After our shocking experience on Xmas Day yesterday I visited Elizabeth but this time instead of crowding into a tiny area between ward and locked door with lots of members of staff not distancing, I stood outside and waited and two members of nursing staff came out to see me. I heard there was not many patients on the ward and according to Elizabeth one had not said very nice things to her but she did not react.
I turned up today (Boxing Day) in the hope that as Police clarified the position on Government Guidelines that Elizabeth would be allowed out in the fresh air, even if only to walk around the grounds. I was immediately told no and that this was a management decision so I was promised to see someone from the management and waited patiently for hours on end but no-one came to see me and when eventually someone did they did not give any information, promised to come back to me but never did.
I could see ambulances arriving bringing patients onto Suffolk Ward so it would not appear that it is being refurbished. According to Elizabeth new patients are not being segregated/isolated whilst tests for Covid are carried out. Elizabeth had such a test a couple of days ago and she is awaiting the results.
I saw about 2/3 new patients arriving on the ward but then suddenly I noticed two men walking towards the exit passed where I was sitting. I recognised the face of one of them. I then looked at his name badge and at least it was not back to front like other members of nursing staff, some of whom like to hide their indentity. I then noticed that this was none other than the Medical Director Mehdi Veisi who along with Amanda Pithouse had written a very nasty letter to me not so long ago. I told him that I had been waiting hours to see someone in the management team with respect to S17 leave for fresh air in the grounds that was granted by the Responsible Clinician. He said to the effect that the rules had been changed again today. I then pointed out that these were not the rules of the Government Guidelines and that Police had backed me the other day. He insisted that the rules had changed but that he would look into this. Well he did not look into anything and just left the building but the other doctor who he was with was very nice and polite. I did get a chance to say what I thought about his letter and that I was not happy about that or the way I was treated yesterday by so many “professionals”.
I then asked what was happening on Suffolk Ward and was I right in assuming they were bringing in Covid patients for assessment or were they on a ward where there was in fact Covid and this was the reason meaning they themselves could develop Covid? I got no answer from him on my query.
On Xmas Day they moved patients off Suffolk Ward – there was about 3 left as circa 12 went to the Priory in Southgate. The other remaining patients went to St Anne’s Sunflower Ward.
No-one told me. No-one gave any information about such move on Xmas Day and I was threatened and bullied by so many members of staff when they had it all written in their records that leave was granted by the RC. Just like the patients held prisoner under the MHA and denied ANY fresh air, carers are treated like dirt under Barnet Enfield and Haringey MH Trust. All it takes is communication and fancy moving patients away from the area on Xmas Day. It is totally barbaric.
So I still do not know what is going on and am only assuming that the patients arriving may have been on other wards where there were Covid cases and Elizabeth was circa the only remaining patient left on the ward because by the time we arrived back after a drive with roof off my car and short walk on Xmas Day, there was no-one on the ward. There were three Police Officers on the ward called by nursing staff and they were extremely nice and had to confirm and explain Government Guidelines to the ward nursing staff (who to be fair were ordered by the bed management to deny such leave). When Police explained I was allowed then to take Elizabeth out but not today. The rules have changed again. It was the most horrific degrading experience yesterday when circa 15 members of staff gathered outside close to my car and had to be reminded to step back by the security guard as they were not social distancing.
I sat there in the foyer today alone but no-one wanted to speak to me and I waited for a long time waiting. I even said I would stay overnight there but I would be wasting my time. I watched all the male patients being taken off the ward for some fresh air. I did not once see anyone from Suffolk Ward (a female only ward) being granted any fresh air. I am puzzled as to why NO patients from Suffolk ward were given such basic rights. I do not see how the hospital ties their rules in fairly bearing in mind Government Guidelines, when they are depriving patients of the basic right of fresh air and exercise and if they were short-staffed as I suspect then it is not fair to just keep someone a prisoner and to punish them in this way. Despite the Covid problem, patients should at least be taken out from Suffolk Ward for fresh air breaks.
I wonder how many other patients are being denied basic human rights that are NOT in line with Government Guidelines when you are a carer, recognised as the “support bubble” by the doctor in charge of the ward.
Elizabeth is remarkably calm but I have heard screaming coming from that ward and alarms going off. Elizabeth, being autistic and having sensory problems, is bearing up well. I can only describe being held a prisoner on such ward as being hell on earth when deprived fresh air and exercise. Surely this is wrong, cruel and against human rights.
In Tier 4 , guidelines are clear to most people but not to Management of Chase Farm Hospital Enfield (Suffolk Ward). When the Responsible Clinician, Dr Helen Moorey consented to Section 17 leave continuing as long as it is within Guidelines this was ignored by the Bed Manager and others today who called Police on me to have me arrested.
Here are the Guidelines:
“You cannot leave or be outside of the place you are living unless you have a reasonable excuse. You cannot meet other people indoors,including over the Christmas and New Year period, unless you live with them, or they are part of your support bubble.
Outdoors, you can only meet one person from another household. These rules will not be relaxed for Christmas for Tier 4 – you cannot form a Christmas bubble in Tier 4.”
Yesterday I spent quality time with Elizabeth agreed by Responsible Clinician Dr Helen Moorey and it was all noted on records. The nursing staff knew I was permitted to go out with Elizabeth for a walk in the grounds but were told today (Xmas Day) that I could not take Elizabeth off the Ward. Only yesterday I spoke to Dr Helen Moorey RC and requested to take Elizabeth out for a drive in my car with the roof down in order to get fresh air and she said “I do not see why not” – the Guidelines state that contact outdoors with 1 person from another household is allowed and I have not been taking Elizabeth indoors anywhere and so am not breaking the rules.
Today I was busy cooking dinner and getting things ready for a Xmas I have never experienced before. I know I am not the only one to have Xmas ruined by these new rulings but what happened next was beyond belief and completely ruined Xmas Day for me. In fact I have never been so threatened before apart from when I visited the Horizon Suite.
I turned up at Chase Farm Hospital Suffolk Ward with Elizabeth’s Xmas present. She was looking forward to seeing me all day long and had been continuously phoning me asking if I was on my way. I turned up with her present and a bag full of Xmas food to share on the ward.
When I asked for Elizabeth to come out there was suddenly a problem. The nurse she was told not to allow Elizabeth to go out of the ward. She said the Bed Manager advised her following a meeting that on no account was Elizabeth to leave the ward on HIS instructions. No-one would give me his name. I felt everyone was protecting the management. I then told the nurse that I had permission from Dr Moorey to take Elizabeth out for S17 leave confirmed only yesterday not only for ground leave outside but also in my car with roof down and masks worn. We spent time yesterday visiting a beautiful park, walking in the fresh air without anyone phoning or complaining because this was agreed with the RC in accordance with Government Guidelines.
Today I was asked by a nurse to come onto Suffolk ward but I declined because I said this was in breach of Government Guidelines – I stood in the little tiny confined section in between the double doors and worse a mask of course. Elizabeth had also come out into that section with me and there were several other members of staff – Oh my God it was the space was the size of a lift. Suddenly social distancing by professionals was all but forgotten about in that confined space. I phoned to speak to the Police as I was so disgusted by such degrading treatment and I waited patiently for a very long time with Elizabeth sitting down on the floor and still the Bed Manager would not speak to me. I then spoke to the Police and got a reference number they were not interested and besides they were busy – they have enough to deal with. A member of staff wanted to speak to the police on Elizabeth’s mobile so I passed the mobile phone to him. Police did not wish to be bothered with such a trivial matter and did not wish to come to the ward so by this time, we had gone outside to my car as I had pointed out so many staff in such a small confined space the size of a lift was in breach of social distancing. I was then asked to come onto the ward itself but refused as this would be in breach of Government Guidelines.
So I told Elizabeth to sit inside my car and took the roof down of my convertible so that we were abiding by Government guidelines. By this time Security arrived and I must say they behaved in a very professional manner and told members of professional staff to stand back as they were coming too close, in line with guidelines as I had about 13 all of them surrounding us. It was quite intimidating/threatening and not one would give me the name of the bed manager.
There is only 1 person who has overall control and that is The Responsible Clinician. Obviously Elizabeth is of no risk to self or others otherwise as she would simply not be allowed out all day and every day in my company but this is not what is written in file reports prepared for court purposes. I respect Tier 4 rules but do not respect the way we were treated by certain managers of Chase Farm Hospital Enfield Suffolk Ward today who have misinterpreted rules. I would praise Elizabeth for keeping calm throughout this awful time waiting forever patiently to speak to the elusive bed manager who clearly did not wish to speak to me. Everyone was protecting him as no-one would give his name.
So I then decided enough was enough, Elizabeth and I had spent long enough in the car waiting in the cold and it was after all Xmas Day.
So I drove off leaving the huge crowd of circa 13 professionals behind standing outside Chase Farm Hospital who had warned me “blue lights were on their way” – Police who I was keen to meet anyway. So I said that Police were very welcome to come and speak to me but in the meantime I had had enough of waiting and was leaving. I have nothing but praise for Police who have dealt with Elizabeth honestly and fairly unlike certain other professionals who treated us today in the most degrading manner.
I was half expecting to be stopped but Police were nowhere to be seen. I drove to the family house and entered alone to fetch Elizabeth’s cat as I had promised that she could see her cat on Xmas Day. Elizabeth was delighted and was able to hold her cat outside in my car. I then requested a witness from within the household to return back to the hospital with us just in case lies had been told again that I was threatening, aggressive and abusive.
Everyone wore masks and the roof of the car was down and Elizabeth did not enter the house.
When we returned to Chase Farm Hospital Suffolk Ward there were three Police Officers and their numbers are 265SNA and 116SNA. They looked bemused that they had been called out on Xmas by the management in such a trivial manner and had to explain things to the staff. Police explained the rules to the professionals and confirmed Government Guidelines to them. Police time was wasted and the police were very sympathetic towards us, as they have been on other occasions. I heard one officer say to the effect that what was the problem – you are allowed 1 person within a support bubble which had already been agreed by the RC who is in charge and not the bed manager. They commented on the fact I had brought her back and sounded astonished by all the fuss.
Anyway, there were only 3 patients left on Suffolk Ward. Elizabeth was told there were Covid Cases on the ward but I found out this was NOT TRUE.
I was told by a nurse on the ward the reason patients were being sent away from Suffolk Ward was because they were being relocated back to their local area I don’t think this is true either. I have found out since that patients were sent to The Priory in Southgate. The Priory is set in beautiful grounds in Southgate and bearing in mind Elizabeth loves animals, there are parks and wildlife within the grounds and it has much nicer grounds than Chase Farm Hospital Enfield. I called in there once in desperation years ago thinking that private care was better but certainly the facilities are and especially IF YOU PAY FOR IT which I was prepared to because I wanted a proper assessment denied by Chase Farm Hospital Enfield. The Priory would also be in Tier 4 and would also have rules in place however a hospital should go by Government rules and guidelines not their own misinterpreted rules. A Hospital should also go by the MHA which I am studying right now so I can check on everything.
It was the most degrading and awful experience reminiscent of when I once came to collect Elizabeth from the Horizon Suite. Once again the security guards and Police were highly professional.
Just because someone is held under the MHA does not give professionals the right to break the law, discriminate, treat them in a degrading manner and that goes for their families in breach of human rights and on Xmas Day of all days, a parent has the right to see their son or daughter regardless of Tier 4 provided the above Government Guidelines are abided by.
I was refused the bag of presents back off the ward that I bought for Elizabeth despite asking several times none of the staff would get the bag for me. Having drove off leaving them all standing there I returned and spoke to Police who pointed out to the Professionals that I was in my correct according to Government Guidelines and had permission of the RC, Dr Helen Moorey.
So here are the conflicting reports of what is happening to Suffolk Ward:
Elizabeth was told there were Covid patients on the ward. She had a Covid test but was allowed out with me yesterday for a few hours agreed by the RC and spent all the time outside in the fresh air.
Then a nurse on the ward advised me that the 12 patients who were leaving the ward were being transferred back to their local areas – no: – today I found out they were being all transferred to the Priory in Southgate. I had questioned how many Covid patients were there on Suffolk Ward and was told “none”.
Today I have found out that Elizabeth was due to be transferred to St Ann’s in Haringey with the two remaining other patients.
So no-one communicated this fact with me. When Police were informed I had taken Elizabeth off the ward they contacted Elizabeth’s sister however I am Nearest Relative and in order to telephone her the ward must have given her sister’s number not mine.
So I was unaware on Xmas Day there were plans to move patients off Suffolk Ward to St Ann’s without any prior warning. I see this as totally barbaric treatment by the management of Chase Farm hospital Enfield. I would not have been entirely disappointed if Elizabeth been sent to the Priory, Southgate as this is in nice grounds and Elizabeth loves birds and animals and wildlife.
Anyway, there is nothing I can do if they send her to the St Anne’s as they had planned but I was planning to visit there anyway and as a mother and carer recognised by Dr Moorey as being her “support bubble” therefore I would be entitled to bring Elizabeth off the ward for fresh air, exercise and a drive in my car with the roof down in line with Government Guidelines and even the Police confirmed this fact.
It is so peaceful now on Suffolk Ward. There are only 2 patients on the ward – Elizabeth and one other just brought in. I have heard they are doing refurbishment works on the ward and then I heard it was going to be made into a Covid assessment ward but I wish there was decent communications – if there was good communication there would be no misunderstanding and as a parent and nearest relative along with all the other parents concerned surely any move should have been considered very carefully with thought and consideration bearing in mind Xmas Day. A nurse told me today in defense that no other patients had been granted outdoor leave and right to see their families so why should Elizabeth be treated differently My answer to this is that it is up to other parents and carers to request this right and especially since this was confirmed by Police and RC.
I would praise the Police Officers whose time was wasted on Xmas Day.
First of all Merry Xmas and Happy New Year. I know it is not a Merry Xmas for so many people including ourselves. Elizabeth also asked to wish everyone a very Happy New Year – she is still held on Suffolk Ward, Chase Farm Hospital Enfield.
Yesterday I spent good quality time with Elizabeth. I am recognised as her regular carer and was granted permission to take her out for a walk in the grounds of the hospital. After all Government Guidelines do state you can meet someone from a support bubble (1 person only) outside. I then pointed out that I have a car where the roof can come down and that if we were wearing masks then surely this would also qualify. I was delighted that I was granted permission and we drove all the day to a beautiful area where there is a lake and canals you can walk along. I then returned her to the ward but was concerned to hear from Elizabeth that there were supposedly Covid cases on the ward (I am not one of those people who are bothered by Covid) but respect the guidelines etc so I decided to enquire on the position as I have found that you get told one thing and then another and I needed to clarify the truth.
I then heard that most of the ward had been moved out to Southgate. I saw some leaving with their suitcases packed. I have just found out they have been moved out of the public ward Suffolk, Chase Farm Enfield to the private hospital Priory in Southgate and Elizabeth has been asked to move to the Priory in Hemel Hempstead – this is a fair distance away for us to visit and I have been delighted that she is back in Enfield in order that we could at least spend some quality time together. It is unbelievably unfair that they should move Elizabeth against her wishes once again out of area to the Priory and she does not wish to go there. I have offered to move in and support her at home in the absence of any care in the community under ENFIELD where they appear to have money to burn.
Recently I wrote to MP The Rt Hon Feryal Clark and got a response to say there is nothing she can do because it is a clinical decision to move Elizabeth but Oh yes there is plenty that the Rt Hon Feryal Clark along with other MPs can in fact do because this is nothing to do with a clinical decision when the entire ward has been vacated by ALL patients except just two (I will check on this). When 12 patients have been sent to the Priory in Southgate what on earth is going on under Enfield. So the other thing I heard was that Suffolk Ward was going to be used as an assessment centre but WHY SUFFOLK WARD??? why are there NO decent facilities for people under MH within Enfield? in that they have to constantly be moved away from their homes and families – this is of public interest because can you imagine how much this is all costing and it is funded by North Central London CCG – Enfield. I have just done a FOI request because I am interested in knowing how much all these facilities cost. For instance Cygnet Godden Green £28K for 5 weeks and none of the correct care and treatment given and then Elysium Thornford Park Thatcham Berks – 2 months – how much did this cost? Why is all this money – public money being wasted and not spent on decent care and assessments in the community.
Now the CCG are stating about fees and I will keep you all informed as my FOI request is made public and therefore so will their costs to me when they are spending an absolute fortune under private sector instead of improving facilities under the NHS.
Elizabeth has phoned several times. I have been cooking Xmas Dinner and Elizabeth has only just had Xmas dinner on the ward. It is a beautiful sunny day and Elizabeth is missing her cat and her pigeons that visit the balcony of where she lives. Elizabeth meanwhile has had dinner on the ward with one other patient. She says everyone else has gone. There was no alarms ringing. It was very peaceful which is exactly the environment Elizabeth needs to be in. So is this ward going to be converted to a Covid Ward by any chance – it has been advised it is going to be an assessment ward but exactly what is that??? My questions again go to the top of the Trust (BEHMHTNHS), Enfield Council and my MP The Rt Hon Feryal Clark.
I am sure there will be many more people in Enfield who want answers too as after all when there is so much money to spend on private care why isnt this being provided in the community which would stop people like Elizabeth ending up back to square 1. It would cost a fraction of the cost of the Priory, Elysium and Cygnet and any other PICU/acute ward if something was provided such as a support worker and Elizabeth wants a job working with animals and so why send her away to Hemel Hempstead?
She is quite obviously not a risk to self or others otherwise she would not even be allowed out with me and in public so why spend all that money of institutional care at the expense of the wonderful charitable and voluntary organisations in Enfield who deserve a great deal more funding and have to fight for what little they get and this is why it is important for me to highlight what is going on and question who is responsible for this and this needs to be investigated by The Rt Hon Feryal Clark and Cllr Nesil Kaliskan.
The other question is transportation of patients from one facility to another is done via a caged van. Patients are treated like animals and no animals should be treated either in such a degrading manner. Elizabeth was transported in a caged van to think it was Cygnet Godden Green and it was absolutely terrifying as she had nothing to hold onto. I am disgusted with this treatment.
Anyway in a short while I will bring Elizabeth back to the family home in the car with the roof down to eat her Xmas dinner I have cooked. At least it is not raining. I can then bring our cat out to see her as Elizabeth is missing him.
I have never had a Xmas like this before.
Once before at Xmas whilst at Cambian Elizabeth was denied home leave because RC Dr A W (also a GP) said she was too ill – that was not true as she was brought all the way from Wales just for about 2 hrs prior to Xmas and now I can read everything in the files of the most disturbing nature. How can Doctors act in such a detrimental manner in breach of human rights? This Dr coerced a vulnerable patient into only having contact with other family members and put in place supervised calls at a time I could not ring – should this person be even working as a Dr?
I am just grateful I can at least see Elizabeth and bring her dinner out to the car even though we are not allowed to sit around the table together.
So there is not one single Covid case on the ward as had been advised – the ward is closing to patients and they are being sent away to private sector hospitals ie Priory costing an absolute fortune. This is just in Enfield – where else is this happening? I would be most interested to hear.
I had no idea you had to pay for a FOI under GDPR Rules – can someone please enlighten me. I am asking something that the public and especially residents under the London Borough of Enfield might be interested in? This is of public interest when I know already £28000 has been spent on Cygnet Godden Green Requires Improvement. Castle Ward. So I now wish to know how much the rest costs. How comes North Central London CCG wishes to charge when I have not been charged before and I know already it is North Central London CCG Enfield that hold the information. So please send me your invoice in order that I can notify everyone of your fees. I am asking a simple question and I want a simple answer that you can produce in 5 seconds. Look forward to hearing from you NCL CCG – you are responsible to the public for providing services and so you should be accountable to the public especially when you are spending vast sums of money for sub-standard care and treatment at the expense of the NHS to private institutions and are unrated in some cases.
Dear Susan Bevis
RE: Freedom of Information Request
I am writing to formally acknowledge your request for information regarding Cost per week for Ruby Ward St Pancreas Hospital, Elysium Thornford Park and Priory Hemel Hempstead which will be processed under the Freedom of Information Act 2000. I can confirm your request was received on 24 December 2020 by NEL on behalf of the Clinical Commissioning Groups (CCGs) listed below. The references for your requests are shown alongside.
NHS North Central London CCG FOI.20.NCL179
An initial investigation is currently taking place into whether the information you have requested is held by the CCGs and if so, whether it can be released in accordance with the legislation.
Any fees applicable to this request will be detailed in writing as soon as they can be determined. Your request will then be placed on hold and you will have the choice of whether to proceed with your request. Should any clarification of your request be required we will advise you accordingly.
As you know, the NHS across the country is facing unprecedented challenges during the coronavirus (Covid-19) pandemic, and is working hard to ensure that the appropriate care can be delivered to patients. As such, we would like to advise that we may not be able to provide a response to your request within the normal timescales required of us. If this is the case, a further update will be provided to you in due course.
If you require any assistance, or would like to discuss your request, please do not hesitate to contact us quoting the reference number above.
Today I travelled to London wearing a mask of course. I am not in the slightest bit concerned about Covid new strain or not and I do not trust what I read in mainstream press. However I am not one to disregard other people’s concerns and wear a mask and so does Elizabeth. I have not been shielding since March because I am a carer to Elizabeth and am not panic stricken one bit.
It was surreal travelling to London today as opposed to what I was used to doing in rush hour crowds. When I arrived home I noticed I had missed calls from Elizabeth. Every day I’ve been taking her off the local ward (Suffolk Ward Chase Farm Enfield) and bringing her back to her peaceful flat that I have greatly improved since Elizabeth has been incarcerated and sent to one private “prison” institution after another at astronomical expense to my local area of Enfield, whose CCG responsible falls under NCLCCG Enfield and who have public money to burn. I was glad that Elizabeth was at least local and that I could have contact after six months of OOA institutional incarceration. Now all has changed thanks to Boris Johnson and the UK Government who have ruined Christmas for everyone but particularly the weak and vulnerable.
Many people throughout the UK have had their Christmas spoilt at the last minute by this Government who do not give a damn about the weak and vulnerable. However, I can’t think of anything worse than for the most vulnerable people being stuck in hospitals and particularly on MH wards in a noisy, volatile environment and denied any contact with their family because of Government restrictions brought in just prior to Xmas. I personally would have liked to invited the entire ward to my house for Xmas but unfortunately now I cannot even invite or visit Elizabeth on Xmas Day and I am not alone.
What are the Tier 4 restrictions?
Boris Johnson announced Tier 4 rules mean people must stay at home akin to the November national lockdown. Rules include:ADVERTISING
Non-essential retail, gyms, leisure and personal care must close
Work from home if you can
Do not enter or leave Tier 4 areas or stay overnight away from home
You can meet 1 person from another household but outdoors only
Communal worship can continue
The Prime Minister said: “We will introduce new restrictions in the most affected areas, specifically those parts of London, the south-east and east of England which are currently in Tier 3.
“These areas will enter a new Tier 4. Residents in those areas must stay at home apart from limited exemptions.”PROMOTED STORY
Regarding Christmas, the festive season is cancelled for those in Tier 4 who cannot travel to meet any other households.
Those in Tiers 1, 2 and 3 can meet up to three other households as planned, but only on Christmas Day itself.
The PM said: “We cannot continue with Christmas as planned. In England those living in Tier 4 areas must not mix with anyone outside their own households at Christmas.
“Across the rest of the country, the Christmas rules will now be limited to Christmas day only rather than the five days as previously set out.
“There will be no relaxation on December 31 so people must not break the rules at new year
“I know how much emotion people invest at this time of year and how important it is for families to be together, so i know how disappoint this will be.” No you do not! You are a Government out of touch with reality and the UK is in breach of Human Rights.
Tier 4 rules: Uk tier map as of December 19 (Image: EXPRESS)
Speaking before the announcement today, Sky News’ Jon Craig said: “The PM is expected to announce that London and the south east is going to be put under a new tier 4 with much stricter rules on moving around and possibly to the Christmas bubble plans.
“Essentially tier 4 is a stay at home message. It could include non-essential shops closing, tighter rules on hotels.
“Weddings even, Christmas eve weddings perhaps, could be placed in jeopardy.
“It will be greeted with dismay and fury by some MPs and not doubt many people who have made their plans and spent a lot of money already. Yes you have ruined Xmas Boris Johnson and Government and I have spent a lot and I am not alone. Shame on you.
“If it is a stay at home message, it’s going to wreck the travel plans and travel plans of many many families.”
He added if Mr Johnson planning to make these changed by law, MPs will say parliament must be recalled.
Mr Craig added: “We don’t know [what the rules are yet] but we do know the five day relaxation period is likely to be changed.
“What we know is that all the areas that were put into tier 3 in the middle of the week, London going into tier 3 and the addition of the home counties, Surrey and parts of Essex and Hertfordshire, they all look set to go into a new tier four and there will be a very strict stay at home message.
“The Government is likely to say this will be imposed by law. Already conservative MPs are saying if theGovernment is going to impose a new law, that means a new vote. Of course – a new vote.
“Mark Harper has said Parliament must not be bypassed.”
Regarding the Tier 4 rules, he suggested Christmas bubbles may only be allowed in Tiers 1,2,3 – and only on Christmas Day.
He added: “This is a massive u-turn for the Prime Minister. Only 4 days ago he said it would be inhuman, inhuman he said, to cancel Christmas. YES IT IS INHUMANE
“All the sign are he is going to do this.”
Mr Johnson met his senior members of his Cabinet earlier on December 19 before a 4pm press conference from Downing Street was called.
BBC Political editor Laura Kuenssberg said: “The prime minister is expected to announce a tightening of Covid restrictions and a tier four for London and the South East as well as several other counties, cabinet sources have told the BBC.
“There is also expected to be a tightening of the plans to relax the rules around households gathering during the Christmas period.
“The cabinet was also briefed on the risks from the new variant of the disease by the government’s top medics at lunchtime.”
WHAT DOES TIER 4 MEAN FOR ELIZABETH AND HER FAMILY AND OTHERS WHO HAVE RELATIVES IN HOSPITAL IN THE UK
Xmas is ruined for us as a family and many others. We live in London so we come under Tier 4. Elizabeth’s sister lives in a Tier 2 area and she has cancelled coming for Xmas. I had bought new bed/bedding and ordered lots of food on-line but I am even more devastated now having spoken with Suffolk Ward Chase Farm Hospital Enfield as their rules are even stricter than the Government Guidelines in fact they are a law unto themselves.
Elizabeth has been incarcerated since May for visiting the GP surgery demanding an MRI. She has LD and is autistic and was upset as she felt she was being ignored. In files it is reported she caused extensive damage to the GP surgery but when I visited and offered to pay was told there was no damage. Why do they have to report so inaccurately? This is the reason why Elizabeth is incarcerated right now because of lies and errors by professionals who all stick together and gang up if you so much as dare complain as I have previously featured.
Elizabeth has been away for over 6 months. I withdrew from the Section 25 Tribunal because I heard that Elizabeth was being pressurised to appoint solicitors recommended by the Chase Farm Hospital when she already had a good firm representing her. This has been the scenario since May: Seclusion, PICU, seclusion, PICU, seclusion, PICU and finally at last Elizabeth is back in Enfield. I then discovered today that leave had been granted so that I could take her off the ward during the day and bring her out shopping and back to her flat, despite all the negative untruthful comments about her being a risk to ME!! THIS IS ABSOLUTE NONSENSE and there has been no risks whatsoever in my Company. It has been wonderful to see Elizabeth again and spend time with her as we have had little contact. Elizabeth has been keen to go out walking and has even showed interest in working with animals thanks to a brilliant OT on the ward. However there is a cloud over our heads right now because the RC of Suffolk Ward wishes to send her away again to Hemel Hempstead – ANYONE KNOW OF ANY LOCKED REHABS – COULD THIS BE THE PRIORY??? Please let me know what you think and any experiences you have encountered.
Yesterday, despite Tier 4, I was permitted to take Elizabeth off Suffolk Ward, Chase Farm Hospital Enfield.
Today I was told that I could no longer visit or take Elizabeth off the ward but surely this is totallyh wrong??
“you can meet 1 person from another household but outdoors only “
Look at the above Government Ruling you are allowed to meet another person from another household outdoors only!
I have just re-laid the above message to Godson, ward pharmacist on Suffolk Ward who just hung up on me stating that these are the rules of Chase Farm Hospital Enfield. Law unto themselves!
The rules are clearly not according to Government Guidelines. So in that case I have requested to see Elizabeth in the grounds outside as I have had leave to spend with her all day and every day up until now.
MESSAGE TO BORIS JOHNSONand MP The Rt Hon Feryal Clark
Your Government has ruined Xmas for everyone and I am very sad for those currently held under the MHA whose human rights are being abused.
This is a Country, thanks to this Government, that allows deprivation of basic human rights – there is no accountability and the privatisation of the NHS under MH is a disgrace. Just one facility costing £28K for 5 weeks at Cygnet recently – what about the rest of the institutions where Elizabeth has been sent in a short space of time? why in ENFIELD is nothing provided under MH/LD/Autism of the right nature locally especially to Elizabeth and others when they have been ABUSED UNDER CARE IN THE LOCAL AREA OF ENFIELD WHICH WAS COVERED UP. Elizabeth is only just revealing in vivid details what happened to her under MOTI VILLA SCHEME IN THE COMMUNITY THE RIDGEWAY ENFIELD. If it was recognised that she had complex PTSD and was in receipt of the right kind of care that would be good but there is not one mention of what happened to her under care and it is unbelievable there is only one male psychologist on the ward which is all female. So if local MP, Feryal Clark cannot help in any way what can you do about this Mr Johnson as per comments below perhaps you can explain why so much public money has been wasted on private sector now unrated sub-standard care and treatment of no effect whatsoever to Elizabeth who has been badly abused under the “care” of ENFIELD in the community.
Now I would like to hear clarification too as to this ban on visitors to wards under Tier 4 and that hospitals should therefore allow visiting outdoors only. Please clarify especially to Chase Farm Hospital Enfield and any other hospitals as there may be some carers who might like to take their sons and daughters for a walk outside which is surely allowed within the Guidelines. At least they will get fresh air.
Final paragraph of letter from Rt Hon Feryal Clark MP.
Therefore, we are sorry that we are unable to assist with your concerns in this instance.
Yours sincerely,
On behalf of the Office of Feryal Clark Member of Parliament for Enfield North
Westminster Office House of Commons London SW1A 0AA Tel: 0207 219 6607
But surely there is much to explain to the local people of Enfield why decent care and facilities are not provided under Enfield for MH patients and why so much is being wasted by CCG on private “hospital” facilities who are not providing decent humane care and a complete waste of public money. Why isn’t this money going on care in the community and proper assessments? You are missing the point it is not just clinical decisions it is everything and I am sure everyone would like your explanation because there are many good voluntary organisations who should receive the benefits of such huge amounts of public money rather than private hospitals requiring improvement or unrated facilities. For instance just one facility for 5 weeks cost £28K of no benefit whatsoever. Elizabeth would not be where she is now if there was decent care provision. There is plenty you can do to regarding this whole matter.
I hope that I am not going to hear the following from you, Mr Johnson as my complaints go far wider than just Enfield as you can see.
Therefore, we are sorry that we are unable to assist with your concerns in this instance.
Duty to inform parents and to keep secure accommodation under review. Regulation 14 provides: Where a child to whom section 25 of the Act applies is kept in secure accommodation in a community home and it is intended that an application will be made to a court to keep the child in that accommodation, the local authority which are looking after the child shall if practicable inform of that …
Presumption of Capacity.All adults have the right to make decisions for themselves unless it can be shown that they are unable to make them. You can’t assume someone can’t make decisions just because they have a particular disability.
As the Nearest Relative to my daughter Elizabeth I have received notification of a Hearing to take place tomorrow. I had thought I was exercising my right to appeal against renewal of Section 3 of the MHA which is now coming to an end. Today has been a dreadful day. First of all Elizabeth phoned me and told me that she was advised she had to have a solicitor appointed through the hospital because there is a Section 25 Hearing tomorrow. I was alarmed because Elizabeth already had a very good solicitor appointed. I am always deeply concerned when solicitors are displaced by the hospital in favour of recommended solicitors. I telephoned the MHA Office of Chase Farm Hospital and Elizabeth said she was not happy and felt pressurised and with a new firm of solicitors appointed, recommended by the hospital, on the very day of the tribunal itself, how could Elizabeth be treated fairly. How could they have gained any knowledge of the case at the last minute? I also found out that having only just received the paperwork for this Hearing it is a Tribunal relating to Section 25 where Elizabeth could end up in a secure care home with no contact with her family. Elizabeth wants to go back to her flat and has made that clear.
I was up all night long altering and amending their reports for the Hearing. I can honestly say they were full of error and written deliberately to fail the tribunal. Behind your back they can rip you to pieces and to think these are supposed to be caring and kind professionals. It is sad to say they do this not just to the parent/carer but to a vulnerable person making them look so bad and contradicting themselves in the process. They have made out Elizabeth is dangerous and too dangerous to be in the company of her mother which is absolute rubbish because I have been granted leave for the past two days and there is no way this is true so why write such lies?
I’ve already mentioned past history is wrong and nothing has been done to rectify this.
I’ve already mentioned they have been giving wrong medication previously found to be allergic to and depriving Elizabeth of an autism assessment and failing to acknowledge that she has complex PTSD because she was multiply abused under their care.
The issue is Elizabeth has an independent council flat and it would appear they do not want her to have this flat. She has been visited by the RC of Suffolk Ward who tried to coerce her into going into a care home and Elizabeth who has FULL CAPACITY on where she wants to live said no to the care home and she wants to go back to her flat. Whilst there were problems which did lead to Elizabeth calling police and they called ambulance this was the fault of her care coordinator and ENFIELD COMMUNITY REHAB as if they could not find suitable care her mother and NR most certainly could and JR solicitors said we had a good case but then unlawful paperwork was drawn up to section Elizabeth because they were forced to produce their care plan full of error. There was also mention by the RC of Suffolk Ward of a rehab facility (presumably locked) but Elizabeth did not wish to go to such a place wherever that could be. After all who can blame her. She has been sent here there and everywhere under Barnet Enfield and Haringey MH Trust and has told me how awful her treatment has been.
So it is one thing having awful treatment but it is another thing when the Mental Health Act fails to protect vulnerable people. So they have put Elizabeth on depot injections and this is the issue. Elizabeth does not like taking the medication but has agreed not to stop it abruptly. Elizabeth went downhill through WITHDRAWAL SYNDROME, not illness, when she stopped the drugs cold turkey. Now she is on depot injections depixol and this is why they want her locked away as a matter of convenience and for her liberty to be deprived in a secure care home. The last care home was Phoenix House rated good by the CQC but I can prove this but Elizabeth had no food at the weekend. They refused to give the Clozapine when requested when Elizabeth wanted to stay at home and this led to Elizabeth being without this drug for FOUR not two days. My story “Get her back we are paying for that” describes what we went through – First of all “Deprival of medication community care” Irwin Mitchell then Court of Protection deprival of liberty and forced return to a care home where Elizabeth had NO FOOD AT THE WEEKEND. PHOENIX HOUSE STEPPING STONES NORTHAMPTON. I very much respect the Court of Protection who treated us fairly on two occasions and if they had forced my daughter to return to this dreadful place she would have continued to be without food at the weekend. I was not happy that an expensive report by a Consultant Psychiatrist appointed by Enfield LA had huge error. The report found Elizabeth to have capacity but stated the wrong Council as Applicant and I complained about this quite rightly so. Why should any other council be named in a case associated with deprival of medication community care leading to DoLs and forced return to a care home where Elizabeth suffered abuse and neglect. The team behind this was ENFIELD COMMUNITY REHAB TEAM and in my previous blog where Mehdi Veisi and Amanda Pitman have accused me of being aggressive, abusive, you name it and labelled me as vexatious complainant I have been given only two points of contact which are Pals where the email address bounces back and you cannot get through on the phone and the other name is Lucy Omezi of Enfield Community Rehab. This has led to me having no choice but to write on my blog and on Twitter.
Anyway, Court of Protection case was in 2014. Then I was taken to court again to the RcJ in 2017 at such short notice I was not given the correct court details. I had rushed to get up to the court and was guided to the wrong court but they displaced me as NR behind my back then I went to visit my daughter in hospital at Chase Farm, Suffolk Ward and the nominated AMHP told me to leave the visitors room and announced LONDON BOROUGH OF ENFIELD were now the Nearest Relative “lets face it your mother is not fit for this role” – words to this effect. I felt the same about her as she knew something had happened to Elizabeth at Moti Villa yet tried to blame Elizabeth’s frequent hospital admissions on me when there were massive problems at this scheme and drug dealers on site. I was then called to the next Hearing at RcJ. This time I was properly notified of the correct court and this AMHP DM remained as nominal NR, pending the fact the Judge wanted to meet Elizabeth who was treated like she was invisible. Elizabeth had to undergo a capacity assessment and was found to have capacity. This was done properly and independently not by social workers who can say a pack of lies behind your back. I attended a further hearing where the Judge said she must undergo that capacity hearing. Then the nominal NR appointed by LB Enfield gave the Judge some papers in the Hearing and the Judge asked if I had seen them to which I replied no. Two social workers under Enfield had visited Elizabeth when she was not well and presented the result of their interview to the Judge. It was my first time representing myself in court and I thoroughly enjoyed representing myself. The judge even complimented me on the vast evidence I produced as to why LONDON BOROUGH OF ENFIELD would not make suitable NR. I took their piece following that negative interview and I corrected it and forwarded it to the Judge’s clerk. This caused uproar and I was told this was not the correct procedure but then how could it have been the correct procedure for this social worker to hand such nasty comments to the Judge in such an underhand way. I was then threatened with £5000 in a consent order and that if the court case went ahead further I was warned I would get enormous costs. I was then forced to delegate my role for a term. So my two daughters were approached by my daughter’s solicitors R N Law in this connection. Elizabeth was told that her mother would get enormous costs if she did not choose an alternative NR and then my younger daughter was approached also along these lines. Social services were told to call a meeting which I attended and two others from the family. The Manager of Enfield Community Rehab stated that it was considered fairer for a family member to be appointed as NR rather than their nominated AMHP who went right back to 2011 when Elizabeth was multiply abused at her scheme in the community. Anyway I realised when the term of the section had expired and on checking with the RcJ that I was in fact NR I then requested Elizabeth’s release. Then they tried to send me another consent order but I just crossed through the paragraph that said I would be liable for £5000 costs. Why should I be liable for costs when they dragged me to court.
Now I am alarmed that there is yet further threat by Barnet Enfield and Haringey MH Trust and Enfield Council.
There is a nothing but error/nasty comments in their files for tomorrow’s Hearing which I requested to be cancelled because Chase Farm Hospital will not release all the reports. So far I have corrected the Addendum to Dr M’s report at Elysium and the Social Circumstances Report by her care coordinator PM based at Enfield Community Rehab. There was so many errors it took me all night to correct one report.
So I do not wish this Section 25 Tribunal to go ahead because Chase Farm Hospital have refused files.
Complaints have been sent by more than one person and I myself am going to complain also. This shows how Hearings behind closed doors can be rigged to go against you especially when the court decides to exclude a very important witness such as a McKenzie Friend that both Elizabeth and I would like to attend.
So my solicitor has complained. Elizabeth’s solicitor contacted the courts and tribunals service today as Elizabeth who has FULL CAPACITY wanted HER solicitor not one appointed by Chase Farm Hospital.
I have spent two wonderful days with my daughter after being apart from her for 6 months with hardly any contact. I took her yesterday to various appointments. We went to the chiropodist as Elizabeth could hardly walk prior to first lockdown and I managed to get her an emergency appointment as Elizabeth was in agony and suffering much pain. That was all sorted and yesterday’s appointment was just for a check-up. We then went to Specsavers and Elizabeth had to get her eyes tested and we paid extra for a more intensive investigation. Throughout these appointments, the latter which took a long time, Elizabeth was calm and pleasant. Same today when I picked her up from Chase Farm Hospital to take her to her flat and for lunch. Two days running and no problems what so ever with Elizabeth’s behaviour and a pleasant time spent together.
So you can imagine how I feel that a team of professionals are trying to stop Elizabeth from going back to her flat and are describing her as “dangerous” and a threat to me as a mother which is untrue.
Such comments are fictitious, showing LACK OF INSIGHT and are COMPLETELY UNTRUE. The Hearing reports are misleading and written to fail the tribunal and there is nothing but errors contained therein.
How can you hope to succeed in a Tribunal that is closed to the public and held in secret. Three members on a panel – Judge, doctor and lay person which must cost a fortune.
They are worried about Elizabeth managing in her flat but today she impressed me as was able to cook herself something – had not forgotten how to do things and she would not be on her own as I will stay with her overnight.
What would have been nice is if respite at a care farm could have been provided as Elizabeth likes animals.
Elizabeth was so thrilled to see her cat and the pigeons that visit her flat balcony.
They claim to know us as a family but these professionals do not include family at meetings and make false assumptions producing one report after another wrong and misleading.
This is why we need Open Dialogue but only some areas of the UK welcome change. I will never forget Elizabeth and I taking part in Open Dialogue with professionals who wish for positive change. Elizabeth started off the discussion all about how she was taken to the court of protection in 2014. Like I say I have nothing but respect for this court as far as we are concerned.
I do not know whether the Hearing tomorrow can be postponed as Section 3 ends on 4 December and if this was a fair area, they would suggest voluntary stay on the ward whilst the Tribunal is held at a later date when they finally produce the paperwork they have refused to give to my solicitors.
I think it is good that i am allowed to take Elizabeth to her flat and she is thrilled with all the improvements since she has been imprisoned here there and everywhere for the past 6 months without any leave up until now.
What I would like to see. I would like to see Elizabeth home for Xmas. I would like to take Elizabeth to Norfolk where other family members live. It is said when both the care coordinator and RC of Suffolk Ward, Community Rehab want her to go into care and secure care. This is not what we as a family want. It is not what Elizabeth wants.
Whilst Elizabeth cannot come off the injections she is forced to take, these should be slowly and gradually reduced. Sadly Elizabeth is in this position because she took herself off cold turkey Risperidone previously found to be allergic to.
I would like Elizabeth to be treated fairly most of all and not be put in a position by these professionals where I can never see my daughter again. They are so very wrong in what they are doing. They have destroyed my happiness and my life.
At 08.24 this morning, I had a call from a social worker I have never heard of before called Kate and she did not say what she wanted and we were cut off in no time. No questions or discussions were voiced in terms of what she wanted. When tried to telephone back I received no answer so I got someone else to contact her in my household who was witness to her original call. So 08.31 was the time of the outgoing call and what was disturbing is that Kate did not say what she wanted and made out that it was ME who telephoned her and that she was responding to my call? Never heard of this person but have kept her phone number nonetheless.
In the circumstances and certainly bearing in mind our past experience of social workers under MH, it is very alarming to get a call from someone who claims to be a social worker, who makes out I contacted her in the first place which is not true and then denies phoning me in the first place when I was getting someone else to return the call to find out what she wanted.
Anyway, there may be some relevance to all of this and that awaits to be seen but from a family who have been bullied left right and centre by social services and bearing in mind current situation as regards Elizabeth and everything to do with this it is MOST ALARMING.
All I mentioned was that Elizabeth had been deprived a CTR (Community Treatment Review) and about some safeguarding issues re some of the care that had been provided under private sector most recently.
Anyway absolutely nothing else was discussed about anything to do with Elizabeth’s current situation and the social worker did not ask me one single question and this was all witnessed.
Anybody who has had brutal dealings with social workers who are supposed to help would understand why I am concerned.
Elizabeth has twice now been sectioned unlawfully under Barnet Enfield and Haringey MH Trust.
When a section comes to an end, a social worker is supposed to consult with the Nearest Relative. So we have no idea what on earth Kate B wanted.
Like I say two phone calls:
Her incoming call at 08.24 am – 1 minute
Outgoing call by witness at 08.31 am – 5 minutes.
During the latter call the witness requested to know why she was calling and she said “I am calling to return the call from SB”.
THAT IS NOT TRUE SO WHAT DID KATE WANT? For the record Kate did not say what she wanted.
TW v LB Enfield [2013] EWHC 1180 (QB), [2013] MHLO 59 The applicant argued that her nearest relative ought to have been consulted (under s11 ) before her s3 detention: she required leave of the High Court under s139 (2) to bring a claim against the local authority, and sought a declaration of incompatibility.
Unfortunately Elizabeth has been unlawfully detained twice and as a Litigant in Person with me acting as a McKenzie Friend Elizabeth challenged her unlawful section of 16 hours.
Elizabeth received a cheque for just £1 in compensation.
More recently Elizabeth was detained unlawfully for about 5 days – She has not yet challenged this but out of interest surely the compensation should amount to MORE than just £1. I will find out and let you know.
However this shows just how bad things are in terms of human rights for vulnerable people under MH care and their families.
The Court of Appeal has dismissed the appeal in the case of Bostridge v Oxleas NHS Foundation Trust, confirming that the principles set down in the immigration detention context in Lumba v Secretary of State for the Home Department UKSC 12 (Lumba) and Kambadzi v Secretary of State for the Home Department UKSC 23 (Kambadzi) also apply to claims for false imprisonment/breach of Article 5 ECHR …
Where are the human rights in the UK?
It is disgusting in my opinion that vulnerable people can be treated in such a way in the UK whereas anyone else would have stood more chance of justice if they were unlawfully detained.
Weightmans Solicitors were involved in the case of unlawful detention and the compensation of £1 – if errors are made this shows how unaccountable things are and that the law is not there to protect the weak and vulnerable.
Social workers should be there to help but that is not the case as I have seen from safeguarding where Trust and Council were forced to apologise a while back and also when they wish to force return someone to a care home they happen to be paying for in order to deprive liberty and enforce a CTO which only strengthens a team’s scope to bully with threat of recall. CTOs should be abolished. The only social workers in Enfield who have been kind were those that were involved in my father’s care from the Adults Division. There were two exceptional social workers but from our experience there are some who give everyone a bad name and that applies to doctors and nurses too.
This is when they can become nasty. My blog explains how they can deprive medication to force return to a care home rated good by CQC where Elizabeth had no food at the weekend.
I wish to praise the COURT OF PROTECTION for their decision and their support.
It was FOUR days not two days without the drug. To think an entire team of professionals stuck together and deprived the drug Clozapine and I made every effort to get it despite the fact I was not happy with the “treatment”.
We had two weeks of hell with social services coming in to the family home and reporting for court purposes and trying to carry out a capacity assessment in front of my carers who were all horrified.
Here is a further example of the “care” my daughter has received:
From Psychiatrist ID To LO and EJ cc EA
30.05.2014 at 17.05
Subject Elizabeth Bevis
“A was advised by the HTT that EB would not be available to meet us this afternoon but as planned we attended her home.
We were advised by a man who said he was a lodger that EB doesn’t seem to be at home. We therefore did not have the opportunity to carry out the assessment.”
Regards ID Consultant Psychiatrist Enfield Community Rehab Team 65C Park Avenue Bush Hill Park Enfield EN1 2HL
I received a call from Elizabeth and her sister whilst I was at work. Elizabeth’s sister said they were hiding in a cupboard and that they were terrified and that they had asked my lodger at the time to say they were out as Elizabeth did not want to see them and neither did her sister.
“From LO sent 30 May 2014 at 17.27
to ID, JE and EA
Subject Elizabeth Bevis
Dear I
Thanks for informing me I have spoken to A about this I will relate the issue with the legal team.
From: “REARDON, Elizabeth (ELYSIUM HEALTHCARE)” Date: 27 October 2020 at 16:43:33 GMT To: Susan Bevis Subject:Letter from Thornford Park Hospital Dear Ms. Bevis, Please find attached on behalf of Jo Sherman, the Hospital Director a letter in relation to the change in Responsible Clinician for your daughter, Elizabeth. Please note that this letter has also been sent in the post. Kind regards, Liz Liz Reardon PA to Jo Sherman, Hospital Director Thornford Park Elysium Healthcare
Following concerns you have raised regarding the current diagnosis and treatment plan for your daughter, Elizabeth, we have taken the decision to allocate Dr Harinder Bains as the Responsible Clinician for your daughter’s care whilst she remains at Thornford Park.
Dr Harinder Bains will take over responsibility on Tuesday 27th October 2020 from Dr Morton. Dr Harinder Bains will also consider the ASD diagnosis that you have raised with the clinical team.
Yours sincerely
Jo Sherman
Hospital Director
Elizabeth discharged back to the local area of Enfield on 28th October late evening. She is now back on Suffolk Ward under the “care” of Dr Helen Moorey. No ASD has been carried out as promised by Elysium. The Manager’s Hearing 30th October today has been cancelled.
For a Manager’s Hearing reports are prepared. It is similar to a Tribunal. If a hospital wishes to hold on to someone for a long time that is very easy to do especially considering how much taxpayer’s money is being spent by the local area. All that has to be done is to prepare reports so negatively that rip a vulnerable person’s character to pieces, then a panel agree that the patient needs to be incarcerated longer, whereas what should be done is to look at what is being offered in the community/or rather what is not, in terms of care and whether someone has been assessed properly. Now there is even more conflict than ever before in terms of diagnosis. In over 2 months, Elysium have failed to assess Elizabeth for Autism and the same applies to Cygnet Godden Green, Sevenoaks, Kent though they admitted autism traits. However when huge sums of money are being spent locally by commissioners it could reflect badly on the care provided under BEHMHTNHS if a different diagnosis is given now but then this diagnosis goes back to the very beginning and Elizabeth will never be treated fairly under BEHMHTNHS. “We are guided by the local area” – one of the RC’s told me recently.
EXTRACTS FROM THE PSYCHIATRIC SUMMARY REPORT FOR THE MANAGERS HEARING DATED 18 AUGUST 2020 BY ELYSIUM HEALTHCARE
Prepared by Forensic Psychiatrist Dr DM for the Manager’s Hearing on 30 October 2020, now cancelled.
The report runs into 16 pages but my corrections of this report runs into far more, as there is so much error it took me all night to do.
On the one hand, the report writer does not think a PICU is the right environment but on the other hand states “it is appropriate for Elizbeth to be detained in best interest and appropriate medical treatment is available. When a Responsible Clinician wishes to hang onto someone for a long time they bar the Nearest Relative from seeking discharge.
Here is the appropriate treatment Elysium Thornford Park see as “best interest” – Elizabeth was previously found to be allergic to this drug yet c 8 Doctors and their nursing teams have chosen to ignore this fact. It is clearly documented in the files but then Dr DM states “I DO NOT HAVE ACCESS TO THE FULL NOTES FROM BARNET ENFIELD AND HARINGEY MH TRUST”“HOWEVER THE LOCAL AREA HAVE PROVIDED ME WITH REPORTS THAT HAVE ALLOWED ME TO DEVELOP AN UNDERSTANDING OF HER BACKGROUND“. It is no wonder nothing is done properly and Tribunals fail, leaving vulnerable people treated in the most disgraceful manner. If you look at the reports from the local area they are full of inaccuracy/errors and even lies. I will feature their lies in a separate blog.
So if, for instance, my daughter died at the hands of any such doctors through faulty treatment they would all stick together and deny wrongdoing, each backing one another yet each and everyone of them knew from countless evidence provided to them that Elizabeth was allergic to Risperidone but kept on prescribing regardless. See below – I have highlighted other contraindications to Elizabeth’s physical health.
When you prescribe a drug knowingly that has caused allergy it is no wonder a patient suffers from adverse reaction. This can be displayed in behaviour but what if a patient’s behaviour flares up or they say something that might appear threatening then they call the Police and report – I will feature that later on.
Paliperidone side effects
Image: psychcentral.comIn Summary. Commonly reported side effects of paliperidone include: akathisia, tachycardia, and drowsiness. Other side effects include: basal ganglia disease, dyskinesia, dystonia, orthostatic hypotension, postencephalitic parkinson’s disease, sialorrhea, and prolonged qt interval on ecg.
Who should not take Paliperidone Palmitate Syringe?
The following conditions are contraindicated with this drug. Check with your physician if you have any of the following:
Conditions:
breast cancer
diabetes
a high prolactin level
excessive fat in the blood
low amount of magnesium in the blood
dehydration
low amount of potassium in the blood
overweight
very low levels of granulocytes
a type of white blood cell
low levels of white blood cells
low levels of a type of white blood cell called neutrophils
confusion
suicidal thoughts
a type of movement disorder called parkinsonism
tardive dyskinesia
a disorder characterized by involuntary movements of the face
mouth and tongue
neuroleptic malignant syndrome
a reaction characterized by fever
muscle rigidity and confusion
a low seizure threshold
a heart attack
angina
a type of chest pain
torsades de pointes
a type of abnormal heart rhythm
chronic heart failure
abnormal EKG with QT changes from birth
a disorder of the blood vessels of the brain
orthostatic hypotension
a form of low blood pressure
compression of the esophagus
priapism
a prolonged erection of the penis
seizures
weight gain
susceptible to breathing fluid into lungs
pregnancy
decreased blood volume
problems with food passing through the esophagus
metabolic syndrome x
dementia in an elderly person
diffuse Lewy body disease
cataract surgery
floppy iris during eye surgery
abnormal muscle movements
chronic kidney disease stage 2 (mild)
chronic kidney disease stage 3A (moderate)
chronic kidney disease stage 3B (moderate)
chronic kidney disease stage 4 (severe)
Allergies:
Risperidone Analogues
Elizabeth has made relatively good progress at Thornford Park – Rubbish! I will explain later.
Historic Risk Incidents taken from the Report of Dr Helen Moorey – WILL YOU PLEASE AMEND THIS RUBBISH!!! There are so many errors it is unbelievable. Plus, the description of incidents does not explain fully the circumstances and what really happened thereby giving false impression.
There is nearly a page and a half – it is painful to read when they have deliberately listed nasty comment after nasty comment, designed to make someone look bad without a single good word.
Yet all the time these doctors/professionals are prescribing a drug known to be allergic to that can cause adverse reaction to someone who, as proven, cannot metabolise the drugs. SHAME ON YOU ALL!
There are other Risk Information written by a care coordinator who has failed to protect Elizabeth on a ward on one occasion, left her to sleep in a bug-infested bed and room stinking of chemicals at Reservoir House, someone who has failed to work with the family, someone who has failed to provide a scrap of care in the community since Elizabeth acquired her own flat in July 2019 and under whose team drew up unlawful paperwork for sectioning resulting in Elizabeth spending c5 days unlawfully under section.
It is no wonder Elizabeth does not wish to engage with ENFIELD COMMUNITY REHAB TEAM – you only have to look at my blog “Get Her Back We are Paying for that. They were likewise prescribing a drug previously found to be allergic to and knew it.
The reason Elizabeth is unfortunately incarcerated under their “care” once more is because she stopped taking 2mg of Risperidone cold turkey. This all highlights the need for facilities where someone can be taken off the drugs slowly and gradually and safely. There is nothing like this in the UK for prescribed drugs.
They try and say it is relapse of illness however it is all about withdrawal and too steep a withdrawal causes withdrawal syndrome which is not a mental illness.
Diagnostic Issues
The report states she was diagnosed with Schizophrenia in 2007.
No true at all – first diagnosis was Aspergers. Then another doctor said that her condition could not be attributed psychogenically but organically.
Never did Elizabeth experience paranoia, thought disorder, hallucinations, thought broadcasting and other perceptional disturbances until she was prescribed anti-psychotic drugs and even then her anger is justified because of what happened to her under care and the drugs given in order to cover it all up.
One of the lies in the reports written by care coordinator is that she was forced to go to Scotland and Australia. Get your facts right next time! Elizabeth was not forced to go and agreed via Skype. Working to Recovery was the best thing that happened for Elizabeth – if only she had not come back to the local area of Enfield.
The excellent report by Dr Bob Johnson stating complex trauma was dismissed by the Consultant of Thornford Park like rubbish however here is an example of an extremely honest doctor who has done the most accurate report Elizabeth has ever had apart from the most recent prepared e for Tribunal purposes.
A patient can ask their solicitor to appoint an independent doctor completely free of charge for their tribunal and this is good because you cannot expect to be treated fairly by any so called independent doctor (SOAD) from the CQC which is our experience.
One of my main complaints to the CCG NCLCCGNHS Enfield is as to why they have wasted so much of taxpayers money on care that has achieved absolutely nothing. A PICU or even an Acute Ward is the wrong environment for someone with sensory issues. They have denied a CTR in favour of a CPA and now I am getting the National Autistic Society involved – also the diagnosis of PTSD was endorsed by a clinical psychologist at Enfield, Dr Mukherjee.
So the report from Elysium lists nothing but incident after incident after incident which has not been reported correctly. In addition countless times I have asked from the Psychiatric History to be amended but this has not been done. Not once have I been invited to a meeting or ward round to go through the errors reported. Psychiatric History goes on for many pages and it is dreadful to read as it is incorrect/full of error and keeps appearing all the time and once again I am having to correct everything which is time consuming.
Then they go on to the circumstances of admission and they make Elizabeth sound terrible.
For someone Autistic, suffering in addition from complex trauma, who had been discharged from hospital after S3 back to her flat at the height of the pandemic, it was not easy. I was furloughed at the time and so could help her but then she took herself off 2mg Risperidone and refused to take the drug and I knew she would go downhill because this is far too steep a reduction. Elizabeth became very preoccupied with her physical health during this time – she was constantly researching her condition which she saw as autism not schizophrenia. She was suffering from chronic pain too and so was in touch with the GP Surgery. During the pandemic people were supposed to shield and not mix with one another from different households but this was not possible due to no support for Elizabeth who did not seem to understand services had come to a standstill as she wanted an MRI scan. It is recorded she caused damage to the reception area of the GP Surgery however I called in to ask about this and was going to pay for any damage I was told there was none. Staff might have been afraid and called police as Elizabeth was upset at being ignored and getting nowhere with her request. Police took her to Chase Farm and she was sectioned once again and has been held in seclusion time and time again on Suffolk Ward prior to being sent far away from home and family to PICU rather that ATU – Huntercombe recommended ATU but the RC of Suffolk Ward has dismissed all the doctors opinions at Huntercombe Roehampton and others in favour of her own and then when various other doctors of PICUs get involved they are paid by the local area. One such doctor was honest enough to admit “we are guided by the local area”
The other criticism I have of all these institutions and under MH care in general is that only basic tests are done. In support of himself, the doctor in this case states MRI, blood tests and EEG have ruled out organic cause. Elizabeth has not had an MRI scan or seen an Endocrinologist and already is said to have an irregular arrhythmia in past reports probably caused by the titration of Clozapine. It is reported Elizabeth kept talking about faulty Endocrine system and this is something they should be looking into. They make her sound ridiculous but she is right as I have already had extensive Endocrinology tests done private which again the team has ignored.
Dr DM contradicted himself. On the one hand he sticks with Paranoid Schizophrenia yet has written admitting autism in his email to me but no proper assessment has been carried out by Elysium. All blame put on Elizabeth for not cooperating with the assessment yet I was told that under a PICU such assessment could not be done. An AQ10 was supposed to be carried out but this suggested further more detailed assessment for autism be carried out but then they changed medication and took Elizabeth off the Paliperidone and switched it to Olanzapine – another ineffective drug previously tried that causes diabetes. Now they are mixing Olanzapine with Clopixol depot and prn when needed. This is how a patient can react adversely from adverse reactions and it is apalling that a team of professionals write about incident after incident that goes into pages when I as a mother know that by switching a drug causes such reaction then this list of incidents go against a patient and release from hospital. Blame just goes on the patient whereas focus should actually go on the Doctor and team as what they are doing is wrong. They try to say relapsing illness and I would say rubbish! as I have research papers to prove this is completely wrong. Also I would state that the combination of Clopixol and Olanzapine is wrong too – I am not a doctor but check everything with experts on the drugs. You should not prescribe an A-typical with Clopixol.
It makes me laugh when a doctor tries to say she was responding well to Paliperidone when at the same time nothing but contradictory negative comments and pages of incidents are listed.
In comparison to all the negative comments written by Dr DM there is a very small section that states “strengths or positive factors relating to the patient: There is only 5 lines written by a doctor who described Elizabeth as cold and aloof. Now he has had to admit she has a pleasant sense of humour at times and is well liked. Then he writes something that is totally irrelevant to the strengths and positive factors relating to patient and goes on about medication.
I am afraid the above which actually amounts to just 2 lines is the only good thing about a report of 16 pages written to fail Elizabeth’s hopes of release from prisons such as this and there is no difference now to the acute ward either because patients are not allowed out or to have visitors.
As if Dr DM has not dug out enough dirt on a vulnerable patient who he never got to know properly, he lists incidents at Cygnet Godden Green Castle Ward as well as Chase Farm Enfield where Elizabeth was held for up to practically a week in seclusion.
I wish to point out I consider that Cygnet Godden Green are unfit to produce any reports for Court and Tribunal purposes.
The Report for the Responsible Clinician was written by Dr WK for Dr RS and contains the most disturbing things of all and I would be more than happy to send all their reports to the CQC as well as the threatening letter I have received from their solicitors when I dared to challenge them. To pervert the course of justice is a very serious thing and I would say that their reports are geared for this purpose.
The reason I say this is that there is a long list incidents Dr DM has copied and pasted by the looks of things however the other report prepared by Rebecca Fordwar – Clinical Lead lists NO INCIDENTS WHATSOEVER. This is most disturbing to see in the report prepared by Dr WK – the date of Birth is completely wrong. Therefore no reports from Cygnet Godden Green can be relied upon for court purposes. The other disturbing nonsense is they cannot even agree on primary diagnosis – it is laughable when you compare the report from the Clinical Lead with that of Dr WK and if the records are wrong you can be sure that the care is a poor reflection as records are extremely important. It is not laughable when you consider this facility cost £28K for 5 weeks.
I am laughing even more now that under Progress at Thornford Park from 04.08.2020 to present there is 2 pages full of alleged incidents.
I have not given ELYSIUM THORNFORD PARK THATCHAM BERKS a rating but quite honestly looking at this long list and bearing in mind they knowingly prescribed drug previously found to be allergic to they do not deserve any rating whatsoever and I shall be writing my reviews in due course.
Progress made at Elysium Thornford Park based on this long list of negative incidents is NIL
I also have not liked the way a social worker from Elysium reported Elizabeth to Thames Valley Police for allegedly stating threats against me. I then had to lodge my complaints to the Police in stating that they were knowingly prescribing drugs previously found to be allergic to and even now they have switched the drugs to a combination that is entirely wrong so what do you expect. I therefore had to state that I was concerned for Elizabeth’s wellbeing. It would have been better if they had called me first rather than go to Police as if they are not busy enough and if I as a mother have no concerns whatsoever and are far more concerned as to the drugging regime and care than anything else.
Lastly, there is a gym at Elysium – not once has Elizabeth been taken there.
Garden leave was once a disaster and time spent arguing what was promised and should have been recorded on records.
The grounds are extensive but it looks like a zoo surrounded by high fences and the grounds should be made attractive and house a swimming pool and other nice facilities especially when some patients are still there after 1.5 years.
When you think of the huge money Elysium are getting what they need to consider is what is therapeutic to the patients and animals are therapeutic so correct me if I am wrong I could not see anything like this being offered to patients and when you look at the case of Bethany then these facilities are totally wrong.
Any recommendations to the Tribunal with reasons
That Drs such as this and at Cygnet Godden Green and not forgetting Barnet, Enfield and Haringey MHT never be allowed to write any reports for any tribunals ever again as they are not fit for purpose and deliberately written with a view to failure and incarcerate a patient whilst they rake in the money for treatment and environment that is totally inappropriate and has not worked over many years because of misdiagnosis.
I received the letter yesterday Recorded Delivery but noone signed for it. It was just stuck in the letterbox. According to the envelope it was post marked 12 October and the letter itself was dated 8 October.
I am not going to defend myself as previously stated but leave my readers to judge for themselves.
I have never met the above professionals in my life.
Here is what I have been accused of:
have harrassed
have threatened
have been personally abusive or verbally aggress towards staff dealing with your complaint
have in the course of addressing or raising a complaint had an excessive number of contacts with the trust placing unreasonable demands on staff
Persist in pursuing a complaint when the trust’s complaints procedure has been fully and properly implemented and exhausted, or it is not within the trust’s remit to investigate.
Are unwilling to accept documented evidence of treatment given as being factural eg drug records, manual or computer records, nursing records.
Intimidating
Using abusive or threatening language
The letter states that the “Deputy Director of Nursing and Head of Patient Experience have reviewed your communications with the trust and concluded that in order to ensure all concerns are responded to through a single avenue, all correspondence from you will be managed under the trust vexatious complaints policy” Let us then cut out the correspondence and choose a much more suitable single avenue and save money on paperwork. I cant think of a better avenue than Twitter.
“The trust has responded fully to the points raised in previous complaints and has tried to resolve the complaint but there is nothing more to add and continuing contact on the matter will serve no purpose. The correspondence around previous complaints investigated is at an end and any further correspondence received will be acknowledge but not answered, although as previously advised, you do maintain the right to request an Independent Review by the Ombudsman. ” Well said! There is nothing more to add because they haven’t got anything to say in their defence. How convenient to end a complaint in this way and avoid answering anything instead of a simple apology.
I have been guided to Pals and a guy called Richard was in contact with me when Elizabeth was sent to Cygnet Godden Green but since then, and that has been quite sometime, there has been nothing but a wall of silence. In other words absolutely nothing has been dealt with.
All clinical requests about your daughter must be sent to Lucy Omezi, Team Manager Enfield Community Rehabilitation Service– they are based at Park Avenue Bush Hill Park Enfield but my questions are why not the CEO in overall charge of the Trust? I have already written to that department requesting a CTR and also an adaption to Elizabeth’s bath as she has now gained enormous weight due to the drugs prescribed – take Risperidone and Olanzapine – they are notable for causing weight gain and diabetes. Not a word in response to my email.
These restrictions are intended to safeguard your right to complain or raise concerns about current aspects of your daughter’s care and for them to be managed appropriately whilst protecting our staff.Yes – that is what it is all about protecting your staff never mind the vulnerable patient or her family who are treated like dirt.
The vexatious management plan will be reviewed on a yearly basis by the Deputy Director of Nursing and Head of Patient Experience. – “whilst protecting our staff“.
The letter is signed by Amanda Pithouse, Chief Nurse and Mehdi Veisi Medical Director.
PREVIOUS VEXATIOUS COMPLAINANT THREAT FROM BEHMHTNHS PROFESSIONALS
Now this is something I can talk about. See extracts below of just some of my corrections to defamatory comments written when Elizabeth was abused under care provided in the community under a scheme called Moti Villa at the time I was a trainee Police Officer. I can prove everything as I thorough investigated.
DM’s opinion on “same issues” is contradictory, according to file records for example:Email from LS dated 18.05.2011 13:37 to (AA) cc TO, VB, SJ and AJ :“Dear AI absolutely agree with J.SB’s behaviour is unacceptable and impacting on our ability to provide appropriate care and treatment for EB. The position insofar as community services is concerned is quite intolerable. As you know we are also of the view that SB’s behaviour has a very detrimental effect on her daughter’s mental state. I have asked the clinical team to look into the matter again from a safeguarding perspective. We also really must put some boundaries around this woman. I had thought that when you V and I met a couple of weeks ago that we were agreed that legal advice would be sought regarding the vexatious complainant route? I cannot remember whether I passed on the info that DS (Commissioner) has forwarded the complaint he received to the NCL Cluster to be addressed so would expect them to be in touch shortly. He did mention an independent review being carried out and, after discussing the matter with P I advised him that we would be happy to comply if they commissioned another opinion. Regards L.
From : SJSent 18.05.2011 at 13.04 – cc LS, OT, VB “Potential vexatious litigant” …….A we are having quite of email and telephone traffic from Mrs SB, mother of EB. I was briefed by L who knows the family well and had to deal with years of complaints from her. I understand from V that the Trust was trying to progress this woman to be a vexatious litigant. V seemed to think it was the case that there was a piece of work that you were doing in ensuring that all previous complaints had indeed been exhaustively looked into. Can I ask where you are with this and when it will be completed as it does take a lot of management and clinical time to manage Mrs SB’s complaints. She is currently phoning the CEO. (“HER DAUGHTER IS ‘HAPPY’ WITH CARE SO IT WOULD BE VERY HELPFUL TO PROGRESS THIS THANKS”). From: VB to CD cc AA, LS re Ombudsman dated 10.08.2011 at 10.17“Hi C, I don’t know if A sent Mrs Bevis a copy of his report. He did the report because everyone wanted Mrs B to be classified as a vexatious complainant and I said “THIS COULDN’T BE DONE”: until someone went right through all her complaints and checked that they had all been answered and that she didn’t raise anything new. No – we haven’t received any letter from her to my knowledge. I was there when she phoned but haven’t seen anything since Regards V” . From CD sent 10.08.2011 at 10.12 to VB, LS and AA.“V, can I please have a copy of the last response that went to Mrs Bevis where she got a copy of A s report. I have asked for this a few times as has the Ombudsman. Without this having happened, we have not done all we can. Did you get the letter she said she dropped to the unit when she cancelled our meeting on 4th? From CD to VB cc AA, LS 10.08.2011 at 10.33“we have done that – the ‘new’ was the medication and that is now getting a second opinion. Can she please be written to advising of the outcome of the review held by Trust which is As very clear, report which could be shared with her. L informs me a referral for second opinion is going to Maudsley that should be shared, as it addresses her only new complaint. Not having responded perhaps leaves it incomplete. We did right thing offering appt. She declined now we have opportunity to be seen to wrap it up with sending report we were to discuss and confirmation we believe we have responded and are satisfied we are offering adequate service but are seeking second medication opinion. We can inform Ombudsman this is the case.
From OT To LS, AACc VB, SJ,JA Re: Potential Vexatious Litigant sent 18.05.2011 at 13.57I would favour an independent approach because it was ME, YES ME. I am still smarting from it, who felt the brunt of the last Ombudsman’s criticism – have you not read the letter yet it’s on file? Because I sought to intervene to assist others who quickly sought refuge in the phrase “we were not criticised it was the Management”. So when one talks about knowing the history as it were ……….make sure you get to know it all this time.
“VB concludes “Why I believe for it to be inappropriate for Mrs B to be labelled as a vexatious complainant is that although she undoubtedly complains prolifically and is also abusive and threatening at times, she keeps bringing up new issues which makes it impossible to label her as a vexatious complainant – O mentions the Ombudsman – should Mrs B go to the Ombudsman this would be her thoughts on the matter and the Trust would be highly criticised.”“L recently recommended that Mrs B should be given the name and contact details of one person who should the person with whom she should liaise over any problems to do with her daughter. I consider this to be a very good idea. Perhaps this person could have a PTS background or advised by that department? Just a thought as I remember that JF helped me a lot in the past in communicating with a lot of very troublesome complainants. I see that DS will no longer be commissioning a clinical review of EB’s care.”
CONCLUSION BY SBThe “same issues” as stated by DM are those that were never properly investigated by the Trust in the first place, because no one wanted to admit/take responsibility for what had happened. EB was left in a situation where she was forced to remain living at Moti Villa right next door to the neighbour who brought his friends into the Project that abused her and whom successfully appealed against his eviction. It was some time before EB was moved to another floor which was considered to be an adequate solution but EB was clearly unhappy at the scheme and SB wanted her moved to somewhere where she could feel safe and happy.Contrary to JS’s comments on her being “happy there”, the file note from
Dr HM stated in a file note 02.03.2011 when she visited with YOD- AMHP (13.09) “EB was very clear that she had stopped taking her medication because she wants to be readmitted to hospital “for some peace”. Tenant below her playing loud music throughout the night – her sleep disturbed. Last night she called Police about this matter. Reassured we would speak to staff about this. EB said it was not true she had taken cocaine but had said this because she was feeling cross with the home treatment team.” Originator – KL – SJOG (St John of God) support worker advised that EB “hates” where she is living. EB advised family she “did not want to go back to Moti Villa and be raped by lots of men”.
Please can @DACBeachcroft forward me the recording of me “impersonating another mother” by Cygnet Godden Green. I did not know I possessed such talent.
Your 14 days are up and I would like to feature my starring role on my website please. I would not mind it appearing on YouTube.
My readers are waiting to hear so please can you hurry up with the recording. And Cygnet Godden Green – Please don’t tell me you have lost it as I will be most disappointed.
