Archive

Tag Archives: Court of Protection

Non-Adherence to Anglo-Saxon Jurisprudence and the Adversarial System

The English legal tradition is rooted in the adversarial system, where parties control litigation, present evidence, and contest each other before an impartial judge. The Court of Protection (CoP), however, operates in an inquisitorial manner—contrary to that tradition. As one commentary notes:

“The processes of the Court of Protection are essentially inquisitorial rather than adversarial. In other words, the ambit of the litigation is determined, not by the parties, but by the court… to assess whether an adult is lacking capacity and, if so, make best-interest decisions.”

This divergence raises concerns about fairness. Parties—especially family members—lack control over scope and direction, and cannot fully contest claims or evidence. Such a departure from adversarial norms undermines the CoP’s legitimacy in resolving contested legal issues.

Inequality of Arms: Health Trusts and Local Authorities vs. Families

Equality of arms means all litigants must have comparable resources, representation, and ability to present their case. But in the CoP:

Families often face public bodies like local authorities or NHS trusts with vastly greater resources.

Legal aid limitations exacerbate this imbalance.

A notable case highlighting systemic issues was when Mr Justice Charles adjourned four CoP cases to urge the government to fund legal representation for vulnerable parties—citing that without it, the Court would breach Article 5 ECHR (liberty rights) and common law principles. He labelled this situation a by-product of austerity and resource failure.

The AJ v A Local Authority (2015) case also illustrates concerns: an 88-year-old with dementia (AJ) had to rely on a niece and social workers to represent her interests amid DOLS procedures, raising questions about her capacity to challenge her deprivation of liberty.

Further, in Re JM (2016), the Court faced a “Catch-22”: no pool of willing representatives (rule 3A) existed, and local or central government offered no help. The Court stayed proceedings and joined the Centre (MOJ and Dept of Health) to compel solutions. These examples show how families and P often face institutional disadvantages within the Court.

Admission of Unverified and Hearsay Evidence

Anglo-Saxon jurisprudence typically prohibits hearsay unless expressly allowed, with heavy safeguards. Yet the CoP admits hearsay more readily. In London Borough of Enfield v SA &

Ors (2010), Macfarlane J confirmed that hearsay is admissible, particularly from those incompetent to testify but cautioned that weight must be assessed case by case.

While the judgment is careful, mere admissibility of unverified hearsay risks cases being decided on untested statements, reducing reliability. In traditional adversarial courts, hearsay without cross-examination would typically be excluded or heavily scrutinized.

Arbitrary Decision-Making and Excluding Pertinent Evidence

A key principle of fair trials is full disclosure and consideration of all relevant evidence. In London Borough of Enfield, Macfarlane J emphasized the importance of disclosure, especially in “Achieving Best Evidence” interviews—but lamented that these were not disclosed in prior proceedings.

Furthermore, CoP practice acknowledges the need for open justice and full participation:

Guidance on closed hearings/materials stresses that fairness and Article 6 ECHR generally require parties to see adverse material and respond to it.

Criticism of secret hearings notes that many intimate decisions (e.g., sexual autonomy) are made in the CoP—but in secrecy—stifling transparency and public oversight.

In effect, relevant evidence can be excluded (through non-disclosure or closed proceedings), and material may be considered in private—undermining the adversarial principle that parties respond to all contested points.

Over-Reliance on Lower-Ranking Judges in Complex Proceedings

The CoP frequently deals with highly complex factual and legal questions (e.g., capacity, deprivation of liberty, medical ethics). Yet many decisions fall to deputy judges or similarly lower-ranking judiciary whose expertise may not match the complexity:

There is no clear hierarchy or consistent assignment of senior judges to such weighty cases.

For example, in Barnet, Enfield and Haringey Mental Health NHS Trust v Mr K (2023), high-stakes decisions involving life-altering treatment were made swiftly—amid junior doctors’ strikes—and required expert legal judgment.

The complexity and gravity of such cases arguably demand more senior judicial oversight than is routinely provided in the CoP.

Concrete Case Illustrations

· London Borough of Enfield v SA & Ors (2010) Hearsay admissible, but disclosure lacking and weight questionable. Mondaq

· Re JM (2016) Procedural fairness crippled by lack of representative pool; Court had to adjourn and involve central government. Mental Health Law Online

· AJ v A Local Authority (2015) DOLS procedure and family representation issues illustrate inequality. Court of Protection Hub

· Barnet Enfield & Haringey NHS Trust v Mr K (2023) Highly complex medical/factual situation handled under pressure by possibly less experienced judges. Mental Capacity Law and Policy

· Practice guidance on closed hearings (2022) Emphasizes fairness but also highlights how CoP allows closed material, conflicting with open justice. Courts and Tribunals Judiciaryopenjusticecourtofprotection.org

· 2016 judges’ plea. Mr Justice Charles argued legal aid is essential and CoP’s current setup risks ECHR breaches. The Guardian

Conclusion: The Court of Protection Is Not a Suitable Forum

In sum:

1. It rejects adversarial norms fundamental to common law tradition.

2. It institutionalises inequality, disadvantaging families and unrepresented parties.

3. It permits untested and hearsay evidence, compromising evidential reliability.

4. It permits expert evidence from professionals aligned with institutional positions who are not independent.

5. It restricts participation and disclosure, enabling arbitrary or opaque decision-making.

6. It handles highly complex, high-stakes cases with insufficient judicial seniority, risking errors.

7. These issues have materialised in real cases, undermining fairness and legitimacy.

While the CoP was created to protect those lacking capacity, these structural flaws suggest it fails to meet the standards of a fair, just, and transparent legal forum. Reform—or alternative mechanisms aligned with adversarial fairness—should be considered.

Structural and Procedural Reforms

Restoring Adversarial Balance

Shift the CoP closer to the adversarial model by allowing parties, not the court, to set the scope of litigation.

Require full disclosure of evidence, with narrow exceptions (e.g., genuine national security or safety).

Tighten the rules on hearsay—permitting it only under strict necessity and subject to cross-examination.

Guaranteeing Equality of Arms

Expand legal aid so that families and vulnerable parties are represented on equal terms with public authorities.

Introduce a publicly funded independent advocacy service to support families unable to afford legal counsel.

Require NHS Trusts and local authorities to provide neutral expert witnesses, not only those aligned with their institutional position.

Judicial Oversight and Expertise

Require that all cases involving serious medical treatment, deprivation of liberty, or end-of-life decisions be heard by senior High Court judges, not deputies or district judges.

Create a specialist judicial panel with training in medical ethics, human rights, and capacity law.

Transparency and Open Justice

Presume that hearings should be open to the public (with anonymisation for patient privacy).

Prohibit closed material unless the parties and their representatives can access it.

Establish independent reporting panels to review systemic issues raised in CoP judgments.

Alternative Institutional Models

Specialist Tribunal Model

Replace the CoP with a Capacity and Autonomy Tribunal, akin to the Mental Health Tribunal.

Panels would include:

A judge (law)

A medical practitioner (medicine/psychiatry)

A lay member with social care or lived-experience expertise

This would democratise decision-making and bring expertise directly into the adjudication process.

Mediation and Arbitration Framework

Require mandatory mediation before CoP litigation, especially in family or local authority disputes.

Use independent medical ethics arbitration panels for cases involving treatment withdrawal, instead of a legalistic courtroom battle.

Regional Community Panels

For less complex welfare and residence cases, establish regional community capacity panels, chaired by retired judges or senior practitioners, to make quicker, less formal decisions with community involvement.

This would reduce pressure on the CoP and give decisions more local legitimacy.

Integration with Human Rights Bodies

Transfer certain functions (e.g., deprivation of liberty appeals) to an independent human rights tribunal with binding powers.

Ensure all decisions explicitly comply with Article 5 (liberty) and Article 8 (family/private life) of the ECHR.

Safeguards for Vulnerable Adults

Introduce mandatory independent representation (a “capacity defender”) for every person lacking capacity, similar to the Official Solicitor but with regional offices and wider coverage.

Create a special fund to finance expert evidence for families, ensuring they can challenge medical or social care opinions.

Legislate for strict evidential standards, requiring corroboration where allegations are based on hearsay.

Comparative Lessons

Canada (Consent and Capacity Board): Uses panels of judges, doctors, and lay members to resolve disputes quickly, often within days.

Scotland (Adults with Incapacity Act): Involves the Sheriff Court, providing more robust judicial oversight and community involvement.

New Zealand (Family Court model): Prioritises less adversarial but still evidence-based approaches, with strong safeguards for participation.

Summary: The Court of Protection could be reformed by strengthening adversarial safeguards, improving representation, ensuring senior judicial oversight, and opening up its processes. Alternatively, replacing it with a tribunal-style body or hybrid community/ethics panel system may offer a more transparent, balanced, and expert-driven forum.

Comparative Policy Proposal — Replacing the Court of Protection with a Capacity & Autonomy Tribunal

Executive summary

The current Court of Protection (CoP) was created to protect adults who lack capacity. However, recurring concerns about adversarial imbalance, reliance on hearsay, uneven judicial expertise, secrecy, and resource inequalities suggest the need for structural reform. This proposal sets out a practical, comparative blueprint to replace the CoP with a specialist Capacity & Autonomy Tribunal (CAT), a hybrid tribunal/bench model that combines legal rigour, multi-disciplinary expertise, adversarial safeguards, and stronger procedural protections for vulnerable parties.

Key features:

· Specialist tribunal panels (judge + medical + lay member with lived-experience/social-care knowledge).

· Stronger adversarial safeguards, mandatory independent representation for P where necessary, and tighter hearsay rules.

· Transparent hearings by default with narrow, reviewed exceptions for closed material.

· Regionalised structure with central oversight and specialist appellate review by a High Court division.

Objectives & principles

The CAT should be designed to achieve:

1. Fairness & equality of arms — ensure parties (family/P) are not disadvantaged versus public bodies.

2. Legal and clinical expertise — decisions informed by both high-quality legal reasoning and relevant clinical/ethical input.

3. Adversarial safeguards — allow parties to test evidence, cross-examine witnesses, and control litigation scope within appropriate rules.

4. Transparency & open justice — default public access with strong anonymisation and narrowly-defined closed material procedures.

5. Speed, proportionate process, and accessibility — quicker resolution for welfare/residence matters while preserving rigorous procedure for life-and-liberty disputes.

6. Human rights compliance — explicit integration of ECHR Articles 5 & 8 in procedure and reasoning.

Comparative models: lessons learned

Canada (Consent and Capacity Board / Province-level variations)

Panel-based decisions with non-legal experts; fast timetabling for urgent liberty matters. Lesson: multidisciplinary panels speed practical decisions but must be balanced with legal safeguards.

Scotland (Adults with Incapacity mechanisms; Sheriff Court involvement)

More robust judicial oversight with court routes for serious deprivation of liberty; community input. Lesson: stronger judicial hierarchy improves protection of fundamental rights.

New Zealand (Family Court / welfare-led approaches)

Focus on less adversarial process with mediation and family participation. Lesson: mandatory dispute-resolution options reduce litigation and preserve relationships.

Proposed institutional design

Name and mandate

Capacity & Autonomy Tribunal (CAT) A statutory body replacing the Court of Protection for all matters concerning capacity, best interests, deprivation of liberty (civil), and specified personal welfare/health disputes. Matters involving crimes, wills, or property probate remain outside scope (or handled in parallel routes).

Structure

· National Leadership: President of the CAT (High Court judge or equivalent senior judiciary) with a national registry, rules committee, and quality assurance unit.

· Regional Tribunals: Regions (e.g., 8–12) with full-time tribunal judges and administrative staff.

· Panels:

o Standard Panel (for routine welfare/residence disputes): Tribunal judge (chair) + Lay member (social care / lived experience).

o Complex/Serious Panel (for deprivation of liberty, life-sustaining treatment, forced treatment): Tribunal judge (must be a senior judge, e.g., High Court or designated senior tribunal judge) + medical expert (psychiatrist/physician) + lay member with ethics/social care background.

· Emergency fast-track stream: Immediate single-judge hearings for urgent liberty cases, followed by full panel review within a fixed short period (e.g., 7 days).

Jurisdiction

· Determination of capacity for specific decisions.

· Best-interest determinations (residence, care, treatment).

· Authorisation and review of deprivation of liberty arrangements (civil).

· Appointment, supervision, and challenge of deputies/guardians.

· Appeals and judicial review routes (see below).

Procedural rules: balancing inquisitorial utility with adversarial protections

Scope-setting & case management

· Parties propose scope; the tribunal may refine scope for proportionality but cannot expand issues without party notice.

· Mandatory early directions hearing in all cases to set:

o Issues list

o Witness list and timing

o Disclosure orders

o Whether mediation is required

Evidence and hearsay

· Default rule: oral evidence under oath + cross-examination where oral evidence is available.

· Hearsay admissible only where:

o the witness is genuinely unable to attend (e.g., lacks capacity, is deceased), and

o corroboration is available or the tribunal orders viva voce evidence by an alternative witness or expert.

· Any hearsay admitted must be identified on the issues list; the admitting judge must give reasons and direct proportionate testing (e.g., short oral evidence, expert verification).

Disclosure and document handling

· Automatic disclosure obligations on public bodies (NHS trusts/local authorities), with sanctions for non-compliance (cost orders, adverse inferences).

· Parties must disclose expert reports to each other within fixed timeline; “late” expert evidence requires court permission.

Closed material / privacy

· Default: open hearings with anonymisation orders where appropriate.

· Closed material regime only where stringent tests are met (necessity & proportionality) and where both parties’ legal representatives — including the independent representative for P — can see the material (special advocates only where unavoidable).

· Annual external review of closed orders by the national oversight panel.

Representation & legal aid

· Mandatory independent representation for P in all deprivation of liberty, serious medical treatment, or contested capacity cases (a “Capacity Advocate/Defender”), funded by central legal aid or a dedicated statutory fund.

· Families are eligible for legal aid on means and merits; if family are litigants-in-person, the Tribunal must identify and appoint independent legal assistance for P where conflicts exist.

· Right to expert evidence funded by the tribunal in cases where the party cannot afford it and the evidence is material.

Case types and timetables

· Urgent liberty cases: hearing within 48 hours; full panel review within 7 days.

· Serious medical treatment / end-of-life: pre-hearing ethical review and full panel within 21–28 days.

· Routine welfare/residence: streamlined timetables (e.g., 6–12 weeks) with mediation first.

Judicial oversight, appeals and review

· First-tier decisions by CAT panels; appeal on points of law or significant procedural unfairness to a dedicated Capacity & Autonomy Appeal Chamber of the High Court (or a specialist division), with expedited timetabling for liberty matters.

· Judicial review remains available for errors of jurisdiction, but appeal routes should be designed to reduce unnecessary JR litigation.

· Oversight by President of the CAT with annual reporting to Parliament on systemic issues, closed hearings, resource shortfalls, and ECHR compliance.

Safeguards to protect P and human rights

· Capacity Defender role — independent and statutory with duty to represent P’s wishes and rights, challenge evidence, and instruct experts.

· Best-interests checklist codified and integrated with ECHR obligations (Articles 5 & 8) — tribunal must provide explicit proportionality reasoning when liberty or private/family life is impacted.

· Independent monitor for long-term detention/authorisations: periodic reviews (3 months, then every 6 months).

· Data protection & anonymisation safeguards in public reports and judgments.

Funding, resourcing & equality of arms

· Central funding ring-fenced for:

o CAT registry operations,

o Capacity Defenders and public legal aid for P/families,

o Tribunal-appointed expert witnesses.

· Financial parity rules: public bodies must disclose costs and cannot subsidise litigation advantage through undisclosed expert reserves.

· Efficiency measures: digital filing, remote hearings where suitable, national expert panel to reduce duplicated expert costs.

Transitional arrangements (how to move from CoP to CAT)

1. Primary legislation to create CAT and set jurisdiction (example statutory timetable: Royal Assent + 12 months to stand up).

2. Shadow phase (6–12 months):

o Appoint President and senior panel members,

o Recruit regional registries,

o Pilot CAT procedures on a subset of cases (e.g., welfare/residence matters).

3. Full roll-out (months 12–24): transfer cases, retire CoP appointments, national training program for judges and Capacity Defenders.

4. Legacy cases: transitional rules to finish sensitive ongoing litigation or transfer with consent.

Legislative and regulatory changes required (high level)

· Repeal/replace core CoP enabling provisions with CAT statute.

· Amendments to:

o Mental Capacity Act (to align definitions, representation rights, and procedural safeguards).

o Mental Health and health-care legislation where deprivation or treatment authorisations intersect.

o Legal Aid Act (to create ring-fenced funding for Capacity Defenders).

· Secondary legislation to set tribunal rules, panel composition, and closed material procedure.

Accountability, quality assurance & oversight

· National Rules Committee (including judicial, clinical, and civil society membership) to keep rules under review.

· Independent Inspection & Audit Unit to publish annual metrics: timeliness, appeals rate, use of closed hearings, proportion of litigants-in-person, and user satisfaction.

· Parliamentary reporting with annual statement on ECHR compliance.

Costs, benefits & impact assessment (summary)

Costs

· Initial set-up: recruitment, training, IT and property.

· Ongoing: Capacity Defender network, tribunal registry running costs, expert panels.

Benefits

· Greater procedural fairness and equality of arms.

· More consistent, expert-informed decisions reducing appeals and judicial review costs long-term.

· Increased transparency and public confidence.

· Faster resolution for routine cases and better protection of liberty in urgent cases.

Net effect: Upfront public investment likely offset over time by reductions in costly litigation, improved outcomes, and fewer successful appeals/JR claims against the state.

Implementation roadmap — suggested timetable

1. Months 0–6: Policy approvals, draft legislation, stakeholder consultation (including NHS, local authorities, patient advocacy groups, legal profession, judiciary).

2. Months 6–12: Parliamentary passage; set up transitional implementation board; begin recruitment of President and senior staff.

3. Months 12–18: Shadow operations and pilots for rules and Capacity Defender scheme.

4. Months 18–24: Full activation and transfer of cases to CAT.

5. Year 3 onward: Monitoring, rule refinement, public reporting, and formal review after 3 years.

Measurable success criteria (KPIs)

· Time to first hearing (urgent liberty cases: ≤48 hrs; serious medical: ≤28 days).

· Proportion of P represented by Capacity Defender (target 100% where deprivation of liberty or serious treatment at issue).

· Appeal/JR rate reduced year-on-year (target: 20% reduction in 3 years).

· Use of closed hearings reduced and subject to independent review.

· Stakeholder satisfaction (families, professionals, P) measured annually.

Risks and mitigation

· Risk: Initial costs and recruitment difficulties. Mitigation: Phased roll-out; reuse of existing CoP staff; central funding guarantee.

· Risk: Resistance from existing institutions (courts, local authorities). Mitigation: Stakeholder engagement, transitional protocols, shared training.

· Risk: Potential for procedural complexity delaying cases. Mitigation: Proportio

Recommended next steps (policy actions)

1. Convene a cross-departmental working group (Ministry of Justice, Department of Health & Social Care, NHS England) and an independent expert panel (judicial, clinical, civil society).

2. Commission a full costed business case and impact assessment.

3. Draft primary legislation and open a public consultation with targeted focus groups (families, mental capacity NGOs, and disability rights organisations).

4. Pilot the Capacity Defender model and the complex panel approach in two regions within 12 months.

Appendix — Suggested statutory outline clauses (short form)

1. Establishment — “There shall be a Capacity & Autonomy Tribunal (the CAT). The CAT has jurisdiction over matters under the Mental Capacity Act relating to capacity determinations, best-interest orders, deprivation of liberty authorisations, and deputy/guardian appointments…”

2. Panel composition — “The CAT shall hear matters in panels constituted as prescribed: standard and complex panels as set by regulations; complex panels require a legally qualified chair designated by the President.”

3. Representation — “Where the person lacks capacity and the matter involves deprivation of liberty or life-sustaining treatment, the Tribunal shall appoint a Capacity Defender at public expense.”

4. Open justice — “Hearings are presumptively open. Closed material only on strict necessity test and upon reasons published to the extent consistent with privacy.”

5. Appeals — “Appeal to the Appeal Chamber on points of law or significant procedural unfairness. Emergency appeal timetabling for liberty matters.”

Closing note

This comparative proposal aims to preserve the fundamental protective purposes of the existing regime while repairing its defects: restoring adversarial safeguards, guaranteeing equality of arms, ensuring technical and ethical expertise on decision-making panels, and making the system more transparent and rights-compliant. The Capacity & Autonomy Tribunal is a pragmatic hybrid model — tribunal-style speed and expertise combined with judicial safeguards — designed to offer better outcomes for vulnerable adults, families, and public bodies alike.

Tonight I received a call from Elizabeth. The call was as usual supervised by a healthcare assistant. Elizabeth told me that today a lady came to see her claiming to be a Paralegal together with her Advocate from Voiceability. Elizabeth recognised her from Ash Villa. What was discussed was supported living yet they know full well that Elizabeth wants to come home.

Nothing surprises me but this is so very underhand. None of us in the family have been notified and only get to hear things from Elizabeth herself who is sharing information which is most probably the reason why they put staff there instructed to write notes. This has all been done behind our backs. No regard whatsoever has been given to Elizabeth who clearly has capacity or her family and I am sure you will all agree from reading her messages below she has capacity. She told me that she was not happy about the idea of supported living which has been tried before and was a disaster. The whole reason I moved was to provide a nice living environment away from a stressful city where people are rushing around. Here below I describe some of the disastrous places where Elizabeth has been sent by the former area of Enfield, none provided the right support in the community.

s.117(6) Mental Health Act 1983 as amended by s.75 Care Act 2014.

Accommodation can only be provided where it meets a need related to the person’s mental ill health, and reduces the risk of the person’s condition deteriorating.

The person has the right to express a preference for particular accommodation. 

Social services must meet this preference provided it is: 

·       of the same type that social services has decided to arrange

·       suitable for the adult’s needs

·       available

·       affordable, using a ‘top-up’ if necessary

MotiVilla – dreadfully abused therein – all possessions of value missing.  14 year old drug dealer on site.

Phoenix House Northampton no food at the weekend yet rated good by CQC

Premier Inn Enfield Island Village –  moved from room to room – had to keep paying

Mays Cottage – Priory Craegmoor group –  broken lock to door of room- told to sleep on settee all night.  Resident drug dealer, resident bringing prostitutes in.  No supervision or care overnight.  Faced eviction because of another resident staying over from a related scheme.

Reservoir House  –  total breach of H&S –  five fumigations failed to stop bed bug problem which spread to all other residents.  Had to sleep on floor with damp sheets because of constant washing of clothes to try to stop the problem which persisted.

Solway Road–  temporary scheme without even a proper kitchen or lounge or garden to sit out in

Purcell House – the very best accommodation and independent council flat on 3rd floor that Elizabeth was assessed for and was assessed as being able to manage however Enfield provided not a scrap of care in the community and left to go downhill.

Since moving to Lincolnshire nothing but acute wards for nearly 3 years now. Family have provided a nice bungalow but a team of around 30 strangers are against her coming home.

SHE IS ON A DIFFERENT KIND OF SECTION”

The above was the response received when I questioned why Elizabeth was being treated so very differently to others at Ash Villa. The other response I received was in relation to her missing meals “If she chooses to miss meals it is up to her” however this is neglect on the part of LPFT especially when at the time, she was deemed to have no capacity. Elizabeth was held a virtual prisoner for so long without leave, phone taken away and 2-1 supervised visits for just half an hour sometimes at Ash Villa, just as she has been held at Castle Ward under Dr Waqqas Khokhar, who is the Responsible Clinician. There have been times when Elizabeth has said she feels like giving up and no longer wishes to live. All calls have been supervised, all visits supervised and this is the current position. My daughter’s treatment has been appalling. Now suddenly for reasons I cannot say they are keen to move Elizabeth and all this is going on behind our backs right now. Elizabeth wants everyone to know she does not wish to go into supported living and wants to come home. She has capacity to decide and I am now a BI assessor myself. No doubt they would want to put on DoLs or CTO in order to detain her in all for profit scheme owned by business people where it is unlikely they will have the expertise to cope with her seizures and provide the necessary care. Elizabeth has made it clear she does not wish to be sent away from her family and where we live overlooking beach and sea is the right environment, not a city or out of area placement. The way these “professionals” have gone about things is both under-hand in their dealings to think they can get away with saying “no capacity” this will backfire on all of them. Totally dishonesty to set about trying to take away a vulnerable person’s autonomy for their own convenience.

Each and every member of staff there has a Code of Conduct and so do the doctors but noone is acting accordingly and reliant on each other to back each other in the case where there may be challenges or things go wrong. The Bolam Principle thankfully is no longer accepted in law from what I can understand. Each and every one of these professionals are individually responsible for their actions. The doctor had apparently asked a nurse to film Elizabeth having a seizure for the purpose of passing this on to the Neurologist. Elizabeth did not agree to this and then I got a call from the Clinical Lead asking me if they can pass this on to the Neurologist so I said No. I could not believe the way I was asked this question as though Elizabeth was a vegetable when she has capacity and clearly said no. What is needed is for Elizabeth to go to Sheffield as they do not even have the correct scanners in Lincolnshire. A brain scan should be under under a Tesla 3. Elizabeth has agreed to go to Sheffield and have extensive tests done but the Neurologist is afraid that equipment may be broken which Elizabeth promised not to do. I am waiting to book my hotel for Sheffield and the only information I am getting is from my own daughter. There is a wall of silence from everyone else. She needs to go there for a few days to have extensive tests done properly with the correct equipment and not filmed by the MH team as how can this provide any accurate picture as to the reason for the seizures which incidentally I have been partially blamed for. Again Elizabeth who is said to have “no capacity” relayed to me the date of this appointment is on 30 July 2024 and I have asked her for the time of this appointment.

The seizures started whilst at Ash Villa. There was an accident where according to Elizabeth she lost her balance in the seclusion room and hit her head hard on the floor. I was concerned for my daughter’s wellbeing so I booked a private MRI scan in a small window of opportunity. The results were not normal and because of this dispute finally a scan and referral to a Neurologist has been allowed and I have checked that the MRI scan under Tesla 3 has been booked through Sheffield but what is needed and what Lincolnshire Partnership Trust is not wanting to do is refer her for a few days stay on the Neurological ward for proper observations instead taking it upon themselves to do the filming which is gross breach of medical ethics.

THESE ARE MY DAUGHTER’S WISHES NONE OF THEM WISH TO LISTEN TO:

FRIDAY 10th NOVEMBER 2023

I want to eventually come home to live with my Mum in the Annex through the Court of Protection.

I miss my Mum greatly and want to go home to her.”

Rachel – HCA Castle Ward PHU, Lincoln County Hospital Wish not allowed“.

28.09.2021                     19.21              –        I should not have been sectioned as I am a vulnerable person.  I have got the paperwork to appeal”

08.10.2021                     20.45                          –           “Can’t wait to come home

22.10.2021                     21.34                          –           “I’m very unwell physically”

23.10.2021                                                         –           “I won’t get better”  

23.10.2021                     11.46              –                       “The consultant was very subtle when talking but vicious   –  He decided to put me on depot injections. 

                                                                                       I am hurting in my arms”.

27.10.2021                     23.51              –                       “I am suffering from an unknown illness which is making me tired”

30.10.2021                     09.28              –                       Shared S3 Detention papers under Dr Ismail on 30.10.2021 at 09.28”

27.11.2021                     16.21              –                       “I’m in trouble with this autism.  Try not to worr at this stage”

28.11.2021                     12.46                          –           “I’m now left mentally scarred by dreadful treatment.  I’m  not able to cope any more”

28.11.2021                     14.29              –                       “I can hardly walk coz i’m frightened of the floor.  Can you send me my walking sticks” 

28.11.2021                     18.18                          –           “I want to die”

30.11.2021                     18.53              –                       “I’m in the wars with this autism”

04.12.2021                     17.43              –                       “I don’t care any more these staff are abusive to me”.

05.12.2021                     12.26              –                       “They have been very unfair to me and do not understand where I’m coming from”

06.12.2021                     19.15              –                       “Caged van is not suitable for a patient like me.”

06.12.2021                     20.56                          –           “It’s really unnecessary to have held me for such a long time.”

06.12.2021                      22.54                         –           “so they believe I’m German”

07.12.2021                     15.51                          –           “I’m only able to talk to a female doctor”

07.12.2021                                                         –           “Look Mum they shd not be suggesting things me wait until I’ve had a diagnosis for autism.”

15.12.2021                                                         –           “Hi Mum I’m allowed home in few days”.

21.12.2021                     20.40              –                       “My medication is causing bad side effects shaking in hands.”

22.12.2021                                                         –           “they really think the drugs work”  “its weird I swear I have seen Dr Shapasandy before once on a video call.

22.12.2021                     12.25              –                       “Last night I was very ill with the drugs, they are toxic.  I need a toxicology test.

27.12.2021                     21.43                          –           refers to pain in her back with the injection.

28.12.2021                                                         –           “You’ve got to get me outta here.  One nurse that I know said don’t struggle on your own like I need any help from these people.”

28.12.2021                     15.08                          –           “Look this is no joke I’ve got to decide tomorrow what to do whether I want to go to a specialist autism home”

28.12.2021                                                         –           “Georgi was saying that they are here to help but look what a state I’m in for trusting these sick people.   Can you phone me pl.”

04.01.2022                     11.47                          –           “Hello the plan is for me to be discharged 1st week Feb to be discharged to my place of choice.

06.01.22                          10.24              –                       “Hi Mum isn’t there a way I could stay in the chalet while your busy building”

07.01.22                                                              –           “hello I’m in a lot of trouble these are very nasty people”

07.01.22                                                              –           “Because they are not letting me go at the moment.  There is a problem.  I should not have been detained.”

07.01.22                                                                          “Mum you need to listen and listen well my health is declining.  I am becoming a vegetable because of the drugs.  The doctor was   trying to say they are doing this in my best interests but they are forgetting one thing I do not wish to be well.”

14.01.2022          14.01          –                                                     “I spoke with CQC” and attached a letter from Ringrose Law where it was tribunal on 30 December application had been withdrawn.  That was the day of my return to Ash Villa after a successful Xmas break.

15.01.2022                     20.46              –                       “I’m starving hungry and staff just left me”.

16.01.2022                     18.04                          –           “Im currently stuck in Ash Villa.  I don’t belong here.”

16.01.2022                                                         –           “Look my body has given up in here”

16.01.2022                                                         –           “I feel trapped here”

17.01.2022                     10.15              –                       “Hi Mum I’m shaking in agony my bones hurt”.

19.01.2022         02.36          –                                                             “ I have been trapped in my head for many  days now locked up in a mental asylum notice I use the word asylum because it best describes this place Ash Villa which I was told was a nice place yet to be desired!

20.01.2022                   17.38              –                       “I am also developmental autistic”

25.01.2022                   15.45              –                       “Hi you can come up tomorrow but be aware of covid bring the things.”

15.53               –           “There is only one case of covid”

02.02.2022                                        –                       “They are not treating patients well in this hospital”

06.02.2022   19.30                          –                       “Hi Mum I’m in some trouble down here with the section but we have got a tribunal coming up so hopefully that will                                                                                                  shed some light on this whole mess that’s been created by the mental health.”

07.02.2022                                        –                       “Its a long old stretch till the end of February but I hope ur ready to pick me up and we’ll go for a nice McDonalds meal e

                                                                                     But I’ll give you my coke so I don’t spill it”.

09.02.2022                                        –                       “Some idiot said to me I need to get a bit better before I come home.  Dont know what they are talking about.”

11.02.2022     01.04                          –                       (Day before my Birthday)  “I cant wait for the choc cake sounds del”

22.02.22                                                         –           “Mum the Drs have been asking to do an ecg on me trace of the heart and I had to go with the physical nurse to do one.”

27.02.2022    17.41                          –                       “Make sure you send that Ombudsman paper off to the right place”   (in relation to complaint on former area who refused to pass over                                                                                                the “care to be transferred)

28.02.2022                                        –                       “They are being nasty – I dare you to come to the hospital and demand my release”

02.03.2022    16.35                          –                       “Im not happy in here.”

07.03.2022                                                    –           “I refused the lying down MRI scan.

 10.03.2022                                        –                       “I would like to come to church”

15.03.2022        03.55                           –                 “The situation re MH gets weirder as the day goes past – they’re  ob lying and trying to hold me against my will here.  It’s

so very terrible”

22.03.2022  15.55                          –           “My hearing has been adjourned”  I did get changed to go in.   “Did they not let you in to your tribunal?”  “Yes”     The hearing has bn adjourned                                                                                               

            24.03.2022    19.52              –                       “There is a conflict of interest with the staff here at Ash Villa they seem to think they are doing the right thing.  I’ve never seen something so absurd”                                                                                  

28.03.2022                                        –           “Listen to me I am at breaking point.”

11.04.2022     10.19              –                       “The doctor has checked me.  I have muscle weakness in whole body”

21.04.2022    19.39                          –           “I have spoken to the doctor from tribunal.”

22.04.2022    11.18                          –           “I’m not going in the tribunal”  

27.04.2022    16.29              –                       “Im on haloperidol, lorazepam, Clopixol. The Dr says I’m subject to a manager’s hearing I bet they are in the wrong.”

08.05.2022                21.31              –           “I’m not doing too well.  Why do the MH keep trying to make me well.  They are stupid.”

            08.05.22                     21.39                          – I think things should go to the High Ct.

09.05.2022    01.15                          –           “I want ***** to help re the high court but how long is that gon take.

24.05.2022                09.54              –           “The Manager’s Hearing will take place at quarter to eleven.

24.05.2022                22.07              –           They have put me on 400mg

24.05.2022                10.25              –           “I’ve asked them to send you a link but when I asked they said you were not invited but I have told them I want you to attend”

            24.05.2022                10.48              –           I was not aware that G had done a capacity ass.

            24.05.2022                11.05              –          I’ve just bn in to the hearing looks OK so far but I’m waiting for the final decision at the end.

24.05.2022    17.49              –                       “They have increased my medication.”   “They have put me on 400mg weekly +10mg  “Nothing else discussed.

            25.05.2022    18.04                          –           “The Dr is being unreasonable”

            26.05.2022    00.22              –                       “I had a crow come to the window to eat birdseed this morning at 7.00.  Unfortunately I think the feeder was too high.

            14.06.2022                22.36              –           “Hi mum thanks for the gifts yes I wd love to see you on Wednesday.

17.10.2022                18.43              –           “Jand Jput me in seclusion last night and injected me twice”  (Text)

                                                                               “What did you do to be put in seclusion?”  (T (SB)   17.10

                                                                                      Nothing”  17.10.

28.07.2022                21.41              –           “Can you come with me to Yorkshire wildlife park”.      

            21.10.2022                20.30              –           “There is a meeting with everyone coming up next week.  I believe they will discuss whether or not I come bk home for Xmas.”

 20.59              – “without warning I was pushed against the wall to be given an injection one lower one higher.

14.10.2022         09.59          –                                                            “It would be nice to get a response from my text about getting groceries for Ash villa a delivery.”                      

24.10.2022         20.49                                                                     S kept coming to my room to administer medication in depot form on three occasions

21.02 25            21.01                                                                                                      

                               

            26.10.                         13.30              –                       Hi  I’ve just witnessed a patient refusing the depot and being set upon by staff”

28.10.22                     13.36              –                       “Hi my medication is current at 300mg then going up to 600mg.   Sophie told me.  She works in the medication room.”   

28.10.22                                                                                 –           Sophie advised hat there were concerns about the lumps on my body following the weekly depot injections.

28.10.22                     22.44              –                       “the lumps are from the depot I had last week”.   

                                                            22.45                          (referring to my meeting arranged for next Tuesday) “I hope that meeting is to discuss Xmas leave”

02.11.2022                 15.38        –                 “Hi mum just got bk from trip to Ruskington garden centre.  I had a lovely time. 

 I looked at some Christmas decorations.  Had a coffee and food in the coffee shop.  I bought you a little gift in the shop for Xmas.”

                                                            20.38                          –           “No donkeys at Ruskington I thoroughly enjoyed the coffee I really enjoyed the Indian meal and I shared it.                                                                   With three friends”

03.11.2022                 16.36              –                       “Hi so I have bn granted leave to go out with you in the grounds by ourselves”.

03.11.2022                 22.46              –                       “it looks like I will hear something about Xmas leave tomorrow as I have ward round.  Thanks for responding quickly I 

                                                                                     will look forward to hearing your new response to my newest message ie “it looks like i will hear”.

            04.11.2022                14.02              –                       “I have had ward round.  An advocate was present via videolink”

05.11.2022                 02.29             –                       “They said I can come home but I don’t know when.  Enough is enough so ask next time because u wanna do a Xmas shop”

18.29          –                                        “cant wait to come home.  Do you wanna go to Lidle or somewhere to do some Xmas shopping.  Make sure you ask for this coz I might be all out earlier.    Can I see you on Tuesday?

06.11.2022                                                                                         –                       L “I am going to Macdonalds tomorrow.  Please could you bring me some money for my hair as we are gonna book a hair app.”

            11.11.2022                 09.54              –                       “When are you com take me for xmas”

                                                            09.55              –           “I’m still stuck here in the ward.”

           

                                                                                             

15.11.2022  –          21.20                                                 “Ive not been very well at all.”

16.11.2022  –          22.15                                                 “I have no water”

Does the above messages sound to you that Elizabeth has no capacity or rather that she has been written off by so many “professionals” and medication raised to sky high levels whilst at Ash Villa no doubt to achieve their goal of “no capacity” for the purpose of producing assessments to get rid of me as Nearest Relative in County Court but these did not tie in with the CoP assessments as during this time I was put under investigation by the Public Guardian Office whilst the team tried to take away the POA for Health & Welfare.

So we have had almost three years of absolute hell since moving to Lincolnshire and I would describe out experience as “hell on earth” – these are the words that Elizabeth has chosen to describe the facilities she has been sent to by Lincolnshire Partnership Trust (5 of them) and 10 doctors. All that was ever needed was a continuation of care but no-one will take any kind of responsibility. There was no need to section her. They have deprived her of all her physical health appointments and only backed down on Neurologist because of the seizures that started at Ash Villa never experienced before. I have also noticed that Elizabeth’s right hand was constantly shaking.

What they are doing is so very wrong giving constant Lorazepam injections after each seizure. They have also allowed her to go without eating in two hospitals under their care both of which resulted in complaints.

When I came to this area I did not wish to complain or fight but it soon became clear that it was never their intention to want to work together with me as a mother or the family. The main goal was to take the POA for health and welfare which they did not succeed in doing and then to take away the role of NR only for me to become NR again to someone else. This makes a mockery of the law doesnt it.

What would make things right now would be a few days booked on a neurological ward to allow her to have full pathological tests but this is not being granted.

Overview

It has long been recognised that the Deprivation of Liberty Safeguards (DoLS) are not ‘fit for purpose’ and, despite the law introducing the Liberty Protection Safeguards (LPS) being passed in 2019 (The Mental Capacity Amendment Act 2019), after a number of ‘false starts’, it was announced in April 2023 that LPS would not be progressed during the current Parliament. So where does that leave us?

In this briefing, we highlight the implications of the delay and what health and social care providers can do next.

Where are we now?

Unfortunately, it appears that we have become accustomed to unlawful deprivations of liberty, which in some circumstances seem to have become almost routine. Key gaps with the current process were highlighted by the CQC’s 2022/23 State of Care report.

Current issues include:

Only 19% of DoLS authorisations are obtained within the 21 day period (average national time for completing authorisations is 156 days)
Major delays for processing of ‘community DoLS’ authorisations by the Court of Protection
Ongoing issues where 16/17 year olds require deprivations which can only be authorised by the Court of Protection
It is important to remember the impact of unauthorised deprivations of liberty, as highlighted in the CQC report, including:

People being unnecessarily deprived of their liberty or with excessively restrictive care plans

Challenges for care providers in keeping people safe without authorisations in place
Limited ability to challenge any care plan without an authorisation being in place (so a funded s.21A challenge can be brought)

Increased delays in emergency departments leading to more unauthorised deprivations of liberty
Of course, the challenges in authorising deprivations of liberty are no defence to any claim for unlawful deprivation nor an answer to complaints and challenges from the regulators or the Ombudsman.

Next steps

Ultimately, fundamental resource/legislative changes are required. However, there are still steps that providers can now take to minimise the impact:

  1. Knowledge and application of MCA back-to-basics

The CQC report highlights a number of basic failings in the understanding/application of the Mental Capacity Act, which could be addressed now, putting organisations in a much stronger position pending any future changes.

  1. MCA/MHA interface

Whilst the interface between the Mental Capacity Act and the Mental Health Act can be very complex, the majority of the time the legal position is (or should be) clear. There should again be a focus on improving staff knowledge and confidence in dealing with the ‘basics’.

In hospital settings, there needs to be a reconsideration of how to choose between the Mental Health Act and DoLS, when in reality DoLS is simply not available.

3. Deprivation of Liberty Safeguards basics

Where a DoLS authorisation is in place, organisations need to ensure that staff understand the legal effect of this. In particular, it is important to understand that a DoLS authorisation does not provide legal authority for any care/treatment and staff need to ensure that any conditions are met, reviews are triggered when required and further authorisations are requested as necessary.

  1. Discussions with the supervisory bodies

Pending legal change, organisations should consider discussions with the relevant supervisory body/bodies in order to formulate a plan to address any backlog or other particular organisational issues.

  1. Community deprivation of liberty issues

Care needs to be taken not to be pressured into ‘misusing’ community Mental Health Act provisions.

D A C Beachcroft

*************************************************************************************************

Use of conditions in deprivation of liberty safeguard authorisations

06 April 2023

Richard Griffith

The deprivation of liberty safeguards were introduced into the Mental Capacity Act 2005 schedule A1 following the decision of the European Court of Human Rights in HL v United Kingdom (45508/99) (2005). The safeguards can be used to authorise the deprivation of liberty of an adult in a care home or hospital where this is necessary to protect the person from harm and is proportionate to the risk and seriousness of that harm, as set out in the Mental Capacity Act 2005, schedule A1 paragraph 16.

Protecting dignity and autonomy

To protect the dignity of patients by ensuring that restrictions imposed to protect that person and not overly intrusive, best interests assessors are commissioned to review the restrictions and satisfy themselves that the protective measures in place are necessary and proportionate. Restrictions that disproportionately interfere with the autonomy of the person will be unlawful. In Re MK[2014] the Court of Protection held that the removal of a woman with severe learning disabilities from her family was a deprivation of liberty that was disproportionate and unnecessary. The woman was not at risk, her wishes and feeling were to be at home with her family and the standard of her day-to-day care had been good. The woman had been unlawfully deprived of her liberty and unlawfully denied contact with her family. Both were unjustifiable interferences with her human rights under article 5 and 8 of the European Convention on Human Rights (ECHR) (Council of Europe, 1950).

Using conditions to ensure necessary and proportionate restrictions

Local authorities and health boards, in their role as supervisory bodies, are tasked with sanctioning a deprivation of liberty standard authorisation under the safeguards (Mental Capacity Act 2005, schedule A1 paragraph 50). To ensure that hospitals only impose proportionate restriction that are necessary to protect the person from harm, the supervisory body can make the authorisation subject to conditions that are legally binding on the hospital. The supervisory body will consider the recommendations of the best interests assessor when deciding if an authorisation should be subject to conditions (Mental Capacity Act 2005, schedule A1 paragraph 53).

In Re G [2016] the court considered the case of a woman, aged 92, who had dementia and lacked capacity. Her care plan involved the administration of medication covertly. No conditions had been placed on the authorisation of her deprivation of liberty. The court found that the use of covert medication had not been subject to proper safeguards; the decision to administer medication covertly did not appear to have been communicated to the supervisory body. The court issued guidance that best interests assessors and supervisory bodies should place conditions on the authorisation to ensure that covert administration was regularly kept under review and that it continued to be a necessary and proportionate response to the needs of the person.

Recommending conditions

The code of practice for the deprivation of liberty safeguards (Ministry of Justice, 2008) highlights that attaching conditions to a deprivation of liberty standard authorisation should relate to the restrictions and should not be used as a substitute for a properly constructed care plan. As the conditions in a deprivation of liberty authorisation are binding on the hospital it is good practice for the best interests assessor to discuss proposals for conditions with the staff caring for the protected person (Ministry of Justice, 2008: paragraph 4.75).

To ensure that conditions are appropriate to the protected person they must (Welsh Assembly Government, 2009):

  • Be relevant to the role of the managing authority
  • Relate directly and specifically to the deprivation of liberty, and
  • Should not be general in nature, or
  • Be a lever to improve the overall care plan.

To ensure that those requirements are met best interests assessors and supervisory bodies are required to subject any proposed conditions to a ‘but for’ test. That is, would the conditions be needed ‘but for’ the protected person being deprived of their liberty. A valid condition would be one that meets that test, it is needed only because the person is being deprived of their liberty.

Purpose of conditions

The code of practice to the deprivation of liberty safeguards (Ministry of Justice, 2008) suggest that conditions might be used to:

  • Ensure the deprivation of liberty is secured
  • Limit the restrictions that amount to a deprivation of liberty
  • Work towards ending the deprivation of liberty.

Ensuring the deprivation of liberty is secured

The code of practice (Ministry of Justice, 2008) suggests that conditions could be imposed on a deprivation of liberty authorisation to ensure that the deprivation of liberty is secured. This might arise where it is necessary to ensure that the person will not leave the hospital. In A local authority v D [2013] a woman with Huntington’s disease was prevented from returning home to her husband following a period of respite care. The husband was also denied access to his wife to secure the deprivation of liberty by preventing him from taking his wife home.

Although conditions can be used to immediately secure a deprivation of liberty, the use of conditions for such purposes must only be for a short period. A deprivation of liberty safeguard authorisation cannot generally be used to authorise limited or no contact with the protected person. ‘No contact’ issues can only be authorised by the Court of Protection. The code of practice to the deprivation of liberty safeguards stresses that it must be for the Court of Protection to make decisions when contact between family members or close friends is being restricted. The deprivation of liberty safeguards cannot be relied on to manage no-contact cases.

In A local authority v D [2013] the Court of Protection held that the delay of some 3 months between the initial authorisation of the deprivation of liberty and bringing the case before the court was a breach of the couple’s right to respect for a family life under article 8 of the ECHR (Council of Europe, 1950) and an unlawful deprivation of liberty contrary to article 5 of the ECHR. Damages were awarded to both the husband and wife for these breaches.

Limiting the deprivation as much as possible

This purpose allows best interests assessors and supervisory bodies to impose conditions where they are satisfied that the restrictions being imposed are disproportionate to the risk of harm. The conditions can be used to ensure that the protected person continues to enjoy access to fresh air or meaningful activities, or to maintain social contacts.

Working towards or bringing about an end to the deprivation

Supervisory bodies can use conditions for this purpose to ensure the person’s timely and appropriate discharge from hospital. The conditions might require assessment to facilitate discharge to be completed within a given time frame. This might include obtaining a occupational therapy home visit assessment report or a physiotherapy report.

Conditions are binding on managing authorities

The Mental Capacity Act 2005, schedule A1 paragraph 53(3) states that:

‘The managing authority of the relevant hospital must ensure that any conditions are complied with.’

The Mental Capacity Act 2005 schedule A1 paragraph 4(3) also states that:

‘In a case where an authorisation is in force, a person is not authorised to do anything which does not comply with the conditions (if any) included in the authorisation.’

The Local Government and Social Care Ombudsman found that Barchester Healthcare had failed to fulfil the conditions attached to a man’s deprivation of liberty authorisation that related to the provision of meaningful activities and his interaction with a fellow resident. The man’s wife felt compelled to find her husband a different care provider due to these failures. Barchester Healthcare offered a £5000 payment in recognition of their shortcomings relating to the authorisation conditions, which the ombudsman found to be appropriate in the circumstances (Peart, 2020).

Changing or removing conditions

The only lawful way for a hospital to vary a condition attached to a deprivation of liberty authorisation is to seek a review of the best interests requirement under part 8 of schedule A1 of the Mental Capacity Act 2005. Varying in this context includes amending, adding to or omitting conditions. Where a request for a review is received then the supervisory body will commission a best interests assessor to reassess the protected person’s best interests and make recommendations as to whether the supervisory body should vary the conditions.

Enforcement of conditions

In Re W [2016] the Court of Protection held that it was for the supervisory authority that had granted a standard authorisation, under the Mental Capacity Act 2005, to deprive a person of their liberty that was responsible for monitoring compliance with the conditions it had imposed. The frequency of such monitoring depended upon the circumstances of the case rather than there being any need to fix a period that would be applicable to all authorisation cases.

Conclusion

Under the deprivation of liberty safeguards, local authorities and health boards, in their role as supervisory bodies, can attach conditions to a deprivation of liberty authorisation to ensure that the restrictions imposed on the protected person are necessary and proportionate to the risk of harm the person faces. Conditions are binding on the hospital where the person is being deprived of their liberty and it would be unlawful not to implement the conditions attached to an authorisation of a deprivation of liberty. It is the duty of supervisory bodies to ensure the conditions they attach to authorisation are implemented by the hospital through regular review and monitoring.

Key points

  • A supervisory body can make the authorisation of a deprivation of liberty subject to conditions that are legally binding on the hospital
  • Conditions attached to a deprivation of liberty standard authorisation must relate to the restrictions and should not be used as a substitute for a properly constructed care plan
  • Conditions must meet the ‘but for’ test to be valid
  • Conditions are binding on the hospital where the person is deprived of their liberty

Elizabeth has been held for 2.5 years now in the most restrictive manner by two hospitals namely Ash Villa and Castle Ward run by Lincolnshire Partnership Trust. She is held under the MHA just like a restricted prisoner. Phone held in the locker – only supervised calls and restricted visiting.

I do not think it is at all lawful what Lincolnshire Partnership Trust are doing.

Also they cancelled all her physical health appointments when I moved as being “unnecessary” when the former area had started to take her health seriously.

Apparently Elizabeth has been told “you wont be here much longer as you will be going into supported housing”.

Nobody in the family has been told anything about this but i have heard directly from Elizabeth so the fact she was able to relay this conversation to me and an assessment carried out a while back she did not wish to join in for a care home in West Sussex is most disturbing.

Elizabeth was told to pick on a map where she wanted to live. Well my question to LPFT is how on earth do you expect my daughter to choose where she wants to live according to your disgraceful plans when she has been held a prisoner for so long and has not even seen anything of this area.

The area itself is very nice however I cannot say that for the NHS or the way we have been treated in a new area by the Council.

Wishing all my readers a Happy New Year. 

I can only hope 2024 will be better than the last.

Xmas was the worst I have known for a long time.  Elizabeth was not allowed home and wanted to see her cat but this was not allowed not even for one day. She is still held under heavy restrictions by Lincolnshire Partnership Trust on a never-ending section with phone taken away.  The phone restriction has been going on for some time along with visiting restrictions said to be an MDT decision but we know that this is not the case. Restrictions commenced every two weeks, then a further two weeks and then increased to every four weeks up until 26 January. Even more restrictions seem now to be in place because when I have phoned following New Year since I had not spoken to Elizabeth for some time, several staff appeared reluctant to even hand the phone to her. The Clinical Lead, ES, stated the phone would only be given if Elizabeth specifically asked for it, others said “I will see if she wants to speak to you”.   I know for a fact rest of family not treated the same but taking the phone away is very nasty and very restrictive and this is NHS not private sector care. Taking the phone away and locking it in the office or wherever makes it difficult for everyone in the family to keep in touch with Elizabeth who is cut off from the outside world and held a virtual prisoner after 2.5 years. It is not easy to get through to the ward. This is cruelty and I see it as punishment no doubt aimed at me but inflicting upon Elizabeth.  Also, Elizabeth is deprived of playing her music on her phone and seeing pictures of her cat who she misses so much. She no longer has a life and neither do I, our lives ruined by the decision I made to move to what we thought was a lovely area.  I have made a huge mistake moving here as although the immediate area is lovely I had not bargained for how ruthless the NHS is under MH care or the fact provision in the community is poor. Having said that, there is so much going on in the local area, things that Elizabeth would enjoy but instead she is locked up by a group of strangers(MDT) who think they know best and could not care less about the impact their punishment is having on the family, even those who are not under restriction are affected by taking the phone away yet there is no consideration whatsoever towards anyone. It is also forgotten about values, medical ethics and duty of care according to their individual Code of Conduct. They are in fact acting ultra vires by depriving s17 ground leave to the shop as a means of punishment for instance as instructed.

Xmas Eve, rest of family visited and reported Elizabeth “not so good”.

Xmas Day could not relax, cook a nice dinner or have people over this year.  I had just 45 minutes with a member of staff supervising in the small visitor’s room.   Elizabeth was OK at first but when the second member of staff took over she became upset by this person then a group gathered outside the visitor’s room and I was told to leave.  I had heard through Elizabeth that she had a reduction in her medication and I wanted to know what reduction she had and it was very upsetting that so many staff outside grabbed hold of her and that is when she tried to defend herself but so many of them involved and all she did was shout at them. Police were called to the ward yet again by staff told to report concerns yet these concerns were nothing like I was accused of.   It is alarming how many times Police have been called, as if they do not have enough to do for no reason.  Always there has been nothing to report and no evidence whatsoever recorded on CCTV, only members of staff who are told to report adversely so as to make me out to be someone who is hostile, aggressive, etc.  I now do not ever visit alone as I feel I am up against so many who are against me.  So Xmas was awful.  I had no idea Police had been called after I had left the premises that day.    The first I knew about this was on the 28th December at on line ward round.  I was told I was banned indefinitely by the RC for inciting Elizabeth to attack staff which was totally untrue.    I have since received another unsigned letter from the MHA legal office stating the ban is four weeks until 26 January. They are not following NHS Guidelines and have no regard to the latest Government paper on hospital/care home visits or Code of Conduct of the MHA. It seems like a never-ending ban just like Elizabeth’s never-ending section – an imprisonment for life by LPFT. I have just been told I must no longer contact the carers champion.  I must only write to one designated email address.   Since moving, I have had no carer’s assessment and was actually told previously I was not entitled to this.

Most disturbingly of all, the Neurologist appointment on the 3 January was not attended by Elizabeth and when I questioned why, I was told by ES, Clinical Lead that nothing was in the diary and no one knew anything about it.  Again this is totally untrue.  It is obvious LPFT did not want her to either have an MRI scan all along or see a Neurologist or Endocrinologist in the first instance. It seems the most important thing is the drugs they force and the law they twist to suit themselves re MHA and MCA.  All her physical health appointments were cancelled as unnecessary upon our move.   I am also banned from taking Elizabeth to any physical health appointments.   Our treatment has been even more appalling than the former area and I thought that was bad.

There does not seem to be any regard for human rights or Codes of Conduct/Guidelines.

For anyone else going through hell as we are I am going to share with you some points of law as what I am seeing is a whole group of professionals sticking together, totally disregarding their own code of conduct and ignoring the law. There seems to be no accountability.  Some of these professionals are responsible for health and wellfare of the most vulnerable patients but what has happened is several have acted ultra vires relying on colleagues and MDT backing, going along with what they are instructed to do regardless of what is correct and according to law and medical ethics and they are in breach of their own code of conduct.  Already restrictively detained under s3 MHA , Elizabeth is excessively deprived of any kind of liberty whatsoever, treated like a object not a person. It should be the least restrictive care under MHA but under LPFT, detention is more like what you would expect a restricted prisoner to have and no one seems to care less or to give a thought as to how they would feel if they were treated in this most degrading and undignified manner as Elizabeth is:

“It is no longer adequate for a medical practitioner to invoke the opinions of colleagues as authority for a decision. That mechanism known from the case of Bolam v. Friern Hospital Committee [1957] WLR 582

There is very strict policy as regards takeaways and Elizabeth loves Saturdays on the ward when patients are allowed to order a takeaway.  Whilst I would agree that takeaways are not good on a daily basis, there have been occasions where Elizabeth has been so tired she has missed all her meals and been in bed most of the day.  This is because of the huge amount of drugs prescribed have taken away every bit of quality of life leaving her with no energy and nothing but tiredness. I have drawn to attention of staff that missing meals is very bad and can affect behaviour but any sign of hostility is met with punishment and deprival of ground leave like one nurse did.  Even though she was instructed, she still went along with it and this is surely not part of her role to dish out punishment, therefore she is acting ultra vires.  On another occasion when without warning I was banned we thought we were going to the Carlton Shopping Centre but this was cancelled on the spur of the moment without warning by the RC of Castle Ward and Elizabeth was visibly upset. I had promised a meal for her and brought food to the ward and was told by a nurse that it was not permitted and to take that away along with gifts a friend brought.  It was totally undignified as Elizabeth was looking through a slit in the glass door and could see we had arrived and we were told to leave the premises and that it was an Executive decision.  I was told to get away from the door by another nurse as it was upsetting to Elizabeth. Again acting upon orders by banning a visitor to see a vulnerable patient who was excited and expecting our visit in her non existent life and these nurses stood in the way in the course of doing their job yet they acted ultra vires. It is not part of their job to ban visitors and then say it is an MDT or an Executive Decision not theirs when in fact they are the ones acting against their own Code of Conduct and even Trust Policy states about dignified care. Their actions along with the other nurse was totally undignified and degrading.

DENYING FOOD PARCELS AND TO ORDER FOOD FROM OUTSIDE 

L v Board of State Hospital [2011] CSOH 21; 2011 SLT 233

The hospital had been ultra vires in denying patients the right to have food parcels and to order food from outside.

Whilst I agree ordering of takeaways every single day is not good or healthy but neither is missing meal times and there should always be exceptions but such is the environment, more restrictive than any prison this verges on abuse.

House of Commons House of Lords

Joint Committee on Human Rights

Protecting human rights in care settings

Fourth Report of Session 2022–23

Report, together with formal minutes relating to the report

Ordered by the House of Commons to be printed 13 July 2022

Ordered by the House of Lords to be printed 13 July 2022

HC 216 HL Paper 51

Published on 22 July 2022

by authority of the House of Commons and the House of Lords

This is a very interesting paper to read.

Joint Committee on Human Rights

The Joint Committee on Human Rights is appointed by the House of Lords and the House of Commons to consider matters relating to human rights in the United Kingdom (but excluding consideration of individual cases); proposals for remedial orders, draft remedial orders and remedial orders.

The Joint Committee has a maximum of six Members appointed by each House, of whom the quorum for any formal proceedings is two from each House.

Current membership

House of Commons

Harriet Harman QC MP (Labour, Camberwell and Peckham) (Chair)

Joanna Cherry QC MP (Scottish National Party, Edinburgh South West)

Florence Eshalomi MP (Labour, Vauxhall)

Angela Richardson MP (Conservative, Guildford)

Dean Russell MP (Conservative, Watford)

David Simmonds MP (Conservative, Ruislip, Northwood and Pinner)

House of Lords

Baroness Chisholm of Owlpen (Conservative)

Lord Dubs (Labour)

Lord Henley (Conservative)

Baroness Ludford (Liberal Democrat)

Baroness Massey of Darwen (Labour)

Lord Singh of Wimbledon (Crossbench)

“We were also concerned to hear about ongoing issues with Deprivation of Liberty Safeguards (DoLS), the check that is put in place to ensure that detention in care settings is within the law and in line with the prohibition of torture and inhuman or degrading treatment under Article 3 ECHR, and the right to liberty and security, under Article 5 ECHR. There are often unacceptable delays in authorisation of DoLS and there is often no access to legal aid if care users wish to challenge their deprivation of liberty in court. Whilst the DoLS system is going to be replaced by a new Liberty Protection Safeguards System (LPS), there is no timetable for this to be rolled out. We ask that the Government must work with the regulator and all stakeholders to ensure that providers fully understand the functioning DoLS and comply with statutory requirements, and that access to legal aid for those who wish to challenge is widened. The Government should also set a timetable for rollout of the LPS system and keep us updated on progress.

We have reported before on the visiting arrangements for those in care settings during the pandemic. Evidence submitted to this inquiry showed that through and beyond the pandemic problems persisted with providers following guidance. We also believe a lesson learnt from the pandemic was the harm caused by blanket bans on visiting. We have called in the past for the Government to legislate and do so again here. The Government must introduce legislation to secure to care users the right to nominate one or more individuals to visit and to provide support or care in all circumstances, subject to the same infection prevention and control rules as care staff. The Government must also legislate to give the CQC the power to require care settings to inform them of any changes to their visiting status, and to report live data on levels of visiting and restrictions. The CQC must make compliance with visiting restrictions a key consideration when undertaking its regulatory and monitoring roles.

Under the HRA, public authorities must act compatibly with ECHR rights. Those providing care services in care settings, however, are not all public authorities. Unless care legislation, such as the Care Act 2014, contract law, or consumer standards provide equivalent protections, there is no way for privately funded individuals in private care settings to enforce human rights on the same basis as for those in publicly funded care settings. This can mean that two residents in the same care home might have different legally enforceable rights. We recommend that the Government should consult on extending the protections of the HRA to those receiving care and support from all regulated providers, and suggest a way this could be done through an amendment of the Care Act 2014.

When something goes wrong, the users of a service should have access to an effective complaints mechanism that is capable of investigating those complaints, and putting things right, in a way that is transparent, fair, and proportionate. However, the complaints system for care users is confusing, time consuming and too often does not result in effective resolution. The system needs to become easier to navigate. Care users must not be frightened of retribution if they complain. We recommend changes to streamline the process, with the roles of the CQC, the Local Government and Social Care Ombudsman (LGSCO), and the Parliamentary and Health Service Ombudsman (PHSO) clarified and with all three organisations operating a “no wrong door policy”.

The right to life (Article 2 ECHR, Article 10 CRPD).

Freedom from torture and inhuman or degrading treatment or punishment (Article 3 ECHR; Article 15 CRPD).

• The right to liberty and security (Article 5 ECHR; Article 14 CRPD).

• The right to family and private life (Article 8 ECHR; Articles 22 and 23 CRPD).

• Freedom from discrimination in the enjoyment of human rights (Article 14 ECHR; Article 5 CRPD).

• The right to the highest attainable standard of health (Article 12 International Covenant on Economic, Social and Cultural Rights (ICESCR); Article 25 CRPD).

ARTICLE 3 DEGRADING TREATMENT WHICH APPLIES TO ELIZABETH WHO IS HAVING FORCED INJECTIONS VIRTUALLY ON A DAILY BASIS.

ARTICLE 3 HRA

The failure to give her appropriate treatment for a condition she has been diagnosed as having creates a situation where she is subjected to inhumane and degrading treatment.  Elizabeth has complex PTSD which is totally ignored by LPFT along with her physical health.

Constant Restraint and frequent RT is in breach of Art 3.

Deprivation of family rights is a consequence of this.  They say she is dangerous but have done nothing to address that, apart from to subject her to close surveillance at all times.Elizabeth likes animals and adores her cat and pigeons. She is totally misunderstood by these professionals and I would say her treatment at times has been that of cruelty and abuse.  

This is in violation of her rights under Art.3 ECHR and represents inhumane and degrading treatment as in  Sławomir Musiał  v.Poland (2009) & Raffray Taddei v. France (2010)

 Incidentally the ECHR has ruled that whatever obstacles the patient may have put in front of the treatment team that did not dispense the state from its obligations to protect their human right to being protected from inhumane and degrading treatment, Claes v. Belgium (2013).  

Right to take legal proceedings, ECHR Article 5(4) Storck v. Germany (Application No 61603/00), 16 June 2005.

Article 5(3), which deals with the rights of a person who has been detained.

“Everyone arrested or detained in accordance with the provisions of paragraph 1(c) of this article shall be brought promptly before a judge or other officer authorised by law to exercise judicial power and shall be entitled to trial within a reasonable time or to release pending trial. . . .”

The difference between a right to “take proceedings” and a right to “be brought promptly before a [court]” must be deliberate. It stops short of requiring judicial authorisation in every case. 

It leaves to the person detained the choice of whether or not to put the matter before a court. MH (by her litigation friend, Official Solicitor) (FC) (Respondent) v. Secretary of State for the Department of Health (Appellant) and others.

DENYING VISITS IN HOSPITALS ETC

Visiting Report December 2023

https://www.gov.uk/government/consultations/visiting-in-care-homes-hospitals-and-hospices/outcome/government-response-to-the-consultation-on-visiting-in-care-homes-hospitals-and-hospices

DISCRIMINATION

Equality Act 2010: guidance – GOV.UK

https://www.gov.uk/guidance/equality-act-2010-guidance

Code of Conduct from the Nursing Midwifery Council and would comment on one or two points here:

1 Treat people as individuals and uphold their dignity To achieve this, you must:

1.1 treat people with kindness, respect and compassion

1.5 respect and uphold people’s human rights

3.4 act as an advocate for the vulnerable, challenging poor practice and discriminatory attitudes and behaviour relating to their care

4.4 tell colleagues, your manager and the person receiving care if you have a conscientious objection to a particular procedure and arrange for a suitably qualified colleague to take over responsibility for that person’s care

iv) A person is not to be treated as unable to make a decision merely because he or she makes a decision that is unwise (see Heart of England NHS Foundation Trust v JB [2014] EWHC 342 (COP)at [7]). The outcome of the decision made is not relevant to the question of whether the person taking the decision has capacity for the purposes of the Mental Capacity Act 2005 (see R v Cooper [2009] 1 WLR 1786at [13] and York City Council v C [2014] 2 WLR 1 at [53] and [54]);[2]

Masterman-Lister v Brutton & Co 2003

The leading case is Masterman-Lister v Brutton& Co [2003] 3 All ER 162 in which Lord Justice Chadwick stated at paragraph 75: the test to be applied….is whether the party to legal proceedings is capable of understanding, with the assistance of such proper explanation from legal advisors and experts in other disciplines as the case may require, the issues on which his consent or decision is likely to be necessary in the course of those proceedings. If he has capacity to understand that which he needs to understand in order to pursue or defend a claim, I can see no reason why the law – whether substantive or procedural – should require the imposition of … a litigation friend and at paragraph 79: a person should not be held unable to understand the information relevant to a decision if he can understand an explanation of that information in broad terms and simple language; and … he should not be regarded as unable to make a rational decision merely because the decision which he does in fact make is a decision which would not be made by a person of ordinary prudence. The Court of Appeal re-considered the Masterman-Lister test in Bailey v Warren [2006] EWCA Civ 51. At paragraph 126 of her judgment Lady Justice Arden concluded: The assessment of capacity to conduct proceedings depends to some extent on the nature of the proceedings in contemplation. I can only indicate some of the matters to be considered in accessing a client’s capacity. The client would need to understand how the proceedings were to be funded. He would need to know about the chances of not succeeding and about the risk of an adverse order as to costs. He would need to have capacity to make the sort of decisions that arise in litigation. Capacity to conduct such proceedings would include the capacity to give proper instructions for and to approve the particulars of claim, and to approve a compromise. For a client to have capacity to approve a compromise, he would need insight into the compromise, an ability to instruct his solicitors to advise him on it, and an understanding of their advice and an ability to weigh their advice Capacity to conduct proceedings was further considered by the Supreme Court in the post-MCA case of Dunhill v Burgin (Nos 1 and 2) [2014] UKSC 18. At paragraph 13 of her judgment Lady Hale noted: The general approach of the common law, now confirmed in the Mental Capacity Act 2005, is that capacity is to be judged in relation to the decision or activity in question and not globally. Hence it was concluded in Masterman-Lister that capacity for this purpose meant capacity to conduct the proceedings (which might be different from capacity to administer a large award resulting from the proceedings). This was also the test adopted by the majority of the Court of Appeal in Bailey v Warren[2006] EWCA Civ 51, [2006] CP Rep 26, where Arden LJ specifically related it to the capacity to commence the proceedings (para 112). It would have been open to the parties in this court to challenge

that test, based as it was mainly upon first instance decisions in relation to litigation and the general principle that capacity is issue specific, but neither has done so. In my view, the Court of Appeal reached the correct conclusion on this point in Masterman-Lister and there is no need for us to repeat the reasoning which is fully set out in the judgment of Chadwick LJ.

Subject: Guidelines on Restricting Hospital Visits

Visits from friends and relatives are considered crucial in the recovery and welfare of patients and research carried out on the severe restrictions imposed during the Covid pandemic indicates a clear detrimental effect on patients who missed visits from loved ones and friends. The impact on visitors has also resulted in an increased incidence of depression and anxiety being recorded. Elizabeth had once enjoyed my visits and especially on just one occasion the two hour leave unescorted at the Carlton Centre just around the corner from the hospital.  

Excluding or restricting visits should therefore be imposed only in exceptional circumstances where there are reasonable ground for believing that a visitor may have a detrimental effect on the patients therapy. I have been told I am indefinitely banned by the RC but in order to do that surely an application should have been made by LPFT to the Court of Protection to get rid of me for good.  What they are doing is very wrong.

A decision to exclude visitors on the grounds of his or her behaviour or propensities must be fully documented and explained to the patient and where possible the appropriate person concerned.  In the case of psychiatric patients the nearest relative should be informed of any visitor exclusions and supervision decision and if it is they who are excluded or supervised an explanation in writing is to be provided to them. Nothing has been done properly.  The nearest relative who I became nearest relative to has most certainly not been informed and no proper explanation has been given other than I am said by the RC to be a “bad influence”.  I am even said to be partly the cause of the episodes that look like fits but most of these have taken place when I have not been around.  The real reason is that they want to send her far away from home and family and cut contact altogether and they are doing this by isolating Elizabeth from her family already.

A visitor may be excluded or restricted to visits under supervision if the visit is considered to be anti-therapeutic (in the short or long term) to an extent that a discernible arrest of progress or even deterioration of the patient’s mental state is evident or can reasonably be anticipated if contact is not restricted.   It is the MDT of so many, none of whom take individual responsibility who do not want me to visit and why?    It has been said “why do you think Everyone ….……..   everyone agrees with his decision, everyone of practically 30 who are invited to MDT meetings agree and every one of them going along with EXECUTIVE decision made by one or two who do not want me on the premises because they do not want information shared. That is the real reason.

An impact assessment should be carried out in consultation with the patient to assess the impact of any denial or restriction of visits on the patient’s welfare.  Where a patient lacks capacity or is impaired as to their capacity an assessment by a suitably qualified best interests assessor should be carried out to assess any negative impact that denial or restriction of visits may have on the patient.   

Here is the impact these professionals are having on my daughter as stated on Xmas Day  “I no longer wish to live”.   This is the effect of the so called “care” by LPFT rated good by the CQC.   It is the worse experience we have ever encountered.

CLINICAL CARE LPFT TRUST POLICY DOCUMENT

8. Admission to Hospital/Keeping an individual in hospital

8.1 Policy Statement Care in a residential or hospital setting should be provided at the lowest level of security and restriction based on an individualised assessment of need, risk and capacity. Alternatives to residential or hospital care such as home treatment and crisis intervention should be considered as a less restrictive alternative to hospital admission where possible.

8.2 Consent to Admission to Hospital/Keeping Someone in Hospital If the individual has the capacity to decide whether to come into hospital or remain in hospital, then informed consent should be sought in all cases. This means that the individual is given information about the environment, routine and purpose of the inpatient setting / admission. If the individual does not consent, then consideration should be given to assessment and admission under the Mental Health Act (MHA) see MHA Policy 6a. If the individual does not have capacity to consent to hospital admission, then the MHA should be considered or the Mental Capacity Act (MCA) utilised as per Policy 6b. Any restrictions should have an accompanying care plan.

 Examples of restrictions include: • Ability to leave the ward (should remain on ward for first 24 hours minimum).

 • Contact with others

• Movements within ward

• Privacy

• Discharge

• Day to day activities

• Personal care

 If an individual lacks the capacity to consent to admission and the admission is completed using the best interest framework then this should be recorded as per policy 6b and an urgent authorisation for a Deprivation of Liberty should be submitted to the Supervisory Body as per the MCA Policy 6b.   After 2.5 years held like a restricted prisoner with no respect towards family with one goal and that is to send away – far away from home and family.  Best Interest is theirs not my daughter’s and every single capacity assessment is flawed.   “Go away my Mum is the NR”   “I am not going to engage”   –  It was their wish to get rid of me as NR only for me to become NR again lol!

Advocacy should be considered and advised to the patients / carers as appropriate upon admission and discharge.   

8.3 Consent to Admission for Under 16s’ (Also refer to Chapter 18 (18.3) of the clinical care policy)

Section 131A of the Mental Health Act (1983) requires hospital managers to ensure that patients age 18 or under are admitted to an environment suitable for their age (subject to their need). This duty applies to both detained and informal patients. It is not an absolute prohibition on the admission of such patients. If the young person is deemed competent (Gillick Competency or Fraser Guidelines) and consents to admission it can proceed. Parents and guardians should be kept informed (see chapter 13 of Clinical Care Policy).   Total breach of MHA and its Code of Conduct 11:14-11:16.

Where the young person objects to information being shared with a parent or guardian who has parental responsibility then further advice should be sought from the Trust’s safeguarding or legal team.   Elizabeth is sharing information such as the assessment that took place for a care home a very long distance away from home.

In cases of a dispute, priority should be given to the ‘parent’ with whom the young person lives or to the court involved. Advice should always be sought from the Trust’s legal team where there is dispute or a lack of clarity.     Nothing but court after court and investigation after investigation since I have moved.

Information should be provided to the patient and appropriate family/carers about visiting times, mealtimes, school hours etc.      Was told I could only visit evenings but Elizabeth told me other parents were visiting during the day.  Now I am completely banned.

8.7 Visitors to LPFT Premises LPFT considers the safety and dignity of all visitors to its premises as extremely important. The link below provides guidance and procedures regarding the management of all visitors to Trust premises and includes process for managing visits by children: Please refer to visitors process within safeguarding policy 11  What they have not done is offer any alternative.  If you ban someone from visiting there should be alternative arrangements

In November 2006 the Department of Health launched a ‘Dignity in Care’ campaign with an aim to put dignity and respect at the heart of care services, which extended into Mental health Services in 2007; and is now applicable in all health and social care settings. This campaign, led by the National Dignity Council, identified a 10 point Dignity Challenge to organisations which remains fully applicable today as follows:

1. A zero tolerance to all forms of abuse

2. Supporting people with the same respect you would want for yourself or a member of your family

3. Treat each person as an individual by offering a personalised service

4. Enable people to maintain the maximum possible level of independence, choice and control

5. Listen and support people to express their needs and wants

 6. Respect people’s right to privacy

7. Ensure people feel able to complain without fear of retribution

8. Engage with family members and carers as care partners

9. Assist people to maintain confidence and a positive

10. Act to alleviate people’s loneliness and isolation.

9.2 Purpose and scope of this policy 9.2.1 To provide clear information to workers, enabling them to provide care and treatment that respects and maintains patients (service users) rights to privacy and dignity.

9.4 Privacy and Dignity

9.4.1 Privacy refers to freedom from intrusion and relates to all information and practice that is personal or sensitive in nature to an individual.

9.4.2 Dignity refers to how people feel, think and behave in relation to the worth or value of themselves and others. To treat someone with dignity is to treat them as being of worth, in a way that is respectful of them as a valued individual. In care situations, dignity may be promoted or diminished by the physical environment, the organisational culture, by the attitudes and behaviour of the care team and others; and by the way in which activities are carried out. Dignity applies equally to those service users (patients) who have capacity and to those who lack capacity.

9.4.3 Maintaining a service user’s (patient’s) privacy, dignity and respect is central to the delivery of effective health and social care, working in partnership with service users (patients) and where appropriate their carers / families.

9.4.4 Since July 2016 all organisations that provide NHS care or adult social care are legally required to follow the Accessible Information Standard. Meeting the standard requires workers across the Trust to ensure people who have a disability, impairment or sensory loss are provided with information that they can easily read or understand with support, so they can communicate effectively with health and social care services.   Sensory issues in Elizabeth’s case who cannot stand crowds, noise and bright lights which makes the current environment totally and utterly unsuitable.  She would be better off in a care farm where there are animals, a natural environment but the MDT and commissioners do not see it that way.

9.4.5 The following are examples of how to maintain a service user’s (patient’s) privacy and dignity:

Always ask a service user (patient) which name or title they prefer to be addressed by; and ensure all staff respect the service user’s (patient’s) expressed wishes.

• Ensure the Accessible Information Standard is consistently applied so all patients (service users) and carers where appropriate, are able to effectively access Trust (LPFT) services.

• Ask a patient (service user) if they wish their carer to leave for specific conversations or procedures which may compromise their privacy or dignity.

• Maintain a patient’s privacy when asking or assisting them to dress or undress.

• Close curtains or screens in areas where patients are expected to undress.

• Close observation windows in bedroom doors unless they are being used for observation at that time.

• Obtain informed consent before undertaking examinations or treatments.

• Ensure privacy and confirm the boundaries of confidentiality when discussing any confidential and sensitive issues such as diagnosis, symptomatology, sexual orientation and gender identity.

 • Respect privacy and dignity at all times, such as during the delivery of personal care, when undertaking all observational duties, when entering treatment rooms, single sex rooms or bedroom areas, toilets and bathrooms.    And do not give prone restraint by several men!

• Always knock or make your entry clear through announcing entry and waiting for a reply before entering* (* except where there is a clinical or care rationale not to do so, which includes during night periods when service users (patients) are sleeping).

• Don’t discuss worker or patient personal information with co-workers whilst carrying out care or within hearing distance of service users (patients), carers and visitors.

Ensure a service user’s (patient) choice is adhered to in respect of the gender of the staff member carrying out intimate care, such as assisting with washing or undressing.

Ensure reasonable adjustments are made to support a service user (patient) to function at their highest level possible. This may include ensuring a service user (patient) receives timely assessments, such as by a Physiotherapist or Occupational Therapist, and that related prescribed care and / or equipment is provided in a timely manner.

9.9.1 Board of Directors The Board of Directors are responsible for the Trust having policies and procedures in place which meet national and local requirements and / or legislation in order to provide a service which is based on best practice. The lead Director responsible for this policy is the Director of Nursing and Quality   Quite frankly what is the point of a Policy when no one takes any notice of it.   LPFT would do well to consider OPEN DIALOGUE.

9.9.2 Divisional Managers, Quality Assurance Leads and Team Leaders for in-patient services Divisional Managers, Quality Assurance Leads and Team Leaders for in-patient services are responsible for:

• Monitoring compliance with this policy

 • Ensuring timely reporting of any non-compliance of this policy through the DATIX incident reporting system.

• Investigating any reported non-compliance with this policy

• Implementing any actions required following audits, incidents or patient / carer / worker feedback relating to Privacy, dignity and mixed sex accommodation. This may include individual worker development where there is evidence of failure in respect of related practice.

9.9.3 In-patient Ward / Unit Managers and their Deputies In-patient Ward / Unit Managers and their Deputies are responsible for:

• Ensuring workers are aware of this policy, its content, where to access it; and their individual related responsibilities.

 • Ensuring timely reporting of any non-compliance of this policy through the DATIX incident reporting system.

• Ensuring timely recording in the service user (patient) record of the date, time and reason for the breach occurring.

• Ensuring service user/s (patient/s) and their carers (where appropriate) receive an apology and an explanation of the reason for the breach.    

• Ensuring patient safety is maintained during the period of the breach.

• Ensuring risk assessment/s, care plan/s and observation level/s are closely monitored and reviewed during the period of the breach.

• Ensuring timely escalation within service management structure where support or resource is required to ensure patient safety during the period of the breach.

• Investigating any reported non-compliance with this policy, including taking corrective action to prevent any recurrence.

9.9.4 All workers All workers are responsible for:

 • Actively promoting the service user’s (patient’s) privacy and dignity at all times.

 • Ensuring that all service users (patients) are cared for with privacy, dignity, and in single sex accommodation (as defined within Section 8.5 of this policy). Page 28 of 642

 • Ensuring they are aware of their role to support privacy and dignity including when carrying out practice such as observational work.

• Timely reporting of any breaches of this policy, including those reported to them by service users (patients), carers or other workers through the DATIX incident reporting system.

Associated Documentation

 1. NHS 13-14 Standard Contract

2. PL/CNO/2010/3, Professional Letter, Department of Health

3. DSSA Principles, September 2009, Department of Health, Gateway Reference: 12610

4. DSSA in Mental Health and Learning Disabilities, December 2009, Department of Health, Gateway Reference: 12940 5. Assessment of Same Sex Accommodation. Brief Guide for Inspection Teams (CQC 2015). 6. Accessible Information Standard Specification (NHSE 2015).

Staff must be mindful of the impact of mental health conditions on the wider family and support network, not just identified carers and next of kin, ensuring that information is shared as appropriate and wider family members are given the opportunity to seek advice, information and express any concerns they may have. Although it is recognised that the sharing of information may sometimes be difficult, it is crucial to the ongoing wellbeing of both the service users and their carers.

Staff must acknowledge that the carer is frequently the person who knows the service user best, often having regular contact over many years throughout many changes in mental health well-being, social networks and professional support.  Not recognised one bit.

The carer is often the person who has to offer support during out-of-hours crises, which can be stressful. By involving the carer in the development of the care plan and crisis plan where appropriate, or ensuring they have a copy of it, the carer can feel supported in assisting the service user to follow it.

Some service users will have entitlement to Section 117 after-care. The elements of the care plan which are provided under this entitlement must be clearly and separately articulated (see Mental Health Act Policy 6a) Help and guidance on assessment and care planning processes can be obtained from the Team Coordinator – Assessment & Care Planning. Application of the Care Programme Approach – CPA Whilst the expression Care Programme Approach was first introduced in mental health services in 1991, since the publication of Refocusing the Care Programme Approach (DoH 2008) the term Care Programme Approach is now specifically used to describe the approach used in secondary mental health care to assess, plan, review and coordinate the range of treatment and support needs for people in contact with secondary mental health services who have complex characteristics as defined below. CPA care and support must be discussed and agreed with the service user and the practitioners involved in the care. Where there is disagreement within the Multi-Disciplinary Team about the level of support from CPA, advice should be sought from relevant clinical leads or managers within the service, such as the Team Leader, Divisional Manager, Quality Lead or Clinical Director. Where there is a disagreement that cannot be resolved, the service user can appeal against the decision

This may be the last blog for some time on my part. What I would like to see is choice and there is none. There is no care in the community and we live in a District where provision is poor although there is a wonderful charitable sector and a lovely community. This would have all benefitted Elizabeth greatly. Like so many other parents and carers I have turned to social media but now I can see I could be doing this for the rest of my life and getting nowhere whatsoever. I am now taking a different route as there is no more choice and also I am one of many affected. It is not right or fair for parents to have to fight fo their sons and daughter’s because of organisational abuse by powerful public bodies.

I am sad to say my daughter Elizabeth is back in hospital- a locked acute ward which is far from therapeutic.  She had previously been in Cygnet in Stevenage and came out completely unstable barely able to walk as they had doubled the amount of drugs given to 20mg just prior to release.  She was not very well and could not go out and she suffered a severe adverse reaction to the drug Aripiprazole.  I was not impressed as Cygnet Stevenage did not do an assessment of other diagnoses she is documented as having.  She is said to have Schizophrenia PTSD and  Aspergers and MH professionals she has been staying with over the past four months identified her as having a learning/developmental disability. According to Cygnet’s Code of Practice no decisions should be taken in the absence of the RC but this is what was happening and took place at Cygnet Stevenage as the RC was on long term leave.  It is shocking to see a young man has died in this hospital.

Right now Elizabeth is at Cygnet Beckton (the Flagship of all Cygnets) visited not so long ago by Princess Anne.  It is a distance from where we live and awkward to get to.  I am not happy she is there.  She is on Section 2 and I want everyone to know where she is, because I do not want her to get “lost” in the system and be drugged to the hilt as I know what goes on in these institutions.   I do appreciate in such an environment there is the need to sedate at times but hospitals such as these go overboard.  They ignore evidence that someone like Elizabeth cannot metabolise the drugs as per the P45O liver enzyme tests.  Physical health is not considered in comparison to introducing all these different drugs which do nothing to solve the real issues.   Anti-psychotics such as Abilify can actually cause aggression and anxiety.  Elizabeth has not got on with this drug at all but Cygnet have ignored my emails when I requested she be taken off Abilify and tried with a mood stabiliser which I am told has less side effects.  She has been on Haloperidal before and I have heard this is a dreadful drug.  She has also been put on Clonazepam – that is three drugs so far being given in less than a week.

THE RESPONSIBLE CLINICIAN IS DR OCHATA WHO IS ABSENT FOR TWO WEEKS AND NOW ABSENT FOR THREE SO I HAVE BEEN TOLD TONIGHT?

CODE OF PRACTICE:

Responsible Clinician has overall responsibility for care and treatment for service users .  being assessed and treated under the Mental Health Act.  These responsibilities include:

  • Making decisions about treatment
  • Reviewing detentions
  • Assessing whether the criteria for renewing detention are met
  • Granting leave of absence for detained patients
  • Barring the Nearest Relative from discharging patient in specific situations
  • The Power of discharge from detention:   Although the Responsible Clinician has overall responsibility decisions about the service users care and treatment are made in discussion with the multi-disciplinary team.  (In Guardianship cases the Responsible Clinician has overall responsibility decisions about the service users care and treatment are made in discussion with the multi-disciplinary team.  In Guardianship cases the Responsible Clinician provides the medical recommendation for someone to be received into Guardianship by the Local Authority (rather than the hospital managers for other detentions)  They are responsible for reviewing the Guardianship with the MDT and can discharge it if it is no longer required.)

So the RC (Dr Ochata) is away for three weeks.  (I was told two weeks originally).  There is supposed to be a replacement RC but no one seems to know who this is.   The Consultant Psychiatrist is called Dr William.  I just spoke to a Senior Nurse who could not give any further details and the Ward Service Manager is called Emmanuel Nwanonyiri.

So doctors have quite a position of power .    I am so concerned for my daughter’s wellbeing right now.

I am so pleased that I gave my daughter the chance of freedom to get away from everything and all the painful memories she has from the local area of Enfield.  The most terrible things have happened to her and under their “care” too.    I have accumulated good records of everything going right back.  However when you dare to challenge you get the backlash and there is much bullying going on I can assure you.   I have already documented what happened in the 2014 Court of Protection case.  I have nothing but respect for the Court of Protection who helped me with my father who had Alzheimers.  All that happened was because professionals in a position of power wished to get rid of me as mother/NR to force return Elizabeth back to a care home “Phoenix House” Stepping Stones in  Northampton commissioned by my local area of ENFIELD costing £70000 per year.  Not on a section or CTO I welcomed Elizabeth back to the family home and was allowed to keep her for two glorious years.  Prior to this was a case I had to take out “Deprival of Medication Community Care”  –  has anyone else been deprived drugs to force return her to care where she was not treated well –  she had no food at the weekend and it is documented in the files I have.  Expected to manage on £30 per week.  Who says there is only one Winterbourne.  Take a look at the treatment of vulnerable people throughout the country – how many more cases like this.

I wanted to give my daughter Elizabeth the opportunity of a lifetime:

She was invited to stay with MH professionals in a beautiful location in Scotland.  She was taken on holiday to Spain – Santander, Bilbao, Carcasonne, Marseille, Lyon, Aix en Provence, Caen and Paris World Hearing Voices Congress.  From there back to Glasgow and onto Dubai and Australia.    I tried to set her free from the abuse going on to MH patients in the UK – long term incarceration, drugging to the hilt – total lack of care in the community and where is the money going but to institutions run by Cygnet, Cambion and other private healthcare providers instead of to NHS who need to improve their services.  Vast sums of money are being spent in this way in the UK and patients are being overdrugged as I am documenting.

My daughter for once had the chance to work with professionals who truly cared.  These professionals did not drug to the hilt but worked on the underlying issues.

Yes they identified the problem and this is not mental illness.   Suddenly Elizabeth on a low dosage of drugs started to open up and speak about what happened to her back in 2010.   According to my records the investigation was not done properly and now I want it looked at again.

Elizabeth is prone to adverse reactions to psychiatric drugs.  She has only been in Cygnet Beckton since last week and already they have introduced Clonazepam, despite a severe adverse reaction they have continued to give the drug Aripiprazole which I have complained about to Otsuka and the Regulators.  Mind you, this drug is only licensed for Schizophrenia and Bi Polar and I have pointed out to Cygnet Beckton plenty of times that my daughter suffered abuse at Moti Villa Scheme in the Community situated along The Ridgeway, Enfield EN2   back in 2010.  There are many witnesses to this fact and what Cygnet are doing seem to be doing is drug my daughter but I informed them that she should NOT be drugged as should be re-investigated.  There are plenty of witnesses to this fact.  I wonder how much it cost per week to send someone to Cygnet.  I thought Enfield were struggling financially but it appears I am wrong if they can afford to pay for this.

All that is needed is to take Elizabeth off the Abilify and try her on say, a mood stabiliser – get her stabilised and released as soon as possible but it is very profitable to keep someone a long time in such hospitals especially if ENFIELD are willing to pay.  What they should be paying for is an improvement in community care and encouraging peop0le like Elizabeth to manage their own budget to provide their own carers in the community. It should not all be about control.

Elizabeth was doing so well with the private MH professionals and they had no problems with her – environment did the trick not drugs.   A beautiful and peaceful environment with animals, fresh food, fresh air, healthy relaxing lifestyle.  Unfortunately coming back to the local without support has resulted in deterioration and has brought back the most painful memories and flashbacks to 2010.   Elizabeth has PTSD – not schizophrenia.

What I would like to see is for her to be released from this prison-environment and settled elsewhere where she can start life afresh but with some support .  Things like Care Farms, Camphill Community Trust, supported living in a with just one or two people with daily activities or near to somewhere like care farms or Camphill Community Trust rather than somewhere full of drink/drug addicts.  When she returned from Australia Elizabeth wanted a job, was doing so well – it was astonishing what the right care could achieve but this needs to be ongoing.

II have seen a shocking case where someone has died in CYGNET recently.  I would like my daughter out of there as soon as possible because all I see is one drug after another that has already been tried before and has not worked.  What she needs is therapy -not drugs.   You cannot deal with trauma in this way.  They are not helping my daughter by drugging her up like they are doing.

I am going to contact  the Court tomorrow with my concerns.

Elizabeth has been through enough and should be treated in a more humane manner, not excessively drugged.

The environment where she currently is I do not feel is therapeutic as it is not peaceful and she is not allowed out to get fresh air.

If there was a support network in the local area then Elizabeth would not have deteriorated and she should have had psychotherapy.  She had art therapy.  She had the chance to do many things and conquer her fears.  All the drugs do is suppress memory and are no cure whatsoever but now we are all witness to what happened back in 2010.  Elizabeth is a victim.

I have seen a really nice hospital situated in York called The Retreat set in beautiful grounds.  This is the kind of place where Elizabeth could get the right kind of support for her trauma and then move on to say the Amitola Community .  Id really like to see her move on to something like Camphill Community Trust where she could develop skills and have some level of support but most of all I would like her to be referred to The Retreat to get the underlying trauma dealt with in a proper way and not just by drugs.

MESSAGE TO CYGNET BECKTON HOOPERS WARD –  My daughter cannot metabolise the drugs.  She has test results stating this fact by way of P450 liver enzyme tests.  Unless you intend to reassess her as she is multiply diagnosed then I do not think she is in the right place.  I would like to know who the acting RC is in the absence of Dr Okatcha.

MESSAGE TO ENFIELD SOCIAL SERVICES

You have made countless attempts to displace me as NR but I am more than happy for other family members to take over this role if only Elizabeth can move away from this area that contains very unhappy memories that only recently Elizabeth has revealed to us all.

All I want is for Elizabeth to move on with her life and judging by the files and what I have read maybe she could make a fresh start as environment counts.

 

 

 

 

 

 

I went to see a fabulous show last night connected to my younger daughter’s school and afterwards went to the fabulous restaurant called Jamie’s Italian. I have been thinking back to when Elizabeth wanted to be a chef and to when she visited the Restaurant 15 which I booked for her and her sister when it first opened and also

I remember back when Elizabeth was young and her only ambition was to be a chef. As a mother I thought this was great and she chose catering at school and college as subjects. She then went on to study catering – at the local college the tutor chose to send her to Finland and to this day she speaks of the most happy memories of this country where she said she would like to re-visit. It was not evident at this time that there was a problem with Elizabeth and I remember taking her out shopping to buy suitable clothes as she would be going out to a country that would be freezing in climate compared to here in the UK or so I thought. I have never visited Finland before but would like to as I have heard all about the fabulous care on offer in a place called Tornio. Anyway, Elizabeth had a great time in Finland and even made some friends there who I later invited to come and stay with me in the UK. I cannot believe that this happy time has since altered and that Elizabeth is now in a situation beyond my imagination as she had so much going for her back then.

How can someone who had ambitions and dreams to succeed like everyone else go downhill to the extent of ending up in the worse places and her personality changing beyond recognition? This I put down to the care in the UK. I never had a problem with Elizabeth and supported her ambitions to be a chef which I though was great. At the time of studying though something was wrong especially in the latter college – Elizabeth became withdrawn, she had become a vegetarian and then vegan – I did not think she was eating well. I did not think that her memory was good at this time. She was losing things and forgetting times of appointments. I have witnessed this kind of behaviour before with someone else in the family who was diagnosed with just mild depression. Such behaviour can be attributed with depression. At the time Elizabeth was doing too much – learning to drive, going to college on a demanding course, studying French – she had also become very interested in nutrition which I though was good. However Elizabeth was out a lot – she was hardly at home and at the time I was caring for my father who had Alzheimers and this was taking up a lot of my time. I still did not fear anything bad had happened to Elizabeth – I told her to cut down on some of her activities such as the additional studies and staying out late and concentrate on her course at college. Of course suddenly Elizabeth seemed to be different to her once immaculate behaviour all through her teens. Elizabeth was coming up to 19 and there seemed to be a problem. I saw her once with her eyes dilated and questioned as to whether she had taken any drugs however I then got to find out she had been to see her GP who had prescribed her with Cipralix. I knew nothing about these drugs then but now of course having read the book by Dr Ann Blake Tracy Prozac Panacea Pandora and by Dr Candace Pert, Molecules of Emotion, I have become knowledgeable and I had no idea how harmful the drugs were which affected Elizabeth’s behaviour so badly. Suddenly I discovered she was not doing well at college, her writing once immaculate was scruffy and her appearance was very different to previous and she was having learning support there. I thought she had taken other drugs. I cannot believe how ignorant I was not to question the drug prescribed by her Doctor. I now know what drug was affecting Elizabeth whilst at college and got to hear far, far worse but because of the sensitive nature of this which involved Police I cannot publicise the details however eventually justice was achieved but this took place a year afterwards. Anyway you can gather that she was on a highly dangerous drug that was affecting her to the point of making her unrecognisable as well as I had found out disturbing things about what had happened to my daughter whilst I was too busy looking after my father as well as my younger daughter who was sectioned and in hospital and I wish I had been more watchful and will always regret this, plus I fully trusted the doctors thinking they were experts. Elizabeth was barely able to concentrate at college so I booked her hypnotherapy in the belief that this may help her. She said it was like floating on air but after one visit to the local hypnotherapist Elizabeth seemed too busy to wish to go back again and this is a great shame as I believe this could have helped her. What can you achieve in just one session and after the fuss that Enfield Mental Health made of the hypnotherapist Susan Hepburn in Harley Street I have heard that hypnotherapy is available at local level and would like to know why my daughter was not offered this. Instead of course she got drug after drug and label after label. Taking herself off Cipralix 30mg was not my idea – it was Elizabeth’s – the drug had caused her to suffer terrible skin problems with itchiness and other serious side effects plus she had the chance of a lifetime to get away from the country and work abroad as simply a companion – her job had failed due to not being able to concentrate properly and Elizabeth seemed to go to pieces about this. The trip abroad was a complete disaster and by this time she was on a waiting list having been on the waiting list 9 months and the psychiatrist locally had recommended the trip as it was felt the problem lay with the home and family. I pointed out and gave other information to the team but they continued to point the finger at myself as a mother – home and family and I believe this is because I had complained about not getting the support/counselling etc etc. I felt excluded as I was being open with them as the team by giving them information and they were not likewise communicating with myself.

Once she had taken herself off the drugs in one go that was when I experienced major problems at home and had never been in such a situation where I could not cope. An incident led to matters being taken out of my hands and her being placed in hospital following her return abroad from this disastrous trip. AT the time she did not have a label apart from behavioural problems. Little did I know that the psychosis she was going through was caused by her coming off the drug too steeply and that was withdrawal. Noone from the team would give me suitable advice as to this effect. Instead they just wanted to go on and give the ultimate label – Schizophrenia and to tell my daughter she would be on the drugs prescribed for the rest of her life. How disgusting and untrue when I know of many who have come off the drugs and gone back to work and live a normal life. I did not know anything about these drugs and how a withdrawal should be made – how they drain the body of nutrients and minerals. I started to research things myself and to my horror I found out the truth! I started to look for decent care for my daughter in the UK and to my horror found there was NONE. I started to look and see what there was abroad in desperation. There were centres in the States and I desperately tried to get her accepted but of course they all wanted referral from Enfield social services and they were barely speaking to me as I had further complained after a serious incident and when I took Elizabeth away from their care and she was at home the local team distanced themselves and then I tried to get a decent social worker from the Adults Division like I had for my father and this was not allowed – why ever not when I knew there were more than 1 decent social worker under this division yet this was refused! so there is not a drug that has worked for my daughter and all have had devastating side effects.

I had then turned to experts like Dr Ann Blake Tracy and Dr William Walsh and I have just had the private test results and they are not good! I am not a doctor but I have once again had to seek the advice of specialists and this highlights that the doctors involved in the treatment of my daughter have not had her best interest at heart.

It is a good thing that I am the Nearest Relative yet the team wish for me to be replaced as they do not see me fit to be the Nearest Relative yet I have done all this research and contacted experts. I have spoken to Dr Ann Blake Tracy over the telephone and want to go and visit her in Arizona to personally thank her for her advice. I also wish to meet with Dr Walsh when he comes over here to train up 12 doctors. I hope as many as possible with book for the next Chy Sawel Conference so that they can learn by the research of Dr Walsh and together something can be done about the shocking cruel and inhumane care of the UK. I wish that a centre can be set up followed by others around the country and when I went to the fabulous Jamie Oliver Restaurant which I would recommend to anyone it gave me an idea. Elizabeth has been to the Fifteen Restaurant and was going to sign up to become a chef working there before she became ill as a result of the Cipralix prescribed. I spoke to the manager there as this is most relevant. There are many people like my daughter right now being held on lengthy sections and mothers like myself who are in despair with the whole rotten system and want to see change. I can prove this as I am in touch with many. Then there are the patients who I am in touch with /former patients who speak of the most shocking abuse and care on offer under acute wards. It is essential that someone under the mental health should be given a proper nutritional plan individually and an assessment by Dr Walsh himself – this is where Jamie Oliver could help turn around the whole system and work alongside Dr Walsh and parents as well as educating the patients. I spoke to the Manager and asked the manager of Jamie’s Italian if she could get in contact with him and I would be willing to pay for his appearance at the forthcoming Chy Sawel Conference which is quite near I believe to his “Fifteen” Restaurant as this is situated in Cornwall – I really hope that Jamie Oliver can do something that the Government is failing to do to help so many under the mental health system alongside Dr William Walsh which could result in the ultimate dream of mine to see humane care such as that in Tornio, Finland. It could lead to some patients becoming well again and taking a look at decent food rather than junk food and hospitals improving the catering for such patients within the hospitals on acute wards. Peter Bennett (Rehealth) has already conducted research and proven that diet and nutrition are essential and can affect behaviour. If a patient is on these drugs, they need to be all the more watchful of diet and this is an area that these experts can help with and with Jamie Oliver on board also people can be educated that a mental health patient suffering from say Schizophrenia is not as portrayed in the press so negatively. There are many people locked away for years on end on neverending prison sentences under this inhuman that are NO risk to the public whatsoever and by doing a documentary on this and involving patients, carers, doctors involved in the programme of Chy Sawel, other organisations who likewise want to set up alternative care centres such as Root and Branch and Soteria – LESS DRUGS AND MORE HOLISTIC AND THERAPEUTIC CARE AS WELL AS THERAPEUTIC COMMUNITIES. THIS IS WHAT IS NEEDED IN THE UK THAT IS FOR SURE AND COULD SAVE THE PUBLIC A LOT OF MONEY AND OTHER PATIENTS DIAGNOSED WITH SHOCKING LABELS WHO HAVE MANAGED DESPITE THIS TO REBUILD THEIR LIVES AND WHO WISH TO HELP OTHERS SHOULD BE EMPLOYED AS PEER SUPPORT.