herself by making such phone calls, inspired by the influence of other patients who have said she must speak up for herself. Too right! I can do nothing for her right now except come and see her once a week for 2 hours of restricted contact.

I am glad to read the RC cannot pinpoint anything against Elizabeth in terms of risk to self/others from certain papers. In other words there is no risk to self or others but a hospital is far more risky than home when the flooring is hard and there has already been an accident where she hit her head following RT.

This is of public interest as it is public funds that are providing this so called care and treatment involving frequent and practically daily injections over and above what is “treatment” recommended under MHA for a condition now in grave doubt. Elizabeth and I both wish to go completely public for the sake of so many others and would welcome press attention:

Here is my email to the Rt Hon Victoria Atkins who Elizabeth advised she contacted today:

Dear Rt Hon Victoria Atkins

As you know we have suffered a catalogue of abuse since moving to Lincolnshire on 15 September 2021 when all we tried to do was provide the right environment and living accommodation and bring Elizabeth closer to her family.

We have been accused of psychological abuse and taking away of power of Attorney but this went in our favour.

I was stripped of my title of NR in County Court for not being suitable. 

I wish to congratulate you on your appointment as Health Secretary and want you to know how bad things are in your own area for vulnerable people with disabilities such as LD, autism and those yet to be properly diagnosed who are being denied pathological tests stuck under MH acute wards, who have something entirely different wrong with them such as my daughter as proven by scans below. I sincerely hope you can help us stop Elizabeth being sent far away.  I am taking out a full human rights case right now as my daughter’s human rights are being abused.   Elizabeth had all her neurology appointments cancelled as being ‘unnecessary’ the moment we arrived in this area. She was refused the research of Dr Shahpasandy into the Limbic system and scans going back to 2015 “normal” were being relied upon by various doctors.   Elizabeth has been treated just like a restricted prisoner practically all along and I am currently subject to 2-1 visiting restrictions – total breach of human rights.   I have also been denied visits.   Today I have had countless calls from my daughter keen to see me tomorrow.   She has told me on her own accord thanks to advice from another patient about speaking up she has phoned human rights solicitors, she has contacted your office and more than one firm of solicitors and even tried to get a fresh capacity assessment done herself.   I am not allowed to see my daughter apart from 2-1 visiting rights and besides Elizabeth will not do as I say so how on earth can I be portrayed as a bad influence?  

She is on a never-ending section and wishes to come home but various other doctors under LPFT  namely Dr Adaeze Bradshaw, Dr Tahir Suleman, AMHP Kirsty Findlay all did reports pointing to “no capacity” that are completely flawed that are being relied upon in order that a team of so many can decide what THEY think is best interest.

So Elizabeth has had the following doctors:

Dr Ismail – Charlesworth Ward who was talking about Lynsey needing nursing care in the first instance.
Dr Shahpasandy – refused his own research into the Limbic System – treated Lynsey as a restricted prisoner
Dr Ismail again
Dr Kumar
Dr Islam
Dr Suleyman – carried out flawed capacity assessment and left shortly afterwards
Dr Greenall – gave a bit of leave then stopped leave following an ‘episode’
Dr Memon  Cygnet – a doctor who I truly respected because of his brilliant communication skills and caring attitude when Elizabeth had another episode on his ward at Cygnet and was taken to A&E.
Dr Mohammed – Ward 12 – again another episode where she was rapidly tranquilised
Dr Khokhar – Castle Ward who has had to allow fresh scan and neurologist referral but who has imposed enormous restrictions Elizabeth calls “punishment”.

5 Institutions since moving to LPFT:
Charlesworth Ward PHU – a dormitory ward which could not be worse re sensory issues
Ash Villa Sleaford – held a virtual prisoner for months on end under Dr Shahpasandy and where the “fits” began and accident occurred
Cygnet Durham
Ward 12 – another dormitory ward
Castle Ward – the only ward where they have better facilities however it is incredibly noisy with alarms going off all the time.

Proposed care home Ashton House – looks like in West Sussex hundreds of miles away from home and family but it has been mentioned about East Yorkshire with regard to her moving to. So the question is why not Lincolnshire or if the plan is to keep her away from me why not Norfolk where other family members live?

All this is going on behind our backs right now yet Elizabeth who is said not to have any capacity has given me all this information, shared the most recent correspondence and also shared her Neurologist appointment letter with me and her appointment is on 3 January 2024.  I reckon they are trying to send her away before the Neurologist appointment far away from home and family because of what this could reveal especially now there are two sets of scans and “normal” means nothing because these words do not incorporate what has been identified by certain other experts who have the scans. All these years l suspect there has been historic injury in fact this is not a figment of my imagination because it actually says so on one of the images. Elizabeth does not want to go away to a care home so far away from home and family. She apparently said to the assessor yesterday from Ashton House “go away please”.

I have just spoken to Elizabeth who says she has tried to ring yourself just now and she has also tried to ring several solicitors.

The only treatment she is getting is constant injections right now, a Parkinsons drug is forcibly given yet not really part of her treatment as well as RT on nearly a daily basis – she said the injections hurt her and have been given by male nurses. This is absolute abuse- no psychological input whatsoever. It is apalling since Elizabeth is an abuse victim herself.  Having said that she has engaged with the OTs who she likes.  It is therefore very disturbing that Dr Khokhar has mistakenly said that Elizabeth is not engaging with activities when she is, as she has told the family she likes cooking and art. On a Saturday this is the only day Elizabeth can order a takeaway but some of the time she misses meals because she claims to feel constantly cold and stays in bed trying to keep warm and away from the never ending noise which is disturbing to her.

Elizabeth apparently had a bad accident whilst at Ash Villa which we have only just found out about. Her account of this was she was coming out of the bathroom in the seclusion room when she felt dizzy and fell hitting her head on the floor. No doubt she had been rapidly tranquilised, a frequent occurrence under Ash Villa that other patients felt necessary to report and they said they were doing the safeguarding. Even before moving to Lincolnshire her discharge note clearly stated “abnormal findings on a scan”  yet a wall of silence when I have tried to find out what this implied. Various doctors including Dr Greenall, Dr Afolabi and the vast majority except for Dr Memons have said a fresh scan and Neurologist appointment was not necessary but only now after so many episodes it has been deemed necessary. Totally negligent of any professional to be dismissive of underlying conditions or try to ignore possibilities of such especially when it clearly states on the discharge note “abnormal findings”.   Back in Enfield she was transferred from Chase Farm Hospital to Edgware because she was constantly hit around the head by another patient so a member of staff told me. I doubt she was sent for an MRI scan as a result.   There would appear to be injury on the private scans I paid for which are with another team of professionals right now who happen to be researching inflammation of the brain, lesions and also Alzheimers.  The scans have also been forwarded to various neurological experts.   Elizabeth has advised that a further set of scans were done on 10 November whilst under Castle Ward, again said to be normal but cannot possibly be normal when they would show exactly the same as the private scans also done recent that reveal a possible cavernoma, lesions and inflammation of the brain. Anyway, since there are so many episodes upon moving to Lincolnshire something is clearly wrong and all this time up until now nothing has been done about it.  Elizabeth has an appointment to see Dr C Solinas Consultant Neurologist on 3 January 2024 and it is very disturbing that right now they are trying to move her far away from home and family which should not be before this very important appointment.   There are wider implications here of my daughter being deprived of pathological tests, she has countless ‘episodes’ where her life is put at risk lasting for hours and hours and ending up in A&E so the pathological tests are of great importance.

I am also concerned that reading certain papers attached it states “low blood oxygen levels” and this can be fatal and the cause of it could be the overdrugging and frequent rapid tranquilisations without proper monitoring throughout the night.  During one ‘episode’ never experienced before we moved here BP soared enormously high. This combined with low blood oxygen levels can be fatal.  The episode on 2nd October lasted for hours and hours from 2.00 pm until 7.30 pm.   THERE IS SOMETHING ELSE WRONG WITH MY DAUGHTER AND THIS IS MENTIONED WAY BACK IN THE FILES and none of the psychiatrists involved know what it is as this is what is recorded. Therefore it is an MDT decision for the current referral to Dr Solinas. I should not be desperately trying to fight for proper tests all this length of time and neither should my daughter on her own accord be trying to ring numbers to get representation as she does not wish to be sent far away from home and family. 

You are Health Secretary and I am just a mother but I can assure you that I will do everything I can to publicise and bring to the attention of everyone worldwide the abuse going on – abuse of power and process by public authorities such as Lincolnshire Partnership Trust and Lincolnshire County Council – not forgetting Enfield – former area BEHMHT and Enfield Council and their legal dept.  Unfortunately, I am in touch with so many other heart breaking cases nationwide. I hope that you can do something about this. Martha’s Rule brings a great deal of hope.

Elizabeth today said something remarkable “God is stronger than them”.  It should not be a case of them and us should it, as all we wanted to do was work together with the professionals.   All over this country thousands of disabled vulnerable people are being held for years and years on end in acute ward setting and taken far away from their families and placed into care home settings where many lose their lives and are abused.  I can most certainly provide you with many other cases I am in touch with.  Imagine being a 90 year old lady fighting for her disabled son in desperation and feeling suicidal.  I am disgusted with this Country that this can go on but to be fair to you you are newly appointed and have tried to help us.  Now you have more power and more authority to help many others similarly suffering right now nationwide.    

I am copying in another mother/carer who together with me (as we are supporting one another right now) would very much like to meet with you personally whether it be in the local area that applies to both of us or in London.  Please supply me with a date when we can visit you personally preferably in the New Year.

I am worried Elizabeth’s appointment to see a Dr C Solinas Consultant Neurologist at Lincolnshire United Hospitals Partnership Trust (separate trust from Lincolnshire Partnership Trust which is MH) will be cancelled.  This is on 3 January 2024.  Now they are talking about moving her.   I am worried that she will miss out on her appointments when there is clearly underlying causes for the constant fits she is suffering that is of a neurological nature not psychiatric yet she is lumped together with others.  I am curious at how many others likewise are affected and never getting better because they are not being pathologically assessed in terms of underlying physical health problems which may present with symptoms mistaken as being mental illness.

I am also trying to get hold of the Rapid Tranquilisation log as every time Elizabeth has an “episode” which looks like a fit this treatment and this can affect blood oxygen levels.  

Whilst I have only 2-1 supervised visits we see this as punishment. My daughter’s life is at risk as per the attached which mentions blood oxygen levels to be low.  There is a big meeting planned about moving Elizabeth into care coming up soon but I am not sure whether this is a proper CTR or whether family will be included as they were previously in Enfield. Elizabeth is not being properly supported for this ‘CTR’ and has been given a piece of paper to write on her comments. She has written, witnessed by a friend “I want to eventually come home to live with my mum in the annex through court of protection.  I miss my mum greatly and want to go home to her.  My blog below goes right back to Enfield and features all of the institutions involved.  Enfield are responsible for paying for S117 aftercare.

No way should anything be covered up that is under public expense and disgusting abuse of a vulnerable person’s rights and this needs exposing.  All courts should be open and transparent. Elizabeth wishes to waive anonymity because all along she has capacity to decide on important matters such as where she wants to live.  I am training to be a BI assessor so I also know what I am talking about here.

This is your local area so I do sincerely hope you can do something about this abuse.  I intend to go to any lengths to change such a rotten abusive system and am happy to feature the many other cases on my website who are affected until there is a law in place to prevent such abuse from happening.  Martha’s law is a good start and also Helen Whately and Will Quince are working on a paper to ensure parents and carers are allowed to visit care homes and hospitals in a dignified manner. There are many people still restricted/ banned from visiting their relatives in care homes and hospitals.

I trust you will give this your due consideration as I am far from daunted in taking on what appears to be a completely corrupt system the UK currently has in place and will go to any lengths necessary as all I want is for my daughter to be treated in an honest and fair manner.  

Kind regards

Susan Bevis  POA

MRI SCANS – CAN A NEUROLOGIST PLEASE CONFIRM PLUS CARE QUALITY COMMISSION COMPLAINT

Since moving to Lincolnshire Partnership Trust Elizabeth’s physical health has not been taken seriously by any of 10 doctors apart from Dr Memons from Cygnet Durham who has not had the usual …

revelationsuk.com

GO AWAY PLEASE I DO NOT WANT TO GO TO ASHTON HOUSE WRITTEN BY ELIZABETH “IT’S NOT SET IN STONE”
Yesterday I had a lady come to see me at Castle Ward (Peter Hodgkinson Centre) Lincoln County Hospital. She said she was assessing me for Ashton House. I got my Mum to look up Ashton House and it a…
revelationsuk.com

LETTER FROM MENTAL HEALTH ACT TEAM and LEGAL TEAM

NHS LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST &nb…

revelationsuk.com

BULLYING/ABUSE OF POWER AND PROCESS BY LINCOLNSHIRE PARTNERSHIP TRUST – AND THE ROLE OF THE RC

Mental Health Act Administration Office &…

revelationsuk.com

REGULATION 20 – The Health and Social Care Act 2008 (Regulated Activities) Regulations 2014

Regulation 20 requires the healthcare provider (in this case LPFT) to notify patients and their families of any unintended consequences caused by a regulated activity such as rapid tranquilisation.…

revelationsuk.com

Yesterday I had a lady come to see me at Castle Ward (Peter Hodgkinson Centre) Lincoln County Hospital.

She said she was assessing me for Ashton House. I got my Mum to look up Ashton House and it appears to be a care home in West Sussex. I told this lady (dont know her name but trying to find out) that I did not want to go to Ashton House and I wanted to come home. She said “it is not set in concrete”.

I feel I am being abused at Castle Ward. I am very unhappy here. It is so noisy. Another patient has told me I need to speak up for myself.

I find it difficult to speak up as they have put me on so much drugs. I find it easier to write and I have asked my Mum to put my words on her blog. My Mum is only allowed to visit with two members of staff present. I feel my human rights are being abused. Today I have tried to appoint a human rights lawyer. I have also tried to appoint another lawyer for the court of protection. My mum has explained about the capacity assessments to me and why I need a fresh one. I understand this has been promised by Sharon Harvey.

I have just phoned a human rights lawyer and was told “all sorted the solicitor will ring me back”.

I miss you lots. I am looking forward to my next visit.

I can see what is happening they have control or they think they do. 14.59 15.11.2023 I have missed you greatly today – they say it wont be long before come bk home 00:23 15.11.2023.

I have agreed for all the scans to be shared. 15:12 13.11.23.

ASHTON HOUSE WRITTEN BY SUSAN BEVIS

Crawley Nursing Homes, Dementia Nursing Home Haywards Heath, Nursing Homes in Crawley West Sussex, Brighton & Burgess Hill Nursing Home – Nursing Home Haywards Heath – Ashton House Residential and Nursing Home (ashtonhousehaywardsheath.co.uk)

This is the only Ashton House information I could find on line and it is a very long distance from home and family as if they could not find anywhere nearer since the rest of family live in Norfolk! So if they, the MDT are intent on keeping my daughter away from me as said by Dr W Khokhar RC “you are a bad influence” why not think of others in the family. Why punish us all? Talk was of East Yorkshire originally but now this place is in W Sussex and all the time Elizabeth has capacity. How dishonest is that for LPft rated Good by the CQC?

Only got to hear the shocking news this morning from Elizabeth who apparently told the lady trying to carry out an assessment to “go away”. Elizabeth has asked me to share the above which I am doing. I could only find one Ashton House which is situated hundreds of miles away and it is a Care Home in West Sussex. Elizabeth is trying to find out the name of the lady concerned who visited her yesterday who she said smiled at her but Elizabeth clearly does not want to be sent so far away from home. Rest of family are in Norfolk. The way this is being done is highly deceitful of Lincolnshire Partnership Trust who know full well she has a Neurologist appointment on the 3rd January with Dr C Solinas and they appear to be trying to move her far away from home and family against her wishes.

Elizabeth has made several phone calls herself to try and book a fresh capacity assessment because three flawed in-house assessments have been carried out by the following:

Dr Adaeze Bradshaw

Dr Tahir Suleman

Kirsty Findlay AMHP

All in-house and all severely flawed.

Under this appalling Trust rife with bullying where human rights are non existent, where no regard is given to carers or vulnerable patients, they are clearly desperate to get Elizabeth far away from home and family regardless of human rights and are restricting visits 2-1 against human rights Art 8 HRA.

Elizabeth was given a pen and notepaper to write on because she finds it difficult sometimes to talk to people especially in meetings. She has an advocate from Voiceability but not sure how often she sees this advocate and not sure she is always included in meetings. She was present at the ward round last Wednesday though and I was actually let into the Teams meeting on this occasion but have been cut out of several left waiting endlessly but they are no doubt stepping up sending Elizabeth to either hospital or care home outside of the area as in this area there is nothing nearby according to Hannah Kajue which is nonsense and besides this other area who provided nothing by way of support and care in the community themselves are not the decision makers here now.

The two Directors of Nursing are Sharon Harvey LPFT newly appointed

and

Martin Fahy Director of Nursing Lincolnshire ICB.

Following a culmination of endless complaints never properly answered and some responses of the most horrific threatening nature finally an appointment was arranged by Pals to see Sharon Harvey and Martin Fahy on the 2 October. The meeting was witnessed with a friend present.

It was offered – FRESH CAPACITY ASSESSMENT INDEPENDENTLY DONE BY SHARON HARVEY

It was offered – CTR INDEPENDENTLY CHAIRED previously refused BY MARTIN FAHY

So far Elizabeth has not been supported at all for the CTR. She has not idea when this will take place but a meeting is planned and I feel the CQC need to be present for this meeting as I can see my daughter and noone in her family is being treated fairly at all.

All we have seen so far since moving to Lincolnshire is abuse of power and process by council and NHS Trust.

It is, and has been for some time clear that ‘capacity’ is being used as a firewall to prevent Elizabeth exercising her rights and to exclude me from decision making processes.

This is a textbook ‘Catch 22’ position and is entirely disingenuous. Elizabeth does not lack capacity to decide who is acting in her best interests.  Her attenuated capacity does not go that far at all.

The LPFT and LCC have abused the MCA2005 simply to get their own way.  They are so obsessed with keeping you out of the picture that they are quite prepared to put Elizabeth’s welfare in jeopardy.

Capacity need to be continually assessed as it is time and situation specific.  I dare bet there is no record of any ongoing capacity assessment and they are abusing the process simply to get their own way.

This is a major violation of Elizabeth’s and your human rights and not simply a minor violation of the MCA2005 (it is of course that as well)     

I agree fully that this needs publicity, especially with regard to the HRA issues.  You will of course need Elizabeth’s consent for that. which I do most certainly have. No-one without a bit of capacity could pick up the phone and call a solicitor for help and then try to get human rights lawyers involved.

How many times does my daughter have to say “I WANT TO GO HOME” “I MISS MY CAT” LINCOLNSHIRE PARTNERSHIP TRUST AND COUNCIL YOU ARE A DISGRACE AND WE HAVE HAD NOTHING BUT BULLYING SINCE WE ARRIVED. You should not be entitled to a Good Rating by CQC until you take on board human rights of vulnerable people and you should all undergo the Oliver McGowan Training SHAME ON YOU LINCOLNSHIRE PARTNERSHIP TRUST AND COUNCIL WHO BACKED YOU, ESPECIALLY THE AMHP DEPARTMENT.

Last of all I want all CCTV footage and written evidence of my alleged threatening behaviour when it is you yourselves responsible for that in my opinion and I want all allegations taken out against me unless you can provide me with proof which I want to share with all my readers.

It is disgraceful how doctors torment a patient refusing to listen and labelling her with a stigmatic label refusing to carry out the necessary pathological investigations, depriving her of the support she needs and family contact. It is utterly inhumane to fail to emphasise with a patient and total abrogation of medical ethics. To insist on isolating her from anyone who can offer her real support is an appalling and egregious abuse of their power. By transferring her far away from home and family they clearly do not want her to develop long term friendships because of their insistence on providing her with personal support.

They are not even honest enough to give the full reasons to your face except that “you are a bad influence“. The two doctors who are very much involved are Dr Toby Greenall and Dr Khokhar RC who appears to be registered with Leicestership Partnership Trust but has two email addresses.

The other doctors involved have carried out flawed capacity assessments and the legal department backing them all the way yet the person concerned a Kyla Bailey Cilex Qualified is a Best Interest Assessor herself and would have known full well that capacity assessments were not fit for purpose and completely and utterly flawed.

Since moving to Lincolnshire Partnership Trust Elizabeth’s physical health has not been taken seriously by any of 10 doctors apart from Dr Memons from Cygnet Durham who has not had the usual arrogant dismissive response towards me as a mother.

I am not alone in desperately trying to get to the bottom of the truth when it is difficult to have faith in the medical profession who have gone to lengths to cover up underlying causes and Elizabeth is suffering life threatening “episodes” where her BP is sky high and her blood oxygen levels very low.

When you have scans done privately it is very disturbing when professionals such as Radiologists and psychiatrists pass these off as being “normal”. I now want everyone to know that just because they say “normal” does not mean normal at all. I am bitterly disappointed and feel let down that some doctors do not look into things properly. There have been ten doctors and five institutions under Lincolnshire Partnership Trust in a period of two years.

It is only now after countless “episodes” lasting hours on end have they referred Elizabeth to a Consultant Neurologist, a specialist in his field and thank God this is with another Trust though under Lincolnshire.

When scans from Barnet Enfield and Haringey MH Trust come back as “abnormal findings on a scan” as a mother and carer I have gone out of my way to ask what that has meant. It does say in the files that going way back to around 2008 “Anterior Region Medial Temporal Compromise“. I contacted Headway about this. The former MH nurse of Headway said “well done Ms Bevis“. This is not a mental illness.

The reason I am posting this for all my readers to hear is because I am concerned that there may be other people under the MH all over the County who are being denied proper pathological tests when they may have underlying physical health problems or injury that is being completely ignored and I do not think this is right at all. With Martha’s Rule coming up this gives hope to people like myself but it is a completely nightmare getting a second opinion on a medical condition when you are misfortunate to have a relative under the MH stuck on a never-ending section but why should such people be deprived of the correct diagnosis and treatment? It surely is imperative they get the right treatment for the underlying correct physical health diagnosis as all schizophrenia is, is a catch all label and physical health conditions or injuries are not pathologically investigated leading to incorrect diagnosis and treatment for many years on end.

I have had to pay privately for the scans when given a small amount of leave whilst under Ash Villa but they have revealed a great deal.

I am prepared also to pay for a private neurologist report and by posting this publicly I am hoping that someone can help me urgently in case Elizabeth gets moved on the spur of the moment as has been done before.

Whilst finally after all this length of time Lincolnshire Partnership Trust have referred Elizabeth to a Consultant Neurologist her appointment is not until 3rd January 2024. Now all of a sudden Lincolnshire Partnership Trust are talking of moving Elizabeth far away from her family to East Yorkshire. She does not want to go however I am worried that the Neurologist appointment with Lincolnshire United Hospitals Trust will be cancelled and then once trapped in another prison like setting (talk is of yet another hospital) or even a care home so when will there be the opportunity for Elizabeth to see the Consultant Neurologist. I have every faith in the Consultant Neurologist who is called Dr C Solinas but because everything has been covered up by two Trusts which include BEHMHT it is very hard to have faith in the majority of all the doctors involved under the MH who have flatly refused a scan as being unnecessary and here below is a prime example of a doctor who has done research into the Limbic system that everyone should be aware of.

Do you agree that ‘upregulation’ and ‘downregulation’ of dopamine might affect presentation of psychotic symptoms?”  

If there are abnormal readings on a scan they have an absolute duty of care to investigate them and a psychiatrist is not qualified to do that.  If there is a lesion it needs treating as such.  Psycopharmaceutical interventions are not suitable to do that.

If that abnormal reading is in the pre-frontal cortex it could account for some of her behaviour and non-responsiveness to drugs.  I am working on a paper at this very moment on psychophysiological causes of anxiety and depression.  

She needs that scan and a proper investigation of anything found, not just references to ‘abnormalities’

IMG-0003-00001jpeg. (their reference Im: 7/24) shows the curious straight line going from the right temple radiating backwards at about 60 degrees to the lateral line of the skull. On the opposite side you will see a dark area corresponding to just behind the left ear.  

On IMG-0004-00001jpeg. (their reference Im: 11/24) there is another curious dark line behind the right eye.  You need to ask what they think these images are showing. Are they potential lesions? 

On IMG-0005-00001jpeg. (their reference Im: 26/96) the scan refers to >55 years old trauma.  What are they referring to here?

These images should be visible on your computer software without the Dicom download since jpeg. is a standard picture file format”

From: MHA Enquiries <MHAEnquiries@cqc.org.uk>
Sent: 16 November 2023 11:25

To: susanb255@outlook.com <susanb255@outlook.com>
Subject: CQC MHA Complaint Ref: ENQ1-17716124293

Dear Ms Bevis

We are writing to you from the Mental Health Act complaints team at the Care Quality Commission (CQC).

We have now received a copy of the letter summarising the outcome of the investigation into your complaints. We believe that a copy of this letter dated 14 November 2023 and signed by Dr Toby Greenall the Consultant Psychiatrist at Peter Hodgkinson Centre has already been sent to you, but please let us know if this is not so.

The Mental Health Act grants the CQC a discretionary power to investigate complaints where they are about the use of the powers and duties in the Act. If you are not satisfied with the response provided to you by the service, you could request that the CQC consider reviewing your unresolved concerns.

We do sometimes receive complaints about matters that we are not able to investigate because they are not within these powers. The CQC complaints process cannot make any recommendation about matters that can only be decided by a court of law. For example, we cannot rule on whether a detention is lawful, nor would we be able to provide any clinical opinion re diagnosis.

Before we could decide if there is a role for us, we would need a clear statement from you outlining what you are unhappy with in the provider response, any outstanding issues and your desired outcome.

Alternatively, you can contact the Parliamentary and Health Service Ombudsman Office (PHSO) within the next twelve months, saying why you are not satisfied. Their address is: –

The Parliamentary and Health Service Ombudsman for England

Citygate

Mosley Street

Manchester

M2 3HQ

www.ombudsman.org.uk/making-complaint

Telephone: 0345 015 4033

The PHSO can consider whether to investigate complaints that the NHS (and NHS funded care) in England have failed to act properly or fairly or provided a poor service. If the Ombudsman feels that it is more appropriate for the CQC to consider the outstanding concerns, they may refer you to our organisation.

The PHSO is the final arbiter in any complaint matter and therefore the CQC cannot consider any request for investigation once the Ombudsman has either completed or declined an investigation into your complaints.

Could I please request that you use the above reference number on any correspondence in relation to this case. If we do not hear from you within 15 working days of the date of this letter, we will assume that you have received satisfactory answers to the issues you have raised through Local Resolution and your enquiry will be closed.

Yours sincerely

Mark

Mental Health Act Complaints Team

LPFT have also treated my daughter like a restricted prisoner under Dols and tried to sever contact by taking the phone away whilst at Ash Villa and right now on Castle Ward Elizabeth is subject to restricted visiting, no leave after 2 years – treated like a prisoner with no rights as though on dols to this day. Even in former shocking area of Enfield she was not treated like a restricted prisoner.

The doctors responsible for that non-compliant capacity examination also need asking why they did not consider the criteria form the MCA 2005.  Elizabeth is perfectly capable of making a decision as to who represents her in any litigation.  They have not come anywhere near the required standard of proof that she lacks capacity to the extent that she is incapable of determining who she wants as next friend.

I was told by dr Shahpasandy he is getting rid of me as nearest relative and that the POA investigation is an entirely separate matter.   The bullying started the minute we moved. The first “best interest assessor” was Margaret Biddles followed by Andrew Morrans AMHP under the shocking department run by Heidi Merrikin – Manager.

As NR and with Elizabeth’s written consent you are entitled view the capacity report which must give full reasons for the decision on capacity. I am sure I have requested these before but in case my correspondence has been lost I will certainly re-request these and I will post right here what response I get.

The doctors responsible for that non-compliant capacity examination also need asking why they did not consider the criteria form the MCA 2005.  Elizabeth is perfectly capable of making a decision as to who represents her in any litigation.  They have not come anywhere near the required standard of proof that she lacks capacity to the extent that she is incapable of determining who she wants as next friend. Too right! If Elizabeth is capable of contacting a solicitor herself and contacting a firm who do capacity assessments to request a fresh one done this rubbishes all the capacity assessments currently being used as an excuse to take away her autonomy and decide upon everything this team below see as “Best Interest which is a total disgrace in my opinion.

I am now training to be a Best Interest Assessor and so therefore can comment on what is right and wrong and all of these below apart from myself have got things very wrong. I have sought expert opinions and Elizabeth has contacted a firm of capacity assessors herself only recently so the team below should welcome the capacity assessors that are completely independent and appointed by Elizabeth onto the ward and I will let you know their response. I had no influence in this as Elizabeth chose to ring them herself so how comes I am being labelled as a bad influence when Elizabeth has a mind of her own. I am looking forward to hearing this explanation but I suspect just like the CCTV footage I am also waiting for nothing will appear in terms of explanation or evidence.

CASTLE WARD

To: KHOKHAR, Waqqas (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); TANIMOWO, Adekiite (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); KHOKHAR, Waqqas (LEICESTERSHIRE PARTNERSHIP NHS TRUST); CALDERONCARHUARICRA, Katteryne (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST); BARFORD-COWLEY, Amelia (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) Cc: AITKENHEAD, Angela (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Barker, Robert (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Barlow, Diane (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); BELLAMY, Charlotte (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); CAMSELL, Lucy (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); FISHER, Bridgette (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Fitzpatrick, Brenda (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); FLETCHER, Sue (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); GOSTELOW, Joby (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); JAQUES, Anthony (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Keogh, Sophie (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); LAKE, James (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); MARABADA, Ngonidzashe (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); MOONS, Kashmir (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); POPOOLA, Tomilayo (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SCOTT, Emily (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SENDALL, Jackie (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Skelton, Alice (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SUNDAR, Siddharth (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Tarling, Paul (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Waby, Lucieann (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); WALLACE, Sarah (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); White, Jocelyne (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Woodlock, Emma (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST);

CQC COMPLAINT IS ABOUT 2-1 VISITING RESTRICTIONS BASED UPON ME BEING A BAD INFLUENCE TO ELIZABETH WHEN ALL ALONG SHE HAS FULL CAPACITY TO DECIDE THINGS FOR HERSELF AND ALSO THE CORRUPT MANNER IN WHICH THE MCA AND MHA HAVE BEEN USURPED TO THE BEST INTEREST OF THE INSTITUTION AND PROFESSIONALS INSTEAD OF A VULNERABLE PATIENT’S WISHES.

First of all Elizabeth wishes everyone to know how she feels and what she wants:

Friday 10 November 2023 witnessed by friend:

“I want to eventually come home to live with my Mum in the annex through the CoP.

I miss my Mum greatly and want to go home to her”

Elizabeth has her own little bungalow and there is no intention on my part to stop professionals visiting.

Care Coordinator from BEHMHTNHS Hannah Kajue commented “I do not think the annex is suitable” well for a start she has not even seen it and has NO SAY because all they will be doing is paying for S117 aftercare which they previously failed to prompting us to move. They have also failed consistently to provide anything fit for purpose which again I can well and truly prove. So it is all of the above but most of all Dr Khokhar who has the final word but tries to make out it is an MDT decision which is why I do not agree with MDTs because they allow certain professionals to hide and make out it is not them.

A CTR was promised by Martin FahyDirector of Nursing ICB with independent Chair like in Enfield where the Independent Chair said “the whole thing stinks”.

Director of Nursing Sharon Harvey from LPFT promised a fresh capacity assessment independent of LPFT but Elizabeth’s wishes should be taken into consideration and Elizabeth has chosen a firm to carry out this. It is only fair that LPFT should pay for it as nothing has been done correctly by two doctors and 1 AMHP. NO CAPACITY ASSESSMENTS SHOULD EVER BE CARRIED OUT IN-HOUSE AND AS LPFT HAVE MADE A HUGE MISTAKE BY APPOINTING IN-HOUSE ASSESSORS THIS NEEDS TO BE RECTIFIED.

I would also like the CQC to be invited to this multi-agency panel and the wonderful Access Charity who have previously given wonderful support until Elizabeth’s phone was taken away and to be fair to them made matters impossible for them to stay in contact however I have contacted them again today to let them know about the CTR.

The second diagnosis on the care plan is “Autism” but Dr Khokhar keeps saying “you have got schizophrenia, you have got schizophrenia” – this is extremely wrong and I want to clear up any confusion which is why I have turned to X to obtain expert opinions on the scan and Elizabeth has already given written consent for the scans to be shared with the wonderful Cavernoma Alliance and other experts.

It is extremely wearing to have to fight for another expert opinion and very quickly now I am so alarmed by LPFT wishing to send Elizabeth away to a 6th institution far away in East Yorkshire which could occur any time now that I therefore have had no option but to see if I can get as many opinions by Neurologists or even Neuro surgeons as possible and that is not because I do not trust Dr C Solinas but because I am afraid of the team’s next move and that Elizabeth could be whisked away so quickly that she misses out on any second opinions when it has already been highlighted the very valid concerns.

The CQC should look at how LPFT have behaved in the past also at former hospital Ash Villa:

From: Blake, Zoe LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST)
Sent: 24 May 2022 10:12
To: susan bevis
Subject: RE: Managers hearing

Good morning Susan

I hope your well.

As advised on many occasions I am your single point of access, others will not reply but I will seek to gain the relevant answers and feed them back to you.

You will not be sent the link to the managers meeting today, Elizabeth has not given verbal consent to any member of staff although we have tried to gain this on many occasions.

Elizabeth has not been deemed to have Capacity to consent to your request on this occasion. Oh yes she has as I have her text messages inviting me to prove and knew exactly what time it took place. Ash Villa were well aware of this too as I phoned on the day asking for the link.

 Kind regards

Zoe Blake

Carer Champion

Ash Villa

Sleaford

NG34 8QA


Subject: Managers hearing

As NR and with Elizabeth’s written consent you are entitled view the capacity report which must give full reasons for the decision on capacity.

Zoe Blake

Carer Champion

Ash Villa

Sleaford

NG34 8QA

From: susan bevis
Sent: 24 May 2022 09:39
To: Blake, Zoe (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST)
Cc: MHA (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) <lpft.mha@nhs.net>
Subject: Managers hearing

Please can you give me a reason why Sophie Jackson and Sarah Twist of the MHA office have continually ignored me as nearest relative and today is the managers hearing which Elizabeth has invited me to.   So where is the link for this?   I have asked for a managers hearing many times only to be ignored by the MHA office.   What on earth is going on under that office as nearest relative I am surely entitled to call a managers hearing.

 I look forward to receiving the link

 Regards

Susan Bevis. 

So with the above examples you can see that I was cut out completely at the time of Dr Shahpasandy being RC.

Elizabeth’s medication was raised to enormous levels from just 300mg per fortnight to circa 400mg weekly with 10mg on top:

I can make no sense of that. A depot and pro re nata medication by tablet.

The drugs raised from 300mg per fortnight to 400mg weekly of clopixol PLUS 10mg clopixol tablet prn”

“After 24 months it should obvious that she is treatment refractive vis-a-vis Clopixol. They do not appear to have taken any notice of the fact that she is a poor metaboliser and that she may have inflammatory and endocrine disorders causing the drugs to be poorly or not metabolised.”

Elizabeth was judged to lack capacity however the common law test as determined in Masterman-Lister v Brutton & Co [2003] 1WLR 1511 was not applied.

Interrogative Suggestibility. Gudjonnson (1984)

1.            Baldwin (1993); Moston (1995), Pearse and Gudjonsson (1996), Shepherd (1993) 

“whether the party to the legal proceedings is capable of understanding, with the assistance of proper explanation from legal advisers and experts in other disciplines as the case may require, the issues on which his consent or decision is likely to be necessary in the course of those proceedings… the threshold for capacity to provide instructions is not high, and people severely affected by a mental disorder may still be able to provide instructions if you explain matters simply and clearly.”

A proper examination applying the proper methods and following the Code of Practice correctly, instead of manipulating it would show that Elizabeth has capacity, albeit impaired.  That is why they want to get you as far away from the treatment regimen as possible.

“Either you don’t understand the question, in which case you say so, and your “micro-expressions” confirm it, or you do, and you’re dodging. The latter is rather too clever for no capacity”.

So getting back to my complaint re CQC a thorough investigation needs to be carried out to look into breaches of code of conduct and policy to achieve results stated as being “best interest” – how on earth can it be best interest to send a vulnerable person far away from home and family making out she has no capacity. THIS IS TOTAL ABUSE OF POWER AND PROCESS AND COULD WELL AFFECT OTHERS. IN FACT BEFORE THE CQC SAYS THEY CANNOT INVESTIGATE INDIVIDUAL COMPLAINTS I KNOW OF OTHERS AFFECTED.

This is undoubtedly a matter for The Rt Hon Victoria Atkins to look into as it concerns Lincolnshire but also a much wider picture that affects the entire UK because there are many other parents fighting right now that I know of.

I am also aware of others whose relatives have been sent far away and there must be some sort of deal with Yorkshire?

A while back in Enfield I asked for Elizabeth to be considered for The Retreat in York or Amitola Community that offer an entirely different approach. However I moved to benefit Elizabeth to the right environment and do not see why she should be moved at all since there is a wonderful organisation called Shared Lives whose offices are in Sleaford. I have also seen an example of a parent asking the LA in Surrey I believe to provide the land where disable people can have their own community and parents can be involved unlike at Lincolnshire Partnership Trust. I would be happy to be involved with any project of this nature and know of others seeking similar solutions. Imagine what it must be like to be 90 and fighting to be near to your relative – a son who is in a wheelchair stuck on a MH ward – this is so sad and I know of other cases in this area too who could be actively involved alongside care workers and professionals working together and not having to challenge decisions of a MDT involving about 30 strangers and deciding on which institution next all of which are the wrong environment. But in this new area there is a wealth of land and farming communities where the correct provision can be made and money saved by this.

I also think that if there was Open Dialogue there would be no complaints from parents and carers such as myself who are on the receiving end of heartbreaking messages and phone calls from their relatives who would not be fighting if they were included rather than excluded in decision making.

I hope that the Rt Hon Victoria Atkins takes this on board as I am in touch with the most shocking cases throughout the UK and would like to see something done about it

I wish to share with you some of the emails I have today been writing in sheer desperation on behalf of my vulnerable daughter and I also wish to share with you her most recent comments and wishes which are being totally ignored by these people:

CASTLE WARD

To: KHOKHAR, Waqqas (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); TANIMOWO, Adekiite (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); KHOKHAR, Waqqas (LEICESTERSHIRE PARTNERSHIP NHS TRUST); CALDERONCARHUARICRA, Katteryne (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST); BARFORD-COWLEY, Amelia (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) Cc: AITKENHEAD, Angela (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Barker, Robert (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Barlow, Diane (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); BELLAMY, Charlotte (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); CAMSELL, Lucy (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); FISHER, Bridgette (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Fitzpatrick, Brenda (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); FLETCHER, Sue (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); GOSTELOW, Joby (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); JAQUES, Anthony (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Keogh, Sophie (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); LAKE, James (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); MARABADA, Ngonidzashe (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); MOONS, Kashmir (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); POPOOLA, Tomilayo (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SCOTT, Emily (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SENDALL, Jackie (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Skelton, Alice (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SUNDAR, Siddharth (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Tarling, Paul (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Waby, Lucieann (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); WALLACE, Sarah (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); White, Jocelyne (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Woodlock, Emma (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST);

These people above are what is known as the MDT (Multi-disciplinary Team) and personally I think there are far too many strangers amongst them to be involved in making decisions on behalf of a vulnerable person who should have been offered a CTR (Community Treatment Review) in the first place but this was denied to Elizabeth under LPFT. At least a CTR with independent Chair is a fairer option. What chance of fairness could ever be found from these people above under LPFT where there would appear to be a culture of bullying and as such who would even dare to challenge because when you do like I have you become a target of bullying and punishment dished out to you and that greatest punishment of all is to deprive you of contact with your vulnerable relative. Elizabeth used the word “punishment” today and said that she is being punished. She has made it clear to so many her wishes to come home, to see her cat and be closer to the family but instead this team of strangers have come up with East Yorks and yet another hospital. What a shambles.

On the other hand it could be because they want to take her away from this area because it has come to light there has been an accident at Ash Villa where Elizabeth hit her head on the floor in the seclusion room whilst on God knows how much drugs causing her to feel dizzy and lose her balance and to think they tried to cover it all up. What a disgrace.

Amongst the attendees above are my former shocking area of Enfield namely BEHMHTNHS equally as bad and still involved because of S117 aftercare.

During my visit to Castle Ward supervised 2-1 by HCAs and witnessed by a horrified friend Elizabeth wrote on a piece of paper her wishes:

“I want to come home to live with my Mum in the annex through the Court of Protection. I miss my Mum greatly and want to go home to her.”

How very cruel that Elizabeth’s wishes are ignored by so many but I supposed if any of them dared to challenge it is more than their job is worth. I have even heard this said previously at a shocking good for nothing care home in Northampton by an RMN rated good by CQC yet she had no food at weekends in the files and I can share proof of that with all of you too.

I am still awaiting the CCTV footage of my alleged aggressive behaviour but will be waiting a very long time as there is nothing of course. It is just bullying because I turned up at Trust HQ and dared to complain about Dr Khokhar’s decision to cut all leave which was only granted on one occasion after months of imprisonment and total abuse of human rights. That leave was only 2 hours in grounds outside and extended to local area of Lincoln where Elizabeth thoroughly enjoyed going to a shopping centre called Carlton.

Since that one time things have gone from bad to worse. The entire family know about the accident now which happened some months ago and during the time at Ash Villa a bit more leave was granted up to 6 hours which worked well as I could take her out and show her the wildlife parks and a few nice things in the local area. During this time as a surprise I booked for Elizabeth an MRI scan which is what she always wanted and she did very well and lasted most of the duration for images to be taken in the mobile unit in Sleaford, Lincs.

I sent the scans to experts working on research of various kinds and a team of colleagues looked at the scans and identified several things in need of further investigation despite the scan amazingly stating “normal”. I wrote back to the organisation conducting the scan to the Radiologist and have not had any reply when I questioned why the scans said normal. They clearly are NOT normal. I was told at the time by various doctors/clinicians that no MRI was needed and that scans done in 2015 were normal. So I want all my readers to know that you cannot go by NORMAL! One of the images was even marked as “historic trauma” – the fact is they were all denying her the appointments with a neurologist and it is only because I made such a fuss about it and shows them the scans plus the comments made by an expert that finally LPFT have provided a scan and referral to a neurologist however today I contacted the care quality commission as it was also mentioned at Ward Round that a SOAD should be appointed. I wrote to the care quality commission and told them that Elizabeth should NOT be moved to another facility far away when she has been referred to a Consultant Neurologist and no way on earth should their SOAD look at the current treatment until Elizabeth has seen the Consultant Neurologist as how can a SOAD give any opinion if the diagnosis of schizophrenia is totally completely and utterly wrong.

Here is why Martha’s Rule is so very important and needed in that certain doctors wish to stick with out of date questionable diagnoses completely overlooking physical health concerns and file content that goes way back stating “Anterior Region Medial Temporal Compromise” plus the discharge note stating “abnormal findings on a scan”. Who can you trust except your instincts as a mother/relative in providing privately what was needed all along – an MRI scan which simply cannot be argued about as this is fact not assumptions.

Only one of ten doctors so far and from Cygnet in Durham really showed an interest in physical health and most probably would not have refused to do a scan.

So here are some of the emails I have written today which show what lengths I have had to go to to try and get the right care and treatment despite being cut out of everything and simply based on fact by way of the MRI scan I had done privately:

From: susan bevis
Sent: 15 November 2023 19:15
To: CARECONCERNS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) lpft.careconcerns@nhs.net; victoria@victoriaatkins.org.uk victoria@victoriaatkins.org.uk; Christopher Reid Chris.Reid@parliament.uk; Enquiries Enquiries@cqc.org.uk;

Subject: Ward Round and Proposed Move to East Yorkshire
 
Dear All

I was talking with Elizabeth earlier today who did not feel very well unsurprisingly.  She has been treated like a restricted prisoner for c 2 years now, not allowed leave and now with the threat of being sent to East Yorkshire to yet another institution right now.  Great damage is being done to my daughter being held on various acute wards after all this time when she would be better off at home in the right environment.

Elizabeth now suffers from fits lasting hours and a hospital is completely unsafe as the floors are hard and she has hurt her back and she has hit her head badly on the floor of the seclusion room.  The annex is far more suitable and in a peaceful environment.   We should have been notified of this accident under Regulation 20 H&SCA Regulation 14 and that goes for every time she is rapidly tranquilised and now I have the CP11 Policy document which I intend to read thoroughly as I am concerned to read about blood oxygen levels being low and that is harmful to my daughter. 

Not only has no-one stopped to consider her feelings or that of any family members but they have treated Elizabeth like a vegetable on account of three flawed capacity assessments (not fit for purpose) but what of the CoP assessments?  they were done at the same time (2 of them) by assessors who came to Ash Villa and they did not state ‘no capacity’ did they!  Now that I myself am training to be a Best Interest Assessor I can see that nothing is being done correctly under LPFT. Elizabeth clearly has capacity and this matter needs to go before the Court of Protection in accordance with Elizabeth’s wishes.     I have a note witnessed by CM during her recent visit that states “I want to come home to live with my Mum in the annexe and through the Court of Protection.  I miss my Mum greatly and want to go home to her”.  Elizabeth has also tried to arrange a capacity assessment herself which I was prepared to pay for however Ms Sharon Harvey, Director of Nursing has offered to provide an independent capacity assessment and Mr Fahy a CTR independently chaired.

I do not like the way LPFT are ignoring my daughter’s wishes.   LPFT failed taking away the POA despite attempts trying to label myself and Mr Bevis as abusive yet again.  You succeeded in the closed- door county court to get rid of me behind my back and Elizabeth in the most deceitful manner backed by the council and their legal department.   That is another matter because clearly there is a culture of bullying under LPFT but yet 1 person retains overall control and yet sending Elizabeth away, so far away from home and family it is made out to be an MDT team decision.   In the middle of all of this is my vulnerable daughter who has phoned me today stating she feels she is being abused and she is correct.

The words “you have schizophrenia” are constantly expressed to her when Elizabeth (not me) states she is autistic and YES YOU CAN provide an assessment on that.  Nothing has been done properly there either. 

We came here to Lincolnshire to provide a more suitable home which is now built and completely independent.  We came here with the intention of working with professionals rather than against them but now LPFT have gone too far in ignoring my daughter’s wishes and I do not intend to stay silent about this or do nothing.

If LPFT are intent on severing contact between myself and my daughter then where is the consideration to the rest of the family.  If noone thinks I am suitable to be near my daughter what about the rest of the family who reside in Norfolk?   Why send her to East Yorks when she could either be nearer home so she can see her cat who she misses or else be moved to Norfolk?   You can be sure of this I intend to challenge this in the Highest Court which will reveal a lot about this area and how human rights, MCA and MHA law have been abused/ignored and the shocking way they treat vulnerable people and their families, breach of law re MCA and MHA also and breach of LPFT Policy.  

If Elizabeth was allowed to come home and said she did not like the annex and wanted to go elsewhere then that would be her decision.  There also should be a choice of three placements but because of the flawed capacity assessments this is being prevented as she has been stripped of her autonomy in the most dishonest and disturbing manner that warrants a full external investigation. 

Because of the private scans I have had cause to question the diagnosis with good clear evidence.  Scans said to be “normal”  however when questioned the radiologist remains silent with no response to my emails. 

The scans I had done are with various experts in the field of neurology right now and Elizabeth has written a letter of consent to share the opinions with the Cavernoma Alliance 

Since moving to this area LPFT have cancelled all pre-arranged neurologist appointments stating they are unnecessary which is very strange since the discharge note points to abnormal findings on a scan.     

IMG-0003-00001jpeg. (their reference Im: 7/24) shows the curious straight line going from the right temple radiating backwards at about 60 degrees to the lateral line of the skull. On the opposite side you will see a dark area corresponding to just behind the left ear.  

On IMG-0004-00001jpeg. (their reference Im: 11/24) there is another curious dark line behind the right eye.  You need to ask what they think these images are showing. Are they potential lesions? 

 On IMG-0005-00001jpeg. (their reference Im: 26/96) the scan refers to >55 years old trauma.  What are they referring to here?

Cavernomas

 Cavernomas are vascular malformations that have been associated with psychosis as well, especially in the setting of hemorrhagic transformation.

 That dark patch on Elizabeth’s temporal lobe looks suspiciously like one.

 
The article is about a young man presenting with psychosis and aggression.  He was found to have two cavernomas and you can see them on the scans in the article.

 It is possible that the reason why cavernomas are relatively rare is that the misdiagnosis of schizophrenia is masking the actual incidence in the population.  Since psychiatrists are so reluctant to allow patients to have brain scans many of these may be going undetected.

Clearly you need to get Elizabeth properly examined by a neurologist to determine if that indication on her brain is indeed a cavernoma or any other type of lesion. 

Neuroleptic medication will not treat these lesions and could potentially make them worse since it can cause inflammation.  

I took note that you mentioned that Elizabeth has a large sebaceous cyst on her head.  This is well associated with the long-term use of neuroleptic medications.

That also needs a medical appraisal done.  This is not simply a cosmetic ADR but indicates a potential endocrine disorder linked to her inability to metabolise drugs.

Incidentally this has also been known about for years.  Sebaceous cysts are NOT benign.  For one thing they may mask subdural lesions and inflammation making them difficult to define. I am told that nothing will be done about the sebaceous cyst and am really unhappy about the slapdash way they go about things refusing to look into pathological causes.

 It is rather odd that the scans are referred to as ‘normal’.  Decreases in grey matter are associated with neuroleptic use and certain areas of the brain are more affected than others. Most of the literature refers to severity of psychotic symptoms and dosage of neuroleptics to be directly associated with brain grey matter loss.  Since those with the most pronounced psychotic symptoms are given the highest doses of drugs and often dangerous concomitant medication it is not surprising that both contribute to brain atrophy.

The psychiatrists have classed Elizabeth as being towards the most severe degree of psychosis and have heavily and concomitantly prescribed neuroleptics to address this.  There is in fact little evidence that correlates dose with severity of psychotic symptoms.  Many patients with severe psychosis have responded to low doses of neuroleptics and the difference in response is more likely to be associated with the patients ability to metabolise than the dose volume.  It is here of course to be noted that the medics have been ignoring that for many years and have only just (reluctantly) accepted it. Very strange indeed as in Australia no sign of psychosis mentioned.

Elizabeth has of course now been subjected to many years of medication and structural changes in the brain resulting from it are likely to be irreversible along with the other long term ADRs associated with neuroleptic medication.  Her reduced capacity, which they put down to a low baseline IQ is far more likely caused by the long term structural changes to her brain, in particular grey matter atrophy.  Baseline IQ is in any case an anachronistic measure of a patients capacity and is highly inaccurate and riddled with confounding variables.  

 I have attached a set of scans that show where brain atrophy occurs as a result of neuroleptic medication (green spots) 

 There is also the mater of inflammatory complications. The inflammation can come and go and is likely to be pronounced in psychotic episodes.  They have not over the years seemed to consider this at all in spite of the large amount of studies published in the medical literature.  It is firmly established that inflammation can cause psychosis and that it can interfere with the uptake and metabolism of the drugs.  Personally I am astonished that this is in the main simply disregarded, just like to P450s were for decades.  So am I astonished.

I was fascinated with Dr Shahpesandy’s bizarre doublethink on inflammation.  On the one hand in his publications he fully acknowledges it it but when treating patients he completely disregards the findings of his own research.  

The orthodox medical obsession with so called chemical imbalances ‘treated’ with neuroleptics completely blocks out numerous pathophysiological contributing factors and possibly even causes of psychosis.  It is virtually medieval in its approach and shares more in common with cult beliefs than with science.  
 
Ignoring pathophysiological symptoms and markers is utterly absurd in any diagnostic system let alone the potential for consequences of ignoring them when administering medication. 

Refusing Elizabeth and other patients access to properly conducted tests and analysis is a scandal on a huge scale.  But of course they find it much easier to label people with catch-all and non -specific stigmatising terms like schizophrenia.   The reason I am being bullied by this team is because I have dared to request the real diagnosis now that I have significant proof by way of scans and it has been a nightmare to find that second opinion I need urgently before Elizabeth is moved on by Dr Khokhar and team which I hope will not be prior to Xmas depriving her of being with her family as well as depriving her once again of pathological tests and seeing her Consultant Neurologist who Elizabeth has shared with me is a Doctor C Solinas who holds clinics at Lincoln County Hospital. Elizabeth has also shared the date and time of the appointment which is on 3 January. I have just written to Dr Solinas to share the private scans and now there are more said to be normal when they cannot possibly be normal – it is as though the NHS is deliberately trying to cover up things like cavernomas and lesions as well as inflammation of the brain under the label of “normal” but luckily I am not so easily taken in and look well and truly beyond this as something must be wrong if Elizabeth is having fits that last for hours and hours on end and result in dangerously high blood pressure and low blood oxygen levels that could be fatal.

I wish to congratulate Victoria Atkins on her appointment as Health Secretary and am copying her in to this email.  I hope this example can be studied in terms of improving a system not fit for purpose and devoid of human rights.  

I do not know when you are going to send my daughter away yet again to another facility where it is noisy and hope it is not before Xmas as she wants to see her family and nothing is being mentioned about that.   She is suffering the effects of headaches, pain to her eyes and dizziness which led to an accident at Ash Villa.  She suffers anxiousness because of the uncertainty of her life which has been turned upside down as ours has.  She is subject to frequent rapid tranquilisation and I would question with the CQC to check the RT log and whether procedures are carried out correctly.

I have now proven that there is something else wrong with my daughter of a physical nature that needs further investigation but what is so bad are the lengths I have had to go to in respect of even getting her a referral to a Consultant Neurologist because I am not against treatment of the right kind but can see my daughter is suffering right now on a massive dose of drugs being treated for schizophrenia when it is likely she has a cavernoma and lesions plus inflammation of the brain.  She has also been denied endocrine test and immunologist tests.   She has sensory issues and is held in a most noisy acute facility and is being injected on a frequent practically daily basis despite the fact that MRI scans point to certain images being suspect of cavernoma, lesions and past trauma.

Last of all Elizabeth should NOT be sent anywhere until she has seen the Consultant Neurologist Dr C Solinas and it is not a case of the SOAD just checking on her medicine treatment as how can they do so until she has seen Consultant Neurologist Dr Solinas on the 3rd January.  Elizabeth has shared her appointment letter so I know all about it.

I would like confirmation from someone that my daughter will not be sent far away before Xmas and prior to her Neurology appointment with Dr Solinas against her wishes.

Yours sincerely

Susan Bevis   

I wish to share with you some of my concerns and why I have been copying in the CQC and why everyone with similar concerns should obtain their Trusts CP11 Policy on RT where applicable.

“Lowered oxygen availability (hypoxia) is theoretically important in the consideration of pharmacology because 

(1) hypoxia can alter cellular function and thereby the therapeutic effectiveness of the agent, 

(2) therapeutic agents may potentiate or protect against hypoxia-induced pathology, 

(3) hypoxic conditions may potentiate or mitigate drug-induced toxicity, 

(4) hypoxia may alter drug metabolism and thereby therapeutic effectiveness, and 

(5) therapeutic agents might alter the relative coupling of blood flow and energy metabolism in an organ. 

The prototypic biochemical effect of hypoxia is related to its known role as a cofactor in a number of enzymatic reactions, e.g., oxidases and oxygenases, which are affected independently from the bioenergetic effect of low oxygen on energetic functions. 

The cytochrome P-450 family of enzymes is another example. Here, there is a direct effect of oxygen availability on the conformation of the enzyme, thereby altering the metabolism of drug substrates. 

From: Hypoxia—implications for pharmaceutical developments.  Sleep Breath. 2010 Dec; 14(4): 291–298. Published online 2010 Jul 14. doi: 10.1007/s11325-010-0368-x

Psychosis Due to a Medical Condition
This diagnosis is made when a patient’s medical history, physical examination, or laboratory test results suggest that one or more medical conditions have caused brain changes that might create psychotic symptoms*, and those psychotic symptoms (e.g., hallucinations, delusions) are in fact present since the medical condition has occurred. 

A surprisingly large number of different medical conditions are capable of creating psychosis. Neurological conditions that may cause psychosis include brain tumors, cerebrovascular disease, Huntington’s disease, multiple sclerosis, epilepsy, auditory or visual nerve injury or impairment, deafness, migraine, and infections of the central nervous system. 

Endocrine disturbances include increases or decreases in the activity of the thyroid, parathyroid, or adrenocortical system. 

A decrease in blood gases such as oxygen or carbon dioxide or imbalances in blood sugar or electrolytes are some metabolic causes of psychosis. Finally, autoimmune disorders with central nervous system involvement such as systemic lupus erythematosus have also been known to cause psychosis.

Psychosis caused by a medical condition may be a single isolated incident1 or may be recurrent, cycling with the status of the underlying medical condition2. Although treating the medical condition often results in the remission of the psychosis, this is not always the case. Psychotic symptoms may persist long after the medical conditions that have caused them are cured.

*Single doses of psychotropic medications can cause brain plasticity changes.

1 Such as those causing PTSD.

2 Caused by incorrect titration of psychotropic and neuroleptic medication

The other thing I have done is give one month’s notice under a GDPR request since I am being labelled in a defamatory manner made out to be aggressive hostile and threatening. I will let you know the result in due course but I am once again still waiting for the CCTV footage which could not be produced in the first instance so in that case I will want alterations done to the file records and for this I have written to both areas, both Enfield and LPFT Trust and Councils.

I will finish by saying it is the ultimate punishment to deny contact and impose restrictions such as 2-1 supervised visits. It is an infringement of human rights. Unless there are concerns of harm towards a vulnerable person by violence then there is no cause to impose such restrictions and any safeguarding should be done in an open and transparent manner. It would appear that such punishment is being dished out to cover up failings and try to protect certain professionals and to isolate a vulnerable person denying her with the sort of emotional support she needs. It is inhumane to emphasise with a patient – total abrogation of medical ethics. What LPFT are dong is isolating Elizabeth from anyone who can offer her real support, an appalling and egregious abuse of power. I would accuse LPFT of not wanting Elizabeth to develop long term friendships because they give her personal support. For instance she has made a new friend who is helping her on the ward right now.

It is not that I am a danger to Elizabeth they wish to move her far away as yet more punishment it is because Dr K thinks I am a bad influence when they try to play on no capacity so if Elizabeth is considered to have no capacity to the point the team have to decide everything they think in terms of their own best interest abusing their power and control stating she has no capacity yet how then can I be of any influence if she has no capacity. Utterly ridiculous.

Elizabeth’s request for another RC has been ignored and it is most disturbing at reading more file paperwork today that something needs to be done to stop this abuse right now.

When I suggested too high a dosage this is being ignored and so is the sebaceous cyst that needs to be removed.

If it comes to anyone’s attention that medical file notes/records are incorrect and full of errors like I have come across it should most definitely be challenged and today I phoned the ICO in this respect but they said certain comments could not be deleted and only a reference put against them that you do not agree. I do not think this is very good since some of the comments are defamatory but now I want to see what they have written because I can only visit Elizabeth with 2-1 supervision just like in prison though I suspect in prison people are treated better.

Anyway, I have written the email below and as you can see I have had to include two areas but I thought it would save time by doing one email as you can see below. As for the errors there are so many I do not know where to begin. It is disgraceful to put comments that you have acted in an aggressive manner, threatening, hostile, intimidating and swearing and yet where is the CCTV and recordings. I have had to chase them up again as I wish to feature this but the fact is as you can well understand there is no evidence so why write like this and because of what I have read by chance I want to see ALL the records now especially since I have found out I am not under safeguarding.

From: susan bevis

Sent: Monday, November 13, 2023 1:08 PM

To: CARECONCERNS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) lpft.careconcerns@nhs.net  Cc: lpft.lpftrecords@nhs.net ; beh-tr.records@nhs.net; Enfield.Data.Protection.Officer@enfield.gov.uk

Dear Sir/Madam

I wish to exercise my rights under the GDPR 2018 to obtain from LPFT and BEHMHTNHS as well as Enfield and Lincolnshire County council all records of what they have been saying about me over the last few years in the form of notes, memos and any recordings and in Enfield’s case back to 2019.  I have a right to see all records and a right to correct errors in any of them. 

I am hereby making a formal Data Subject Access Request to LPFT, LCC, BEHMHTNHS and Enfield Council who I believe have records where I am the subject.  

Since I am currently on 2 on 1 supervision there will certainly be extensive records of this from discussions between medical and social services teams that will extend to former area Enfield.  

Other material will undoubtedly be making very adverse observations about me and I am entitled to set the record straight under GDPR and therefore require sight of this and necessary corrections to be  made.

There should not any legitimate reason why I cannot have such material in which I am discussed as it is my  legal right.  

In your letter attached you have suggested going to the ICO’s office which I will do.

 I have checked there is no safeguarding mentioned against me despite this being mentioned verbally during a ward round.

You have one month to provide this information from today’s date plus I have already requested alongside CM the CCTV footage from the Trust HQ and all the notes regarding the 2-1 supervision currently in place also.  

I have just phoned the ICO and confirmed this fact and they are waiting to hear from me and said to give one month for receipt of all data.

 Look forward to receiving this in due course.

Yours sincerely

Susan Bevis   

Here is another email I wrote to my designated email address as I am most concerned about all the rapid tranquilisation and high dosage of drugs.

“Lack of oxygen in the blood results in cold intolerance because it regulates vasodilation.  Hypothyroidism and disorders in the hypothalamus cause an intolerance to perceived cold, even if the room temperature is warm.

Lack of blood oxygen cause confusion, disorientation and even psychosis.  If it drops below 90% the patients life is at risk.  It is time this received more urgent attention.   “

“If a patient has low blood oxygen levels that too will interfere with metabolism and receptor uptake.  Apart from the rather obvious fact that low blood oxygen can damage the very organs employed in drug metabolisation and excretion.  

I very much doubt that these people can be trusted to carry out proper monitoring of Elizabeth’s blood oxygen levels especially through the night. “

I wish to clarify the term “treatment resistant schizophrenia”

 “There is no such thing as treatment resistant schizophrenia.  If a patient is not responding to medication it is because they cannot metabolise it properly, not because they are ‘resistant’.”

“2nd opinions would be very valuable because they will undoubtedly come from those trained in neurology.”

“The drug treatment for ‘schizophrenia’ involves dopamine and serotonin receptors (D2 & 5-HT) In order for an antagonist to work on those receptors it must be metabolised by P450s.”

I understand it is alleged Elizabeth does not join in but I would totally contradict this as she loves cooking and art group. Having said this all of this is available in the community.

Elizabeth has at last had a referral to a Consultant Neurologist but she told me she just had a further scan done through referral from Castle Ward. I thought this was strange as the team knew I had paid for a private MRI scan. It has taken two years for such a referral to be made and this is not until the New Year that she goes to the Neurology clinic and by the way I would definitely say to anyone that has an MRI scan not to trust the results of “normal” if they happen to be under the MH as normal might be quite the opposite as I have discovered if the scans are shown to the right people. This is unbelievable when even I could see things wrong and it is clearly marked “trauma” on one of the images.

Thank God for that after two years when at last former area of Enfield were taking her physical health seriously now LPFT have had to do the Neurology referral they refused a while back. Now I have joined the Cavernoma Alliance that give fantastic advice and it is good to take part in their zoom meetings.

I have heard it said Elizabeth could not be managed safely in the community and that it is not in her best interest to come home. This is totally contradictory to what I have read in important recent papers. So in that case whose best interest is it really? It strikes me that it is the best interest of Castle Ward/LPFT and as for best interest I am now training to be a best interest assessor myself and cannot think of a good word to say about their flawed capacity assessments. Elizabeth herself has telephoned a company who do capacity assessments and has requested a fresh one. Now that shows capacity doesn’t it. Back in Enfield Elizabeth was not even on a section and this is the fault of two areas as to how difficult was it to get the treatment up and running instead of neglecting the necessity to continue the highly unsatisfactory treatment of a depot but without it being titrated down slowly and gradually this meant withdrawal syndrome and most certainly not relapse of a so called mental illness especially when Elizabeth keeps having to repeat she has autism whereas I have actual proof of other underlying conditions of a physical nature.

The current drug combination of Clopixol and Procylidine needs very close supervision because it can affect blood oxygen levels and on top rapid tranquilisations are given frequently. Practically every day Elizabeth is injected and she sees this as a punishment.

Back in Enfield Elizabeth was previously on 300mg per fortnight in the community and compliant.

I have been accused of demanding a bespoke package from Enfield. Chance would be a fine thing as  absolutely nothing was ever provided under Enfield. I had moved to become her full time carer and provide a nice safe living accommodation in the form of a little bungalow.

There was never behavioural problems or what resembles a fit prior to moving, the drugs were being reduced and she was on 300mg per fortnight.  My complaints have been about the level of the drugs prescribed which are affecting her eyesight, making her very tired and unsteady on her feet  If Elizabeth wasn’t on such a massive amount of Clopixol she would not need to take the procyclidine.

I am waiting to hear when the CTR will go ahead.

It is much safer for Elizabeth to be home because at least there are carpets rather than hard floors.  I am not phased about the fits in any case having witnessed this twice. It is much safer at home in the annex.   

It is very wrong that so many flawed capacity assessments have been done but I feel this never did have anything to do with displacement but more on where Elizabeth should live and to choose because they regarded her as not having capacity and want to distance her from her family who she clearly misses greatly and has been able to express this in writing.

It is not true that 2 hours leave is granted and that was only granted once.  Elizabeth is being treated in a disgusting manner against the Code Practice, against Policy of LPFT, against John’s Campaign and most of all against both Equality Act and Human Rights Act.

As for holistic care.  You can hardly call anything holistic under LPFT who have denied physical health pathological tests which even Enfield were giving after so very long and only because it has suddenly been deemed necessary because I have scan results.

I wrote I look forward to the next ward round where hopefully I will be let into the meeting but if not I may have to come in person but should this not have been held in the main room with everyone else present on the screens?

Anyway, one session of two hours unsupervised leave was the only leave Elizabeth was given in a long while which was a huge success but perhaps next time it can be considered that staff are needed on the ward and not having to listen to every word of conversation –  it is clearly not necessary at all and an infringement of Elizabeth’s human rights.

Side effects of the drugs:

Incontinence

blurred vision – affecting her eyesight and pain to her eyes

Dizziness – which led to accident at Ash Villa

Fits that last for many hours they do not know the cause of.

Extreme tiredness

Headaches

Feeling extremely cold

The above is what Elizabeth has told us are side effects on this huge dosage currently being prescribed.

Regards

Susan Bevis

Glad it has been acknowledged in this highly inaccurate report that Elizabeth was not “hostile or agitated”.  Not surprising she would present as “detached“.   She clearly DOES NOT LACK CAPACITY otherwise she would not be writing in such a clear concise manner to everyone. She keeps asking to come home as she misses her cat and I would say that is most certainly BEST INTEREST.

I am pleased to read our local MP Victoria Atkins is now Health Secretary and I hope she can improve things in this area and ensure provision in the community.

https://www.independent.co.uk/news/health/victoria-atkins-health-secretary-sunak-reshuffle-nhs-b2446502.html 

Mental Health Act Administration Office

                                                                                                                Trust Headquarters

                                                                                                                St Georges

                                                                                                                Long Leys Road

                                                                                                                LINCOLN    LN1 1FS

                                                                                                                20 October 2023

In Confidence

Mrs Susan Bevis

Dear Mrs Bevis

We have been informed about an incident that took place in Reception at Trust Headquarters, St Georges Site on Wednesday 18th October 20233, in which you presented as hostile and aggressive, demanding immediate access to a senior manager

As an employer LPFT has a duty of care for the health,  safety and wellbeing of its staff.   We also have a legal responsibility to provide a safe and secure working environment for staff.  Staff mental health is as important as their physical health.  Any incident in which an employee is abused, threatened or assaulted in circumstances relating to their work is unacceptable and not tolerated.  This includes the serious or persistent use of verbal abuse, aggressive tone or language and swearing.

In accordance with NHS guidance, such behaviour is not acceptable and you are now formally warned that if there is a repeat of this or similar behaviour again in the future at any LPFT site the Police will be called to escort you from Trust premises.

Going forward please ensure that you only attend Castle Ward for your pre-booked appointment times once a week.  This will allow ward staff to facilitate the visits as directed by Elizabeth’s Responsible Clinician as part of the plan for her care and treatment;  please be assured that these decisions have not been made by staff in Trust Headquarters or other teams and will be reviewed regularly.  Unannounced visits to Castle Ward to see Elizabeth will not be able to be facilitated.

Yours sincerely

THE MENTAL HEALTH ACT AND LEGAL TEAM

CHAIR  KEVIN LOCKYER

CHIEF EXECUTIVE:  SARAH CONNERY 

VISIT TO ELIZABETH ON 30 OCTOBER 2023

There is no greater bullying and abuse of power than to deprive contact with your vulnerable relative. LPFT have most certainly achieved this. Threats and defamation of character are another way to bully one person and then to carry out safeguarding behind your back. This was already done under Enfield and both Trust and Council were forced to apologise. Here under LPFT this is going on against me because it only takes one complaint and then everyone gangs up yet when I asked for safeguarding this was dismissed and ignored especially when so many other patients had come up to me in the grounds to tell me about my daughter’s shocking treatment and frequent rapid tranquilisations that led to a bad accident that we the family have only just got to hear about via Elizabeth.

I had to sit outside on the floor for the entire visit whilst only a friend was allowed to visit unescorted who actually booked the visit and made it clear it was for both of us but I did not argue as they would have called security or Police once again. I could only see Elizabeth for about 5 minutes because apparently it was ordered that I needed to have 2-1 supervision. Nurse Paul Tarling told me to leave the ward and I did so immediately when ordered. The reason was there was nothing written down in their books about me coming and they were short staffed and could not provide 2-1 supervision. The staff on Castle Ward point to Trust HQ but it is very clear who is behind this decision. The unsigned letter from Trust HQ explains in the last paragraph. I am still waiting for the CCTV footage requested under GDPR Rules and nothing previously has ever been produced despite similar comments alleging threatening abusive behaviour on my part. I have written to the records department of LPFT and requested CCTV footage along with an accompanying friend.

Email dated 31.10.23 regarding visit 30.10.23 by accompanying friend the following was written:

“I arranged this meeting myself to accompany Susan Bevis to Castle Ward on the above date.  I clearly pointed out that the visit would be both of us verbally.

We arrived yesterday at 6.00 pm and were allowed onto the ward and Elizabeth was with us in the visiting room unescorted.    However, a male nurse, I understand his name is Paul Tarling appeared in the visitors room and announced that only 1 visitor had been agreed and this was myself to which I responded that I had requested Susan Bevis to visit alongside me and was advised this was noted in the visitor’s book.

Anyway Susan Bevis was told to leave the ward and sat outside where she remained seated on the floor just outside the ward whilst my visit continued unescorted.

I am concerned at the effect this may all be having on Elizabeth and her care.  It is clear there is personal vendetta from Dr Waqqas Khokhar towards Susan Bevis and I understand he has described her as being “a bad influence”.   I am also aware that previously there were incidents not substantiated by CCTV or recordings and that it is awaited proof of alleged threatening behaviour on the part of Susan Bevis during her visit to Trust HQ with CM (another friend).

Whilst the nurse (Paul Tarling) said it was not a ward decision I can see quite clearly from the letter Susan Bevis shared with me attached that it is clearly a decision made by you, Dr Khokhar.   I therefore would like to understand further why such restrictions are in place and to understand Trust Policy on banning visitors and restricting contact.

Perhaps you or Ms Munro can send me the Trust Guidelines and Policy in this respect.

I would also like to know the time of the meeting on the 3rd November I have heard all about.  Perhaps you can send me the link to this meeting so we can all take part.”  

Yours sincerely

My email to Ms Ann Munro

From: susan bevis
Sent: 31 October 2023 21:18
To: CARECONCERNS (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST)
Cc: Enquiries; Parliamentary Health Ombudsman
Subject: FAO ANN MUNRO ENQ 17716124293

Dear Ms Munro

Thank you for your letter of 30 October.

CP11 Policy has been requested under FOI on 8 October 2023.  I am also aware Elizabeth has been shown on screen the information she told me she had requested in written form.

I receive an invitation to attend Teams Meetings automatically but on two occasions have not been admitted. I have even phoned to advise of this.  This is why I came in person on the 18th October and this had been prior arranged.   Elizabeth was well aware and happy for me to attend and was looking forward to a repeat of the two hour leave granted.  This was no ward round as it was held in the visitor’s room instead.  I am also aware that Elizabeth absolutely hates these meetings where so many strangers attend, without any family members invited. She often chooses not to attend and quite often no advocate present.

I have another invitation for Teams ward round for the 1st November but am aware that there is a family meeting on the 3rd November and  have not received the invitation to that?   Am I going to be cut out of both meetings as has been the case for the most part? 

To: KHOKHAR, Waqqas (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); TANIMOWO, Adekiite (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); KHOKHAR, Waqqas (LEICESTERSHIRE PARTNERSHIP NHS TRUST); CALDERONCARHUARICRA, Katteryne (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST); BARFORD-COWLEY, Amelia (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST) Cc: AITKENHEAD, Angela (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Barker, Robert (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Barlow, Diane (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); BELLAMY, Charlotte (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); CAMSELL, Lucy (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); FISHER, Bridgette (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Fitzpatrick, Brenda (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); FLETCHER, Sue (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); GOSTELOW, Joby (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); JAQUES, Anthony (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Keogh, Sophie (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); LAKE, James (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); MARABADA, Ngonidzashe (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); MOONS, Kashmir (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); POPOOLA, Tomilayo (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SCOTT, Emily (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SENDALL, Jackie (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Skelton, Alice (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); SUNDAR, Siddharth (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Tarling, Paul (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Waby, Lucieann (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); WALLACE, Sarah (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); White, Jocelyne (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); Woodlock, Emma (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); KAJUE, Hannah (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST); Lisa Anderson; susanb255@outlook.com; THORNTON, Andrea (NHS LINCOLNSHIRE ICB – 71E); PANDURANGI, Disha (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST)

Microsoft Teams Meeting

01 November 2023 10:40 – 11:00 (was 25 October 2023)

As you can see I am automatically included in Teams Meetings so it is not an excuse to say the Team would not have been aware of my invitation.  See above – my email address is clearly on the list and would be seen as who is waiting to be let in for the meeting.

I am aware that there is another meeting on the 3rd November and have not received the link for that and neither has ****

No, your explanations have not reassured me in the slightest bit.

Whilst writing I have been reading with interest LPFT’s Policy

Just to reflect LPFT had three capacity assessments done each and every one of them flawed. They launched a campaign on bullying against me trying to take away POA for Health and Welfare then displacing me as NR and have had these 3 capacity assessments done in-house – two by doctors, one completely redacted and the other by an AMHP. They wanted them to show “no capacity” so that they could take over the life of my daughter who was not even sectioned before under the former area of Enfield. They have abused her rights and treated her like a restricted prisoner for over two years. There have been 10 doctors and 5 institutions and now they are looking for a 6th option and former area of Enfield cannot find any nearby option apparently. There has been no regard to Elizabeth’s feelings whatsoever and no regard to her family. There is a culture of bullying under LPFT as there was with Enfield and zero accountability. No consideration to human rights whatsoever and the wishes of my vulnerable daughter and she is not alone as there are countless others trapped in institutions such as this and treated as prisoners. She was not even on a section before we moved to Lincolnshire for the purpose of providing a nice home in the form of a small bungalow in our back garden. I moved to bring her closer to other family members. LPFT are not only in breach of human rights law but their only Policy and code of conduct and under the MHA too and should apply the least restrictive care but it has been the complete opposite.

“If an individual lacks the capacity to consent to admission and the admission is completed using the best interest framework then this should be recorded as per policy 6b and an urgent authorisation for a Deprivation of Liberty should be submitted to the Supervisory Body as per the MCA Policy 6b.  

Is/was 6b applicable from Ash Villa to date?  This being in addition to MHA (s3) detention. Surely LPFT would not have applied DoLs on account of the three flawed capacity assessments?  If Dols in place is this the reason that Elizabeth has been treated like a restricted prisoner all along and denied leave and family contact for the most part?  I did not think you could apply DoLs whilst held under S3 MHA or has anything changed?

LPFT POLICY

8.7 Visitors to LPFT Premises LPFT considers the safety and dignity of all visitors to its premises as extremely important. The link below provides guidance and procedures regarding the management of all visitors to Trust premises and includes process for managing visits by children: Please refer to visitors process within safeguarding policy 11

Was the reason for my “treatment” yesterday because safeguarding has been applied against me?  Or was it simply a matter of being short staffed in order to accommodate 2-1 supervision as would apply in prison. If there are no staff to supervise 2-1 then this could leave problems with future visits and result in a similar scenario when I was told to leave the ward in front of Elizabeth, having just arrived, when the visit was booked including myself yet disputed  and on account of staff shortages not permitted so it would seem.    Please explain the reasons why 2-1 supervision applied against me and surely Elizabeth would be entitled to see family members in privacy as stated within your own Policy.

In November 2006 the Department of Health launched a ‘Dignity in Care’ campaign with an aim to put dignity and respect at the heart of care services, which extended into Mental health Services in 2007; and is now applicable in all health and social care settings. This campaign, led by the National Dignity Council, identified a 10 point Dignity Challenge to organisations which remains fully applicable today as follows:

6. Respect people’s right to privacy

8. Engage with family members and carers as care partners

9.4.1 Privacy refers to freedom from intrusion and relates to all information and practice that is personal or sensitive in nature to an individual.

9.4.2 Dignity refers to how people feel, think and behave in relation to the worth or value of themselves and others. To treat someone with dignity is to treat them as being of worth, in a way that is respectful of them as a valued individual. In care situations, dignity may be promoted or diminished by the physical environment, the organisational culture, by the attitudes and behaviour of the care team and others; and by the way in which activities are carried out.

Dignity applies equally to those service users (patients) who have capacity and to those who lack capacity.

9.4.3 Maintaining a service user’s (patient’s) privacy, dignity and respect is central to the delivery of effective health and social care, working in partnership with service users (patients) and where appropriate their carers / families.

OR

Do the above points not apply when the Trust sees someone as having no capacity and invoke their own measures of Best Interest regardless of any consideration towards Lynsey or her visitors/family?

9.4.4 Since July 2016 all organisations that provide NHS care or adult social care are legally required to follow the Accessible Information Standard. Meeting the standard requires workers across the Trust to ensure people who have a disability, impairment or sensory loss are provided with information that they can easily read or understand with support, so they can communicate effectively with health and social care services.

9.4.5 The following are examples of how to maintain a service user’s (patient’s) privacy and dignity:

9.9.2 Divisional Managers, Quality Assurance Leads and Team Leaders for in-patient services Divisional Managers, Quality Assurance Leads and Team Leaders for in-patient services are responsible for:

Monitoring compliance with this policy

Ensuring timely reporting of any non-compliance of this policy through the DATIX incident reporting system.

Investigating any reported non-compliance with this policy

Implementing any actions required following audits, incidents or patient / carer / worker feedback relating to Privacy, dignity and mixed sex accommodation. This may include individual worker development where there is evidence of failure in respect of related practice.

Ensuring workers are aware of this policy, its content, where to access it; and their individual related responsibilities.

Ensuring timely reporting of any non-compliance of this policy through the DATIX incident reporting system.

Ensuring service user/s (patient/s) and their carers (where appropriate) receive an apology and an explanation of the reason for the breach.

Investigating any reported non-compliance with this policy, including taking corrective action to prevent any recurrence.

• Actively promoting the service user’s (patient’s) privacy and dignity at all times.

Staff must acknowledge that the carer is frequently the person who knows the service user best, often having regular contact over many years throughout many changes in mental health well-being, social networks and professional support.

The carer is often the person who has to offer support during out-of-hours crises, which can be stressful. By involving the carer in the development of the care plan and crisis plan where appropriate, or ensuring they have a copy of it, the carer can feel supported in assisting the service user to follow it.

An exchange of appropriate information with all relevant people, including carers

Service users, families and carers are actively involved in, and remain informed of discharge plans.

So, bearing in mind the above – just some of the points raised in  LPFT Trust Policy:

  • Trust Policy clearly states right to privacy and dignity and yesterday’s visit and that of the 18th was far from dignified and most certainly upsetting for Elizabeth.  
  • What exactly are the concerns on behalf of Dr Khokhar who is clearly the person behind the restrictions as stated in Trust HQ letter?
  • Is it not breach of privacy and dignity for Elizabeth to have 2 members of staff sitting in and listening to every word?  Is this acceptable in terms of privacy and dignity?  This does not seem to be in line with LPFT Policy.
  • Is safeguarding going on again behind my back and at what stage is this at?  
  • Is DoLs in place and LPFT gone behind our backs to court to apply this under 6b MCA?  Surely this cannot be the case when Elizabeth is already held under the MHA in which case the less restrictive practice should be made surely unless I have misread LPFT’s Policy in that respect.  Please confirm?
  • Finally within Equality Act and HRA 1998 it is clearly stated consideration as per below.
  • Elizabeth made a valid point at the only ward round I was present –  “why do members of staff push me up against a wall and inject me when I was doing nothing at the time?  
  • Public sector Equality Duty

The public sector Equality Duty came into force across Great Britain on 5 April 2011. It means that public bodies have to consider all individuals when carrying out their day-to-day work – in shaping policy, in delivering services and in relation to their own employees.

It also requires that public bodies have due regard to the need to:

  • eliminate discrimination
  • advance equality of opportunity
  • foster good relations between different people when carrying out their activities

he Act sets out your human rights in a series of ‘Articles’. Each Article deals with a different right. These are all taken from the ECHR and are commonly known as ‘the Convention Rights’:

Hope the above is given consideration.   After two years+ of incarceration and held on an ongoing indefinite section, when Elizabeth was released from Section 3 under Enfield she was living in the community peacefully, before we moved to Lincolnshire where I provided a small bungalow for her to live independently and bring her closer to rest of family.   She had no care or support in the previous community Under S117 apart from the depot which she was compliant with.  Why is she still held and treated like a restricted prisoner after all this length of time under LPFT?

Elizabeth should not be treated as though on DoLs when held under S3 MHA as this kind of treatment does not seem to be in line with your own Policy and would appear unlawful.  

As somebody who has been responsible for records and H&S for many years and who has also seen at first hand NHS staff working towards accreditations I do not see any regard for Human Rights or the Equality Act or LPFT Policy. 

I would like to know the reasons for this degrading, restrictive practise on the part of LPFT and how long will these restrictions of 2-1 supervision be in place for?

Yours sincerely

Susan Bevis

Mother and POA

TEAMS MEETING 01.11.2023

Unfortunately technical problems my end so I could only write my comments but at least my comments are recorded to all attending on the massive list above. No-one else from the family on that list and many strangers. I could see and hear what they were saying at least. Former Area of Enfield care coordinator Hannah Kajue well known to us as a family was present. They are responsible for S117 which was something I was not aware of prior to moving. Only depot injection provided- no care or support whatsoever.

My first question was about the restrictions which are of course against Elizabeth’s wishes and human rights.

Dr Waqqas Khokhar who is the Responsible Clinician of Castle Ward, PHU Lincolnshire County Hospital (LPFT) said that the restrictions would continue on me visiting my daughter – he had already mentioned about concerns regarding me being a “bad influence” on Elizabeth. However Elizabeth has full capacity as far as we are concerned and wants to come home. Because of three in house capacity assessments all flawed a whole team are deciding what they think is best interest on behalf of my daughter. Surely nothing should ever be done in-house and during a meeting before Sharon Harvey Director of Nursing and Quality LPFT it was verbally offered another completely independent capacity assessment but what about those done by the CoP at the same time? I have already heard the result of one of them that did not show Elizabeth to have no capacity. It is disgraceful that this LPFT are going along with the flawed capacity assessments to decide on their OWN intentions together with former area of Enfield involved. I believe they are also doing safeguarding once again behind my back.

The safeguarding should be solely done on LINCOLNSHIRE PARTNERSHIP TRUST RATED GOOD BY THE CQC. That is because we are all now aware of the serious accident at Ash Villa where Elizabeth banged her head badly on the floor of the seclusion room. Since then she has been suffering from what looks like fits. All her existing appointments were cancelled as unnecessary by LPFT who were happy to rely on scans going back to 2015 stating “NORMAL”.

Dr Khokhar mentioned about the EEG that everything was normal however none of this is of any consolation now Elizabeth has these frequent episodes since Ash Villa.

Dr Khokhar mentioned about another MRI scan which THEY LPFT would arrange. However I told him that a private scan had already been done and was with other experts. I also told him that these scans had been sent to the Consultant Neurologist directly based by another team under Lincolnshire. Hopefully another team concerned with physical health expertise under neurology will look into all the abnormalities seen on the MRI scan.

All I have ever wanted was for my daughter to be listened to and to have fair treatment. This has not been the case under LPFT where no laws are abided by and they are even in breach of their own code of conduct and Policy. Her physical health has been totally ignored reliant on a previous scan in 2015 and ignoring all the other scans that showed abnormality on the discharge note.

The Ombudsman too need to look into everything as a vulnerable person’s life and wellbeing is at stake here.

The CQC need to look into how many times my daughter is being frequently rapidly tranquilised and she is being forced to take Procyclidine. She is being deprived family visiting rights and leave after over two years. There has been abuse of power and process.

Elizabeth has requested another doctor because this particular doctor will not listen and you can barely get a word in edgeways. Dr Khokhar said this would not be facilitated as there was noone to act as such however now things have changed in terms of appointment which I will quote later.

Promises given by Directors of Nursing for LPFT (Sharon Harvey) and the ICB (Martin Fahey) was a CTR (Community Treatment Review) – originally denied but was promised that the CTR would be independently chaired like in Enfield where the independent chair said “the whole thing stinks”. Yes it most certainly does when a vulnerable person is not getting the correct care and denied human rights to see their family.

The other matter that was briefly discussed was the displacement of yet another NR appointed in my place but this NR has recovered now from illness and it is clearly a conflict of interest to appoint the LA who have failed in every way to do their job in safeguarding under the role of NR for so long. She was living in squalid conditions and on a faulty bed, so many health and safety issues plus under what would appear a DoLs yet nothing properly set up as I checked. Treated like a restricted prisoner, denied S17 leave and constantly injected to the point other patients complained. Appalling treatment of a vulnerable person and family.

I would like a FULL ENQUIRY by the CQC into the conduct of the MHA office under Ash Villa and to date what is going on behind my back under safeguarding once again. If they are using safeguarding to protect themselves because I have found out about the accident and injury to my daughter and so have other family members then this needs proper examination as to where concerns lie. As mother and POA I have a duty to speak up against such cover-ups when certain trusted professionals do not go by their own code of conduct and breach of Trust Policy and MHA and MCA re the 3 flawed capacity assessments.

 WWW.LPFT.NHS.UK 

THE RESPONSIBLE CLINICIAN

The functions of the RC are no longer restricted to medical practitioners.

It may be undertaken by practitioners from other professions, comprising nursing, psychology,

occupational therapy and social work, this by virtue of the fact that Directions specify.

The professions whose members may be approved and the type of skill and experience required have been set out in the Mental Health Act 1983 Approved Clinician Directions 2008 are:

a registered medical practitioner

· or a chartered psychologist

· or a first level nurse whose field of practice is mental health or learning

disabilities nursing

· or an occupational therapist

· or a registered social worker.

Approval under the Directions also requires an individual to demonstrate a comprehensive understanding of the role of the AC, the role of the RC, legal responsibilities and key functions.

The categories of competencies required include:

· role of the approved clinician

· assessment

· leadership and multi disciplinary team working

· care planning

· treatment

· equality and cultural diversity

· mental health legislation and policy

· communication

Appointment of the responsible clinician

Where a patient becomes subject to compulsion, the hospital managers have a

responsibility to ensure that the patient is allocated an appropriate RC. [see Chapter 11of the Code]

The hospital managers must ensure that the RC for each patient is clearly identified.

Other ACs who are involved in the delivery of aspects of the patient’s care should also be clearly identified

The day to day responsibility for appointing or changing the RC will normally be

delegated to staff or other officers of the hospital. Nevertheless, overall accountability will remain with the hospital managers.

The decisions on who to appoint as the RC will be based on the individual needs of the patient concerned.

It is also possible that a patient may request for an alternative RC to be appointed. Where this is appropriate or practical, such a request may be accommodated. This has been denied to Elizabeth as Dr Khokhar refuses to step down and Elizabeth has said this in front of him too.

Approved Clinicians and Responsible Clinicians Workbook

Version 1 11 They arrange and co-ordinate the assessment, taking into account all factors to determine if detention in hospital is the best option for a patient or if there is a less restrictive alternative.

Point to note

A registered medical practitioner is specifically prohibited from being approved to act as an AMHP. This means that there will be a mix of professional perspectives at the point in time when a decision is being made regarding a patient’s detention.

This does not prevent all those involved from being employed by the NHS, but the skills and training required of AMHPs are intended to ensure that they provide an

independent social perspective.

Part 2 – Compulsory Treatment

· Section 20(3) – (5) Review of detention for treatment

The duty of the RC to examine a patient who is compulsorily detained for treatment within the two months before the period of detention expires, to determine whether they continue to meet the criteria for detention. If the criteria are met and the RC considers that it is appropriate to renew the detention, the RC must make a report to the hospital managers , in order that the period of detention will be renewed.

Before making their report the RC has a duty to consult at least one other person

who has been professionally concerned with the patient’s medical treatment and

who belongs to a profession other than that of the RC and that person has

confirmed in writing that he or she agrees that the grounds are met.

Section 17(1) – (4) Leave of absence from hospital

The RC may grant leave to be absent from the hospital to a patient who is

compulsorily detained, subject to such conditions (if any) as are considered

necessary in the interests of the patient or for the protection of other persons. She is of no risk to others. 

Section 23 – Discharge of patients

The RC may make an order in writing discharging a patient absolutely from

detention, community treatment or guardianship.

Approved Clinicians and Responsible Clinicians Workbook

You will be aware that certain treatments require a second opinion (either as well as or in place of the patient’s consent) and that in some circumstances treatment can be

imposed without the patient’s consent.

In all these situations, the AC or other person in charge of the treatment now has the

functions previously held by the RMO. A typical example of this would be signing a

certificate to say that a patient is capable and willing to consent to the treatment.

An AC can visit and examine the patient for the purposes of a reference or application to the Tribunal under those provisions. It is no longer necessary for this duty to be performed by a registered medical practitioner.

In all cases the RC will be the AC with overall responsibility for the patient’s case. This is set out in section 34(1) of the 1983 Act.

ONGOING DETENTION

The RC who is assessing has a statutory duty to consult with one or more

professionals who have been involved with the patient’s medical treatment. Before

furnishing a renewal report, the RC must secure the written agreement of one such

professional.

The professional(s) consulted in this way must be members of a different professional grouping from that to which the RC belongs.

In addition, it would be good practice, wherever possible, for the RC to consult with

others who have been involved with the patient’s care. This could include members of the statutory, voluntary or independent services. However, there is no specific duty to do so.

Criteria on which Elizabeth’s continued detention would be judged are essentially the

same as those that had to be satisfied before she became subject to compulsory

measures in the first place.

These are that:

· She is suffering from a mental disorder of a nature or degree which makes it

appropriate for her to receive medical treatment in hospital, and  physical Now that is in doubt. Medical treatment might have to be of a different kind following the private MRI scans the MH department did not want her to have.

· It is necessary for her own health or safety or for the protection of other persons that she should receive such treatment and it cannot be provided unless she is detained,  and  not met The only risk is towards my daughter who has been denied MRI scan and Neurologist appointments already arranged by Enfield leaving me to pay for this myself privately.

· Appropriate medical treatment is available for her.   Not met – totally wrong what they are doing.

If Elizabeth is to continue to be detained for treatment under section 3, the RC must be

satisfied that all three of the above criteria are met.

All clinically recognised mental illnesses such as schizophrenia, bipolar disorder,

anxiety or depression would fall under this definition. So too would personality

disorders, eating disorders, and autistic spectrum disorders.  I do not see Cavernomas, epilepsy and tumours listed

The purpose of medical treatment is to “alleviate or prevent a worsening of the disorder or one or more of its symptoms” (section 145).  They are making her worse re her physical health than ever.  She has an injury.

In Elizabeth’s case, her diagnosis is in severe dispute. Pathological tests have been denied under LPFT for over 2 years now and it is only now she has been referred to a Neurologist under Lincolnshire United Partnership Trust – that deals with primary care and thank goodness for that.

treatment for her. The fact that this treatment is currently unavailable in Elizabeth’s local

psychiatric hospital does not necessarily mean that she cannot be detained there,

provided that an appropriate alternative treatment is available at this hospital. Then this is all wrong as there is no alternative treatment of a physical kind and how many more people in this position?

The second of the criteria for detention is that “it is necessary for their own health or

safety or for the protection of other persons that he or she should receive such

treatment”. Again if the diagnosis is completely different to mental illness and is of a physical nature a different kind of treatment clearly needs to be given. Why is that so unreasonable to ask for as a caring relative and why cant the NHS offer that especially when one of Elizabeth’s Doctor’s – Dr Shahpasandy did research on the Limbic System and found that a different kind of treatment worked to deal with the inflammation of the brain. Elizabeth also has a sebaceous cyst they say is benign but it is NOT BENIGN and they are just leaving it. Elizabeth should be entitled to have a family member with them if she is being taken for any surgery or appointments. When staff fail to get a patient under the MRI scanner I had no problems and therefore it is BEST INTEREST for the sake of physical health that carers are included and that is after all mentioned in LPFT Trust Policy.

If the RC is satisfied that the statutory grounds for continued detention are met, there is a statutory obligation for him/her to make a report to the hospital managers that this should happen, provided that he/she believes that this would be appropriate in all the circumstances of Elizabeth’s case. No idea who the Hospital Managers are but previously even when I was NR I was excluded from everything and Dr Shahpasandy said he was getting rid of me as NR. I had dared to ask for the research on my daughter that he was involved in when he found a patient did not have schizophrenia but inflammation of the brain and a different kind of treatment led to his recovery.

Thus, once the RC has come to a decision that continued detention is appropriate, a

report should be made on the appropriate statutory form which is used for this purpose.

This form is set out in Regulations. This will also require the written agreement of the

second professional whom the RC has been under a duty to consult. This written

agreement is provided on the statutory form.

How should the RC proceed if he/she comes to the conclusion that Elizabeth does

not meet the criteria for her detention to be continued?

If Elizabeth does not meet the criteria for continued detention, section 23(2)(a) of the Act

gives her RC the power to discharge her from detention.

This discharge served on the managers of the hospital in which Elizabeth has been detained.  Note that, as always in respect of the Act, discharge refers to discharge from detention and does not refer to discharge from hospital.

Section 20 of the Act provides the legislative framework for all these actions, and the basic process for making this decision remains much as it was before.

The RC should also consult wherever possible with others who have been involved with the patient’s care, including the statutory, voluntary or independent services. Yes there have been plenty involved including Access Charity and NAS, private endocrinologist and neurologist

The value of involving carers and family in the decision making process is well

recognised because it provides a particular perspective of the patient’s circumstances and experiences. NO WAY HAS THIS EVER BEEN DONE.

The RC is, in fact, the only person who has the authority to renew the detention of a patient under section 3 of the 1983 Act. YES AND TO DENY FAMILY VISITING IN BREACH OF ART 8 HRA AND IN BREACH OF TRUST POLICY.

Definition of mental disorder:

The legislation now defines mental disorder as ‘any disorder or disability of the

mind’. This new definition provides a single, simple definition rather than specifying

categories of disorder. This is disturbing because the former RC Dr Shahpasandy did research into the Limbic system and with a different kind of treatment his patient recovered. Pathological tests are denied to patients under MH so underlying physical health conditions are simply covered up and that patient is not getting the right treatment. Notably Dr Shahpasandy’s patient got better when taken off the same drug that Elizabeth was on and if someone has inflammation of the brain then they need anti-inflammatory drugs surely. The other reason I am being denied contact with my daughter is that Rapid Tranquilisations are given frequently and often without any reason. No correct procedures are being carried out before the injection is given. Absolutely appalling! I have requested under FOI lPFT RT log and Policy which I am still waiting for.

Grounds for detention:

If patients are to be detained for treatment under section 3 and related sections of

Part 3 there is an important addition to the criteria that ‘appropriate medical How inappropriate is it for a vulnerable patient to have frequent rapid tranquilisations and even be forced to take Procyclydine which is not part of the treatment. It is affecting Elizbeth’s eyesight and walking ability they are desperately trying to play down.

treatment’ is available for the patient. As a result, it will not be possible for patients to be compulsorily detained or their detention renewed unless medical treatment is available for them which is appropriate taking into account the nature and degree of their mental disorder and all the other circumstances of their case. The previously used ‘treatability test’ (as it was called) has now been abolished.

Disabilities of the brain would not be classified as mental disorders unless they give rise to a disability or disorder of the mind as well. The extent of injury they are treating as a mental disorder needs further examination by experts in the field of Neurology only.

Treatability test required the decision-makers to determine whether medical

treatment was ‘likely to alleviate or prevent deterioration in the patient’s condition’. This requirement no longer applies. If someone has epilepsy are they physically restrained and injected whilst having a fit. Why on earth is this being done under MH?

“’Medical treatment’ includes nursing, psychological intervention and specialist mentalhealth habilitation, rehabilitation and care”. [section 145 of the Act]

Purpose of treatment

The Act also stipulates that the purpose of medical treatment “is to alleviate, or prevent a worsening of, the disorder or one or more of its symptoms or manifestations”. A ‘disorder’ when in fact an injury that needs further investigation????? Why were we not informed of the accident??

Point to note

An important factor here is that this is about the purpose of the treatment, rather than

being about its likely outcome (as was the case in the previous ‘treatability’ test).

Point to note

The overall effect then is that these conditions cannot be met unless medical treatment:

· is available to the patient in question

· is appropriate IT CLEARLY IS NOT APPROPRIATE WHAT THEY ARE DOING AND AGAINST THE LAW.

· takes account of the nature and degree of the patient’s mental disorder, and

· takes account of all other circumstances of the case.

The Mental Health Act 1983 sets out the legal framework that underpins the detention and treatment of patients under compulsion. THE MENTAL HEALTH ACT IS NOT FIT FOR PURPOSE AND FAILING TO PROTECT THE VULNERABLE PATIENTS HELD ON NEVER ENDING SECTIONS DEPRIVED OF PATHOLOGICAL TESTS SUCH AS NEUROLOGY/MRI

The Mental Health Act 1983 Code of Practice provides guidance, including

good practice, as to how the Act should be applied. It also sets out principles which

should inform decisions under the Act.

The Code of Practice highlights, where relevant, the connections between the 1983 Act and other legislation, such as the Mental Capacity Act 2005.

The 1983 Act provides that practitioners must have regard to the Code in relation to

admitting persons to hospital or guardianship, community patients and in providing

medical treatment to patients.

Failure to do so could give rise to legal challenge. A court, in reviewing any departures from the Code, will scrutinise the reasons for the divergence to ensure there is sufficient and convincing justification in such circumstances. Nothing against medical treatment following full investigation by the Consultant Neurologist. The scans are with the Consultant Neurologist and several other experts as all I want is for my daughter to be treated fairly and correctly.

To put it simply, the Code of Practice is designed to guide practitioners in discharging their powers and duties under the 1983 Act. It provides practical guidance on all aspects of such matters.

Chapter 1 of the Code of Practice provides a set of nine guiding principles which should be considered whenever a decision has to be made about a course of action under the Act. The principles work together to form a balanced set of considerations which should inform all decision-making

Chapter 14 of the Code emphasises the importance of a holistic approach to providing care and treatment, and of involving users and carers in creating and reviewing the care plan. It also sets out that those who should be involved in preparing the care plan to meet the patient’s needs include: Holistic approach – this is laughable as her medication raised to enormous levels.

– the patient, if he or she wishes and/or a nominated

– the patient’s responsible clinician

– the patient’s care coordinator

– the patient’s carer (where they will be providing care that is identified in the care plan)

– members of the inpatient care team (if the patient is in hospital).

Chapter 4 of the Code makes it clear that the test requires a judgement about whether, in all the circumstances, medical treatment is available to the patient which is appropriate. This needs consideration of the nature and degree of the patient’s mental disorder and all other circumstances of the patient’s case. These other circumstance might, for example, include the patient’s physical health – how it might impact on the effectiveness of the available medical treatment for mental disorder and the impact that treatment might have in return:

· any physical difficulties that the patient has

· the patient’s culture and ethnicity

· the patient’s age

· the patient’s gender, gender-identity and sexual orientation

· the location of the available treatment

The treatment to be offered must be an appropriate response to the patient’s condition and situation.

But that needs to be properly determined by an expert in the field of Neurology.

RCs cannot grant leave of absence under section 17 for part 2 or unrestricted part 3

patients for longer than 7 consecutive days without first considering whether the patient should be discharged onto SCT. In effect, RCs will have to demonstrate that SCT has been considered and show why section 17 was more appropriate. No S17 granted and visits highly restricted – breach of Art 8 HRA

DEPRIVATION OF LIBERTY NOTES

Deprivation or restriction of a person’s liberty

The principal question that is likely to concern you in your role is whether a particular

set of circumstances amounts to actual deprivation of someone’s liberty or whether it is a restriction of liberty.

The European Court of Human Rights has said that the difference between restriction and deprivation of liberty is one of degree or intensity rather than of nature or substance.

To determine whether a person is being deprived of liberty, there must be an

assessment of the specific factors in each individual case. Every case must be

assessed on its own terms, and every possible instance has to be taken on a ‘case by case’ basis.

Based on existing case law, the following factors might well be considered by the courts to be relevant when considering whether or not deprivation of liberty is occurring:

· The person is not allowed to leave the facility Yes

  • The person has no, or very limited, choice about their life within the care home or Hospital Yes
  • The person is prevented from maintaining contact with the world outside the care Yes
  • home or hospital Yes

Standard authorisations Requesting authorisation

The managing authority must request authorisation from the supervisory body for a

person to be detained as a resident in a hospital or care home in circumstances which amount to deprivation of their liberty.

Qualifying requirements

Before a managing authority applies to the supervisory body for a standard

authorisation to detain a person as a resident in a hospital or care home in

circumstances which amount to deprivation of their liberty, it must be satisfied that the individual appears to meet the qualifying requirements.

There are six qualifying requirements against which the case will be assessed by the supervisory body:

1. age requirement

– the person must be aged 18 or over.

2. mental health requirement

– the person must be suffering from a mental disorder within the meaning of the

1983 Act.

3. mental capacity requirement 3 completely flawed assessments so they can take control – total abuse

– the person must lack capacity to decide whether or not they should be a

resident in the hospital or care home.

4. best interests requirement should be abolished and any assessments done independently.

– the deprivation of liberty authorised must be in the best interests of the person. in their own interests without consideration to anyone else in the family.

5. eligibility requirement

– a person is ineligible if they are already actually detained in hospital under the

1983 Act, or if they are on leave of absence from such detention or subject to

guardianship, SCT or conditional discharge and in connection with that are

subject to a measure which would be inconsistent with the authorisation if

granted.

6. no refusals requirement

– if there is a conflict, with another existing authority for decision-making for the

person, a standard authorisation for deprivation of liberty may not be given.

Urgent Authorisations

The managing authority can itself give an urgent authorisation for deprivation of liberty where it:

· is required to make a request to the supervisory body for a standard

authorisation, but believes that the need for a person to be deprived of liberty is

so urgent that it is appropriate to begin the deprivation before the request is

made, or

· has made a request for a standard authorisation but believes that the need for a

person to be deprived of liberty has now become so urgent that it is appropriate

to begin the deprivation before the request is dealt with by the supervisory body.

This means that an urgent authorisation can never be issued without a request for a

standard authorisation being made.

An urgent authorisation can only last for a maximum of 7 days unless in exceptional

circumstances it is extended to 14 days by the supervisory body.

CONCLUSION

“THE WHOLE THING STINKS!” SO MANY VULNERABLE PEOPLE BEING ABUSED BY A SYSTEM NOT FIT FOR PURPOSE AND IT IS NOT JUST LPFT OR BEHMHTNHS THIS IS NHS CARE AT ITS WORST THAT ALLOWS SYSTEMATIC ABUSE OF THE WEAK AND VULNERABLE AND SOMETHING NEEDS TO BE DONE ABOUT IT AND THE PEOPLE WHO NEED TO BE INVOLVED IN CHANGING THE MHA ARE NONE OTHER THAN THE PATIENTS AND CARERS THEMSELVES.

NHS   

LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST

                                                                                                     

Mental Health Act Administration Office

                                                                                                                Trust Headquarters

                                                                                                                St Georges

                                                                                                                Long Leys Road

                                                                                                                LINCOLN    LN1 1FS

                                                                                                                20 October 2023

In Confidence

Mrs Susan Bevis

Dear Mrs Bevis

We have been informed about an incident that took place in Reception at Trust Headquarters, St Georges Site on Wednesday 18th October 2023, in which you presented as hostile and aggressive, demanding immediate access to a senior manager

As an employer LPFT has a duty of care for the health,  safety and wellbeing of its staff.   We also have a legal responsibility to provide a safe and secure working environment for staff.  Staff mental health is as important as their physical health.  Any incident in which an employee is abused, threatened or assaulted in circumstances relating to their work is unacceptable and not tolerated.  This includes the serious or persistent use of verbal abuse, aggressive tone or language and swearing.

In accordance with NHS guidance, such behaviour is not acceptable and you are now formally warned that if there is a repeat of this or similar behaviour again in the future at any LPFT site the Police will be called to escort you from Trust premises.

Going forward please ensure that you only attend Castle Ward for your pre-booked appointment times once a week.  This will allow ward staff to facilitate the visits as directed by Elizabeth’s Responsible Clinician as part of the plan for her care and treatment;  please be assured that these decisions have not been made by staff in Trust Headquarters or other teams and will be reviewed regularly.  Unannounced visits to Castle Ward to see Elizabeth will not be able to be facilitated.

Yours sincerely

THE MENTAL HEALTH ACT AND LEGAL TEAM

CHAIR  KEVIN LOCKYER

CHIEF EXECUTIVE:  SARAH CONNERY    

WWW.LPFT.NHS.UK 

The above letter has no signature so naturally I would like to know who is conducting the case against me. I have therefore written as follows:

From: susan bevis
Sent: 25 October 2023 21:50
To: CONNERY, Sarah (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST); kevin.lockyer@nhs.net; lpft.lpftrecords@nhs.net; PALS(LPT) (LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST);
Subject: Letter dated 20.10.2023 My Visit to Trust Offices 18.10.2023 ATTENTION OF H. S. LPFT RECORDS

Dear Ms Connery and Mr Lockyer

It is with sad regret I am having to write directly to yourselves.

I am attaching letter that is completely unsigned and would be grateful if you would give me the name of the person conducting the ‘criminal case’ against me.

Under GDPR Rules I therefore request all CCTV footage and recordings of the alleged “threatening behaviour”.  This will be needed for court proceedings.

Previous allegations of a similar nature at Ash Villa would have also had CCTV footage, especially my ‘alleged assault’ (this was verbal and resulted in 3 x Police cars being called to Ash Villa) of a member of staff but Ms S./records at LPFT have failed to produce evidence.

If there is no such evidence I therefore request an apology for the misunderstanding and the removal of such threatening allegations mentioned in the most recent letter and going back to Ash Villa.

I therefore look forward to receiving all recordings, CCTV footage relating to my alleged conduct and the name of the person who is conducting the case against me as per the attached unsigned letter.

I would finally point out that I was accompanied by a friend who may also require CCTV footage under GDPR Rules.

Look forward to receiving this as soon as possible

Yours sincerely

SUSAN BEVIS   POA

When I visited Trust Headquarters on the 18 October I was refused a meeting with anyone there to discuss my concerns regarding leave being supervised and all S17 leave cancelled. I have had contradictory information regarding who actually imposed the complete ban because when myself and a friend came back in the evening to visit my daughter we were told a decision had been made at Executive level from Trust HQ. The earlier ban had been by Dr Khokhar who has overall control as RC.

There was no argument about not being able to see anyone. I simply asked politely for a piece of paper to write the following:

“Dr K is refusing 17 leave to my daughter and imposing supervised visits only. The visit I had last week was for 2 hours that went well.    

What is meant by denying leave on account of me being “bad influence?”

In what way am I a “bad influence?”

How does banning S17 leave tie in with the law? Is this not a violation of HRA 1998 Art 8 and Right to Family Contact?

Dr K mentioned that everything was being done in line with your Policy (words to that effect)?

Please supply your policy on deprivation of S17 leave with family.

Please supply CP11 rapid tranquilisation Policy and log

There was an accident at Ash Villa where Elizabeth banged her head on the floor of the seclusion room after rapid tranquilisation.

I would like to share the private MRI scan with the Consultant Neurologist Dr S. I need his email address please.

Matters will go before Ct of Protection if something is not done about the leave

In the meantime I look forward to your urgent attention.

To deprive leave with family is violation of Human Rights Art 8

Yours sincerely

Susan A Bevis Mother and POA

Because I was busy writing a letter I hardly spoke a word in that building.

I would like to share the footage of my behaviour so that everyone on X can comment and I am all for honesty and transparency and respect the views of people who might read my blog and I am sure there are others who have come across such bullying. At least give me the footage which has of course been denied previously because there simply is not any.

I am supposed to write only to one email address only but because of the serious allegations of a criminal nature I felt this had to go to the very top as the person who wrote this could not even be bothered to sign the letter or put a reference on it. This shows there is unaccountability and a bullying approach at the MH Administration Office Trust HQ not forgetting the Legal Team.

BUILDING UP A CRIMINAL PROFILE

Unsigned letter dated 20.10.2023 from Trust Headquarters unsigned by The Mental Health Act and Legal Team received on 25.10.23 threatening to call Police and a warning alleging “hostile, aggressive behaviour demanding immediate access to a senior manager all witnessed by an accompanying friend. GDPR request submitted 26.10.2023.

Letter dated 6th June 2023 from Hayley Sandford Senior Records Officer where I requested CCTV footage from Ash Villa. I will feature below selected paragraphs as per below:

“I write in response to your correspondence relating to CCTV footage at Ash Villa. “Your visit to Ash Villa on 3 April 2022 had been authorised by the Consultant who emailed you. You are right you were entitled to attend site that day”. “Unfortunately this had not been communicated to ward staff causing them to challenge your visit. We will take steps to ensure this does not happen again.” “The ward was in Covid outbreak and you could not be entered onto the ward. It was agreed a discussion through the window was a reasonable compromise made on the basis none of the patients were returning a positive result. Staff continued to make their rounds completing observation sheets on other patients whilst monitoring to ensure no items which could pose a risk to patients were passed through the window. I understand Police were called to site when you became verbally hostile towards staff and would not leave site when requested. No allegation of assault was made to police. Police make their own judgement as to how may police attend reported concerns. Accounts of events on 3 April differ greatly provided by our employees. I was asked to leave but wanted to hand things I had bought and she was entitled to ground leave yet this was refused. I have driven 1.5 hours and had another 1.5 hours to drive back home and all I wanted was to ensure she had got the things I brought which would have taken 5 minutes, hence them taking her to the front window so I could witness this. The RC said they were wrong so Police time wasted.

Data Subject Access Requests – I note you have mentioned GDPR Right of Access which entitles an individual or an otherwise authorised third party to a copy of their personal data alongside information relating to how their personal data is processed. This right applies to the individual not to personal data of any third parties. I had asked for footage of me standing outside Ash Villa underneath the CCTV camera. There was no-one else around just me alone so that is no excuse and having operated the cameras there would have been good footage including the voice of a member of staff shouting “you have just assaulted a member of staff Ms Bevis”. Elizabeth was witness to this and was very distressed. I also had another independent witness.

CCTV footage – I have arranged for all CCTV footage (inclusive of the camera you took a photograph of) from Ash Villa on 3 April to be downloaded for reviewed. The days’ footage has been reviewed and shows no meaningful footage of any incident.

Telephone logs – our telephone calls are not recorded for me to provide you with a copy but we could never guarantee we would provided you with a copy if they were, due to third party personal data which would be captured within it. This extends to providing you with call logs from Ash Villa.

The Trust cannot provide you with the information you have requested due to third party rights or lack of footage. This has been reviewed to be as our Senior Records Officer Alison Bartle as Ward Manager of Ash Villa and our Team Coordinator within Information Governance and Records Management.

COMPLAINT REF FOR/23/2503 14.04.2023

“Barnet, Enfield & Haringey MH NHS Trust would determine what health and social care provision is appropriate. We are aware Enfield have been involving you within the Care Act and 117 Assessment.

This is currently going on behind my back right now according to Elizabeth who says she was feeling to ill to discuss with her advocate from Voiceability yesterday. There was never any “care” under Enfield or provisions that were needed for the independent flat which is why I moved hoping to at least provide the right environment and an independent home that had the right

There was a period in 2022 when Elizabeth was exhibiting significant distress following excessive phone calls from yourself and her phone was stored in staff office for periods during the day. Staff maintained logs of her phone use which included details of when she declined to use it.

We paid a contract on the phone. They took the phone away and put it in the office and noone in the family could get through. Was given only 1 point of contact and told not to phone the office as phone would be put down. That point of contact was the Carer’s Champion who was not always around. Around this time Elizabeth had been constantly calling the Police in desperation and I have all the details of the many calls she made for help during that time. That is the real reason they took the phone away.

As for the MRI – none of the consultants wanted her to have it “no clinical indication for further imaging. They were reliant on a scan marked “normal” in 2015 however I have had the scans done privately following the discharge note stating “abnormal findings on a scan. It is only now after 2 years finally they are taking seriously the fact that Elizabeth has as Neurological condition they are treating as a mental illness with antipsychotics. She has only just been referred to a Consultant Neurologist because of the evidence produced. “It would be difficult to differentiate autism from someone with chronic schizophrenia” – so in that case what is the real diagnosis?? I have proven there is something else wrong and I am just a mother to prove this whilst a string of doctors have stood in the way and could not be bothered to look for reasons why the discharge note said “abnormal findings on a scan pointing to CNS”. Again they got it wrong when they say borderline IQ – No! Huntercombe got it right there “high functioning aspergers”

Letter from Alison Bartle Ward Manager via lpft.PALS@nhs.net sent special delivery on 10.03.22 AIP/AB/LJCA “I am referring specifically to your rudeness o the phones and rudeness and intimidation whilst on site at Ash Villa” “I must ask you to stop any rudeness or intimidating behaviour in the future.” “staff have been instructed to terminate calls when caller is rude or abusive and to call the Police if they consider breech of peace or other such behaviours in the grounds of Ash Villa. Planned outings will have to be pre-approved and agreed by the RC. Yes they always were but because of lack of communication was told to go away by staff on arrival despite ground leave granted outside so even if there was short staffing on the ward just to come out for 5 minutes to collect Birthday presents or to collect money and possessions surely should not have been such a big deal. Visits to ward can be planned and limited to one hour due to Covid visiting restrictions and should be booked in advance. If your behaviour is rude or intimidating you will be asked to leave. I do hope you acknowledge it and manage your behaviours better in the future. PATIENT EXPERIENCE TEAM LINCOLNSHIRE PARTNERSHIP NHS FOUNDATION TRUST UNIT 9 THE POINT LIONS WAY SLEAFORD LINCS NG34 8GG

LETTER FROM DAVID FROM INSPECTION TEAM OF CQC WHOM HE REFERS TO AS A “BUSINESS”

From: HSCA_Compliance <hsca_compliance@cqc.org.uk>
Sent: Thursday, July 28, 2022 3:40:29 PM
To: susanb255@outlook.com <susanb255@outlook.com>
Subject: FAO Susan Bevis – Correspondence – Ash Villa – ENQ1-13580144066 – DB

Dear Mrs Bevis,

Please find attached your Correspondence regarding Ash Villa. If you have any queries please do not hesitate to contact us.

Mrs Susan Bevis Delivered by email Ref: ENQ1-13580144066 28 July 2022  

Dear Mrs Bevis I am writing to inform you the frequency, duration and nature of your communications has caused disruption to our business and distress for CQC team colleagues. Notably David refers to the CQC as a “business” and so this is how the CQC view requests for them to intervene in concerns and how they dismiss them.  Surely that is what they are assigned to do and that is investigate concerns.

Between January 2022 and June 2022you raised a significant number of enquiries with the Care Quality Commission regarding the care of your daughter Miss EB staying at Ash Villa a rehabilitation ward within Lincolnshire Partnership NHS Foundation Trust (LPFT). The Call handlers who you have contacted have passed on your concerns to the Inspector for review; in turn the Inspector has passed your concerns to the trust. In many cases the trust were already aware as you have copied them and were already dealing with your concerns. The information you have shared is repetitive and similar information to that you sent to us previously. Our Inspector has liaised extensively with the trust and is satisfied the service have taken steps to address your concerns.    The calls did not come from just myself but from Elizabeth herself and others. We understand Miss EB consistently says that she does not want staff to share information about her care and treatment with yourself or any concerned parties. Miss EB does share information herself with you. The trust have set up an identified single point of access at Ash Villa; and a dedicated email box with the trust. The CQC cannot investigate your individual concerns further. We are sorry that we were unable to assist you further on this matter, and now consider it closed.  You can however contact The Parliamentary and Health Service Ombudsman who will be able to offer advice and assistance to you regarding your complaint. Their contact details for ease are on the phone via 0345 015 4033, or www.ombudsman.org.uk/making-complaint. In view of the previous communications between yourself and CQC, if you do need to contact CQC in the future, we ask that you make any communications in writing initially by letter. If you do telephone the CQC there will be a voicemail service where you will be able to leave your concerns via voicemail. Based on the new information shared we will decide whether to respond directly to you, or instead may approach the relevant healthcare provider. This decision will be as appropriate to follow up on the information shared.  I will not be bothering.  The only time the CQC respond effectively to facilities they rate as good is when abuse is revealed by TV programmes like Panorama.  Noone has signed the letter that David has sent notably. Yours sincerely,  Inspection Team (completely unsigned)

There is one other letter I think from Pals listing four occasions where my “behaviour” has been reported as “hostile, intimidating, aggressive – you name it. There would have been ample CCTV coverage and evidence from where I was standing but absolutely nothing has been supplied as evidence therefore I have requested the defamatory comments to be taken out of file papers and records and it is essential for anyone else who is targeted to ask for evidence under GDPR Rules. If no evidence can be provided to back up claims then they should request removal of such comments from records. In actual fact it is the Trust who is causing intimidation and threats and have used Police on two occasions wasting their time in order to build up a profile that could amount to criminal prosecution on my part which is why I am recording everything in anticipation for any future legal actions on their part. It is truly horrible to have to go through this and there has been complete justification of my concerns all along when it comes to Elizabeth’s care and treatment. Several letters have been completely unsigned whilst certain Trust personnel hide and this is very wrong indeed.

Statutory requests for information made under access to information legislation such as the GDPR and the Freedom of Information Act 2000 should be sent to: information.access@cqc.org.uk

Kind Regards

David

Inspection Support Team Co-Ordinator

For information about CQC, including contact details, information about how we use and protect personal data, and how to request information from us, go to https://www.cqc.org.uk/contact-us

Letter attachment below dated 28 July 2022

Care Quality CommissionCitygateGallowgateNewcastle upon TyneNE1 4PA Telephone: 03000 616161 http://www.cqc.org.uk

 

“Our inspector has liaised extensively with the trust and is satisfied the service have taken steps to address your concerns. We understand EB does not wish to share information with you. CQC cannot investigate individual concerns further. Consider it closed. You can contact the PHSO. IN VIEW OF PREVIOUS CORRESPONDENCE IF YOU DO NEED TO CONTACT CQC IN FUTURE MAKE COMMUNICATIONS IN WRITING INITISALLY. IF YOU DO TELEPLHOLNE THERE WILL BE A VOICEMAIL SERVICE AND WE WILL DECIDE WHETHER TO RESPOND DIRECTLY.

I

After being cut out of two ward rounds via Microsoft Teams recently I asked if I could come in person to ward round today on Castle Ward, Peter Hodgkinson Centre, Lincoln County Hospital. I was hoping to tie this in with a visit to see Elizabeth afterwards who was being allowed out for two hours off hospital grounds unescorted for the first time in a long while since Ash Villa, Sleaford. Most of these doctors below have denied any S17 leave. We were both looking forward to going back to the Carlton Shopping Centre in Lincoln like we did last week as the visit was a great success but everything has suddenly changed. I am no longer able to take her out. I am no longer able to see my daughter as it stands and all this under a Trust rated “Good” by the CQC.

Dr Waqqas KHOKHAR is Responsible Clinician to Elizabeth. There were two others that came into the visitor’s room (Nurse PT) , Carer’s Champion was present – the other doctor was Dr Lake. Four people and just me. Dr Khokhar told Elizabeth she would have to be seen separately for ward round and I asked why she could not be included in this meeting because after all Elizabeth feels very uncomfortable attending meetings where so many people are included and some on a screen. I am not sure she is being represented by any advocate at such meetings and wishes not to attend. The meeting had started without Elizabeth present. I was told behind her back by Dr Khokhar that I could no longer take Elizabeth out. I was told the reason for this was because he felt I was a “bad influence” on Elizabeth but would not emphasise further. Elizabeth came to join us and Dr Khokhar was pressurising her to answer his questions. Elizabeth would say things like “I’m not answering you“. She clearly felt uncomfortable and he persistently asked “why” and she clearly did not like being put on the spot and it was awful to watch. Elizabeth claims to be autistic but they just will not listen however on the care plan it now says autism instead of personality disorder.

I proceeded to ask a few questions. I was cut short of everything I wanted to ask. When I asked about the recent Tribunal that no-one from family was invited to I was told what I already knew. There does not seem to be any plan in place to ever release Elizabeth and to deprive S17 seems to be LPFT’s protocol. I know I am not alone in this kind of treatment throughout the UK this is going on to others. A team of strangers who have stated I am not suitable as a mother in not so many words but behind your back they go to town and write such nasty things about you and present this to courts in evidence against you. Anyway I have no idea whether Dr Khokhar is demanding this ban to be permanent and once again we are back to square 1 like at Ash Villa. All we wanted was to go back to the Carlton Centre and have a coffee. I could see Elizabeth was very upset. Our lives have been turned upside down since coming to Lincolnshire. We did not expect treatment like this and I purposely did not want to challenge anything to begin with and get on the wrong side of people in a new area where we wanted to make a fresh start. However now I feel I have lost everything and my life has been ruined by people who are supposed to be in a caring profession who have to obey orders from Trust Office Headquarters. I told Elizabeth “do not react please” because I am forced now to look into the legal route as this seems the only way because surely this is in breach of HR law.

I went to the Trust Office accompanied by a friend. Noone wanted to see me at their offices below:

Trust Headquarters. St George’s Hospital, Long Leys Road, Lincoln, Lincolnshire, LN1 1FS. 01522 309 202 ·

I just wrote a letter and asked for specific reasons as to why I could no longer visit/take my daughter out and spend two hours of quality time with her in the fresh air.

I feel I am being punished for speaking out for revealing the truth because I know something that happened at Ash Villa. There was an accident no-one was informed about in the seclusion room and I know all about it. I feel that is why I am being bullied because I had asked for Neurologist appointments to resume and for other pathological tests to be carried out.

Elizabeth is being frequently rapidly injected and one of the questions Dr Khokhar threw in her face was how she wanted to be treated when she had an ‘episode’. We, her family know the answer to that and that is just to be left alone. Her Advance Declaration explains. Not that this would make any different to LPFT. The Advance Declaration clearly sets out how she wants to be treated and says “no invasive psychiatric treatment” but what they are doing is pushing her up against a wall and injecting her and at times there has been no reason for doing this and another nurse from Ash Villa confirmed this goes on all the time because it is “for the convenience of nursing staff”.

Since Elizabeth was rushed to A&E she has just been referred to a “Neurologist” but no-one would give his name. So a “Neurologist” has been onto Castle Ward called a Dr Solinas. Today everyone present at the meeting would not give the name of the Neurologist or contact details. I asked where he is based so I was told Lincolnshire United Hospital Trust – the main hospital. I was keen for Elizabeth to see a Consultant Neurologist because it has come to light that there was a really bad accident at Ash Villa in the Seclusion Room that no-one has told us anything about and we knew she was attacked and hit around the head in a hospital in the previous area.

Elizabeth advised clearly and her story does not change. She told us that she felt dizzy because no doubt she had been injected and that she fell hitting her head on the hard floor in the seclusion room. Well this might well explain all the “episodes”. This is probably why Ash Villa did not want her to have a Neurologist appointment or have an MRI scan done.

Here are the Doctors who have refused proper pathological tests and leave apart from 1 regarding leave only and no wonder why because the images on the scan reveal lesions, cavernoma and inflammation and they are treating with the following and ignoring her physical health:

500mg Clopixol fortnightly plus Procyclydine which is being injected regularly 5mg breakfast, 10mg lunch and 10mg tea. I would not be at all surprised if covert medication is given. What I was worried about was all the frequent rapid tranquilisations and so I asked for their CP11 protocol and rapid tranquilisation log. Of course no-one wants me to see this. I asked again for this at the Trust Offices but being a caring parent I feel that it is not the right approach and Elizabeth said she wants to be left alone.

Dr Ismail from Charlesworth Ward

Dr Shahpasandy who refused his own research into Limbic System

Dr Ismail yet again

Dr Kumar

Dr Islam

Dr Suleman

Dr Greenall

Dr Memons (actually I liked Dr Memons from Cygnet because he did not talk down to me in a patronising manner).

Dr Mohammed

Dr Khokhar

I felt today’s ward round was a complete disaster and the result was like going back to square 1. I was made to feel like absolutely nothing and how do patients feel when communicated like I experienced today.

Worse was to come I had arranged to visit Elizabeth in the evening as because of the ward round and not being allowed out I hardly had any time with her. Also it was totally degrading to be told first of all my visits must be supervised once again and then refused visits. This is a violation of human rights and bullying. Then on return to the ward two nurses came to the door. They said they had been instructed by Trust office not to allow me on the ward and so I have been banned from visiting my daughter on Castle Ward Peter Hodgkinson Centre, Lincoln County Hospital.

I also have only this email address where I can write: lpft.careconcerns@nhs.net. I was told not to expect any replies. I was accompanied by a friend – there were a group of three visiting someone else on the ward who were allowed on. Elizabeth came to the door. All I could see was her face smiling through the glass, witnessed by my friend. Leading up to the visit she had been texting me. looking forward to seeing me and meeting my friend for the first time. I brought her dinner I would have provided if she was allowed out because all they get is a sandwich in the evening but nurses would not accept this on the ward. I was then told to stay away from the glass door where Elizabeth was peering through and told me that I was upsetting her and we were told to leave the premises.

There are Carer’s Representatives working for all different wards who are supposed to give you the impression that you are being looked after in your caring role. It is very clear who they are working for in my opinion. I spent half an hour waiting to be let into the last ward round. I clearly was not welcome and it was totally deliberate I was cut out and no phone call or any kind of apology.

The feeling of losing your relative, being denied contact is dreadful and the greatest punishment. I cant describe that feeling and to think this is how the NHS treat people and I feel this is done in defense when something has gone wrong such as the accident and denial of proper pathological tests for physical health for so very long as opposed to the huge dosage of psychiatric drugs with Procyclydine forced upon her by injections. Not one has taken a bit of notice of the P450 liver enzyme tests and Elizabeth mentioned this today.

All I wanted was to share images with the Neurologist Dr Solinas but was refused contact details.

I know I am not alone in this situation as I am in touch with several others who are deprived of contact with their relatives.

My only hope is that new legislation will be passed soon as to deprive contact with family and treat a vulnerable person in the most restrictive manner is a violation of human rights.

https://www.gov.uk/government/news/government-to-legally-make-visiting-a-part-of-care

I have requested CP11 Policy Protocol on the above and Rapid Tranquilisation Log going back to Ash Villa to date. I am very concerned at the level of over-drugging of RT on top of prescribed drugs.

Elizabeth is a poor/non metaboliser as proven by P450 liver enzyme tests, not that that means anything to Lincolnshire Partnership Trust. This means she should be on a low dosage but doctors will not budge on the high dosage currently prescribed. I am concerned at frequent ‘episodes’ lasting hours on end and resulting in A&E admission on several occasions. It is like someone have an epileptic fit but the difference is staff rapidly inject her on each occasion and I am concerned that CP11 Policy Protocol is not always implemented. There are certain procedures that should be carried out before RT is given for instance. Unlike some other Trusts LPFT’s Rapid Tranquilisation Policy is not so readily available. I have had to do a FOI request as I am being met with a wall of silence.

On 2nd October Elizabeth was in a bad way on Castle Ward and suffered an episode lasting from 2.00 pm until 7.30pm and taken to Lincoln County Hospital’s A&E. I am concerned that it is possible that RT logs are not being properly observed. Lorazepam has a 12 hr half life – if someone else takes over a different shift and injects again then this could be very harmful and maybe that is occurring resulting in these ‘episodes’ – is the serum count being calculated? I have proven from private scans there is something else wrong of a physical nature but under Lincolnshire Partnership Trust it has taken them two years to finally agree for Elizabeth to see a Neurologist. According to Elizabeth, Dr Selina came yesterday on the ward and claimed to be a Neurologist. I particularly wanted to speak to Dr Selina because I have had private scans done when they were refused as “unnecessary”. I hope this Dr is a Consultant Neurologist who is going to look at Elizabeth’s physical health.

I was completely cut out of ward round this week. No-one bothered to let me know. My name is on a list amongst about thirty others, most of whom are complete strangers. So many people invited yet no-one from the family. It is no wonder that Elizabeth does not like to attend and tells them that she does not like so many at her ward round. She then informed me that they descended upon her during her art group but it does not take a minute to ring me and I wasted time on the computer, phoning the ward waiting to be let into the Teams meeting. Next week I shall come in person to the ward for this meeting as this is not the first time there have been such problems.

On 2nd October (same day Elizabeth was rushed to A&E) there was an important meeting with Directors of Nursing from Trust and ICB. The meeting was as a result of a culmination of complaints unanswered satisfactorily by Pals going back months on end. The outcome was promising. The CTR i had requested previously refused has now been agreed. This will be independently chaired and also a fresh completely independent capacity assessment was offered. The most important thing of all was not resolved and that is the enormous dosage of “medication”, which is staying the same. They have also introduced Procyclidine injected as well. This is causing headaches to Elizabeth and she is complaining about her eyes yet no-one takes a blind bit of notice. Most concerning is the frequent rapid tranquilisations administered at times when she is not even in distress at random for no reason other than for the convenience of nursing staff. I do not think correct procedures have been carried out from/during the time at Ash Villa to date and not forgetting Cygnet either.

Elizabeth has complained that rapid tranquilisations are given sometimes for no reason and informed me that a nurse from Ash Villa told her this is a normal occurrence done “for the convenience of staff”.

When I have tried to discuss my concerns on medication at Ward round I was told it was not the time to discuss by Dr Khokhar and it would seem there someone above him – a Dr Greenall and possibly someone above him – could that be a Dr Kumar. I need to check. Some of these doctors have different trust email addresses so I have noted. I was told I would have to discuss medication on a 1-1 basis rather than openly at ward round. I cannot understand this when there seems to be many student doctors in attendance that could benefit from hearing my concerns. Why hide things which should be discussed openly and honestly like I am doing right now.

Various members of staff have played down the side effects that Elizabeth complains about. I am not even relieved or comforted by the fact a Neurologist came yesterday after all this time. My questions are is this a Consultant Neurologist or a Neuro Psychiatrist? Noone is giving any information apart from Elizabeth.

Elizabeth has told me that a nursing member of staff spoke of them trying to make her better but she quite rightly says she will never get better in there and I would agree because it is noisy, possessions go missing without explanation. Clothes missing from Ward 12 and the blanket I bought missing but if only there was good communication. The carer’s champion found out that the blanket was taken away because staff thought it was not fireproof. In that case I will look for a blanket that is in fact fireproof as how can anyone feel well if they are suffering from cold.

The Tribunal apparently took place on 5 October without any family members present. I was not surprised to hear the result from Elizabeth who did not want to attend her own tribunal and now the section is renewable annually. When I first moved I did not wish to challenge anything but now I cannot even if I wanted to because of sheer dishonesty by Council and Trust which enables the trapping of a vulnerable person for life. No mention on the care plan of any initiative to return to community care/living. Imagine being on a never ending prison sentence and desperately wanting to come home and be with family in peaceful quiet environment unlike the acute ward where Elizabeth has been for over 2 years now. Totally unsuitable environment despite the fact there are activities going on. Nothing is provided in the community and that is why my daughter is trapped for life. It is most certainly not because she is a risk to self or others because despite these episodes it is no worse than an epileptic fit so the reason they do not want her to come home is because of me. Because these people judge you as though they know you when they clearly do not. They write horrible things behind your back and get away with it. There is no accountability. We had hoped for a fresh start but Enfield are still responsible for S117 aftercare which they never provided previously. The discharge note from Enfield stated only physical health concerns but now I have proven there are indeed abnormal findings on the scan and I took part in a fabulous zoom conference with the wonderful Cavernoma Alliance the other day. So many people are being misdiagnosed with a mental illness when they have Cavernomas, lesions and inflammation of the brain. Because I have had private tests done the NHS can no longer ignore my claims and state that seeing a Neurologist is unnecessary but only a Consultant Neurologist should be involved in assessing Elizabeth regarding her underlying physical health conditions – there is NO WAY Elizabeth has Schizophrenia and I have proven it. I wish to share the findings of the scan with a Consultant Neurologist. I am going to take part in regular zoom meetings with the Cavernoma Alliance as it was very comforting to know we are not alone and to hear the experiences of so many others.

Anyway, I thought I would share with you the points of discussion and remedies of the recent meeting with Directors of Nursing for Trust and ICB as there are details of important tests that others may well like to request from their Trusts.

POINTS OF DISCUSSION – DIRECTOR OF NURSING & QUALITY LPFT AND DIRECTOR OF NURSING LICB

LEAVEONLY TWO HOURS ON WARD NOT ALLOWED EVEN IN THE GROUNDS OUTSIDE THE HOSPITAL.  VERY RESTRICTING.  WAS PREVIOUSLY ALLOCATED 6 HOURS OUTSIDE OF HOSPITAL   I have now got 2 hours outside the ward and took Elizabeth to the wonderful Carlton Centre nearby to the hospital. She had a great time and it all went well.
MEDICATION  VERY CONCERNING –  HIGH LEVEL REMAINS UNCHANGED.    ENFIELD WERE DOING EXTENSIVE TESTS PATHOLOGICALLY AND THEY WERE TAKING PHYSICAL HEALTH VERY SERIOUSLY BY MAKING REFERRALS TO NEUROLOGIST ETC.   ELIZABETH WAS REFUSED AN MRI SCAN PROMPTING ME TO HAVE TO GET THIS DONE PRIVATELY.  THE SCAN HAS BEEN EXAMINED BY EXPERTS AND THIS NEEDS DISCUSSING WITH THE NEUROLOGIST.   ENDOCRINOLOGIST PRIVATE TESTS REVEALED INSULIN RESISTANCE AND PCOS WHY HAS THERE NOT BEEN ANY REFERRALS? I am waiting to hear the answer to my question still and have requested referrals to Endocrinologist and Immunologist.   My concerns on medication have not been addressed and the “medication” remains at a high dosage and on top frequent RT following the episode’ on 2 October. A Neurologist (I hope it was a Consultant Neurologist) – Dr Selina came yesterday to see Elizabeth on Castle Ward so she told me.
TEMPORAL LOBES  ELIZABETH NEEDS CLOSE EXAMINATION. HOW IS THIS BEING FACILITATED? IT IS ANTI-PSYCHOTICS WHICH CAUSE INFLAMMATION AND ELIZABETH THEREFORE NEEDS ANTI-INFLAMMATORY DRUGS AS A CONSEQUENCE.  ELIZABETH WAS DENIED DR SHAHPASANDY’S LIMBIC TESTS IN CONNECTION WITH HIS RESEARCH AS BEING UNNECESSARY.   INFLAMMATION CAUSES MOOD CHANGES AND ALTERATION ON SUBGENUAL CINGULATE ACTIVITY AND MESOLIMBIC CONNECTIVITY.  
BLOOD OXYGEN LEVELS  ELIZABETH NEEDS BLOOD OXYGEN LEVELS TESTED REGULARLY.  DANGEROUS BLOOD OXYGEN LEVELS RESULT IN BRAIN DAMAGE AND ORGAN DAMAGE.
 
  QT PROLONGATIONMONITORING FOR QT PROLONGATION NEEDS TO BE DONE REGULARLY AND THIS APPEARS NOT TO BE DONE FREQUENTLY  
RAPID TRANQUILIATIONIS A REGULATED ACTIVITY UNDER THE HEALTH AND SOCIAL CARE ACT 2008 REGULATED ACTIVITIES 2014.  THE TRUST MUST INFORM RELATIVES UNDER DUTY OF CANDOUR OF THIS AND ANY ADVERSE REACTION/OCCURRENCES AS A MATTER OF COURSE.      
TESTS- C-REACTIVE PROTEIN  TESTS TO SEE IF C-REACTIVE PROTEIN (CRP) AND INTERLEUKIN – 6  (IL-6)  Are present    
SEBACEOUS CYSTTHIS IS WELL ASSOCIATED WITH LONG TERM USE OF NEUROLPTIC MEDICATIONS.  IT IS A POTENTIAL ENDOCRINE DISORDER LINKED TO INABILITY TO METABOLISE DRUGS  (Both endocrine tests and P450 liver enzyme tests) have proven this.  THE CYST IS NOT BENIGN.   THE CYST NEEDS REMOVING AND ELIZABETH NEEDS TO BE GIVEN ADVICE ON THIS UNDER THE INFORMED CONSENT ACT AND HER MOTHER SHOULD BE INCLUDED IN ASSISTING IE TAKING HER TO A NECESSARY APPOINTMENT IF ELIZABETH REFUSES VIA STAFF AS HER MOTHER HAS ALREADY SUCCEEDED WHERE STAFF FAILED TO TAKE HER TO THE PRIVATE MRI SCAN.   
GLYMPHATIC SYSTEM TESTS   SLEEP DISRUPTIONIt is suspected that Elizabeth has a dysfunctional glymphatic system after years of neuroleptic medication.  Has Elizabeth been tested for this?  If these tests have not been done then they need doing urgently.       LPFT are giving benzodiazepine tranquillisers to sedate rather than facilitate NREM and REM sleep.  That makes the neuro-degeneration worse.     Abstract:    The glymphatic system is a unique pathway that utilises end-feet Aquaporin 4 (AQP4) channels within perivascular astrocytes, which is believed to cause cerebrospinal fluid (CSF) inflow into perivascular space (PVS), providing nutrients and waste disposal of the brain parenchyma.   If nutrients are not provided and waste proteins build up brain atrophy will occur causing cognitive and memory dysfunction.    It is now recognised that the bulk flow of CSF within the PVS removes waste products, soluble proteins, and products of metabolic activity, such as amyloid-β (Aβ). In the experimental model, the glymphatic system is selectively active during slow-wave sleep, and its activity is affected by both sleep dysfunction and deprivation.    Sleep dysfunction can and is caused by rapid tranquillisation.  The glymphatic system will not function while the patient is tranquillised causing waste proteins to build up between the nerve axons and in the intracellular structure of the cell.  This causes brain atrophy (brain cell death).   Dysfunction of the glymphatic system has been established as a potential key driver of neurodegeneration. This hypothesis is indirectly supported by the close relationship between neurodegenerative diseases and sleep alterations, frequently occurring years before the clinical diagnosis.    Neurodegeneration causes the patient to slowly lose cognitive function leading to an increased lack of capacity.    Therefore, a detailed characterisation of the function of the glymphatic system in human physiology and disease would shed light on its early stage pathophysiology.    The study of the glymphatic system is also critical to identifying means for its pharmacological modulation, which may have the potential for disease modification. This review will critically outline the primary evidence from literature about the dysfunction of the glymphatic system in neurodegeneration and discuss the rationale and current knowledge about pharmacological modulation of the glymphatic system in the animal model and its potential clinical applications in human clinical trials.  
 Sleep disruption can cause the build up of both amyloid plaques and tau proteins in the brain and breach the blood brain barrier.  Both of these effects are capable of causing significant brain atrophy and potentially severe psychiatric disturbance.  Studies carried out in the last decade show that disturbances in circadian sleep can cause psychosis indistinguishable from schizophrenia.     Amyloid plaques block neuronal synapses preventing signalling and tau tangles inside the nerve axon itself will destroy the microtubules that direct neurotransmitters such as dopamine and serotonin.  The damaged microtubules form tangles in the nerve itself (intraneuronal) and both plaques and tangles will destroy the cell leading to more damaged protein fragments in the brain and to brain atrophy.     These protein fragments are usually removed via the blood brain barrier by cerebrospinal fluid during quiescent sleep (NREM).  Neuroleptic medication (antipsychotics and anti-depressants) disrupt both NREM and REM sleep.     This has a doubly detrimental effect in that the disturbed REM sleep is associated with cognitive dysfunction and eventual psychotic symptoms. Disruption to NREM sleep prevents the glymphatic system from removing amyloid plaques and tau protein fragments.   A normally functioning brain will remove Aβ plaques and tau proteins, one subjected to neuroleptic medication will not be functioning ‘normally’ and the latest research links this directly to disturbed sleep.       Blood oxygen levels are also crucial to efficient brain functioning and blood oxygen levels falling below 88% are potentially fatal because irreversible damage will be caused to heart muscle and other internal organs.  Oxygen starvation to the brain causes very rapid cellular apoptosis (brain cell death) and potentially severe and irreversible brain damage.  There is a very strong body of medical literature on all of these effects but unfortunately most psychiatrists don’t want to know.     There is research taking place dealing mainly with patients who have Parkinson’s Disease.  The drugs used to treat it are notorious for causing seriously disrupted sleep because of course they are targeted at eurotransmitters.   The involvement of Aβ and tau proteins in the aetiology of Alzheimer’s Disease is being looked at as well as ADRs.  There is a need much more research on how they may be involved in psychiatric disorders as we already know that both of these potentially toxic proteins can be triggered by trauma and disrupted sleep.          
TESTS FOR MULTI DRUG RESISTANCE ASSOCIATED PROTEIN 1 (MRP1)It is important for Elizabeth to be tested for multi -drug resistance associated protein 1 (MRP1).   If transport proteins are not correctly expressed she could have serious adverse effects caused by inability to efflux drug substrates from brain tissue and this can lead to neurotovicity, another organic brain disorder.  This is the transport proten for Clopixol P-GTLYCOPROTEIN (p)-GP).   Please ensure these tests are carried out as a matter of urgency.      
TRIBUNAL05  OCTOBER RE EXPIRING SECTION 3 ON 27 OCTOBER 2023   I LOOK FORWARD TO MY INVITATION AS A POA FOR HEALTH AND WELFARE I SHOULD BE PRESENT IN ACCORDANCE WITH ELIZABETH’S WISHES. I was not invited and neither was anyone else present in the family and the result according to Elizabeth is that section renewed for another year with no end in sight. No wonder Elizabeth did not want to attend and was not feeling well enough due to having the episode prior.  
OBSERVATION   AND EPISODESIS THIS STILL 30 MINUTES  AND HOW MANY EPISODES HAS ELIZABETH HAD ON THE WARD SO FAR SINCE ASH VILLA.   THIS INFORMATION WILL BHE NEEDED FOR COURT.  IN ORDER TO SAVE TIME I AM ASKING FOR THIS INFORMATION IN ADVANCE PLUS THE UNREDACTED COPY OF DR BRADSHAW’S CAPACITY ASSESSMENT UNDER GDPR RULES AS THERE ARE COMMENTS RELATING TO ME CONTAINED THEREIN. I am still waiting for this and I am still waiting to hear about when all these tests will be carried out and I thought I would share the tests with everyone so that everyone can be asking their Trusts for pathological tests that should be given automatically not allowing patients to suffer for years on end because their concerns on physical health are being ignored under mental health.
  
  

More on Cavernomas

The comparator scan sent shows a cavernoma in the patients brain and there is a similar indication at approximately the same position in Elizabeth’s brain. A woman on the Cavernoma Alliance UK website describes being misdiagnosed until brain surgeon Mr Mohsen Javadpour identified a cavernoma on her brain. It appears that they are often overlooked in favour of psychiatric diagnosis. The cavernoma is a cluster of blood vessels that can leak into the brain and in that respect is definitely a lesion. These lesions are associated with immunological problems and inflammation (see attached paper) The amount of damage it can do is largely dependent on where in the brain it is and if that is one in Elizabeth’s scan I would expect it to cause problems with neurotransmitter signalling and possibly neuroleptic efficacy. Cavernomas are not malignant but can be disabling and lesions in the temporal lobe can cause psychiatric symptoms, especially violent mood swings. Neuroleptic & antipsychotics medication will not effectively treat cavernomas. This paper is very interesting too. Sayadnasiri M., Fadai F. Multiple cavernous angiomas associated with psychotic symptoms: a case report. Zahedan Journal of Research in Medical Sciences . 2016;18 doi: 10.17795/zjrms-3479.

Today I have received a letter from Will Quince MP Minister of State via Victoria Atkins MP. I was requesting genomic healthcare. He writes “The Government is committed to delivering genomic healthcare in the NHS”. In 2020 the Government published its ten year strategy for genomic healthcare. Our latest implementation plan published in December 2022 sets out in detail the progress made on implementing the strategy, including progress on offering all patients with a rare genetic condition a definitive molecular diagnosis using tests that will support research into their condition wherever possible. In October 2022 NHS England published the first strategy on Accelerating genomic medicine in the NHS.

The NHS in England have world leading expertise in genomic assessments. Genomic testing in the NHS is provided through the NHS Genomic Medicine Service (GMS) established in 2018 and delivered by a national genomic testing network of seven NHS genomic laboratory hubs (GLHs) covering the entire geography of England.

The NHS GLHs deliver testing as directed by the National Genomic Test Directory, which is available online at http://www.england.nhs.uk/publication/national-genomic-test-directories. This outlines the full range of genomic testing offered by the NHS, including tests for 3,200 rare diseases and over 200 cancer clinical indications.

The directory sets out the eligibility criteria for patients to access genomic testing that is commissioned nationally by the NHS in England, including the genomic targets to be tested and the method that should be used, including reference to guidelines set by the National Institute of Health and Care Excellence (NICE). The Directory is applicable nationally, providing a standardised approach.

Testing is available for all eligible patients across the whole of England. Individuals should discuss with their healthcare professionals whether genomic testing is appropriate for them, such as their GP or other healthcare professionals if they are already being seen in a relevant service, such as endocrinology. Their healthcare professional will then make a decision whether to refer the individual either directly or via an NHS clinical genomics service (CGS) for genomic testing, following clinical review of their and their family’s medical history if known and the relevant genomic testing eligibility criteria. Any genomic testing data will also be interpreted by clinical scientists and medical professionals that are specialists in the relevant area of testing.

There are 17 NHS CGSs which are commissioned by NHS England. They deliver a comprehensive clinical genomic and counselling service that directs the diagnosis, risk assessment and lifelong clinical management of patients of all ages and their families who have, or are at risk of having a rare genetic or genomic condition.

The NHS CGSs have a key role in providing care and coordinating care being provided by other clinical specialities to patients and their families. As part of their work, the patient and their family will access diagnosis and management relevant to their condition. They will also receive support and guidance so that they are able to understand their condition, its implications, and their options in relation to reproduction, screening, prevention and clinical management.

To support the clinical management of urgent cases, clinicians are also able to classify cases as urgent when a patient has a deteriorating or unstable condition that requires a quicker diagnosis. Training for clinicians on how to use these urgent pathways is being undertaken across the NHS GMS.”

WILL GUINCE MP, MINISTER OF STATE

The last paragraph would apply to Elizabeth who is deteriorating and requires a quicker diagnosis. The problem is getting such a referral as all requested referrals have been refused and the attitude is “let’s do things bit by bit. This is typical under MH care where no-one wishes to budge on diagnosis even when treatment is not working. Elizabeth should be referred to an Endocrinologist but just like the Neurologist this has been refused also under psychiatric secondary care. I have had private tests done on metabolism and also genetics in addition to Endocrinology but this is all being ignored. For many years I have been trying to get Elizabeth the right assessments by specialists so I will be very happy when Martha’s Rule comes into effect. When treatment does not work and you witness someone going downhill there should not be a struggle to get pathological tests done but everything is stacked up against you and if you dare to challenge like I have done you come up against tremendous backlash and bullying with councils getting involved and then the law is stacked up against you in favour of the professionals who call you “unsuitable” and human rights are forgotten.

Since moving from London to Lincolnshire it has been a disaster. No-one is giving any answers about the discharge note that points only to physical health. Because of the way scans have been refused and Neurologist appointments cancelled I decided to book a private scan as I was quite suspicious. Elizabeth is on a very high dosage of clopixol depot administered fortnightly and on top of that they are now giving procyclidine for Parkinsons off label. She constantly says she does not feel well and that is understandable as she is subject to constant rapid tranquilisations. Imagine being pinned up against a wall and some hospitals such as Elysium give face down restraint which is life threatening.

When I turned up for an important meeting on Monday 2nd October I was told an emergency ambulance had been called again. It was 2.00 pm when I came onto the ward. There were about 5 people in her bedroom. I did not pick up the message covid was on the ward but too late by this time. I was for the first time in Elizabeth’s room and there were five others including the RC. As witnessed myself on one previous occasion Elizabeth was in an inconsolable state. Rolling on and off the bed, shaking with tremors all over her body and her skin felt cold and clammy. The first thing they do is inject her known as “rapid tranquilisation” (a chemical straightjacket). They were waiting for an ambulance to take her to A&E at Lincoln County Hospital. I had to go into the meeting where I met with two Directors of Nursing for the Trust and ICB. It was around about 5.00 pm when the meeting ended and I went over to A&E and Elizabeth was still in an ongoing state of distress which reminded me of one other occasion when she had Akathisia. I thought it might be NMS she was suffering. It could not have been a worse time to be in A&E with a strike on. There were two healthcare assistants with Elizabeth but when they had to go back to the ward two men took over standing just outside the room. It was not until about 7.00 pm that the main consultant came to see Elizabeth. It took her until 7.30pm to calm down and when I have asked she said she could hardly remember anything other than being strapped to a bed in the ambulance. The episodes I had hoped had subsided but were a frequent occurrence at previous hospital Ash Villa and at Cygnet Durham which always resulted in rapid tranquilisation. Pulse rate high at 138 /157. You could not speak or communicate with Elizabeth during the episode. After briefly seeing the Consultant she was then sent back to the ward in a wheelchair. It was quite upsetting as this has been going on a while now and I do not like the fact she is being injected as it is life threatening. Never before coming to Lincolnshire did she have these episodes but we have both been treated like criminals.

I have scientific data that the clinicians are ignoring.  I have two papers (from impeccable sources) of major significance in showing that a non-psychiatric intervention may relieve some of the pathophysiological causes of the psychosis they call schizophrenia.  If interventions were targeted at immune dysfunctions and inflammatory markers a whole new approach could be taken that did not involve a lifetime of incarceration and neuroleptic drugging.

An early intervention targeted at these two physiological causes/contributors to psychosis might eliminate most patients from this hideous ritual that has been going on for many decades.

It is eminently probable that Elizabeth, when she first presented with psychotic symptoms had an injury or infection causing inflammation, that had it been properly treated would have been fully recovered from.

That clinicians will not listen to this is unfathomable.  Literally millions of people may have been subjected to psycho pharmaceutical treatment unnecessarily resulting in untold levels of suffering for them and their families. How shocking this is.

When the drug companies got control of our health service the future became very bleak for patients. Drug companies don’t want cures they want sales.  Keeping patients on drugs for life makes them fortunes.  Cured well patients do not generate profits for drug companies and private sector mental health provision making fortunes from the NHS.    

The orthodox medical obsession with so called chemical imbalances ‘treated’ with neuroleptics completely blocks out numerous pathophysiological contributing factors and possibly even causes of psychosis.  It is virtually medieval in its approach and shares more in common with cult beliefs than with science.  

Ignoring pathophysiological symptoms and markers is utterly absurd in any diagnostic system let alone the potential for consequences of ignoring them when administering medication. 

Refusing Elizabeth and other patients access to properly conducted tests and analysis is a scandal on a huge scale.  But of course they find it much easier to label people with catch-all and non specific stigmatising terms like schizophrenia.   

It is entirely possible that Elizabeth suffered a decrease in cerebral glucose metabolism at the time she was originally wrongly diagnosed with schizophrenia. 

That has been shown in the medial temporal lobe and increases have been seen in the subgenual anterior cingulate cortex in conjunction with reductions in mesolimbic connectivity, following an induced inflammatory response.  Trauma can induce this inflammatory response.

It is further possible that millions of young people have been so diagnosed because the NHS is obsessed with focussing solely on the psychiatric symptoms while positively avoiding pathophysiological and trauma induced causes of psychosis.

The mesolimbic system is precisely where dopaminergic activity is taking place and inflammation will obviously interfere with that, causing manifestations of psychosis.  If the inflammation had been addressed with anti-inflammatory drugs at onset a lifetime of psychosis and consequent drugging could have been avoided.

I suspect that Elizabeth will express C-reactive proteins and interleukin 6, just as she was shown to be a poor metaboliser.  Both of these are a result of her genotype and her treatment should have been based on these.  Undoubtedly the NHS will refuse to test her for these markers.

Instead they cling on to the outdated and hideous system of labelling people with schizophrenia and dosing them with anti-psychotic medication.   

If any of the scans show these effects it would be seriously negligent not to investigate them further.  At the very least anti-inflammatory drugs should be used to reduce the inflammation.  Even over the counter NSAIDS would have some effect on this.

Steroids are used in more serious cases.  

It is well established that brain inflammation is caused by neuroleptics.  The medical literature, including top high impact journals is full of studies.    Some of the drug companies claim that the drugs actually reduce inflammation but the evidence here is highly questionable.

If grey and white matter is inflamed it will interfere with the brain’s system of removing waste proteins (Glymphatic system) That will cause nerve atrophy by blocking neural signalling and depositing protein waste in the form of amyloid beta plaques and Tau tangles both inside the cell and between cells in the synapse.  That causes failing cognition, memory and cell death in the brain.  Inflammation in the brain can breach the blood brain barrier endothelial cells allowing in both toxins and pathogens that would otherwise be stopped by the BBB.  That can cause infections and toxicity leading to brain damage.  If the doctors ignore that they are either negligent or stupid or both.   

As the sulcus closes, the Cerebrospinal Fluid is pushed out of the sulcus. Since the CSF is part of the Glymphatic system responsible for clearing the brain of damaged protein fragments these can build up and cause atrophy in grey matter.  Amyloid beta proteins and tau protein tangles cause brain atrophy leading to neurodegenerative disorders. 

•       In the human body waste matter is cleared from the system to lymph nodes

•       Where proteins are filtered out and destroyed

•       The more active the organ, the more vessels there are to evacuate the waste proteins 

•       Except in the most active organ of all, the Brain.

•       The brain has no lymphatic vessels

•       It was originally believed that was products in the brain were destroyed in situ

•       Accumulating proteins such as Aβ and tau are identified as major factors in Alzheimer’s Disease

•       Nedergaard’s research observed that the brain has its own mechanism for clearing out waste 

•       Ten years after Nedergaad’s work this is now known as the Glymphatic System

•       Cerebrospinal fluid is a liquid that acts as a cushion protecting the brain from direct contact with the skull.   Closed sulci push CSF away possibly leading to less cushioning 

•       The fluid has been observed ‘washing’ through the brain induced by the pulsing of arteries as the heart beats

•       The fluid was picking up waste proteins and transporting it to the lymph nodes for destruction 

•       This involves brain cells known as the glia

•       Giving a new avenue for potential treatments by improving the flow of glymphatic fluid

•       A normally functioning brain will flush out Aβ and tau proteins

•       As a person gets older this process becomes less efficient

•       Leaving potentially harmful proteins behind where they may accumulate

•       Accumulating Aβ proteins can reach a tipping point causing tau to spread throughout the brain

•       As the accumulation increase the axons and synapses are compromised

•       And cognitive function, especially memory declines

•       Unlike the lymph system the glymphatic system only operates during sleep

•       The system is disabled during waking hours 

•       It is most active during deep sleep, initiated by slow-brain wave activity

•       Lack of sleep in early life as associated with increased risk of Alzheimer’s  

•       Aβ can increase noticeably even following short episodes of sleep deprivation

Before leaving I wanted to pick up the Rapid Tranquilisation log from Castle Ward but this was not granted so I wrote an email to Sarah Connery CEO:

“I also look forward to the CP11 on RT for LPFT and logs of RT during and thereafter from Ash Villa.”

I thought I might as well get the Policy document CP11 on Rapid tranquilisation as I had been reading very carefully another Trust’s Policy protocol document CP11. I then decided to ask for all the rapid tranquilisation logs to date. I would recommend all carers whose relatives are subject to rapid tranquilisation get the Policy document of their Trust CP11. I could not find this so I have had to ask for it.

Elizabeth is being given drugs that disrupt sleep and this can result in a low B/O ratio during the night. Dangerously low blood oxygen will result in brain damage and organ damage.

In the short term it will seriously impact on cognitive function and that should have been taken into account when they conducted the capacity assessment.  Patients treated for sleep problems with CBT-1 experience increased cognitive ability while those treated with sedatives or anxiolytics such as benzos experience their cognitive function deteriorating further.

  

Blood Oxygen LevelInterpretation
96 to 100%Normal range
93 to 95%Borderline low
89 to 92%Low
88% or lowerDangerously low

The patient should be examined 30 minutes after IM is administered. 

If respiratory rate falls by 10 points following IM administration of drugs or the blood oxygen levels (SpO2) fall below 90% the patient should be given oxygen. 

Symptoms of mild cerebral hypoxia include:

  • Change in attention (inattentiveness)
  • Poor judgment
  • Speech disorder
  • Uncoordinated movement

Brain cells are very sensitive to a lack of oxygen. Some brain cells start dying less than 5 minutes after their oxygen supply disappears. As a result, brain hypoxia can rapidly cause severe brain damage or death.

Lack of sleep can cause brain inflammation and where that occurs the drug metabolism will be affected adversely.  

It is a failing of mental health providers that they do not pay sufficient (if any) attention to patient sleep.  Conditions on wards are not conducive to proper sleep with lights on and severe disruption throughout the night, including forced medication. 

Doping patients up with Benzodiazepines does not provide the proper circadian sleep they require and contributes to brain dysfunctions exacerbating underlying medical conditions. 

High levels of neutrophils have been associated with schizophrenia and there are methods of treating them as you will see below.  I consider it highly unlikely that Elizabeth has been tested for neutrophil count so that is another test she might need.

I have the paper on neutrophils and schizophrenia.

Plasma levels of systemic inflammatory markers (fibrinogen, albumin, white blood cell count, von Willebrand factor, and Factor VIII) need assessing.

Plasma fibrinogen is considered as a positive mediator between mental stress and cardiovascular disease because it is an acute-phase protein released in response to mental stress and a coagulation factor.

Mental stress can increase fibrinogen and increase the risk of cardiac disease via upregulated coagulation (Blood clots)

This assessment can be done by a routine blood test.  

On a positive note after 2 years finally we have this meeting. The CTR originally refused is now being granted. Because I dispute every capacity assessment done for court purposes they offered to arrange an independent one. I believe they should always be done independently however I am not sure I can trust them to choose and I would want to choose in the circumstances. I did say was it necessary because I needed to see two other capacity assessments done by completely independent assessors of the CoP.

I mentioned about leave. Every change of doctor meant things either were ignored or went back to scratch. A HCA told me that S17 leave was granted meaning escorted ground leave but I disputed that this was leave. Leave is when someone is granted time with their families and that has not happened in a long while.

Ward Round took place on Wednesday on Microsoft Teams and went better than the last one I could not get into. The RC kept saying “you have schizophrenia” Elizabeth just sat there – normally she would say “no I am autistic”. However, I was the one who spoke up as I had private scans done when they were refused by a former doctor of LPFT who even carried out research into the Limbic System. I said “my daughter’s condition is physical” I mentioned she needed to see a Neurologist, an Endocrinologist and an Immunologist. He said about a referral to a Neurologist but because so many appointments were cancelled and scans refused I am not leaving anything to chance. I have contacted today a leading expert in Neurology as I want a fair examination and not by a neurologist who may also be a psychiatrist as even with the evidence of the scans Elizabeth would not be treated fairly. Inflammation of the brain requires a very different kind of treatment to what Elizabeth is having at the moment. It is hard to trust anyone in the circumstances as noone likes to be proved wrong and from what I can see there has been nothing but attempts to ignore or brush aside.

Take the Sebaceous cyst for example on Elizabeth’s head. I as a mother was not convinced when they said it was benign.

A Sebaceous cyst is well associated with the long-term use of neuroleptic medications.

That also needs a medical appraisal done.  This is not simply a cosmetic ADR but indicates a potential endocrine disorder linked to her inability to metabolise drugs.

Incidentally this has also been known about for years.  Sebaceous cysts are NOT benign.  For one thing they may mask subdural lesions and inflammation making them difficult to define.

Just as I thought! – every time I have told the doctors – so many of them that I have had endocrine tests done for Elizabeth and they have ignored this and so I asked at ward round for an appointment/referral as I have already proven endocrine dysfunction. In fact it was Dr Moncrieff who recommended seeing an Endocrinologist and not any one of the many doctors involved in Elizabeth’s case

Cavernomas are vascular malformations that have been associated with psychosis as well, especially in the setting of haemorrhagic transformation.

That dark patch on Elizabeth’s temporal lobe looks suspiciously like one.

The cavernoma is a cluster of blood vessels that can leak into the brain and in that respect is definitely a lesion.  These lesions are associated with immunological problems and inflammation (see attached paper)  The amount of damage it can do is largely dependent on where in the brain it is and would be expected to cause problems with neurotransmitter signalling and possibly neuroleptic efficacy.  

Cavernomas are not malignant but can be disabling and lesions in the temporal lobe can cause psychiatric symptoms, especially violent mood swings.  Neuroleptic & antipsychotics medication will not effectively treat cavernomas. It appears they are often overlooked in favour of psychiatric diagnosis.

This paper is very interesting too.  Sayadnasiri M., Fadai F. Multiple cavernous angiomas associated with psychotic symptoms: a case report. Zahedan Journal of Research in Medical Sciences . 2016;18 doi: 10.17795/zjrms-3479.

The attached article is about a young man presenting with psychosis and aggression.  He was found to have two cavernomas and you can see them on the scans in the article.

It is possible that the reason why cavernomas are relatively rare is that the misdiagnosis of schizophrenia is masking the actual incidence in the population.  Since psychiatrists are so reluctant to allow patients to have brain scans many of these may be going undetected.

Clearly proper examination by a neurologist to confirm it is indeed a cavernoma or any other type of lesion is needed. 

Neuroleptic medication will not treat these lesions and could potentially make them worse since it can cause inflammation.  

Limbic encephalitis is an inflammatory process mediated by antibodies that typically involve the limbic system, although it can also affect the white matter in other areas of the brain, the brainstem, or the basal ganglia. It can have paraneoplastic or non-neoplastic origins, paraneoplastic encephalitis showing little response to immunotherapy(4). Clinical findings range from alterations in short-term memory to alterations in mental state and can include psychiatric symptoms.

I have placed below a brain scan done roughly in the same position of that of Elizabeth’s which I refer to as a comparator

Note the similarities between the brain scan on the right of the picture with Elizabeth’s on the left.  Although the comparator picture is taken from higher up in the skull at eye level and Elizabeth’s is in the area of the nasal sinuses below the eyes you will see the same pattern on the left.  The comparator shows a cavernoma, a definite lesion. 

On Elizabeth’s scan you can see the odd linear anomaly that does not show on the comparator but the dark patch on Elizabeth’s scan is directly below the position of the cavernoma on the comparator. 

I have just been reading to Elizabeth this blog for her approval and she wishes to let everyone know that she is “slowly recovering”. The thing she enjoyed most today was making pizzas. Oh and another good thing is that I have been granted two hours leave that does not have to be confined to hospital and its grounds. That is good news as Lincoln is a very nice place and eventually I would like to show Elizabeth some of the sights especially the Cathedral.