First of all Merry Xmas and Happy New Year. I know it is not a Merry Xmas for so many people including ourselves. Elizabeth also asked to wish everyone a very Happy New Year – she is still held on Suffolk Ward, Chase Farm Hospital Enfield.
Yesterday I spent good quality time with Elizabeth. I am recognised as her regular carer and was granted permission to take her out for a walk in the grounds of the hospital. After all Government Guidelines do state you can meet someone from a support bubble (1 person only) outside. I then pointed out that I have a car where the roof can come down and that if we were wearing masks then surely this would also qualify. I was delighted that I was granted permission and we drove all the day to a beautiful area where there is a lake and canals you can walk along. I then returned her to the ward but was concerned to hear from Elizabeth that there were supposedly Covid cases on the ward (I am not one of those people who are bothered by Covid) but respect the guidelines etc so I decided to enquire on the position as I have found that you get told one thing and then another and I needed to clarify the truth.
I then heard that most of the ward had been moved out to Southgate. I saw some leaving with their suitcases packed. I have just found out they have been moved out of the public ward Suffolk, Chase Farm Enfield to the private hospital Priory in Southgate and Elizabeth has been asked to move to the Priory in Hemel Hempstead – this is a fair distance away for us to visit and I have been delighted that she is back in Enfield in order that we could at least spend some quality time together. It is unbelievably unfair that they should move Elizabeth against her wishes once again out of area to the Priory and she does not wish to go there. I have offered to move in and support her at home in the absence of any care in the community under ENFIELD where they appear to have money to burn.
Recently I wrote to MP The Rt Hon Feryal Clark and got a response to say there is nothing she can do because it is a clinical decision to move Elizabeth but Oh yes there is plenty that the Rt Hon Feryal Clark along with other MPs can in fact do because this is nothing to do with a clinical decision when the entire ward has been vacated by ALL patients except just two (I will check on this). When 12 patients have been sent to the Priory in Southgate what on earth is going on under Enfield. So the other thing I heard was that Suffolk Ward was going to be used as an assessment centre but WHY SUFFOLK WARD??? why are there NO decent facilities for people under MH within Enfield? in that they have to constantly be moved away from their homes and families – this is of public interest because can you imagine how much this is all costing and it is funded by North Central London CCG – Enfield. I have just done a FOI request because I am interested in knowing how much all these facilities cost. For instance Cygnet Godden Green £28K for 5 weeks and none of the correct care and treatment given and then Elysium Thornford Park Thatcham Berks – 2 months – how much did this cost? Why is all this money – public money being wasted and not spent on decent care and assessments in the community.
Now the CCG are stating about fees and I will keep you all informed as my FOI request is made public and therefore so will their costs to me when they are spending an absolute fortune under private sector instead of improving facilities under the NHS.
Elizabeth has phoned several times. I have been cooking Xmas Dinner and Elizabeth has only just had Xmas dinner on the ward. It is a beautiful sunny day and Elizabeth is missing her cat and her pigeons that visit the balcony of where she lives. Elizabeth meanwhile has had dinner on the ward with one other patient. She says everyone else has gone. There was no alarms ringing. It was very peaceful which is exactly the environment Elizabeth needs to be in. So is this ward going to be converted to a Covid Ward by any chance – it has been advised it is going to be an assessment ward but exactly what is that??? My questions again go to the top of the Trust (BEHMHTNHS), Enfield Council and my MP The Rt Hon Feryal Clark.
I am sure there will be many more people in Enfield who want answers too as after all when there is so much money to spend on private care why isnt this being provided in the community which would stop people like Elizabeth ending up back to square 1. It would cost a fraction of the cost of the Priory, Elysium and Cygnet and any other PICU/acute ward if something was provided such as a support worker and Elizabeth wants a job working with animals and so why send her away to Hemel Hempstead?
She is quite obviously not a risk to self or others otherwise she would not even be allowed out with me and in public so why spend all that money of institutional care at the expense of the wonderful charitable and voluntary organisations in Enfield who deserve a great deal more funding and have to fight for what little they get and this is why it is important for me to highlight what is going on and question who is responsible for this and this needs to be investigated by The Rt Hon Feryal Clark and Cllr Nesil Kaliskan.
The other question is transportation of patients from one facility to another is done via a caged van. Patients are treated like animals and no animals should be treated either in such a degrading manner. Elizabeth was transported in a caged van to think it was Cygnet Godden Green and it was absolutely terrifying as she had nothing to hold onto. I am disgusted with this treatment.
Anyway in a short while I will bring Elizabeth back to the family home in the car with the roof down to eat her Xmas dinner I have cooked. At least it is not raining. I can then bring our cat out to see her as Elizabeth is missing him.
I have never had a Xmas like this before.
Once before at Xmas whilst at Cambian Elizabeth was denied home leave because RC Dr A W (also a GP) said she was too ill – that was not true as she was brought all the way from Wales just for about 2 hrs prior to Xmas and now I can read everything in the files of the most disturbing nature. How can Doctors act in such a detrimental manner in breach of human rights? This Dr coerced a vulnerable patient into only having contact with other family members and put in place supervised calls at a time I could not ring – should this person be even working as a Dr?
I am just grateful I can at least see Elizabeth and bring her dinner out to the car even though we are not allowed to sit around the table together.
So there is not one single Covid case on the ward as had been advised – the ward is closing to patients and they are being sent away to private sector hospitals ie Priory costing an absolute fortune. This is just in Enfield – where else is this happening? I would be most interested to hear.
I had no idea you had to pay for a FOI under GDPR Rules – can someone please enlighten me. I am asking something that the public and especially residents under the London Borough of Enfield might be interested in? This is of public interest when I know already £28000 has been spent on Cygnet Godden Green Requires Improvement. Castle Ward. So I now wish to know how much the rest costs. How comes North Central London CCG wishes to charge when I have not been charged before and I know already it is North Central London CCG Enfield that hold the information. So please send me your invoice in order that I can notify everyone of your fees. I am asking a simple question and I want a simple answer that you can produce in 5 seconds. Look forward to hearing from you NCL CCG – you are responsible to the public for providing services and so you should be accountable to the public especially when you are spending vast sums of money for sub-standard care and treatment at the expense of the NHS to private institutions and are unrated in some cases.
Dear Susan Bevis
RE: Freedom of Information Request
I am writing to formally acknowledge your request for information regarding Cost per week for Ruby Ward St Pancreas Hospital, Elysium Thornford Park and Priory Hemel Hempstead which will be processed under the Freedom of Information Act 2000. I can confirm your request was received on 24 December 2020 by NEL on behalf of the Clinical Commissioning Groups (CCGs) listed below. The references for your requests are shown alongside.
NHS North Central London CCG FOI.20.NCL179
An initial investigation is currently taking place into whether the information you have requested is held by the CCGs and if so, whether it can be released in accordance with the legislation.
Any fees applicable to this request will be detailed in writing as soon as they can be determined. Your request will then be placed on hold and you will have the choice of whether to proceed with your request. Should any clarification of your request be required we will advise you accordingly.
As you know, the NHS across the country is facing unprecedented challenges during the coronavirus (Covid-19) pandemic, and is working hard to ensure that the appropriate care can be delivered to patients. As such, we would like to advise that we may not be able to provide a response to your request within the normal timescales required of us. If this is the case, a further update will be provided to you in due course.
If you require any assistance, or would like to discuss your request, please do not hesitate to contact us quoting the reference number above.
Today I travelled to London wearing a mask of course. I am not in the slightest bit concerned about Covid new strain or not and I do not trust what I read in mainstream press. However I am not one to disregard other people’s concerns and wear a mask and so does Elizabeth. I have not been shielding since March because I am a carer to Elizabeth and am not panic stricken one bit.
It was surreal travelling to London today as opposed to what I was used to doing in rush hour crowds. When I arrived home I noticed I had missed calls from Elizabeth. Every day I’ve been taking her off the local ward (Suffolk Ward Chase Farm Enfield) and bringing her back to her peaceful flat that I have greatly improved since Elizabeth has been incarcerated and sent to one private “prison” institution after another at astronomical expense to my local area of Enfield, whose CCG responsible falls under NCLCCG Enfield and who have public money to burn. I was glad that Elizabeth was at least local and that I could have contact after six months of OOA institutional incarceration. Now all has changed thanks to Boris Johnson and the UK Government who have ruined Christmas for everyone but particularly the weak and vulnerable.
Many people throughout the UK have had their Christmas spoilt at the last minute by this Government who do not give a damn about the weak and vulnerable. However, I can’t think of anything worse than for the most vulnerable people being stuck in hospitals and particularly on MH wards in a noisy, volatile environment and denied any contact with their family because of Government restrictions brought in just prior to Xmas. I personally would have liked to invited the entire ward to my house for Xmas but unfortunately now I cannot even invite or visit Elizabeth on Xmas Day and I am not alone.
What are the Tier 4 restrictions?
Boris Johnson announced Tier 4 rules mean people must stay at home akin to the November national lockdown. Rules include:ADVERTISING
Non-essential retail, gyms, leisure and personal care must close
Work from home if you can
Do not enter or leave Tier 4 areas or stay overnight away from home
You can meet 1 person from another household but outdoors only
Communal worship can continue
The Prime Minister said: “We will introduce new restrictions in the most affected areas, specifically those parts of London, the south-east and east of England which are currently in Tier 3.
“These areas will enter a new Tier 4. Residents in those areas must stay at home apart from limited exemptions.”PROMOTED STORY
Regarding Christmas, the festive season is cancelled for those in Tier 4 who cannot travel to meet any other households.
Those in Tiers 1, 2 and 3 can meet up to three other households as planned, but only on Christmas Day itself.
The PM said: “We cannot continue with Christmas as planned. In England those living in Tier 4 areas must not mix with anyone outside their own households at Christmas.
“Across the rest of the country, the Christmas rules will now be limited to Christmas day only rather than the five days as previously set out.
“There will be no relaxation on December 31 so people must not break the rules at new year
“I know how much emotion people invest at this time of year and how important it is for families to be together, so i know how disappoint this will be.” No you do not! You are a Government out of touch with reality and the UK is in breach of Human Rights.
Tier 4 rules: Uk tier map as of December 19 (Image: EXPRESS)
Speaking before the announcement today, Sky News’ Jon Craig said: “The PM is expected to announce that London and the south east is going to be put under a new tier 4 with much stricter rules on moving around and possibly to the Christmas bubble plans.
“Essentially tier 4 is a stay at home message. It could include non-essential shops closing, tighter rules on hotels.
“Weddings even, Christmas eve weddings perhaps, could be placed in jeopardy.
“It will be greeted with dismay and fury by some MPs and not doubt many people who have made their plans and spent a lot of money already. Yes you have ruined Xmas Boris Johnson and Government and I have spent a lot and I am not alone. Shame on you.
“If it is a stay at home message, it’s going to wreck the travel plans and travel plans of many many families.”
He added if Mr Johnson planning to make these changed by law, MPs will say parliament must be recalled.
Mr Craig added: “We don’t know [what the rules are yet] but we do know the five day relaxation period is likely to be changed.
“What we know is that all the areas that were put into tier 3 in the middle of the week, London going into tier 3 and the addition of the home counties, Surrey and parts of Essex and Hertfordshire, they all look set to go into a new tier four and there will be a very strict stay at home message.
“The Government is likely to say this will be imposed by law. Already conservative MPs are saying if theGovernment is going to impose a new law, that means a new vote. Of course – a new vote.
“Mark Harper has said Parliament must not be bypassed.”
Regarding the Tier 4 rules, he suggested Christmas bubbles may only be allowed in Tiers 1,2,3 – and only on Christmas Day.
He added: “This is a massive u-turn for the Prime Minister. Only 4 days ago he said it would be inhuman, inhuman he said, to cancel Christmas. YES IT IS INHUMANE
“All the sign are he is going to do this.”
Mr Johnson met his senior members of his Cabinet earlier on December 19 before a 4pm press conference from Downing Street was called.
BBC Political editor Laura Kuenssberg said: “The prime minister is expected to announce a tightening of Covid restrictions and a tier four for London and the South East as well as several other counties, cabinet sources have told the BBC.
“There is also expected to be a tightening of the plans to relax the rules around households gathering during the Christmas period.
“The cabinet was also briefed on the risks from the new variant of the disease by the government’s top medics at lunchtime.”
WHAT DOES TIER 4 MEAN FOR ELIZABETH AND HER FAMILY AND OTHERS WHO HAVE RELATIVES IN HOSPITAL IN THE UK
Xmas is ruined for us as a family and many others. We live in London so we come under Tier 4. Elizabeth’s sister lives in a Tier 2 area and she has cancelled coming for Xmas. I had bought new bed/bedding and ordered lots of food on-line but I am even more devastated now having spoken with Suffolk Ward Chase Farm Hospital Enfield as their rules are even stricter than the Government Guidelines in fact they are a law unto themselves.
Elizabeth has been incarcerated since May for visiting the GP surgery demanding an MRI. She has LD and is autistic and was upset as she felt she was being ignored. In files it is reported she caused extensive damage to the GP surgery but when I visited and offered to pay was told there was no damage. Why do they have to report so inaccurately? This is the reason why Elizabeth is incarcerated right now because of lies and errors by professionals who all stick together and gang up if you so much as dare complain as I have previously featured.
Elizabeth has been away for over 6 months. I withdrew from the Section 25 Tribunal because I heard that Elizabeth was being pressurised to appoint solicitors recommended by the Chase Farm Hospital when she already had a good firm representing her. This has been the scenario since May: Seclusion, PICU, seclusion, PICU, seclusion, PICU and finally at last Elizabeth is back in Enfield. I then discovered today that leave had been granted so that I could take her off the ward during the day and bring her out shopping and back to her flat, despite all the negative untruthful comments about her being a risk to ME!! THIS IS ABSOLUTE NONSENSE and there has been no risks whatsoever in my Company. It has been wonderful to see Elizabeth again and spend time with her as we have had little contact. Elizabeth has been keen to go out walking and has even showed interest in working with animals thanks to a brilliant OT on the ward. However there is a cloud over our heads right now because the RC of Suffolk Ward wishes to send her away again to Hemel Hempstead – ANYONE KNOW OF ANY LOCKED REHABS – COULD THIS BE THE PRIORY??? Please let me know what you think and any experiences you have encountered.
Yesterday, despite Tier 4, I was permitted to take Elizabeth off Suffolk Ward, Chase Farm Hospital Enfield.
Today I was told that I could no longer visit or take Elizabeth off the ward but surely this is totallyh wrong??
“you can meet 1 person from another household but outdoors only “
Look at the above Government Ruling you are allowed to meet another person from another household outdoors only!
I have just re-laid the above message to Godson, ward pharmacist on Suffolk Ward who just hung up on me stating that these are the rules of Chase Farm Hospital Enfield. Law unto themselves!
The rules are clearly not according to Government Guidelines. So in that case I have requested to see Elizabeth in the grounds outside as I have had leave to spend with her all day and every day up until now.
MESSAGE TO BORIS JOHNSONand MP The Rt Hon Feryal Clark
Your Government has ruined Xmas for everyone and I am very sad for those currently held under the MHA whose human rights are being abused.
This is a Country, thanks to this Government, that allows deprivation of basic human rights – there is no accountability and the privatisation of the NHS under MH is a disgrace. Just one facility costing £28K for 5 weeks at Cygnet recently – what about the rest of the institutions where Elizabeth has been sent in a short space of time? why in ENFIELD is nothing provided under MH/LD/Autism of the right nature locally especially to Elizabeth and others when they have been ABUSED UNDER CARE IN THE LOCAL AREA OF ENFIELD WHICH WAS COVERED UP. Elizabeth is only just revealing in vivid details what happened to her under MOTI VILLA SCHEME IN THE COMMUNITY THE RIDGEWAY ENFIELD. If it was recognised that she had complex PTSD and was in receipt of the right kind of care that would be good but there is not one mention of what happened to her under care and it is unbelievable there is only one male psychologist on the ward which is all female. So if local MP, Feryal Clark cannot help in any way what can you do about this Mr Johnson as per comments below perhaps you can explain why so much public money has been wasted on private sector now unrated sub-standard care and treatment of no effect whatsoever to Elizabeth who has been badly abused under the “care” of ENFIELD in the community.
Now I would like to hear clarification too as to this ban on visitors to wards under Tier 4 and that hospitals should therefore allow visiting outdoors only. Please clarify especially to Chase Farm Hospital Enfield and any other hospitals as there may be some carers who might like to take their sons and daughters for a walk outside which is surely allowed within the Guidelines. At least they will get fresh air.
Final paragraph of letter from Rt Hon Feryal Clark MP.
Therefore, we are sorry that we are unable to assist with your concerns in this instance.
Yours sincerely,
On behalf of the Office of Feryal Clark Member of Parliament for Enfield North
Westminster Office House of Commons London SW1A 0AA Tel: 0207 219 6607
But surely there is much to explain to the local people of Enfield why decent care and facilities are not provided under Enfield for MH patients and why so much is being wasted by CCG on private “hospital” facilities who are not providing decent humane care and a complete waste of public money. Why isn’t this money going on care in the community and proper assessments? You are missing the point it is not just clinical decisions it is everything and I am sure everyone would like your explanation because there are many good voluntary organisations who should receive the benefits of such huge amounts of public money rather than private hospitals requiring improvement or unrated facilities. For instance just one facility for 5 weeks cost £28K of no benefit whatsoever. Elizabeth would not be where she is now if there was decent care provision. There is plenty you can do to regarding this whole matter.
I hope that I am not going to hear the following from you, Mr Johnson as my complaints go far wider than just Enfield as you can see.
Therefore, we are sorry that we are unable to assist with your concerns in this instance.
Duty to inform parents and to keep secure accommodation under review. Regulation 14 provides: Where a child to whom section 25 of the Act applies is kept in secure accommodation in a community home and it is intended that an application will be made to a court to keep the child in that accommodation, the local authority which are looking after the child shall if practicable inform of that …
Presumption of Capacity.All adults have the right to make decisions for themselves unless it can be shown that they are unable to make them. You can’t assume someone can’t make decisions just because they have a particular disability.
As the Nearest Relative to my daughter Elizabeth I have received notification of a Hearing to take place tomorrow. I had thought I was exercising my right to appeal against renewal of Section 3 of the MHA which is now coming to an end. Today has been a dreadful day. First of all Elizabeth phoned me and told me that she was advised she had to have a solicitor appointed through the hospital because there is a Section 25 Hearing tomorrow. I was alarmed because Elizabeth already had a very good solicitor appointed. I am always deeply concerned when solicitors are displaced by the hospital in favour of recommended solicitors. I telephoned the MHA Office of Chase Farm Hospital and Elizabeth said she was not happy and felt pressurised and with a new firm of solicitors appointed, recommended by the hospital, on the very day of the tribunal itself, how could Elizabeth be treated fairly. How could they have gained any knowledge of the case at the last minute? I also found out that having only just received the paperwork for this Hearing it is a Tribunal relating to Section 25 where Elizabeth could end up in a secure care home with no contact with her family. Elizabeth wants to go back to her flat and has made that clear.
I was up all night long altering and amending their reports for the Hearing. I can honestly say they were full of error and written deliberately to fail the tribunal. Behind your back they can rip you to pieces and to think these are supposed to be caring and kind professionals. It is sad to say they do this not just to the parent/carer but to a vulnerable person making them look so bad and contradicting themselves in the process. They have made out Elizabeth is dangerous and too dangerous to be in the company of her mother which is absolute rubbish because I have been granted leave for the past two days and there is no way this is true so why write such lies?
I’ve already mentioned past history is wrong and nothing has been done to rectify this.
I’ve already mentioned they have been giving wrong medication previously found to be allergic to and depriving Elizabeth of an autism assessment and failing to acknowledge that she has complex PTSD because she was multiply abused under their care.
The issue is Elizabeth has an independent council flat and it would appear they do not want her to have this flat. She has been visited by the RC of Suffolk Ward who tried to coerce her into going into a care home and Elizabeth who has FULL CAPACITY on where she wants to live said no to the care home and she wants to go back to her flat. Whilst there were problems which did lead to Elizabeth calling police and they called ambulance this was the fault of her care coordinator and ENFIELD COMMUNITY REHAB as if they could not find suitable care her mother and NR most certainly could and JR solicitors said we had a good case but then unlawful paperwork was drawn up to section Elizabeth because they were forced to produce their care plan full of error. There was also mention by the RC of Suffolk Ward of a rehab facility (presumably locked) but Elizabeth did not wish to go to such a place wherever that could be. After all who can blame her. She has been sent here there and everywhere under Barnet Enfield and Haringey MH Trust and has told me how awful her treatment has been.
So it is one thing having awful treatment but it is another thing when the Mental Health Act fails to protect vulnerable people. So they have put Elizabeth on depot injections and this is the issue. Elizabeth does not like taking the medication but has agreed not to stop it abruptly. Elizabeth went downhill through WITHDRAWAL SYNDROME, not illness, when she stopped the drugs cold turkey. Now she is on depot injections depixol and this is why they want her locked away as a matter of convenience and for her liberty to be deprived in a secure care home. The last care home was Phoenix House rated good by the CQC but I can prove this but Elizabeth had no food at the weekend. They refused to give the Clozapine when requested when Elizabeth wanted to stay at home and this led to Elizabeth being without this drug for FOUR not two days. My story “Get her back we are paying for that” describes what we went through – First of all “Deprival of medication community care” Irwin Mitchell then Court of Protection deprival of liberty and forced return to a care home where Elizabeth had NO FOOD AT THE WEEKEND. PHOENIX HOUSE STEPPING STONES NORTHAMPTON. I very much respect the Court of Protection who treated us fairly on two occasions and if they had forced my daughter to return to this dreadful place she would have continued to be without food at the weekend. I was not happy that an expensive report by a Consultant Psychiatrist appointed by Enfield LA had huge error. The report found Elizabeth to have capacity but stated the wrong Council as Applicant and I complained about this quite rightly so. Why should any other council be named in a case associated with deprival of medication community care leading to DoLs and forced return to a care home where Elizabeth suffered abuse and neglect. The team behind this was ENFIELD COMMUNITY REHAB TEAM and in my previous blog where Mehdi Veisi and Amanda Pitman have accused me of being aggressive, abusive, you name it and labelled me as vexatious complainant I have been given only two points of contact which are Pals where the email address bounces back and you cannot get through on the phone and the other name is Lucy Omezi of Enfield Community Rehab. This has led to me having no choice but to write on my blog and on Twitter.
Anyway, Court of Protection case was in 2014. Then I was taken to court again to the RcJ in 2017 at such short notice I was not given the correct court details. I had rushed to get up to the court and was guided to the wrong court but they displaced me as NR behind my back then I went to visit my daughter in hospital at Chase Farm, Suffolk Ward and the nominated AMHP told me to leave the visitors room and announced LONDON BOROUGH OF ENFIELD were now the Nearest Relative “lets face it your mother is not fit for this role” – words to this effect. I felt the same about her as she knew something had happened to Elizabeth at Moti Villa yet tried to blame Elizabeth’s frequent hospital admissions on me when there were massive problems at this scheme and drug dealers on site. I was then called to the next Hearing at RcJ. This time I was properly notified of the correct court and this AMHP DM remained as nominal NR, pending the fact the Judge wanted to meet Elizabeth who was treated like she was invisible. Elizabeth had to undergo a capacity assessment and was found to have capacity. This was done properly and independently not by social workers who can say a pack of lies behind your back. I attended a further hearing where the Judge said she must undergo that capacity hearing. Then the nominal NR appointed by LB Enfield gave the Judge some papers in the Hearing and the Judge asked if I had seen them to which I replied no. Two social workers under Enfield had visited Elizabeth when she was not well and presented the result of their interview to the Judge. It was my first time representing myself in court and I thoroughly enjoyed representing myself. The judge even complimented me on the vast evidence I produced as to why LONDON BOROUGH OF ENFIELD would not make suitable NR. I took their piece following that negative interview and I corrected it and forwarded it to the Judge’s clerk. This caused uproar and I was told this was not the correct procedure but then how could it have been the correct procedure for this social worker to hand such nasty comments to the Judge in such an underhand way. I was then threatened with £5000 in a consent order and that if the court case went ahead further I was warned I would get enormous costs. I was then forced to delegate my role for a term. So my two daughters were approached by my daughter’s solicitors R N Law in this connection. Elizabeth was told that her mother would get enormous costs if she did not choose an alternative NR and then my younger daughter was approached also along these lines. Social services were told to call a meeting which I attended and two others from the family. The Manager of Enfield Community Rehab stated that it was considered fairer for a family member to be appointed as NR rather than their nominated AMHP who went right back to 2011 when Elizabeth was multiply abused at her scheme in the community. Anyway I realised when the term of the section had expired and on checking with the RcJ that I was in fact NR I then requested Elizabeth’s release. Then they tried to send me another consent order but I just crossed through the paragraph that said I would be liable for £5000 costs. Why should I be liable for costs when they dragged me to court.
Now I am alarmed that there is yet further threat by Barnet Enfield and Haringey MH Trust and Enfield Council.
There is a nothing but error/nasty comments in their files for tomorrow’s Hearing which I requested to be cancelled because Chase Farm Hospital will not release all the reports. So far I have corrected the Addendum to Dr M’s report at Elysium and the Social Circumstances Report by her care coordinator PM based at Enfield Community Rehab. There was so many errors it took me all night to correct one report.
So I do not wish this Section 25 Tribunal to go ahead because Chase Farm Hospital have refused files.
Complaints have been sent by more than one person and I myself am going to complain also. This shows how Hearings behind closed doors can be rigged to go against you especially when the court decides to exclude a very important witness such as a McKenzie Friend that both Elizabeth and I would like to attend.
So my solicitor has complained. Elizabeth’s solicitor contacted the courts and tribunals service today as Elizabeth who has FULL CAPACITY wanted HER solicitor not one appointed by Chase Farm Hospital.
I have spent two wonderful days with my daughter after being apart from her for 6 months with hardly any contact. I took her yesterday to various appointments. We went to the chiropodist as Elizabeth could hardly walk prior to first lockdown and I managed to get her an emergency appointment as Elizabeth was in agony and suffering much pain. That was all sorted and yesterday’s appointment was just for a check-up. We then went to Specsavers and Elizabeth had to get her eyes tested and we paid extra for a more intensive investigation. Throughout these appointments, the latter which took a long time, Elizabeth was calm and pleasant. Same today when I picked her up from Chase Farm Hospital to take her to her flat and for lunch. Two days running and no problems what so ever with Elizabeth’s behaviour and a pleasant time spent together.
So you can imagine how I feel that a team of professionals are trying to stop Elizabeth from going back to her flat and are describing her as “dangerous” and a threat to me as a mother which is untrue.
Such comments are fictitious, showing LACK OF INSIGHT and are COMPLETELY UNTRUE. The Hearing reports are misleading and written to fail the tribunal and there is nothing but errors contained therein.
How can you hope to succeed in a Tribunal that is closed to the public and held in secret. Three members on a panel – Judge, doctor and lay person which must cost a fortune.
They are worried about Elizabeth managing in her flat but today she impressed me as was able to cook herself something – had not forgotten how to do things and she would not be on her own as I will stay with her overnight.
What would have been nice is if respite at a care farm could have been provided as Elizabeth likes animals.
Elizabeth was so thrilled to see her cat and the pigeons that visit her flat balcony.
They claim to know us as a family but these professionals do not include family at meetings and make false assumptions producing one report after another wrong and misleading.
This is why we need Open Dialogue but only some areas of the UK welcome change. I will never forget Elizabeth and I taking part in Open Dialogue with professionals who wish for positive change. Elizabeth started off the discussion all about how she was taken to the court of protection in 2014. Like I say I have nothing but respect for this court as far as we are concerned.
I do not know whether the Hearing tomorrow can be postponed as Section 3 ends on 4 December and if this was a fair area, they would suggest voluntary stay on the ward whilst the Tribunal is held at a later date when they finally produce the paperwork they have refused to give to my solicitors.
I think it is good that i am allowed to take Elizabeth to her flat and she is thrilled with all the improvements since she has been imprisoned here there and everywhere for the past 6 months without any leave up until now.
What I would like to see. I would like to see Elizabeth home for Xmas. I would like to take Elizabeth to Norfolk where other family members live. It is said when both the care coordinator and RC of Suffolk Ward, Community Rehab want her to go into care and secure care. This is not what we as a family want. It is not what Elizabeth wants.
Whilst Elizabeth cannot come off the injections she is forced to take, these should be slowly and gradually reduced. Sadly Elizabeth is in this position because she took herself off cold turkey Risperidone previously found to be allergic to.
I would like Elizabeth to be treated fairly most of all and not be put in a position by these professionals where I can never see my daughter again. They are so very wrong in what they are doing. They have destroyed my happiness and my life.
At 08.24 this morning, I had a call from a social worker I have never heard of before called Kate and she did not say what she wanted and we were cut off in no time. No questions or discussions were voiced in terms of what she wanted. When tried to telephone back I received no answer so I got someone else to contact her in my household who was witness to her original call. So 08.31 was the time of the outgoing call and what was disturbing is that Kate did not say what she wanted and made out that it was ME who telephoned her and that she was responding to my call? Never heard of this person but have kept her phone number nonetheless.
In the circumstances and certainly bearing in mind our past experience of social workers under MH, it is very alarming to get a call from someone who claims to be a social worker, who makes out I contacted her in the first place which is not true and then denies phoning me in the first place when I was getting someone else to return the call to find out what she wanted.
Anyway, there may be some relevance to all of this and that awaits to be seen but from a family who have been bullied left right and centre by social services and bearing in mind current situation as regards Elizabeth and everything to do with this it is MOST ALARMING.
All I mentioned was that Elizabeth had been deprived a CTR (Community Treatment Review) and about some safeguarding issues re some of the care that had been provided under private sector most recently.
Anyway absolutely nothing else was discussed about anything to do with Elizabeth’s current situation and the social worker did not ask me one single question and this was all witnessed.
Anybody who has had brutal dealings with social workers who are supposed to help would understand why I am concerned.
Elizabeth has twice now been sectioned unlawfully under Barnet Enfield and Haringey MH Trust.
When a section comes to an end, a social worker is supposed to consult with the Nearest Relative. So we have no idea what on earth Kate B wanted.
Like I say two phone calls:
Her incoming call at 08.24 am – 1 minute
Outgoing call by witness at 08.31 am – 5 minutes.
During the latter call the witness requested to know why she was calling and she said “I am calling to return the call from SB”.
THAT IS NOT TRUE SO WHAT DID KATE WANT? For the record Kate did not say what she wanted.
TW v LB Enfield [2013] EWHC 1180 (QB), [2013] MHLO 59 The applicant argued that her nearest relative ought to have been consulted (under s11 ) before her s3 detention: she required leave of the High Court under s139 (2) to bring a claim against the local authority, and sought a declaration of incompatibility.
Unfortunately Elizabeth has been unlawfully detained twice and as a Litigant in Person with me acting as a McKenzie Friend Elizabeth challenged her unlawful section of 16 hours.
Elizabeth received a cheque for just £1 in compensation.
More recently Elizabeth was detained unlawfully for about 5 days – She has not yet challenged this but out of interest surely the compensation should amount to MORE than just £1. I will find out and let you know.
However this shows just how bad things are in terms of human rights for vulnerable people under MH care and their families.
The Court of Appeal has dismissed the appeal in the case of Bostridge v Oxleas NHS Foundation Trust, confirming that the principles set down in the immigration detention context in Lumba v Secretary of State for the Home Department UKSC 12 (Lumba) and Kambadzi v Secretary of State for the Home Department UKSC 23 (Kambadzi) also apply to claims for false imprisonment/breach of Article 5 ECHR …
Where are the human rights in the UK?
It is disgusting in my opinion that vulnerable people can be treated in such a way in the UK whereas anyone else would have stood more chance of justice if they were unlawfully detained.
Weightmans Solicitors were involved in the case of unlawful detention and the compensation of £1 – if errors are made this shows how unaccountable things are and that the law is not there to protect the weak and vulnerable.
Social workers should be there to help but that is not the case as I have seen from safeguarding where Trust and Council were forced to apologise a while back and also when they wish to force return someone to a care home they happen to be paying for in order to deprive liberty and enforce a CTO which only strengthens a team’s scope to bully with threat of recall. CTOs should be abolished. The only social workers in Enfield who have been kind were those that were involved in my father’s care from the Adults Division. There were two exceptional social workers but from our experience there are some who give everyone a bad name and that applies to doctors and nurses too.
This is when they can become nasty. My blog explains how they can deprive medication to force return to a care home rated good by CQC where Elizabeth had no food at the weekend.
I wish to praise the COURT OF PROTECTION for their decision and their support.
It was FOUR days not two days without the drug. To think an entire team of professionals stuck together and deprived the drug Clozapine and I made every effort to get it despite the fact I was not happy with the “treatment”.
We had two weeks of hell with social services coming in to the family home and reporting for court purposes and trying to carry out a capacity assessment in front of my carers who were all horrified.
Here is a further example of the “care” my daughter has received:
From Psychiatrist ID To LO and EJ cc EA
30.05.2014 at 17.05
Subject Elizabeth Bevis
“A was advised by the HTT that EB would not be available to meet us this afternoon but as planned we attended her home.
We were advised by a man who said he was a lodger that EB doesn’t seem to be at home. We therefore did not have the opportunity to carry out the assessment.”
Regards ID Consultant Psychiatrist Enfield Community Rehab Team 65C Park Avenue Bush Hill Park Enfield EN1 2HL
I received a call from Elizabeth and her sister whilst I was at work. Elizabeth’s sister said they were hiding in a cupboard and that they were terrified and that they had asked my lodger at the time to say they were out as Elizabeth did not want to see them and neither did her sister.
“From LO sent 30 May 2014 at 17.27
to ID, JE and EA
Subject Elizabeth Bevis
Dear I
Thanks for informing me I have spoken to A about this I will relate the issue with the legal team.
From: “REARDON, Elizabeth (ELYSIUM HEALTHCARE)” Date: 27 October 2020 at 16:43:33 GMT To: Susan Bevis Subject:Letter from Thornford Park Hospital Dear Ms. Bevis, Please find attached on behalf of Jo Sherman, the Hospital Director a letter in relation to the change in Responsible Clinician for your daughter, Elizabeth. Please note that this letter has also been sent in the post. Kind regards, Liz Liz Reardon PA to Jo Sherman, Hospital Director Thornford Park Elysium Healthcare
Following concerns you have raised regarding the current diagnosis and treatment plan for your daughter, Elizabeth, we have taken the decision to allocate Dr Harinder Bains as the Responsible Clinician for your daughter’s care whilst she remains at Thornford Park.
Dr Harinder Bains will take over responsibility on Tuesday 27th October 2020 from Dr Morton. Dr Harinder Bains will also consider the ASD diagnosis that you have raised with the clinical team.
Yours sincerely
Jo Sherman
Hospital Director
Elizabeth discharged back to the local area of Enfield on 28th October late evening. She is now back on Suffolk Ward under the “care” of Dr Helen Moorey. No ASD has been carried out as promised by Elysium. The Manager’s Hearing 30th October today has been cancelled.
For a Manager’s Hearing reports are prepared. It is similar to a Tribunal. If a hospital wishes to hold on to someone for a long time that is very easy to do especially considering how much taxpayer’s money is being spent by the local area. All that has to be done is to prepare reports so negatively that rip a vulnerable person’s character to pieces, then a panel agree that the patient needs to be incarcerated longer, whereas what should be done is to look at what is being offered in the community/or rather what is not, in terms of care and whether someone has been assessed properly. Now there is even more conflict than ever before in terms of diagnosis. In over 2 months, Elysium have failed to assess Elizabeth for Autism and the same applies to Cygnet Godden Green, Sevenoaks, Kent though they admitted autism traits. However when huge sums of money are being spent locally by commissioners it could reflect badly on the care provided under BEHMHTNHS if a different diagnosis is given now but then this diagnosis goes back to the very beginning and Elizabeth will never be treated fairly under BEHMHTNHS. “We are guided by the local area” – one of the RC’s told me recently.
EXTRACTS FROM THE PSYCHIATRIC SUMMARY REPORT FOR THE MANAGERS HEARING DATED 18 AUGUST 2020 BY ELYSIUM HEALTHCARE
Prepared by Forensic Psychiatrist Dr DM for the Manager’s Hearing on 30 October 2020, now cancelled.
The report runs into 16 pages but my corrections of this report runs into far more, as there is so much error it took me all night to do.
On the one hand, the report writer does not think a PICU is the right environment but on the other hand states “it is appropriate for Elizbeth to be detained in best interest and appropriate medical treatment is available. When a Responsible Clinician wishes to hang onto someone for a long time they bar the Nearest Relative from seeking discharge.
Here is the appropriate treatment Elysium Thornford Park see as “best interest” – Elizabeth was previously found to be allergic to this drug yet c 8 Doctors and their nursing teams have chosen to ignore this fact. It is clearly documented in the files but then Dr DM states “I DO NOT HAVE ACCESS TO THE FULL NOTES FROM BARNET ENFIELD AND HARINGEY MH TRUST”“HOWEVER THE LOCAL AREA HAVE PROVIDED ME WITH REPORTS THAT HAVE ALLOWED ME TO DEVELOP AN UNDERSTANDING OF HER BACKGROUND“. It is no wonder nothing is done properly and Tribunals fail, leaving vulnerable people treated in the most disgraceful manner. If you look at the reports from the local area they are full of inaccuracy/errors and even lies. I will feature their lies in a separate blog.
So if, for instance, my daughter died at the hands of any such doctors through faulty treatment they would all stick together and deny wrongdoing, each backing one another yet each and everyone of them knew from countless evidence provided to them that Elizabeth was allergic to Risperidone but kept on prescribing regardless. See below – I have highlighted other contraindications to Elizabeth’s physical health.
When you prescribe a drug knowingly that has caused allergy it is no wonder a patient suffers from adverse reaction. This can be displayed in behaviour but what if a patient’s behaviour flares up or they say something that might appear threatening then they call the Police and report – I will feature that later on.
Paliperidone side effects
Image: psychcentral.comIn Summary. Commonly reported side effects of paliperidone include: akathisia, tachycardia, and drowsiness. Other side effects include: basal ganglia disease, dyskinesia, dystonia, orthostatic hypotension, postencephalitic parkinson’s disease, sialorrhea, and prolonged qt interval on ecg.
Who should not take Paliperidone Palmitate Syringe?
The following conditions are contraindicated with this drug. Check with your physician if you have any of the following:
Conditions:
breast cancer
diabetes
a high prolactin level
excessive fat in the blood
low amount of magnesium in the blood
dehydration
low amount of potassium in the blood
overweight
very low levels of granulocytes
a type of white blood cell
low levels of white blood cells
low levels of a type of white blood cell called neutrophils
confusion
suicidal thoughts
a type of movement disorder called parkinsonism
tardive dyskinesia
a disorder characterized by involuntary movements of the face
mouth and tongue
neuroleptic malignant syndrome
a reaction characterized by fever
muscle rigidity and confusion
a low seizure threshold
a heart attack
angina
a type of chest pain
torsades de pointes
a type of abnormal heart rhythm
chronic heart failure
abnormal EKG with QT changes from birth
a disorder of the blood vessels of the brain
orthostatic hypotension
a form of low blood pressure
compression of the esophagus
priapism
a prolonged erection of the penis
seizures
weight gain
susceptible to breathing fluid into lungs
pregnancy
decreased blood volume
problems with food passing through the esophagus
metabolic syndrome x
dementia in an elderly person
diffuse Lewy body disease
cataract surgery
floppy iris during eye surgery
abnormal muscle movements
chronic kidney disease stage 2 (mild)
chronic kidney disease stage 3A (moderate)
chronic kidney disease stage 3B (moderate)
chronic kidney disease stage 4 (severe)
Allergies:
Risperidone Analogues
Elizabeth has made relatively good progress at Thornford Park – Rubbish! I will explain later.
Historic Risk Incidents taken from the Report of Dr Helen Moorey – WILL YOU PLEASE AMEND THIS RUBBISH!!! There are so many errors it is unbelievable. Plus, the description of incidents does not explain fully the circumstances and what really happened thereby giving false impression.
There is nearly a page and a half – it is painful to read when they have deliberately listed nasty comment after nasty comment, designed to make someone look bad without a single good word.
Yet all the time these doctors/professionals are prescribing a drug known to be allergic to that can cause adverse reaction to someone who, as proven, cannot metabolise the drugs. SHAME ON YOU ALL!
There are other Risk Information written by a care coordinator who has failed to protect Elizabeth on a ward on one occasion, left her to sleep in a bug-infested bed and room stinking of chemicals at Reservoir House, someone who has failed to work with the family, someone who has failed to provide a scrap of care in the community since Elizabeth acquired her own flat in July 2019 and under whose team drew up unlawful paperwork for sectioning resulting in Elizabeth spending c5 days unlawfully under section.
It is no wonder Elizabeth does not wish to engage with ENFIELD COMMUNITY REHAB TEAM – you only have to look at my blog “Get Her Back We are Paying for that. They were likewise prescribing a drug previously found to be allergic to and knew it.
The reason Elizabeth is unfortunately incarcerated under their “care” once more is because she stopped taking 2mg of Risperidone cold turkey. This all highlights the need for facilities where someone can be taken off the drugs slowly and gradually and safely. There is nothing like this in the UK for prescribed drugs.
They try and say it is relapse of illness however it is all about withdrawal and too steep a withdrawal causes withdrawal syndrome which is not a mental illness.
Diagnostic Issues
The report states she was diagnosed with Schizophrenia in 2007.
No true at all – first diagnosis was Aspergers. Then another doctor said that her condition could not be attributed psychogenically but organically.
Never did Elizabeth experience paranoia, thought disorder, hallucinations, thought broadcasting and other perceptional disturbances until she was prescribed anti-psychotic drugs and even then her anger is justified because of what happened to her under care and the drugs given in order to cover it all up.
One of the lies in the reports written by care coordinator is that she was forced to go to Scotland and Australia. Get your facts right next time! Elizabeth was not forced to go and agreed via Skype. Working to Recovery was the best thing that happened for Elizabeth – if only she had not come back to the local area of Enfield.
The excellent report by Dr Bob Johnson stating complex trauma was dismissed by the Consultant of Thornford Park like rubbish however here is an example of an extremely honest doctor who has done the most accurate report Elizabeth has ever had apart from the most recent prepared e for Tribunal purposes.
A patient can ask their solicitor to appoint an independent doctor completely free of charge for their tribunal and this is good because you cannot expect to be treated fairly by any so called independent doctor (SOAD) from the CQC which is our experience.
One of my main complaints to the CCG NCLCCGNHS Enfield is as to why they have wasted so much of taxpayers money on care that has achieved absolutely nothing. A PICU or even an Acute Ward is the wrong environment for someone with sensory issues. They have denied a CTR in favour of a CPA and now I am getting the National Autistic Society involved – also the diagnosis of PTSD was endorsed by a clinical psychologist at Enfield, Dr Mukherjee.
So the report from Elysium lists nothing but incident after incident after incident which has not been reported correctly. In addition countless times I have asked from the Psychiatric History to be amended but this has not been done. Not once have I been invited to a meeting or ward round to go through the errors reported. Psychiatric History goes on for many pages and it is dreadful to read as it is incorrect/full of error and keeps appearing all the time and once again I am having to correct everything which is time consuming.
Then they go on to the circumstances of admission and they make Elizabeth sound terrible.
For someone Autistic, suffering in addition from complex trauma, who had been discharged from hospital after S3 back to her flat at the height of the pandemic, it was not easy. I was furloughed at the time and so could help her but then she took herself off 2mg Risperidone and refused to take the drug and I knew she would go downhill because this is far too steep a reduction. Elizabeth became very preoccupied with her physical health during this time – she was constantly researching her condition which she saw as autism not schizophrenia. She was suffering from chronic pain too and so was in touch with the GP Surgery. During the pandemic people were supposed to shield and not mix with one another from different households but this was not possible due to no support for Elizabeth who did not seem to understand services had come to a standstill as she wanted an MRI scan. It is recorded she caused damage to the reception area of the GP Surgery however I called in to ask about this and was going to pay for any damage I was told there was none. Staff might have been afraid and called police as Elizabeth was upset at being ignored and getting nowhere with her request. Police took her to Chase Farm and she was sectioned once again and has been held in seclusion time and time again on Suffolk Ward prior to being sent far away from home and family to PICU rather that ATU – Huntercombe recommended ATU but the RC of Suffolk Ward has dismissed all the doctors opinions at Huntercombe Roehampton and others in favour of her own and then when various other doctors of PICUs get involved they are paid by the local area. One such doctor was honest enough to admit “we are guided by the local area”
The other criticism I have of all these institutions and under MH care in general is that only basic tests are done. In support of himself, the doctor in this case states MRI, blood tests and EEG have ruled out organic cause. Elizabeth has not had an MRI scan or seen an Endocrinologist and already is said to have an irregular arrhythmia in past reports probably caused by the titration of Clozapine. It is reported Elizabeth kept talking about faulty Endocrine system and this is something they should be looking into. They make her sound ridiculous but she is right as I have already had extensive Endocrinology tests done private which again the team has ignored.
Dr DM contradicted himself. On the one hand he sticks with Paranoid Schizophrenia yet has written admitting autism in his email to me but no proper assessment has been carried out by Elysium. All blame put on Elizabeth for not cooperating with the assessment yet I was told that under a PICU such assessment could not be done. An AQ10 was supposed to be carried out but this suggested further more detailed assessment for autism be carried out but then they changed medication and took Elizabeth off the Paliperidone and switched it to Olanzapine – another ineffective drug previously tried that causes diabetes. Now they are mixing Olanzapine with Clopixol depot and prn when needed. This is how a patient can react adversely from adverse reactions and it is apalling that a team of professionals write about incident after incident that goes into pages when I as a mother know that by switching a drug causes such reaction then this list of incidents go against a patient and release from hospital. Blame just goes on the patient whereas focus should actually go on the Doctor and team as what they are doing is wrong. They try to say relapsing illness and I would say rubbish! as I have research papers to prove this is completely wrong. Also I would state that the combination of Clopixol and Olanzapine is wrong too – I am not a doctor but check everything with experts on the drugs. You should not prescribe an A-typical with Clopixol.
It makes me laugh when a doctor tries to say she was responding well to Paliperidone when at the same time nothing but contradictory negative comments and pages of incidents are listed.
In comparison to all the negative comments written by Dr DM there is a very small section that states “strengths or positive factors relating to the patient: There is only 5 lines written by a doctor who described Elizabeth as cold and aloof. Now he has had to admit she has a pleasant sense of humour at times and is well liked. Then he writes something that is totally irrelevant to the strengths and positive factors relating to patient and goes on about medication.
I am afraid the above which actually amounts to just 2 lines is the only good thing about a report of 16 pages written to fail Elizabeth’s hopes of release from prisons such as this and there is no difference now to the acute ward either because patients are not allowed out or to have visitors.
As if Dr DM has not dug out enough dirt on a vulnerable patient who he never got to know properly, he lists incidents at Cygnet Godden Green Castle Ward as well as Chase Farm Enfield where Elizabeth was held for up to practically a week in seclusion.
I wish to point out I consider that Cygnet Godden Green are unfit to produce any reports for Court and Tribunal purposes.
The Report for the Responsible Clinician was written by Dr WK for Dr RS and contains the most disturbing things of all and I would be more than happy to send all their reports to the CQC as well as the threatening letter I have received from their solicitors when I dared to challenge them. To pervert the course of justice is a very serious thing and I would say that their reports are geared for this purpose.
The reason I say this is that there is a long list incidents Dr DM has copied and pasted by the looks of things however the other report prepared by Rebecca Fordwar – Clinical Lead lists NO INCIDENTS WHATSOEVER. This is most disturbing to see in the report prepared by Dr WK – the date of Birth is completely wrong. Therefore no reports from Cygnet Godden Green can be relied upon for court purposes. The other disturbing nonsense is they cannot even agree on primary diagnosis – it is laughable when you compare the report from the Clinical Lead with that of Dr WK and if the records are wrong you can be sure that the care is a poor reflection as records are extremely important. It is not laughable when you consider this facility cost £28K for 5 weeks.
I am laughing even more now that under Progress at Thornford Park from 04.08.2020 to present there is 2 pages full of alleged incidents.
I have not given ELYSIUM THORNFORD PARK THATCHAM BERKS a rating but quite honestly looking at this long list and bearing in mind they knowingly prescribed drug previously found to be allergic to they do not deserve any rating whatsoever and I shall be writing my reviews in due course.
Progress made at Elysium Thornford Park based on this long list of negative incidents is NIL
I also have not liked the way a social worker from Elysium reported Elizabeth to Thames Valley Police for allegedly stating threats against me. I then had to lodge my complaints to the Police in stating that they were knowingly prescribing drugs previously found to be allergic to and even now they have switched the drugs to a combination that is entirely wrong so what do you expect. I therefore had to state that I was concerned for Elizabeth’s wellbeing. It would have been better if they had called me first rather than go to Police as if they are not busy enough and if I as a mother have no concerns whatsoever and are far more concerned as to the drugging regime and care than anything else.
Lastly, there is a gym at Elysium – not once has Elizabeth been taken there.
Garden leave was once a disaster and time spent arguing what was promised and should have been recorded on records.
The grounds are extensive but it looks like a zoo surrounded by high fences and the grounds should be made attractive and house a swimming pool and other nice facilities especially when some patients are still there after 1.5 years.
When you think of the huge money Elysium are getting what they need to consider is what is therapeutic to the patients and animals are therapeutic so correct me if I am wrong I could not see anything like this being offered to patients and when you look at the case of Bethany then these facilities are totally wrong.
Any recommendations to the Tribunal with reasons
That Drs such as this and at Cygnet Godden Green and not forgetting Barnet, Enfield and Haringey MHT never be allowed to write any reports for any tribunals ever again as they are not fit for purpose and deliberately written with a view to failure and incarcerate a patient whilst they rake in the money for treatment and environment that is totally inappropriate and has not worked over many years because of misdiagnosis.
I received the letter yesterday Recorded Delivery but noone signed for it. It was just stuck in the letterbox. According to the envelope it was post marked 12 October and the letter itself was dated 8 October.
I am not going to defend myself as previously stated but leave my readers to judge for themselves.
I have never met the above professionals in my life.
Here is what I have been accused of:
have harrassed
have threatened
have been personally abusive or verbally aggress towards staff dealing with your complaint
have in the course of addressing or raising a complaint had an excessive number of contacts with the trust placing unreasonable demands on staff
Persist in pursuing a complaint when the trust’s complaints procedure has been fully and properly implemented and exhausted, or it is not within the trust’s remit to investigate.
Are unwilling to accept documented evidence of treatment given as being factural eg drug records, manual or computer records, nursing records.
Intimidating
Using abusive or threatening language
The letter states that the “Deputy Director of Nursing and Head of Patient Experience have reviewed your communications with the trust and concluded that in order to ensure all concerns are responded to through a single avenue, all correspondence from you will be managed under the trust vexatious complaints policy” Let us then cut out the correspondence and choose a much more suitable single avenue and save money on paperwork. I cant think of a better avenue than Twitter.
“The trust has responded fully to the points raised in previous complaints and has tried to resolve the complaint but there is nothing more to add and continuing contact on the matter will serve no purpose. The correspondence around previous complaints investigated is at an end and any further correspondence received will be acknowledge but not answered, although as previously advised, you do maintain the right to request an Independent Review by the Ombudsman. ” Well said! There is nothing more to add because they haven’t got anything to say in their defence. How convenient to end a complaint in this way and avoid answering anything instead of a simple apology.
I have been guided to Pals and a guy called Richard was in contact with me when Elizabeth was sent to Cygnet Godden Green but since then, and that has been quite sometime, there has been nothing but a wall of silence. In other words absolutely nothing has been dealt with.
All clinical requests about your daughter must be sent to Lucy Omezi, Team Manager Enfield Community Rehabilitation Service– they are based at Park Avenue Bush Hill Park Enfield but my questions are why not the CEO in overall charge of the Trust? I have already written to that department requesting a CTR and also an adaption to Elizabeth’s bath as she has now gained enormous weight due to the drugs prescribed – take Risperidone and Olanzapine – they are notable for causing weight gain and diabetes. Not a word in response to my email.
These restrictions are intended to safeguard your right to complain or raise concerns about current aspects of your daughter’s care and for them to be managed appropriately whilst protecting our staff.Yes – that is what it is all about protecting your staff never mind the vulnerable patient or her family who are treated like dirt.
The vexatious management plan will be reviewed on a yearly basis by the Deputy Director of Nursing and Head of Patient Experience. – “whilst protecting our staff“.
The letter is signed by Amanda Pithouse, Chief Nurse and Mehdi Veisi Medical Director.
PREVIOUS VEXATIOUS COMPLAINANT THREAT FROM BEHMHTNHS PROFESSIONALS
Now this is something I can talk about. See extracts below of just some of my corrections to defamatory comments written when Elizabeth was abused under care provided in the community under a scheme called Moti Villa at the time I was a trainee Police Officer. I can prove everything as I thorough investigated.
DM’s opinion on “same issues” is contradictory, according to file records for example:Email from LS dated 18.05.2011 13:37 to (AA) cc TO, VB, SJ and AJ :“Dear AI absolutely agree with J.SB’s behaviour is unacceptable and impacting on our ability to provide appropriate care and treatment for EB. The position insofar as community services is concerned is quite intolerable. As you know we are also of the view that SB’s behaviour has a very detrimental effect on her daughter’s mental state. I have asked the clinical team to look into the matter again from a safeguarding perspective. We also really must put some boundaries around this woman. I had thought that when you V and I met a couple of weeks ago that we were agreed that legal advice would be sought regarding the vexatious complainant route? I cannot remember whether I passed on the info that DS (Commissioner) has forwarded the complaint he received to the NCL Cluster to be addressed so would expect them to be in touch shortly. He did mention an independent review being carried out and, after discussing the matter with P I advised him that we would be happy to comply if they commissioned another opinion. Regards L.
From : SJSent 18.05.2011 at 13.04 – cc LS, OT, VB “Potential vexatious litigant” …….A we are having quite of email and telephone traffic from Mrs SB, mother of EB. I was briefed by L who knows the family well and had to deal with years of complaints from her. I understand from V that the Trust was trying to progress this woman to be a vexatious litigant. V seemed to think it was the case that there was a piece of work that you were doing in ensuring that all previous complaints had indeed been exhaustively looked into. Can I ask where you are with this and when it will be completed as it does take a lot of management and clinical time to manage Mrs SB’s complaints. She is currently phoning the CEO. (“HER DAUGHTER IS ‘HAPPY’ WITH CARE SO IT WOULD BE VERY HELPFUL TO PROGRESS THIS THANKS”). From: VB to CD cc AA, LS re Ombudsman dated 10.08.2011 at 10.17“Hi C, I don’t know if A sent Mrs Bevis a copy of his report. He did the report because everyone wanted Mrs B to be classified as a vexatious complainant and I said “THIS COULDN’T BE DONE”: until someone went right through all her complaints and checked that they had all been answered and that she didn’t raise anything new. No – we haven’t received any letter from her to my knowledge. I was there when she phoned but haven’t seen anything since Regards V” . From CD sent 10.08.2011 at 10.12 to VB, LS and AA.“V, can I please have a copy of the last response that went to Mrs Bevis where she got a copy of A s report. I have asked for this a few times as has the Ombudsman. Without this having happened, we have not done all we can. Did you get the letter she said she dropped to the unit when she cancelled our meeting on 4th? From CD to VB cc AA, LS 10.08.2011 at 10.33“we have done that – the ‘new’ was the medication and that is now getting a second opinion. Can she please be written to advising of the outcome of the review held by Trust which is As very clear, report which could be shared with her. L informs me a referral for second opinion is going to Maudsley that should be shared, as it addresses her only new complaint. Not having responded perhaps leaves it incomplete. We did right thing offering appt. She declined now we have opportunity to be seen to wrap it up with sending report we were to discuss and confirmation we believe we have responded and are satisfied we are offering adequate service but are seeking second medication opinion. We can inform Ombudsman this is the case.
From OT To LS, AACc VB, SJ,JA Re: Potential Vexatious Litigant sent 18.05.2011 at 13.57I would favour an independent approach because it was ME, YES ME. I am still smarting from it, who felt the brunt of the last Ombudsman’s criticism – have you not read the letter yet it’s on file? Because I sought to intervene to assist others who quickly sought refuge in the phrase “we were not criticised it was the Management”. So when one talks about knowing the history as it were ……….make sure you get to know it all this time.
“VB concludes “Why I believe for it to be inappropriate for Mrs B to be labelled as a vexatious complainant is that although she undoubtedly complains prolifically and is also abusive and threatening at times, she keeps bringing up new issues which makes it impossible to label her as a vexatious complainant – O mentions the Ombudsman – should Mrs B go to the Ombudsman this would be her thoughts on the matter and the Trust would be highly criticised.”“L recently recommended that Mrs B should be given the name and contact details of one person who should the person with whom she should liaise over any problems to do with her daughter. I consider this to be a very good idea. Perhaps this person could have a PTS background or advised by that department? Just a thought as I remember that JF helped me a lot in the past in communicating with a lot of very troublesome complainants. I see that DS will no longer be commissioning a clinical review of EB’s care.”
CONCLUSION BY SBThe “same issues” as stated by DM are those that were never properly investigated by the Trust in the first place, because no one wanted to admit/take responsibility for what had happened. EB was left in a situation where she was forced to remain living at Moti Villa right next door to the neighbour who brought his friends into the Project that abused her and whom successfully appealed against his eviction. It was some time before EB was moved to another floor which was considered to be an adequate solution but EB was clearly unhappy at the scheme and SB wanted her moved to somewhere where she could feel safe and happy.Contrary to JS’s comments on her being “happy there”, the file note from
Dr HM stated in a file note 02.03.2011 when she visited with YOD- AMHP (13.09) “EB was very clear that she had stopped taking her medication because she wants to be readmitted to hospital “for some peace”. Tenant below her playing loud music throughout the night – her sleep disturbed. Last night she called Police about this matter. Reassured we would speak to staff about this. EB said it was not true she had taken cocaine but had said this because she was feeling cross with the home treatment team.” Originator – KL – SJOG (St John of God) support worker advised that EB “hates” where she is living. EB advised family she “did not want to go back to Moti Villa and be raped by lots of men”.
Please can @DACBeachcroft forward me the recording of me “impersonating another mother” by Cygnet Godden Green. I did not know I possessed such talent.
Your 14 days are up and I would like to feature my starring role on my website please. I would not mind it appearing on YouTube.
My readers are waiting to hear so please can you hurry up with the recording. And Cygnet Godden Green – Please don’t tell me you have lost it as I will be most disappointed.
Section 23 Notification of Discharge by Nearest Relative
To the Managers of Thornford Park Hospital, Crookham Hill, Crookham Common, Thatcham, RG19 8ET.
Order for discharge under section 23 of the Mental Health Act 1983.
My name is **********and my address is ********** To the best of my knowledge and belief, I am the nearest relative (within the meaning of the Mental Health Act 1983) of Ms Elizabeth Bevis (DOB ********). I give you notice of my intention to discharge the person named above, and I order their discharge from detention in hospital.
The above is the standard discharge notification to a provider that a Nearest Relative can submit under the MH Act. Elizabeth has been at Elysium for two months. No Autism Assessment has been completed and I have been told this cannot be done under a PICU ward as it takes too long. They have also tried to say Elizabeth will not cooperate but then if communication is not good by professionals this could be the reason after all this is a mental health PICU not a specialist place where assessments can be undertaken for anything else than MH. Elizabeth has been sent out of area a fair distance away from home yet again and we have experienced difficulty in getting through on the telephone. Visits are intrusive and restrictive with one member of staff after another sitting listening to every word and writing notes. I have never come across quite such restrictions before under a PICU and advised the CQC inspector I spoke to today in this connection. The RC, Dr DM has already admitted a PICU is not the right environment for Elizabeth so in that case let’s see his response as I as NR am not happy with Elizabeth being in this facility. Family members could not get through on the phone recently and that is because Elizabeth was put in seclusion for about a week. It makes you wonder what on earth is going on behind closed doors and I found out today that the CQC take a very different approach since the pandemic which I believe can lead to patients being abused behind closed doors as if they only centre their investigations on a local basis who is watching what is going on fully behind closed doors. I spoke with CQC Inspector SG but in the absence of inspectors going onto wards I feel this leaves patients at huge risk. The providers that are private such as Cygnet, Elysium, Huntercombe etc. are making a fortune. Take Cygnet Godden Green for instance. They have made £28K over just 5 weeks for what exactly – for prescribing a drug (Paliperidone – Risperidone depot) previously found to be allergic to. Elizabeth said “I will never get better in here”. Attention needs to be turned to the CCGs who spend vast amounts of money that could be better spent on providing more in the local community
I am waiting for the rest of my FOI request because in a short space of time my Elizabeth has been sent to one PICU institution after another and placed in seclusion three times locally. The NHS has failed dismally to help her and just drug her, threatening if she does not wish to take the medication then they will inject her. The NHS have also bullied Elizabeth’s family, particularly the Nearest Relative who has dared to challenge them which in this case is me.
An Autism assessment has not been done in two months and when you think of the astronomic amount of money Elysium get then if they cannot do it, as has been admitted, then surely funding should have been transferred to another provider. It is also conflict of interest when an expensive provider such as Elysium is undertaking assessments on diagnosis themselves, whilst being paid enormous funds by the local area who they are closely in touch with. They are after all a PICU ward for mental health, not a specialist ward for LD/autism and at a recent important meeting, the response by the RC of Corridge Ward was, when questioned, certain procedures re the autism assessment had not been carried out and the assessment was therefore not completed properly. Their excuse was that Elizabeth would not cooperate but if there is a “language barrier” then what on earth is Elizabeth doing on a MH PICU ward in the first place, particularly when there is massive conflict of professional opinion and disagreement on diagnosis.
It is astonishing that North Central London CCG are wasting huge amounts of public money on providers who have failed to carry out proper assessments and all they are doing is polypharmacy drugging. When previous provider Huntercombe Roehampton stated Aspergers questions must be asked why was this ignored by the RC of Suffolk Ward Chase Farm Hospital, Dr HM? To think 3 doctors stated this yet the RC from Suffolk Ward chose to ignore.
At least Dr NS of Ruby Ward St Pancreas Hospital PICU was honest enough to say “we are guided by the local area” – well of course they are! It is all down to money and who is paying for their facility which is ENFIELD. The RCs of different PICU wards where Elizabeth has sent from the local area are desperately trying to back the doctor in charge of Suffolk Ward, Chase Farm Hospital Enfield who has stuck to her belief of Schizophrenia and EUPD yet failed to provide any scientific evidence whereas I have presented scientific evidence of the P450 liver enzyme tests that Elizbeth cannot metabolise the drugs. No wonder they do not work and this means she is subject to adverse reactions How many years have gone by and still no improvement only decline in Elizabeth’s condition. It is down to lack of communication and understanding by various mental health professionals but a PICU should only be used short term and now it is 2 months at Elysium and her detention under this private hospital more like a prison could go on forever judging by J Robson’s email below. Even some professionals appointed under Enfield concluded Aspergers/LD/complex PTSD and Anterior Region Medial Temporal Compromise. Then they try to state that the person concerned is psychotic plus has autism traits. I am not taken in by this at all and I believe the reason that Procyclidine was/is being introduced is to cover up serious things they have noticed in terms of Elizabeth’s physical health such as tardive dyskinesia. There is a whole report by Dr Bob Johnson, that is the most reliable and truthful of all, which clearly states “Complex PTSD” – this would be true considering the multiple abuse under Moti Villa. I would go one step further and state “Dissociation”. Dissociation is a coping mechanism which is certainly not understood at all at Elysium, where Elizabeth currently is right now. The strange accent and even some actions such as her stroking her hand whilst being interrogated by the RC even I as a mother can understand. Why is this seen as a mental illness rather than a coping mechanism maybe of some comfort to a deeply traumatised patient. What is so very wrong in this and if I as a mother and NR had been invited to any ward rounds I could have explained everything to the RC but at Elysium there is no interest in the family or any contribution from them and so none of their reports can be relied upon in terms of accuracy.
I have today found out that Elysium are trying to drug Elizabeth with several different drugs known as polyphamacy. I have never come across a hospital like this one where they blatently ignore the scientifically based P450 liver enzyme test results which have stated “poor/non metaboliser” What they are doing is dangerous and can result in adverse reactions. Also honest doctors like Dr Ann Blake Tracy state that when you change a drug then this can result in adverse behaviour and instability. So no wonder why she is on 1-1 and that they have tried to discourage contact with family and especially the NR and mother who has become knowledgeable about the drugs due to seeking advice from leading professors. Elizabeth has today stated she would like me to visit and I have witnesses to this effect. The response from these professionals employed by Elysium state that “I don’t have her permission to speak to you”. In other words they are hiding behind confidentiality. However Elizabeth has today said clearly she DOES give permission and DOES want her mother and NR to visit at the weekend along with her sister and a close friend.
So what happens when you submit a letter asking for discharge. I’ll tell you straight – two doctors and an entire team gang up backing one another. It requires two doctors opinions and of course they are going to stick together like glue because it is lucrative to hang on to someone like my daughter for a very long time whilst the local area of ENFIELD sit back and do absolutely nothing and of course pay extortionate amounts of money. The NHS clearly has money to burn/waste. As you can see from the email below from North Central London CCG NHS my one hope of any kind of justice was via a CTR (Community Treatment Review) I had never heard of this before and got to hear through other parents. Now my hopes have been dashed. It was Jeremy – Bethany’s Dad who told me about CTRs and this gave me such hope as it is by an independent panel but now I have no hope at all as nothing is ever done fairly under ENFIELD and instead of a CTR a CPA is being called Care Programme Approach. Elizabeth is being treated apallingly. She has asked for her care plan several times but tells me she has not been given it. So without a proper diagnosis Elizabeth is forever stuck under the MH when she needs to be with a different team who can communicate effectively. She clearly stated at the recent meeting she did not wish to be under the mental health team any more. She also said that the medication was not doing her any good but she would continue with the forced injections provided they were being reduced in dosage.
Elizabeth told me she is on 1-1 just like at Cygnet Godden Green. Imagine what that must be like to be followed everywhere by a member of staff. To think back in 2016 it took just 1 former experienced former nurse through Working to Recovery to take her on holiday to France and Spain, to Australia. Elizabeth had freedom. What she is getting right now is worse than any prison. In France Elizabeth went out shopping on her own and was treated like an adult. In Australia likewise plus on Isle of Lewis also not followed around like a baby. This is not right at all what is going on – how can you expect someone to behave like an adult and responsible unless you treat them with respect.
Elizabeth contacted me today but she has to go out in the garden to use her phone due to poor reception. Yesterday she spent much of her time in bed as she did not feel well. Of course when you switch medication it causes someone to become unstable and feel unwell. This would apply to anyone who is put on psychiatric drugs.
So I enquired what the new drugs were and it would appear that Dr DM of Corridge Ward is prescribing Olanzapine (Zyprexa) together with other drugs and lots of different pills are being presented to Elizabeth to take and she has been threatened that if she does not take them then she will be forcibly injected. What seems to be the Lead Nurses at Elysium is Faizer and Sean Francis. I have recently spoke to Sean Francis on the phone. The person who has overall control is Dr David Morton RC of Corridge Ward.
So this is the treatment that goes on under Elysium and other institutions – so if someone does not take the drugs they are pinned down and forcibly injected and I would describe this as torture not care and the reason I have been excluded from ward rounds is because no-one wishes to hear the truth that what they are doing is so very wrong but what is really wrong is a law that allows this to happen in the first place. Procyclidine if this is one of the pills being given on top of the Olanzapine is for Parkinsons so it would seem they have noticed some abnormality in Elizabeth as why else would this be prescribed? OR Is it to cover up sharp movements seen and to carry on drugging for convenience sake to the extent a patient does become very ill and injured? When someone develops TD (tardive dyskinesia) I have heard they need to be taken off the medication. A drug to cover up the side effects of another known to cause Diabetes, last prescribed at Royal Bethlem Nat Psychosis Unit Beckenham at maximum dosage mixed together with Quetiapine – drugs prescribed at 2 x BNF level at the National Psychosis Unit – a so called renowned hospital but I can prove otherwise. I have extensive records to show just what this hospital is all about and also the disturbing truth that Elizabeth was critically ill during the titration of Clozapine when she developed tachycardia (Mews Score 3) and not one single ECG machine working.
So Elizabeth told me she is being forced to take three tablets – three different drugs ie Olanzapine – Lorazepam prn and I believe the other is Procyclidine. Unfortunately Faizer has failed to return my call. Then when she is released/transferred elsewhere the RC of that ward will just continue with the drugging regime.
The Response below from J Robson is unsatisfactory as enough public money has been wasted. Elizabeth has not benefitted and is unhappy and has told friends she wants to come home. It was heartbreaking to know that she was in her room the other day, didn’t want to go out in the garden, didn’t want to know about the pigeons that visit her flat balcony. She didn’t want to speak to anyone. There was important family news to tell Elizabeth and a happy occasion to look forward to but yesterday she was well in the slightest bit and it is no wonder why when nurses such dish out a multitude of different drugs to patients meant for schizophrenia and fail to do a proper assessment because they simply cannot and Elizabeth should never have been sent to a PICU in the first place especially as I have notification from Huntercombe that mentions very clearly what condition Elizabeth has and it is NOT MENTAL ILLNESS. Just look at the response of J Robson when he is spending a fortune of public money because the NHS has failed dismally to provide anything decent. It is most disturbing to note “we need to work with Elysium” – well it is important to inform the public just how much money NORTH CENTRAL LONDON CCG is wasting and who else could be behind this enormous expenditure and there needs to be accountability for this when nothing of the right kind of care/facility is provided and then he states “we cannot undertake a CTR until Elysium carry out their autism assessment” . Then in that case I need to look at other avenues.
I will let you know the total figures of what has been spent by North Central London CCG in due course as this is of public interest.
In addition, further money is wasted on the legal process of Tribunals which is tremendous ordeal for my daughter who is autistic and has complex PTSD.
J Robson’s email below also states that an autism assessment is normally carried out in the community but if that is so how come I have tried so very hard to obtain this for Elizabeth who wanted to be transferred to another team as in her own words noone could understand her. Enfield is an area that tries to make out they have a good image whereby they treat disabled people with respect and fairly under the Equality Act. I would say the complete opposite is applicable.
So getting back to the letter of discharge – what happens next. You then have to wait for response from the Responsible Clinician which in this case is Dr DM. He will most probably get someone else to back him (another doctor) if he/she wishes to hold someone longer. So then when 2 Doctors agree on this tactic they issue a Barring Certificate and try to stop the NR in discharging the patient by writing an extremely negative report.
When they bar you that is when they can try to get rid of you as the Nearest Relative and take you to court which this has been done frequently and they state that you are being unreasonable when the opposite applies. The whole system is a joke and fails to protect vulnerable people like Elizabeth and their families. I have received confidential court papers sent on my work computer and have been harrassed with phone calls at work by AMHPs intent on detention under S3 in the past and have been given just 1 day to consent or else be displaced with another relative – in this case her father. It is all about threats and bullying and when you are not given appropriate notice then how can you organise a solicitor to back you. In 2014 I was taken to the CoP and had no solicitor to back me. However I have to praise this court highly for acting fairly. The court case followed another as Enfield Community Rehab Team deprived Clozapine for four days (NOT 2 as they state in the files). I kept a diary of it all. So I had to seek advice from leading professors – experts on the drugs and I then tried to obtain it from Harley Street privately as after 4 days Elizabeth was on the verge of withdrawal. Anyway the case was called “DEPRIVAL OF MEDICATION COMMUNICATION CARE”. Then Enfield Community Rehab Team tried to take me to CoP. Again no notice and I had no representation and they wanted to force her back to a care home because the LA was paying for this which was Phoenix House Stepping Stones in Northampton rated “good” by the CQC. However at this care home Elizabeth had no food at the weekend so how could this be rated good? It states in file note dated 18.03.14 from Phoenix House 218-220 Kettering Road Northampton “EB was rude to staff this evening- she was criticised to watch her foods as she had no food during the weekends. EB apologised about her behaviour” Also the drug Clozapine was declined when I tried to obtain it by offering to drive all the way to Northampton. An RMN told me it was more than his job was worth to give me the drugs so I then had to try to get it locally and I was told that “you will not get the drug anywhere in the local area”. It seemed like everyone was backing the team and my story “Get Her Back We Are Paying For That” describes the bullying we encountered. However the CoP were extremely fair and as she had full capacity they had to acknowledge Elizabeth wanted to be at home. If she had returned to the care home she would have been without food at the weekend.
Response from J Robson NHS NORTH CENTRAL LONDON CCG
“Hi Susan,
Thank you for your E mail .
I tried calling you yesterday – but your phone was off .
I will be in contact with you at the end of next week with a confirmed date for a CPA
I have requested that an Autism assessment is completed some weeks ago by the Elysium.
We will be chasing them to advise on progress .
We cannot undertake a CTR until this has been carried out.
Has your daughter ever had an assessment at SLAM for Autism if not I am requesting this to be completed as well.
This is the usual route when people request this are not in a hospital setting .
I have asked that the CPA look at all options for step down whilst this is carried out .
Once we have a confirmed diagnosis , We will arrange an urgent CTR .
As you are aware , your daughter is under the Mental Health Act , so we need to work with Elysium until She is ready for step down From the FPICU facility .
I intend to ring you by Thursday Morning with a confirmed date .
Many thanks
J.
Well he is talking about next Thursday morning so I will let you all know when in due course. No doubt this will be done via Microsoft Teams. I will also keep you informed as to whether I am barred and as to whether I will be included.
I enjoyed representing myself in court back in 2017. I have never done anything like this before but I liked preparing all the paperwork myself and making sure that the Judge had corrected versions of all documents submitted by the LA. The Royal Court of Justice wanted to meet Elizabeth who was excluded but it was then confirmed she had capacity.
Then what happens is a firm of solicitors can be appointed but in her case the representing firm told Elizabeth that her mother would lose in court and incur extensive costs and advised that she should appoint her sister as NR. I then had no choice but to back and her sister was delegated the role temporarily.
I was then presented with a Consent Order where the LA tried to get me pay £5000 in costs so I crossed out the paragraph I did not agree with ie the costs and sent it back. When I checked with RcJ noone went back to court and realised that I was the Nearest Relative I took back my role by presenting paperwork directly to the l Courts and Tribunal Service and a tribunal was called.
When someone like Elizabeth has been misdiagnosed and receiving the wrong treatment it is a never ending circle of Tribunals/displacements/threats etc – this is why we need a different system. How many people have to attend a Tribunal. The panel consists of a Judge, lay person and a doctor. If this fails on the part of the patient then the NR can step in but what is wrong is that the NR is often bullied and sometimes paperwork is drawn up unlawfully. I have a cheque to prove this as I challenged an illegal detention of 16 hours. Elizabeth received just £1 compensation which I have framed as souvenier. Now further compensation should be considered by ENFIELD as I as NR discovered that a second unlawful detention was made, this time for c5 days and I think there needs to be further settlement which, despite the Bostridge case, should surely come to more than just £1 bearing in mind lessons have not been learned.
On December 17, 2006, The New York Times began a series of front-page stories about documents obtained from Alaska lawyer Jim Gottstein, showing Eli Lilly had concealed that its top-selling drug caused diabetes and other life-shortening metabolic problems. The “Zyprexa Papers,” as they came to be known, also showed Eli Lilly was illegally promoting the use of Zyprexa on child…
Jim Gottstein grew up in Anchorage, Alaska where his father was a prominent businessman and his mother one of the most beloved women in town. Jim was on track to go into the family grocery and real estate empire, studying for a business degree at the University of Oregon when the law found him during his required Business Law class. He didn’t miss a question the entire class and realized law was a good fit. He managed to get into Harvard Law School as the only sky-diving applicant from Alaska that year.
After graduating from law school in 1978, Jim went into private practice in Anchorage with Robert M. Goldberg, primarily representing Alaska Native organizations. In 1982, he experienced a psychotic break due to sleep deprivation and was introduced first hand to the mental illness system. He was told he would be permanently mentally ill and to forget about his law career. Luckily, he escaped psychiatry and the experience led him to legal representation and other advocacy for people diagnosed with mental illness not as lucky as he. Jim opened his own law office in 1985, generally focused on business matters, and is now mostly retired from the private practice of law. In 2002, Jim founded the Law Project for Psychiatric Rights (PsychRights) to mount a strategic litigation campaign against forced psychiatric drugging and electroshock, and to inform the public about the counterproductive and harmful nature of the drugs and shock. Show More
I must say this looks a very interesting book and I must get this for my collection. I have plenty of interesting books and another one I like is Pharmageddon and Emotional Health by Dr Bob Johnson. I am going to get in contact with the Author of the Zyprexa Papers.
She has been prescribed various antipsychotics including Olanzapine, (Zyprexa) risperidone (to which she developed a rash) and aripiprazole, with no response.
‘verbal physiotherapy’ cures frontal ischaemia. My book, How Verbal Physiotherapy works, using social delight to defeat social harm, for all is now up on Smashwords. A paperback version of Verbal Physiotherapy book will be available. More to follow. I’ve just completed a key note speech to a conference in Copenhagen, which was well received.
This book I have amongst my book collection “How Verbal Physiotherapy Works” – perhaps Elizabeth should be having this as treatment instead of a cocktail of poisonous chemicals including I think a Parkinsons drug that she cannot metabolise proven by the P450 liver enzyme test results.
They make you feel like nothing. You are slagged off behind your back, written about in the most negative terms, defamatory comments consistently written in reports by Professionals who take over control and all stick together. They deprive contact with family and quality time spent with your relative. They are rude and put the phone down, then it takes a long time to get through on the phone. The mobile phone forever charging in the office or switched off and there is bad reception. In some cases the patient’s mobile phone can go missing, in other cases it is broken and noone tells you. When you are paying for a contract you wish to know if your relative still has the phone and not speak on a hospital phone which for all you know may be recorded. There is no feedback, no inclusion into ward round meetings – nothing. You are treated like rubbish as though you are invisible. Tribunals are geared to fail because doctors have written the most dreadful negative things and some cannot even get the date of birth right. For a patient to have to sit there listening putting their hand up to speak and being ignored is abuse. When it comes to the family they have little time allowed to speak unlike the professionals who are over represented in their opinion yet exclude the family from everything.
It has now been 2 months since Elizabeth was sent to Corridge Ward, Elysium Healthcare, Thornford Park, Thatcham Berks. This is paid for at enormous cost by Enfield CCG – the Mental Health Commissioners are Peppa Aubyn and Jon Robson. She seems to be deteriorating and we know she is not happy there. Nothing that has been provided so far has been right for Elizabeth. The idea to send someone so traumatised they cannot settle on the local acute ward far away from home has been tried now 8 times. What a huge waste of public money. No questions have been asked as to why care has so hopelessly failed.
The reason care has failed is because Psychiatric Intensive Care Unit are not the right environment for someone with sensory issues and do not specialise in Autism for which Elizabeth has been documented to have throughout the files. So it is down to environment, treatment and assessment but the treatment currently given is for Schizophrenia and no-one in the local team will budge on it despite the fact it has finally been admitted she has autism. No assessment will ever be done fairly under a mental health acute ward or PICU and Elysium have made disturbing admissions regarding this during my phone call yesterday.
I have received very sad text messages from Elizabeth that she is not happy, that she wishes to come home and to be discharged from hospital but I can imagine that this hospital will want to keep her for as long as possible whilst the local area of Enfield do nothing to review the fact she wishes to be with another team. Enfield CCG are paying for wrong facilities at enormous cost of no benefit to Elizbeth and damaging not only to her but her family.
Decisions are made by the Responsible Clinician who staff stick by him. Family have been excluded from the very beginning and not wanted to attend virtually at Ward Rounds. There has been liaison between the Responsible Clinician of Elysium and RC of the Suffolk Acute ward responsible for several seclusions lasting days on end and constant referrals out of area who firmly stick with the diagnosis of Schizophrenia. Being mental health they are not professionals on autism.
When you see someone going downhill as Elizabeth, deprived of family contact/quality time with family this has a knock-on effect and lack of support and bullying towards Elizabeth and family have led to physical ill-health. It takes away your appetite and you cannot sleep. Staff deny seclusion is punishment but both seclusion and exclusion we see as just that.
If you are not Nearest Relative they ignore you completely. If you are Nearest Relative you are also ignored and excluded and if you disagree with treatment you get signposted to a single member of staff to take your calls, to stop you from contacting others to find out information then they hide behind confidentiality by saying the patient does not wish you to know anything but this is done to protect themselves. Coercion and gaslighting is often used when a patient is isolated and staff then have huge influence. I would describe my life and that of Elizabeth as just an existence – there is no hope in sight, no communication whatsoever and in the current pandemic nothing is running efficiently which leads to further delay in outcome.
In such hospitals which are like prison patients are deprived of leave with family, fresh air and families are likewise punished by not being allowed even the smallest amount of time alone. They are deprived leave on the say so of the RC if the RC says that person is not well enough. This is often not the case. At Cambian Elizabeth was said not to be well enough to see family over Xmas but was brought down flanked by 2 nurses to the family home. Rest of family were allowed greater leave that was unescorted. So you are punished. You are treated like a criminal if you dare to disagree with the RC on treatment and diagnosis. Every single visit escorted and intrusive. One member of staff after another sitting there listening to your conversation with a note pad writing down, recording and observing everything said. It is apalling and degrading to be treated this way and never before have we come across such restrictive measures than that at Elysium Healthcare Thornford Park. When you complain staff point the finger of blame on the Responsible Clinician which in this case is Dr DM of Corridge Ward who makes all decisions. The staff and MDT (multi disciplinary team all back him to the hilt.
For about 4/5 days Elizabeth was put in seclusion. No-one knew and in seclusion phones are not allowed and that person cut off from the outside world but this must be terrifying for someone who has a Learning Disability or Autism.
Without proper assessment Elizabeth is stuck in a nightmare situation and Elysium admitted that the assessment had not been completed and is not likely to be finished. Unless such assessment is carried out independently there is no hope for Elizabeth. Yesterday when I spoke to Elysium about my concerns they said that an autism assessment took a very long time and admitted that it was not possible for them to carry out such assessment completely when PICU wards are only for short term but now two months have gone by and Elizabeth has been blamed for not cooperated with the assessment. The RC and previous doctors admit there are autism traits, no final decision has been made therefore a wrong diagnosis sticks. Lack of appropriate communication skills perhaps or bearing in mind treatment that Elizabeth cannot cope with too long an assessment perhaps whereas it could have been done in very short stages over the period of two months.
The local area of Enfield is paying for such care yet state it has nothing to do with them but I believe they have huge influence and have seen this in past file records. The current RC of Corridge Ward has been in touch with the RC Dr HM of Suffolk Ward and the RC of St Pancreas Hospital admitted that they were “guided” by the local area.
Failures of tribunals are based on dreadfully inaccurate reports full of error. Not even date of birth or past history correct and this ultimately results in long term incarceration. It is the local area of Enfield that you need to look to for answers but right now there is a wall of silence. We have experienced nothing but bullying – they have failed to work with the family. They have deprived a proper assessment into autism for many years and have refused to acknowledge complex PTSD and appropriate treatment, bearing in mind multiple abuse and neglect at scheme in the community Moti Villa. Instead professionals have turned their attention on the family particularly the Nearest Relative they have sought many times to displace through court after court at huge public expense.
Attempts of displacement have been made at County Court, CoP and RcJ , confidential court papers sent on the work computer and harrassment by social services to bully you into agreeing a S3. The local area of Enfield have tried to displace me with another family member and the last time tried to put their own representative in my place but I defended myself in court. Whilst full court details not given, only time of Hearing and name of Court displacement temporarily went ahead and a gloating social worker barged in on my visit to see Elizabeth at the acute ward Suffolk with a piece of paper “let’s face it your mother is not fit to be NR” or words to that effect and “London Borough of Enfield are now your NR”. However the Judge wanted to meet the NR and hear more from Elizabeth who was excluded like she was invisible. Elizabeth was then faced with having yet another capacity assessment independently and was found to have capacity. I then was forced to delegate my role and threatened with £5000 in costs.
So when a tribunal fails the Nearest Relative has an important role. The role as NR enables you to challenge the section and this is done through a hospital manager’s Hearing. At Cambian the Hospital Managers would not release paperwork so this did not go ahead. A tribunal was applied for and an independent Doctor’s Report and this was by Dr Bob Johnson who wrote accurately on everything. He said she had complex PTSD and needed intensive trauma therapy but this has never been given. The report was deprived to Elizabeth and ignored by all the team. Elizabeth might be better now if the team had listened.
The law is supposed to protect vulnerable people like Elizabeth under the MHA but it does not. The law does not look at other aspects apart from whether a doctor thinks the patient is fit for release on the basis of “risk to self or others”. It is never about risk to the patient or whether the patient is not getting better because the treatment does not work. The treatment is supposed to be reviewed after 3 months but this is not done fairly at all.
A SOAD doctor appointed by the CQC sounds good but this has not been our experience as all they do is to stick together with the RC who gets other doctors to back them but there is huge conflict of opinion as there are many who disagree but then they say that CURRENT diagnosis and drug treatment given is not working whatsoever. The current environment of PICU every RC has admitted is wrong however when the local area of ENFIELD do not come up with a solution then this is why someone like Elizabeth is left languishing on a ward that is not helping her get better and huge amounts of money are being wasted.
The worst thing about appealing against a section is that the entire team stick together and go out of their way to destroy you. What the RC does is to bar you then they get another doctor to back them which is easy to do. They they try to get rid of you for being “unreasonable” in asking for discharge. So then you as Nearest Relative have to appeal and you have to appoint a solicitor. At this level you get legal aid and when the hospital manager’s meeting fails then Tribunal is the next step. It is such an ordeal for my daughter to have to sit there listening to all their negative comments and for me as Nearest Relative. In fact it is heartbreaking. Elizabeth has full capacity. How many times do they have to put us through this as a family. How many times do I have to defend myself in court against professionals that write nastily and have the power of the law behind them and no-one challenges lies written in many cases.
At the RcJ during the hearing the AMHP presented the Judge with papers I had not seen. I was Litigant in Person and the Judge asked if I had seen the paperwork to which I replied no. I was then handed a copy of a negatively written interview two AMHPs had with Elizabeth when she was obviously not very well.
It is never ending and no solution in sight. All this has a devastating effect on my health and I was in intensive care in January – there has not been a scrap of help in my local area of Enfield.
I have now requested a CTR (Community Treatment Review) but when I phoned the CCG to find out when the meeting will be not one person phoned me back.
Elizabeth was adamant she did not wish to work with the MH team and their appointed care coordinator and neither did she wish to take the medication which all 5 doctors know she was previously found to be allergic to. Elizabeth said it makes her feel very ill after an injection and as a result of fear Elizabeth reacts when staff come towards her in defense. Then staff can say she needs longer detention.
If someone reacts to situations where staff can trigger their reactions down to fear detention can go on for a lifetime and that person drugged and forgotten about. The relative and their family are treated like dirt. For instance staff putting the phone down on you makes you think how can these members of staff can communicate with your relative.
I was told it would take 3 weeks for a CTR to be arranged. One week has gone by and no sign of any date for a CTR so I am posting this blog directly to Enfield CCG, I believe this is now part of North London CCG but in over one week surely the date of a CTR could be arranged.
The ideal solution would be for Elizabeth to move back locally and I am prepared to move in with her but I thought respite was going to be considered and I recently went to Norfolk where they have care farms. I thought I could stay with Elizabeth overnight whilst she spends her time at the care farm run by a MH professional. A care farm is the right environment not a prison. Prison is how I see Elysium, Cygnet, Huntercombe and acute wards and the longer someone is held there the more disabled they become and then of course it becomes more difficult to rehabilitate them in the community and the providers of such care and their shareholders reap the benefit of what the NHS is wasting in terms of public money.
Psychiatric Abuse UK 