The following was written by Elizabeth – the first piece earlier on in her treatment, the latter piece is up to date and you can tell from the writing and thoughts how she has deteriorated due to all these powerful mind-altering drugs that have done her no good whatsoever.

I have the permission of Elizabeth to display this on my site:

 

Being on the Ward”

“Dear Sir/Madam

I can say that I don’t like being stuck on this horrible ward.   I have recently got a bit frustrated from the amount of people on the ward when I threw a book and a chair and threw water everwhere.   I can say that it is horrible because of my small room.

 

I really need to be moved on because you know my life is stuck and I feel confused.   I am currently waiting for Rehab that means moving somebody somewhere you know.   Please help me get a room at Rehab.   I have a good friend at Rehab called …………………

 

Thank you for reading this.

 

Yours sincerely”  

 

Unfortunately it was after nearly 2 years Elizabeth got moved on to another ward – supposedly for Rehab purposes.   The friend she mentioned got moved into supportive housing and she was the only girl amongst about 9 men on a mixed ward that had separate sleeping accommodation – a recipe for disaster for a vulnerable patient.  On this ward I noticed patients just lying around not doing much at all – it was on this ward she started to smoke and this was allowed on the patio area outside the ward.  I did not want her to end up like the others, inactive, lying there on the sofas or half asleep so I booked Elizabeth on a floristry course at a local college myself and this caused uproar amongst the team.  I also tried to get her involved with a team sport (netball) which was her wish at the time and this was completely outside of the mental health, also in addition I was taking her to running and special olympics.   She was an excellent runner and once was fit enough to go running with my gym members which is more than I could have done.  Anyway, once a week when I worked part time I would pick Elizabeth up and take her to the college.   Most evenings she would go into the class but there were one or two she flatly refused to go as she did not feel well enough.   Almost every time she suffered from panic attacks before going into the class and could not breathe.   However, you should have seen her when she finished the class and came out with lovely flower arrangements that some of the nurses themselves wanted to purchase and every bit as good as what others made. She was happy, laughing – like a different person altogether.  Clearly Elizabeth has artistic talent and enjoys this sort of thing. but needed help with her written work and unfortunately although help was available if she wanted it the problem is that once someone says “no” after that no-one bothers.    “No” could have been said at a moment when Elizabeth was feeling particularly bad and no-one pursued this any further or gave any encouragement.   As a result she has no certificate to show for all her efforts – the college were upset and so was I.   The psychiatrist who was furious at the time actually said it was a good thing what I did to take her to college.  

 

As far as Rehab goes – everything is “in-house” – patients are not encouraged to mix outside of mental health services and I think this is totally wrong.  Her social worker said for instance that “she was happier mixing with her own kind”  How wrong this is – how can someone be integrated into society effectively.  There are lots of groups designed purely for mental health patients and some of them are good but it is not a good thing to mix solely with other patients who all have serious problems of their own.    I think there should be a mentoring scheme available where say university students, particularly those studying for nursing qualifications/psychology got involved on a one to one basis with patients like my daughter.  They could learn from meeting the families and encourage someone to do things.  A young person is more in tune with someone like my daughter than a psychiatrist for instance.   When I tried to do this and appointed someone I knew well around her age who was studying for nursing –  it caused uproar amonst the team- by this time Elizabeth was living in the community.   Patients are left to go downhill.  Elizabeth not only referred to the ward as being “like prison” but said she did not feel stimulated and also commented on being “institutionalised”.   When she was first admitted on the acute ward again I did not want her to end up like the rest and tried to get her a job – the job was working with old people where my father went to a day centre as this is what Elizabeth said she would like to do.   She got on extremely well but when they asked for a reference from the team this was not forthcoming at the time so she missed out.   Not only did Elizabeth get on with the staff but also with the old people as she was used to seeing her grandfather who had Alzheimers and by the way was on anti-psychotics – Rispiridon and Seroquel.   When you as a parent try to get involved and to help someone you get called pushy, overbearing, abusive – you name it – I have the files and have read them!

Now Elizabeth feels she cannot do anything – she has lost her confidence, suffers from panic attacks amongst other things, has no energy, no enthusiasm – does not care any more after being labelled with the serious condition of Schizophrenia but how many other diagnoses are in the files –  For instance I have the files and there is not only that condition but also Aspergers.  Who is right and who is wrong?    One expert says one thing but the majority of the experts stick together and say the other and that is why I do not trust any of them and have challenged them all.    I believe the current behaviour of Elizabeth is caused directly by the drugs and have sought outside private professional help who have confirmed this with a fully qualified Orthomolecular Psychiatrist and have taken her to a private clinic –  I am also in touch with other experts and have signed up to www.drugawareness.org.

People are not aware of the dangers of these drugs and what it does to people and once on them you are chemically brainwashed, weakened and they have the effect of dehumanising a person.  Many people trust these professionals and do  not know what is going on in reality.   Elizabeth has not got over bad things that have happened to her therefore the drugs have not worked but when you ask to come off them – no-one wants to know and the psychiatrists just ignore a patient who begs to come off them which is cruel and abusive to continue to ply a patient with these awful drugs against their wishes.  There are no facilities for patients to come off psychiatric drugs safely in this country and Yes it can be done but it is only when things get really severe like in the case of Elizabeth that the teams are forced to listen and do something about the situation.

Alternative care should be available for everyone in my opinion to give choice to patients.  Every NHS hospital should employ an Orthomolecular Psychiatrist.

By the way – thank you so much Dina for your contribution to the site in writing about the shocking care available – Drugs and psychiatrists are like drug pushers who experiment on a patient without having any scientific evidence behind their claims of diagnosis.    Patients and carers believe what is told to them as I once did but now I have found out the truth –  IT IS ALL DOWN TO MONEY AND THE MORE PRESCRIPTIONS THE MORE MONEY.

 Now for the second and most recent piece of writing from Elizabeth:

“Today Sun 8 January Mum’s been talking to me about having my cat live with me but unfortunately I dont feel well.  I’m still on the medicine – I have the devil attack me a lot unnecessarily.  I don’t hate the devil only the ones that expectme to respond and I cant  – not I …..dont want …..but I sometimes simply haven’t got any words to say.   I feel forced against my will.   I will only do what I need to – I have had troubles recently – people staring at me at the shopping centre.  This makes me paranoid.   I love my cat though he is very nice.

About where I live – my Mum is upset and didnt like being banned from the building where I live.  I need to go in somehwere to come off the medication.  Please could you arrange it as I feel terrible.  I get very bad headaches.  At night I get nightmares/hallucinations after I take it.  Please can I come off the medication and go in somehwere nice.”

 

This writing was barely legible with lots of crossings out – you can see the difference between this and the last piece of writing – THIS IS WHAT THE AWFUL DRUGS ARE DOING – ELIZABETH NEVER SUFFERED FROM HEARING VOICES IN THE FIRST PLACE – SHE DID NOT SUFFER FROM HALLUCINATIONS.  WHAT IS IN THESE DRUGS?  WHEN I APPROACHED THE DRUGS MANUFACTURER OF SEROQUEL THEY SAID THEY WERE FORBIDDEN TO SPEAK TO ME BY THE BRITISH PHARMACEUTICAL INDUSTRY.

This weekend is the last weekend ont he acute ward for Elizabeth thank goodness and I hope to see her today and we will go out somewhere as we usually do but it is a nuisance I have not got my car back from being repaired and this will restrict where we go.    

 

I will write later about this.

Today I have not seen anything of Elizabeth but know she is safe and well with her grandparents.   I have had the chance to catch up on things at home and have spent a good deal of the day shopping but when I got back I saw all the details of the leading hospital that Elizabeth is due to go into on Tuesday had been sent to me by post.    I skimmed through them – there certainly is a lot to read.

On the surface it sounds good however I am not going to get too excited – at the end of the day I will not be at all happy if they do not take her off the drugs that do not work in accordance with her wishes and I will become extremely outspoken as this will be against my daughter’s human rights.

I then sat down and watched more of the shocking dvds that the CCHR sent me.  I saw one called “All Fall Down”  – featuring children diagnosed with ADHD and put on Ritalin.   It showed how these drugs are a stimulant rather than drugs that calm someone down.  It contained interviews of people affected.

I then watched a dvd called “Psychiatry’s Prescription for Violence”.  In this dvd it showed the link between major homicide cases and these harmful drugs – in each and every case anti-depressants had been prescribed.

I thoroughly agree with this as I have seen the effects of anti-depressants on my daughter and then anti-psychotics.   It is every bit true that these drugs can lead to extreme violence/aggression/delusions and hallucinations amongst other things.      

Unfortunately my film which I took of Elizabeth’s kitten has not come out well.    However I will still post it on You Tube and will probably get some comments to the effect that I would qualify for the worst photographer of the year.    However just 1 photo came out well of Fluffy which I will post on this site.     No matter how bad Elizabeth is feeling and how awful her moods may be seeing the kitten has a miraculous effect.   There is no doubt that this is better than all the medication in the world.

I am going to sign up to the www.drugawareness.org as this website will give me useful information bearing in mind Elizabeth’s admission into the leading specialist hospital.  

One good thing is the hospital, although a long way from where I live is not too far from where I work so I will get to see her.

I WISH I KNEW IN THE FIRST INSTANCE WHAT I KNOW NOW THANKS TO THE CCHR ABOUT THE HARMFUL EFFECTS OF THE DRUGS AND WOULD URGE ANYONE TO ORDER THESE DVDS ESPECIALLY “DIAGNOSTIC STATISTICAL MANUAL – PSYCHIATRY’S DEADLIEST SCAM” 

I WILL TALK MORE ABOUT THIS WONDERFUL INFORMATIVE DVD IN FUTURE BLOGS AND WILL BE POSTING SOME THINGS WRITTEN BY MY DAUGHTER WHO IS NOW NOT IN A FIT STATE TO DO ANYTHING ANY MORE AND ON A HUGE DOSAGE OF HARMFUL CHEMICALS THAT DO NOT EVEN WORK.

 

 

 

At last good news has come and a placement for Elizabeth with the specialist hospital early next week.  This is the news I have been waiting for over the past months.  The hospital is a long way from home but at the end of the day, if it means something is done then this is wonderful news.

I have made sure that the team there know it takes more than a few months so I have been told by experts to come off powerful mind-altering anti-psychotics on the dosage that Elizabeth is on.   I have been told it could take up to a year and must be done on a gradual basis and very slowly.   I have also been told that coming off such drugs can be more dangerous than staying on them however if a patient is that unhappy and the drugs do not work then they should be entitled to come off the drugs.  If I had not challenged things then Elizabeth would have probably remained on them for the rest of her life.

I will keep you informed of her progress over the forthcoming weeks.

Had a nice day today and dinner cooked by my younger daughter who when to pick up Elizabeth from the ward.   She was very quiet and did not speak much today at all.    She bought me flowers and chocolates.  It was nice to all be together,particularly as her behaviour was good.

The weekends are special to me as I work during the week and am not home much.   I try to make the most of my time with Elizabeth as the rest of the family are not often around at home.  There is not a day that I do not think about Elizabeth and wonder what she is doing, how she is coping etc.   All the time I am hoping for some good news – the transfer to the specialist hospital.

 

We did not go out anywhere today but stayed in and watched a video at home and all too soon it was time to go home.

 

Before I took Elizabeth back to the ward I showed her this site and comments written –  I think it is extremely brave of someone to speak out about their condition and talk openly about it.    Dina thank you very much for your comments.

 

I made sure I dropped a letter for the Consultant Psychiatrist on the ward – I was not happy with his recent letter at all – he states he is sure that my daughter’s condition is that of the whole team but another top professional disputes this.   Besides having watched the wonderful dvd from the CCHR I will never believe another diagnosis again.

 

Conditions on the ward were awful tonight – the atmosphere volatile with 2 patients aggressively arguing and staff on standby.  This tense and noisy atmosphere is no place for anyone to get better.

 

I have been in touch with patients and professionals from the States and in the meantime have been invited out by my support group, many of whom do not yet know about my website.  

 

Some pictures/film have been taken of Fluffy our pet kitten.    He likes to watch the TV when football is on.   I will be posting these very soon.

 

I hope there will be good news this week of a date.    Elizabeth has written to a patient’s support group asking them to tell me to do everything I can to move her soon – this is her one hope.    There is no future for her whilst on these harmful chemicals – she will never ever get better on these drugs.   Some patients are happy on the drugs – all well and good but others have adverse reaction to them like my daughhter.

 

Sadly the weekend has come to an end and I do not see anything of Elizabeth during the week as I get home from work too late.

 

Not only will I be posting pictures but I have the permission of my daughter to post some of the writing she did whilst in hopsital a while back and I will do this shortly.   She is in no fit state to write anything at the moment.

 

I have seen my daughter today. 

 

I am allowed to take her briefly off the ward which I did.    Her mood was a bit unstable but going out for a drive helped her to calm down.  We all went for lunch out somewhere peaceful in the countryside.

 

We visited a hairdressers where my younger daughter had an appointment and then went home to see the pet kitten.    Unfortunately her mood was becoming a bit unstable so I took her out for another drive and we went shopping and then dropped her back to the ward.

 

Tomorrow is Mother’s Day and my younger daughter is cooking dinner for me.   I do not know yet whether I can have Elizabeth over – that depends on how she is.  

 

It is the drugs that are making her unstable in her behaviour and I cannot wait until the process of reduction is in place.  

 

I am in touch with experts in the States and wish to advise everyone of further links:

 

www.drugawareness.org

www.ssristories.com

Apparently withdrawal is more dangerous than continuing on medication.  It is therefore very important that this be done very very slowly over a period of about a year or so under supervision of a qualified specialist. 

It will be interesting to see how things go with my daughter at the specialist hospital – it is good to have this knowledge in mind as the teams are often dismissive towards carers/families.

 

I am hoping that my younger daughter will film “Fluffy” as I will put him on You Tube and I am sure that any films of him will attract more attention than whatever I write but I think that everyone should be aware of what is going on and if this draws attention to my website then I will be happy.  

Having a pet – cat or dog is very good for someone who is suffering from the effects of mental illness – in fact it is more beneficial than all the drugs in the world and I have seen this at first hand.

 

I wish to draw people to the website of the Soteria Group who are trying to set up  Alternative Care in this country.   There is some interesting research done by a Mr Robert Whittaker.

 

It is shocking to hear these psychiatrists getting one thing after the other wrong on the dvd I have – I have asked for scientific evidence from Elizabeth’s Psychiatrist – every time I question him he tries to move on and change the subject.   This expert appears to dismiss the diagnosis of another expert in the files and it is lucky I obtained them and even more lucky that I appointed a private Orthomolecular Psychiatrist myself as I have discovered the main thing on offer is just drugs and this is not the answer.

 

I cannot see a future for my daughter if she is left to be on these harmful chemicals that do not work and she will be placed in a specialist hospital miles away from the family.   

 

Now that I have seen an expert from this specialist hospital claims to have come up with a diagnosis in just 2 minutes you can be sure I will be keeping an eye on what is going on.  I only wish I could have seen these dvds earlier and now I am looking into other research by experts in the States too which may interest others.

 

I am sorry for the patients left to languish on wards and every ward should be like Cambion Four Star Wards.   I would urge everyone to look at their site as well.    This is how a ward should be !  especially as they value patient involvement and patients know best.

I will write about Mother’s Day tomorrow and hope that my younger daughter will take some good films for me.

 

 

 

I do not normally post anything mid-week on this site but today managed to speak to the Consultant currently in charge of the care of my daughter.

The Consultant is convinced in the diagnosis given by the team – yet there is conflict of opinion from another specialist.   The Consultant believes in drugging patients with harmful medication even if it is against their wishes.    I asked him on what scientific evidence did he base his opinion on the current diagnosis and he could not answer this question and tried to change the subject. 

 

There is still no news as regards the transfer to the specialist hospital and it could take weeks –  what a waste!   In the meantime she is being drugged up to her neck on harmful chemicals and I am not at all happy about this.   There is no reason why this should be occurring against a patient’s wish – this is abuse!     They do not care –  it is far easier to keep someone on the drugs than take them off which can take up to a year to be done safely.  

 

I offered to lend the doctor my dvd I obtained from the CCHR but he declined.  

 

I requested he liaise with the private psychiatrist I appointed who gave a fabulous prescription of vitamin/mineral supplements.   He is an Orthomolecular Psychiatrist and I suggested that he should look into becoming an Orthomolecular Psychiatrist himself – this should be provided within the NHS.  This is what is lacking – drugs after drugs – that is all that is on offer.  It is apalling care and abuse.

 

How can a psychiatrist see what is in someone’s head –  how do they come to their conclusions.   There are over 400 diagnoses to choose from in the Diagnosis Statistical Manual and there is big money to be made in having patients for life. 

 

Noone cares about these patients who are vulnerable and not able to speak up for themselves – they are just dumped on an acute ward where they do not get better and return time and time again.  

 

One patient said “everything is plastic here”   I know what she means. 

 

The atmosphere is not peaceful –  it is noisy – the patients are often distressed.  

 

During the day things are orderly but it is at night time when you get to see what is really going on.   There is nothing to do on the ward at weekends.  This is no place to get better and the same patients return time and time again.

 

I am going to talk at the weekend all about how wards should be and the fabulous Cambian 4 Star Wards.  

As far as the NHS care goes they have failed my daughter.   What good is one specialist hospital – how can that serve everyone who needs alternative treatment.   Everyone is an individual.  The care is simply NOT WORKING.   I am greatly in favour of the NHS reforms as far as mental health care goes.   The patients should have a say like they do in the running of the wards at Cambian 4 Star Wards where they are made to feel useful and make valuable contributions in terms of their ideas of improvement.  Patients are valued and feel special on Cambian 4 Star Wards whereas they are made to feel like nothing under the local mental health trust.

 

It looks unlikely there will  be good news about her transfer this week and how much longer is this going to take thanks to the team’s mistakes.      

One thing is for sure the medication Seroquel is the cause of hallucinations, the very effects/symptoms of Schizophrenia which my daughter did not suffer form in the first instance.  It causes terrible panic attacks, nightmares, weight gain, aggression, tiredness and these are just a few things.   I have written several times but the FDA has done nothing!  This drug should be banned.    Medication is not the answer and there needs to be something better in place like CBT.

http://www.starwards.org.uk/

revelationsuk@tiscali.co.uk

http://www.cchr.org.uk/

http://www.soterianetwork.org.uk/local/brighton/brightongroup.php

Above are some useful links to other websites which will be interesting to carers/patients alike.  

 

Starwards are the fabulous wards that are geared towards individual patients, which are funded by the NHS but this is generally not well known.  This was refused to my daughter yet I found out that others were offered this facility.

 

Revelations UK is a fabulous website set up by a mother in support of her daughter.   I would fully recommend anyone looks at this.

 

The CCHR is gaining more and more recognition as a leading mental health watchdog.   Thank goodness for them as I trusted these so called professionals before and now I know the truth.  They supplied to me the most informative dvds That I would recommend anyone sees.  You only  have to look at the title of my post to see what these experts have in mind.  Not all are like this  because I managed to find an Orthomolecular Psychiatrist but I believe the majority driven by prescribiing harmful chemicals that do not work for some at all.  Four diagnoses in the file point to the fact they do not know what they are talking about.

Soteria is a group trying to set up Alternative care which is much needed in this country.  Patients have the right to have choice in care but there is none at persent – all too often they are kept down and ignored.     I would like to see ternative care centres set up in this country.

 

TODAY

Today it was nice weather so this morning I decided to go to a Farmer’s Market which was very nice.   The Farmers Market on Sundays is held in a beautiful location and there was much choice in good good to buy.   I then came home, got on with a few chores before writing a letter to the Doctor on behalf of my daughter.   Every week I am chasing for the place at the leading hospital that they promised .   This week they are supposed to chase up this appointment and I will make sure this is done.   This doctor should be liaising with the specialist I appointed to see how best they can reduce my daughter right now.   

 

I went to visit her – she was not herself at all today and the ward was noisy and there was commotion going on with a patient who was very upset at not being allowed out and wanting to smoke.  This noisy environment is not the place to get better and the treatment is drugs and nothing much else.   There is no garden to sit out and nothing to do at weekends.

 

I am allowed to take her off the ward so I did even though she was not well but took her to a quiet and lovely park with beautiful views not far away from where I live.    By this time she had calmed down.   I then bought lunch for my daughter and we went to a lovely pub down many country lanes where there were animals and she loves animals.  

 

I have started to film the pet kitten who is called Fluffy and will feature clips of films on You Tube shortly.

 

Unfortunately my daughter was not well enough to write herself this week but she has written things in the past and I will ask her permission to feature this next week.

 

Next week I will speak more about the shocking care  and then I will write about care in the community. 

 

 

I have just returned from visiting my daughter on the local acute ward.  It has now been over a month and she is still stuck on the ward with other acutely ill patients, drugged up to her neck on harmful chemicals that do not even work and have changed her beyond recognition.    Today, the rest of the family, grandparents and father visited separately and were astonished at her decline.  

I gave them the dvds to watch that I obtained from the CCHR website which I would fully recommend that anyone in a similar position sees.   One of the best dvds I watched is called “Diagnostic & Statistical Manual – Psychiatry’s Deadliest Scam”.   I am allowed to take my daughter off the ward for a short time and brought her home with me and together we watched this dvd. I do not believe in hiding anything from her.  It was truly shocking to see the extent of the abuse going on with eminent psychiatrists and psychologists being interviewed and freely speaking about what is going on, some of them laughing.    

 

It is all down to making money.   One psychiatrist said something like “prescribe away and you will have a patient for life”  – how very true because, once on these drugs you cannot just come off them.  It was also shocking to see how many different diagnoses there are as time goes on – these are constantly increasing.  

 

My family were told the drugs were not addictive when in fact in order to come off you need specialist help and careful supervision, as the withdrawal from these drugs can be very dangerous in terms of risk of suicide -the drugs themselves cause violence and aggression – the sort of thing that suddenly brings huge media attention when an incident occurs such as a multiple shooting or similar – this reaches headline news.    Sadly most of these patients are helpless and vulnerable and of no harm to anyone but themselves – it is so very sad to se as they do not get proper support and once dumped back into society, there is not any kind of backup care in place for some.   I do not see many visitors on the ward and there is nothing much for patients to do there, especially at weekends.    I have witnessed patients screaming out for cigarettes and often this is ignored by staff who just sit in their offices.  

 

Getting back to the dvd, my daughter showed quite an interest in this because also it featured how quickly these so called experts can come up with a diagnosis without spending much time with a patient and without any scientific backup.  The dvd contained under cover filming of someone posing as a patient visiting specialists.    The Psychiatrists have this Diagnostic Statistical Manual with so very many different so called diagnoses listed to choose from so it is easy to label someone wrongly and there was also a part on the film that showed this being done when not one but three different experts got patients selected at random wrong with the diagnoses.   

 

Getting back to Elizabeth, she has been labelled four times now and none of the medication has worked and the team have come to the conclusion she is “treatment resistant”.   I believe the drugs are what are causing her great harm and will lead to long term health problems such as diabetes and affect heart, liver, kidneys etc if she is not taken off them which is what I want in accordance with her wishes.   They do not work, are a waste of money and I do not want any further experimentation done on her but it will not be easy to get her off 750mg of Seroquel (Quetiapane).   You cannot just come off this medication and it has to be done extremely slowly under the guidance of professionals and in a safe environment. 

 

The specialist doctor is supposed to be taking her off the medication completely but having seen this interesting and informative dvd how can you ever trust these experts again.   There was one from a famous hospital called Maudsley who laughingly said it took him just 2 minutes to come up with a diagnosis.  This is shocking.  

I would recommend people see this particular dvd and others available through the CCHR who do a wonderful job in informing people of what is truly happening.   I only wish I knew about this earlier on as I would not have let them experiment like they have done. 

 

I still do not rule out my daughter getting better one day but it will be a slow process and that will never happen whilst she is on these drugs.   Taking someone off is bound to throw their behaviour off balance and I have made sure I obtained my daughter’s consent to check and see what is going on when she is transferred to the leading specialist hospital.  

 

I do not know how long she will be left on this ward because of a dreadful error by the team in not checking to see if my daughter had a place at this specialist hospital and she lost the place as the letter was sent to a doctor no longer employed by them.  Now she has to wait and all the time she is getting worse.  

 

The new Orthomolecular Psychiatrist I have appointed myself prescribed various vitamin/mineral supplements and I am going to have to insist that the medical team at the local hospital give these to my daughter as they may help in her being reduced.    They are abusing her human rights and other patients and some are intelligent on the wards and have voiced their distress.  

 

The UK is supposed to be a civilised country but I am afraid this is not the case.   I have seen the most apalling things going on in the wards and when mistakes are made, they are covered up.   It is a good thing I obtained the files but despite my daughter’s consent the team do not want me to see the latest files.  I dread to think what else they have to hide.   Needless to say I have been labelled myself in the files in a shocking manner by some of these professionals who do not like it when challenged.  

 

The professionals get away with a lot because patients are too weak or afraid to speak up and carers do not have the strength to.   I have the strength to stand up to them all on behalf of my daughter and would welcome the chance to give the whole matter worldwide publicity.

 

Tomorrow I will again visit my daughter and may get her to write something herself and I have told the rest of the patients they are most welcome to write on this site their feelings about the care.

There is a lot of uproar at the moment about NHS care and reforms but I personally think huge reforms are needed under the mental health as I have seen several patients back on the ward yet again not getting any better.   There needs to be a complete overhaul so that patients do get better and have access to more specialised units or projects even if these are not in the local area – I believe there is no choice for patients and relatives like myself would be prepared to send their daughters and sons somewhere much nicer than a hospital environment where they are listened to and attention is paid to nutrition and Orthomolecular Psychiatrists are employed like the specialist I appointed.  There is no such place in this country and I would be prepared to send  Elizabeth anywhere in the world where I could find such wonderful care.

 

I had to turn to the private sector in the end as regards my daughter’s care and whilst researching matters came across a wonderful organisation where wards are geared for the individual and ideas are put into practise by the patients themselves who even get involved in the running of the wards. I will feature this in another blog. Patients are left to feel useless and give up once they are labelled – there is nothing to stimulate or encourage them to do anything and some lose hope – there is also the factor of the harmful drugs and these are often increased when a patient is sent to the hospital.  I have seen patients begging to come off them and no one listens because of these evil psychiatrists who carry on drugging them on harmful chemicals that do not even work.

If my daughter is well enough I will get her to write something tomorrow on this site.  I intend to speak more about the care under the NHS before turning my attention to the care in the community and the Government/British Pharmaceutical Industry who make a fortune out of these “lifetime patients”. 

I am now going to write a little about the awful care provided.

The NHS care provided is centred mainly around drugs – prescribed drugs.  There is no choice in treatment.  My first concern was about the addictive nature of the drugs and I was told by one of the first psychiatrists that these drugs were not addictive.   I only wish I knew what I know now.   I was told along with my daughter you have to be on them for the rest of your life when in fact this is rubbish. However, the fact is you cannot just come off these drugs easily and you need professional help and this is not readily available.

Elizabeth is currently on a ward she describes as “prison”.   She is not allowed out unaccompanied since she has gone missing and due to her vulnerability.  She is on a very high dosage of the anti-psychotic drug Seroquel or (Quetiapane).  My father who had Alzheimers was also on this extremely harmful so called medication.  I have already complained to the FDA about the side effects of this drug and contacted the manufacturers, Astra Zeneca.   They said they were willing to contact the team however they were forbidden to speak to me further because of the fact they are governed by the British Pharmaceutical Industry.  Elizabeth has begged many times to come off the medication but noone has listened ———–up until now – up until I have had to challenge the whole team which I will go into later on. 

Anyway the “care” has been medication on the whole and little else.  The various Psychiatrists have been forced to admit to me that they prescribe on a “trial and error basis”.  This medication is extremely harmful and can lead to heart, lung, liver problems and diabetes/serious side effects.  They are the cause of suicide and homicide and severe anxiety/hallucinations in my daughter’s case and aggression/violence.

The first medication prescribed was Cipralix – an anti-depressant.  This made my daughter’s face itchy to the point she was scratching at her face all the time, resulting in scars.  It made her aggressive and she suffered from severe headaches.

The next drug was an anti-psychotic called Rispiridon – again this was supplied to my father who had Alzheimers.   This caused massive weight gain and she felt terrible on it.    Because of this, the psychiatrist prescribed a newer drug he praised highly called Aripraprazol.    This was about the worst drug yet I saw it recommended on the site of NICE guidelines.  This drug was supposed not to lead to high increased weight gain but instead I thought my daughter was suffering from bullimia – she just did not get on with this drug.   I started to look up the side effects as I could see at first hand my daughter was suffering.   “Elizabeth” took herself off Aripraprazol as she did with Cipralix and she was OK at first for weeks on end.    Then after an evening out at a nice show her behaviour went beyond control so I took her to a neighbouring NHS trust Hospital to see if they could give her something to calm herself down.  After a serious incident there she was taken in and admitted there but just for a week before being sent back to this area’s awful acute wards which at the time had cubicles for bedrooms.  I visited her the next day but she was still disturbed however they wanted to discharge her after her admission which was wrong.  ON seeing the ward I was glad I brought her as there had been an extremely serious incident that happened to my daughter whilst under the care of the Day Hospital of the local hospital but unfortunately this was shortlived as she got sent back to the home area.

 

The neighbouring NHS Trust hospital then prescribed Olanzapane which again I looked up and to my dismay I was horrified by what I had found out about this harmful drug and when I found this out I challenged the team  who changed the medication to Quetiapane or (Seroquel).  This was the same as my father’s changed prescription.  Now the team want to change the medication to Clozaril which is against my daughter’s wishes and requires monthly blood checks for serious side effects.  I am backing her to hilt as none of these harmful drugs have worked so far.  They have in fact made her ten times worse.   The awful thing is I have discovered you cannot just come off them you need help.   It is easy to relapse on a low dosage and end up suffering from psychosis. 

 

Worst of all I started asking for the medical files and discovered several different diagnoses, some conflicting. 

 

I then started my campaign for my daughter who wished to come off the drugs and no-one listened to her so I appointed the most wonderful psychiatrist under the private sector.

 

I wish to refer everyone to the most wonderful publication which I will talk about next week obtainable through the CCHR website.   This is called Diagnosis & Statistical Manual – Psychiatry’s Deadliest Scam.    My daughter enjoyed watching this with me and this wonderful DVD has exposed the abuse that is going on as it contained interviews with top leading professionals who had to admit that diagnoses were not based on scientific evidence.

Next week I will write more about this and hopefully, I will get around to posting some pictures of the area in which I live.   

Despite the awful situation of having a daughter on an acute ward I do try to spend some quality time with her.   I had her off the ward yesterday and today took her to the cinema where she saw a lovely film called the Best Exotic Marigold Hotel.   I then took her back to the ward where she is still awaiting placement at the specialist hospital but this could take a few more weeks yet much to my dismay.