I got some of the file but should have received copies of the minutes as I attended several meetings.  I should have also had copies of conversations and the incidents where I was labelled as threatening to the team but got none of these, only select papers which I already  have in any case.

 If there was decent communication none of this would be necessary.

The CQC have powers to investigate complaints but only limited and they are not interested in individual cases but as I pointed out I heard many patients complaining of their rights and not being listened to which could be another factor why I was banned. 

I certainly  have listened to my daughter but the more drugs they dished out there were times when she was confused and mixed up and I felt at times she was being manipulated.  The CQC have a duty to intervene but it looks from the letter that they are passing matters to the PHSO and this is no good in my opinion.  The need to send down their inspectors and interview all the patients and take a look at the advocacy there that is wholly unfair and not independent.

The CQC sent me some of the file but it contains nothing –  I should have had copies of the minuts of every meeting I attended and copies of the report/investigation that led to me being banned.  Surely I am entitled to have some explanation and noone has given me anything.

The whole system is no unfair and does not go far enough to ensure that patients are not being abused.   Patients should also be listened to and are not fairly represented.    The advocates were far from independent and this needs to be looked at as well.   My daughter has a fabulous new advocate and I am happy that he is the best and fair representative for her as he is not attached to hospitals that dish out the funding for such advocacy. 

Today I tried to speak to my daughter but the phone was again off and despite you telling the staff at Cambian things are right, you just cannot get through.   A letter has been received by my daughter so she told me about the tribunal but I have not heard anything from anyone in the team.   I am still waiting to hear if I can visit her but that involves meetings being held. 

The fact is there is no reason why I should be prevented from seeing or taking out my daughter as I hardly see her now.  She has human rights and I have never seen such treatment before and fail to see how this could benefit my daughter just because they do not like the mother.  When I asked this question previously at the Maudsley the staff were quick to say it is not because they are worried about her safety in my company –  so it would all seem to be personal.  However if Cambian did not have anything to do with the NHS/social services then this hospital would be perfect – I am sure it is much nicer than all the acute wards put together.  As nearest relative surely I should be told about the date of the Tribunal. 

http://bjp.rcpsych.org/letters/submit/bjprcpsych;201/2/83

Antipscyhotics – time to introduce change

This link to a most interesting article in BJPsych   bjp.rcpsych

Well it is a good thing they are having a forum on this as I would have plenty to say on the subject and I have noted down the dates of their conventions and if at all possible may attend in future.  They need to listen to the patients and carers who witness at first hand what these drugs do.  It is all very well for the doctors who just prescribe them and then are not even based there at the hospital to see what is going on.   In any case how on earth can someone get a clear opinion and base their views on guesswork and especially as it would appear many do not read the files or want to know the family but assume that it is the family at fault or else cannot be bothered and just base their diagnoses on observations.

I have been asked many times about how my daughter did at school.  Well what on earth has this got to do with matters.  I can see that Dr Jame MacCabe is doing some more research.  I personally think he needs to concentrate on the dangers of these drugs and look at the real thing to aid recovery and that is correct care and that extends not just to hospital but in the community.  For this correct care you need the patients to be involved because the experts do not listen to the patients half the time and that is the main problem.  They also do not work with the families and are dismissive in every way.

Yes it is time to introduce change in the form of orthomolecular psychiatry as I could see a huge improvement in my daughter with decent care and a doctor who actually listened.

I have just had a call from Elizabeth to say there is a Tribunal (so her phone must now be with her – that is something!) and solicitors have written to her but the solicitors are not her solicitors so they must have been from the hospital.  It is shocking and disgusting that you have to go through this procedure when someone is of no risk to the public and would not just go out and disobey rules etc – she may well be in a strange area but if told to stay in she would but why keep someone a prisoner.   I am most bitter about this because if it was not for the previous shocking care in a so called worldwide renowned hospital then if they had done things properly and reduced by miniscule amounts on a day to day basis as I showed in a wonderful book and cd by Dr Tracy – things would not have got to this stage and I would have been happy.  As it is I am not at all happy as I blame this hospital for my daughter’s current situation as they are the ones who have not done things properly and plied with even more drugs against my daughter’s human rights.   I also do not like the way they are using the patients for their clinical trials.

Whilst this publication is a start it is action that is needed – action speaks louder than words and whilst the NHS do nothing apart from have endless meetings after meetings – nothing is achieved as there would not be such a mess under the mental health otherwise.

Whilst I can see why so many people are afraid to complain fortunately I am not.  I want to see action and change and I am prepared to go down to a meeting at the Royal College of Psychiatry and speak my mind.  They also need to listen to the many others who feel the same way and do something.

There is a way psychiatry can be involved in helping a patient and that is NOT through these awful chemicals and I have made sure that my daughter will know who is responsible one day and hopefully there may be something like an Alternative Care Centre like Earth House over here.  Patients have a lot to offer and are the most highly intellligent people from what I have seen.  Anyone who thinks otherwise is narrow minded or else ignorant as to what is going on and they should do some proper research and I have certainly done that into these drugs that are so highly damaging and extremely dangerous.  I wish I had done that in the beginning but I know full well you cannot just come off them and if someone is on the minimal of these drugs rather than maximum and has experts involved in looking at nutrition/diet, tests at bio lab – this is what should be done for the patients.

This is the message you get when you ring my daughter on her phone and she even admitted she has been discouraged from contact with me but refused to say by whom and was afraid – she seemed afraid in terms of what she said “dont cause me trouble Mum”.   However,  noone should take it out on a patient just because they do not like the parent or because a parent quite rightly so has complained about some extremely serious incidents and facts which the CQC are supposed to be investigating.  A complaint should be used in a constructive manner and not just dismissed which is something the NHS are good at doing.    How is anything ever going to change for the better if nothing is done and more people should speak up in my opinion but I can see why they do not.  It is extremely distressing to be treated like an outcast, a criminal and barred from so called aggressive behaviour and the way I have been treated is an absolute disgrace. For the most part you get nowhere with complaints as- there is no decent complaints system but this ward and its treatment of patients who are very vulnerable should be looked into and is a matter for the CQC – I have never seen anything so horrific like Fitzmary II ward in my life and was quite horrified.  I horrified at reading “Re-challenging patients with blood dyscrasias and cardiovascular problems with Clozapine”  I must ask Dr MacCabe what on earth is he doing challenging patients who are seriously ill – this is surely wrong and could result in death.  This is just one of the reports and I am now so interested I have requested ALL of them.  People think this is a world-wide renowned hospital.  People think they are getting the most wonderful care but as one former patient said who has written to me amongst other patients describing their shocking care –  “it was the worst mistake of my life”.  Well I could not describe this better myself. 

How come they moved my daughter so hastily miles away from the family giving virtually no notice to anyone.  Now we cannot get her on the phone –  this is not good at all.  If there is a simple explanation that there is a problem with the phone then this should have been sorted out well before now.

You should not have all this song and dance about a visit when I can hardly pop down there to see my daughter every weekend now.

 Anyway maybe something will be sorted out this week but it would appear that the consultant psychiatrist attached to this hospital Cambian Four Star Wards has already formed an opinion that is not good about me as a mother.   If I am excluded from visiting my daughter then it would be this doctor that would end up being the focus of attention as I am very happy to be judged by the whole world as to my character.  I can provide witnesses and references if things ended up in court and if I was of that character then I would certainly not have considered re-applying as a volunteer for the police.

I am so sorry for all the patients who do not get listened to or respected at all and now I am happy –  I have found a wonderful advocate who truly understands and would be wholly representative of my daughter not like these groups such as Rethink who are domineered by the consultant psychiatrist.  All I want as a mother is fair representation and I do not want a solicitor recommended by the hospital who is pally with the team.

It is ridiculous to have to go through more meetings and more decisions just for more recognition that this arrangement should continue as the replacement solicitor has already been agreed by my daughter and so has the advocate.  

Any decisions between them and my daughter is nothing to do with me.  They are the representatives as far as I am concerned and I am more than happy about this especially since the advocate as personal experience and knows how to communicate better than the entire team at the Maudsley.

Apart from the problems with her phone I cannot judge the Cambian Group to be fair but the psychiatrist HAS judged me without even meeting me and cut short my conversation on a few occasions and would not hear a bad word said about the Bethlem Royal Hospital which is nothing more than a research centre who get their funding from the drugs manufacturing companies to experiment on patients against their wishes.

Anyway enough of this as I want to see if I can get some tickets to the Olympics today.  I missed out twice and was not happy about this.  I wanted tickets for the swimming but now the athletics are on and I would like to see something of this.  I have been to the Montreal OLympics before and this was fabulous and these games are right on my doorstep.  I have not been to the Olympic Park but Elizabeth has – she went to see Preparing London basketball last year.   All I have seen is the Olympic torch come down the road where I work.  Someone I heard got some tickets by queuing for 2 hrs and got them for £5 – that would be nice as I have heard tickets are being virtually given away but I am not sure I will be lucky for the athletics.  

It is such a shame Elizabeth was very good at running and even took part in a charity run.   One of the guys involved in a special training project she went to for running was himself diagnosed with a serious condition but was such a remarkable man.   Like certain members of Speak Out against Psychiatry, this man got better and took up running and was extremely good.  Most people who have something positive to focus their minds on get well again like my younger daughter who likes acting.    Anyway,  he was an inspiration.  It is people like this who should be involved in helping and encouraging others to get better as they are the inspiration and staff under the NHS sometimes are negative and do not do enough to encourage people who are MORE than capable to do things for themselves, find something good in life with support – find work etc etc.   There needs to be more support in the community maybe one to one mentor to help people get back on their feet when they become disillusioned for being institutionalised in a system that is nothing but drug pushing and very little therapeutic care.  It is precisely these people that could be involved in the running of Alternative Care Centres offering much kinder care such as Orthomolecular and that is not to say taking someone completely off drugs but these are fully trained psychiatrists who give the drugs as well as supplements in a proper manner – this is what should be in place at the Maudsley.  Nutrition, diet, counselling, CBT exercise, relaxation – these things should be provided in specialist centres that offer individually tailored care per person with the aid of former patients who truly understand and can associated with what a person has gone through and ultimately that person would get better and not lose hope like under the current system which does not work at all. 

Dr Healy has written the most amazing piece entitled The Hidden Gorilla.

He quite rightly states that “Most drugs that can cause suicide, including the antidepressants, mood-stablizers, antipsychotics, smoking cessation drugs and others, can also cause violence.  The akathisia, psychotic decompensation or emotional disinhibition thse drugs trigger that lead some to suicide, lead others to violence (see Healy et al 2006).”   How very true!

A medical blind spot:

“There is some awareness that these drugs can cause suicide but considerable resistance to the idea.   There is less awareness and even greater resistance to the idea that they can cause violence.  Treatment induced violence lies in a medical blind spot – no doctor wants to contemplate the possibility that he/she may have had a role in the deaths of innocent third parties.”    VERY TRUE!!

“This may be the grim prospect facing Dr Lynne Fenton.  Dr Fenton we are told had been seeing James Holmes, the killer at Dark Knight Rises in Aurora and had seen him just a week before the killings.  Given the current reliance of American medicine on medications it seems likely that medications are involved in the Aurora case.” 

“But in fact there is a great deal of publicly available clinical trial (Hammad 2004 p 40-41 and other data highlighting the risks of violence from psychotropic drugs.  There is far more hidden data.  There is in fact no other areaa of medicine in which there is so much hidden data on a risk that has consequences for the lives of so many innocent third parties.

Anyway the link to this informative article is http://davidhealy.org/the-hidden-gorilla

My daughter is in a place she describes as like a four star hotel and in beautiful countryside.  I am happy for that at least however all is not well.

At first everything seemed lovely and I thought she had been just transferred although it was very sudden.  This is most unusual as most patients end up on the wards of Fitzmary II for longer than my daughter but it seemed they were anxious to let her go.  The family hardly had any notice given to them and other people involved in her care such as her newly appointed advocate thought it was highly strange.

At first I was happy to think of Elizabeth in a nice surround and peaceful setting.  The rest of the family were told not to visit for the first two weeks and this did not seem unreasonable however time has gone on now and I am keen that Elizabeth does not think that whilst she is miles away noone cares for h er in the family or else we have forgotten but suddenly things are becoming increasingly difficult.

I spoke to the new psychiatrist Dr W……………………. a few days ago and I do not think she liked me very much.   When I mentioned about the section I told her that she would not have been put on section if the reduction off medication had been done properly.  Any doctor would have to admit in a court of law that you cannot just take someone off as much as 150mg and reduce in 2 weeks without adverse reaction.  This caused no end of upset and pain for my daughter.  Constant phone calls at work whilst they had mixed Seroquel with Olanzapine were extremely upsetting.  She did not have the promised drug free assessment like Prof Murray said. 

This new psychiatrist under Cambian never bothered to introduce herself by a phone call to the family or anything.  I just found out who she was.    Anyway there were times in the conversation she cut me short and would not let me finish what I was saying.  She then went on to say about my “behaviour” at the Bethlem Royal and would not have a word said against them and that shows just how they support one another and stick together.   I am neither threatening or abusive but have got upset with this team on more than one occasion and then they are the ones who have threatened me.  The police would have records as I rang them when the staff threatened to call and have been arrested.  One such incident was when I brought the pet kitten and a chinese meal for my daughter.  On all these occasions I have witnesses to back me up.

I have given an honest account of the shocking care at the Bethlem Royal and have reports to prove it.  This is a research hospital and that is that.  They get their funding from the drugs companies to experiment on poor vulnerable patients.  They would normally have to pay to do this kind of research for volunteers but they just dish out the drugs they know full well are highly dangerous and risky to the lives of the patients and they do not go anywhere near enough to inform the patients and relatives of the risks involved.  I have proof of everything.

The ultimate abuse is to have your phone taken away and the phone is always in the office charging.  So I questioned the manager and insisted that Elizabeth should have her phone with her at all times in case other members of the family were trying to contact her.  The manager then went on to say she was keeping the phone at Elizabeth’s request.   How very very odd.  I find this so hard to believe –  I only recently was asked by Elizabeth to get credit for her phone and now she is not allowed to have it with her.  Anyway I am sure the truth will come out soon.    When I have phoned before I have been put on the phone to my daughter – a pay phone on the ward and I am phoning from a mobile and this is quite costly to hang on and wait till they find her as she is probably in her room.   

The other thing is the consultant psychiatrist Dr W……………………….could not give me an answer whether I would even be allowed to visit on my Birthday or take my daughter out.  This Consultant Psychiatrist is based there at this supposedly patient-friendly hospital that boasts of patient involvement.  I think the staff have been instructed from above not to allow the phone to be given to my daughter and that means if she is being abused in this so called wonderful hospital she is totally isolated form the world but truth has a way of coming to the surface.   I can tell something is desperately wrong at the Cambian Four Star Wards in that the phone is not with my daughter and I simply do not believe what I have been told.  This is a real infringement of human rights _ I thought I had seen it all on that dreadful past ward Fitzmary II but it appears not.   I have not met a single member of staff but I feel that they are being told not to give my daughter her phone in fact she admitted today she has been told not to speak to me.   She could not say by whom but I am documenting this so very well.  My daughter sounded distant and worried – probably worried for reprisals in terms of speaking out against WHOM told her not to speak to me but the fact she has not got her phone with her time and time again would make anyone suspicious in light of what Dr W refers to my behaviour on the previous ward and that she would have to weigh up  the distress such a visit would cause by me to my daughter and the rest of the patients.  It would seem that Dr W                    is yet another psychiatrist desperate to keep my daughter away from me and this will need a full investigation and unfortunately it will damage Cambian’s image completely unless the phone is handed back and the rest of the family have no further problems in getting through and also if my visit is allowed on my Birthday as if it is not, then how will htis make the Cambian Four Star Wards look particularly when my daughters wants to see her family and that includes all of us as ALL of us are coming down.      

If this ban is longstanding then I will put out an appeal for many many people to check on my daughter’s wellbeing and report back to me.  All I want to know is that she is OK having seen her face covered  in bruises at the last hospital for which NO explanation was given.

AT the moment I cannot even put in for any holiday because I do not know if I will be allowed to see my own daughter and when I asked previously at the Fitzmary II ward why I was being given 1 hr escorted leave only and offered to provide character references  and dont forget I had vigourous security checks through my application to be a police officer – they quickly turned round and said it was nothing to do with that yet noone seemed to be able to communicate and that is the trouble with the NHS mental health care.  There is o inclusion for relatives and they especially do not like it when you speak out or challenge what they are doing and I feel I had every right to do this.  It is supposed to be a country that encourages free speech but this would seem not to apply in the world of psychiatry.  I will now go on to write some extracts of a wonderful informative piece I have seen on Facebook by Professor David Healy.  Thank goodness for people like him and Dr Ann Blake Tracy for their honesty. 

http://www.avaaz.org/en/petition/Alternative_Care_Centres_offering_Orthomolecular_Care_to_Psychiatric_Patients_as_choice/?launch

More and more people are speaking out about the cruelty of psychiatry and that it is all about drug pushing on harmful drugs that are supposedly safe enough to be allowed on the market however this is not true.  You only have to pick up the papers to see the shootings and mass killings of people who quite often are prescribed these drugs.   It is all hushed up because of the money being made by the pharmaceutical industry.  Someone who commits such crime is often a victim of the pharmaceutical industry.  A professional doctor described Elizabeth to be such a victim.   Not one of the drugs has worked because she has not had decent care.

It is cruel and evil to commit someone to a lifetime of taking such drugs against their wishes when there are alternatives.  I am not for one minute saying someone should take themselves off the drugs as when someone does this they can become psychotic unless this is done under professional care and there are no centres anywhere.

Many people who have had mental health problems are the nicest and most caring people on earth and they are treated like dirt. 

I now face being banned from seeing my daughter as Dr W from Cambian Group does not appear to like me and is basing her opinions on the views of the Bethlem Royal RESEARCH hospital that I h ave been outspoken on.  

Such a ban is not going to benefit Elizabeth – this psychiatrist is saying she must weigh up what my daughter wants and what is in the best intrest and whether a visit from me will cause her distress and distress to other patients.   It is the psychiatrists who take this view without knowing the full family background that cause distress.  For instance the incidents at the Maudsley were very upsetting to me and my daughter and caused by the reactions of the staff – noone else.  Granted the staff are given orders from above and the psychiatrist Dr S  kept bringing Rethink who are supposed to be independent advocates into important decisions and saying REthink say No to this or that.  At the Cambian Group, the psychiatrist Dr W says she already has an advocate but my daughter willingly agreed to having Martin from Speak Out Against Psychiatry who has been a patient onthe wards and despite his strong feelings would not take sides and back me – he would listen truly and honestly to what my daughter wants and even if she was to say something against me then I would respect
Martin’s decisions as advocate so I have given his name to my solicitors and that of my daughter who was not properly informed of such a move in such a hasty manner from Bethlem Royal who obviously still have influence hence the section.  Dr W said the assessment was done properly and in court I want that looked at in depth because you simply cannot take someone off 150mg or mix the drug with Olanzapine or anything else without any reaction.  Once there is a reaction then there are grounds by law for a psychiatrist to come dwn like a ton of bricks and impose sanctions.   I want to see proof of the diagnosis as I know that my daughter suffered a traumatic event leading to her gong to her GPand being put on anti dep0ressants.  Dr Tracy gives an honest account of how dangerous these drugs truly are and that is when I really saw unrecognisable change in her behaviour and aggression – I have never seen this in her before.  She took herself off in one go and I did not know about these drugs then like I do now.   I only wish I had looked into things sooner.

There are groups over here who want change in the mental health system and my petition would be so valuable in getting something done and helping these poor patients.   There are groups like Soteria who want a similar place and also Chy-Sawel who hold conferences with experts such as Dr William Walsh – there are more and more experts like this and Dr Healy  who are speaking the truth but many of these “experts” do not want to listen and only believe in the drugs. 

Banning me from visiting my own daughter is one thing but what is next on the cards

 – can this psychiatrist Dr W ban me from phoning my daughter.   I am wondering as it is getting increasingly difficult to speak to her on the phone and I feel like they are all ganging up against me.  Time after time I have telephoned and her phone is switched off and day after day after day it is affecting contact.   A psychiatrist can so easily turn someone against their own family but I want to share with the world some of the things she has said:

“Mum it is like a four star hotel here – did you think of this – there are sheep outside – it is beautiful countryside and peaceful and I am making new friends.    

At the same time Elizabeth talked to me in front of witnesses of her distress of being on Clozapine and how she wanted to come off but this is the chosen drug of the Maudsley and one where they get fundign to experiment on patients whilst under a section.  Metformin is also mentioned in the research papers.

“Mum when are you coming down to visit me”  Elizabeth has been moved in such a shocking way – her solicitor is astonished and was not immediatley advised of this and already my daughter agreed in writing for this firm to represent her.   The Maudsley recommended a firm of solicitors and this is not right.  The solicitor seemed to be very very pally with the team just like Rethink are and domineered by the psychiatrist’s demands and they were supposed to attend a meeting as agreed at the previous one and did not turn up.

Dr W of the Cambian Group is pro medication (drugs) and pro Clozapine and highly praised the care at the Maudsley.  She did not want to listen to anything other than praise for which I have NONE.

THESE ARE THE COMMENTS OF MY DAUGHTER FROM TRHE MAUDSLEY HOSPITAL WHEN I WAS ALLOWED TO SPEND THE DAY WITH HER BEFORE I GOT BANNED:

MUM GET ME OUT OF HERE – DO WHATEVER YOU CAN TO HELP ME.    MUM PLEASE LETS GO AWAY TOGETHER AND GET ON A PLANE – GET ME OUT OF HERE – I HATE IT HERE – WHY DID YOU PUT ME IN THIS PLACE LIKE PRISON.   MUM I AM SO UNHAPPY HERE.   MUM THEY HAVE OFFERED ME CLOZAPINE TWICE DR S AND S THE PSYCHOLOGIST/PHARMACY BOTH OF WHOM SAT THERE SMUGLY SMILING AT A FORMER MEETING WHICH I DOCUMENTED IN MY MINUTES.

MUM I DO NOT HAVE MANY POSSESSIONS – I WANT TO GET AWAY PLEASE DO NOT SEND ME BACK. 

DUTIFULLY I TOOK HER BACK ON TIME AS I WAS TOLD BY A MEMBER OF STAFF I WOULD BE ARRESTED OTHERWISE. 

THE TEAM THERE PLAYED ON INSTANCES WHEN I GOT UPSET TO HEAR THAT MY DAUGHTER’S WISHES AND VIEWS AGAINST GOING ON CLOZAPINE HAD NOT BEEN LISTENED TO.  AS A MOTHER I WAS BACKING MY OWN DAUGHTER TO THE HILT.  THE TEAM HERE AND POSSIBLY THE NEW TEAM AT CAMBIAN ALTHOUGH IT IS TOO EARLY TO SAY WILL BE CONTRIBUTARY TO DESTROYING MY LIFE BUT THAT IS WHAT PSYCHIATRY IS ALL ABOUT.

IF ONLY  CAMBIAN FOUR STAR WARDS WAS RUN BY ORTHOMOLECULAR PSYCHIATRISTS INSTEAD WHO SUPPLY BOTH THE DRUGS AND SUPPLEMENTS AND KEEP PATIENTS AT A MINIMAL.   I DO NOT TRUST ANY OF THESE OTHER PSYCHIATRISTS BECAUSE OF WHAT I HAVE SEEN AND HOW THEY DO NOT RESPECT A PATIENT’S WISHES.

For the first time I spoke on the phone to Dr W.  AT first the conversation went well but I did not think it ended well.

The minute I criticised the drugs she became defensive and started to praise the Maudsley Bethlem Royal Hospital.   She refused to listen to any words of criticism and is obviously well in with them.  She described them as being world renowned specialist hospital but that could not be farther from the truth.   She praised the drug Clozapine and refused to let me finish my explanation and stuck up 100% for the hospital.

I then tried to address the issue of section and said I was not happy about it.   I asked how it would affect my visits as I only had about an hour escorted leave with my daughter at Bethlem Royal Hospital.   She refused to give me any answer and referred to what she had heard as my “behavioiur” at the Bethlem Royal.  I have explained in full and honestly about what really happened in my blog.  I told her I was hoping to come down on my birthday and asked if I could take her out with me for a meal but she refused to answer to this saying she would have to weigh up what was best for my daughter and bearing in  mind my behaviour is upsetting to my daughter and she had other patients to consider then she did not consent over the phone – instead leaving this to the manager possibly in her absence as she is goIng on holiday Monday until the 14th August which is after my birthday.   So she could turn round and say to the manager DO NOT ALLOW HER OUT OR ME ON THE WARD.  I have no idea but it will be very very bad if this happens as the entire family – all of us are coming down and Elizabeth has asked so many times when I am coming to visit.   The psychiatrist tried to say that Elizabeth herself had expressed distress at my visits.   I want this in my blog because if I never get to see my daughter again my last wish would be that this gets read to her and that it is not because I do not care that I am not visiting but it is because of the powers of Dr W and Dr S of the Maudsley that allow them to inflict such punishment in such a detrimental way that is not helping Elizabeth and tearing the family apart when the family are coming together as none of us think Elizabeth should be sectioned.  She would not run away and is more vulnerable than anything else.   People look at the young man in the papers and think everyone mentally ill is a killer –  I would like to take such people to see what is really going on and they should be educated and the patients are human beings and because they are so vulnerable are being abused terribly by these so called professionals who do not read the files from start to finish and the files in any case are inaccurate because they portray me in a bad light simply because I have been outspoken. 

Once again could not get Elizabeth on the phone today so have no idea how she is.  

Every time I have spoken to her she has asked when I am coming down.   Two days ago she sounded a bit distressed and said she was not happy on the Clozapine and wanted to come off it.

I was horrified to learn she is still on Section – WHATEVER FOR –  She is happy to remain there for the time being – at least it is not like that prison camp.   I have not seen Cambian Four Star Wards yet but planned to visit on my Birthday coming up in August.

Anyway I have had numerous conversations with staff and the manager who are extremely nice.  My only complaint being that I could not get through to her on the phone.  I thought they had sorted things out.  Anyway, I decided to find out the name of the psychiatrist who happens to be based there.   I will refer to the psychiatrist as Dr W.

Dr W spoke to me and I was so hoping we would get on.  The conversation started well but did not end well.  I questioned what my daughter was doing on Meformine and asked if she had diabetes but was told no and she was a bit vague but the Manager had already told me –  it was to counteract the tremendous weight gain caused by the Clozapine.  These two drugs are drugs that are in the first instance prescribed by the Maudsley  but according to the presentation it would appear they are very both mentioned in terms of experimentation and at the beginning of the prsentation it gives the n ames of the drug companies involved in providing funding for such experimentation.   So that is two people saying she does not have diabetes but I then went on to say about the oils and she said they were allowed and were being given.   I then went on to say about the supplements and she said SOME were being given.    All the supplements I obtained from the States had been prescribed by a properly qualified psychiatrist but an orthomolecular psychiatrist.  I told Dr W that I had a prescription that my daughter should have included on the ward and I do not think this went down too well.   The other thing I got to find out is how supportive Dr W is towards the Maudsley describing this hell on earth place as a top leading renowned hospital that knew what they were doing and offered excellent care.  When I said this was not true she cut me short in my conversation.  I told her about the abuse going on there but she refused to listen to this.  I told her about my fears re the medication but straight away she leapt to the defense of these harmful chemicals.   I told her that I had seen shocking research papers but again she cut me short in conversation and did not want to know. 

 I then got on to the subject of the section and said I was not happy about it.  I am sure my daughter is happy in what she describes as a four star hotel but is probably missing the family.  Every time she has asked when I am going to visit and I was planning to come in August but when I asked the question whether I would be able to take her out for dinner – no answer was given and she even tried to push the decision on the manager who she would give orders to herself.    She quickly announced she would be going on holiday Monday until 14 August and that does not tie in with  my birthday – that means I could go all the way there and find I am not allowed to visit and my daughter is not allowed out.   As it happens the rest of the family are all together with me for once and do not like the section either.      They too are not convinced about the drugs as her father said “she has been put on so many ” and they have not worked.  Her father also wants to visit at the same time and we are consulting solicitors.  He is the person they wanted to replace me with but we happened to agree on more than one issue tonight when we spoke about the situation.     Dr W referred to “my behaviour” on the previous ward.    If you have looked at previous blogs you will have seen reference to what really happened based on how I was treated and how my daughter was treated.  This is apalling abuse what is going on under Bethlem Royal Hospital and yet the psychiatrist from Cambian 4 Star Wards was praising and in favour of the drugs and seemed to be against me because she would not give me a firm decision.  It will be interesting to see what happens.     So solicitors are getting involved not just for my daughter and I told CAmbian that whilst I am very happy that she is there rather than Bethlem Royal Hospital I am not happy for any further drugs to be given.  That is against my daughters wishes.    The one thing that worries me is that this psychiatrist could turn my daughter against me by putting words into her head as she tried to twist one or two things I said – I used the word evil to describe care at Bethlem Royal Hospital – she tried to make out I was referring these comments to her and would not let me finish sentences and often talked over me when she did not want to hear the whole sentence.        If it was not for her I would be 100% happy as I am sure the staff and manager are extremely nice at this hospital. 

I am currently waiting with interest for ALL the research papers under the Freedom of Information Act.  I will be chasing up the CQC as regards this and feel they ought to do a big investigation as to what is going on.

Anyway,  I have already mentioned Dr James MacCabe who talks about “re-challenging patients who have previously experiened suspected blood dyscrasias or cadiovascular complications of clozapine” at the National Psychosis Unit.  

How shocking is this –  from this you can see they they are putting patient’s lives at risk – why would you wish to challenge patients who have previously experienced problems with health in this way? – what kind of hospital is this!

“Improving Tolerability of Clozapine by Dr J H MacCabe  – I see he mentions hypersalivation and sedation.    When I used to visit the shocking Fitzmary II Ward for the most part a lot of patients were just either lying around or walking aimlessly up and down the corridor.  There was nothing to do at weekends and hardly any visitors.  I wanted to bring visitors to the ward at the weekend such as comedians to cheer up the patients and was starting to make enquiries –  I feel truly sorry for the patients who are isolated from the world in a drugged up state, some too ill to venture off the ward and cooped up on a stuffy ward.  What a truly awful place this is!   You look around the grounds and you do not see a soul at times and yet they have lovely grounds apart from the huge high fences that resemble a zoo.  This is very wrong.  When there are good facilities and nice grounds I believe the patients shoujld be allowed to enjoy them but some are too drugged up to be able to do this.  This is a place where they hold clinical trials and use the most vulnerable patients against their wishes in their experimentation with the most dangerous chemicals that act like LSD and cause hallucinations and psychosis, not to mention long term health problems which noone seems to care about.

Anyway, as promised, I have something else to share with you – this is just part of a shocking presentation I have seen.   It consists of many pages and lots of charts and comparisons.  It is called:

“TREATMENT REFRACTORY PSYCHOSIS – WHATS NEW AND WHATS NOT BY DR FIONA GAUGHRAN, LEAD CONSULTANT NATIONAL PSYCHOSIS SERVICE.   THIS INTERESTINGLY LISTS UNDER DECLARATION OF INTERESTS THE FOLLOWING”.

hONORARIA/aDVISOR: BMS, Roche, Family Professional links GSK, Lilly.  Previously funds for conferences/unrestricted research grants/advisory bodies:  Astra Zeneca, janssen, BMS and Lilly.

There are strong links between the Institute of Psychiatry and South London and Maudsley Trust.

It mentions the kind of referals such as Diagnostic Dilemmas, High use of Resources Advice on Management and underneath this is “Treatment Resistance”  and “Sub-optimal Response” 

There are lots of charts and on one page they compare Clozapine with Chorpromazine as to how many patients whose condition improved.  They say Clozapine is for treatment-resistant schizophrenia.  I am furious with this as I asked for proof to show my daughter had this condition and she was promised a drug free period and this was not given.  Therefore I do not accept the diagnosis and it particularly looks bad that I have a tape containing an interview with one doctor from the Maudsley stating it take 2 minutes to come up with a diagnosis.  The Consultant Psychiatrist wanted to start “afresh”.  This is so very wrong –  they should look back at what happened to someone in the first place.  There is usually a good reason for mental illness to occur.  It is not always environmental –  it can be because of a traumatic incident and then counselling should be given – not these drugs.    I would like to see the scientific evidence of a diagnosis as there are several in my daughter’s case and I do not think there are any proper tests that determine what is the cause and so therefore how can there be a diagnosis?  What right do the professionals have to ply a patient with these harmful chemicals you cannot just come off easily.  In Ireland the law is changing.  The law should change over here in the UK too to give patients choice and respect.  They experiment here with Olanzapine, Clozapine, Quetiepine and Risperidon from what I can see on one page of the presentation.

Optimizing Clozapine treatment – average dose in UK around 450mg/day.  Lower doses required in elderly, females and non-smokers and in those prescribed certain enzyme inhibitors.  This is really shocking.  I heard from someone that they raise medication to beyond BNF limits and as they are experimenting on patients like human guinea pigs nothing surprises me.

There is another shocking page with the headings

Amber and underneath this Recheck   WCC lower in am.

Red – Stop Clozapine – admit.

There is a page with Professor Taylor’s name “The importance of the recognition of benign ethnic neutropenia in black patients during treatment with clozapine: case reports and database study. and also a heading “Re-starting Clozapine after Neutropenia.

How about this –  Heading of “Mycocrditis, pericarditis and cardiomyopathy in patients treated with clozapine” – they openly admit it causes cardia side effects including myocarditis etc as mentioned above.    They are in full knowledge of increasing numbers of Clozapine related cardia complications reported that has given rise to concern about the risk of acute cardiac side effects in patients treated with the drug.   I am absolutely furious about this and will hold this RESEARCH HOSPITAL WHO ABUSE PATIENTS AGAINST THEIR WISHES ACCORDING TO THE LAW!  BY MESSING ABOUT WITH THEIR DOSAGE OF MEDICATION THEY CAN CAUSE SOMEONE TO GO PSYCHOTIC AND THE NEXT THING IS THEY CAN DO WHATEVER THEY LIKE AND FORCE SOMEONE INTO THESE CLINICAL TRIALS AGAINST THEIR WISHES WHILST THEY GET FUNDING FOR IT.   

I WILL HOLD THEM RESPONSIBLE AS THERE IS A HISTORY OF HEART PROBLEMS IN THE FAMILY AND THE FDA STATE CLOZAPINE SHOULD NOT BE GIVEN IN THESE INSTANCES – it has 5 black box warnings to this effect AND I TOLD THE CONSULTANT PSYCHIATRIST THIS BUT HE DID NOT LISTEN.

THE PRESENTATION GETS EVEN MORE SHOCKING AS IT GOES ON “RE-CHALLENGE AFTER NEUTROPAENIA/AUGMENTING CLOZAPINE WITH ANOTHER ANTI-PSYCHOTIC. 

THE ALTERNATIVES TO CLOZAPINE  –  HIGH DOSE OLANZAPINE – THEY SAY WEIGHT GAIN IS WORSE ON OLANZAPINE – HOW TRUE AS ELIZABETH HAS PILED ON WEIGHT SINCE GOING TO THAT HELL ON EARTH PLACE.

COMBINATIONS OF ANTI-PSYCHOTICS

NICE – DO NOT INITIATE REGULAR COMBINED ANTIPSYCHOTIC MEDICATION.  MORE WORK NEEDED.  HOW ABOUT ECT PLUS ANTIPSYCHOTITICS, MELPERONE  FGA PLUS MIRTAZEPINE.   GOOD GOD!   They really are experimenting here to full capacity.

IT IS TOO LONG TO MENTION EVERYTHING  IN THIS SHOCKING PRESENTATION BUT I WILL MENTION THE SUMMARY:

Full MDT assessment

Optimise Clozapine wherever possible

Manage adverse effects proactively

Augment in partial responders

Collaboration with medical specialities if rechallenge

Limited data for altenatives; consideer high dose Olanzapine, antipsychotic combinations, ECT?

All combined with psychological therapties (CBT, CRT – family work and OT).

I nearly choked with laughter when I read “family work”.  Look at what they h ave done as regards me.  ?They first of all sanctioned my daughter on  her leave and stopped her coming out with me for the day.  They then imposed 1 hr escorted leave.   I told the press recently how I was told I could not go running with Elizabeth anywhere that staff could not see me – they even spelt it out as if talking to a small child – not behind trees or bushes but to be seen at all times.  THIS IS FAMILY WORK FOR YOU and then the constant threat of being arrested which prompted me to volunteer for local police.  In fact I would still be keen on doing this as I am going to take a very keen interest in this hospital after the way they have treated me and my daughter.

I hope the above warns people of the dangerous of going into this hospital where they experiment regardless of risks to patients on knowingly highly dangerous chemicals.   LIKE I TOLD THEM THEY SHOULD PAY THE GOING RATE FOR VOLUNTEERS TO CARRY OUT THEIR CLINICAL TRIALS AND NOT USE THE MOST VULNERABLE OF PEOPLE IN SUCH A DISGUSTING WAY.

By the way I was so concerned that I contacted Cambian 4 Star Wards today as she has been put on Metformin for diabetes which is also mentioned in the research papers.   I questioned why as we would need to know as a matter of health and safety if she had type II diabetes but they have told me this is not the case – in fact it is to keep her weight down.   How dreadful is this.

Anyway, my daughter said yesterday she wants to come off these chemicals and was against this in the first place.  I have found the most wonderful advocate who is completely independent and has been a patient and this is just what my daughter needs.  He also knows everyone at SLAM.  I could not be more happy!   I would recommend him to anyone.    My daughter needs to be reduced and come off these chemicals that bring in funding to his hospital.  My daughter may still be on a section but I know how dangerous these chemicals are and want her off them otherwise I shall blame the professionals involved and make it known worldwide.    So, I am taking a keen interest in what is going on and there are groups campaigning all over the UK for better care and I would like to see Cambian offer Orthomolecular care which so many people have not heard of.  That is not to take someone off altogether but keep someone on the minimal of these harmful drugs and yes it does work.  With correct diet and correction with regard to nutrition and supplements to help – yes it does make a difference and I saw a huge difference in my daughter as a result of the wonderful care by an Orthomolecular Psychiatrist that I myself appointed.  This should be available to everyone under the NHS.           

I telephoned Elizabeth tonight as I do every evening.   She is miles away but I do not want her to feel that noone in the family is bothering even though have not yet been to see her – for this I would prefer to stay overnight and make a long weekend of it.

She seemed confused and disorientated – much the same as when her father spoke to her last.   Elizabeth mentioned the drug – Clozapine tonight and how she wanted to come off this awful drug.  It is obviously affecting her quite badly.    

Noone tells you anything –  even on these better wards which Elizabeth described as a four star hotel I have had trouble in getting through night after night after night.  Every time there has been a problem and I have been phoning on my mobile and every time I had to ask staff to look into matters.  Apparently I finally got to find out the phone was left charging in the office but this not being able to get through has been awful not only for me but for the rest of the family as it is not possible to just pop down there in 5 minutes.

The other thing that bothers me is she keeps saying she has not got her possessions.  She has asked me several times but needs to ask the staff – where is everything.  Where are the expensive oils and supplements.  Where are all her clothes and possessions?  Hopefully tomorrow I will finally get to find out. I have asked this question before but got no answer.

Anyway the conversation was brief and over a pay phone in the communal lounge no doubt.  I have no idea how long Elizabeth is going to be at this centre for rehab but she is not missing anything much back home.   It is very very busy –  the Olympics are approaching and the tube is awful to travel on and so packed.  This kind of atmosphere would be no good for Elizabeth as I remember taking her up to Westminster Abbey on the day of William and Kate’s wedding.  Even though the crowds had died down there were a few frightening moments as Elizabeth got worked up through sheer panic and stress.  I thought I would have to order a taxi home but luckily there was a lift at Westminster Tube Station.

I miss Elizabeth very much even though I was only seeing her at the weekend and my time was cut to 1 her escorted leave by that apalling hospital that is supposedly world renowned. 

 Today I got a reply back from my letter to CNN – I have written to a few organisations and newspapers relating to the shocking shootings.   However,  what is not reported are true facts surrounding so many cases of this sort.  I too  have witnessed behavioural changes and psychosis and Akathisia.   It is all to easy to blame the psychosis on a so called condition.  However this is not true.   Mental illness is not something that causes this kind of violence however it is the psychiatric drugs that are to blame.  I have witnessed this in more than 1 person in the family who has been on these drugs.  I believe this is all played down because there is so m uch money to be made by  the pharmaceutical industry.   People are not fully warned about these drugs and all the dangers but Dr Ann Blake Tracy has explained everything in her book Prozac Panacea Pandora and interviews I have on CDs.

On a separate blog I am going to write now about the latest shocking presentation I have seen by the Bethlem Royal Hospital.